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My bleeding disorder didn’t stop me...

Have you or your family ever thought that youcouldn’t do something because of your bleedingdisorder? Only to find out that you can?

Have you been on an adventure? An excitingbike-ride? Rock climbing? Horse riding? Anactivity weekend?

We want to hear from you.

We want you to a write a story of no more than 800 words. Tellus about any exciting or memorable experiences you’ve hadwhilst living with a bleeding disorder. Whether it be aboutyourself, or a member of your family, tell us about a time wherea bleeding disorder didn’t stop you.

The competition is open to all Under 14s. Send your story to ouroffice or e-mail it to Claire (contact details at the back of thismagazine). The winning story will feature on the Young Bloodswebsite and in our spring magazine.

The competition closes on 28th February 2013 and winnerswill be contacted directly.

In this edition of HQ we have two great competitions for all youbudding writers or artists. This is your chance to win vouchers tospend in the New Year. We also have information on somefun-packed activity weekends and camps we have coming up in thenext year.

Writing Competition

WIN

Time to get writing

Artist Competition

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Are you an aspiring artist? Would you like to see your designused as part of a national campaign? Would you like to help usraise awareness? This is your chance.

We would like you to design a campaign poster. The poster is toraise awareness about how people in other parts of the world do nothave access to enough treatment. It should mention the UK’streatment, and how we want to ‘close the gap’ for other countries.

The winner will feature as part of the Haemophilia Society’sawareness raising work for World Haemophilia Day 2013.

Here are some facts to get you started on your poster:

� An estimated 6.9 million people are living with a bleedingdisorder. Of these, 75 per cent remain undiagnosed and receiveinadequate care or no care at all.

� A child growing up with a bleeding disorder in a developingcountry may suffer needlessly, experiencing the cripplingeffects of untreated bleeds. They often miss days of school ordon’t attend school at all.

� We want to urge governments around the world to be true tothe theme “close the gap” and ensure treatment for everyone.

Even more information is available on the World Federation of Hemophilia website – www.wfh.org.

The competition closes on 31st January and is open to Under-16s.You can design your poster by hand or on the computer, on one sideof A4 paper. Send it to the Haemophilia Society office, or e-mail itto Claire by the 31st January 2013 (contact details are at the backof this magazine). Please remember to include your name, age andaddress with your poster. Winners will be contacted directly.

“Close the Gap”

Activity Weekends

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This year we’ll be running two activity weekends. Meet up with friendsyou made last year or come make new friends and try some excitingactivities.

At the activity weekends you will meet other young people withbleeding disorders. You can get involved with activities such asabseiling, kayaking, raft building, archery, zip wire and team building.We have lots of Youth Leaders coming on the activity weekends. Theyeither have a bleeding disorder or have someone in their family whohas one. The Youth Leaders will get involved with the activities, andare there to support you and help you try new things. But most of all,they are there to help you have fun!

All Haemophilia Society events are open to any child in a familyaffected by bleeding disorders. That means that siblings are welcometoo.

For more information, please contact Claire. Contact details are at theback of this magazine.

There will be a weekend for 8to 12 year olds at PeakVenture, Kingswood centre,South Yorkshire from Friday

24th May to Monday 27th May2013.

The second weekend will be for13 to 16 year olds at Dalguise,

Perthshire, Scotland PGLcentre from Friday 26th July

to Monday 29th July 2013.

With so muchto try why notcome along?

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Barretstown is a charity which runs a specially designed camp inIreland, providing Therapeutic Recreation programmes. These are forchildren with serious conditions and illnesses, and their families.Children with bleeding disorders are welcome to take part in theirChildren & Teen Camps in the summer or their Family Camps in thespring and autumn.

Barretstown has offered us several places in their camps throughoutthe year that we thought you might be interested in. For dates pleasevisit www.youngbloods.org.uk or contact Claire.

Barretstown will book and cover your flights and everything onwards.You only need to organise and pay for getting to and from the airport.

You can find out more about what they do at www.barretstown.org. Ifyou’d like to find out more or book your place please contact:

Family Liaison Department l Barretstown T: +353 (0) 45 863 147 E:lucia.prihodova@barretstown.org

Vicky Sutton-SmithThe Haemophilia Society

Outgoing Children & Families Officer

Claire Treguer claire@haemophilia.org.ukChildren & Families Officer

The Haemophilia Society