e-NEWS September 14, 2009

Dear Family and Friends,

San Diego Buddy Walk®

Saturday, October 17, 2009Balboa Park

Join the fun at this national event in support of local Down syndrome programs, research and advocacy efforts. Visit the 2009 San Diego Buddy Walk® website today at http://buddywalk.kintera.org/dsasd!View the Buddy Walk ® Flyer & Registration/Donation Form in English.Vea el volante Caminata Buddy Walk ® de inscripción y donativo en Español.

----------------------------------------------------------------UPCOMING EVENTS: For all event details go to http://www.efrconline.org/calendar/maincal.cfmLocal:9/16/09 Including Children with Challenging Behaviors - webinar9/17/09 Area Board XIII Meeting 9/19/09 Self Employment for Youth with Developmental Disabilities9/19/09 IEP Rights and Strategies for military families – MCRD San Diego9/20/09 March for California’s Future9/21/09 Excelling at School with Epilepsy9/23/09 Understanding Recent IHSS Cuts – Kearny Mesa9/23/09 Nonprofit Ethics and The Law9/26/09 Ask A Lawyer/ Pregunte-A-Un-Abogado9/26/09 IEP Tips & Pointers for military families – Camp Pendleton9/30/09 Transición a la Escuela Publica 10/05/09 Jobtoberfest 200910/06/09 Excelling at School with Epilepsy – San Marcos10/06/09 Understanding Recent IHSS Cuts - Carlsbad10/17/09 San Diego Buddy Walk – Balboa Park10/24/09 Imperial Valley Buddy Walk – El Centro

Regional/National:10/05/09 ADHD Virtual Conference

10/07/09 International AD/HD Conference – Ohio10/15/09 Autism Career Planning Conference - Buena Park11/5-7/09 Downs Ed International Conference – Newport Beach

Webinars or Teleconferences:9/21/09 Independent Media 2.0: Using Blogs, Video, And Free Social Media Tools To Revolutionize And Remix A Powerful Disability Rights Tool - Teleconference, 8:00pm ET View details9/23/09 Identifying Specific Learning Disabilities (webinar)10/20/09 Diversity and Engagement: Effectively Serving Students With Disabilities - Webinar, 1-3:00pm ET View details.----------------------------------------------------------------UPCOMING EFRC SUPPORT GROUPS: A detailed listing of all local Disability-Related Support Groups can be found at http://www.efrconline.org/efrc.cfm?pid=Support_GroupsPlease note: Due to funding issues, EFRC co-sponsored support groups are tentatively scheduled to resume in October. Please verify dates, times and locations on efrconline.org.

9/15/09 9/15/09 Down Syndrome Family Support Network (Early Childhood) - North County9/17/09 Down Syndrome Family Support Network (Early Childhood) – Central SD9/17/09 Down syndrome Support – Imperial County9/24/09 Asociación Síndrome de Down Red de apoyo a Familias (Primera infancia) – Central SD10/07/09 Down Syndrome Family Support Network Meeting (for all families of children all ages) - Central SD10/16/09 Grupo de apoyo (padres de niños 0-5) – National City10/21/09 Grupo de apoyo - Imperial10/23/09 Grupo de apoyo (padres de niños 5+) – National City

----------------------------------------------------------------HEALTH:

9/25/09 Flu Shot Clinic 10:00am - 1:00pmFREE Community Flu Shot Clinic & Meet the Pharmacist Event – Free Flu Vaccine for persons 18 years and older. Exhibitors will be offering valuable health information. Where: Martin Luther King Community Center, 6401 Skyline Drive, San Diego, CA 92114. The MLK Community Center is accessible by bus via SDMTS route 11. Note: This event is being held in the gym. We request that you wear soft-soled shoes to avoid damaging the gym floor. Light refreshments will be available. Clínica de Vacunas contra la Gripe y Consulta con el Farmacéutico Habrán vacunas contra la gripe GRATIS para personas de 18 años de edad y mayor. Habrá otra información invaluable sobre la salud. Lugar: Centro Comunitario Martin Luther King (Martin Luther King Community Center), 6401 Skyline Drive, San Diego, CA 92114. Nota: Este evento estará en el gimnasio. Les pedimos que se pongan zapatos se suela blandita para evitar un daño al piso del gimnasio. Habrá refrescos ligeros.

