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Allergy & Asthma Network Asthma Coalitions Summit 2015

Tonya A. Winders, MBAPresident & CEO

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Who Are We?

“A patient-centered multidisciplinary network dedicated to ending needless

death and suffering due to asthma, allergies and related conditions through outreach,

education, advocacy and research.”

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Traditional System

• Fragmented Care• Reactive vs Proactive• Fee For Service---Volume Based• Significant Disparities• Substantial Social Determinants

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Emerging System

• Collaborative, Consistent Care• Proactive vs Reactive• Value Based Payment• Coordination to link clinical, social,

community orgs, public health & government programs

• Data Sharing

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Lack of Understanding Remains

• Chronic Conditions with Serious Risks• We Know What Works

◦ Diagnosis w Spirometry◦ Identification & Avoidance of Triggers◦ Good Treatments◦ Monitoring Tools

• Live Symptom Free

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Shared Decision Making

A collaborative process that allows patients and their providers to make health care

decisions together, taking into account the best scientific evidence available, as well as the

patient’s values and preferences.

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SHARE

• Seek Patient Participation & Communicate Options

• Help Patient Explore & Compare Options• Assess Patient Values & Preferences

What Matters Most?• Reach a Decision• Evaluate the Decision

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Outreach---ENGAGE• Personal—Health Fairs, Screenings, etc.• Professional---NASN, AAE, AAPA-AAI, ACAAI,

CHEST, AAP, AAAAI, AARC, NAEYC, ATS, ERS, NAPNAP, Industry Partners

• Government---EPA, CDC, Federal, State• Global Expansion◦ Secretary of GAAPP-33 orgs◦ Healthy Lungs for Life

• Public Relations---200+ placements with over 300M media impressions

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EDUCATE• Resources◦ Allergy & Asthma Today-quarterly

• 150,000 distribution• Reach: >2.5M per issue

◦ E-news-every 4 weeks• 70,000 distribution• Open Rate >50%; Click-thru Rate >26%

◦ Posters• >1M distribution per year

◦ Infographics & Bloggers

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EDUCATE• Multichannel

• Print• Digital• Online• Direct Mail• Broadcast Email• Social Media• Mobile Health Applications---Asthma Storylines & Asthma Explorers• Carebook Personalized Electronic Health Record

◦ Multilingual◦ Targeted to Audience-Professionals vs Personal

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EDUCATE• Programs

◦ Anaphylaxis Community Experts Program• 300+ teams• >100,000 events• 7M reached in past 5 years

◦ AAP Asthma, Allergy & Anaphylaxis Champions• 80+ Champions across US• >600 trained via PBL & >2000 trained via AAP

◦ Convenient Care Clinic & Pharmacist Training• >1200 trained via web

◦ Women Breathe Free• 50+ women empowered via telehealth

◦ Asthma Camp Educational Programming• >3500 campers

◦ Global Allergy & Asthma Patient Platform ◦ EPA-Indoor Air Quality & Climate Change

• CDC-Asthma Education & School-Based Asthma Management

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Advocacy---EMPOWER• Allergy Asthma Day on Capitol Hill---annually in May• Allergy & Asthma Congressional Caucus• Quarterly Congressional Briefings• Address Current Issues◦ Federal Legislation• School Asthma Management Act• Family Asthma Act• Telehealth

◦ State Legislation• Epinephrine Access• Asthma Program Funding

◦ FDA◦ FAA—Emergency Medical Kit

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Research---EMPOWER• Everyday Heroes Campaign• PCORI projects• Decision Mapping Project• Market Research Data◦HCP ◦Patients◦Caregivers

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Still Have Work To Do….

“To end the needless death and suffering due to asthma, allergies and related

conditions through outreach, education, advocacy and research.”

12 Americans Die Daily

ENGAGE***EDUCATE***EMPOWERHOW? SHARE