voice of brain injury · the brain injury association of america is the voice of brain injury....

The Brain Injury Association of America is the voice of

brain injury. Through advocacy, education and research, we

bring help, hope and healing to millions of individuals living with brain injury, their families and the

professionals who serve them.

AnnuAl RepoRt2011

VOICE OF BRAIN INJURY

2011 Annual Report Page 1

2011 BIAA BOARD OF DIRECTORS Chairman Gregory J. O’Shanick, M.D. Richmond, VA Past Chairman Joseph C. Richert, Esq. Romulus, MI Chairman-Elect James S. Misko, Psy.D. Dripping Springs, TX Chairman Emeritus Mark J. Ashley, Sc.D., CCC‐SLP, CCM Bakersfield, CA

Vice Chairperson for Finances & Records James F. Humphreys, Esq. Charleston, WV Vice‐Chairperson for Program Outcomes Virginia (Ginny) Lazzara, RN, BSN, CRRN Chicago, IL National Medical Director Brent E. Masel, M.D. Galveston, TX President and CEO Susan H. Connors Vienna, VA

Carol Bray, MSW, CBIS Chevy Chase, MD Daniel S. Chamberlain, Esq. Indianapolis, IN Roberta DePompei, Ph.D., CCC-SP/A Akron, OH Bud (Brant A.) Elkind, M.S., CBIS-T Hillsborough, NH Wayne A. Gordon, Ph.D. New York, NY Dennis R. Hays, Esq. Bakersfield, CA Robert (Bob) Longo, M.S. Bartlett, IL Anne McDonnell, MPA, OTR/L Richmond, VA

Alison Schiebelhut Arlington, VA Drew A. Nagele, Psy.D., CBIST Gibbsboro, NJ Christopher Nowinski Boston, MA Christopher Slover Austin, TX Caroline Suplizio, EED Washington, DC Tina M. Trudel, Ph.D. Provincetown, MA Martin Henry Zink, III, M.D., Ph.D., FACC Leawood, KS

Board meetings were held Feb. 25, May 20, Aug. 26, and Dec. 2, 2011.


Dear Friends: Thank you for making the Brain Injury Association of America the Voice of Brain Injury! In 2011, your support made it possible for BIAA to advocate for life-saving research and desperately needed healthcare for children and adults who are injured – often through no fault of their own. Your support made it possible for BIAA to prevent injuries through public awareness and to provide much-needed information and education for family caregivers and professionals. This year alone, BIAA was mentioned in the media more than 1,000 times, and more than 1,000 people visited our website each day. In 2011, BIAA answered thousands of calls, letters and email messages through our National Brain Injury Information Center, 1-800-444-6443. I know you understand how critical it is to have a knowledgeable and compassionate voice available when help is needed. On behalf of the Board of Directors, volunteers, and staff, I am pleased to present the Brain Injury Association of America’s 2011 Annual Report.

Susan H. Connors, President/CEO Brain Injury Association of America

A Message from the President/CEO


National Brain Injury Information Center (NBIIC) The Brain Injury Association of America (BIAA) established the National Brain Injury Information Center (NBIIC) to assist individuals and families who experience the life changing, sometimes devastating effects, of brain injury. Callers who dial 1-800-444-6443 are automatically linked to rehabilitative, legal, financial and other support services critical to maximizing recovery. The NBIIC program offers consistent, user-friendly information about brain injury provided by trained brain injury specialists. In 2011, BIAA responded to 2,899 requests for information. CALLERS TO BIAA’S NATIONAL BRAIN INJURY INFORMATION CENTER

In 2011, 16 Brain Injury Association state affiliates participated in the NBIIC program in 2011. Collectively, we responded to more than 40,000 requests for information about brain injury.

Family/Friend 49%

Injured Person 31%

Professional 18%

Veteran 2%


The top 10 topics of information requested from the Brain Injury Association of America in 2011:

Sample responses from people who contacted us for information and support: “Thank you for taking the time to respond to my plea, with so much thought, insight, and information. I feel like I have some new places to look, so thank you for that!” “I can't thank you enough for all of your help. I will contact these resources and seek help. You are the first person who has made me feel better and that maybe we have hope.” “I cannot thank you enough for your help and for all the useful information. There are more resources in your email than I have been able to uncover in all three of the years since my injury. I am greatly indebted to you and your association and if I find myself in a position to give back or help in any way I assure I will do so.”

