YEARS & COUNTING

2011-2012 Annual Report

1NEW STAFF MEMBERMarketing & Communications

Manager

1MILLION

points of ser vice delivered through all programs

and services

Served more than

320,000unique individuals through our website and thousands more through outreach

and educational programs

Lauched our

2nd major caregiver research project

More than

400PEOPLEjoined the LBD

Awareness Movement

Approximately

800people attended LBDA webinars

Presence at

3+clinical and scientific

conferences

Dear Friends:

As we turn the page on the year, I have to recognize that we are also concluding LBDA’s first decade of service to those who have been affected by Lewy Body dementia. Looking back over our

past annual reports and seeing all the many programs and services our organization has been able to establish from our Support Groups and Caregiver links, the wealth of educational material compiled, our first bio marker conference, and our many efforts to raise awareness of this disease, I can only hope that the founders of LBDA would be very proud of the organization we have become.

I believe this is the most appropriate time to acknowledge the passion and commitment of our many Board members and Staff over these 10 years, that have been a wonderful example of how so few can make some much good happen. I want to recognize our hundreds of volunteers whose dedication and hard work are the backbone of all that we accomplish. Equally important, we want to thank all those Individual Donors, Organizations, Foundations, Companies, and other Associations without whose financial support we would never have been able to grow into the organization LBDA is today. LBDA is an organization that is stable, planning for a more successful future, and more passionate than ever to serve you, our family.

Our next decade is filled with exciting new challenges and opportunities. We continue to plan and explore new ways to be of service to all of you. Along with all of your continuing support and commitment of LBDA, we continue … through outreach, education and research, to support those affected by Lewy Body dementias.

Sincerely,

Mike Koehler, Board of Director, PresidentLewy Body Dementia Association

ABOUT LBDA / PROGRAM HIGHLIGHTS ( 3 )( 2 ) LETTER FROM THE PRESIDENT

VISION

A cure for Lewy body

dementias and quality

support for those still

living with the disease.

MISSION

Through outreach,

education and research,

we support those affected

by Lewy Body Dementias.

About Lewy Body Dementia AssociationThe Lewy Body Dementia Association (LBDA) is the only nonproft organization in the U.S. focused solely on Lewy body dementias. LBDA was founded by LBD caregivers and today the majority of its Board of Directors are still current or former LBD caregivers. The LBDA’s Scientific Advisory Council (SAC) is composed of international leaders in LBD research and clinical management.

Whether you or a friend or family member have been diagnosed with LBD, or if you are a healthcare or service provider with questions about LBD, we are here for you and look forward to joining together to advance awareness, treatment, and information about this disease.

Program Highlights for 2011- 2012

Grew our library of educational resources

+3 NEW PUBLICATIONS

Volunteer raised

$30,000in Boston 5K race

6MILLION

viewers and listeners tuned in nationally for a public service announcement

by Kelsey Grammer

20112012

TEN YEARS AND COUNTING ( 5 )( 4 ) TEN YEARS AND COUNTING

One Family’s Story

Tristan Hancock is 15 years old and lives in Anacoco, Louisana. Four years ago, his father was diagnosed with Lewy body dementia (LBD) and Parkinson’s disease.

Since then, Tristan, his two older sisters, and his mother have had to cope with his father’s increasing loss of memory and confusion. His father had to retire from his job in the Texas oil fields because he was no longer able to drive. As his caregivers, the family has to help him with such basic functions as getting to the bathroom or tying his shoes.

In addition to forgetfulness, his father experiences anxiety and hallucinations. The more Tristan learned about LBD and Parkinson’s symptoms, the more scared he became about what his father and his family were facing. Tristan’s mother turned to the Lewy Body Dementia Association’s online forum and website www.lbda.org for the most accurate information on LBD and also told Tristan about LBDStories.com, a website created by LBDA to provide a place for LBD families to share their stories and pictures. Tristan shared his family’s story on the website and felt comforted knowing that other families are dealing with the same issues.

To help his mother and sisters care for his father, Tristan is now home-schooled. Despite the challenges he and his family are facing, he encourages others to stay strong.

