alc orientation call 4 18

7/29/2019 ALC Orientation Call 4 18

1/44

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

AgendaName Activity Time

Myra Rosen Reynoso/Treeby Brown Introduction to ALC 1:00-1:05

Melody Cherny Introduction to AMCHP and ALC

model/Icebreaker

1:05-1:10

Marilyn Hartzell (Oregon) Lead State -- Oregon 1:10-1:15

Norma Marti (North Carolina) Lead State -- North Carolina 1:15-1:20

Indiana Program description 1:20-1:25

New Hampshire Program description 1:25-1:30

New Mexico Program description 1:35-1:40

Rhode Island Program description 1:40-1:45

Myra Rosen Reynoso/Treeby Brown Next steps

Planning of onsite meetings

Other ALC activities

Payment and contracts

Contact information

1:45-2:00


2/44

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

ALC Model

Used by AMCHP since 1996 to address various issues (e.g. Medicaid &

SCHIP reform, smoking cessation, perinatal HIV transmission, perinatal

disparities)

Strengthens partnerships/promotes collaboration at state level and

improves family health programs

Brings together multidisciplinary teams for an 18-24 month period to:

Analyze a problem in MCH

Identify resources

Apply problem-solving techniques to an issue

Review promising practices from other teams

Create plans to address specific public-health issues


3/44

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs

Action Learning Collaborative

Introduction to the Latino ALC

Increase awareness and knowledge of the ease-of-use of services

for Latino families and role of Title V CYSHCN implementation

Build capacity of state health, parent and education agencies to

collaborate to strengthen ease-of-use for Latino families efforts

Build capacity of state health agencies to integrate efforts to makeservices easier to navigate for Latino families

Help build capacity to enable states to more effectively address the

ease-of-use of services for Latino families;

Facilitate change in knowledge, attitudes, practices and policies

Present lessons learned


4/44



Oregon

Team Lead

Marilyn Hartzell


5/44



North Carolina

Team Lead

Norma Marti


6/44



North Carolina NC DHHS-Division of Public HealthWCHS

Children & Youth Branch (4 Units)

Best Practices Unit

Child Health Data Collection and Management

Commission on Children with Special Health Care Needs

Disability and Health

Local Child Fatality Prevention Teams - Part of NCs Child FatalityPrevention System

Quality Assurance - Child Health Program Review and Sub recipientMonitoring

Children with Special Health Care Needs Help Line Innovative Approaches: Systems of Care for CSHCN

http://www.ccofsp.com/innovative-approaches

Branch-Family Partnership
http://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approaches


7/44



North Carolina NC DHHS-Division of Public HealthWCHS

Children & Youth Branch (4 Units)

Genetics and Newborn Screening Unit

Clinic Services for Children with Special Health Care Needs(Craniofacial and Cochlear Implants for CSHCN)

Early Hearing Detection and Intervention Services

Genetic Counseling Services

Newborn Metabolic Screening Services

Maternal Serum Alpha Feta Protein Screening


8/44



North Carolina

NC DHHS-Division of Public HealthWCHS

Children & Youth Branch

Health and Wellness Unit

Childcare Health Consultation

Maternal, Infant, and Early Childhood Home Visiting Program

Health Check & NC Health Choice Outreach

N.C. Child Fatality Task Force - Part of NCs Child Fatality

Prevention System Newborn Home Visit Services

Parenting Education Consultation

Child Health Care: Exams and Treatment for Children


9/44



North Carolina

NC DHHS-Division of Public HealthWCHS

Children & Youth Branch

School Health Unit

Kindergarten Health Assessment

School Nurse Consultation and Support

School Health Center Consultation and Support

School Nutrition Consultation and Support

Transitioning Children with Special Health Care Needs fromPediatric to Adult Care

Policy and Reporting by School Health Centers


10/44



Some of Our Partners Across NC

Exceptional Childrens Assistance Centerhttp://www.ecac-parentcenter.org

NC Family to Family Health Information Center

Autism Society of NChttp://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644

Spanish-speaking Parents Support Groups

Mexican Consulate: Ventanilla de Salud

Office of Minority Health and Health Disparities

BEGINNINGS, INC.

NC Pediatric Society

Community Care of North Carolina
http://www.ecac-parentcenter.org/http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.ecac-parentcenter.org/http://www.ecac-parentcenter.org/http://www.ecac-parentcenter.org/


11/44



Successes to Date

Views of a Medical HomeSix Families Share their Stories

Kikche-Spanish-English-speaking family with daughter who is deaf

Spanish-Language Parent Directory

EHDI team

Autism Society of NC

Training of C&Y staff

Updates on HC/NCHC

Branch Family Partnership


12/44



Barriers

Involving Spanish-speaking families in

boards/meetings for families with CSHCN

Language

Transportation

Understanding state systems

Documentation

Silos Turf-doms

Sharing Resources


13/44



Brainstorming about ALC

Share Francisco, Ilda and Stephanies

Medical Home story with more providers

across the state?

