#wegohealthchat transcript€¦ · #wegohealthchat transcript healthcare social media transcript of...

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#WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December 12th 2017, 4:00PM (America/New_York). See #WEGOHealthChat Influencers. 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago 3 days ago Ronny Allan @ronnyallan1 RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "aWEGO Health @wegohealth One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"! #WEGOHealthChat starts at 1pm ET. Will you be joining us? Rie Lopez, MPH @rieofletters @wegohealth @CrzyCreoleMommy I will be there! Yaaaaaayyyyyyyy! #WEGOHealthChat FibroFlutters @fibroflutters RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "aTheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!S Thacher Hussain @thachert1d @wegohealth @thelupusliar @MightyCasey @HealthHats @patientispard @kelleemfranklin @CrzyCreoleMommy @wegohealth @CrzyCreoleMommy I have a direct schedule conflict with today's #WEGOHealthChat but look forward to working with you soon! #patientleader WEGO Health @wegohealth #WEGOHealthChat is just 30 minutes away! Start thinking of questions you've got for Brooke or, better yet, ways that you've used your advocacy to make some money to continue to fund your work! Natalie Hayden @nataliesparacio RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!Jessica Gimeno @jessicagimeno RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!FibroFlutters @fibroflutters I'll be fluttering around for #WEGOHealthChat @wegohealth @CrzyCreoleMommy Amber J Tresca @aboutibd RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!WEGO Health @wegohealth 15 minute countdown until our #WEGOHealthChat from 1-2pm EST today! Today we're joined by @CrzyCreoleMommy. Don't miss out on the fun :) https://t.co/VVvnBRah1p Becky Brandt RN @bbhomebody RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "aWEGO Health @wegohealth If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! https://t.co/MqDpALi1xs https://t.co/fCY2QwJIjR WEGO Health @wegohealth It's the final countdown. 10 min until we start chatting with Brooke Abbott (@Crzycreolemommy) about how to fund your advocacy! #wegohealthchat

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Page 1: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

#WEGOHealthChat TranscriptHealthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December 12th 2017, 4:00PM (America/New_York). See #WEGOHealthChat

Influencers.

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Ronny Allan @ronnyallan1 RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "a…

WEGO Health @wegohealth One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"! #WEGOHealthChat starts at1pm ET. Will you be joining us?

Rie Lopez, MPH @rieofletters @wegohealth @CrzyCreoleMommy I will be there! Yaaaaaayyyyyyyy! #WEGOHealthChat

FibroFlutters @fibroflutters RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "a…

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!…

S Thacher Hussain @thachert1d @wegohealth @thelupusliar @MightyCasey @HealthHats @patientispard @kelleemfranklin @CrzyCreoleMommy @wegohealth @CrzyCreoleMommy Ihave a direct schedule conflict with today's #WEGOHealthChat but look forward to working with you soon! #patientleader

WEGO Health @wegohealth #WEGOHealthChat is just 30 minutes away! Start thinking of questions you've got for Brooke or, better yet, ways that you've used your advocacy to makesome money to continue to fund your work!

Natalie Hayden @nataliesparacio RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!…

Jessica Gimeno @jessicagimeno RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!…

FibroFlutters @fibroflutters I'll be fluttering around for #WEGOHealthChat @wegohealth @CrzyCreoleMommy

Amber J Tresca @aboutibd RT @wegohealth: One hour, friends! Just one hour until @CrzyCreoleMommy shares some tips and strategies for funding your advocacy "habit"!…

WEGO Health @wegohealth 15 minute countdown until our #WEGOHealthChat from 1-2pm EST today! Today we're joined by @CrzyCreoleMommy. Don't miss out on the fun :)https://t.co/VVvnBRah1p

Becky Brandt RN @bbhomebody RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "a…

WEGO Health @wegohealth If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! https://t.co/MqDpALi1xs https://t.co/fCY2QwJIjR

WEGO Health @wegohealth It's the final countdown. 10 min until we start chatting with Brooke Abbott (@Crzycreolemommy) about how to fund your advocacy! #wegohealthchat

Page 2: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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CPAP Babes @cpapbabes .@wegohealth @CrzyCreoleMommy My body is ready! #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy Join me in 5 minutes on twitter! @crzycreolemommy #WEGOHealthChat https://t.co/0D7t8jBuSW

Kristen @srvingofspprt #WEGOHealthChat in 5 minutes! Leggggooo https://t.co/gLs9ZbpO8L

WEGO Health @wegohealth 5 min until go time! If you're joining the #WEGOHealthChat make sure to say hi, introduce yourself & tell us where you're tweeting from!

Alan Brewington @abrewi3010 RT @wegohealth: It's the final countdown. 10 min until we start chatting with Brooke Abbott (@Crzycreolemommy) about how to fund your advoc…

Kristen Long @wegokristenl RT @srvingofspprt: #WEGOHealthChat in 5 minutes! Leggggooo https://t.co/gLs9ZbpO8L

Simon Stones @simonrstones RT @wegohealth: In just a few hours we'll be starting December's #WEGOHealthChat with @CrzyCreoleMommy! Learn the best ways to fund your "a…

Kristen Long @wegokristenl @Rossco006 Heck yes I do! Hope you’re free for the #WEGOHealthChat in 4 minutes

Ashley Hattle @ashleyhattle RT @wegohealth: 5 min until go time! If you're joining the #WEGOHealthChat make sure to say hi, introduce yourself & tell us where you're t…

Christy Stone @crohniebologna I'm hopping on to participate in this chat. Won't you join me? https://t.co/8n1elasGSM

Julie Cerrone Croner @justagoodlife Who’s joining us today?! #WEGOHealthChat https://t.co/I4ovnsOxvt

Danny van Leeuwen @healthhats #WEGOHealthChat I am @healthhats, patient/caregiver activist, blogger, advisor, expert, researcher

Ashley Hattle @ashleyhattle I'm excited for #WEGOHealthChat! Tweeting from snowy #Michigan today. https://t.co/SBIldwGySM

Jackie Zimmerman @jackiezimm RT @wegohealth: 5 min until go time! If you're joining the #WEGOHealthChat make sure to say hi, introduce yourself & tell us where you're t…

TheCrazyCreoleMommy @crzycreolemommy oh my...2 minutes y'all! I'm getting the co�ee ready. And doing my finger stretches! #wegohealthchat

Simon Stones @simonrstones Hi everyone! Really looking to today's @wegohealth #WEGOHealthChat with @CrzyCreoleMommy! Trying to multi-task between this, and writing ethicsdocuments for my PhD... helped with some Christmas tunes https://t.co/qj7mU7rnA6

Julie Cerrone Croner @justagoodlife Getting the gang together for the next hour! #WEGOHealthChat https://t.co/XfAhEP0ygJ

Becky Brandt RN @bbhomebody Cant wait for #WEGOhealthchat in 2 minutes.

Page 3: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Becky Brandt RN @bbhomebody @justagoodlife I love your superhero team gif! #WEGOHealthChat

Simon Stones @simonrstones RT @justagoodlife: Getting the gang together for the next hour! #WEGOHealthChat https://t.co/XfAhEP0ygJ

WEGO Health @wegohealth Welcome to the December #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by @CrzyCreoleMommy, who is an IBD #PatientLeaderwith lots of info to share with you today! https://t.co/zMhfyegUTl

WEGO Health @wegohealth @AshleyHattle Me too! So windy today! #wegohealthchat

CPAP Babes @cpapbabes Hello everyone! My name is Stacy and this is my first #wegohealthchat! I am a patient advocate for people with sleep apnea and run a blog calledCPAPBabes! Check it out over at https://t.co/9n5LqZzC2q. Excited to be here!

Rudy Caseres @rudycaseres Hello, I’m Rudy Caseres and I’m a mental health advocate from Los Angeles. First time #WEGOHealthChat

Ronny Allan @ronnyallan1 @wegohealth @CrzyCreoleMommy @ronnyallan1 @NETCancerBlog from UK #NeuroendocrineCancer - receive only! #WEGOHealthChat

WEGO Health @wegohealth @RudyCaseres Welcome Rudy! It's nice to have you! #WEGOHealthChat

WEGO Health @wegohealth @Cpapbabes Yay! Welcome Stacy! So great to "meet" you! #WEGOHealthChat

Deeanne @spondywolfgirl Hi! I'm Deeanne in Orlando and advocating for Psoriatic Arthritis and more. #wegohealthchat

Julie Cerrone Croner @justagoodlife Hey everybody! Julie here. @wegohealth + Patient Leader from Pittsburgh, PA. Excited as always for our chat! #WEGOHealthChat

Alan Brewington @abrewi3010 Hello from Boise Idaho. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @wegohealth: If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! https://t.co/MqDpALi1xs h…

WEGO Health @wegohealth @spondywolfgirl Hi Deeanne! #WEGOHealthChat

Whitney Petit @cfepilepsy Time for the #WEGOHealthChat...join in! https://t.co/3GAtpsrFyT

Julie Cerrone Croner @justagoodlife @HealthHats Hey Danny! Great to have you here! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy Love seeing everyone!! Hi everybody!!! #wegohealthchat

Page 4: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Casey Quinlan @mightycasey Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat

Ashley Hattle @ashleyhattle #WEGOHealthChat I'm Ashley and I advocate for myself and others with #clusterheadaches I recently published a book on the #braindisorder and run themonthly #CHtalk twitter chat.

Julie Cerrone Croner @justagoodlife @AshleyHattle Awe love that little gif! It's snowing a little here in Pgh, Pa too. Little bit of a dusting on the ground. we may get about an inch#WEGOHealthChat

FUMSnow @fumsnow #WEGOHealthChat starting now!!

Lucy Watts MBE @lucyalexandria Hi, I’m trying to join in but my computer is failing me & im still trying to sign o� another account on my computer. Will try and join if I can. Lucy 24 from theUK, Neuromuscular Disease & multi-organ failure #WEGOHealthChat

Becky Brandt RN @bbhomebody Hi Im Becky from Washington state. #nurse CPS patient #chronicpain advocate & proud Cofounder @cpnervecenter #WEGOHealthChat

WEGO Health @wegohealth But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be labeled Q1, Q2, Q3, etc &answers should be labeled A1, A2, A3, etc by you! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @CrzyCreoleMommy Whoop whoop!!! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @SimonRStones @wegohealth @CrzyCreoleMommy Christmas tunes ALWAYS make everything better #WEGOHealthChat

Open Science @_open_science_ RT @MightyCasey: Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat

Leslie Krongold, EdD @leslie_ghf Hi, I'm Leslie from Alameda, CA and this is my first time participating in a #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @bbhomebody Yay! Glad you're here! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @wegohealth: Welcome to the December #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by @CrzyCreoleMommy, who is…

MarlaMuraskoMusings @musingsfromasnm Hi everyone Marla from @MusingsfromaSNM Advocate for #downsyndrome #WEGOHealthChat

Kristen Long @wegokristenl Joining from sunny CA ��� #WEGOHealthChat https://t.co/kyJv2gHILn

Whitney Petit @cfepilepsy Hey everyone! Whitney here from Dallas, Tx! Patient Leader for the #Epilepsy community � #wegohealthchat

Page 5: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Simon Stones @simonrstones @wegohealth @CrzyCreoleMommy Should have also said that I'm Simon! Patient Leader from the UK, who has the privilege to work across Europe andwider afield with so many fantastic people, projects and organisations. I'm also a PhD Candidate in Applied Health & Trustee of @fmauk & @raiiseuk!#WEGOHealthChat

Adam Hayden @adamhayden Best wishes for a great chat! I can’t attend because attending meeting with my advocacy non-profit @NBTStweets, but I look forward to joining next time!✌ #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @justagoodlife @SimonRStones @wegohealth YES! I had some on last night! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @Cpapbabes Hi Stacy! So happy to have you :) #WEGOHealthChat

Becky Brandt RN @bbhomebody @justagoodlife Thanks. Good to see u Julie #WEGOHealthChat

Whitney Petit @cfepilepsy @Leslie_GHF Welcome! #WEGOHealthChat

Simon Stones @simonrstones @justagoodlife @wegohealth @CrzyCreoleMommy They sure do! #WEGOHealthChat https://t.co/kUZxOsgeB0

Julie Cerrone Croner @justagoodlife @RudyCaseres Hi Rudy! Happy to have you! #WEGOHealthChat

Sue Daum @suedaum I'm here from sorta sunny NC #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @RonnyAllan1 @wegohealth @CrzyCreoleMommy @NETCancerBlog Hey ronny!! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be…

Angela Cohen @angelee828 @justagoodlife � Hi, Angela here and ready to learn from Wisconsin! #WEGOHealthChat

Jackie Zimmerman @jackiezimm @justagoodlife @SimonRStones @wegohealth @CrzyCreoleMommy Def have mine rockin! Lol #wegohealthchat

Julie Cerrone Croner @justagoodlife @spondywolfgirl Hey Deeanne :) How are you? #WEGOHealthChat

Colin Hung @colin_hung RT @wegohealth: Welcome to the December #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by @CrzyCreoleMommy, who is…

WEGO Health @wegohealth As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressive #PatientLeader butshe's also a new member of our 2018 Patient Leader Advisory Board! � Her work on ad boards inspired this #WEGOHealthChat.

Julie Cerrone Croner @justagoodlife @abrewi3010 Hey Alan! How are you doing?? #WEGOHealthChat

Page 6: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Jackie Zimmerman @jackiezimm It’s like all my friends are here! #WEGOHealthChat

Simon Stones @simonrstones @adamhayden @NBTStweets Sorry you can't join! Hope the meeting goes well @adamhayden � #WEGOHealthChat

ingevandelannoote @ingevdln Hope to learn from you all tonight ... Inge, IBD patient from Belgium #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @angelee828 Hey Angela!! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Whitney Petit @cfepilepsy @CrzyCreoleMommy Hey Brooke! �� #WEGOHealthChat

Simon Stones @simonrstones @CfEpilepsy Hi @CfEpilepsy! � #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @AshleyHattle That's wonderful! Congratulations on your book! #WEGOHealthChat

Deeanne @spondywolfgirl @justagoodlife I'm doing alright. Just dealing with actual frigid temps down here! #wegohealthchat

Simon Stones @simonrstones @WEGOKristenL Hi @WEGOKristenL! � #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @LucyAlexandria Ah love when technology fails :( #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @wegohealth: But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be…

Jack Barrette @healthyjack RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Simon Stones @simonrstones @MusingsfromaSNM Hi @MusingsfromaSNM! � #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @MightyCasey @_open_science_ Hey Casey!! #WEGOHealthChat

FibroFlutters @fibroflutters Carole Scra�on Co-F FibroFlutters Support/Advice/Advocacy Group on & o�line across multiple social media platforms #patientvoice #patientincluded#patientcentricity #PRAI #research #patientleader for all things chronic/invisible illness https://t.co/07CXxEAAdB #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @Leslie_GHF Great to see you Leslie! #WEGOHealthChat

Becky Brandt RN @bbhomebody @WEGOKristenL Love the doggy! So cute! #WEGOhealthchat

Page 7: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Whitney Petit @cfepilepsy @JackieZimm I know right!! Partayyy #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @MusingsfromaSNM Hi Marla!! How are you doing?? #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @spondywolfgirl BRRRRR!! #WEGOHealthChat

Ashley Hattle @ashleyhattle @justagoodlife Thanks! I'm also on the board of @Cluster_buster a nonprofit for #clusterheadaches #WEGOHealthChat I'm excited to join today!

Julie Cerrone Croner @justagoodlife @WEGOKristenL lucky duck #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @CfEpilepsy heeeey! #wegohealthchat

Julie Cerrone Croner @justagoodlife @CfEpilepsy Hey girl hey! #WEGOHealthChat

Dr Mary Ann Wilmarth @back2backpt @wegohealth @CrzyCreoleMommy Hi Glad to be on the #WEGOHealthChat today! My infusion is delayed so I have some time now� @Back2backPT

WEGO Health @wegohealth Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! So with that, let’s learn athing or two about funding what we're calling an "advocacy habit"! - take it away @CrzyCreoleMommy! #WEGOHealthChat

Alan Brewington @abrewi3010 @justagoodlife I never know anymore. How are you? #WEGOHealthChat

Angela Cohen @angelee828 @CrzyCreoleMommy Hey Brooke! � #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @adamhayden @NBTStweets We'll miss ya! #WEGOHealthChat

Whitney Petit @cfepilepsy @SimonRStones Hey @SimonRStones!! Glad to see you're here!! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

Simon Stones @simonrstones RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Julie Cerrone Croner @justagoodlife @suedaum I'll take sorta sunny! haha #WEGOHealthChat

CP Nerve Center @cpnervecenter @SimonRStones @bbhomebody Hi Simon #WEGOHealthChat

Jack Barrette @healthyjack Looking forward to today's chat - can already tell it's going to move faaaaast. #wegohealthchat

Page 8: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Julie Cerrone Croner @justagoodlife RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Molly Schreiber� @mollyschreiber Hey all! �#WEGOHealthChat

Julie Cerrone Croner @justagoodlife @ingevdln Hi Inge! Great to have you #WEGOHealthChat

Simon Stones @simonrstones RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

Simon Stones @simonrstones RT @FibroFlutters: Carole Scra�on Co-F FibroFlutters Support/Advice/Advocacy Group on & o�line across multiple social media platforms #pa…

Angela Cohen @angelee828 @ingevdln Hey there! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @FibroFlutters Hey Carole! Welcome #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy Alright! So let's get started! Thanks @WEGOHealth for letting me take over for the next hour. #wegohealthchat

Whitney Petit @cfepilepsy RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

MMHRC @patientexperts Hi everyone - Shannon from the Maternal Mental Health Research Collaborative. #WEGOhealthchat

Julie Cerrone Croner @justagoodlife @Back2backPT @wegohealth @CrzyCreoleMommy Sorry your infusion is on delay, but happy you're here! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @abrewi3010 Ahhh Alan! I'm good - can't complain! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some other things! I'm from LA and Ilove co�ee! With that...I'll start with the first question. #wegohealthchat

Enlightening Results @gracecordovano Hi #wegohealthchat! Grace, private cancer patient advocate, joining from NJ.

