april 2011 president’s message - raleighuoa.org · fellows, woc nurse from duke, visited with...
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Triangle Area
Ostomy
Association
Happy Spring!!!! I hope you all are enjoying this beautiful
weather we have been having. I know the girls and I look
forward to our daily walks with the cool breezes, birds
chirping, and warm sunlight.
This message will be short, because my computer has a bad virus. Have
to get this printed quickly before we reload everything. This is so not a
fun task but happy that my husband is taking care of it for us.
Looking forward to seeing you all on Tuesday for one of our most fun
meetings. If you‟ve never had the pleasure of listening to Terri speak,
you don‟t want to miss this one.
Jennifer Higdon, President
President’s Message:
Triangle Ostomy Association Membership Application
Name __________________________________ Today‟s Date: ___________
Spouse‟s Name _______________________________________________________
Mailing Address _____________________________________________________
Phone Number: ______________________________________________________
Email: ______________________________________________________________
[ ] I would like to receive the newsletter by email
I have a Colostomy _____ Ileostomy _____ Urostomy (Ileal conduit) _____
Other _____ Year of Surgery __________
I am not an Ostomate, but would like to be a member and support the organization ____
I cannot afford the dues but would like to be a member ____ (Confidential)
We welcome for membership ostomates and other persons interested in the in this group
and its activities and appreciate the help they can provide as members. To join, complete
the above form and send it with a check or money order for $20.00 made out to Raleigh
Chapter of UOA and mail to Mrs. Ruth Rhodes, 8703 Cypress Club Drive, Raleigh, NC
27615. Dues cover membership in the local chapter, including a subscription to the local
By-Pass publication and help support the mission of our organization.
April 2011
8703 Cypress Club Drive
Raleigh, NC 27615
NEXT MEETING: Tuesday, April 5 , 7:30 pm Rex
SPEAKER: Terri Kuczynski – Family counselor at Rex Cancer Center
MEETING INFO:
Meetings are held the first Tuesday of each month
(except July and August) at 7:30 PM in the Rex Sur-
gical Center Waiting Room, 4420 Lake Boone
Trail, Raleigh, NC. Enter through the Rex Hospital
Main Entrance, which is near the Parking Garage.
REMINDER:
In the event of inclement weather on the day of a
scheduled meeting, please contact Rex Healthcare at
919-784-3100. If Wake County schools are closed
due to weather, then we will not meet.
GROUP OFFICERS AND CONTACT INFO:
President/Editor: Jennifer Higdon 919-333-4923
VP: Jeff Burcham 919-847-9669
Secretary: Bonnie Sessums 919-403-7804
Treasurer Ruth Rhodes 919-782-3460
Past President: Dan Wiley 919-477-8363
Webmaster: Ed Withers 919-553-9083
Member Support: Susie Peterson 919-851-8957
Alison Cleary 919-387-3367
Member Support: Shirley Peeler 919-787-6036
Donald Meyers 919-781-0221
Website: www.RaleighUOA.org
Email: TriangleUOAA@EmbarqMail.com
IN THIS ISSUE:
Reno Page 3
Air Travel Page 4-5
Travel Card Page 6-7
Food Chard Page 8
Tips and CCFA Page 9
Minutes Page 11
DISCLAIMER
Articles and information printed in this
newsletter are not necessarily endorsed by the
Triangle Ostomy Association and may not be
applicable to everybody. Please consult your
physician or WOC Nurse for medical advice
that is best for you.
MISSION of the Triangle Area Ostomy Association:
The mission of our organization is to assist people who have or will have intestinal or urinary diversions:
including a colostomy, ileostomy, urostomy, and continent diversions including j-pouches. We provide
psychological support, educational services, family support, advocacy and promote our services to the
public and professional communities.
