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European Cooperative Network for Research, Diagnosis and

Therapy of Parkinson´s disease

Health Economics

WP 5

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To create a system for review of the

health care economics of Parkinson‘s

Disease in Europe

Overall Objective

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• Descriptive analysis: how CARE of PD is

organized in Europe

• Burden-of-disease-analysis, Quality of Life and

Patient Preferences (utilities) of PD in Europe

Work package Health Economics

Overview

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To highlight the different European health system structures

it is necessary:

• to get an overview of the existing decision making processes

• to understand the consequences of these decision making processes

on the care of PD patients

• as a basis for interpretation of health-economic data from a national

and an European perspective

Objectives

Descriptive analysis how CARE of PD is organized in Europe

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• Instruments: Questionnaire (semi-standardized)

Desk-top research

Telephone research

• Interview: telephone or face-to-face

Who will be interviewed?

Health Authorities

Physicians

Patient‘s organizations

Nursing homes

Data collection - Step 1

Descriptive analysis how CARE of PD is organized in Europe

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Data collection - Step 2

Instruments Patient Hospital

Questionnaire X(10 min)

Questionnaire QoL X(5 min)

Questionnaire for Economicparameters

X(5 min)

X(5 min)

Clinical evaluation(incl. UPDRS)

X(20 min)

Burden-of-disease-analysis, Quality of Life and Patient Preferences (utilities) of PD in Europe

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Time Schedule

First StepDescriptive analysis: how CARE of PD is organized in Europe

March 2002 - May 2002: Interviews

May 2002: Analysis of data and first short report

Second StepBurden of disease study

June 2002 - December 2002

January 2003 Analysis of data and second report

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People involved

Marburg MERG Metronomia Medical Economics Research group

S. v. Campenhausen A. Smala O. Athen

A. Spottke K. Berger D. Meyer

H. Peter R. Köhne-Volland

R. Dodel

W.H. Oertel