WEGO Health @wegohealth RT @CrzyCreoleMommy: My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some…

Rie Lopez, MPH @rieofletters I am late, but I am here! Hello to all! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @mollyschreiber Hey Molly! Great to see ya #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

Page 9: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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TheCrazyCreoleMommy @crzycreolemommy Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might you be able to advance yourimpact & monetize your brand/advocacy work? #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Alright! So let's get started! Thanks @WEGOHealth for letting me take over for the next hour. #wegohealthchat

Jessica Gimeno @jessicagimeno RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Julie Cerrone Croner @justagoodlife @patientexperts Hi Shannon! Great to have you #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some…

Julie Cerrone Croner @justagoodlife @GraceCordovano Hi Grace!!! How are you? #WEGOHealthChat

Becky Brandt RN @bbhomebody @RieOfLetters Hi Rie #WEGOHealthChat

WEGO Health @wegohealth Q1 is up! #WEGOHealthChat https://t.co/YuB0tlBWfZ

Julie Cerrone Croner @justagoodlife @RieOfLetters Hey Rie!! Great to have you #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might…

Julie Cerrone Croner @justagoodlife RT @wegohealth: Q1 is up! #WEGOHealthChat https://t.co/YuB0tlBWfZ

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might…

Pam Schilz @brite_dee RT @MightyCasey: Greetings, all. #OpenScience #OpenData transparency warrior, #cancer survivor, all around trouble maker. #wegohealthchat

My Fabulous Boobies @myfabboobies Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreoleMommy

Nicole McLean @nic_mclean Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreoleMommy

TheCrazyCreoleMommy @crzycreolemommy A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHealthChat

Jessica Gimeno @jessicagimeno Hello! Excited for #WEGOHealthChat - patient leader waving hi from The Windy City

Simon Stones @simonrstones RT @CrzyCreoleMommy: My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some…

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Julie Cerrone Croner @justagoodlife @JessicaGimeno Hey Jessica!! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can help you reach a bigger, broaderaudience. #WEGOHealthChat

MMHRC @patientexperts RT @MyFabBoobies: Excited to be on the #WEGOHealthChat today. Learning about funding health advocacy work. Thanks @wegohealth and @CrzyCreo…

Candace @rarecandace Hi everyone, Candace here. I'm a #raredisease advocate, just graduated from law school last Thursday. Happy I could make it #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might…

Lisa Davis Budzinski @lisadbudzinski Lisa here from @Cpnervecenter sliding in a bit tardy #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHea…

WEGO Health @wegohealth A1: from @CrzyCreoleMommy #WEGOHealthChat https://t.co/nTyV5ktCMW

Julie Cerrone Croner @justagoodlife @MyFabBoobies @wegohealth @CrzyCreoleMommy Happy you're here! #WEGOHealthChat

Ashley Hattle @ashleyhattle @CrzyCreoleMommy My morning consists of co�ee mainly. Thanks for leading the discussion today! #wegohealthchat https://t.co/jVnkQNtmSY

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can…

Julie Cerrone Croner @justagoodlife @MusingsfromaSNM It seemed like it!!!! 2018 will be even better I bet! #WEGOHealthChat

WEGO Health @wegohealth @RareCandace Hey Candace! We were peepin on those pics you posted! Congrats!! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHea…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHea…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can…

MarlaMuraskoMusings @musingsfromasnm RT @wegohealth: Q1 is up! #WEGOHealthChat https://t.co/YuB0tlBWfZ

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Julie Cerrone Croner @justagoodlife @RareCandace YAAAASSSSS!!!! I did a happy dance for you when I saw you posted you graduated!! CONGRATULATIONS! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @lisadbudzinski @Cpnervecenter Hey Lisa!! #WEGOHealthChat

Becky Brandt RN @bbhomebody @lisadbudzinski @Cpnervecenter Hey PARD. Good to see you this a.m. � #WEGOhealthchat

Alan Brewington @abrewi3010 A1 I just junked my previous blog & am starting over. Trying to keep focus on quality content, create it and they will come. #wegohealthchat

Rie Lopez, MPH @rieofletters @justagoodlife Great to see you Julie! #WEGOHealthChat https://t.co/hI1kNgMKwY

Julie Cerrone Croner @justagoodlife Did you really??? Your blog was great. What made you do that? #WEGOHealthChat https://t.co/WvcaHhTPn4

Ashley Hattle @ashleyhattle A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking them to sponsor your blog.#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking th…

TheCrazyCreoleMommy @crzycreolemommy We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5

WEGO Health @wegohealth @abrewi3010 Were you worried about losing readership/viewers/notoriety? DId you change your URL or just the content? #WEGOHealthChat

Becky Brandt RN @bbhomebody @RieOfLetters And now I have donuts on the brain! Thanks My friend �Love the Gif. #WEGOhealthchat

Rie Lopez, MPH @rieofletters @lisadbudzinski @Cpnervecenter Hi Lisa! Better late than never ;-) #WEGOHealthChat

Simon Stones @simonrstones RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHea…

WEGO Health @wegohealth @AshleyHattle Has this worked for you? #WEGOHealthChat

Lisa Davis Budzinski @lisadbudzinski @justagoodlife @Cpnervecenter Hey Julie! ✨ #WEGOHealthChat

Ronny Allan @ronnyallan1 A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes available, always ask.#WEGOHealthChat https://t.co/r0w3606g2c

Nicole McLean @nic_mclean RT @wegohealth: A1: from @CrzyCreoleMommy #WEGOHealthChat https://t.co/nTyV5ktCMW

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Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A1: cont'd: Having sponsors buy ad space or product placement is a great way to not only help you financially, but can…

Casey Quinlan @mightycasey A1: Issue for me is I'm more focused on driving change than I am on $$ for myself. So I'm broke-ass most of the time =) #wegohealthchat

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A1:Guest writing, copywriting, joining an advisory board, public speaking, & finding sponsors for your brand. #WEGOHea…

TheCrazyCreoleMommy @crzycreolemommy Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat

WEGO Health @wegohealth Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8

Nicole McLean @nic_mclean RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

Julie Cerrone Croner @justagoodlife RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

Lisa Davis Budzinski @lisadbudzinski @bbhomebody @Cpnervecenter Hey Pard! Always good to see you #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: My name is Brooke and I'm a mom. I'm also a patient advocate living with #IBD, #ankylosingspondylitis #Psorisas & some…

Julie Cerrone Croner @justagoodlife RT @MightyCasey: A1: Issue for me is I'm more focused on driving change than I am on $$ for myself. So I'm broke-ass most of the time =) #w…

MMHRC @patientexperts A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points are - but we’re in very earlydays #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through speaking and /or events. Also, pairingup with a brand that isn't disease specific can help bring awareness to a non patient audience. #WEGOHealthChat

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: Q1: One great way to maximize your impact both personally & professionally is to begin monetizing your blog. How might…

Enlightening Results @gracecordovano @healthyjack Hi Jack! Yes, looking forward to learning #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5

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Whitney Petit @cfepilepsy RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

WEGO Health @wegohealth RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

Nicole McLean @nic_mclean RT @AshleyHattle: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking th…

TheCrazyCreoleMommy @crzycreolemommy RT @AshleyHattle: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking th…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

Nicole McLean @nic_mclean RT @justagoodlife: Did you really??? Your blog was great. What made you do that? #WEGOHealthChat https://t.co/WvcaHhTPn4

Julie Cerrone Croner @justagoodlife RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points…

Ashley Hattle @ashleyhattle @wegohealth I'm at the very beginning of my blogging e�orts. I focused on writing the book on #clusterheadaches first and organized a 5k last summer.We had some great sponsors for the event so I'm hoping to work with them for my blog as well. #WEGOHealthChat

Jen Horonje� @jhoronje� Hey folks! Jen from @savvy_coop jumping in late here from NYC! #WEGOHealthChat

Lisa Davis Budzinski @lisadbudzinski @RieOfLetters @Cpnervecenter Hey Rie! Thank you � #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

CPAP Babes @cpapbabes Q1: @CrzyCreoleMommy @Wegohealth Working on selling sponsored posts (both on the blog and social media) and working on building up my YouTubevideo library so I can eventually get some ads running on my videos. Also need to follow up on a speaking gig inquiry! #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @Cpapbabes: Q1: @CrzyCreoleMommy @Wegohealth Working on selling sponsored posts (both on the blog and social media) and working on buil…

Rie Lopez, MPH @rieofletters @abrewi3010 I did this too Alan. A lot of my previous content no longer matched my present reality. It is hard to start over again, but I am sure you willbuild up a great following in no time! #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

WEGO Health @wegohealth @MightyCasey You gotta Treat Yo Self! #WEGOHealthChat

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Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @wegohealth I'm at the very beginning of my blogging e�orts. I focused on writing the book on #clusterheadaches first an…

Nicole McLean @nic_mclean RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points…

Simon Stones @simonrstones A1: For me, it all comes back down to building your reputation (slowly, but surely!) Create quality, meaningful content, and network! Things definitelydevelop over time, and I'm finding myself at this point now, hence I'm looking to learning lots of tips today! #WEGOHealthChat https://t.co/4oFbOcbrqi

TheCrazyCreoleMommy @crzycreolemommy Yes. But you guys are getting ahead of me! LOL! Look at you patient leaders getting it! #WEGOHealthChat https://t.co/vdPchru7nr

Casey Quinlan @mightycasey A1 folo-up = I'm also known as an agent provocateur, take-no-prisoners voice. Won't water down to suit others, so ... #wegohealthchat

Ashley Hattle @ashleyhattle @wegohealth Companies who are conducting clinical trials seem to be great at sponsoring events and content. #WEGOHealthChat

My Fabulous Boobies @myfabboobies RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points…

Simon Stones @simonrstones RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

Lucy Watts MBE @lucyalexandria A1 Paid consultancy for organisations/businesses, public speaking (especially through an agent), joining boards, copywriting, paid advocacy work.#WEGOHealthChat https://t.co/BnBnDJz64G

Simon Stones @simonrstones RT @patientexperts: A1 - we have focused on creating quality content - understanding what our community’s needs, interested and pain points…

My Fabulous Boobies @myfabboobies RT @justagoodlife: Did you really??? Your blog was great. What made you do that? #WEGOHealthChat https://t.co/WvcaHhTPn4

My Fabulous Boobies @myfabboobies RT @AshleyHattle: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking th…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: We are totally gonna get to that later on in the chat! stay tuned! xo #wegohealthchat https://t.co/uMG7kqe3j5

Simon Stones @simonrstones RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: Q1a Follow Up: How can brand sponsors impact your advocacy work? #WEGOHealthChat

Jessica Gimeno @jessicagimeno @jhoronje� @savvy_coop Hey Jen! Good to see you #WEGOHealthChat �

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Enlightening Results @gracecordovano @justagoodlife @ingevdln Hi Julie!! #WEGOhealthchat

Alan Brewington @abrewi3010 @justagoodlife Thank you! You know me, can’t stay out of trouble. 2017 was about losing friends/family, needed something new and fresh.https://t.co/qvya5eKRrs #WEGOHealthChat

My Fabulous Boobies @myfabboobies RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

My Fabulous Boobies @myfabboobies RT @wegohealth: Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8

TheCrazyCreoleMommy @crzycreolemommy RT @SimonRStones: A1: For me, it all comes back down to building your reputation (slowly, but surely!) Create quality, meaningful content,…

Simon Stones @simonrstones @MightyCasey Can relate to that one! #WEGOHealthChat

MMHRC @patientexperts We also face the issue of stigma as not a lot of brands necessarily want to attach themselves to depressed moms - but I know there are ways around this#WEGOHealthChat

WEGO Health @wegohealth RT @LucyAlexandria: A1 Paid consultancy for organisations/businesses, public speaking (especially through an agent), joining boards, copywr…

Ashley Hattle @ashleyhattle A1-2: I think guest blogging for paid publications is another way to help monetize your #advocacy e�orts. #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy Q1b Follow Up: Here's something I've been asked a lot. Are you selling out if you are monetizing your blog? #WEGOHealthChat

Casey Quinlan @mightycasey A1: plus, as journo, my brand mantra = "comfort the a�licted, a�lict the comfortable" which means few find fit w/my voice #wegohealthchat

Jessica Gimeno @jessicagimeno RT @AshleyHattle: A1: By reaching out to research companies working on emerging treatments for the condition you advocate for and asking th…

Lucy Watts MBE @lucyalexandria RT @Cpapbabes: Q1: @CrzyCreoleMommy @Wegohealth Working on selling sponsored posts (both on the blog and social media) and working on buil…

Julie Cerrone Croner @justagoodlife @SimonRStones I definitely agree - you have to build quality and trust. Taking on ANY gig isn't going to always be in your best interest. Sometimes weshould be picky. BUT, it's good to get the foot in the door sometimes too! #WEGOHealthChat

WEGO Health @wegohealth RT @AshleyHattle: A1-2: I think guest blogging for paid publications is another way to help monetize your #advocacy e�orts. #WEGOHealthChat

Nicole McLean @nic_mclean RT @wegohealth: Great suggestion @RonnyAllan1 !! #WEGOHealthChat https://t.co/QbTixQvQP8

Nicole McLean @nic_mclean RT @SimonRStones: @MightyCasey Can relate to that one! #WEGOHealthChat

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WEGO Health @wegohealth What do you think? #WEGOHealthChat https://t.co/gRiFIoJZzC

TheCrazyCreoleMommy @crzycreolemommy A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your sponsors or branding is relevant to yourcause, then it's all relative. Make sure your upfront to maintain trust with your audience. #WEGOHealthChat

My Fabulous Boobies @myfabboobies RT @SimonRStones: @MightyCasey Can relate to that one! #WEGOHealthChat

Rie Lopez, MPH @rieofletters @wegohealth @RonnyAllan1 This is definitely something I didn't know about! I am looking forward to learning more. Thanks for the idea, @RonnyAllan1!#WEGOHealthChat

Enlightening Results @gracecordovano @justagoodlife Terrific! Hope you are feeling well. #WEGOhealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

Julie Cerrone Croner @justagoodlife Can't wait to check it out and read! #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

Whitney Petit @cfepilepsy Tons of these opportunities came when I decided to rebrand and give some TLC to my blog. Quality content but didn't look like it was loved.#WEGOHealthChat https://t.co/PK2HLEvugU

MMHRC @patientexperts @AshleyHattle @wegohealth I know that there are limits that Pharma has on what they can pay for along with FDA disclosure requirements#WEGOHealthChat

Ashley Hattle @ashleyhattle @patientexperts I hope these brands come around to the idea. #Depression is a very real concern, especially for mom/parents of young children.#WEGOHealthChat

Lisa Davis Budzinski @lisadbudzinski @JessicaGimeno @Cpnervecenter What the whohey?!!! With that hashtag � #wegohealthchat

Alan Brewington @abrewi3010 @RieOfLetters Good luck to you too! My new reality didn’t match my old content either. Biggest worry is falling back into old habits. #WEGOHealthChat

Deeanne @spondywolfgirl A1b: I don't think you are. I think the harder part is choosing brands that reflect you and your work, not just there 4 $ #wegohealthchat

Nicole McLean @nic_mclean This is so true! You can't serve from an empty vessel. Great point. Plus, being sick is costly as we all know. You need funding, period.https://t.co/P51SpZqZnX

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My Fabulous Boobies @myfabboobies This is so true! You can't serve from an empty vessel. Great point. Plus, being sick is costly as we all know. You need funding, period.https://t.co/tgVu8Nn4Dv

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q1b Follow Up: Here's something I've been asked a lot. Are you selling out if you are monetizing your blog? #WEGOHealt…

Simon Stones @simonrstones @justagoodlife Definitely! There's a fine balance � You tend to become a bit more selective when you take on more and more things and realisticallyrequire one or two clones � #WEGOHealthChat

Amanda Merck, MPH @amfitnesshealth @abrewi3010 Do they come? Are you tracking? #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @AshleyHattle: @wegohealth Companies who are conducting clinical trials seem to be great at sponsoring events and content. #WEGOHealthCh…

CPAP Babes @cpapbabes @CrzyCreoleMommy Yes! I make it relevant to my cause and to my personal mission. (I don't like clutter so try not to accept product samples that won't beuseful to me...although it's hard to say no!) #wegohealthchat

Julie Cerrone Croner @justagoodlife A1 In finding engagements & ways to monetize I think it's imprt to think of our goals & personality. Casey you're ALWAYS 100% close and true to yourmission. And that's so admirable #WEGOHealthChat https://t.co/F3vaJ1OEtR

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

Casey Quinlan @mightycasey Let's get real: most industry-side $$ is focused on *their* ROI, rather than *our* theory of change, or mission to break/fix system. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @wegohealth Companies who are conducting clinical trials seem to be great at sponsoring events and content. #WEGOHealthCh…

Rie Lopez, MPH @rieofletters @MightyCasey You are not alone! Definitely spinning the wheels right now, but I am trying to figure out where to go from here. Solidarity!#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @LucyAlexandria: A1 Paid consultancy for organisations/businesses, public speaking (especially through an agent), joining boards, copywr…

Nicole McLean @nic_mclean RT @patientexperts: @AshleyHattle @wegohealth I know that there are limits that Pharma has on what they can pay for along with FDA disclosu…

Danny van Leeuwen @healthhats A1 I let people who ask for pro bono work know my hourly rate and that I'll give them x hours a month and $0. Then they know I know I have value andfreely give them a few hours. #WEGOHealthChat

Simon Stones @simonrstones @LucyAlexandria @wegohealth @CrzyCreoleMommy @fmauk @raiiseuk You too @LucyAlexandria! Bet you're feeling tweeted out this week!� #WEGOHealthChat

Whitney Petit @cfepilepsy Agreed! #WEGOHealthChat https://t.co/PIa5CGmea8

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Julie Cerrone Croner @justagoodlife That's a great point. Have to pick brands and opps wisely. #WEGOHealthChat https://t.co/LisWTERgJA

Amanda Merck, MPH @amfitnesshealth @patientexperts @CrzyCreoleMommy Good question. I’m curious, too? #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: A1-2: I think guest blogging for paid publications is another way to help monetize your #advocacy e�orts. #WEGOHealthChat

Simon Stones @simonrstones @LucyAlexandria @MightyCasey Learning to say no is di�icult isn't it @LucyAlexandria @MightyCasey! #WEGOHealthChat

Ashley Hattle @ashleyhattle @patientexperts @wegohealth Very good point. I was mainly thinking of researchers looking for more patients for their studies. #Advocacy blogs are agreat way to reach their target audience for participants. #WEGOHealthChat

Nicole McLean @nic_mclean That does present a lot of problems. Pharma is good to partner with but hard to get money for the partnerships. I'm still working on how to leverage thoseconnections better. https://t.co/wSKH2qDUpW

My Fabulous Boobies @myfabboobies That does present a lot of problems. Pharma is good to partner with but hard to get money for the partnerships. I'm still working on how to leverage thoseconnections better. https://t.co/PwWmrfeJcY