Feds Issue Swine Flu Guidelines for Special Education StudentsIf schools must close due to swine flu, special education students will stay home just like their peers, but may qualify for extra assistance once school resumes, according to guidelines developed by the department of Education.

Should schools close due to H1N1, or swine flu, students with disabilities will not receive educational services if such services are not being provided to general education students. But once school resumes, each special education student must be looked at individually to determine if extra assistance is needed to make up for the time and educational benefit lost.As part of the guidelines, the Department of Education recommends that schools incorporate students with disabilities in their H1N1 planning and consider ways that special education students could utilize distance learning, if necessary.http://www.disabilityscoop.com/2009/09/09/swine-flu-guidelines/4886/

Helpful websites about H1N1 www.flu.gov www.cdc.gov/H1N1flu http://www.fda.gov/Drugs/DrugSafety/InformationbyDrugClass/

ucm100228.htm  -- information on antivirals http://www.cms.hhs.gov/MLNMattersArticles/downloads/

MM6539.pdf -- CMS billing information http://www.cms.hhs.gov/Emergency/Downloads/

Medicare_FFS_Emergency_Qs_As_082609.pdf --Information for Medicare Fee-for-Service Providers

----------------------------------------------------------------RESOURCES:

Changing Destructive Adolescent Behavior - A Parenting course for parents of strong-willed or challenging children ages 11 and older. Classes are ten Tuesday nights. Begins September 29, 2009. Location: Carlsbad Senior Center, 799 Pine Ave., Carlsbad 92008. Total fee for materials and class: $25.00 for individual $35.00 for couples; no cost for Active Duty Military Families.Pre-registration highly recommended. To register and for more information, Contact Penny Velazquez at (760) 931-2167.

Cambiando la Conducta Destructiva de los AdolecentesEl Proyecto para Padres (Parent Project) son clases para los padres con hijos de 11 años de edad o mayores que sean de carácter fuerte o estén fuera de control y quieran mejorar la comunicación en familia. Las clases comienzan Martes, 6 de Octubre, 2009 de 6:00 a 9:00pm- Un total de 10 clases, solamente los martes. Se requiere inscripción adelantada. Lugar: Jefferson Elementary School, 3743 Jefferson St., Carlsbad. Costo de material es $25 por persona / $35 por pareja. Para registrase o para más información, llame a las Instructoras Jovita Barría o Dilcia Wiegand (760) 434-9099.

Department of Housing and Urban Development GrantsThe U.S. Department of Housing and Urban Development (HUD) is offering $20 million in grants to help elderly residents and non-elderly residents with disabilities the services they need to continue to live independently in their own homes. HUD is making these grants available through the its Service Coordinator Program that will support the hiring of service coordinators to help frail and at-risk elderly individuals and persons with disabilities access health care, meals and other critical support services. Application deadline is November 5, 2009. www.disability.gov/housing/news_%26_events

New SSI Telephone Wage Reporting System

Social Security has introduced a new automated wage reporting system for SSI recipients. It is called the SSI Telephone Wage Reporting System or SSITWR. The system allows SSI recipients to report their work income via telephone in the beginning of each month. SSI recipients who do not wish to report their wages by telephone can still mail or bring paystubs into a local Social Security office. There are certain limitations in using the Telephone Wage Reporting System. SSITWR will not allow deductions for certain work incentive programs. You cannot use the wage reporting system, if you have Impairment Related Work Expenses (IRWE); meet the definition of statutory blindness; have a Plan to Achieve Self-Support (PASS); have deemed income; or have more than one employer in a month. Who can use the wage reporting system? SSI recipients (or recipients of both SSI and SSDI) with no work incentive deductions other than the Student Earned Income Exclusion. SSI recipients can call to report wages during the first six days of the month. You cannot report wages using the telephone after the 6th day of the month. Contact Social Security at 1-866-772-0953 or a local benefits planner for more information on using the SSI Telephone Wage Reporting System.