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C o p i n g

C o g n i t i o n

M T B I

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Top Ten Topics of 2011


Advocacy BIAA’s multi-year advocacy campaign to ensure individuals with brain injury benefit from federal healthcare reform was reflected in an October 2011 Institute of Medicine (IOM) report commissioned by the U.S. Department of Health and Human Services (HHS). The report, which recommends the criteria for individual and small group health insurance plans beginning in 2014, incorporates many of BIAA’s positions. The Traumatic Brain Injury Act is the only federal law authorizing a comprehensive, coordinated approach to brain injury prevention, research, education and service system access for civilians in the U.S. BIAA, in partnership with other stakeholders, worked throughout 2011 to strengthen long-range planning and secure $16 million for TBI Act programs in 2012. BIAA and its partners, including the National Association of State Head Injury Administrators and the Congressional Brain Injury Task Force, also began planning for the TBI Act’s reauthorization in 2012. In collaboration with Wounded Warrior Project, the Congressional Brain Injury Task Force, Senate Armed Services Committee and select Senate offices, BIAA persuaded TRICARE to define in writing its coverage of cognitive rehabilitation for active duty military and medical retirees. At BIAA’s urging, the U.S. House of Representatives voted to amend the FY12 National Defense Authorization Act to authorize $1 million for the development of treatment guidelines for post-acute brain injury rehabilitation. Rep. Todd Platts introduced the amendment with support from Rep. Bill Pascrell and the staff of Rep. Gabby Giffords. A colloquy between Reps. Platts and Pascrell and Chairman Young of the Defense Appropriations Subcommittee made clear the intent of Congress is for the Secretary of Defense to allocate funds to the Uniformed Services University of the Health Sciences (USUHS) to collaborate with the private sector in writing the treatment guidelines. Throughout the year, BIAA worked with advocates from Ohio State University and JFK Johnson Rehabilitation Institute to persuade the Senate to include report language accompanying the FY12 appropriations bill supporting the work of the TBI Model Systems of Care Program by urging the National Institute on Disability and Rehabilitation Research (NIDRR) within the U.S. Department of Education to allocate the funding needed to sustain the important work of the existing Model Systems Centers. BIAA facilitated a news conference featuring the Congressional Brain Injury Task Force, the office of Rep. Gabrielle Giffords and BIAA’s volunteer medical director Brent Masel urging HHS to standardize access to care through the rule making process of the Patient Protection and Affordable Care Act’s minimum benefits package. BIAA spokespersons were featured in coverage of the event and in other stories carried by national outlets such as ABC News, The Washington Post, ProPublica/National Public Radio, USA Today, New York Times and US News & World Report and in local and regional Associated Press stories.


Rep. Bill Pascrell, Jr., co-chairman of the Congressional Brain Injury Task Force listens as Dr. Brent Masel, BIAA’s volunteer national medical director, argues for access to the full spectrum of care, including medical treatment, rehabilitation, and long-term services and supports for individuals with brain injury.

The final year of BIAA’s 3-year Brain Injury Awareness Month campaign focusing on sports and concussions helped ensure passage of youth concussion laws in more than 30 states nationwide. BIAA also assisted Reps. Pascrell and Platts, and Sens. Harkin and Enzi to author a letter instructing the Centers for Disease Control and Prevention (CDC) to carry out provisions of the ConTACT Act, a Congressional Brain Injury Task Force supported sports and concussion measure. CDC began to implement several of the bill’s directives in September 2011. BIAA spearheaded another successful Brain Injury Awareness Day on Capitol Hill, establishing the topic of rehabilitation for the briefing and working with the Congressional Brain Injury Task Force to secure speakers for the event. The event offered a great opportunity to circulate the results of BIAA’s survey on the variability of health insurance coverage for individuals who sustain brain injuries.


Education, Research and Support Services The 2011 BIAA Brain Injury Business Practice College was held Feb. 22-24 in San Antonio, Texas. Presentations included organizational culture, business ethics, benefits of trade associations, approaches to divestiture, disaster preparedness, health care reform, and sessions targeting sales and marketing, financial, and human resources professionals. While attendees praised the whole program, the timely assessment of Health Care Reform legislation brought universal appreciation. The Academy of Certified Brain Injury Specialists (ACBIS) has been a cornerstone of the Association’s professional education since 1996. This national certification program expanded to include more than 5,000 individuals who specialize in delivering brain injury treatment and services. In 2011, the Academy opened its program to graduate degree students in accredited universities for provisional certification, began production of a new guide to brain injury, and welcomed charter members of the ACBIS Alliance. The Association is grateful to the professionals who volunteer their expertise to maintain and enhance the quality of ACBIS education and the rigor of the certification process: Susan Bartlett LCSW, CRC Cynthia Boyer Ph.D. Julie Buxton M.S., OTR/L, CBIST Ellen Deibert M.D., CBIST Brant A. (Bud) Elkind M.S., CBIST Caroline Feller M.S., OTR, CBIST Mary Ferraro Ph.D., OTR/L Sharon Grandinette M.S., CBIST Thomas Hall M.A., CBIST

Angie Jackson M.S.‐CCC/SLP, MBS, CBIST Stephanie Kolakowsky-Hayner, Ph.D., CBIST Thomas Martin, Psy.D., ABPP Jim Misko Psy.D., CBIST Erika Mountz MBA, OTR/L, CBIST Lucille Raia RN, M.S., ARNP, GNP, NEA‐BC, CBIST Heidi Reyst Ph.D., CBIST Eric Spier M.D. Elizabeth Spriegel M.S., CBIST

BIAA presented four webinar series in 2010: David Strauss Memorial lectures, Mitch Rosenthal Memorial Lectures, Caregiver Education webinars, and Business of Brain Injury webinars. David Strauss Memorial Lectures:

Sports Concussion: Jeff Victoroff, M.D. TBI Initial Presentation and Treatment: Jeff Bazarian, M.D., Ph.D. Hypoxic-Ischemic Brain Injury: David Arciniegas, M.D. Adolescent TBI: Lindsey Piland, M.A., CCC-SLP

Mitch Rosenthal Memorial Lectures:

Interpersonal Relationships: Angelle Sander, Ph.D. Principles of Learning for TBI Rehabilitation: Tessa Hart, Ph.D., and Janet Powell, Ph.D., OTR/L Suicide and TBI: Lisa Brenner, Ph.D., ABPP, and Grahame Simpson, Ph.D.