Julie Cerrone Croner @justagoodlife OOOHH good question. What do you guys think? #WEGOHealthChat https://t.co/x5N8SvxEPz

Lucy Watts MBE @lucyalexandria RT @SimonRStones: @justagoodlife Definitely! There's a fine balance � You tend to become a bit more selective when you take on more and mor…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

MMHRC @patientexperts @CrzyCreoleMommy Agree - I think it’s important to make that the main priority #WEGOHealthChat

Simon Stones @simonrstones RT @HealthHats: A1 I let people who ask for pro bono work know my hourly rate and that I'll give them x hours a month and $0. Then they kno…

CPAP Babes @cpapbabes Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn't ALL promos) it's fine. I dolimited the number I will accept per month to keep it real. #wegohealthchat @CrzyCreoleMommy

Julie Cerrone Croner @justagoodlife RT @CfEpilepsy: Tons of these opportunities came when I decided to rebrand and give some TLC to my blog. Quality content but didn't look li…

WEGO Health @wegohealth RT @Cpapbabes: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn…

Julie Cerrone Croner @justagoodlife RT @patientexperts: @AshleyHattle @wegohealth I know that there are limits that Pharma has on what they can pay for along with FDA disclosu…

Nicole McLean @nic_mclean RT @SimonRStones: @justagoodlife Definitely! There's a fine balance � You tend to become a bit more selective when you take on more and mor…

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Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @patientexperts I hope these brands come around to the idea. #Depression is a very real concern, especially for mom/paren…

TheCrazyCreoleMommy @crzycreolemommy Love the insight so far! It seems like we are all on the same track of thinking. Are we ready for Q2? #WEGOHealthChat

My Fabulous Boobies @myfabboobies RT @SimonRStones: @justagoodlife Definitely! There's a fine balance � You tend to become a bit more selective when you take on more and mor…

Julie Cerrone Croner @justagoodlife RT @spondywolfgirl: A1b: I don't think you are. I think the harder part is choosing brands that reflect you and your work, not just there…

Savvy Cooperative @savvy_coop RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

ingevandelannoote @ingevdln @CrzyCreoleMommy A1 reading all your advise here, means to me: We still have a long way to go in Belgium, regulation is so hard here, I really feel I can'tdo a lot on my own, I am dependent on the goodwill of a patientorganisation #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @Cpapbabes: @CrzyCreoleMommy Yes! I make it relevant to my cause and to my personal mission. (I don't like clutter so try not to accept…

Becky Brandt RN @bbhomebody @CrzyCreoleMommy Love these ideas! I'm curious which options give the biggest bang with the least e�ort? As an advocate and patient, I have to use myenergy wisely. #WEGOHealthChat

Becky Brandt RN @bbhomebody RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

Nicole McLean @nic_mclean https://t.co/6tcCgndsSH

My Fabulous Boobies @myfabboobies https://t.co/3f02If4UUV

CPAP Babes @cpapbabes @AshleyHattle @patientexperts @wegohealth I wish I could find more #advocacy blogs! I find that most #sleepapnea blogs are just Q&A/Patient help.#wegohealthchat

Julie Cerrone Croner @justagoodlife This is a great point. When someone o�ers you something free like a watch, but you're talking about health. Should you take the free item?#WEGOHealthChat https://t.co/RD3LwQfU5S

Alan Brewington @abrewi3010 A1b I work in healthcare, not worried about getting paid from blog. Priority is telling my story to the best of my ability. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

Jen Horonje� @jhoronje� @CrzyCreoleMommy Hi from a fellow #AS and #rheum patient :) #wegohealthchat

Maya Northen Augelli @mayanorthen Going to try to jump into #wegohealthchat on and o�. Sorry for excessive tweets!

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Jessica Gimeno @jessicagimeno RT @Cpapbabes: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn…

Julie Cerrone Croner @justagoodlife RT @HealthHats: A1 I let people who ask for pro bono work know my hourly rate and that I'll give them x hours a month and $0. Then they kno…

TheCrazyCreoleMommy @crzycreolemommy A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or Non-Profit. #WEGOHealthChat

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

WEGO Health @wegohealth Q2 Coming at you! #WEGOHealthChat https://t.co/7sGzvzhWHA

Jessica Gimeno @jessicagimeno Yes, please! Would like to know answer to this question #WEGOHealthChat @wegohealth @CrzyCreoleMommy Thanks https://t.co/a8nkcGaRrS

Danny van Leeuwen @healthhats @jhoronje� good to see you here #WEGOHealthChat

Casey Quinlan @mightycasey @CrzyCreoleMommy Frankly, I'm more focused on consulting fees than I am on monetizing any of my bespoke online content. #WEGOHealthChat

Nicole McLean @nic_mclean That's a great strategy. I will definitely borrow that one. https://t.co/PeVE6EuwZ9

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or No…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

FibroFlutters @fibroflutters A1 I haven't monetised my blog in fact FibroFlutters has grown over 3 1/2 years and only spent approx £150. That money was spent on materials to makelimited edition wares for ra�les. Services tend to cost money in order to make money & that is my main problem #WEGOHealthChat

Amanda Merck, MPH @amfitnesshealth @MightyCasey True. Many mom blogs are endorsed by formula manufacturers, for example, but they promote unhealthy products. #WEGOHealthChathttps://t.co/jnonKtbsAr

Rie Lopez, MPH @rieofletters @SimonRStones @justagoodlife I need clones. Definitely lots of clones (perhaps one that is extra fond of laundry)! #WEGOHealthChat

Alan Brewington @abrewi3010 A2 walk your vulnerability to the edge of learning a new skill then take a breathe. Don’t make yourself uncomfortable right o�. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @ingevdln: @CrzyCreoleMommy A1 reading all your advise here, means to me: We still have a long way to go in Belgium, regulation is so ha…

Danny van Leeuwen @healthhats A2 Protect yourself? as in health or getting ripped o� or staying true to mission? #WEGOHealthChat

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Julie Cerrone Croner @justagoodlife RT @bbhomebody: @CrzyCreoleMommy Love these ideas! I'm curious which options give the biggest bang with the least e�ort? As an advocate an…

Maya Northen Augelli @mayanorthen RT @JessicaGimeno: Yes, please! Would like to know answer to this question #WEGOHealthChat @wegohealth @CrzyCreoleMommy Thanks https://t.co…

Simon Stones @simonrstones RT @RieOfLetters: @SimonRStones @justagoodlife I need clones. Definitely lots of clones (perhaps one that is extra fond of laundry)! #WEGO…

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

Nicole McLean @nic_mclean That's a great idea too. I haven't been guest blogging for years but I definitely want to get back to doing that. https://t.co/ZwG2HpTQmT

Julie Cerrone Croner @justagoodlife Great point- we only have so much energy! #WEGOHealthChat https://t.co/C7uAoKN049

Ronny Allan @ronnyallan1 @SimonRStones @wegohealth @wegohealth A1 agree with @SimonRStones, building a credible internet "footprint" is not only attractive to potentialbrand sponsors but it's also hard work and not an overnight task to make it 'attractive' (€£$) #WEGOHealthChat

Ashley Hattle @ashleyhattle @MusingsfromaSNM There are several online health publications that do such as Health Central, but I love the https://t.co/BTrhUOjWyt emails that keepme up to date on paid opportunities for #freelancewriting. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

Nicole McLean @nic_mclean RT @justagoodlife: OOOHH good question. What do you guys think? #WEGOHealthChat https://t.co/x5N8SvxEPz

Julie Cerrone Croner @justagoodlife @mayanorthen Bring on the excessive tweets! #WEGOHealthChat

Casey Quinlan @mightycasey Call me cynical, but my 20+ years in major media (net TV news) makes me HIGHLY SUSPICIOUS of "sponsors" for my content. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or No…

Simon Stones @simonrstones RT @justagoodlife: This is a great point. When someone o�ers you something free like a watch, but you're talking about health. Should you…

TheCrazyCreoleMommy @crzycreolemommy @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosting events. Some are great withpublic speaking. It’s all about what you wanna put your energy into. And how your skills can be utilized. #WEGOHealthChat

MMHRC @patientexperts @justagoodlife Tell me about it! #WEGOhealthchat

Julie Cerrone Croner @justagoodlife RT @MightyCasey: @CrzyCreoleMommy Frankly, I'm more focused on consulting fees than I am on monetizing any of my bespoke online content. #W…

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Julie Cerrone Croner @justagoodlife RT @FibroFlutters: A1 I haven't monetised my blog in fact FibroFlutters has grown over 3 1/2 years and only spent approx £150. That money…

TheCrazyCreoleMommy @crzycreolemommy Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat

Danny van Leeuwen @healthhats A2 my online content is #creativecommons #opensource #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @AMFitnessHealth: @MightyCasey True. Many mom blogs are endorsed by formula manufacturers, for example, but they promote unhealthy produ…

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat

Nicole McLean @nic_mclean I don't think so at all. I let my audience know that I'm looking out for them as well as myself. https://t.co/IpMAhPTrtk

Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or No…

Nicole McLean @nic_mclean RT @Cpapbabes: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn…

Alan Brewington @abrewi3010 A2 tell your story in your voice. Don’t sacrifice quality for a sound bite, you will regret that. #wegohealthchat

My Fabulous Boobies @myfabboobies RT @Cpapbabes: Q1b: This is something I have thought a lot about! As long as it is relevant to my cause and my life (and my blog/social isn…

Jen Horonje� @jhoronje� @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! Need to listen to whatpatients are going through to help them be more e�ective advocates #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that only friends & friends of friends areapart of. Our public brands are up for scrutiny. But our personal lives should be o� limits. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @RonnyAllan1: @SimonRStones @wegohealth @wegohealth A1 agree with @SimonRStones, building a credible internet "footprint" is not only at…

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @MusingsfromaSNM There are several online health publications that do such as Health Central, but I love the https://t.co…

Simon Stones @simonrstones RT @RonnyAllan1: @SimonRStones @wegohealth @wegohealth A1 agree with @SimonRStones, building a credible internet "footprint" is not only at…

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A2– Turn your advocacy work into a brand. You can separate your social media accounts. Start an LLC, Corporation or No…

Amber J Tresca @aboutibd A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealthChathttps://t.co/r3AZQg5yFS

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Deeanne @spondywolfgirl A2a: As much as I like to help others, I wouldn't be a PsA advocate if I didn't have it myself. It is who I am now #wegohealthchat

Rie Lopez, MPH @rieofletters @abrewi3010 We will be completely awesome. I just know it! (And now I need to make sure I am following your blog!) #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosti…

TheCrazyCreoleMommy @crzycreolemommy @RieOfLetters @SimonRStones @justagoodlife Clones would be amazing. But like pre-IBD clone! LOL! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife This is something that people wrestle with a lot! #WEGOHealthChat https://t.co/uFcgBwjrQ8

Ashley Hattle @ashleyhattle @Cpapbabes @patientexperts @wegohealth You could start your own � Are you part of any online support groups on Facebook, etc? I've found that'sreally helpful for me as a patient and to figure out what topics need the most attention. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @abrewi3010: A2 tell your story in your voice. Don’t sacrifice quality for a sound bite, you will regret that. #wegohealthchat

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosti…

Alan Brewington @abrewi3010 RT @jhoronje�: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! N…

FibroFlutters @fibroflutters A1 FibroFlutters web/blog site is more of an information/magazine site than a blog and it hasn't cost me much money so far! It's more for getting the storyout there whether it's mine or someone else's. #WEGOHealthChat

Ronny Allan @ronnyallan1 @justagoodlife Yes, be picky. I fend these things o� weekly plus you don't know how legal they are #wegohealthchat

CPAP Babes @cpapbabes @CrzyCreoleMommy I have learned not to take on more than I can handle. Of course I learned this the hard way! Hah. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for other options. I'd like to share theones I know and trust. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

Becky Brandt RN @bbhomebody A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, work with other patientadvocates/share content and ideas #WEGOHealthChat

Casey Quinlan @mightycasey I'm happy to write on topic/assignment for other sites for $$, but my own voice/blog(s) = reactor-level nuke for anyone else! #WEGOHealthChat

Rie Lopez, MPH @rieofletters RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

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Nicole McLean @nic_mclean I do as long as I can fit it into my brand. We may be health advocates but we're people and we're speaking up for people - who live regular lives too.https://t.co/USV4TVls4m

Julie Cerrone Croner @justagoodlife RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @spondywolfgirl: A2a: As much as I like to help others, I wouldn't be a PsA advocate if I didn't have it myself. It is who I am now #w…

Danny van Leeuwen @healthhats A2 I'm with @MightyCasey I'm not trying to monetize website. Focusing on content. Then people come to me for consulting. But that's me#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @RieOfLetters: @abrewi3010 We will be completely awesome. I just know it! (And now I need to make sure I am following your blog!) #WEG…

WEGO Health @wegohealth RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

Jessica Gimeno @jessicagimeno RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @Cpapbabes @patientexperts @wegohealth You could start your own � Are you part of any online support groups on Facebook,…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: Q2– What are some ways to protect yourself while working for yourself while being a patient? #WEGOHealthChat

Simon Stones @simonrstones A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, and network with people whohave the skills, knowledge and experience you may be developing. #WEGOHealthChat https://t.co/bj5AOBjZLQ

Maya Northen Augelli @mayanorthen A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my brand. #Wegohealthchat

Julie Cerrone Croner @justagoodlife RT @bbhomebody: A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, wor…

Ashley Hattle @ashleyhattle A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and my fiance is chronic. Mypersonal life is my brand... but also cute pics of my dog. #WEGOHealthCHat

Alan Brewington @abrewi3010 @RieOfLetters Right back at you � #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @HealthHats: A2 I'm with @MightyCasey I'm not trying to monetize website. Focusing on content. Then people come to me for consulting.…

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Julie Cerrone Croner @justagoodlife RT @SimonRStones: A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, a…

Savvy Cooperative @savvy_coop RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

Becky Brandt RN @bbhomebody RT @justagoodlife: Great point- we only have so much energy! #WEGOHealthChat https://t.co/C7uAoKN049

CPAP Babes @cpapbabes @CrzyCreoleMommy Q2a: Depends on the person! Everyone is di�erent. For me: nah. My personal life is part of my brand. I don't think I would get thesame impact without revealing about my personal life. Plus I don't think I could leave it out! #oversharer #wegohealthchat

Ronny Allan @ronnyallan1 @justagoodlife Except when winning a #WEGOHealthAward � #wegohealthchat

Simon Stones @simonrstones RT @bbhomebody: A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, wor…

Amber J Tresca @aboutibd RT @SimonRStones: A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, a…

Nicole McLean @nic_mclean That's absolutely my next move. And it's long overdue. https://t.co/qL3LyQOGWU

Christy Stone @crohniebologna @CrzyCreoleMommy A2: Make sure you have say over final edit. Don't let your story be edited into something it's not. #WEGOHealthChat

Lucy Watts MBE @lucyalexandria A2 By making sure you as the brand is separate to you the individual/patient. For example, I'm in the UK & just registered as a sole trader but a friend toldme to register as a limited company as it's separate from me then & is limited liability #WEGOHealthChat. https://t.co/WE2PYlqZah

Natalie❄ @_nataliea YES. Mine were too intertwined and... it didn’t end well. I’m getting better at separating, but in a small slightly stagnant patient community it’s HARD.#WEGOHealthChat https://t.co/unbrofMSVZ

Julie Cerrone Croner @justagoodlife There's complete value in publishing quality content to attract bigger business opportunities. I know there are many #PatientLeaders in the same schoolof thought #WEGOHealthChat https://t.co/Ia3kg0Cabh

Maya Northen Augelli @mayanorthen RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

Julie Cerrone Croner @justagoodlife RT @Cpapbabes: @CrzyCreoleMommy Q2a: Depends on the person! Everyone is di�erent. For me: nah. My personal life is part of my brand. I don…

Ashley Hattle @ashleyhattle @Cpapbabes @CrzyCreoleMommy So true. Readers and other patients identify with personal stories the most. #WEGOHealthChat

CPAP Babes @cpapbabes @CrzyCreoleMommy Q2a: Yes! I don't usually accept people I don't know to my personal page. #wegohealthchat

Lucy Watts MBE @lucyalexandria a2 follow up yes, I think so. You are your brand but your brand isn't you. #WEGOHealthChat https://t.co/kf1HDeKOkz

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Simon Stones @simonrstones RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

Savvy Cooperative @savvy_coop This is excellent. We need more authenticity and diversity. Don't give them what you think they want to hear. #wegohealthchat https://t.co/Q3NjBLL84J

WEGO Health @wegohealth @aboutIBD This sounds like what @BreneBrown says! Are you familiar? #WEGOHealthChat

Rie Lopez, MPH @rieofletters RT @CrohnieBologna: @CrzyCreoleMommy A2: Make sure you have say over final edit. Don't let your story be edited into something it's not. #…

Alan Brewington @abrewi3010 A2b it depends no your story. I have no personal life, not much to right about. #wegohealthchat

Julie Cerrone Croner @justagoodlife A2 I think it helps to bring my personal life into my health advocacy. Makes you more relatable and brings an element of trust #WEGOHealthChat

Nicole McLean @nic_mclean Yes! It's taken me years to figure outa good balance for myself. https://t.co/6DxStxJ8li

TheCrazyCreoleMommy @crzycreolemommy Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are the benefits to branding yourself?#WEGOHealthChat

Maya Northen Augelli @mayanorthen But also this. I have separate FB/IG pages for my "brand" too. But to feel authentic, I need it to be in my voice & to be open w/it. It's a little of both.#wegohealthchat https://t.co/B31GGwqkjh

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are t…

Jack Barrette @healthyjack RT @mayanorthen: But also this. I have separate FB/IG pages for my "brand" too. But to feel authentic, I need it to be in my voice & to be…

WEGO Health @wegohealth EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0

MMHRC @patientexperts Oh yes. Many groups and I’m very well informed as to the issues that need to be addressed. https://t.co/ePkPM0DBxY

Lucy Watts MBE @lucyalexandria RT @bbhomebody: A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, wor…

TheCrazyCreoleMommy @crzycreolemommy @Cpapbabes Mine is too. But I do have some private social media platforms. I do separate a little bit. #wegohealthchat

Ronny Allan @ronnyallan1 @justagoodlife Yes .... have had to do extra work to make it happen. Starting with a demarcation line is always a good idea in hindsight, #wegohealthchat

Page 27: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Lucy Watts MBE @lucyalexandria RT @HealthHats: A2 I'm with @MightyCasey I'm not trying to monetize website. Focusing on content. Then people come to me for consulting.…

