User Group 2015

Cross NetworkQuerying

Agenda

• The Cross Network Query Challenge

• A Registry Solution

• Moving Towards Big Healthcare Data

Slide - 1

Slide - 2

The Cross Network Query Challenge

Network #1

DataMart #2

DataMart #3

Investigator

Portal #1 Portal #2

DataMart #1

DataMart #4

DataMart #5

Network #2

Network #1 Credentials Network #2 Credentials

Shared DataMart

• The only way an investigator can do so today is to: Issue multiple queries On multiple networks With multiple credentials And recognize duplicate DataMarts

• And the more networks involved the more complicated this gets

One Investigator – Multiple Networks

12 Node Networks

# Portals #Credentials # Queries

1 1 1 1

2 2 2 2

3 3 3 3

Slide - 3

The Cross Network Query Challenge – Possible Solutions

• Stand alone network – too complicated for the investigator

• One massive network – social problem, could never establish governance

• Overlapping networks – administratively unmanageable

# 12 Node Networks

# Potential Connections

1 12

2 48

3 180

Slide - 6

The Registry Solution

Inter-Network Services

Registry

• Central “registry”, that knows every network and every network endpoint

• Centralized set of services that lets networks and endpoints discover one another, publish data, ask questions, and answer them

• Very similar to the way the Internet works today

Network #1

Network #2

Network #3

• And allows for the creation of Virtual Private Research Networks: A secure cross network collaborator “view” That is independent of the physical configuration Much like Internet VPNs

Investigator

Virtual Private Research Network

Slide - 7

The Registry Solution

Inter-Network Services

Registry

• Central “registry”, that knows every network and every network endpoint

• Centralized set of services that lets networks and endpoints discover one another, publish data, ask questions, and answer them

• Very similar to the way the Internet works today

Network #1

Network #2

Network #3

Investigator

Virtual Private Research Network

Slide - 7

The Registry Solution

Inter-Network Services

Registry

• Organizations register their presence

• Registrants can be nodes (organizations) or networks

• Registration is open to anyone, public or private

• Once registered, members can participate in any Virtual Private Research Network

• Virtual Private Research Networks behave just like PMN physical networks; same level of access control, project based requests, workflows, notifications

• Governance/policy enablement can be established by member within across VPNs

Network #1

Network #2

Network #3

Moving Towards Big Healthcare Data

Slide - 8

The Next Challenge

Once I can build my own Virtual Private Research Network across many networks, how do I…

• Find the right data?

• Develop collaborations once I find the data?

• Harmonize

• Insure data freshness and accuracy?

• Develop registries from cohorts?

source formats

schemas

data models

concepts

code values

return values

across models

User Group 2015

Cross NetworkQuerying