Sequel? On FB? As a Podcast?

Create a resource directoryas an Intranet for

internal use across our four units.


14/44



CONTACT INFONorma Marti, Minority Outreach Consultant

[email protected] 919-707-5643

Michael Sanderson, Best Practices Unit Manager


Marshall Tyson, Health & Wellness Unit [email protected] 919-707-5640

Carol Tant, Head, Children & Youth Branch


NC DHHS, DPH, WCHS, Children & Youth Branch

5601 Six Forks Rd. MSC 1928

Raleigh, NC 27699-1928
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]


15/44



Indiana

Team Lead

Kimberly Minniear


16/44



Indiana Action LearningCollaborative

Childrens Special Health Care Services


17/44



Program Activities ALC Team cultural-competency training and other training opportunities

relevant to assist with planning

The IU School of Medicines Department of Public Health offers free trainings each

month on a variety of topics, including logic models and evidence-based programming

In-Depth review of the Sunny Start Initiative (ECCS Program) Program will serve as a potential blueprint for the ALC Team plan

Develop a work plan for the team to ensure efficiency

Form subcommittees to work on specific topics, if needed

Review existing resources for Latino families and data pertaining to the

population (i.e. needs assessments, reports, materials, etc.)

Identify and establish additional collaborative partnerships


18/44



Overarching Goals

Create a strategic plan for ease of use of

services for Latino families who have CYSHCN

Develop an implementation schedule for the

developed strategic plan


19/44



Short & Long Term Outcomes Increased coordination of resources that are family-centered

and linguistically and culturally competent

Expand stakeholder awareness and access to necessary

informational resources

Support public and private partnerships and create a cross

agency infrastructure for training and technical assistance

Sustainability of efforts


20/44



Partners Title V, Childrens Special Health Care Services

About Special Kids (ASK)

Family Voices Indiana

Early Childhood Comprehensive System: Sunny Start American Academy of Pediatrics (AAP), IN Chapter

IN Commission on Hispanic and Latino Affairs

IN Latino Institute Latino Coalition Against Domestic and Sexual

Violence, Inc.


21/44



Barriers

Organizational

Initial coordination of ALC

Team schedules

Members of ALC Team are thePresidents and Directors of

their organizations

Sustaining efforts

Determining the best way to

leverage funds among eachorganization involved

Population

Reaching undocumented

Latino residents in the state

Incorporating communityhealth workers may be an

option

Gaining trust from the

Latino community

Will take time to gain with the

help of the Latino

organizations involved


22/44



Evaluation MethodsLevel 1

Monitor for completion and efficacy

and how well Indiana implemented

strategic plan

Points to consider:

Baseline data before and after

implementation on the individual

community, and state level

Are resources being used more efficiently

and without duplication?

Are services coordinated, cost effective,

and community-based? Is there more opportunity for

improvement?

Did we accomplish what the plan stated?

Level 2

Determine whether or not any

Indiana families are better off as a

result of the plan implementation

Points to consider:

Was there an increase in the number of

Latino families of CYSHCN that received

health and community-based resources?

Was there an increase in health insurance

coverage for undocumented families?

Did the activities make it possible for more

families to access quality, comprehensiveservices?

Are there fewer reports of Latino families

of CYSHCN not being satisfied with the

services they are receiving?


23/44



New Hampshire

Team Lead

Elizabeth Collins


24/44



NH Program Activities/Description

The Action Learning Collaborative team will begin to

identify the communication that is needed by families of

Latino CYSHCN to avoid lapses in coverage as major

changes are made to the NH Medicaid and CHIP programs. The Team will create the materials needed (taking into

effect factors of health literacy), arrange for appropriate

translation and plan dissemination of the materials.

Community forums will be developed and held as well to

meet families where they are at.


25/44



Goals/Outcomes To identify messages and information related to the

upcoming changes to NH Medicaid /CHIP that need to be

effectively communicated to the families of Latino CSHCN

To identify and utilize both culturally sensitive and

linguistically appropriate modalities for widespread

dissemination of this information.

Latino families of CSHCN, community providers and

health care providers will have a shared understanding ofthe changes to Medicaid and CHIP that are integral to

uninterrupted and accessible health care.