CPAP Babes @cpapbabes @AshleyHattle Haha right? My brand is polka dots and cat pics. LOL. #wegohealthchat

Alan Brewington @abrewi3010 RT @savvy_coop: This is excellent. We need more authenticity and diversity. Don't give them what you think they want to hear. #wegohealthch…

Lucy Watts MBE @lucyalexandria RT @SimonRStones: A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, a…

Whitney Petit @cfepilepsy Yessss! Boundaries was my word of 2017 for every area of life. I am mentally and emotionally better with them in place #WEGOHealthChathttps://t.co/1Sjmzzpyl4

Nicole McLean @nic_mclean I actually don't. I struggled with that for a long time though. But I wanted to be seen as a whole person and not just the disease. https://t.co/XhlDu6r9rc

My Fabulous Boobies @myfabboobies I actually don't. I struggled with that for a long time though. But I wanted to be seen as a whole person and not just the disease. https://t.co/EgF7gNdPMR

TheCrazyCreoleMommy @crzycreolemommy A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social media. Designated social media pages,hashtags, themes and colorschemes. It makes it easier for people to find you and associate you with your cause. #WEGOHealthChat

Simon Stones @simonrstones @CrzyCreoleMommy We're like the celebrities of the patient world! � Having to brush o� the paparazzi on the commute into work � #wegohealthchat

Ashley Hattle @ashleyhattle @mayanorthen Awesome point. I'm on the cusp of creating a new "personal" account because my FB author page and current FB profile are all#clusterheadaches lately. #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are t…

ingevandelannoote @ingevdln RT @CrohnieBologna: @CrzyCreoleMommy A2: Make sure you have say over final edit. Don't let your story be edited into something it's not. #…

Deeanne @spondywolfgirl a2b I haven't done it yet, but have been thinking of separating my facebook account. Seems like a lot of work but worth it #wegohealthchat

BeingMeInMyOwnSkin @alishambridges RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

Lucy Watts MBE @lucyalexandria RT @mayanorthen: A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my…

FibroFlutters @fibroflutters A 2A love this Q, there are still a lot of people who haven't made the connection yet that Carole Scra�on @scru�on73 and FibroFlutters are the sameperson on twitter, I'm the only one who does anything on the website but there are a bunch of us not just me #WEGOHealthChat

CPAP Babes @cpapbabes @savvy_coop Yassssssss #wegohealthchat

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Lucy Watts MBE @lucyalexandria RT @Cpapbabes: @CrzyCreoleMommy Q2a: Depends on the person! Everyone is di�erent. For me: nah. My personal life is part of my brand. I don…

Danny van Leeuwen @healthhats A2 I do have consulting work from my website recognition. O�en writing and networking. I then negotiate cross-posting to my site and the clients.#WEGOHealthChat

Barby Ingle O�icial @barbyingle A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take care of self first always. Set strongexpectations & limits or you can get overwhelmed w so much need. #WEGOHealthChat https://t.co/h3hewQVzY7

My Fabulous Boobies @myfabboobies This is true. Your story really matters to the folks who follow you. Don't shortchange yourself or them. https://t.co/5R2gF7J2Zo

Nicole McLean @nic_mclean This is true. Your story really matters to the folks who follow you. Don't shortchange yourself or them. https://t.co/j0ISizQKUr

Nicole McLean @nic_mclean RT @jhoronje�: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! N…

BeingMeInMyOwnSkin @alishambridges RT @CrzyCreoleMommy: A1b Follow Up: You aren't selling out if you are maintaining financial security to continue to advocate. Also, if your…

Simon Stones @simonrstones Definitely this! Important to make others accountable #WEGOHealthChat https://t.co/QWhhrRwNRK

Rie Lopez, MPH @rieofletters This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found such great advocates who are positiveand willing to help! #WEGOHealthChat https://t.co/ticykeBZI7

My Fabulous Boobies @myfabboobies RT @jhoronje�: @HealthHats Multitasking but a good way to break up the day and hear from amazing patients who inspire us at @savvy_coop! N…

Simon Stones @simonrstones RT @justagoodlife: A2 I think it helps to bring my personal life into my health advocacy. Makes you more relatable and brings an element of…

MMHRC @patientexperts A2: That’s a big one! #wegohealthchat https://t.co/9b9Pzk3Ac3

TheCrazyCreoleMommy @crzycreolemommy @justagoodlife Yes. But there are some things you can separate. It's kind of nice to do that. Just a little bit. Because our health is so intertwined, we needsome personal boundaries. #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: A2a Follow Up: Because our advocacy is so personal to us, boundaries are important. I have a personal FB page that onl…

Maya Northen Augelli @mayanorthen Yes! I protest so much when others want final edits. Everyone says "that's the way it's done", but I am so against it. #wegohealthchathttps://t.co/IaSm5P9V8a

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Jen Horonje� @jhoronje� @abrewi3010 When we say "personal" life...does it have to be with persons? I don't have a social life, but my cats get a lot of play. It's not a brand thing,they're just so dang cute! #wegohealthchat

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social med…

Simon Stones @simonrstones RT @savvy_coop: This is excellent. We need more authenticity and diversity. Don't give them what you think they want to hear. #wegohealthch…

Nicole McLean @nic_mclean RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

My Fabulous Boobies @myfabboobies RT @aboutIBD: A2: Don’t give your story away for free or to someone who will not nurture it. Be discerning in who you work with. #WEGOHealt…

Danny van Leeuwen @healthhats A2 my Facebook is separate with some bleed. I cross post to facebook for my friends and family. Some activists are also my friends #WEGOHealthChat

Natalie❄ @_nataliea I made myself a public page which seemed super awkward but it’s useful as I’m taking a personal FB break... #wegohealthchat https://t.co/yumlDZb5B5

Candace @rarecandace A2: I have heard of advocates signing non-disclosure agreements and contracts that outline rights & responsibilities. #wegohealthchat

FibroFlutters @fibroflutters RT @RonnyAllan1: @SimonRStones @wegohealth @wegohealth A1 agree with @SimonRStones, building a credible internet "footprint" is not only at…

Enlightening Results @gracecordovano @CrzyCreoleMommy Yes! I’m a professional private patient cancer patient advocate via my LLC, Enlightening Results #wegohealthchat

Alan Brewington @abrewi3010 A2 my branding is easy, I am me. No sense in making something I am not. #wegohealthchat

Becky Brandt RN @bbhomebody @SimonRStones @CrzyCreoleMommy Lol. Thats awesome! My commute to the couch and laptop gets so complicated with all my outfit changes andflashes going o� #WEGOHealthChat

Becky Brandt RN @bbhomebody RT @SimonRStones: @CrzyCreoleMommy We're like the celebrities of the patient world! � Having to brush o� the paparazzi on the commute into…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for othe…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: @AMFitnessHealth @MightyCasey It also depends though. Some of my followers cannot breastfeed. And are looking for othe…

Nicole McLean @nic_mclean RT @bbhomebody: A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, wor…

Julie Cerrone Croner @justagoodlife RT @GraceCordovano: @CrzyCreoleMommy Yes! I’m a professional private patient cancer patient advocate via my LLC, Enlightening Results #wego…

Page 30: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Danny van Leeuwen @healthhats A2 I find LinkedIn to be my most activity cross post. Most hits, most reposts. Most comments. Who knew? #WEGOHealthChat

ingevandelannoote @ingevdln RT @SimonRStones: A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, a…

My Fabulous Boobies @myfabboobies RT @bbhomebody: A2- Consider keeping certain personal info private, use lists/calendars to prioritize importance, use tweet scheduling, wor…

Candace @rarecandace A2: I think if you're entering into an employment contract, you should consult an attorney for any unfamiliar terms. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @RareCandace: A2: I have heard of advocates signing non-disclosure agreements and contracts that outline rights & responsibilities. #weg…

Julie Cerrone Croner @justagoodlife RT @_Nataliea: I made myself a public page which seemed super awkward but it’s useful as I’m taking a personal FB break... #wegohealthchat…

Julie Cerrone Croner @justagoodlife RT @HealthHats: A2 my Facebook is separate with some bleed. I cross post to facebook for my friends and family. Some activists are also my…

MMHRC @patientexperts I have my brand and my personal personas - obviously here right now as the brand #WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @RareCandace: A2: I have heard of advocates signing non-disclosure agreements and contracts that outline rights & responsibilities. #weg…

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: A1a Follow Up: Certain brands can provide a variety of opportunities for you to reach patients on and o�line through…

Nicole McLean @nic_mclean RT @SimonRStones: A2: Do your homework, weigh up pros and cons, stay true to your vocation/mission, surround yourself by positive people, a…

Enlightening Results @gracecordovano @HealthHats @jhoronje� Hi Danny! Hi Jen! Great to see you both here #WEGOhealthchat

Nicole McLean @nic_mclean RT @mayanorthen: A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosti…

TheCrazyCreoleMommy @crzycreolemommy @SimonRStones I actually had someone in the airport bathroom stop me and say, "You're the mommy. HIppo's mom!!! I love your blog. I don't have IBD,but my friend has Crohn's. We love it!" It scared me a little bit. Glad she didn't know my son's real name. boundries #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @BarbyIngle: A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take c…

My Fabulous Boobies @myfabboobies RT @mayanorthen: A2a I think it depends on the size of ur brand/stage you're at. For me, doing advocacy as one person, I more or less am my…

Ronny Allan @ronnyallan1 @justagoodlife You can duplicate social media and retain your 'personal brand' #WEGOHealthChat

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MMHRC @patientexperts @HealthHats I need to try that #WEGOhealthchat

Julie Cerrone Croner @justagoodlife @BarbyIngle Hey Barby!!! #WEGOHealthChat

Rie Lopez, MPH @rieofletters @spondywolfgirl I did this and it is work, but it really made a huge di�erence. Of course, now that I am 'rebranding' so to speak, I have to do this all overagain. LOL! #WEGOHealthChat

Nicole McLean @nic_mclean RT @AshleyHattle: A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and m…

Simon Stones @simonrstones @jhoronje� @abrewi3010 I like the mixing of my 'personal' and 'professional' personas, which works well for me (the long student nights out till 5am are adistant memory �) #WEGOHealthChat

My Fabulous Boobies @myfabboobies RT @AshleyHattle: A2: That's such a good question. For me, my personal life very much revolves around #clusterheadaches. I'm episodic and m…

Jessica Gimeno @jessicagimeno RT @HealthHats: A2 I find LinkedIn to be my most activity cross post. Most hits, most reposts. Most comments. Who knew? #WEGOHealthChat

Ashley Hattle @ashleyhattle @jhoronje� @abrewi3010 OMG. I love this. I have to "limit" the number of cat and dog pics I post on my profiles. #WEGOHealthChat Maybe they need theirown account. �

Jessica Gimeno @jessicagimeno RT @bbhomebody: @SimonRStones @CrzyCreoleMommy Lol. Thats awesome! My commute to the couch and laptop gets so complicated with all myoutf…

Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: @JessicaGimeno @wegohealth It’s all personal to you and your brand. Some people make a great living blogging, or hosti…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @SimonRStones I actually had someone in the airport bathroom stop me and say, "You're the mommy. HIppo's mom!!! I love…

iPain Foundation @powerofpain A2b. I have separate brands made for each. I write personal health journey on personal sm and website, and community info and resources on the npo' ssm and their website. Partners can choose me or iPain, & they do for di�erent reasons. #WEGOHealthChat https://t.co/1DhHMyk0Ie

Lucy Watts MBE @lucyalexandria I stress if you do paid advocacy etc work, it's better to be separate & set up so you've got limited liability if things go wrong. Otherwise it's all on you. This iswhy separating the two is important, so that your brand doesn't negatively impact personal life. #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy Another quick follow up before we move on to Q3....Q2c Follow up: Have you thought about starting an LLC or a S-Corporation? #WEGOHealthChat

Nicole McLean @nic_mclean That's how I feel too. I'm a real person behind the blog and the brand. https://t.co/lJpmbMsjhm

My Fabulous Boobies @myfabboobies That's how I feel too. I'm a real person behind the blog and the brand. https://t.co/YIHyiI5Z9F

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Jessica Gimeno @jessicagimeno RT @SimonRStones: @jhoronje� @abrewi3010 I like the mixing of my 'personal' and 'professional' personas, which works well for me (the long…

Becky Brandt RN @bbhomebody RT @jhoronje�: @abrewi3010 When we say "personal" life...does it have to be with persons? I don't have a social life, but my cats get a lo…

Becky Brandt RN @bbhomebody @jhoronje� @abrewi3010 Lol I agree Jen! Mine is canine rather than person! #WEGOHealthChat https://t.co/wgm4u9GuFf

Danny van Leeuwen @healthhats @mayanorthen #wegohealthchat I, on the other hand, value and welcome good editing. @ePatientDave is a fine editor.

Simon Stones @simonrstones RT @RieOfLetters: This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found…

TheCrazyCreoleMommy @crzycreolemommy A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another way of doing business. If you aredoing well w/ ur advocacy brand financially, starting an SCorp is a great way to separate u from the brand. #WEGOHealthChat

Barby Ingle O�icial @barbyingle RT @justagoodlife: @BarbyIngle Hey Barby!!! #WEGOHealthChat

Nicole McLean @nic_mclean RT @wegohealth: EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0

WEGO Health @wegohealth RT @CrzyCreoleMommy: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another w…

My Fabulous Boobies @myfabboobies RT @wegohealth: EXCELLENT tip!! #WEGOHealthChat https://t.co/8UXRiDgDQ0

JP Summers @advofspooniemom RT @wegohealth: Some people spend their money shopping or at restaurants, but we know you spend all your resources on changing the world! S…

Maya Northen Augelli @mayanorthen @AshleyHattle Cute pics of my dog over here too! :-) #wegohealthchat

Savvy Cooperative @savvy_coop I guess co-ops are fundamentally o� the table for a personal brand. � #wegohealthchat https://t.co/atwuVBhj04

CPAP Babes @cpapbabes A2: I have other businesses so I just put a DBA under those for CPAPBabes. #wegohealthchat https://t.co/QBM3QZoI24

Julie Cerrone Croner @justagoodlife @CrzyCreoleMommy @SimonRStones I had someone come up and hug me in Trader Joe's one time! haha It's a good point about your son's name though.My hubby doesn't necessarily want a lot of info out there on him since he's in the army #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social med…

FibroFlutters @fibroflutters I can't keep up LOL and keep losing questions #WEGOHealthChat

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My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social med…

Candace @rarecandace A2c: An LLC is a great idea for people who wish to create a company for consulting/advocacy. Again, consult a lawyer! #wegohealthchat

Whitney Petit @cfepilepsy Sometimes I feel I share more with my health advocacy than my personal friends and family. � just always know your personal preferences and limits#WEGOHealthChat https://t.co/XsV4od4Ewo

Nicole McLean @nic_mclean RT @SimonRStones: @CrzyCreoleMommy We're like the celebrities of the patient world! � Having to brush o� the paparazzi on the commute into…

TheCrazyCreoleMommy @crzycreolemommy @JessicaGimeno Financially, legally, emotionally, professionally. #WEGOHealthChat

Alan Brewington @abrewi3010 @jhoronje� Good point Jen! I do take my camera and skis out on excellent adventures. That’s personal. #wegohealthchat

WEGO Health @wegohealth RT @RareCandace: A2c: An LLC is a great idea for people who wish to create a company for consulting/advocacy. Again, consult a lawyer! #we…

Nicole McLean @nic_mclean RT @AshleyHattle: @mayanorthen Awesome point. I'm on the cusp of creating a new "personal" account because my FB author page and current FB…

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q2b Follow Up: Separating your public and private platforms leads into branding. How do you brand yourself? What are t…

Ronny Allan @ronnyallan1 @justagoodlife e.g. Building up this site #WEGOHealthChat https://t.co/5VAQ1PdKeM

Casey Quinlan @mightycasey @CrzyCreoleMommy I have an LLC (est in '09), since I've been a hired gun (freelance) since '88. Biz entity = necessity, IMO. #wegohealthchat

Princess Foqia Sh @princessfoqia RT @CrzyCreoleMommy: A2b Follow up: Social media has made it a lot easier to brand yourself. Create a persona, name or entity on social med…

Barby Ingle O�icial @barbyingle Hi :) jusy woke up from our iPain #HeroofHope awards dinner last night. Just in time 4 the chat. :) #WEGOHealthChat https://t.co/ImdZyKU3IK

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another w…

Ashley Hattle @ashleyhattle #WEGOHealthChat Luckily, I haven't run into this problem a lot, but how do other #advocates cope with #trolls?

