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PAIN ADVOCACY COMMUNITY July 2003 Volume 03-13 WELCOME BACK TO PAIN ADVOCACY COMMUNITY: An E-Newsletter Connecting Healthcare Professionals Who Care. Thank you for all your comments. This issue will feature information on Musculoskeletal Diseases. We would like to feature upcoming events related to regulations or legislations, so help us help you. If you would like us to invite others to participate in or collaborate on your upcoming projects, make others aware of resources that may be helpful to their constituents, or acknowledge a job well done, please e-mail us at [email protected] . Feel free to share this newsletter with other concerned healthcare AN E-NEWSLETTER CONNECTING HEALTHCARE PROFESSIONALS WHO CARE In the Spotlight – National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health Osteoporosis and Related Bone Diseases- National Resource Center (NIH ORBD-NRC) On the Horizon – The Mississippi Pain Society Schedules Annual Summer Meeting – July 25-26 CRPS/RSD Hope, Now and in the Future, October 7 th Conference Legislative Update – Pain Legislation Introduced As Result of Collaborative Efforts of Many Pain Organizations Chatter – RSDSA Offers Two New Brochures RSDSA Seeks Patient Stories Tips from the Advocacy ToolKit – Key Messages for Arthritis Sufferers Key Messages for Temporomandibular Joint (TMJ) Dysfunction Sufferers Caregiver’s Bookbag- RSDSA Announces New Book – Living With RSDS TOPICS FOR JULY 2003:

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Page 1: Volume 03-13.doc.doc

PAINADVOCACYCOMMUNITY

July 2003 Volume 03-13

WELCOME BACK TO PAIN ADVOCACY COMMUNITY:An E-Newsletter Connecting Healthcare Professionals Who Care. Thank you for all your comments. This issue will feature information on Musculoskeletal Diseases.

We would like to feature upcoming events related to regulations or legislations, so help us help you. If you would like us to invite others to participate in or collaborate on your upcoming projects, make others aware of resources that may be helpful to their constituents, or acknowledge a job well done, please e-mail us at [email protected].

Feel free to share this newsletter with other concerned healthcare professionals or organizations.

Links provided in this newsletter are sites not associated, affiliated or controlled by Purdue and Purdue takes no responsibility for the content of those sites.

AN E-NEWSLETTER CONNECTING HEALTHCARE PROFESSIONALS WHO CARE

In the Spotlight – National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health Osteoporosis and Related Bone Diseases- National Resource

Center (NIH ORBD-NRC)

On the Horizon – The Mississippi Pain Society Schedules Annual Summer Meeting – July 25-26 CRPS/RSD Hope, Now and in the Future, October 7th Conference

Legislative Update – Pain Legislation Introduced As Result of Collaborative Efforts of Many Pain

Organizations

Chatter – RSDSA Offers Two New Brochures RSDSA Seeks Patient Stories

Tips from the Advocacy ToolKit – Key Messages for Arthritis Sufferers Key Messages for Temporomandibular Joint (TMJ) Dysfunction Sufferers

Caregiver’s Bookbag- RSDSA Announces New Book – Living With RSDS

WebResources- Selected NIAMS Coalition Members

The Bucks Box – The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

Provides Research Opportunities Health and Human Services (HHS) Seeks Personal Assistant Proposals

Click here if you wish to be removed from the E-newsletter list

TOPICS FOR JULY 2003:

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INTHESPOTLIGHT

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

National Institutes of Health Osteoporosis and Related Bone Diseases- National Resource Center (NIH ORBD-NRC)

The NIH ORBD-NRC was established in 1994 with a grant from the NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to the National Osteoporosis Foundation. Its mission is to provide patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. The Center is operated by the National Osteoporosis Foundation, in collaboration with The Paget Foundation and the Osteogenesis Imperfecta Foundation. For additional information, log on to www.osteo.org

ONTHEHORIZON

The Mississippi Pain Society Schedules Annual Summer Meeting - July 24-25

The Mississippi Pain Society, a division of the Southern Pain Society, will hold its 4th Annual Summer Meeting, TOTAL BODY PAIN from July 25-26 in Biloxi, Mississippi. The conference is jointly sponsored by the Methodist Rehabilitation Center, The Mississippi Pain Society, and the Department of Mental Health. Continuing education credit will be provided.

The program will review the diagnosis and treatment of whole body pain. Evaluation and treatment of patients with whole body pain will be presented from physical medicine, behavioral

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) supports basic, clinical, and epidemiologic research, research training, and information programs on diseases of joints, muscles, bones and skin.