Caregiver Education webinars:

Ambiguous Loss: Jeffrey Kreutzer, Ph.D., and Emilie Godwin, Ph.D. Return to Work after Brain Injury: Robert Fraser Technology as a Cognitive Prosthetic: Michelle Ranae Wild, Ph.D. Double Whammy: Managing Brain Injury and Severe Mental Illness after Rehabilitation: Rolf Gainer, Ph.D.


Children’s Concussion: Ron Savage Business of Brain Injury webinars:

Physical Plant Management: Chris Williamson, M.S., and Steve Miller Health Care Reform Annual Webinar: Peter Thomas, Esq., and Bobby Silverstein, Esq. Preparing for a CARF Survey: Christine MacDonell Partnering with Managed Care: Paul Folkert

BIAA presented the 2011 William Fields Caveness Award to Flora Hammond, M.D., and the 2011 Sheldon Berrol M.D. Clinical Service Award to Nathan D. Zasler, M.D. Members of the 2011 BIAA Awards Committee were Sue Bartlett, LCSW, CRC; Jeffrey Englander, M.D.; Steven Flanagan, M.D; Wayne Gordon, Ph.D., ABPP/Cn; Flora Hammond, M.D.; Harvey Jacobs, Ph.D., LLC; and Nathan Zasler, M.D.

Public Awareness and Prevention In February 2011, BIAA announced the adoption of a new definition of traumatic brain injury (TBI). Based on the proposal of the Demographics and Clinical Assessment Working Group of the International and Interagency Initiative toward Common Data Elements for Research on Traumatic Brain Injury and Psychological Health, BIAA has adopted the following definition: TBI is defined as an alteration in brain function, or other evidence of brain pathology, caused by an external force. BIAA and its network of chartered state affiliates celebrated Brain Injury Awareness Month in March 2011 with a focus on the nationwide education and advocacy campaign: "A concussion is a brain injury. Get the facts." As part of Brain Injury Awareness Month, BIAA and several chartered state affiliates and many advocates gathered on Capitol Hill in Washington, DC, on March 16 for Brain Injury Awareness Day, advocating for brain injury funding and programs to raise awareness of and support for brain injury initiatives. In 2011, more than 70,000 copies of THE Challenge! newsletter were distributed in print with thousands more readers online at www.biausa.org.

Chartered State Affiliates Brain Injury Association of America’s chartered state affiliates provide local and statewide help, hope and healing to millions of constituents through programs and services, education, prevention and awareness initiatives and support groups. The 16th Annual State Affiliate Leadership Conference took place Nov. 8-10, 2011, in St. Petersburg, Florida, with the theme: “Maximizing our Impact as a National Organization.” The Brain Injury Associations of Delaware, Illinois, Massachusetts, Missouri, New York, and Virginia were presented with Awards of Excellence from their colleagues for outstanding work and leadership within the brain injury field.

http://www.biausa.org/


BIAA Mission Our mission is to be the voice of brain injury.

Core Belief Brain injury is a misdiagnosed, misunderstood, under-funded neurological disease. Until there is a cure, people who sustain brain injuries must have timely and equal access to expert trauma care, specialized rehabilitation, lifelong disease management and individualized services and supports in order to live healthy, independent and satisfying lives.

Guiding Principles 1. We value strong leadership. We expect Board members to be fully engaged in BIAA’s mission. We set high standards for management and staff. State affiliate leaders are an integral part of our organization; we value their “on-the-ground” experience in shaping plans and policy decisions.

2. We serve the entire field. We respect the dignity and worth of all people. We encourage individuals with brain injury and their family members to participate in BIAA in meaningful ways while simultaneously welcoming the perspectives of researchers, clinicians and other professionals. We value the accomplishments of those who came before us and embrace the next generation of leaders who will pursue BIAA’s mission with urgency and excellence.

3. We act with integrity while functioning as a business. We seek transparency in our communications and agility in our operations. At all times, we strive to be a growth-oriented, metrics-driven organization employing technology and entrepreneurial approaches to achieve BIAA’s mission. We foster mutually beneficial relationships with other organizations that share our goals.

Strategic Priorities The Brain Injury Association of America’s strategic priorities for 2010 to 2014 are to: • Increase access to brain injury treatment and care. • Unify BIAA and state affiliates. • Embrace technology in all aspects of our work. • Secure adequate resources to accomplish the mission. • Influence awareness and understanding of brain injury.


2011 Corporate Sponsors

Centre for Neuro Skills

Center for Neurorehabiliation Services

Delta Foundation

Lakeview Rehabilitation

Learning Services Corporation

Nolan Law Group

Neuro Restorative

Pate Rehabilitation

Rainbow Rehabilitation Centers

Special Tree

Transitional Learning Centers

http://www.neuroskills.com/

http://www.neurorestorative.com/


2011 Donors BIAA is grateful for the contributions of the individuals, families, corporations and foundations listed below. Without the generous support of so many, BIAA would not have achieved the impressive accomplishments described in this annual report. Donors of $5,000 and More

Center for Neurorehabilitation Services Centre For Neuro Skills Delta Foundation Florida Institute for Neurologic Rehabilitation, Inc. James F. Humphreys and Associates, LC Lakeview NeuroRehabilitation Center Learning Services Limo Alimi Foundation NeuroRestorative Nolan Law Group Pate Rehabilitation Rainbow Rehabilitation ReMed Leslie E. Schmid Seymour Feldman Foundation, Inc. Special Tree Rehabilitation System Transitional Learning Center Traumatic Brain Injury Litigation Group Virginia T. Dashiell Foundation