Maya Northen Augelli @mayanorthen A2c: I have, quite a bit. I just have to weigh the pros and cons - i.e. since right now it's all my money, is it worth the cost. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy No, not at all! These are just some of my ideas. #WEGOHealthChat https://t.co/DFUP5En2YF

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CPAP Babes @cpapbabes A2 Things do get personal though. My Instagram followers make me so happy. It was SO hard for me to wait to tell them about my pregnancy! I kept beinglike "I can keep a secret from my FB friends but can't wait to tell me fellow CPAPBabes on Insta!!!! #wegohealthchat

Candace @rarecandace RT @MightyCasey: @CrzyCreoleMommy I have an LLC (est in '09), since I've been a hired gun (freelance) since '88. Biz entity = necessity, IM…

Nicole McLean @nic_mclean Great advice. I definitely stay as private as possible utilizing internet tools to talk to people instead of personal calls or visits. https://t.co/MluKXBlXcp

My Fabulous Boobies @myfabboobies Great advice. I definitely stay as private as possible utilizing internet tools to talk to people instead of personal calls or visits. https://t.co/vmGnxrYJ26

Ashley Hattle @ashleyhattle @CrzyCreoleMommy I plan on doing this in January. Do you have advice on the best way to approach the process? #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy okay...are y'all ready for Q3? #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another w…

Christy Stone @crohniebologna @mayanorthen When that final or last minute edit is the one that changes information to skew toward inaccurate, o� message or disingenuous, that canand does hurt the advocates credibility. It's worth insisting. #WEGOHealthChat

Nicole McLean @nic_mclean RT @RieOfLetters: This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found…

TheCrazyCreoleMommy @crzycreolemommy Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette? #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: @justagoodlife Yes. But there are some things you can separate. It's kind of nice to do that. Just a little bit. Becau…

Julie Cerrone Croner @justagoodlife RT @RareCandace: A2c: An LLC is a great idea for people who wish to create a company for consulting/advocacy. Again, consult a lawyer! #we…

Jen Horonje� @jhoronje� @abrewi3010 See!! Honestly, I do document my life, not as a blogger, but on social media. Good to show all the sides, but I'm very open. #wegohealthchat

CPAP Babes @cpapbabes @AshleyHattle Ignore em. Or try to. I still am not pleased that someone called me a "fat piggy" on YouTube in Spanish. I actually ended up turning o�comments on some videos they were so mean. YouTube is the worst for trolls! #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @CfEpilepsy: Sometimes I feel I share more with my health advocacy than my personal friends and family. � just always know your pers…

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette?…

Julie Cerrone Croner @justagoodlife I know @marlajan did this this year! #WEGOHealthChat https://t.co/yotAs1Ta0J

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Enlightening Results @gracecordovano @CrzyCreoleMommy As a professional advocate, I carry errors & omissions liability insurance annually. #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @JessicaGimeno Financially, legally, emotionally, professionally. #WEGOHealthChat

Nicole McLean @nic_mclean RT @RareCandace: A2: I have heard of advocates signing non-disclosure agreements and contracts that outline rights & responsibilities. #weg…

Rie Lopez, MPH @rieofletters Definitely a long ways o� for me, but this is good information if you are further along. Totally in awe of @CrzyCreoleMommy right now, I won't lie.#WEGOHealthChat https://t.co/FQEh0GhYBl

TheCrazyCreoleMommy @crzycreolemommy A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are relevant to your advocacy or following.You can reach out via social media, expos where vendors are set up, blogger events, medical conventions. #WEGOHealthChat

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette?…

Julie Cerrone Croner @justagoodlife @BarbyIngle How was it?! #WEGOHealthChat

Lucy Watts MBE @lucyalexandria Molly, my #AssistanceDog is a regular feature in my advocacy work. She's o�en centre of attention at events too! There's always a queue at break times tosay hello to the 'cute dog'. She loves it though & forms an important part of my brand. #WEGOHealthChat https://t.co/B5qZ01rWK3

WEGO Health @wegohealth RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are rele…

Nicole McLean @nic_mclean RT @abrewi3010: A2 my branding is easy, I am me. No sense in making something I am not. #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette?…

Candace @rarecandace RT @GraceCordovano: @CrzyCreoleMommy As a professional advocate, I carry errors & omissions liability insurance annually. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: #WEGOHealthChat Luckily, I haven't run into this problem a lot, but how do other #advocates cope with #trolls?

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are rele…

Ashley Hattle @ashleyhattle @Cpapbabes I'm glad I'm not the only one, but sorry to hear you're getting them too. Mine was a "fugly" comment. It's petty to insult someone's looksespecially when they're doing good in the world. #wegohealthchat

Jessica Gimeno @jessicagimeno RT @mayanorthen: Yes! I protest so much when others want final edits. Everyone says "that's the way it's done", but I am so against it. #we…

Ronny Allan @ronnyallan1 #WEGOHealthChat trolls sometimes di�icult to spot but plenty tools to block, delete, etc. #wordpress spam filter works most of the timehttps://t.co/N3mZ0fg0A3

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Julie Cerrone Croner @justagoodlife RT @Cpapbabes: A2 Things do get personal though. My Instagram followers make me so happy. It was SO hard for me to wait to tell them about…

TheCrazyCreoleMommy @crzycreolemommy @AshleyHattle I used legal zoom. It was probably a little more expensive, but it was just easier for me to do that. Get it done and move forward.#WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are rele…

FibroFlutters @fibroflutters Q2 Pace yourself walk do not run or you could face burnout! Also Make sure you give credit, appropriately, where it's due #WEGOHealthChat

Maya Northen Augelli @mayanorthen @CrohnieBologna Yep! Too easy for our words to get misinterpreted/tossed around. I feel that enough in everyday life. I certainly don't want it insomething I've written. #WegoHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: @AshleyHattle I used legal zoom. It was probably a little more expensive, but it was just easier for me to do that. Ge…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette?…

Alan Brewington @abrewi3010 @jhoronje� I try to be open too, especially knowing I’m not a typical patient. No sense in hiding from that fact. #wegohealthchat

Candace @rarecandace I see someone mentioned trolls. I have been the target of a few high-profile political trolls. Stand your ground. #wegohealthchat

CPAP Babes @cpapbabes A3: I don't know, but want to learn! I sometimes get too tired to respond to emails...I think getting better at that and powering through will help keep thosesponsors around :P #wegohealthchat https://t.co/35wNGkgsag

Lucy Watts MBE @lucyalexandria I try to encourage people to separate person from brand but I am my brand, & it is me, & I seem to struggle to separate the two. I am a workaholic. It's sohard as it's me, & it's me people want to see/invite/hear from not the brand if that makes sense #WEGOHealthChat

Nat'l BT Society @nbtstweets RT @adamhayden: Best wishes for a great chat! I can’t attend because attending meeting with my advocacy non-profit @NBTStweets, but I look…

Nicole McLean @nic_mclean I love that! I want to add that to my portfolio of o�erings. Do you mind if I reach out with questions @GraceCordovano https://t.co/AirGjI0CAF

JP Summers @advofspooniemom I was actually an author 1st. I had tons of experience separating personal from professional on my existing media sites. When I became #chronicallyill Ifocused on raising awareness w/my readers since it was a bigger audience. #WEGOHealthChat https://t.co/lgwryNjykp

Casey Quinlan @mightycasey @AshleyHattle Ignore, mostly. Sometimes, more ordnance is required. #WEGOHealthChat https://t.co/zrIKHbkY8E

grrr2017 @guy_albert RT @FibroFlutters: Q2 Pace yourself walk do not run or you could face burnout! Also Make sure you give credit, appropriately, where it's d…

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are rele…

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Savvy Cooperative @savvy_coop @CrzyCreoleMommy Well co-ops are jointly owned. So you were right, it's hard to have a jointly owned venture for a single person. But if cooperation andpatient ownership is your jam, you know where to find us :) #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @Cpapbabes: @AshleyHattle Ignore em. Or try to. I still am not pleased that someone called me a "fat piggy" on YouTube in Spanish. I act…

TheCrazyCreoleMommy @crzycreolemommy If you're getting lost, follow my page and just, Quote Retweet with your answers! xo #wegohealthchat https://t.co/UaGRIV9vvp

Nicole McLean @nic_mclean I'm glad to hear that. I've been wondering how to leverage LinkedIn. https://t.co/WrrPBBb48V

Julie Cerrone Croner @justagoodlife oh my gosh I know, some of the comments I get on youtube are ridiculous!!! #WEGOHealthChat https://t.co/LgRtx9CRNV

Jessica Gimeno @jessicagimeno RT @FibroFlutters: Q2 Pace yourself walk do not run or you could face burnout! Also Make sure you give credit, appropriately, where it's d…

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: Q3 – Talking about sponsors, how to gain and keep sponsors? What is some brand sponsorship & advisory board etiquette?…

Julie Cerrone Croner @justagoodlife RT @GraceCordovano: @CrzyCreoleMommy As a professional advocate, I carry errors & omissions liability insurance annually. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat

grrr2017 @guy_albert RT @FibroFlutters: I can't keep up LOL and keep losing questions #WEGOHealthChat

Barby Ingle O�icial @barbyingle Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms. #WEGOHealthChathttps://t.co/p4FkIitfO7

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A3 – You can begin by packaging yourself with a media kit, headshots and a bio. Then reach out to brands that are rele…

TheCrazyCreoleMommy @crzycreolemommy A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could help my followers. I use the brand firstmyself. Then reach to become a brand ambassador or have them sponsor parts of my brand. #WEGOHealthChat

Casey Quinlan @mightycasey @RareCandace #WEGOHealthChat https://t.co/KOg3jgqXEB

Maya Northen Augelli @mayanorthen @Cpapbabes Yes, I get so excited to share things with my followers! Sometimes, they get me better than my IRL friends, since we o�en have our illnessesin common. #wegohealthchat

Jen Horonje� @jhoronje� @abrewi3010 You do you!!! We're all individuals #wegohealthchat https://t.co/V5uktHgybT

Amber J Tresca @aboutibd Starve them. By interacting you give them a platform. Honest criticism and debate is worth your time. Troublemakers are not. #WEGOHealthChathttps://t.co/2oQ701Ldht

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Simon Stones @simonrstones @justagoodlife @CrzyCreoleMommy Important point @justagoodlife @CrzyCreoleMommy. We all know how things can escalate on social media, ando�en forget amongst the positivity of it all about how things can be taken in di�erent lights, and e�ects on loved ones. Got to do what's right for you#WEGOHealthChat

Julie Cerrone Croner @justagoodlife @LucyAlexandria Do you ever talk about Molly's health on your blog or social channels too? #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

CPAP Babes @cpapbabes #Wegohealthchat #wegohealthCAT #webcamtoy https://t.co/NjvN7vpHCJ

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat

My Fabulous Boobies @myfabboobies I've had similar things happen to me as well. Hey, you're "My Fabulous Boobies" I love your blog! LOL... it's wild but it makes me feel good too.https://t.co/e9UmJWiPAb

Nicole McLean @nic_mclean I've had similar things happen to me as well. Hey, you're "My Fabulous Boobies" I love your blog! LOL... it's wild but it makes me feel good too.https://t.co/gtFzf9TW6u

Lisa 419 @mdshori76514808 https://t.co/FwiwqZl9F3 https://t.co/myomYD8ku6

Heidi Grabenstatter @patientintv @CrzyCreoleMommy Glad we are getting a "mom living with chronic disease" perspective! Important and o�en overlooked. I'm Heidi, mom,neuroscientist and patient living with epilepsy. Thanks for sharing #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @SimonRStones: @justagoodlife @CrzyCreoleMommy Important point @justagoodlife @CrzyCreoleMommy. We all know how things can escalate ons…

Jessica Gimeno @jessicagimeno RT @MightyCasey: @AshleyHattle Ignore, mostly. Sometimes, more ordnance is required. #WEGOHealthChat https://t.co/zrIKHbkY8E

Whitney Petit @cfepilepsy RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

Julie Cerrone Croner @justagoodlife RT @RareCandace: I see someone mentioned trolls. I have been the target of a few high-profile political trolls. Stand your ground. #wegohe…

TheCrazyCreoleMommy @crzycreolemommy @savvy_coop I had been interested in working with you guys! Would love to chat later. xo #wegohealthchat

Alan Brewington @abrewi3010 A3 someone want to sponsor me? #wegohealthchat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Another quick follow up before we move on to Q3....Q2c Follow up: Have you thought about starting an LLC or a S-Corpor…

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Ashley Hattle @ashleyhattle @mayanorthen @Cpapbabes I completely agree with you. My #clusterheads (other #clusterheadache patients) are like family to me. They understand memore than anyone else. #WEGOHealthChat

Lucy Watts MBE @lucyalexandria @justagoodlife Not so much her health no, but how she assists me, to raise awareness of #AssistanceDogs, of the benefits of dogs/animals to humans etc.Molly has her own Facebook blog but she creeps into my work but I don't discuss her health #WEGOHealthChat

Ronny Allan @ronnyallan1 A3 one of the great things about being a @wegohealth patientleader, is that they can guide and help you achieve this https://t.co/Mr9aDVcB6w

Rie Lopez, MPH @rieofletters RT @SimonRStones: @justagoodlife @CrzyCreoleMommy Important point @justagoodlife @CrzyCreoleMommy. We all know how things can escalate ons…

grrr2017 @guy_albert RT @FibroFlutters: A 2A love this Q, there are still a lot of people who haven't made the connection yet that Carole Scra�on @scru�on73 a…

Nicole McLean @nic_mclean Yes, I want to do this as soon as possible. It's long overdue. https://t.co/oScxlYOXsU

My Fabulous Boobies @myfabboobies Yes, I want to do this as soon as possible. It's long overdue. https://t.co/WCP7OQQaSN

Simon Stones @simonrstones RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

Candace @rarecandace Sponsorship depends on your advocacy model. I purposely don't have sponsors because I mix politics with policy advocacy #wegohealthchat

Barby Ingle O�icial @barbyingle Awesome, pics should be out from our photographer by this Sunday. #WEGOHealthChat https://t.co/uudVOw1Il4

CPAP Babes @cpapbabes A3: I am so new that I only have one so far! (Well maybe two - not exactly an o�icial sponsor but I made a commercial with @ResMed in exchange for areally cool travel #cpap machine - the #airmini) Mostly I work with people who align with my values and are kind #wegohealthchat https://t.co/7zYBLZYkjQ

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A2c Follow up: Most people think you have to have hundreds of employees to have a corporation. But it's just another w…

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could…

Julie Cerrone Croner @justagoodlife Wait, are we talking about trolls like Poppy?! Haha jk jk #WEGOHealthChat https://t.co/34ron5bJbX

WEGO Health @wegohealth We sure can!! #WEGOHealthChat https://t.co/ASxIT8yhmi

Simon Stones @simonrstones RT @savvy_coop: @CrzyCreoleMommy Well co-ops are jointly owned. So you were right, it's hard to have a jointly owned venture for a single p…

CPAP Babes @cpapbabes Ditto! #wegohealthchat https://t.co/hDKtFtTOSp

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Ronny Allan @ronnyallan1 @CrzyCreoleMommy A3 one of the great things about being a @wegohealth patientleader, is that they can guide and help you achieve this#wegohealthchat https://t.co/Mr9aDVcB6w

Nicole McLean @nic_mclean Do you think an S corp is better than doing an LLC? https://t.co/hID0FV4F71

JP Summers @advofspooniemom A2: when I advocate, I go as my author alias. She is the one that made me into the person I am today. Strong and ready to take on the world!#WEGOHealthChat #spoonie #invisibleillness https://t.co/AtErQgvKKD

TheCrazyCreoleMommy @crzycreolemommy Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to your brand and yourdemographic? #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to…

Candace @rarecandace My entire advocacy platform is tied to shaking things up, sponsors would limit my voice. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of followers, but mostly the content ofyour work. Ad boards are a great way to represent your community & have a seat at the table. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: If you're getting lost, follow my page and just, Quote Retweet with your answers! xo #wegohealthchat https://t.co/UaGR…

WEGO Health @wegohealth RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of foll…

Nicole McLean @nic_mclean RT @RareCandace: A2c: An LLC is a great idea for people who wish to create a company for consulting/advocacy. Again, consult a lawyer! #we…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your community behind the scenes withinfluential people. They also can help legitimize your brand & advocacy work. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

Casey Quinlan @mightycasey THIS. ALL. DAY. >> RT @RareCandace: My entire advocacy platform is tied to shaking things up, sponsors would limit my voice. #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could…

The Unchargeables @unchargeables RT @jhoronje�: @abrewi3010 You do you!!! We're all individuals #wegohealthchat https://t.co/V5uktHgybT

Nicole McLean @nic_mclean RT @AshleyHattle: #WEGOHealthChat Luckily, I haven't run into this problem a lot, but how do other #advocates cope with #trolls?

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Maya Northen Augelli @mayanorthen @savvy_coop would also love to learn more o�-chat! #wegohealthchat

Whitney Petit @cfepilepsy @justagoodlife Haha I love these Trolls � #WEGOHealthChat

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to…

My Fabulous Boobies @myfabboobies The few times it has happened, I just block them from everything. I won't be harrassed while I'm doing this work. https://t.co/edzlSM85KI

Nicole McLean @nic_mclean The few times it has happened, I just block them from everything. I won't be harrassed while I'm doing this work. https://t.co/eXW9TDjyFv

MMHRC @patientexperts @CrzyCreoleMommy This is a great idea #WEGOhealthchat

Becky Brandt RN @bbhomebody @abrewi3010 I'll check my lotto ticket and get back to you Alan. �� Seriously, if I'm a big winner I'll sponsor you. And I'll sponsor me too!#WEGOHealthChat

Lucy Watts MBE @lucyalexandria Talking of trolls, I've had trolls. Someone told me that I don't advocate just complain - when I don't, I use my experiences to create change. Others say Ionly do it for recognition/attention- my work isn't about me, it's about helping others #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @RareCandace: Sponsorship depends on your advocacy model. I purposely don't have sponsors because I mix politics with policy advocacy #w…

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of foll…

Jen Horonje� @jhoronje� @Cpapbabes Omg are we doing this?!? #WEGOHealthChat https://t.co/N5iwiOfz3l

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your commu…

Becky Brandt RN @bbhomebody RT @abrewi3010: A3 someone want to sponsor me? #wegohealthchat

Ashley Hattle @ashleyhattle @RareCandace You bring up an important point. How do you make sure you incorporate your sponsors without pushing their product on other patients?For me, it's about patient education and access to information, so sponsors could interfere with that. #WEGOHealthChat

Candace @rarecandace That being said, if you want to get involved w/ politics, be ready for trolls. I have even received death threats. #wegohealthchat

Julie Cerrone Croner @justagoodlife @BarbyIngle Awesome!!!! #WEGOHealthChat

Nicole McLean @nic_mclean RT @aboutIBD: Starve them. By interacting you give them a platform. Honest criticism and debate is worth your time. Troublemakers are not.…

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CPAP Babes @cpapbabes @CrzyCreoleMommy A3a: Good idea! Hey @DrHarveyKarp, as an expecting mom with #sleepapnea and #idiopathichypersomnia I am going to need moresleep than most...if you want to sponsor me with a #snoo crib I would be so happy! :P #wegohealthchat #tiredjustthinkingaboutmotherhood

Nicole McLean @nic_mclean RT @SimonRStones: @justagoodlife @CrzyCreoleMommy Important point @justagoodlife @CrzyCreoleMommy. We all know how things can escalate ons…

Maya Northen Augelli @mayanorthen This is a huge help. I haven't gotten to tthe sponsor stage yet, so excited to hear tips/thoughts/ideas! #wegohealthchat https://t.co/V51wsO1wYh

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q3a Follow Up – How do you choose sponsors? #WEGOHealthChat

Lucy Watts MBE @lucyalexandria a3 - I stay true to who I am & sell myself for the unique individual I am. I also make sure I am clear on my roles & responsibilities to avoid conflict &maintain communication at all times #WEGOHealthChat https://t.co/9ziX8shyTa

Rie Lopez, MPH @rieofletters @BarbyIngle Hi Barby! Nice to 'see' you! Sounds like #HeroOfHope Award dinner was a great time! #WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to…

Lucy Watts MBE @lucyalexandria RT @SimonRStones: @justagoodlife @CrzyCreoleMommy Important point @justagoodlife @CrzyCreoleMommy. We all know how things can escalate ons…

TheCrazyCreoleMommy @crzycreolemommy @nic_mclean It works for me and my financial situation. It’s a large tax payment. But it separates me personally from the brand, in case it needs to betaken over if I get sick or whatever. #WEGOhealthchat