Autism WebinarsFree webinars for moms of children on the autism spectrum. Listeners can submit questions before and during the webinar.  Topics that have been covered include OT, IEP's, insurance coverage, diets, ABA, Floortime, and social skills. webinars@momsfightingautism.com

Determine Your Child’s Readability LevelWant to determine the readability level of your child's schoolwork? You can evaluate your child's reading and writing levels by using Microsoft Word. Read more at http://specialchildren.about.com/od/learningstrategies/qt/readinglevel.htm?nl=1

----------------------------------------------------------------RECREATION:EFRC’s listing of local recreational programs can be found at http://www.efrconline.org/efrc.cfm?pid=Recreation

9/17/09 Chez Chanson Concert 6pmCharity concert hosted by Students for the National Association of Teachers of Singing at San Diego State University's School of Music and Dance - in support of A.R.T.S. - a reason to survive. Location: SDSU Smith Recital Hall. $5 minimum donation for non-interactive audience seats. A.R.T.S. is dedicated to healing, inspiring and empowering children facing life challenges, by providing innovative arts-based programs, education and opportunity. View details.

9/17/09 Kayaking 4-6:30pmJoin the City of San Diego Park & Recreation Dept. Therapeutic Recreation Services Adaptive Sports program designed for individuals with physical disabilities (5yrs-adult). For more, contact Leslie at LRobinson@sandiego.gov, 619.525-8247 or 619-692-3866TDD. $25 fee includes equipment provided for 4 sessions.

9/19/09 Carnival Join Therapeutic Recreation Services and Gigi's Playhouse for a fun filled picnic and carnival at the War Memorial Buidling in Balboa Park. This is a kid zone

activity sponsored by the City of San Diego Park and Recreation Department. Call Leslie at 619.525.8247 or email lwillis@sandiego.gov

9/26/09 Walk Now for Autism at De Anza Cove in Mission Bay Park, San Diego.

9/27/09 Kick Back Club Beach Party 11:00am-2:00pmMeet at North Crown Point Shores for the annual Day at the Bay for a BBQ lunch with fun sports and games. Bring swimsuit, towel, water shoes and sunscreen. Cost - $5. Sponsored by the City of San Diego Park and Recreation Department. Must RSVP before Sept. 23rd - call Leslie at 619.525.8247 or email lwillis@sandiego.gov

9/27/09 Sail-a-thon & Resource FairEveryone will enjoy a FREE sailing trip, have a free lunch and play outdoor games in San Diego, CA. Other free sailing events in Southern California:San Diego: September 27 and November 1.Marina Del Rey: September 18, 19 and 20 and in November 6, 7 and 8.Dana Point: September 26 and October 31.Heart of Sailing, a non profit organization, that introduces sailing to special needs children and adults as form of education and recreational therapy. This free service is a family or group activity. Visit www.heartofsailing.org  

10/05/09 Day on the BayFREE jet skiing, rowing, water skiing and sailing for individuals with disabilities - staff and equipment provided by Mission Bay Aquatic Center and Kawasaki. Location: Crown Point Shores, 3700 Corona Orienta Road, San Diego, CA 92109. Lunch is provided.  Pre-registration is required by October 2.

----------------------------------------------If you enjoyed this eNEWS, please consider forwarding it to friends and family to spread the word of upcoming workshops and events, links to new sites and up-to-date information about the special needs community. FORWARD TO A FRIENDThis e-NEWS has been brought to you by Exceptional Family Resource Center.If you have comments or would like to unsubscribe, please contact us at efrc@projects.sdsu.edu . Visit http://www.efrconline.org or call 1-800-281-8252.Exceptional Family Resource Center does not promote or recommend any therapy, treatment, institution, etc. and does not espouse any particular political, educational or religious views. Inclusion of information or resources does not necessarily imply promotion or recommendation by EFRC. Content is provided for informational purposes only.