Donors of $1,000-$4,999

Greg Biggerstaff Brain Injury Association of MI CARF Craig Hospital Davis, Saperstein and Salomon, P.C. Robert L. DeSilets Friends Academy Boys and Girls Track Matt Grebow David G. and Carol A. Hevey Steven Israel Jeanne Kemperle Kevin Scott Dalrymple Foundation Kolaga Family Charitable Trust Mary Free Bed Rehabilitation Hospital Dr. Robert Novy PPG Industries Foundation Evelyn Rechler Frank Reitter Kenneth Rosenberg Edythe Rosenthal Ann Schiebelhut John R. Stafford


Melodia, Kelly and Schoenberger Walkup Donors of $500-$999

Elizabeth Ackerson Maureen M. Alterman Mr. and Mrs. Lenard Baritz Paul Brooks Phyllis Cherebin Cron Family Foundation Ben, Polly, Will, and Peter Duke Joanne Fager David Fierce Joanne Finegan Friends Academy Middle School Heads On Straight Support Group Sylvia and Alisha Kumar Virginia M. Lazzara Robert Longo Maine Medical Center Amy Marks Methodist Hospital Trauma Services Metlife Corporate Communications Linda Mollo-Holmes Florence Ng Bob Pei Oklahoma Speech Language Hearing Association Andrew Rallis Harold Salmon Sachin and Rajul Shah Sovereign Military - Norfolk VA Eric and Jennifer Steigerwalt Ken and Susan Unger Steven Weinreb Joseph J. Welch William Wheeler John Whyte Vanessa Wong Shihao Zhuo

Donors of $100-$499 Adley, Matk AMICA Mutual Insurance Company Anonymous Donor Arbona, Enid and Guillermo Arkonac, Sinan Arroyo, Judy Ashworth, Cindy Austin, Andrew S. Banck, Luis Baritz, Stuart and Renee

Baruchel, Ludwig Bauer, Michael and Catherine Becker, Angela and David Bender, Erica Berbos, Thomas and Lisa Berkman, Elliott and Eileen BHR Pharma, LLC Blanchard, Catherine Blank, Gene Blatt, Debra Blostein, Paul

Blotner, Steven and Linda Bolte, Karen Bowman, Shannon Russell Bradbury, Scott Brash, Steven and Hariklia Bray, Carol P. Brezovec, Robert and Kathleen Briner, Lauren Brooks Group and Associates, Inc. Browne, Alison and Family


Bunco Friends Burns, Scott and Claire Cammarata, William Caporrino, Anthony Carbone, Martha Carella, Laura Carey, Michael Carlson, Peter and Connie Chen, Ruoyu and Bei Chiaverotti, Gary Children's Hospital of Philadelphia Trauma Program Chin, Terry and Rose Chobot, Sarah E. Chu, Cynthia Chu, Elaine Chu, Richard Clay, Barbara J. Cobb, Caroline Cohen, Stuart A. Condon, Sherri Conger, Carole B. Cook, Matthew Couto, Manuel Cox, Graham Crabbe, John W. Curran, Brandon and Lisa Cutler, Irwin and Carol Dale, Janet Danielle Whalen Memorial Foundation Deans, Sharon DellaPeruta, Scott DeMarco, Guy and Rebecca DeOrsey, Robert DePompei, Roberta Dew, Richard Doiron, Beth Donnantuono, Francis Donnelly, Hugh Doscher, Susan Dougherty, Susanne Duffy, Lucille Durfee, Dan and Judy Eberle, Richard and Susan Edwards, Lauren Egan, William Eggink, Joanne H. Einhorn, Deborah Eisel, Mary A. Emmet, Robert

Endo, Yoshio and Diane Faltesek, Mary Conover Farrell, Thomas Feigel, James P. Feigenbaum, Robert and Roberta Feigenbaum, Shirley Fields, Sue and Steve Fitzgibbon, Brian Fleyhan, Sami Flicker, Shelly Flink, Eileen Foley, Linda Foster, Jeff Freedman, Deborah S. Freeman, Colby Freeman, Michael and Lois Friends Academy Parents Council Funtanilla, David V. Gaffey, Anne Gainer, Rolf and Leslie Gaiso, Maria L. Galloway, A. Nelson Garcia, Rudolph N. Garry, William and Louisa Gentilin, John Ghari, Chris Giss, Julie Goebelbecker, Cynthia Goldberg, Laura Goldstien, Shari and Scott Graham, Cathleen Graham, LeeAnn Great, Ronald J. Greenblatt, Joel and Julia Griffin, Christine and Stephen Griffith, Rick and Connie Guerin, William and Kara Gutierrez, Ted and Carole Haase, Randal Hall, Alan P. Hamilton, Kent Hariton, Joan Harnish Group Inc. Hawkins, Nancy Hays, Charles and Joann Henin, Amy Hernandez, J. Anne Herring, Sheldon L. Highland Capital Brokerage, Inc.