Julie Cerrone Croner @justagoodlife RT @RareCandace: My entire advocacy platform is tied to shaking things up, sponsors would limit my voice. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

CPAP Babes @cpapbabes @jhoronje� Yes we are!!!!! #wegohealthchat https://t.co/ubVS4TzhJP

Casey Quinlan @mightycasey Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who you are and bring some personalityinto it. Make sure your brand is uniform and has a mission. #WEGOHealthChat

Page 43: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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WEGO Health @wegohealth RT @MightyCasey: Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat

Danny van Leeuwen @healthhats I'm on several Advisory Boards. I start wondering why the f***** am I there. A�er 5 minutes I know. Part of the deal is to open doors wider for otheradvocates and spread the words. #WEGOHealthChat

WEGO Health @wegohealth RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

My Fabulous Boobies @myfabboobies That's one of the things that has kept me on the sidelines politically. I know just how crazy it can be. You've got to be ready for wht comes with it.https://t.co/PUyhZ1ubTr

Nicole McLean @nic_mclean That's one of the things that has kept me on the sidelines politically. I know just how crazy it can be. You've got to be ready for wht comes with it.https://t.co/f4DsNERP4J

Whitney Petit @cfepilepsy @CrzyCreoleMommy Yes! I've worked on Advisory Boards that paid well but did nothing to help my comminty when it was over. I won't work with thatcompany again #WEGOHealthChat

Amber J Tresca @aboutibd Ah, but if it’s something that can solve a problem or increase quality of life — you are serving patients. I think the key is authenticity. #WEGOHealthChathttps://t.co/Q1OrDXKpop

Julie Cerrone Croner @justagoodlife RT @AshleyHattle: @RareCandace You bring up an important point. How do you make sure you incorporate your sponsors without pushing their pr…

Julie Cerrone Croner @justagoodlife RT @RareCandace: That being said, if you want to get involved w/ politics, be ready for trolls. I have even received death threats. #wegoh…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @savvy_coop I had been interested in working with you guys! Would love to chat later. xo #wegohealthchat

Nicole McLean @nic_mclean Absolutely! Education is very key. And transparency. https://t.co/8fzd8p3RuP

My Fabulous Boobies @myfabboobies Absolutely! Education is very key. And transparency. https://t.co/HvQYMmjDLO

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q3b Follow Up – What about participating in advisory boards? How impactful will they be fiscally and advocacy wise, to…

CPAP Babes @cpapbabes @CrzyCreoleMommy Taking notes! Are you able to recommend a list of ad boards? #wegohealthchat

JP Summers @advofspooniemom A3: I look at who will benefit from choosing to work with a certain sponsor. Also, what's their reputation. If they have high marks, I'm more likely to workwith them #WEGOHealthChat https://t.co/b0e1ThezRb

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Candace @rarecandace Q3c: I have had other people recommend me to speak at events based on my work. Sharing your mission = opportunities #wegohealthchat

FibroFlutters @fibroflutters RT @SimonRStones: @jhoronje� @abrewi3010 I like the mixing of my 'personal' and 'professional' personas, which works well for me (the long…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of foll…

Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your commu…

Lucy Watts MBE @lucyalexandria A3b I sit on a lot of boards & panels, they really do make a di�erence as I'm o�en the only patient/nonprofessional in the room & my contributions arealways said to be the most useful. I really enjoy being part of them & bringing the patient/young person voice #WEGOHealthChat https://t.co/oC46CxYy8U

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @nic_mclean It works for me and my financial situation. It’s a large tax payment. But it separates me personally from…

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your commu…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A3b Follow Up – They can be a great way to earn some extra money. But I look at them as a great way to help your commu…

ingevandelannoote @ingevdln @aboutIBD authenticity is THE key! #WEGOHealthChat

Alan Brewington @abrewi3010 @bbhomebody Big winner big winner � #wegohealthchat

CPAP Babes @cpapbabes @CrzyCreoleMommy I would love to do it! I would love to participate in research, too - there is NOT enough out there for women with #sleepapnea. Justneed to learn how to get started! #wegohealthchat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of foll…

Ashley Hattle @ashleyhattle @CrzyCreoleMommy @nic_mclean I think about this all too o�en. I've run a support group for #clusterheadaches in #Denver for two years and I'mhanding over the reigns in January to focus on my national e�orts and being a board member of @Cluster_buster #WEGOHealthChat It's hard to let your"baby" go.

My Fabulous Boobies @myfabboobies RT @CrzyCreoleMommy: A3b Follow Up – Some ad boards you can apply to, some you have to be invited. It's not always about the amount of foll…

Julie Cerrone Croner @justagoodlife And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots of companies who are looking toconnect with you! #WEGOHealthChat https://t.co/JbJFlFzl2t

Page 45: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Maya Northen Augelli @mayanorthen @Cpapbabes @CrzyCreoleMommy Would also love to know this! #WegoHealthChat

WEGO Health @wegohealth @Cpapbabes @CrzyCreoleMommy It always has to start somewhere with someone! Keep doing what you're doing! #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

Julie Cerrone Croner @justagoodlife RT @HealthHats: I'm on several Advisory Boards. I start wondering why the f***** am I there. A�er 5 minutes I know. Part of the deal is…

Jessica Gimeno @jessicagimeno @CrzyCreoleMommy A3c: have something you can send online that shows your public speaking skills-you can send in email. Speech on your site#WEGOHealthChat

Rie Lopez, MPH @rieofletters @RareCandace Death threats?! I am so terribly sorry this happened. It isn't the first I have heard of advocates receiving them, but I seriously do notunderstand what makes people think it is okay to go there. Ever. #WEGOHealthChat

CPAP Babes @cpapbabes @RonnyAllan1 @CrzyCreoleMommy @wegohealth Oh man does that mean I have to get real headshots instead of just sending them my #cpap boudoir :P#wegohealthchat

WEGO Health @wegohealth RT @justagoodlife: And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots…

FibroFlutters @fibroflutters @SimonRStones @jhoronje� @abrewi3010 My alter ego is a huge ball of flu� that hugs people and sometimes people who don't know me expect a hugeball of flu�..... heheheh #behappy #WEGOHealthChat

My Fabulous Boobies @myfabboobies That is such a good point! I had not considered that angle. Definitely will research more. https://t.co/FtDHDnGKct

Nicole McLean @nic_mclean That is such a good point! I had not considered that angle. Definitely will research more. https://t.co/iykz4972Xo

Julie Cerrone Croner @justagoodlife RT @CfEpilepsy: @CrzyCreoleMommy Yes! I've worked on Advisory Boards that paid well but did nothing to help my comminty when it was over. I…

Whitney Petit @cfepilepsy @CrzyCreoleMommy I've also worked on some Advisory Boards that I will hop on board any time they call. Got to build those relationships as well.#WEGOHealthChat

Ashley Hattle @ashleyhattle RT @wegohealth: @Cpapbabes @CrzyCreoleMommy It always has to start somewhere with someone! Keep doing what you're doing! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy I know I'm moving fast with a lot of questions. But we have a lot of ground to cover. Almost done! And remember you can always look on my page to findquestions or ask questions. With that said, moving on to Q4!!! #wegohealthchat

Ally @verylightnosuga HC needs fundamental overhaul in how it views advocates (& even how we value ourselves)- ie work should be compensated. #wegohealthchathttps://t.co/3wWNZrIR30

Page 46: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Deeanne @spondywolfgirl Sorry to have to run. Gotta go get my son from school. I'll check in to see what all was said a�er :D #wegohealthchat

Rie Lopez, MPH @rieofletters RT @justagoodlife: And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots…

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

Candace @rarecandace I always encourage people to go back to school. A�er my DX, went to law school so I could be the best advocate possible. #wegohealthchat

MMHRC @patientexperts @Cpapbabes @CrzyCreoleMommy Check out our website https://t.co/VJCrdKsZUM #WEGOhealthchat

TheCrazyCreoleMommy @crzycreolemommy Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

Nicole McLean @nic_mclean I would love to do this. But I have no idea where to start. Where do you find the boards? https://t.co/MDNSGaJlfC

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

Lucy Watts MBE @lucyalexandria a3c A website/blog with a dedicated page is a must. Put your services on there to 'sell' them. Interact with people. Try & attend events & hand out yourcard (business cards are great for this) to get awareness. Advertise on social media. O�er services to people #WEGOHealthChat https://t.co/CRJI9iiILW

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

Savvy Cooperative @savvy_coop @Cpapbabes @CrzyCreoleMommy Have you chatted with our friends over at @sleepapneaorg. They're amazing! #wegohealthchat

Julie Cerrone Croner @justagoodlife SO TRUE!! I recommended you for the Patient Advocacy Summit when I heard they were looking for someone on the 21st century cures act :) I knew youworked on it through working on the @intakeme ad board! #WEGOHealthChat https://t.co/eaVtY78BBT

Whitney Petit @cfepilepsy RT @justagoodlife: And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots…

Whitney Petit @cfepilepsy RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause & community. #WEGOHealthChat

Danny van Leeuwen @healthhats A3 I started a YouTube channel too so people could see me speak #WEGOHealthChat

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Rie Lopez, MPH @rieofletters RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

Julie Cerrone Croner @justagoodlife RT @JessicaGimeno: @CrzyCreoleMommy A3c: have something you can send online that shows your public speaking skills-you can send in email. S…

Whitney Petit @cfepilepsy RT @RareCandace: Q3c: I have had other people recommend me to speak at events based on my work. Sharing your mission = opportunities #wegoh…

Nicole McLean @nic_mclean Ahh... very true. My media kit is woefully out of date and pitiful. On the to-do list right now. https://t.co/WX58HpNLL0

MMHRC @patientexperts I say this all the time. It’s always assumed that altruism will rule the day. My answer - “nope”. #wegohealthchat https://t.co/RbT9cBjiOe

TheCrazyCreoleMommy @crzycreolemommy A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pages and clear out anything that hasnothing to do wit your brand. #WEGOHealthChat

Nicole McLean @nic_mclean RT @RonnyAllan1: @CrzyCreoleMommy A3 one of the great things about being a @wegohealth patientleader, is that they can guide and help you a…

Maya Northen Augelli @mayanorthen This #WegoHealthChat is 100% what I needed today. Taking notes from all you amazing advocates who have been successful at this. Thank you!

WEGO Health @wegohealth RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

Jessica Gimeno @jessicagimeno RT @HealthHats: A3 I started a YouTube channel too so people could see me speak #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause &…

CPAP Babes @cpapbabes @savvy_coop @CrzyCreoleMommy @sleepapneaorg OO not yet! But I think I follow them on Insta :) #wegohealthchat

Enlightening Results @gracecordovano @CrzyCreoleMommy Do you have suggestions on where/how to apply to ad boards? #wegohealthchat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

WEGO Health @wegohealth @mayanorthen Yas!! That's so great to hear! #WEGOHealthChat

Nicole McLean @nic_mclean RT @MightyCasey: Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q3c Follow Up – How do you begin marketing yourself for speaking engagements & presentations?#WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause &…

Page 48: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Jessica Gimeno @jessicagimeno RT @justagoodlife: SO TRUE!! I recommended you for the Patient Advocacy Summit when I heard they were looking for someone on the 21st centu…

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: If you're getting lost, follow my page and just, Quote Retweet with your answers! xo #wegohealthchat https://t.co/UaGR…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @RareCandace Something I am thinking about for 2018. As a single mom, it's gonna be tough, but #IBD interrupted it and it's time to finish! Plus, it willhelp with my advocacy! #WEGOHealthChat

JP Summers @advofspooniemom RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

Nicole McLean @nic_mclean RT @HealthHats: I'm on several Advisory Boards. I start wondering why the f***** am I there. A�er 5 minutes I know. Part of the deal is…

Barby Ingle O�icial @barbyingle Q4. Stay constant, trim the waste, have good content and stay on brand w the sm accounts #WEGOHealthChat https://t.co/yWLMymEyoO

grrr2017 @guy_albert RT @FibroFlutters: ��� I'll be fluttering around for #WEGOHealthChat @wegohealth @CrzyCreoleMommy �

Nicole McLean @nic_mclean RT @CfEpilepsy: @CrzyCreoleMommy Yes! I've worked on Advisory Boards that paid well but did nothing to help my comminty when it was over. I…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

Becky Brandt RN @bbhomebody @RieOfLetters @RareCandace Talk about excessive? Death threats for a patient advocate. What has happened to good old decency? SMH! ☹#WEGOHealthChat https://t.co/Req52eMe4t

Julie Cerrone Croner @justagoodlife A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do this. List out youraccomplishments, who you work with, what you do, etc #WEGOHealthChat

Nicole McLean @nic_mclean RT @RareCandace: Q3c: I have had other people recommend me to speak at events based on my work. Sharing your mission = opportunities #wegoh…

Jen Horonje� @jhoronje� Call me old-fashioned, but I like to be useful when I join ad boards or committees. Too many I find are in title only, which I suppose works for some, but Ilike to know I'm making an impact. So I try to see how I'd be useful beforehand. #wegohealthchat https://t.co/sCYKIEuivk

Becky Brandt RN @bbhomebody RT @RieOfLetters: @RareCandace Death threats?! I am so terribly sorry this happened. It isn't the first I have heard of advocates receivi…

Ashley Hattle @ashleyhattle RT @bbhomebody: @RieOfLetters @RareCandace Talk about excessive? Death threats for a patient advocate. What has happened to good old decen…

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Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

Nicole McLean @nic_mclean RT @justagoodlife: And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots…

Candace @rarecandace A4: When I pass the Bar exam in February, I believe my brand will have major value. Looking forward to becoming a lawyer! #wegohealthchat

MMHRC @patientexperts @CrzyCreoleMommy You have to be willing to invest and spend upfront to get your name out there - otherwise it’s way harder than it needs to be#wegohealthchat

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

TheCrazyCreoleMommy @crzycreolemommy @Cpapbabes @RonnyAllan1 @wegohealth lol! it does help to have one on hand! #wegohealthchat

Nicole McLean @nic_mclean RT @JessicaGimeno: @CrzyCreoleMommy A3c: have something you can send online that shows your public speaking skills-you can send in email. S…

Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

Ronny Allan @ronnyallan1 @CrzyCreoleMommy building a credible internet "footprint" is attractive to potential sponsors, but it's hard work and not an overnight task. Try to get toknow the stakeholders in your advocacy area. p.s. build and maintain a slide pack #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @mayanorthen: This #WegoHealthChat is 100% what I needed today. Taking notes from all you amazing advocates who have been successful at…

Jackie Zimmerman @jackiezimm RT @CrzyCreoleMommy: @RareCandace Something I am thinking about for 2018. As a single mom, it's gonna be tough, but #IBD interrupted it and…

TheCrazyCreoleMommy @crzycreolemommy @JessicaGimeno Good one! #WEGOHealthChat

My Fabulous Boobies @myfabboobies That's a great tip. Thanks! https://t.co/4YtRI61TaS

Nicole McLean @nic_mclean That's a great tip. Thanks! https://t.co/apyeycyLPV

Jen Horonje� @jhoronje� @Cpapbabes @Brian_Eastwood this is your jam! Get in on this! #wegohealthchat

JP Summers @advofspooniemom RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

Jessica Gimeno @jessicagimeno RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

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Alan Brewington @abrewi3010 RT @jhoronje�: Call me old-fashioned, but I like to be useful when I join ad boards or committees. Too many I find are in title only, whic…

TheCrazyCreoleMommy @crzycreolemommy Q4a Follow Up– How do you align yourself with marketing needed to gain sponsors but keep your integrity?#WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q4– What are some steps you can take to begin building your brand’s fiscal value?#WEGOHealthChat

Julie Cerrone Croner @justagoodlife GREAT to hear :) Make sure to join our FB group too so you can stay in contact & learn even more! https://t.co/VCUC2uTdOU #WEGOHealthChathttps://t.co/XnPvlGot48

Jessica Gimeno @jessicagimeno @justagoodlife Can you link to your About Me page for reference? #WEGOHealthChat

WEGO Health @wegohealth YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat https://t.co/TUQ5dBE9IZ

FibroFlutters @fibroflutters @savvy_coop @CrzyCreoleMommy That's the direction my brain went in because we technically have an uno�icial co-op of fmauk support groups in theNE UK each with our own agendas, ideas, logos, brands etc,. If we made it o�icial none of that would change #wegohealthchat

CPAP Babes @cpapbabes @BarbyIngle Yes! Consistency is key! I have a social media company as well to help keep small businsesses up to date. (Although it can be hard if yourhealth condition makes it hard to stay on top of work!) #wegohealthchat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: @Cpapbabes It's best to find non-profits, companies or pharmaceutical companies that are associated with your cause &…

Jessica Gimeno @jessicagimeno RT @jhoronje�: Call me old-fashioned, but I like to be useful when I join ad boards or committees. Too many I find are in title only, whic…

TheCrazyCreoleMommy @crzycreolemommy @RonnyAllan1 It's definitely a marathon, not a sprint! #wegohealthchat

Nicole McLean @nic_mclean RT @HealthHats: A3 I started a YouTube channel too so people could see me speak #WEGOHealthChat

Maya Northen Augelli @mayanorthen RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

ingevandelannoote @ingevdln I will keep repeating this over and over again: overregulation in Belgium & Europe when it comes to HC frustrates m, because there is so much potentialamong patients that's underused (positive, proactive and educated people who can help making a di�erence)! #WEGOHealthChat

Becky Brandt RN @bbhomebody @justagoodlife Great idea Julie! You're so right.....readers want to know the real person behind the webpage #WEGOhealthchat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A4– Invest in yourself. Get some headshots, business cards, create a name for your brand, connect your social media pa…

TheCrazyCreoleMommy @crzycreolemommy A4a Follow Up– By choosing brands that are relevant to your cause and demographic. Random brand sponsorship that your followers can't benefit fromjust so you can make some money, doesn't help the trust factor. #WEGOHealthChat

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Ashley Hattle @ashleyhattle @CrzyCreoleMommy A4: Create engaging content that helps patients understand their condition and how to cope with the everyday struggles. Goodinformation goes a long way and o�en into the hearts of those struggling the most. #WEGOHealthChat Good content will lead to fiscal value in my opinion.