Most of these diseases are chronic and many cause life-long pain, disability, or disfigurement; they afflict millions of Americans; cause tremendous human suffering; and cost the United States economy billions of dollars in health care and lost productivity.

These diseases affect people of all ages, racial and ethnic populations, and economic groups -- almost every household in America is affected in some way by one or more of these diseases.

Diseases that the NIAMS organization focus on include: Arthritis, Autoimmune Diseases, Carpal Tunnel Syndrome, Osteoporosis, Lyme Disease and Pain. For additional information, log on to http://www.niams.nih.gov

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medicine, interventional medicine, and alternative medicine perspectives. In addition, a special session on cancer pain will be presented.

CRPS/RSD Hope, Now and In The Future, October 7th Conference

The RSDS Awareness Coalition and the Reflex Sympathetic Dystrophy Association of America (RSDSA) will co-sponsor a full day conference in Northumberland, Pennsylvania on October 7, 2003, at the Front Street Station. The conference is for physicians, medical professionals, RSD patients and any interested parties. CME credits for doctors, nurses, and physical therapists are being developed and should be available through The Office of Continuing Medical Education of the Geisinger Health System. For additional information, log on to www.rsdaware.org.

LEGISLATIVEUPDATE

Pain Legislation Introduced As Result of Collaborative Efforts of Many Pain Organizations

Congressman Mike Rogers (R-MI) introduced H.R. 1863, the National Pain Care Policy Act of 2003 in the House of Representatives. The bill is a step toward gaining federal recognition of the importance of pain as a critical and unanswered health care problem in our nation.

Over the past eighteen months, the American Pain Foundation (APF) has been working collaboratively with the Pain Care Coalition (PCC) to develop a comprehensive pain care bill. Representative Rogers’ bill incorporates many of the APF and PCC positions and reflects many of the suggestions that APF and PCC have collected over time from conversations with numerous groups representing health care providers, consumers, disease-specific organizations and others.

To view the latest available version of H.R. 1863, go to http://thomas.loc.gov and enter "HR 1863" in the search field.

CHATTER

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The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) Offers Two New Brochures

Helping Children/Youth With RSD/CRPS Succeed in School provides information about what parents can do, how classrooms can be modified and stress reduced for children/youth with Reflex Sympathetic Dystrophy Syndrome (RSDS). This brochure is available free at the RSDSA website. For additional information, log on to www.rsds.org.

Treating Complex Regional Pain Syndrome: A Guide for Therapy is a brochure written by Melanie E. Swan, OTR/L, Occupational Therapist and Resource Clinician at the Rehabilitation Institute of Chicago’s Chronic Pain CareCenter and Center for Spine, Sports, and Occupational Rehabilitation. For additional information, log on to www.rsds.org.

RSDSA Seeks Patient Stories

RSDSA is seeking individual stories from patients with RSD/CRPS who have experience (both positive and negative) with emergency departments or individual emergency physicians.  The goal is "to humanize patients with chronic pain for emergency physicians who only see them in times of need."  In addition to submitting your story, it would be helpful if you would include background information on yourself, including your profession or role in the community, in order to highlight your individuality.  Physicians with RSD/CRPS would be particularly pertinent to this project.   

To participate, please send a synopsis of your experience to Jim Broatch, Executive Director of RSDSA at [email protected]

TIPSFROMTHEADVOCACYTOOLKIT

Key Messages for Arthritis1

Despite the recent advances in pain management, many people with arthritis experience levels of acute and chronic pain that affect their ability to function and reduce their quality of life.

The fatigue, weakness, and stiffness that can accompany pain in people with arthritis also contribute to decreased quality of life.

Despite receiving appropriate treatment for the underlying disease, many people experience pain that impairs physical and psychological function. The goals of optimal care for people with osteoarthritis and rheumatoid arthritis are to determine what can be done to slow or correct the underlying disorder and to identify pain as an issue to be addressed as soon as the disease is diagnosed.2

Important Facts for Arthritis3

More than 100 forms of arthritis exist, with rheumatoid arthritis and osteoarthritis the most prevalent forms.