Hirt, Vernon and Donna Hogan, William Holing, John E. Holmeen, Randy Horgan, Paul and Anne Marie Hrabowski, Helen C. Huang, Yafei Hunter, Eileen Imoto, Mitch J. W. Mitchell Company, LLC Jack and Jill of America Suffolk County Teens Jacques-Soto, Claudia Jarvis, Ian Jay, John and Janet Juul-Nielsen, Carl Kandarian, Steven Katz, Erik and Deena Keegan, Despina Keetch, Brian and Cristiane Keith, Sharon Kennedy, Edward and Nancy Keyser, Frank E. Khalaf, Michel Kim S. Storey and Douglas I. Katz Fund Kinner, Michele Kinoshita, Hélio Klang, Maryellen T. Klar, Eileen and Neil Klein, Michael Kolenda, R. Michael and Mary Ann Kotwis, Andy Krach, Linda E. Krumwiede, Margery Landau, Brian and Maria Landwehr, Diana Law Office of Anthony J. Hom Leanos Family Lebowitz, Neil Leeds, Richard and Suzanne Leeser, Jodi Leibovitz, Debra Leonard, William J. Leres, Craig Levenson, Abby Levitas, Lisa Lifland, Eli Lightcap, Janet Liss, Samuel and Gail


Liu, Wei Ling Lotharius, Juan Carlos Lubar, Elliot Magellan Health Services Mann, Lila A. Marasigan, Jason Marks, J.D. Marks, Steven Marta Employees Charity Club Maryland Charity Campaign Mauro, Erin May, Jeff and Linda McCord, Timothy McDonald, Colleen McFadden, Richard and Nancy McQuade, Tabitha Menzin, Andrew and Lauren Merrifield, Julius and Naomi Mertens, Jennifer Mikullitz, Cheryl Mikullitz, David Miller, Siobhan Milligan, Anslie Milligan, Robert Moran, Noel Morgan, Janet Morgan, Stephanie L. Morrissey, Elizabeth B. Motorola Foundation Mullaney, William Munson, Donald Myraas Stian and Samantha Naughton, Kevin and Cynthia Nokes, Dave and Elaine O'Connell-Stingi, Catherine O'Connor, Ellen O'Donnell, Bill Oliver, Lyndon O'Rourke, Mark Ortiz, Norma Page, Robert and Martha Pappas, John and Harriet Parker, David and Mara Pascucci, Christopher and Silvana Patterson, Terri Peterson, Teresa Petronella, William Petrossian, Rita

Pettway, Corey Pezza, Joseph Picoli, Peter and Kathleen Plesko, Timothy Power, Shelley B. Powers, Joan Pride, Meredith Pride, Roy and Cheryl Princeton Review, The Puleo, Joseph and Donna Rabin, Ellyn Radford, Jr., Joseph F. Ray, James Rechler, Scott and Deborah Reeves, M. Jean and Walter Regelmann, Martha Reitter, Mary Rice, James and Sandra Richert, Jack Richert, Joseph C. Ries, Brenda B. Riley, Scarlet H. Robinson, John Roman, Jeannette Rose, Jim Rosenthal, Jodi and Robert Salerno, Rose Samples, Craig Santella, Peter and Patricia Schappert, Nicole Schlenger, Sharyn Schmidt, Oscar Schmitt, Cecily N. Schonfeldt, Brian, Gary and Nancy Schrubbe, Jonathan Schuss, David and Sheila Schwartz, Hope Score-Norwalk Seeber, Janine Sferrella, Sheila Shaffer, Roger Sharken, Larry and Sue Shiel, Dennis Shillinglaw, Ellen Shin, Kiwon and Jenny Silva, Mary Ann Simeone, George Simmons, Barbara C.

Smith, Katie M. Spadaro, Frank and Jo Ann Speers, Chris Srihiran-Brown, Toby Stephen, Paul and Lauren Stingi, Andrew Stolzenberg, Sheryl Stranc, Kenneth and Susan Sullivan Papain Block McGrath & Cannavo PC Sullivan, Brendan Sullivan, Catherine Sussman, Sandra S. Swetland, William D. Szatkowski-Zych, Donna Tagvillage, Inc Talbi, Stan Thimsen, Lori Thunander, Steve and Cissy Thurstlic, Joseph and Catherine Toles, Allen Tong, Boning and Mei Turchette, Alex Ufer, Evan Unger, Howard United Way California Capital Region United Way, Inc. Valentino, Michael and Robin Valero Wilmington Vasicek, Clarice Verona, Joshua and Annette Wade, Maria and Kevin Wassum, Terence Watson, Gordon Watts, Joretta A. Weaver, Robin Webb, Dan and Jennifer Wilk, Lydia Wise, Abby Woida, Christopher Won, Peter Wong, Eugene and Lai Worthen, Lee and Patricia Yang, Andrew Yong, Thomas and Jody Zick, Ken Zog Sports


Donors of $99 and Less 3.4.1 Studios LLC 732nd Railway Operating Battalion Aaron, Gabrielle Abels, Jeanne and James Ackley, George C. Adam, Michael J. Agius, George and Harriet Aglione, Angela Aleksandrowicz, Dori Alexander, Elizabeth Alfaro, Edgar Aligada, Arthur Allen, Phillip Almonte Enterprises LLC Ambrose, Lesli Stevens Anderson, Brad Anderson, Jeremy Anderson, P. James Anonymous Donor Arquette, Crystal Asimakopoulos, Michael Axelrod, Michael and Barbara Babicz, Gary and Ruth Bailin, Nancy Baird, Jerry and Linda Stark Baker, Charles and Evelyn Bakken, Richard Bakken, Treva Bakken, Treva Balistreri, Jennifer Ballas, Frank Bankert, Teresa Baremore, Teddy and Debbie Barlev, Maria Barnum, Alan and Ann Baron, Roberto Barry, Barbara Bass, Sharee Bassett, Jerry and Barbara Baum, Maureen Begle, Alan and Diane Bencivenga, Victoria Bender, Anne Bennett, Lary and Kim Bennett-Wise, Peggy Bentley, Peter and Janice Berg, Roy and Maria Smilovic Berger, Jean E. Bindra, Sumeet