MMHRC @patientexperts RT @CrzyCreoleMommy: @RonnyAllan1 It's definitely a marathon, not a sprint! #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q4a Follow Up– How do you align yourself with marketing needed to gain sponsors but keep your integrity?#WEGOHealthChat

MMHRC @patientexperts RT @wegohealth: YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat http…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @JessicaGimeno Good one! #WEGOHealthChat

Jen Horonje� @jhoronje� @RareCandace Eeeee!! Pre-congrats! My husband is in law school now. So. Much. Work. #wegohealthchat

Nicole McLean @nic_mclean RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

Lucy Watts MBE @lucyalexandria RT @wegohealth: YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat http…

Casey Quinlan @mightycasey A4: Be human first, then be a brand. Was my reco to clients before healthcare pivot, too. https://t.co/wI4BMWVBvO #wegohealthchat

Candace @rarecandace RT @MightyCasey: A4: Be human first, then be a brand. Was my reco to clients before healthcare pivot, too. https://t.co/wI4BMWVBvO #wegohea…

Jessica Gimeno @jessicagimeno @nic_mclean You’re welcome � #WEGOHealthChat

My Fabulous Boobies @myfabboobies Oh wow! You're calling my name. I just found someone to help me with mine. It's just not as good as it should be. https://t.co/iMhK2pStxU

Nicole McLean @nic_mclean Oh wow! You're calling my name. I just found someone to help me with mine. It's just not as good as it should be. https://t.co/UzAEkUQ4Ha

Ronny Allan @ronnyallan1 @MightyCasey @RareCandace #wegohealthchat - maintain your independence and thought leadership but 'thought readership' helps with balance

Rie Lopez, MPH @rieofletters Here is @justagoodlife , sharing some truth...and reminding me that I need to go and do some work on this myself. #feelingsheepish #WEGOHealthChathttps://t.co/feYxW2qwlo

ingevandelannoote @ingevdln I will keep repeating this over and over again: overregulation in Belgium & Europe when it comes to HC frustrates me, because there is so much potentialamong patients that's underused (positive, proactive and educated people who can help making a di�erence)! #WEGOHealthChat

The Unchargeables @unchargeables @CrzyCreoleMommy Learned a lot with your #WEGOHealthChat today � Thanks! I’ll put it on my calendar *Tami

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Ashley Hattle @ashleyhattle @CrzyCreoleMommy This is a topic I've been struggling with. Some patients may see our e�orts as a money-making scheme. How do you approach thoseview points? #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy Q4b Follow Up– What are some steps you can take to build your value as a member to a patient advisory board or non profit advisory board?#WEGOHealthChat

Jessica Gimeno @jessicagimeno @MyFabBoobies � #WEGOHealthChat You’re welcome

Julie Cerrone Croner @justagoodlife @JessicaGimeno We have a few good references in our blogging 101 webinar! https://t.co/9Qi8zf3jII #WEGOHealthChat

Alan Brewington @abrewi3010 Sponsor us?? #Wegohealthchat https://t.co/TuWnwAqYuB

Nicole McLean @nic_mclean RT @RonnyAllan1: @CrzyCreoleMommy building a credible internet "footprint" is attractive to potential sponsors, but it's hard work and not…

TheCrazyCreoleMommy @crzycreolemommy A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within your community. Don't compete,but be inclusive and engaging. #WEGOHealthChat

WEGO Health @wegohealth RT @wegohealth: YES! 100% Please take the time to create an extensive and thorough About Me page! It's so important! #WEGOHealthChat http…

CPAP Babes @cpapbabes @CrzyCreoleMommy A4a: I just do my thing and hope the right sponsors come to me! But I am also careful about following guidelines for sponsorship -like making sure that posts include #ad and #sponsored. Full disclosure! #wegohealthchat

Nicole McLean @nic_mclean What is a slide pack? https://t.co/DzmsvbLaCn

Casey Quinlan @mightycasey @RonnyAllan1 @RareCandace Well, my brand = bomb-thrower, so ... #WEGOHealthChat

FibroFlutters @fibroflutters A2 As a patient you can become an advocate for your illness through charities & orgnisations, for instance FF began life through @SunderlandMindalongside help & support from FibroAction & @fmauk #WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @AshleyHattle: @CrzyCreoleMommy A4: Create engaging content that helps patients understand their condition and how to cope with the ever…

Julie Cerrone Croner @justagoodlife @JessicaGimeno Actually here's another resources too - https://t.co/PmrxTFMrCR #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @justagoodlife: @JessicaGimeno We have a few good references in our blogging 101 webinar! https://t.co/9Qi8zf3jII #WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @MightyCasey: A4: Be human first, then be a brand. Was my reco to clients before healthcare pivot, too. https://t.co/wI4BMWVBvO #wegohea…

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WEGO Health @wegohealth We did a webinar about this very topic! For info about how to create your About Me page check out this guide https://t.co/N2Oa0oc3NF #WEGOHealthChathttps://t.co/ga51DRbpfL

Nicole McLean @nic_mclean RT @AshleyHattle: @CrzyCreoleMommy A4: Create engaging content that helps patients understand their condition and how to cope with the ever…

Jessica Gimeno @jessicagimeno RT @justagoodlife: @JessicaGimeno Actually here's another resources too - https://t.co/PmrxTFMrCR #WEGOHealthChat

Candace @rarecandace RT @justagoodlife: @JessicaGimeno Actually here's another resources too - https://t.co/PmrxTFMrCR #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: Q4a Follow Up– How do you align yourself with marketing needed to gain sponsors but keep your integrity?#WEGOHealthChat

Erin Gilmer @gilmerhealthlaw @Brian_Eastwood @GraceCordovano @jhoronje� @Cpapbabes I just le� for an appointment but this is pretty much what we'd be up to if I were there.#wegohealthCAT #WEGOHealthChat https://t.co/a7iZ8DBgXA

Ashley Hattle @ashleyhattle @CrzyCreoleMommy Reaching out to the Twitter base of #clusterheadache patients and doctors has helped me as a patient and as a writer immensely.You need multiple outlets to be "seen." #WEGOHealthChat

Maya Northen Augelli @mayanorthen RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within…

Curation Suite @curationsuite RT @RonnyAllan1: @MightyCasey @RareCandace #wegohealthchat - maintain your independence and thought leadership but 'thought readership' hel…

Candace @rarecandace I don't recommend that every advocate get out there and share ALL their opinions, sometimes less is more! #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy @AshleyHattle People are always going to have opinions about things. But if you keep it authentic, you can't really be disputed. And some of thejudgements and complaints you will just have to ignore because you are probably helping more people than harming them. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @bbhomebody Not only readers, but potential clients! People are tracking you down through social media so sell yourself! #WEGOHealthChat

Becky Brandt RN @bbhomebody @abrewi3010 Lol. I'll even hand deliver it! Then we can have co�ee and talk about how we'll advance advocacy. #WEGOHealthChat

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within…

WEGO Health @wegohealth RT @justagoodlife: @bbhomebody Not only readers, but potential clients! People are tracking you down through social media so sell yourself!…

Nicole McLean @nic_mclean RT @justagoodlife: @JessicaGimeno We have a few good references in our blogging 101 webinar! https://t.co/9Qi8zf3jII #WEGOHealthChat

Danny van Leeuwen @healthhats A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can muster. React to ideas notpeople. #WEGOHealthChat

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Candace @rarecandace I just found a niche because of my special circumstances on my rare disease journey. There was an opening for me to be me #wegohealthchat

Lucy Watts MBE @lucyalexandria A4b do your research to get background knowledge, information - a little research goes a long way. Connect with the people you're representing (thepatient group) - maybe even gather their views. Do lots of brainstorming in between sessions - always come prepared. #WEGOHealthChathttps://t.co/8uVVrE7u9m

TheCrazyCreoleMommy @crzycreolemommy With a minute le�, I'm gonna post the last question. But please keep chatting and catching up on the other questions if you can. #wegohealthchat

Becky Brandt RN @bbhomebody RT @justagoodlife: @bbhomebody Not only readers, but potential clients! People are tracking you down through social media so sell yourself!…

Lucy Watts MBE @lucyalexandria RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within…

TheCrazyCreoleMommy @crzycreolemommy Q5 – Final Question: What are 5 goals you can make right now to advance your impact for the coming year? #WEGOHealthChat

Lucy Watts MBE @lucyalexandria RT @Cpapbabes: @CrzyCreoleMommy A4a: I just do my thing and hope the right sponsors come to me! But I am also careful about following guide…

WEGO Health @wegohealth RT @CrzyCreoleMommy: Q5 – Final Question: What are 5 goals you can make right now to advance your impact for the coming year? #WEGOHealthCh…

Enlightening Results @gracecordovano What a great, resourceful chat! Thanks #WEGOHealthchat

Nicole McLean @nic_mclean RT @justagoodlife: @JessicaGimeno Actually here's another resources too - https://t.co/PmrxTFMrCR #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @Unchargeables @CrzyCreoleMommy Wonderful! And if you have a @wegohealth account you can join our FB group and continue to learn from other#PatientLeaders every day! https://t.co/VCUC2uTdOU #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @Cpapbabes YES! #WEGOHEALTHCHAT

Becky Brandt RN @bbhomebody RT @GraceCordovano: What a great, resourceful chat! Thanks #WEGOHealthchat

Lucy Watts MBE @lucyalexandria RT @HealthHats: A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can…

Nicole McLean @nic_mclean RT @FibroFlutters: A2 As a patient you can become an advocate for your illness through charities & orgnisations, for instance FF began life…

Julie Cerrone Croner @justagoodlife RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within…

Angela Cohen @angelee828 Thanks @wegohealth and @CrzyCreoleMommy for such a fantastic chat today. I gained valuable tips from everyone!! #wegohealthchat

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Christy Stone @crohniebologna @CrzyCreoleMommy A4 I would classify myself as swimming up stream. I'm over here doing my own thing, collaborating where I can, boosting other goodsources within my community, reaching out to other disease types. Strength in good information & authenticity. Do good. Be good. #WEGOHealthChat

WEGO Health @wegohealth Yes! Join us in our Facebook group! #WEGOHealthChat https://t.co/jJdxDE32jS

Deanne @1985deanne RT @LucyAlexandria: A4b do your research to get background knowledge, information - a little research goes a long way. Connect with the peo…

Nicole McLean @nic_mclean RT @CrzyCreoleMommy: @AshleyHattle People are always going to have opinions about things. But if you keep it authentic, you can't really be…

Ashley Hattle @ashleyhattle @CrzyCreoleMommy I'm not sure who to credit with this quote, but "You're not doing anything if you're not being criticized" has helped my mindset a lot.#WEGOHealthChat

Nicole McLean @nic_mclean RT @justagoodlife: @bbhomebody Not only readers, but potential clients! People are tracking you down through social media so sell yourself!…

Nicole McLean @nic_mclean RT @bbhomebody: @abrewi3010 Lol. I'll even hand deliver it! Then we can have co�ee and talk about how we'll advance advocacy. #WEGOHealth…

Candace @rarecandace A5: Pass the bar, find the right job in the pharmaceutical industry, start blogging again, push OPEN Act, hit the gym! #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy @AshleyHattle Yes, I think people forget that not everyone is on FB or Twitter or Instagram, exclusively. #wegohealthchat

Jessica Gimeno @jessicagimeno @justagoodlife Great. I’ll check these out. You reminded me to update my “About Me” page soon-ish. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife RT @HealthHats: A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can…

Julie Cerrone Croner @justagoodlife RT @RareCandace: I just found a niche because of my special circumstances on my rare disease journey. There was an opening for me to be me…

Alan Brewington @abrewi3010 @wegohealth No worried at all. Changed URL, everything. Just walked away from the old. #WegoHealthChat

Julie Cerrone Croner @justagoodlife @JessicaGimeno I gave myself the reminder too haha I need to update mine LOL #WEGOHealthChat

Dr Mary Ann Wilmarth @back2backpt @wegohealth I concur. I have done a lot with all forms of media with my full time profession. It is critical to maintain your or your brand or company’smessage & voice. A word or edit here or there can change the entire meaning! #WEGOhealthchat @wegohealth @Back2backPT @CrohnieBologna

CPAP Babes @cpapbabes @CrzyCreoleMommy #Q5: Get consistent with writing, get better at answering emails, consistent outreach, taking action on things I know I need to do toadvance and take care of myself and my son, who is coming in May! #wegohealthchat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A4a Follow Up– By choosing brands that are relevant to your cause and demographic. Random brand sponsorship that your…

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Danny van Leeuwen @healthhats A5: 1 continue to develop my resource center. 2. SHow up. 3. Give my health the time it deserves. 4 When my honey says she wants to do something withme the answer is YES #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @RareCandace BAM! #WEGOHealthChat

Nicole McLean @nic_mclean RT @HealthHats: A4a Advisory boards: know why you're there. Do your homework. Come prepared. Listen. Speak with all the authority you can…

Alan Brewington @abrewi3010 @bbhomebody Mmmmmmm co�ee #Wegohealthchat

Ronny Allan @ronnyallan1 @MightyCasey @RareCandace #WEGOHealthChat hopefully that was a metaphor �

Julie Cerrone Croner @justagoodlife RT @Cpapbabes: @CrzyCreoleMommy #Q5: Get consistent with writing, get better at answering emails, consistent outreach, taking action on thi…

Julie Cerrone Croner @justagoodlife RT @HealthHats: A5: 1 continue to develop my resource center. 2. SHow up. 3. Give my health the time it deserves. 4 When my honey says she…

Jessica Gimeno @jessicagimeno @CrzyCreoleMommy Q4b: become an expert in your field, advocate for laws that help the people you serve and do@it because it’s the right thing#WEGOHealthChat

Lucy Watts MBE @lucyalexandria A5. - Connect with new people. - Push myself to secure new opportunities to use my voice & skills - Gather the views of the people I represent - surveys oreven just questions on social media. - Go to more events & get 'out there' - Do courses to learn & grow #WEGOHealthChat https://t.co/ncWrOuRnTA

Becky Brandt RN @bbhomebody CT Thanks for another REALLY valuable #WEGOHealthChat Have a great day everyone! https://t.co/h2oqkJajMr

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: A4b Follow Up– Participate in twitter chats, FB Lives and other events in your community. Broaden your horizons within…

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Q5 – Final Question: What are 5 goals you can make right now to advance your impact for the coming year? #WEGOHealthCh…

Lucy Watts MBE @lucyalexandria RT @AshleyHattle: @CrzyCreoleMommy I'm not sure who to credit with this quote, but "You're not doing anything if you're not being criticize…

TheCrazyCreoleMommy @crzycreolemommy Thank you so much for chatting with me guys! I know I had a lot of questions, but I wanted to cover a lot of ground! Hope you got something to take withyou. Thank yous o much @wegohealth for letting me take over! Looking forward to the next year on the Ad Board! #wegohealthchat

Candace @rarecandace My hope for the future is to see people reach across the aisle more o�en on policy issues. People aren't so scary! #wegohealthchat

Becky Brandt RN @bbhomebody RT @abrewi3010: @bbhomebody Mmmmmmm co�ee #Wegohealthchat

Danny van Leeuwen @healthhats Bye. #WEGOHealthChat

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Rie Lopez, MPH @rieofletters @justagoodlife @bbhomebody For me, this is the hardest part, selling myself. I never felt very comfortable with it in my pre #chronicillness life. As always, Iam a work in progress. #WEGOHealthChat

Julie Cerrone Croner @justagoodlife Was a fantastic #WEGOHealthChat - THANK YOU @CrzyCreoleMommy! GREAT JOB!!!! Thank you to everyone who joined us today. Fantastic content!#WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @JessicaGimeno Yes. With my background and resources in legislation, policy has become a big part of my advocacy. health laws are very important!#WEGOHEalthChat

Ashley Hattle @ashleyhattle @Cpapbabes @CrzyCreoleMommy What she said ^ Staying consistent is di�icult when life (especially life with a serious health condition) throws you curveballs every day. #WEGOHealthChat

Maya Northen Augelli @mayanorthen Consistency is where I struggle. Tons of excitement and ideas followed by #MECFS exhaustion & #depression. Always an up and down battle.#wegohealthchat https://t.co/bDTI57DkA9

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: Thank you so much for chatting with me guys! I know I had a lot of questions, but I wanted to cover a lot of ground! H…

Julie Cerrone Croner @justagoodlife Don't forget you can stay connected with each other in our FB group. It's only for WH Account holders, so if you have a WH Account make sure to join us :)#WEGOHealthChat https://t.co/VCUC2uTdOU

Maya Northen Augelli @mayanorthen RT @justagoodlife: Was a fantastic #WEGOHealthChat - THANK YOU @CrzyCreoleMommy! GREAT JOB!!!! Thank you to everyone who joined us today. F…

Jessica Gimeno @jessicagimeno @CrzyCreoleMommy @wegohealth Thanks to both of you for this great chat! Had fun and learned a lot with everyone #WEGOHealthChat

WEGO Health @wegohealth @CrzyCreoleMommy We loved having you! Thank you for sharing your knowledge bombs! #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @justagoodlife: Don't forget you can stay connected with each other in our FB group. It's only for WH Account holders, so if you have a…

Barby Ingle O�icial @barbyingle I choose my gigs based on my health conditions, limitations, and look for long-term turnarounds in case of flares. #WEGOHealthChathttps://t.co/jzQJ7ovsU6

TheCrazyCreoleMommy @crzycreolemommy @Cpapbabes Congratulations! Take some time a�er the baby and then jump right back on the horse!!! And boy moms ROCK!!!! LOL! #WEGOHealthChat

CPAP Babes @cpapbabes @CrzyCreoleMommy @AshleyHattle Yes! My Facebook audiences and Instagram audiences are SO di�erent! (The Instagram audience loved the shirt thathad the word "e�ing", the FB ones thought it was too profane!) #wegohealthchat

Rie Lopez, MPH @rieofletters Tons of amazing and valuable information to go over in today's #wegohealthchat! Thanks so much for the fantastic tips everyone. Special thanks to@CrzyCreoleMommy , who is absolutely wonderful!!