2
CALENDAR OF EVENTS:
April 1 April Fool’s Day
April 17 Palm Sunday
April 18 Passover
April 22 Good Friday
April 22 Earth Day
April 24 Easter
CCFA SUPPORT GROUP
Date: Third Monday of every month
Time: 7:30 pm – 9:00 pm
Place: Rex Healthcare
Contact: Reuben Gradsky
reuben513@yahoo.com
MINUTES OF THE March 1, 2011 MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION
After enjoying delicious refreshments brought by Sam Bundy, Jeff
Burcham, Vice President, opened the meeting at 7:40 PM by welcoming 23+
members and guests, including our President, Jennifer Higdon, and special
guests, Ella and Emma! Ella and Emma are now four months old and
absolutely precious! We all enjoyed being able to see them and watch them
interact with all of us. Jennifer and the girls had to leave at 8:00 for bed time
at 8:30! Thank you so much, Jennifer, for sharing them with us! Jeff welcomed six visitors and everyone introduced themselves and, if
they had an ostomy, said which kind and how long they had had one. He then
turned the meeting over to Stephanie Yates and she introduced the other WOC
nurses and everyone divided into groups by ostomy type. Stephanie and Jane
Fellows, WOC nurse from Duke, visited with members with ileostomies;
Angela Richardson, WOC nurse from Duke, visited with members with
urostomies; and Joanna Burgess, WOC nurse from Wake Med, Cary, visited
with members with colostomies. Caregivers joined in the groups with their
partners or children. After wonderful group sessions, Stephanie announced that Terri
Kuczynski, Family Counselor at Rex Cancer Center, will be the speaker at
the April meeting. Jeff thanked everyone for coming and Sam Bundy for the
delicious refreshments. The meeting was adjourned at 9:00 PM. The April meeting will be at 7:30 PM on Tuesday, April 5 with
Blanche Bahamonde providing refreshments.
Respectfully submitted,
Bonnie Sessums
11
WOC Nurses
3
Wake Med
Leigh Ammons 919-350-5171
Melanie Johnson 919-350-5171
Wake Med, Cary
Joanna Burgess 919-350-5231
UNC Hospital
Michael Kalos 919-843-9234
Barbara Koruda 919-843-9234
Lara Leininger 919-843-9234
John Worsham 919-843-9234
Durham Regional
Tom Hobbs 919-470-4000
Felicia Street 919-471-4561
Duke Jane Fellows 919-681-7743
Michelle Rice 919-681-2436
Angela Richardson 919-681-2425
Leanne Richbourg 919-681-6694
Stephanie Yates (wound) 919-668-0124
Duke Health Raleigh Hospital
Krys Dixon 919-954-3446
Maria Parham Hosp.
Kathy Thomas 919-431-3700
Durham VA Center
Mary Garrett 919-286-0411
Reba Giles 919-286-0411
Rex Hospital
Ann Woodruff 919-784-2048
Susan Beyer 919-784-2048
JOIN US in
RENO
August 7—11, 2011
John Ascuaga’s
NUGGET
www.janugget.com
Rooms start at US$79 - Single/double + tax. Free shuttle from Reno airport (RNO)
For Hotel Reservations:
o Telephone 800-648-1177 and mention “GOSTOMY”
o On-line at www.januggetsecure.com/jump/1052/
For Conference Registration: (for more info E-mail UOAA at oa@uoaa.org
o Fee before June 15 ... $90 single, $50 spouse; after June 15 ... $110 single
and $70 spouse
o Use the form in the Spring Issue of The Phoenix magazine, or
o On-line at www.UOAA.org
Featured Events Include,
o 8th – First Timers Orientation and Coloplast sponsored Reception; First
Night Ceremonies and Hollister sponsored Fashion Show and Welcoming
Social
o 9th thru11th,- FREE Stoma Clinic consultations with WOCNurse (by
appointment)
and Hospitality Room
o 9th - Awards and Keynote speaker; Edgepark Sponsored “Ostomy Basics”
workshops; Exhibition Hall; Spouses Chat; ConvaTec sponsored GALA
Evening
o 10th – Traditional Nu-Hope sponsored “Fun Run”; Hollister sponsored
medical presentation; Free Box Lunch in the Exhibition Hall; Visitor
Training Program
o 10th thru11th - Educational Workshops of special interest to:
All attendees; 30+; Young Adults; those with Continent Diversions; gay and
lesbian ostomates; ostomy support group leaders
o 11th – Closing Ceremony with motivational send-off and Conference
photographic wrap-up; Reception followed by Dining and Dancing with live
music at the closing Banquet
10
2011 Take Steps for Crohn's & Colitis
Raleigh, NC
Walk Date and Time: June 18, 2011
Registration Start: 4:00 PM
Walk Start: 5:00 PM
Walk Location: Durham Bulls Athletic Park
Local Contact: Nicole Pielech
npielech@ccfa.org
Call: 646.300.2906
TIPS FOR HEALTHY COMFORTABLE AIR TRAVEL www.asma.org
PLAN AHEAD:
BE SURE YOUR IMMUNIZATIONS ARE CURRENT.