Bishop, Megan Black, Robert and Denise Blake-Deyo, Carolyn Blausey, Randy Bobb, Arthur D. Bodley, Raymond and Rosemary Boggess, Danielle Bohl, Lori Bolgla, Robyn Boltz, Daryl Bourgette, Heather Breckenridge, Marian Brettschneider, Irwin and Phyllis Brogan, Eileen Brooker, Jim and Joanne Brooks, Marlene Brown, Diane D. Brown, Frances and Web Bryant, Linda Buckley, Gregory and Susan Budd, Adelle Budyszewick, Jack and Sandra Burroughs, Joseph Burton, Patricia L. Butler, Mary Jo Butler, Richard Cain, Daniel and Patricia Calaci, Judy and Michael Callozzo, Frank Canto, Victoria Cardillo, Frances Carla Lewis Carlson, Susan Carlton, Tom and Betty Ann Carney-Ray, Michelle Caroddo, Victor Carr, Marilyn Carroll, Andrew Carter, Arthur A. Caruthers, Vada R. Casale, Joseph and Marilee Castelluzzo, Marlayne Castiglia, Mario Ceslov, Rodica Chamberlain, Mollie D. Chappuis, Sandra Chatalian, John V. Cheifetz, Stephen Cherrey, Morris J. Chester, Amy R.

Chidakel, Liz Chilvers, Zaza Chimenti, Elaine Chin, Caroline Chin, Sue Christiansen, Lynne M. Christy, Janeen Chu, Arnold and Stella Chu, John and Jean Chu, Jon Jay Chu, Robert and Mary Chu, William and Sakiko Sakai Cirino, Tucker and Lisa Cisneros, Gerardo Clark, Bruce W. and Judy R. Clark, Karen Clark, William M. and Rita Joan Cleary, Wendy Coker, Jackson Colavita, John F. Colavita, Margaret Collins, Sally Combs, Buenah Conigliaro, Michael Cook, Michele Cooper, S. Thornton Copenhaver, Ruth Lowe Cordero, Joanne Cornett, Ray and Carolyn Correnti, Nancy Coury, Jeanette Cowan, Sue Cox, Terry Cranshaw, Sandra Gaines Cranwell, Damien Crincoli, Eugenia V. Crown, Emilie Cui, Sufang Cundy, David and Evelyn Curry, Eileen M. Curtin, Michael and Kimberly Curtiss, Augustus CustomInk.com D`Amato, Laritza Dalton, John and Doris Daly, Brendan Daniel, Erno and Martha Davies, John and Alice Dean, Linda DeCicco, Joseph and Monica


Deichmann, Richard A Delfino, Helen, Marianne, and Pamela Deluca, Jackie and Philip Derksen, Bernard Dibenedetto, Michael Diffine, Suzanne Dinkler, Jason and Laurel Dobrin, Eric Donlin, Gloria and Bill Dooms, Tracey Dougherty, Richard Downey, Marjorie Drake, Jim Duenuz, Carmen Duff, Dennis and Linda Dwyer, Hara Dzen-Modean, Nancy and Richard Eastman, Dr. Nicole Edwards, Robert S. Eggleton, Philip and Rochelle Ehrenclou, Marjorie Elie-Pierre, Sidney Ellenburg, Michael and Jennifer Ellis, Katie Elovitz, David and Fran Epstein, Aaron Esburnett, Judi E-Script Rebates Eubanks, Stephanie Eulau, Michael and Cherie Falconieri, Joseph and Marietta Favreau, Catherine Fazio, Jeff Fecteau, Russell and Rebecca Felder, Candyce Ferguson, Roy A. Ferrell, Keith Firlit, Robert Firstbrook, Stephanie Fisher, Cathy Fleming, Gerald Flynn, Laraine E. Fogarty, Dennis Follmer, Andrew J. Forsley, Richard and Barbara Forstenzer, Ann Forstenzer, Peter Forte, Elizabeth B. and Lawrence

Forte, Susan and Rocco Frew, Claire and Timothy Friedman, Beatrice Friedman, Richard L. Frye, Jessica L. Fujishige, Holly Galvin, John F. Garay, Shelley and Luis General Reinsurance Corporation Gentilin, Jill Gianni, Stephen Philip Gibson, Sue Giles, Tom and Janine Gilman, Scott L. Ginzton, Nancy H. Glascock, Donald and Stephanie Glasser, Stephen C. Goff, Patricia Gold, Frank and Loretta Goldman, Denis Goldman, Elaine R. Gonzalez, Amy Gonzalez, Antonio Gonzalez, Rupert and Denise Gordon, Maris Gosling, Geo Gowett, Shirley Greenberg, Joseph Grilli, Thomas Guerry, Carol Guidos, Barbara Gust, Brenda Gustavson, Diana L. Hackett, Joseph Haley, Donna G. Hall, James C. Hamill, B. Sean Hammons, Judith P. Handwerger, Kenneth Hansen, Sherri Harmelin, Randie and Bobby Harrison, Daniel and Nancy Harvey, Kennith Hasbargen, Amanda Hasegawa, Alan and Lise Hasley, Barbara Heid, Blaize Robert and Kathryn Heinrich, Elvira Herbert, Anthony and Theresa

