workshop on personalised .workshop on personalised medicines what does ‘personalised’ mean to

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WORKSHOP ON PERSONALISED MEDICINES What does personalised mean to patients and healthcare professionals Julian Isla

Microsoft. Consulting Services Dravet Syndrome European Federation. Chairman EURORDIS Therapeutic Action Group EMA delegate. COMP patient representative Scientific Advisory Board

Personalised=Precission

According to the National Institutes of Health (NIH), precision medicine is "an emerging approach for disease treatment and

prevention that takes into account individual variability in genes, environment, and

lifestyle for each person

Medical treatment

5

Sergio 8 years old

Dravet Syndrome

A real example of lack of precision

6

Individual variability in genes Environment Lifestyle Medical treatment

Individual variability in genes

Environment and lifestyle

Healthcare is not a science problem, its an information problem"

Thomas Goetz

Healthcare is a science and information problem"

Learning from mistakes

Feedback loop

110 years

3 2581703423 4457570

Patient digital transformation

P-4 medicine predictive, preventive, personalized and participatory

Quantifying wellness is the key

Clinical

Systems

Quantification

Patient-driven

Healthcare

Intelligent systems

Questions? Thank you

Julian.isla@dravetfoundation.eu @julianig

Workshop on personalised medicinesSlide Number 2Slide Number 3Slide Number 4Slide Number 5Slide Number 6Slide Number 7Slide Number 8Slide Number 9Slide Number 10Slide Number 11Slide Number 12Slide Number 13Slide Number 14Slide Number 15Slide Number 16Slide Number 17Slide Number 18Slide Number 19Slide Number 20Quantifying wellness is the keySlide Number 22Slide Number 23Slide Number 24Slide Number 25Slide Number 26Slide Number 27Questions?

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