July 2003 March 2004 December 2005 May 2006 March 2007 October 2008 April 2010 October 2011 March 2012January 2006

If your loved one or someone you know has LBD or Parkinson’s, be prepared for what lies ahead.

It’s not an easy trip. I was to the point to where I was losing faith fast, but I still pray and hope for the best. – Tristan Hancock

Officially recognized

501(c)(3) as only U.S.

nonprofit organization

devoted to Lewy Body

Dementia.

Launched toll-free helpline

providing immediate

access to LBD information

for LBD patients and

caregivers.

Awarded $500,000 grant

from The Mangurian

Foundation.

Provided testimony at

first FDA Advisory Panel

Meeting.

Held the first “Faces of

LBD” National Symposium.

Co-sponsored first

symposium in collaboration

with The Mayo Clinic.

Presented LBD Caregiver

Burden Survey results to

Congress on Nonmotor

Symptoms in Parkinson’s

disease, and annual meeting

of the American Academy

of Neurology.

Funded the Lewy Body

Dementia Biomarker

research program in

collaboration with

the Alzheimer’s Drug

Discovery Foundation.

More than 400 volunteers

across the United States

joined the LBD Awareness

Movement to build public

awareness and scientific

education.

Advocated for LBD families’

needs at meeting of

National Plan to Address

Alzheimer’s Disease, a

strategic plan to address

Alzheimer’s and related

dementias.

1 62 73 84 95 10

FINANCIALS ( 7 )( 6 ) PARTNERS AND BOARD

Board of Directors

Mike KoehlerPresident

Shannon McCarty-CaplanVice-President

Lisa AllardTreasurer

Tamara RealSecretary

Angela HerronPresident Emeritus

Board Members

Todd GrahamDebbie McCoy-MasseyJames Galvin, M.D.Max KaftalChristina ChristieNorma Loeb

Scientific Advisory Council

The LBDA Scientifc Advisory Council (SAC) members are international leaders in LBD research and clinical management. They provide the most up-to-date medical and research information, which LBDA uses to create in-formative publications for the general public, caregivers and the medical profession.

Please visit www.lbda.org for a complete list of current SAC members.

Partners

AgingCare.com Alzheimer’s Association Georgia Chapter Alzheimer’s Disease Drug Discovery Foundation (ADDF)Alzheimer’s SpeaksAmerican Parkinson’s Disease Association, Georgia Chapter The Arbor CompanyThe CareGiver Partnership The Caregiver’s Voice.com The Mangurian FoundationCaregiving.comCaregiving Café.comCVS CaremarkCaring.comDementia TodayeCareDiary.com Emory UniversityAlzheimer’s Disease Research CenterFountainview Center for Alzheimer’s Disease FTDGoogleNational Council of Certified Dementia PractitionersNational Parkinson’s Foundation Society of Nuclear Medicine and Molecular Imaging (SNNMMI)UC San DiegoShiley-Marco Alzheimer’s Disease Research Center –

See more at www.lbda.org

Revenue 2011 2012

Contributions and Gifts $ 358,615 $ 484,405 Reclassified Assets 8,600 105,285 Foundation Grants 102,960 57,129

Totals $ 470,175 $ 646,819

The complete, audited financial statements for 2011 and 2012 are available at www.lbda.org under “About Us.”

Expenses 2011 2012

Programs $ 243,536 $ 401,943 Support Services 59,302 51,478 Fundraising 55,451 76,466

Totals $ 358,289 $ 529,887

75% Contributions & Gifts

76% Contributions & Gifts

76% Contributions & Gifts

68% Contributions & Gifts

16% Reclassified Assets

10% Reclassified Assets

2% Reclassified Assets

17% Reclassified Assets

9% Foundation Grants

14% Foundation Grants

22% Foundation Grants

15% Foundation Grants

By supporting the work of LBDA, you join in

Increasing KnowledgeSharing Experience

Building Hope To learn more about LBD,

visit www.lbda.org

National Office404·935·6444www.lbda.org

LBD Caregiver 1·800·LEWYSOS (1·800·539·9767)support@lbda.org