Hetrick, Peggy and Steven Shephard Hickman, Debbie Hicks, Allison Hill, Jan and Larry Hino, Terry and Maxine Hinshaw, Duane Hisaka, Craig and John Fuji Hitchings, Stephanie Hodgkinson, June Hodgkinson, Kevin Holmeen, Gilbert and Connie Hong, Rose Hoskins, Robin Houston, Patrick Huffman, Jason Hutchings, Margaret Hutchins, Lloyd Ippolito, Irene Jahera, Alyssa Jernigan, John Joe, Linda Johns, Kevin Johnson Family Jones, Derek Jones, Jason Lee Jordan, Craig Jordan, Craig and Christine Kaatrud, Paul Katchpole, Joseph Katz, Robert Kehoe, Diana Keller, Paul Kennedy, Stephanie Kickish, Cheryl M. Kickish, Eileen Kilcullen, Walter L. Kill, Katrina Kimes, John and Melinda Kinder, Heather Klein, Allen M. Klein, Benjamin Klein, Steven Kleinberg, Rosalie Koeger, James and Nancy Kopsak, Robert Kosnow, Johnathan Kowal, William Kriesberg, Dan and Karen Kucik, Emanuela Kurosaki, Tom T.


Kusins, John Kuzyk, Doug and Ang Kwan, Wai Yip La Belle, Yolande Lafferty, Theo C. Laguardia, Ken Lampert, James H. H. Lane, Betty Lane, Jack and Susan Lang, Olivia Langberg, Rachel Lankford, Norma and Millard Laursen, Ingrid M. Lee, Diane Levine, Carolyn Levitt, Andrea Lewis, Jennifer Lewis, Richard E. Lewis, William and Karen Liang, Jean Lichtenstein, Joyce Lieber, Sheila Franklin Linder, Susan Lippert, Gael Little, Janna Lo, Tze 'Samson' Loconte, Mary Ann Long, Joanne H. and Joe E. Longstreet, Linda L. Loui, Jean Lueck, Valdean Lupoletti, Albert and Ann Lutterbie, Jennifer MacAleer, Beth Mackay, Maria Maier, Thomas and Susan Margelony, Patricia C. Markussen, Christine and Jim Walsh Marra, Dolores Martin, Dan and Marie Martin, Lynn and Dennis Martinez, Tori V. Mascari, Michael and Lisa Gasstrom Masel, Brent E. Mattingly, William E. and Mary G. Maves, Ralph D. Mayrock, Stacey McClenahan, John S.

McCarthy, Laura McCord, Timothy McDaniel, Rebecca McFeely, Traci McGrath, Heather McLaughlin, Jeffrey McLinden, Timothy and Lorraine McMillan, Gerald and Brenda McNelis, Edward McPherson, Blaire Meier, William G. Merino, Andres Meszaros, Kirsten Mickiewicz, Anna Milam, Harold and Patricia Miller, Arlene Miller, Charles and Marcy Thailer Miller, Sharon and Lew Milzman, Susan Z. Minard, Joseph Mitchell, Beverly Mitchell, Marcus Mitchell, Yvonne Moore, G.A. and M.V. Morawski, Deborah L. Moreno, Carlos A. Morgan, Linda D. Morris, Jennifer Moyer, Gene Mugler, Marita Murphy, Chris and Megan Nathan, Betsy Nawrot, Bichop and Linda Neff, Isabelle Negewo, Debritu M. Neyhart, Dirk Nieweg, Sandy Nunez, Sylvia Ocampo, Alma Olson, David Oren, Lisa Pailet, Doris Palacio, Reynaldo R. Palmtag, James L. and Joan Pancer, Robin Parker, Mitzi Parsons, Fredric W. Parsons, Margaret Pasa, Henry Paulsen, Darrell and Lois

Pearson, Georgia Perantinos, Angela Perry, Beth M. Perry, Mitchell C. and Laura Petrone, Debbie Pettibone, Bob and Ann Marie Phi Beta Chi: Clinton, NY Piller, Laura D. Potusek IV, John Povanda, Elizabeth Pow, Robert and Marjorie Pozzi, Carl and Sara Premier Price, Jim Prince Edward County Elementary School Prince, Richard Proft, Richard Pulido, Lianna Quigley, Jennifer Quinones, Elinor Rabaglia, Lisa Raditch, Connie D. and Richard Ragosta, Jessica Rahmanan, Brooke Rankin, Kevin Ransom, Jay and Dale Rattiner, Vicki Ray, Thomas and Marsha Reardon, Mary Ann Reeder, Loni Reeve, Susan Regan, Thomas and Nancy Reliant Capital Solutions Renard, R. N. Reo, Joseph and Louise Rewis, Dennie and Lois Reynolds, Terri Riback, Lloyd Richards, John W. and Carol Riedel, Thomas Ringuette, Celeste A. Ripsom, George and Elizabeth Riskin, Phyllis Robbins, Vaughn and Jeanmarie Roberts, Benjamin Robinson, Kim Robinson, Theresa Rochester, Karen Rose, Thomas Rosenberg, Robert


Rosenblatt, Harold and Arlene Rossiter, Inez and Marvin Rostoker, Earl and Margaret Rowe, Gary Ruben, Lawrence P. Rubin, Barry Rubinzon, Esther G. Ruby, Liz Sabino, Peter and Joanne Saha, Samar K. and Saswati Salem State University Class of 2011 Sanchez, Janet A. Sans, Louise Savinetti, Mr. and Mrs. Louis Schafer, Judy Schager, Anne L. Schippereit, George and Mary Schmitt, James W. Scholnik, Barry and Susan Schrack, William Schroeder, Melanie D. Schultz, Paul M. Schurman, Charles and Rebecca Schuster, Betti Kelly Schwartz, Judith M. Schweikle, George Scibilia, Fina Scott, Lucy Ann Scott, Melissa Seay II, Charles T. Sefton, Holly Seitz, Carol Selim, M. M. and Maureen Sentivany, Warren and Barbara Seychell, Mary Sharon, Yitzhak J. and Sandra L. Shelton, Danny Rae Shesko, Kristina L. Shipley, Donald and Agnes Shukwit, Gordon Siciar, Jeffrey Sim, Darryl Simmons, Robert and Joanne Simon, Lynn Simons, David M. Singer, Constance M. Sinitsky, Laura Sleepy Chicken, Inc. Smiley, Sean