26/44



Partners

Special Medical Services Title V CYSHCN

agency

The Office of Minority Health and Refugee

Affairs

The Office of Medicaid, Business and Policy

NH Family Voices

Child Health Services Community Health

Center


27/44



Barriers to ease of use of services for Latino families

Nationally, 21.5% of children overall have public health insurance coveragealmost twice that percentage, 38.3%, of children of Hispanic ethnicity are

covered by public insurance.

An even higher percentage of NH CSHCN of Hispanic ethnicity rely on public

insurance for their healthcare needs: 43.9% have only public insurance and an

additional 20.9% have public and private health insurance. Reinforcing the needfor ensuring and maintaining uninterrupted access to public insurance.

In the area served by CHS, the percentage of families with children under 18

who live below poverty level has doubled in 15 years. In 2010, 717 parents had

a country of origin other than the United States. Spanish speaking families

comprise the largest group (Mexico, Central America and the Caribbean).Currently, it is anticipated that 102 CSHCN of Latino families are directly

connected to Child Health Services.


28/44



Evaluation methodsThe Action Learning Collaborative Team will evaluate success as follows:Existing tools facilitating ease of use for NH families of Latino CSHCN will

be detailed and inventoried.

New tools that are developed will be added to the inventory.

Participation in the Team meetings will be tracked and recorded.

A spectrum of resource materials will be developed and disseminated the distribution of these materials will be recorded and reported.

An evaluation tool will be developed and all Community Forum

participants will be asked to rate the impact of the forums and their level of

understanding of services based on participation in the Forums.

When surveyed community providers and other family advocates willresult in their reporting

an increased level of confidence and comfort in answering families

questions about the changes to Medicaid and CHIP.


29/44



New Mexico

Team Lead

Susan Chacon


30/44



New Mexico

Improving services for Latino families who have

children with the following conditions:

Obesity

Metabolic syndrome

Diabetes


31/44



Goals/Outcomes

To develop culturally and linguistically

competent educational material to address

the health issues we are targeting.

To distribute these materials to primary care

providers, WIC clinics, CMS clinics to be used

during counseling sessions with clients.

To improve health outcomes for Latino children

with targeted health issues.


32/44



Program Activities

Facilitate 2 focus groups in 2 different Regions

in the State with high rates of Latino children

identified with targeted health indicators to

develop educational/counseling materialsspecific to culture and language

Develop education/counseling materials

Distribute to primary care providers, CMS staff

and WIC clinics


33/44



Partners

Childrens Medical Services (CMS) the Title V

CYSHCN program-lead agency

NM AAP Chapter

Parents Reaching Out (PRO) the F2F and

Parent Training Center

MCH Collaborative-MCH funded programs in

the state


34/44



Barriers in New Mexico

High poverty rates

Rural nature of the state

5th largest state geographically (impacts

transportation)

Fragmented health care system

Pediatric specialists located in the urban metro area

in the central part of the state Issues around immigration status


35/44



Evaluation

Survey primary care providers to evaluate

effectiveness of intervention

Survey families to evaluate effectiveness of

intervention

Focus group with CMS Nutritionists to review

intervention and revise process as indicated


36/44



Rhode Island

Team Lead

Deborah Garneau


37/44



Program Activities

Emerging leaders in community complete leadership training.

Leaders then trained in community resources to become peer

navigators.

Peer navigators will connect with parents through schools andconnect them to resources.

School personnel receive training on sustaining volunteers

and recruiting new volunteers.

A health and education resource fair will introduce peer

navigators to the community.


38/44



Goals Outcomes

Ease of use of

community resources

through the use of peer

support model. Create a system for

sustaining peer

navigators through

recruiting and trainingnew peer navigators.

Latino families will

access services more

easily as a result of peer

support. New emerging leaders

will be identified in the

community.


39/44



Partners

Rhode Island Department of Health

Central Falls School District


40/44



Barriers

Building a system of communication between

partners and parents in community.

Need to establish a level of trust.


41/44



Evaluation Methods

System will be in place for connecting families

with peer navigators.

Develop method for tracking connections to

resources.


42/44



Next Steps

Site visits

Next call

Budget/finance

Contact information


43/44



Budgets/Finance


44/44


Contact Information

AMCHP

Treeby Brown

[email protected]

Melody Cherny [email protected]

(202) 266-3049

National Center for Ease ofUse

Myra Rosen-Reynoso

[email protected]

617-287-4370

Jackie Bialo

[email protected]

617-287-4349

Nerlie Ogilus (for finance

questions) [email protected]

617-287-4346
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]

alc orientation call 4 18

Documents