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More than 33 million Americans have arthritis – 28 million of them are over the age of 45

Arthritis is more prevalent among women than men

More people in the South have had arthritis than in any other region.4

By 2020, researchers project that 60 million in the United States will be affected by arthritis.5

Osteoarthritis is the most common form of arthritis, its prevalence increasing with age: as much as 80 percent of the population over 75 years old show radiologic signs of the condition.6

Key Messages for Temporomandibular Joint (TMJ) Dysfunction7

TMJ diseases and disorders refer to a complex and poorly understood set of conditions, manifested by pain in the area of the jaw and associated muscles and limitations in the ability to make the normal movements of speech, facial expression, eating, chewing, and swallowing. Conditions that routinely affect other joints in the body, such as arthritis and trauma, also affect the TM joint (TMJ).

Pain from TMJ can be mild to severe, temporary to chronic.

TMJ is a legitimate cause of pain – and for sufferers, the pain is very real.

CAREGIVERBOOKBAG

The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) Announces New Book

WEBRESOURCES

Living with RSDS is a thoughtful, comprehensivelook at RSD/CRPS. Co-authored by a patient and aphysician, both of whom serve on the RSDSABoard of Directors, this new book features sectionson diagnosis, treatment, pediatric RSD/CRPS, living in a “well” world and much more!

For additional information, log on to www.rsds.org.

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Selected National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Coalition Members8

This E-Newsletter will highlight those coalition members who are primarily focused on arthritis and musculoskeletal conditions. Those coalition members who have a special focus on sports medicine and skin disease conditions will be highlighted in the next E-Newsletter, Volume 14.

American Academy Of Orthopaedic Surgeons (AAOS)The academy is the professional society of bone and joint surgeons. It seeks to further knowledge in the diagnosis and treatment of bone-related diseases.  

P.O. Box 2058Des Plains, IL 60017Phone: 800-824-BONE (2663)Web site: www.aaos.org

American Association of Colleges of Osteopathic Medicine (AACOM) This association serves the administration, faculty, and students of the 19 member osteopathic medical schools.

5550 Friendship Blvd., Suite 310Chevy Chase, MD 20815Phone: 301-968-4100Web site: www.aacom.org

American Autoimmune-Related Diseases Association, Inc. (AARDA) The association promotes a national focus and collaborative effort among volunteer groups that work with autoimmune-related diseases. It provides research grants and offers education programs, including seminars and workshops.  

22100 Gratiot Ave.E. Detroit, MI 48021Phone: 810-776-3900Web site: www.aarda.org 

American College of Rheumatology (ACR) This professional organization of rheumatologists (doctors specializing in arthritis and related conditions) and associated health professionals is involved in research, education, and patient care. It provides educational materials and guidelines, as well as referrals to rheumatologists and other health professionals.  

1800 Century Place, Suite 250Atlanta, GA 30345Phone: 404-633-3777Web site: www.rheumatology.org

American Juvenile Arthritis Organization (AJAO) This organization of parents, health care professionals, and others interested in the problems of juvenile arthritis serves as an advocate for the needs of those with juvenile rheumatic diseases and related conditions. It is a council of the Arthritis Foundation.  

1330 Peachtree Street

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Atlanta, GA 30309Phone: 404-872-7100 or toll free: 800-283-7800Web site: www.arthritis.org (see “About Us”)

 American Society for Bone and Mineral Research (ASBMR) 

This is a professional medical/scientific society established to bring together clinical and experimental scientists involved in the study of bone and mineral metabolism.  

1200 19th Street, NW, Suite 800Washington, DC 20036-2422Phone: 202-857-1161Web site: www.asbmr.org

Arthritis Foundation The Arthritis Foundation is the main voluntary organization devoted to the more than 100 forms of arthritis and related conditions. The foundation publishes pamphlets, a magazine and provides up-to-date information on such items as research and treatment, nutrition, and alternative therapies. Chapters nationwide offer exercise programs, classes, support groups, physician referral services, and free literature.  1330 West Peachtree StreetAtlanta, GA 30309Phone: 404-872-7100 or toll free: 800-283-7800Web site: www.arthritis.org

Arthritis Foundation/Metropolitan Washington Chapter This is the Washington, D.C., area chapter of the Arthritis Foundation.  

4455 Connecticut Avenue, NW, Suite 300Washington, DC 20008Phone: 202-537-6800Web site: www.arthritis.org/offices/mwa

Association of Rheumatology Health Professionals (ARHP) This division of the American College of Rheumatology (ACR) is a professional association of nonphysician health care professionals who specialize in rheumatology.  