Smith, Carolyn Smith, Ellen Smith, Katherine Smith, Sally A. Smith, Susan P. Snyder, Deborah Soderberg, Gayle Sorrentino, Steven G. Stanley Dedmon, Elaine Stauffer, Curtis Stebbings, Marlene J. Steele, Robin Stein, Ruth Stewart-Pinkerman, Mona Stoler, Diane R. Stone, Alicia Stone, Dan and Carol Strauss, Alan J. Suchy, Robert and Mary Sugerman, Ruth S. Svenson, Joan E. Swingle, Denise Taback, Tracy Takefam, Jay Taylor, Chad Taylor, Rev. Lu Dell Taylor, Robert Tejeda, Robert Thackaberry, Rebecca The Scioscio Family Thomas, George N. Toomay, Shane and Leslie C. Toth, Richard and Beverly Travis, Kathy Treat, Judy Tridgell, Glenn Tso, Christina Turetsky, Stuart Turnbull, Seicha Ungvarsky, Mary P. United Way United Way of Central Massachusetts United Way of Greater Mercer County United Way of the National Capital Area United Way of the Virginia Peninsula Urrutia, Arsenio C. Comas

Valenta, Kathleen Valpey, Jack M. and Uta Van Dusen, Kristen Van Oss, Terrence Vande Kemp, Hendrika VanLear, Susan Vanpelt, Thomas R. Vincelett, Thomas Wachtler, Ben Wagg, Mary Waggoner, Andrew and Nancy Waha, Roger A. Walker, Donovan Walker, Roberta Wallace, Lori Walshe, Andrew Walton, Norrene E. Waylett, Maryann Weinberger, Ruth Weiss, Jill Weissenburger, William and Lois Welch, Francine Wepfer, John and Mary Wersching, Patricia Wheeler, Denise White, Brenda Wick, Theresa Wigmore, Hope Wilcox, Wallace and Beverly Wilder, Larry Wildman, Gary Wilkerson, Sabrina Phillips Wininger, Georgia Winters, Barbara Wong, Marianne Wong, Robert and Jane Woods, Gary and Kay Woodworth, Bryn Wunsch, Robert S. Wuornos, Reginald C. Yoo, Meena Yoshida, Stephen and Patti Young, Amanda E. Yurgec, George and Judy Zaccagnini, Nancy Zides, Donna Zoffer, H.J.


Statement of Activities Statement of Financial Position

PUBLIC SUPPORT AND OTHER REVENUE ASSETS

Contributions $435,804 Cash , Cash Equivi lents and Investments $1,289,631

Program Services Revenue $1,505,314 Property and Equipment $14,069

Investment Revenue (Loss ) $3,506 Other Assets $44,378

Other Revenue $3,999 Total Assets $1,348,078

Total Revenue $1,948,623

LIABILITIES and NET ASSETS

LIABILITIES

Accounts Payable & Accrued Expenses $66,456

EXPENSES Deferred Revenue $35,692

Publ ic Awareness and Communications $486,348 Total Liabi l i ties $102,148

Affi l iate Services $297,777

Education, Tra ining and Research Services $429,938 NET ASSETS

Individual and Fami ly Services $106,116 Unrestricted Net Assets $1,085,419

Government Relations and Advocacy $300,433 Temporari ly Restricted Net Assets $153,977

Management and General $155,348 Permanently Restricted Net Assets $6,534

Fundrais ing $39,085 Total Net Assets $1,245,930

Total Expenses $1,815,045 Total Liabi l i ties and Net Assets $1,348,078

The figures on this page depict the financia l activi ties of the Bra in Injury Association of America for the fi sca l year

ended December 31, 2011.

A complete copy of financia l s tatements audited by Dixon Hughes Goodman LLP is ava i lable upon request from the

Bra in Injury Association of America, Inc., 1608 Spring Hi l l Road, Suite 110, Vienna, VA 22182 or on our webs ite at

www.biausa.org.

Brain Injury Association of America Financial Highlights


2011 REVENUE

2011 EXPENSE

Contributions

Program Services Revenue

Investment Revenue

Other Revenue

Public Awareness and Communications

Affiliate Services

Education, Training and Research Services

Individual and Family Services

Government Relations and Advocacy

Management and General

Fundraising


2011 Staff and Volunteers STAFF Marianna Abashian, Director of Professional Services Greg Ayotte, Director of Consumer Services Susan Connors, President and CEO Lexy deGraffenreid, Customer Service Specialist Sarah D’Orsie, Director of Government Affairs Jessica Kerney, ACBIS Coordinator Laurie Kusek, Director of Communications Mary Reitter, Executive Vice President/COO KEY VOLUNTEERS Carol Bray, Special Projects Volunteer Alice Demichelis, International Contacts Volunteer Robert Demichelis, Self-advocate Volunteer Anne Forrest, Volunteer

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