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For Scotland’s Disabled For Scotland’s Disabled ChildrenChildren

The story so far…..FSDC Relaunch Event 3rd October 2013

Jan Savage, Head of Campaigns and Policy, ENABLE Scotland

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What we’ll coverWhat we’ll cover

• History of FSDC

• Interim Coordination Group

• Results of membership survey

• FSDC Governance Arrangements

• Future Priorities

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FSDC in 2008FSDC in 2008

• Network of parents and organisations

• Set up in 2008

• Project Lead, Administrator, host organisation – Contact a Family

• 3 year budget from 2009 - £328k

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FSDC in 2012FSDC in 2012

• End of project funding in March 2012• No staff• Parental Participation Project funded via

Children in Scotland• Where next for FSDC?• Interim Coordination Group set up

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Members of ICoGMembers of ICoG• Don Williamson, Shared Care

Scotland• Cathy McGee, Dyslexia

Scotland• Anne Wilson, Action for Sick

Children• Sophie Pilgrim, Kindred• Donna Tomlin, Contact a Family • Mig Coupe, Mindroom

• Salena Begley, Family Fund• Jan Savage, ENABLE

Scotland• Paul Mullan, Quarriers• Willie Rutherglen, Parent• Fiona Lovett, Parent• Marion McLeod, Children in

Scotland (attended)

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Interim Co-ordination GroupInterim Co-ordination Group

• Convened in late 2012• Short life!• Tasked with identifying a new structure for

FSDC and bringing back to wider membership

• Identified 4 options for the future

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Option 1Option 1

• FSDC continues as a forum for parents of disabled children to access information about services, and to engage with decision makers directly to influence policy

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Option 2Option 2

• FSDC continues as a forum for young people with disabilities to access information about services and policy which affects them, and which gives decision makers an opportunity to engage with them directly

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Option 3Option 3

• FSDC continues as a network of organisations working with, and on behalf of, children with disabilities and their families to share information and build consensus opinion and influencing activity around relevant developments in policy and legislation

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Option 4Option 4

• FSDC formally disbands

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ICoG RecommendationICoG Recommendation

• Option 3 is the best way forward for FSDC

• What did FSDC members think?

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Survey Monkey ResultsSurvey Monkey Results

• 20 people/orgs responded

• 100% agreed that option 3 should be adopted.

• Voted on future topics for meetings and potential working groups

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StructureStructure• Should meet minimum of 4 x per year

• Meetings structured around policy agenda, with invited speakers

• Member orgs offer venues and allocate time for joint working

• Set up short life working groups to develop positions and organise influencing

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Parental EngagementParental Engagement• Memorandum of agreement with PPP• Member of CiS staff to attend all meetings as

observer• PPP supports parents reps to attend FSDC

group and working group meetings• PPP supports feedback to wider parent network

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Working TogetherWorking Together• Shared Set of Values and Principles across

PPP and FSDC• FSDC will identify Strategic Partners to

complement activity• ToR have been created for FSDC - member

orgs and Co-ordination Group members

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Topics for 2013/14Topics for 2013/14

• Children and Young People Bill (80%)• Additional Support for Learning (45%)• Self Directed Support (45%)

• Opportunity to feed into Government working groups

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Get Involved!Get Involved!

Any questions?