1800 Century Place, Suite 250Atlanta, GA 30345Phone: 404-633-3777Web site: www.rheumatology.org/arhp/index.html

Biophysical Society This is a professional organization of biophysicists, biochemists, and other scientists interested in the application of physical laws and techniques to the analysis of living phenomena.  

9650 Rockville PikeBethesda, MD 20814Phone: 301-530-7114Web site: www.biophysics.org/biophys/society/biohome.htm

Ehlers-Danlos National Foundation (EDNF) 

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The foundation serves people with or interested in Ehlers-Danlos syndrome (EDS) and medical professionals who treat EDS. It aids networking among members for communication and support and maintains a library of educational materials.  

6399 Wilshire Blvd., Suite 200Los Angeles, CA 90048Phone: 323-651-3038Fax: 323-651-1366Web site: www.ednf.org

Facioscapulohumeral Society, Inc. This organization promotes scientific and clinical research on FSH muscular dystrophy (FSHD) through the education of the public, government bodies, and the medical profession. It collects and distributes information on FSHD and its cause and treatment, fosters communication among interested parties worldwide, helps organize support groups for people living with FSHD, and serves as a referral source for health professionals.  

3 Westwood RoadLexington, MA 02420Phone: 781-860-0501 Web site: www.fshsociety.org

Federation of American Societies for Experimental Biology (FASEB) This federation of scientific societies represents a variety of medical researchers and includes the American Physiological Society, the American Society for Biochemistry and Molecular Biology, the American Society for Pharmacology and Experimental Therapeutics, the American Society for Investigative Pathology, the American Institute of Nutrition, the American Association of Immunologists, the American Society for Cell Biology, the Biophysical Society, and the American Association of Anatomists.  9650 Rockville PikeBethesda, MD 20814-3998Phone: 301-571-0657Web site: www.faseb.org

International Myeloma Foundation (IMF) The foundation sponsors research in multiple myeloma.  

2129 Stanley Hills Dr.Los Angeles, CA 90046 Phone toll free: 800-452-2873Web site: www.myeloma.org

Lupus Foundation Of America (LFA) This is the main voluntary organization devoted to lupus. The LFA provides services to people with lupus, works to educate the public about lupus, and supports lupus research. Through a network of more than 500 branches and support groups, the chapters offer information and referral services, health fairs, newsletters, publications, seminars, support group meetings, hospital visits, and telephone help lines.  

Lupus Foundation of America, Inc.2000 L Street, N.W., Suite 710 Washington, DC 20036 Phone: 202-349-1155 Fax: 202-349-1156 Web site: www.lupus.org

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Lyme Disease Foundation (LDF) The foundation seeks to educate medical professionals and the public about Lyme disease. It provides treatment protocols, diagnostic guidelines, and photographic case histories. It assists in forming support groups, offers referral services, maintains a speakers bureau, sponsors medical seminars, and conducts research. The foundation maintains a registry of infected pregnant women and congenital cases.  

One Financial Plaza, 18th FloorHartford, CT 06103Phone: 860-525-2000Web site: www.lyme.org

Myositis Association of AmericaThe mission of the Myositis Association of America is to improve the lives of those affected by inflammatory myopathies. They seek out persons with inflammatory myopathies, provide a support network, act as a resource for patients and the medical community, advocate for patients, and promote research into the causes and treatment of the diseases.

755 Cantrell Avenue, Suite CHarrisonberg, VA 22801Phone: 540-433-7686Fax: 540-432-0206www.myositis.org

National Association of Orthopaedic Nurses This is an association of nurses involved or knowledgeable in orthopaedic nursing. It enhances the personal and professional growth of orthopaedic nurses through continuing education programs and promotes research development and advances in orthopaedic nursing.  

401 Michigan Avenue, Suite 2200Chicago, IL 60611Phone: 800-289-6266Fax: 312-527-6658Web site: www.orthonurse.org

National Fibromyalgia AssociationThis association is concerned with developing and executing programs dedicated to improving the quality of life for people with fibromyalgia by increasing the awareness of the public, the media, government, and the medical community. It makes the latest research and treatment information available to people with fibromyalgia, and it educates and motivates the medical community to provide faster diagnosis, better treatment, and more extensive research.  

