a national gateway to self-determination funded by the us department of health and human services,...

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

funded by the US Department of Health and

Human Services,Administration on Children and

Families, Administration on Developmental

Disabilities1AUCD Pre-Conference Workshop9 November 2008



Introduction: National Training Initiative

GrantsJennifer Johnson

Administration on Developmental DisabilitiesAdministration for Children and Families

9 November 2008 AUCD Pre-Conference Workshop 2


funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesProcess for Identifying Priority

Areas Meeting of experts in February Major recommendations:

Primary topics Large-scale projects


funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesWhat do we mean by ‘scaling up

self-determination’

Developing tools for using self-determination knowledge: In multiple settings and contexts Across the age-spanBy various stakeholders



Essential Features

Coordination of efforts through partnerships. UCEDDs National organizations representing individuals with developmental disabilities,

parents and guardians, siblings, and culturally and linguistically diverse populations. Integration with other efforts with other national initiatives

To promote coordination Identify other entities implementing projects related to self-determination

Sustainability. An expected outcome is the sustainability of efforts past the five-year grant period. Ensure continued use of the training resources, updates and modifications to the

materials, and continued access to the materials by members of the public. Have a sustainability plan



Phase I: Research and Planning.

Gathering and analyzing information from current literature and on State and Federal initiatives

Identify promising models and practices; gaps and variance in information and potential areas for cross-collaboration with other national initiatives.

Planning for sustainability Products:

Summary of findings Final plan for Phases II and III, including the strategies that will be used to

sustain the project and the plan for integrating the project with other national initiatives.


funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Develop and Test a

National Training Program. Use evidence to develop and test a national training program Key features:

Be developed with input from individuals with developmental disabilities, including youth, young adults, and adults; and family members, including parents, siblings, guardians, and other relatives.

Use multiple traditional and non-traditional modalities to maximize accessibility and outreach, particularly to those who are hard to reach.

Be culturally competent in all aspects, including the modalities used. Promote the process of enhancing post-secondary education opportunities for

youth and young adults with developmental disabilities. Products:

The National Training Program Lessons learned from the pilot and strategies for adapting the National Training

Program to various contexts Follow principles of universal design



Phase III: National Implementation and Transition

to Sustainability. Partnering with the ADD Technical Assistance Centers

and other national organizations for large scale, nationwide implementation of the National Training Program.

Utilize traditional and non-traditional marketing strategies to maximize outreach.

Transition to maintenance of the project over time.


funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesOverview of Gateway to Self-

Determination

Carl CalkinsAndy BaconTamar Heller



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesBeliefs

Key to this initiative are the beliefs upon which this

grant was developed – that development of self-

determination is:a lifelong process, a means to obtaining an improved quality of life, Viewed in a social-ecological framework,Guided by research to practice,and most importantly – that people with

developmental disabilities must be equal partners in the process.

10AUCD Pre-Conference Workshop9 November 2008



Goal

The overall goal of this project is “to establish a

sustainable, evidence-based training system that enhances

self-determination training programs that lead to quality

of life outcomes for individuals with developmental

disabilities throughout the lifespan.”

11AUCD Pre-Conference Workshop9 November 2008



AUCD Pre-Conference Workshop 12



DD Act Definition of Self-Determination Activities

Activities that result in individuals with developmental disabilities, with appropriate assistance, having:

the ability and opportunity to communicate and make personal decisions; the ability and opportunity to communicate choices and exercise control over

the type and intensity of services, supports, and other assistance the individuals receive;

the authority to control resources to obtain needed services, supports, and other assistance;

opportunities to participate in, and contribute to, their communities; and support, including financial support, to advocate for themselves and

others, to develop leadership skills, through training in self-advocacy, to participate in coalitions, to educate policymakers, and to play a role in the development of public policies that affect individuals with developmental disabilities. AUCD Pre-Conference Workshop 13




Carl F. Calkins, Ph.D., Co-PIUniversity of Missouri Kansas City Institute for Human Development (UCEDD)

Michael Wehmeyer, Ph.D., Co-PIKansas University Center on Dev Disabilities (UCEDD) at the University of Kansas

UCEDD Leadership Consortium

Andy Bacon, Ph.D.Westchester Institute for Human Development (UCEDD) at New York Medical College

Tamar Heller, Ph.D.University of Illinois ChicagoDept of Disability and Human Development (UCEDD)

Hill Walker, Ph.D.University of Oregon Center on Human Development (UCEDD)



AUCD Pre-Conference Workshop 15


funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesAlliance Members

Self-Advocates Becoming Empowered the Association of University Centers on Disability including the

Council on Community Advocacy the National Leadership Consortium College of Direct Support/Minnesota UCEDD National Association of Councils on Developmental Disabilities National Disability Rights Network National Association of State Directors of Developmental

Disabilities Services the National Sibling Network National Family Voices including Kids as Self-Advocates



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesSelf-Determination Across the Lifespan

Early Childhood School Age Adult Aging



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesSelf-Determination and Key

Players in an Individual’s Life

Families Siblings Direct Support Workers Educators



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase I: Overview of Planned Activities

Approach to Literature Review Life Chances Planning Tool Mapping gaps in curricula and lack of access National Self Determination Guide




Phase I: Discussion and Feedback

What types of SD training are available for self-advocates, parents, sibling, providers, or others in your state/community? What’s working and what’s not?

Who are the people that are most in need of training that are not being reached and why?



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Overview of Planned Activities

Overview of planned specialty curricula to be developed

Examples: Abuse and Neglect, Siblings




State Demonstrations

Complete an SD Self-Assessment Identify Needed SD Curricula Develop Implementation Plan Form State SD Supporting Coalitions Evaluate Outcomes



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesGateway Web Portal

Dynamic Website History of Self-Determination movement and research SD Curricula Products Technical Assistance Resources Evidence-Based Practices Technology Supported Training Video Vignettes, Lectures SD Capacity Building Handbook Implementation Manuals Evaluation Frameworks



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPlanning Training Delivery Methods

Innovative Uses of Technology

Self-Advocates as Trainers



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase II: Discussion and Feedback

What is the best way (ideal methods) to provide SD training to self-advocates, parents, sibling, providers, or others (e.g. technology, self-advocates as trainers)? In your experience, what works and what doesn’t work?

Laura highlighted the planned components of a SD Gateway Online Portal, what features do you perceive to be the most beneficial and what else should be included?



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase III: Overview of Planned Activities

Marketing Sustainability Implementation Diffusion



funded by the US Department of Health and Human Services, Administration on Developmental DisabilitiesPhase III: Feedback and Discussion

Do you know of any projects providing self-determination training that we should contact and coordinate our efforts with?

If we were all to meet here again in 5 years to share the many successes of this project, what one outcome would be most important to you?




Thanks for attending.

We appreciate your interest and input.




This document was supported, in part, by a cooperative agreement from the

Administration on Developmental Disabilities, Administration for Children

and Families, Department of Health and Human Services. Grantees

undertaking projects under government sponsorship are encouraged to

express freely their findings and conclusions. Points of view or opinions do

not, therefore, necessarily represent official Administration onDevelopmental Disabilities policy.”


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