DELAY YOUR TRIP IF YOU ARE NOT WELL.
RESERVE A SEAT BY THE WING IF YOU ARE PRONE TO AIR SICKNESS.
SEEK THE ADVICE OF YOUR PHYSICIAN IF THERE IS ANY QUESTION.
ALLOW AMPLE TIME TO CHECK IN AND REACH YOUR DEPARTURE GATE.
CARRY YOUR MEDICATION WITH YOU.
WEAR LOOSE, COMFORTABLE CLOTHING AND COMFORTABLE SHOES
THAT HAVE BEEN WORN PREVIOUSLY.
INFLIGHT
EAT LIGHTLY.
DRINK WATER AND FRUIT JUICES.
DO NOT PLACE ANYTHING UNDER THE SEAT IN FRONT OF YOU SO YOU
CAN STRETCH AND EXERCISE YOUR LEGS.
STAND AND WALK ABOUT THE CABIN PERIODICALLY.
RELAX AND ENJOY YOUR FLIGHT.
EFFECTS OF ALTITUDE
Although aircraft cabins are pressurized, that pressure (called barometric pressure) is less than
that on the ground. For most flights the cabin pressure is the same as that at 5,000 - 8,000 feet
above sea level. In other words, when you are flying, the atmosphere within the aircraft is like
that on the 5,000 - 8,000 feet peak of a small mountain. This has two effects: there is less oxygen
available because the pressure of oxygen becomes lower; and, gas within our body cavities
expands. Both of these phenomena are usually well tolerated by healthy passengers.
A) Oxygen
There is less oxygen absorbed into the blood and circulated throughout the body during flight as
compared to ground level due to a decrease in oxygen with an increased cabin altitude. As long
as you are in reasonably good health, your body has physiological mechanisms that compensate
for this decreased quantity of oxygen. On the other hand, passengers with significant heart, lung,
and blood diseases may not well tolerate lower amounts of oxygen. Therefore, they should
consult their physician before air travel to evaluate their capability to travel and to determine if
there is a need for medical oxygen or other special assistance. Medical oxygen can be
Continued on page 5 4 9
1. Drinking tomato juice will help eliminate odor and is
a tool to retard dehydration and keep electrolytes in
balance.
2. Some Antiperspirants can be used underneath an ostomy barrier. Many
antiperspirants dry after application and leave little residue that would
affect the adherence of a pouch.
3. The stoma should have the same color all over. If you have a log of color
changes, have your stoma examined by your medical professional.
OSTOMATES
FOOD
REFERENCE
CHART
For individuals who
have had ostomy
surgery, it is important
to know the effects of
various foods on ileal
output. The effects may
varywith the remaining
portion of functioning
bowel. Listed below are
some general guidelines
of the effects of foods
after ostomy surgery.
Use trial and error to
determine your
individual tolerance. Do
not be afraid to try foods
that you like, just try
small amounts.
Diarrhea Control
Applesauce
Bananas
Boiled rice
Peanut butter
Pectin supplement
(fiber)
Tapioca
Toast
Stoma
Obstructive
Apple peels
Cabbage, raw
Celery
Chinese vegetables
Corn, whole kernel
Coconuts
Dried fruit
Mushrooms
Oranges
Nuts
Pineapple
Popcorn
Seeds
Gas Producing
Alcoholic bev.
