all-ukrainian network of plwh advocating accessibility and ......2010/05/02 · all-ukrainian...
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All-Ukrainian Network of PLWHadvocating accessibility and
quality of treatmentquality of treatment
Dmytro SherembeyCoordination Council MemberCoordination Council Member
All-Ukrainian Network of PLWH
1995 20001995-2000• HAART (antiretroviral
treatment)• No access
• Diagnostics (viral load, extrapulmonary • No accessyTB, opportunistic infections) • No access
• ST (substitution therapy)
• No access
therapy)• Stop TB Program • No access
NO CHOICE!NO CHOICE!
MORTALITY
75% of HIV positive people in Ukraine die from Tuberculosis
PROBLEMS OF PLWH WITH TBlooking for solutions
- Zhenya, 30 years old- HIV+- Diagnosed with
extrapulmonary TBextrapulmonary TB- Was refused a surgery
I tit t f Phthi i l- Institute of Phthisiology can’t say how long he
ill i f ith twill survive for without a surgery
1 year fight for the right to have a surgery
C d• Correspondence with clinics
• Meetings with chief physiciansp y
• Meetings with surgeonssurgeons
EVERYONE REFUSED
In the spotlight of Channel 5In the spotlight of Channel 5
At i t f TV• At gunpoint of TV cameras chief physician of thephysician of the Institute of Phthisiology of KyivPhthisiology of Kyiv pledged to perform a surgery on Zhenya.g y y
Zhenya todayZhenya today• ALIVE• Married• Married• Has a daughterg• Engaged in arts• Enjoys life
Reasons and consequences of discrimination of PLWH
with TBwith TB
HIV, TB, DRUG DEPENDANCE- not hospitalized
refused treatment- refused treatment- refused diagnosticsrefused diagnostics- no referrals to specialized clinics
Reasons and consequences of discrimination of PLWH with TB
- Disclose information to other healthDisclose information to other health professionals
- Refuse surgical help- Mark patient cardsMark patient cards- Refuse in admission to hospital
BUT IF YOU WERE LUCKY AND WERE ADMITTED
Hospital conditionsp
- Bad nutrition- Same room with
open form TBopen form TB patientsNo medications- No medications
- Terrible sanitary diticonditions
- No ventilation
SOLUTIONSOLUTION- We advocate for equal access to medical q
helpFor the right for anonymity and- For the right for anonymity and confidentiality
- For access to substitution therapy programsprograms
- For humane treatment conditions
- For understanding and respect
2000 20082000-2008• HAART (antiretroviral
treatment)• Partial access
• Diagnostics (viral load, extrapulmonary • Partial accessyTB, opportunistic infections) • Partial access
• ST (substitution therapy)
• Partial access
therapy)• Stop TB Program • Partial access
NEW CHALLENGESNEW CHALLENGESAb f i t t d h t t t t f- Absence of integrated approach to treatment ofTB, HIV and DRUG DEPENDANCE
- Number of people covered by programs: Substitution therapy - 5% in need 95%Antiretroviral therapy – 39% in need 61%Diagnostics - 3% in need 97%Diagnostics 3% in need 97%
OUR GOAL 100% 100% LIFEOUR GOAL 100% = 100% LIFE
2009 and Beyond2009 and Beyond
• HAART (antiretroviral treatment)
• Diagnostics (viral load, extrapulmonaryyTB, opportunistic infections)
• INTEGRATED SERVICES
• ST (substitution therapy)
S C S
therapy)• Stop TB Program
Moving force of changeMoving force of changeUnited by ideaUnited by idea
Full of activism
Selflessly protecting their rights
“CIVIL SOCIETY”CIVIL SOCIETY”
All-Ukrainian Network of People Living with HIV/AIDS
NETWORKNETWORK
ALL-UKRAINIAN NETWORK OF PLWH
www network org uawww.network.org.ua
WE STAND FORWE STAND FOR EQUAL RIGHTSEQUAL RIGHTS
FOR LIFEFOR LIFE