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WEGO Health @wegohealth Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to dothis more o�en, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o

Lucy Watts MBE @lucyalexandria Thanks for a great chat @CrzyCreoleMommy & @wegohealth #WEGOHealthChat

Julie Cerrone Croner @justagoodlife @CrzyCreoleMommy @Cpapbabes My advocacy this last year has DEF slowed down since I've been pregnant. I'm just going at a slow pace & know that forthe next year it'll prob be like that. And I'm a-ok with that! #WEGOHealthChat

Ashley Hattle @ashleyhattle RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exch…

Ronnie Barbour @ronniehasissues RT @AshleyHattle: @CrzyCreoleMommy I'm not sure who to credit with this quote, but "You're not doing anything if you're not being criticize…

Savvy Cooperative @savvy_coop 1 - Choose integrity no matter what 2 - Help elevate diverse voices 3 - Listen more than we speak 4 - Celebrate success of others and ourselves 5 - Cultivatea community of empowered patient-owners to restore power back to patients. #wegohealthchat https://t.co/8ViPQja0zB

TheCrazyCreoleMommy @crzycreolemommy @AshleyHattle Yes! I grew up with parents who work in the entertainment business, so my crusty exterior is thick. But it's important to have! Everybodyhas an opinion. #WEGOHealthChat

FibroFlutters @fibroflutters A1a FibroFlutters has used the same logo since it began in 2014, naturally, it has changed in accordance to the developmental changes we have made aswe have grown #WEGOHealthChat The same logo & cover pictures can be seen across platforms establishing an identity is key

Jessica Gimeno @jessicagimeno @mayanorthen I do whatever I can. It’s so hard. #WEGOHealthChat https://t.co/EaM5PZ6tRJ

TheCrazyCreoleMommy @crzycreolemommy @CrohnieBologna YES! Collaborations are important. And always keeping what's important at the forefront of your mind! #WEGOHealthChat

Savvy Cooperative @savvy_coop Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

Jessica Gimeno @jessicagimeno RT @AshleyHattle: @Cpapbabes @CrzyCreoleMommy What she said ^ Staying consistent is di�icult when life (especially life with a serious hea…

TheCrazyCreoleMommy @crzycreolemommy @angelee828 @wegohealth Thanks for tuning in and participating! xo #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @CrzyCreoleMommy: @JessicaGimeno Yes. With my background and resources in legislation, policy has become a big part of my advocacy. heal…

Jessica Gimeno @jessicagimeno RT @justagoodlife: Was a fantastic #WEGOHealthChat - THANK YOU @CrzyCreoleMommy! GREAT JOB!!!! Thank you to everyone who joined us today. F…

TheCrazyCreoleMommy @crzycreolemommy @GraceCordovano So glad you got something out of it! xo #WEGOHealthChat

WEGO Health @wegohealth Don't forget, we have #wegohealthchat the first Tuesday of every month at 1pm ET. Mark it on your calendar �!

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Ashley Hattle @ashleyhattle Thank you @wegohealth and @CrzyCreoleMommy for today's #WEGOHealthChat There was a lot of useful information and advice that I'm excited toimplement in the new year. https://t.co/ESAD6a1KG3

Ronny Allan @ronnyallan1 @CrzyCreoleMommy A5 do things faster, better cheaper (as in my own time), more road trips � #WEGOHealthChat

Becky Brandt RN @bbhomebody @RieOfLetters @justagoodlife No doubt Rie. It's one of those dumb things some of us were taught....don't boast about yourself. And its really hard toreverse! #WEGOHealthChat

Christy Stone @crohniebologna @CrzyCreoleMommy A5: 1. Invest more in myself 2. Care less about personal consequences 3. Push the publish button and carry on 4. Goals + Reason +Reality = Balance 5. Be kinder to myself. Calm the perfectionist #WEGOHealthChat

WEGO Health @wegohealth @CrohnieBologna @CrzyCreoleMommy #4! Love it #WEGOHealthChat

Jessica Gimeno @jessicagimeno RT @wegohealth: Don't forget, we have #wegohealthchat the first Tuesday of every month at 1pm ET. Mark it on your calendar �!

Jessica Gimeno @jessicagimeno RT @justagoodlife: And don't forget the WEGO Health Experts platform too. By having a profile up on the platform you can connect with lots…

FibroFlutters @fibroflutters RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

TheCrazyCreoleMommy @crzycreolemommy @savvy_coop Love this! #wegohealthchat

WEGO Health @wegohealth Make sure to follow today's hosts: @CrzyCreoleMommy! Thank you SO much Brooke for leading this discussion and sharing some of your insiderknowledge! � #WEGOHealthChat

Christy Stone @crohniebologna @CrzyCreoleMommy @wegohealth Thank you Brooke. As always, lovely to chat with you. Always take something thoughtful away from time together.Great job moderating. #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @justagoodlife @Cpapbabes Yes! Family comes first. Health comes first! Plus, those new babies need time to adjust to the new world, and you need timeto adjust to mommy hood. Take your time! Also don't be afraid if your advocacy evolves. #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: Thank you to everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exch…

TheCrazyCreoleMommy @crzycreolemommy @RieOfLetters Thank you so much for joining! I'm so glad you got some useful stu�! xoxo #WEGOHealthChat

Maya Northen Augelli @mayanorthen @HealthHats @ePatientDave Oh I do too. But I've had people who refuse to show me the final edits before it goes "live", and I want to see them. Thank youfor the recommendation. Always good to have them! #wegohealthchat

Ashley Hattle @ashleyhattle @GoldenGraine I wish I'd tagged you earlier. The #WEGOHealthChat is a monthly talk on #advocacy for health conditions. It's on the 1st Tuesday of everymonth. I learned a lot today!

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TheCrazyCreoleMommy @crzycreolemommy @wegohealth thanks y'all! xoxoxo #wegohealthchat https://t.co/kghjYuodBg

h e a t h e r | #PTEN @zheatherchamp @CrzyCreoleMommy I would love to know how to do this! #WEGOHealthChat

Brian Eastwood @brian_eastwood @wegohealth (marks it on calendar) #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy @JessicaGimeno @wegohealth Aww thanks for joining! xo #WEGOHealthChat

Barby Ingle O�icial @barbyingle RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

h e a t h e r | #PTEN @zheatherchamp @CrzyCreoleMommy Sponsors in what way? For what purpose? #WEGOHealthChat

Becky Brandt RN @bbhomebody @CrzyCreoleMommy @wegohealth Your Info is fantastic. Thanks so much @CrzyCreoleMommy Cray #WEGOHealthChat

WEGO Health @wegohealth @AshleyHattle @GoldenGraine So glad you joined us today! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @justagoodlife So, I totally read that as, WH:WHITE HOUSE. And I was like, ummm...not many people work or have worked in the White House, so, why isthat a criteria?! LOL!!! #NeedMoreCo�ee #WEGOHealthChat

h e a t h e r | #PTEN @zheatherchamp @CrzyCreoleMommy Who’s “they”? I’m desperate to earn money since denied disability. Help! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @AshleyHattle @Cpapbabes Yes! I have forced myself to be comfortable with the unpredictability. I try to plan, put dates in the calendar, etc. But life andillness happen. And that's okay. Health & Family first! Just do what you can! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @justagoodlife: Was a fantastic #WEGOHealthChat - THANK YOU @CrzyCreoleMommy! GREAT JOB!!!! Thank you to everyone who joined us today. F…

FibroFlutters @fibroflutters A3 Sponsorship can be very fruitful for a variety of reasons - perks mainly. I tested an NREM sleep system and got to keep it in exchange for a productreview. I was o�ered the chance to become an a�ililiate which is another option companies o�er #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @ZHeatherChamp "They" is in reference to the companies that host Advisory Boards. #WEGOHealthChat

FibroFlutters @fibroflutters A3 don't set your limits too high, be realistic when discussing deals #WEGOHealthChat

iPain Foundation @powerofpain RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

iPain Foundation @powerofpain RT @BarbyIngle: I choose my gigs based on my health conditions, limitations, and look for long-term turnarounds in case of flares. #WEGOHea…

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iPain Foundation @powerofpain RT @BarbyIngle: Q4. Stay constant, trim the waste, have good content and stay on brand w the sm accounts #WEGOHealthChat https://t.co/yWL…

iPain Foundation @powerofpain RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

TheCrazyCreoleMommy @crzycreolemommy @ZHeatherChamp Have you appealed the decision with a lawyer? Lawyers only take payment from the percentage of your decision. So, you don't have topay them upfront. @Crohns_HU has a great blog post on that. #WEGOHealthChat

iPain Foundation @powerofpain RT @BarbyIngle: A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take c…

Louise marsland @louise90999815 RT @LucyAlexandria: Thanks for a great chat @CrzyCreoleMommy & @wegohealth #WEGOHealthChat

MusicMovesAwareness @ipainfoundation RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

MusicMovesAwareness @ipainfoundation RT @BarbyIngle: Q4. Stay constant, trim the waste, have good content and stay on brand w the sm accounts #WEGOHealthChat https://t.co/yWL…

MusicMovesAwareness @ipainfoundation RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

MusicMovesAwareness @ipainfoundation RT @BarbyIngle: Hi :) jusy woke up from our iPain #HeroofHope awards dinner last night. Just in time 4 the chat. :) #WEGOHealthChat https:/…

MusicMovesAwareness @ipainfoundation RT @BarbyIngle: A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take c…

TheCrazyCreoleMommy @crzycreolemommy @ZHeatherChamp You can gain sponsorship for your blog or social media platforms from brands that are relevant for your audience. For example, I am abrand ambassador for @Ergobaby . Why? Because it's a brand that the patients who follow me can benefit from & one I like and use. #WEGOHealthChat

Tsunami Inc @tsunamiinc97 RT @CrzyCreoleMommy: A3a Follow Up – I start with items or brands I'm interested in as a patient and a mother. And then I think if it could…

Ronny Allan @ronnyallan1 @justagoodlife @CrzyCreoleMommy Great job @CrzyCreoleMommy #WEGOHealthChat #wego and Julie �

FibroFlutters @fibroflutters Q3a Personally, I would use an initiative such as Chronic Illness Bloggers where sponsors are vetted and it makes life less stressful. There's a directory forbloggers to join. https://t.co/sqe13JZkPU @ChronicBlogs #WEGOHealthChat

Marybeth Crane @myrundoc The latest The MyRunDoc Daily! https://t.co/4H8lccS87v Thanks to @MartinJParnell @vmelhuish4 @GerresDPM #diabetes #wegohealthchat

TheCrazyCreoleMommy @crzycreolemommy @FibroFlutters Yes!!! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy RT @wegohealth: Make sure to follow today's hosts: @CrzyCreoleMommy! Thank you SO much Brooke for leading this discussion and sharing some…

Page 62: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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FibroFlutters @fibroflutters RT @RonnyAllan1: @justagoodlife @CrzyCreoleMommy Great job @CrzyCreoleMommy #WEGOHealthChat #wego and Julie �

Martin J @swirlingair RT @RonnyAllan1: A1 some organisations welcome intelligent patients to input/support their own initiatives. Honorariums are sometimes avai…

TheCrazyCreoleMommy @crzycreolemommy @ZHeatherChamp Take a look at my tweets & replies section , and follow the hashtag for some tips from the chat. xo #WEGOHealthChat

FibroFlutters @fibroflutters Thanks guys i couldn't find the last Q's because I couldn't find which page ou had them on @CrzyCreoleMommy but great chat and I'll look through thefeed now it isn't flowing so fast #WEGOHealthChat

Notorious C$ @notoriouscmoney RT @spondywolfgirl: Hi! I'm Deeanne in Orlando and advocating for Psoriatic Arthritis and more. #wegohealthchat

FibroFlutters @fibroflutters Some fab answers, thankyou @justagoodlife @CrzyCreoleMommy #WEGOHealthChat ���

Amber J Tresca @aboutibd A5 1) Write more 2) Reach out to others for collaboration 3) Work on securing funding 4) Take more risks 5) Write more #WEGOHealthChathttps://t.co/3EixPHqAi0

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: @ZHeatherChamp You can gain sponsorship for your blog or social media platforms from brands that are relevant for your…

TheCrazyCreoleMommy @crzycreolemommy @aboutIBD Collaborations are so important!!! I take it you plan on...writing more? LOL! #WEGOHealthChat

TheCrazyCreoleMommy @crzycreolemommy @FibroFlutters If you go to my timeline, you should be able to see them. Just click on my name. Sorry, I know it was a lot of questions. I was just trying tocover a lot of ground. xoxo #WEGOHealthChat

FibroFlutters @fibroflutters RT @wegohealth: Don't forget, we have #wegohealthchat the first Tuesday of every month at 1pm ET. Mark it on your calendar �!

FibroFlutters @fibroflutters RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

Major League Infidel @maynardrab8 RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

FibroFlutters @fibroflutters A5 New Cover pics Update website more regularly Focus on our smaller follower numbers away from Twitter& Facebook, nurture them & do somenetworking Build alliances with relevant orgs etc Advocate harder with more ra�les /FUNdraising Awareness campaigns #WEGOHealthChat

Exclusive Online @pure__luxnyc RT @BarbyIngle: I choose my gigs based on my health conditions, limitations, and look for long-term turnarounds in case of flares. #WEGOHea…

Martin Parnell @martinjparnell RT @myrundoc: The latest The MyRunDoc Daily! https://t.co/4H8lccS87v Thanks to @MartinJParnell @vmelhuish4 @GerresDPM #diabetes #wegohealth…

Patrisse Franco @muchtalklssa RT @BarbyIngle: A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take c…

Page 63: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

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Jessica Gimeno @jessicagimeno RT @wegohealth: Make sure to follow today's hosts: @CrzyCreoleMommy! Thank you SO much Brooke for leading this discussion and sharing some…

NeuroendocrineCancer @netcancerblog RT @RonnyAllan1: @justagoodlife e.g. Building up this site #WEGOHealthChat https://t.co/5VAQ1PdKeM

Time4Recovery @time4recovery RT @savvy_coop: 1 - Choose integrity no matter what 2 - Help elevate diverse voices 3 - Listen more than we speak 4 - Celebrate success of…

FibroFlutters @fibroflutters RT @wegohealth: As we mentioned, today we're joined by Brooke Abbott who you can follow at @CrzyCreoleMommy. Brooke is not only an impressi…

FibroFlutters @fibroflutters RT @RieOfLetters: This is so very important, and I see a lot of people I admire sharing this message. I am incredibly lucky to have found…

Whitney Petit @cfepilepsy RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

FibroFlutters @fibroflutters A3B This is an aspect of my voluntary work that I hope myself, and FibroFlutters, start embarking on in 2018 #WEGOHealthChat

Joanna Quick @joannaquick83 RT @savvy_coop: 1 - Choose integrity no matter what 2 - Help elevate diverse voices 3 - Listen more than we speak 4 - Celebrate success of…

FibroFlutters @fibroflutters RT @CrzyCreoleMommy: A3c Follow Up – Keep it professional, keep it real and as my dad always says, keep it funky! Meaning stay true to who…

FibroFlutters @fibroflutters RT @MightyCasey: Q3: I've gotten more mileage out of partners than sponsors. Find a group/tribe to team/earn with. #WEGOHealthChat

FibroFlutters @fibroflutters A3C This is a stage that I am at now a�er recently registering with PRAI (Patient Research Ambassador Initiative) and with other possible #patientleaderengagements so shall appreciate any advice #WEGOHealthChat

FibroFlutters @fibroflutters RT @RonnyAllan1: @CrzyCreoleMommy A3 one of the great things about being a @wegohealth patientleader, is that they can guide and help you a…

FibroFlutters @fibroflutters RT @wegohealth: If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! � https://t.co/MqDpALi1xs h…

Heidi Grabenstatter @patientintv Thanks for including me in #wegohealthchat. Was a pleasure to learn from powerful patients making an impact. Sorry I had to check out early. Lookforward to catching up with all of you soon.

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: I choose my gigs based on my health conditions, limitations, and look for long-term turnarounds in case of flares. #WEGOHea…

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

Jodi Dragon @jodiorvisdragon RT @powerofpain: A2b. I have separate brands made for each. I write personal health journey on personal sm and website, and community info…

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Elyse Reyes @elysereyesbooks RT @savvy_coop: 1 - Choose integrity no matter what 2 - Help elevate diverse voices 3 - Listen more than we speak 4 - Celebrate success of…

Jodi Dragon @jodiorvisdragon RT @savvy_coop: Great advice! #wegohealthchat https://t.co/9xx3a7JU3v

Jodi Dragon @jodiorvisdragon RT @powerofpain: A2b. I have separate brands made for each. I write personal health journey on personal sm and website, and community info…

FibroFlutters @fibroflutters RT @justagoodlife: A4 If you have a blog, MAKE SURE YOU HAVE A QUALITY ABOUT ME PAGE. I put it in all caps because most people don't do thi…

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: Q4. Stay constant, trim the waste, have good content and stay on brand w the sm accounts #WEGOHealthChat https://t.co/yWL…

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: Awesome, pics should be out from our photographer by this Sunday. #WEGOHealthChat https://t.co/uudVOw1Il4

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: Hi :) jusy woke up from our iPain #HeroofHope awards dinner last night. Just in time 4 the chat. :) #WEGOHealthChat https:/…

Jodi Dragon @jodiorvisdragon RT @BarbyIngle: A2. Be careful not to give away sensitive info like phone or address, and if you do, set limits on when to call etc. Take c…

Flu�meister @scru�on73 RT @FibroFlutters: A5 New Cover pics Update website more regularly Focus on our smaller follower numbers away from Twitter& Facebook, nurtu…

Flu�meister @scru�on73 RT @FibroFlutters: Q3a Personally, I would use an initiative such as Chronic Illness Bloggers where sponsors are vetted and it makes life l…

Flu�meister @scru�on73 RT @FibroFlutters: A3 don't set your limits too high, be realistic when discussing deals #WEGOHealthChat

Flu�meister @scru�on73 RT @BarbyIngle: Q3. Always follow through and don't over promise, but when I can, I over deliver. Many find me now through my sm platforms.…

Flu�meister @scru�on73 RT @FibroFlutters: A1a FibroFlutters has used the same logo since it began in 2014, naturally, it has changed in accordance to the developm…

Flu�meister @scru�on73 RT @FibroFlutters: A2 As a patient you can become an advocate for your illness through charities & orgnisations, for instance FF began life…

patricia porteiro @patriporteiro RT @SimonRStones: A1: For me, it all comes back down to building your reputation (slowly, but surely!) Create quality, meaningful content,…

Flu�meister @scru�on73 #WEGOHealthChat https://t.co/IiChZVwS3g

Flu�meister @scru�on73 RT @CrzyCreoleMommy: Q2a Follow Up: Is it better to separate your personal life from your brand?#WEGOHealthChat

Flu�meister @scru�on73 RT @FibroFlutters: A1 I haven't monetised my blog in fact FibroFlutters has grown over 3 1/2 years and only spent approx £150. That money…

Page 65: #WEGOHealthChat Transcript€¦ · #WEGOHealthChat Transcript Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, December 12th 2017, 11:00AM – Tue, December

#WEGOHealthChat content from Twitter

3 days agoFlu�meister @scru�on73 RT @FibroFlutters: Carole Scra�on Co-F FibroFlutters Support/Advice/Advocacy Group on & o�line across multiple social media platforms #pa…

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