2200 N. Glassell Street, Suite AOrange, CA 92865Phone: 714-921-0150Web site: www.fmaware.org

National Foundation For Ectodermal Dysplasias (NFED)This is an association of people with ectodermal dysplasias and the medical community. It educates health care professionals in patient treatment, locates treatment facilities, and provides referral information. 410 East Main StreetP.O. Box 114

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Mascontah, IL 62258-0114Phone: 618-566-2100 Web site: www.nfed.org

National Marfan Foundation (NMF) The foundation helps people who have Marfan syndrome and related connective tissue disorders. It provides information and materials about these disorders and how to seek appropriate care. 

22 Manhasset AvenuePort Washington, NY 11050-2023Phone: 516-883-8712 or toll free: 800-8-MARFANWeb site: www.marfan.org

National Organization For Rare Disorders (NORD)This organization serves as a clearinghouse for information about rare disorders. It monitors the Orphan Drug Act, links individuals for mutual support, encourages research on rare diseases, and encourages faster communication among voluntary organizations, health-related agencies, and government. It also provides information on rare disorders and refers patients to organizations that can assist them.  

P.O. Box 1968Danbury, CT 06813-1968Phone: 203-744-0100or toll free: 800-999-6673Web site: www.rarediseases.org

National Osteoporosis Foundation (NOF) The foundation is dedicated to reducing the widespread prevalence of osteoporosis. It seeks to increase public awareness, educate the public, provide information to people with osteoporosis and their families, educate medical professionals, advocate increased government support for research, and support biomedical research. 

1232 22nd Street,NWWashington, DC 20037-1292Phone: 202-223-2226 Web site: www.nof.org

National Sjogren's Syndrome Association The association promotes public awareness of Sjogren's syndrome and encourages research into the cause and cure of the disorder. It also conducts educational and research programs.   Web site: www.sjogrenssyndrome.org

National Vulvodynia Association The association was created to improve the lives of women affected by vulvodynia. It encourages patient self-help, provides a support network, educates the public, encourages research into more effective treatment and eventual cure, and coordinates a central source of information on suspected causes, current treatments, and ongoing research.  

Box 4491Silver Spring, MD 20914Phone: 301-299-0775Web site: www.nva.org

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Orthopaedic Research Society (ORS) This is a society of orthopaedic surgeons and other investigators who are elected as active members on the basis of their previous scientific activity, their continued participation in the field of research, and their accomplishments in orthopaedic surgery. The society promotes orthopaedic research.  

6300 River Road, Suite 727Rosemont, IL 60018-4226 Phone toll free: 800-626-6726Web site: www.ors.org

Osteogenesis Imperfecta Foundation This is an organization of health professionals, people with osteogenisis imperfecta (OI), and parents of children with OI. It supports and encourages medical research into effective treatment of the disorder and seeks to educate people with OI, their families, and health care professionals. 804 West Diamond Ave., Suite 210Gaithersburg, MD 20878Phone: 301-947-0083 or toll free: 800-981-2663 Web site: www.oif.org

The Paget Foundation This is an organization for people with Paget's disease of bone and doctors and other health care professionals who are interested in the disorder and in improving patient care. It conducts educational programs for people with Paget's disease of bone, health care professionals, and the public and refers patients to physicians who specialize in treating the disorder. 

120 Wall Street, Suite 1602New York, NY 10005Phone: 212-509-5335 or toll free: 800-23-PAGET Web site: www.paget.org

Parent Project Muscular Dystrophy (PPMD)The Parent Project Muscular Dystrophy mobilizes people in the United States and worldwide in a collaborative effort to enable people with Duchenne and Becker Muscular Dystrophy to survive, thrive and fully participate within their families and communities into adulthood and beyond.

1012 North University Blvd.Middletown, OH 45042Phone: (513) 424-0696or toll free (800) 714-KIDSFax: (513) 425-9907 Web site: www.parentprojectmd.org

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) 

This is an association for people with reflex sympathetic dystrophy syndrome (RSDS) and health care professionals who treat RSDS patients. It educates the public and the media and provides physician referrals.  

116 Haddon Ave., Suite Haddonfield, NJ 08033

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Phone: 856-795-8845Web site: www.rsds.org

Scleroderma Foundation This voluntary organization publishes information on scleroderma. It also offers patient education seminars, support groups, physician referrals, and information hotlines.  12 Kent WaySuite 101Byfield, MA 01922Phone toll free: 800-722-4673Fax: 978-463-5809Web site: www.scleroderma.org

Scleroderma Research FoundationThis voluntary organization is dedicated to research on scleroderma. It can provide a list of researchers who are studying scleroderma. In addition, the foundation provides general and technical information on scleroderma.  