Beans
Soy
Cabbage
Carbonated bev.
Cauliflower
Cucumbers
Dairy products
Chewing gum
Milk
Nuts
Onions
Radishes
Odor Producing
Asparagus
Baked Beans
Broccoli
Cabbage
Cod liver oil
Eggs
Fish
Garlic
Onions
Peanut butter
Some vitamins
Strong cheese
Increased Stools
Alcoholic bev.
Whole grains
Bran cereals
Cooked cabbage
Fresh fruits
Greens, leafy
Milk
Prunes
Raisins
Raw vegetables
Spices
Color Changes
Asparagus
Beets
Food colors
Iron pills
Licorice
Red
Jello®
Strawberries
Tomato sauces
Constipation Relief
Coffee, warm/hot
Cooked fruits
Cooked
vegetables
Fresh fruits
Fruit juices
Water
Any warm or
hot beverage
Odor Control
Buttermilk
Cranberry juice
Orange juice
Parsley
Tomato juice
Yogurt
8
Comfortable Air Travel, cont’d from page 4
arranged with most airlines and it is
important to check with your carrier several
days in advance of the flight. Furthermore,
the combination of low oxygen, alcohol,
inactivity and sleep can generate unpleasant
side effects like dizziness and/or fainting if
one stands up too fast after awakening. Arm
and leg exercises before standing up will
usually prevent this.
B) Gas Expansion
The body contains air in the middle ear
(inside of the ear drum) and sinuses. As the
aircraft ascends, the air in these cavities will
expand to the outside via tubes connecting
them to the nose. On descent the reverse
occurs with air flowing from outside to these
cavities via the same tubes. This is well
tolerated as long as the air can flow into and
out of these cavities freely. To facilitate the
free flow of air, particularly on descent, it is
helpful to periodically swallow, chew, or
yawn. (This is why it is important that passengers stay awake during descent.) Give something
to drink to young children or a pacifier to infants. Individuals with ear, nose and sinus
infections should avoid flying because the congestion prevents the air from flowing freely in
and out of these cavities which could result in pain, bleeding, and possibly a ruptured ear drum.
Also, avoid gas forming foods or liquids before flight.
More travel tips will be
listed next month, so stay
tuned!
5
7
Note from Jennifer Higdon: The “restroom access” portion of the card below
should come in very handy. On several flights, my pouch has filled up with so
much air, that I have had to go to the restroom on the plane sometimes when the
seatbelt sign is still on. One flight attendant told me that I had to sit down, and
when I told her it was an emergency, it did not phase her. I‟m so happy to have a
card now in the event of a full pouch. I‟ll try to print some of these out and bring
to the next meeting.
6
TRAVEL COMMUNICATION CARD
COMPLIMENTS OF THE UNITED OSTOMY ASSOCIATIONS OF AMERICA, INC.
This is provided to travelers in order to simplify communication with Federal
Transportation Security personnel and airline flight attendants, at those times when
you wish or need to communicate in a non-verbal way, as is your legal right.
This is not a “certificate” and it is not a “pass” to help you avoid screening.
Please print out on any weight of paper you wish, trim to „wallet‟ size and laminate
if desired. The blue color is important, as it is a card developed by the TSA so their
own officers will recognize it and be guided to treat the traveler with discretion and
sensitivity.
If laminated in a double-side manner, it can be used blue side out during security
screening, and the white side out when communicating with airline personnel.
JUST PRINT, CUT OUT, FOLD THE TRAVEL CARD ON PAGE 7, AND PUT
WITH TRAVEL DOCUMENTS.
For more information contact our Customer Interaction Center at
1-800-422-8811 Monday – Thursday, 8:30 a.m. – 8:00 p.m., ET
Friday, 8:30 a.m. – 6:00 p.m., ET www.ConvaTec.com
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