2320 Bath Street, Suite 315Santa Barbara, CA 93105Phone: 805-563-9133 or toll free: 800-441-CURE Web site: www.srfcure.org

Sjogren's Syndrome Foundation, Inc. This organization is devoted to Sjogren's syndrome. It publishes free pamphlets and a newsletter for members that provides up-to-date information. It provides clinic and physician referrals.  

8120 Woodmont Avenue, Suite 530Bethesda, MD 20814-1437Phone (local): 301-718-0300Phone toll free: 800-475-6473Fax: 301-718-0322Web site: www.sjogrens.org 

Spondylitis Association of America (SAA) The association is the main voluntary organization devoted to all forms of spondylitis. It publishes materials for patients and for health care professionals.  

P.O. Box 5872Sherman Oaks, CA 91413 Phone toll free: 800-777-8189Web site: www.spondylitis.org

THEBUCKSBOX

The National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Provides Research Opportunities

NIAMS, a part of the National Institutes of Health (NIH), leads the Federal medical research effort in arthritis and musculoskeletal and skin diseases. The NIAMS supports research and research training throughout the United States, as well as on the NIH campus in Bethesda, MD, and disseminates health and research information. The National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse is a public service sponsored by the NIAMS that provides health information and information sources. Additional information can be found on the NIAMS Web site at http://www.niams.nih.gov.

If one is interested in applying for research funding through NIAMS, the research topics covered in the NIAMS 2000-2004 Strategic Plan are:

o Arthritis and Other Rheumatic Diseases o Cartilage and Connective Tissue o Bone Biology and Bone Diseases o Orthopaedicso Muscle Biology o Skin Disease

For each of the topics listed above, NIAMS provides research guidelines and additional directions on its web site. For example, some of the NIAMS research guidelines for arthritis and other rheumatic diseases includes:

Promoting research and testing of new therapeutic approaches for arthritis and other rheumatic diseases;

Developing effective means of preventing, delaying, or alleviating the complications of arthritis and other rheumatic diseases;

Supporting strategies to understand and reverse health disparities among ethnic minorities and women that are disproportionally affected by arthritis and other rheumatic diseases;

Developing new concepts to improve the efficiency of randomized controlled trials for rheumatic diseases. Trials of rare or relatively rare rheumatic diseases, where the outcomes are often endpoints that require prolonged observation, are usually very difficult to carry out. New designs are needed combined with new but rigorous statistical packages that will enable shorter trials involving fewer patients; and

In addition to funding research on critical diseases, NIAMS also provides a listing of opportunities for patients to participate in research. The Patient Research Registries can be found on the NIAMS website at: www.niams.nih.gov, click Health Information and then under “Patient Research Registries. For additional information, log on to www.niams.nih.gov

Health and Human Services (HHS) Seeks Personal Assistant Proposals

HHS is gearing up to meet rising demand for personal assistants, as boomers age, in a new program. The program is called “Demonstration to Improve the Direct Service Community Workforce.” HHS Secretary Thompson announced that this program will fund seven to ten projects around the U.S. designed to develop and implement programs that will recruit and retain direct service workers. For additional information, log on to www.hhs.gov, then select All HHS News, then Press Releases, then 2003.

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Edited by:

Pamela P. Bennett, BSN, RNSenior Director, Advocacy

Joan Zooper, BA, JDSenior Manager, Advocacy

Beverly King, BAAdministrative Editor, Advocacy

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Purdue Pharma L.P.

2003 Purdue Pharma L.P.

1 in the face of pain, Pain Advocacy Community ToolKit, Purdue Pharma L.P., 20032 American Pain Society, “Guideline for the Management of Pain in Osteoarthritis, Rheumatoid Arthritis, and Juvenile Chronic Arthritis,” 2002.3 in the face of pain, Pain Advocacy Community ToolKit, Purdue Pharma L.P., 20034 National Center for Health Statistics, FASTATS web site: “Arthritis”, www.cdc.gov/nchs/fastats/arthritis.htm5 Helmick CG, Lawrence RC, Pollard RA, et al. “Arthritis and other rheumatic conditions: who is affected now and will be affected later.” Arthritis Care and Research 1995:8:203-211.6 Bijlsma JW. “Analgesia and the patient with osteoarthritis.” Am J Ther. 2002 May-Jun; 9(3): 189-977 in the face of pain, Pain Advocacy Community ToolKit, Purdue Pharma, L.P., 20038 National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), list revised as of June 3, 2003, www.rsds.org