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Shining a light on the future
Complex Neurodevelopmental Disorders Service (CNDS) for Children and Young People
The Complex Neurodevelopmental Disorders Service (CNDS) is a specialist
tertiary service working in collaboration with local multi-agency services
to provide second opinions for children and young people who may have
Autism Spectrum Disorder (ASD) and other complex mental health or
neurodevelopmental problems, regionally and nationally. CNDS provides
outpatient, day patient and outreach services.
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
•Uncertainty about an ASD diagnosis for whatever reason because of complex
presentations such as attachment disorder, looked after children, forensic history and
children in special circumstances
•Uncertainty about additional complex neurodevelopmental, mental health or
psychiatric disorders
•Questions about the management of ASD and any related co-occurring problems
• Concerns about lack of progress or failure to respond to specific therapeutic
interventions, pharmacological and non-pharmacological
•Other complexities such as family relationship difficulties and adult psychiatric disorder
in the family
The Complex Neurodevelopmental Disorders Service (CNDS) provides assessment
and specialist intervention for children and young people up to the age of 18 years
where there is:
To discuss a referral or for more information please contact:
Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne NE6 4QD
Tel: 0191 287 5260 / 5262Fax: 0191 287 5261 Email: CNDS@ntw.nhs.uk Web: www.ntw.nhs.uk
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
The Complex Neurodevelopmental Disorders Service (CNDS) provides:
•Detailed and expert assessment of children and young people to inform the
development of a skills and needs based intervention plan
• Second opinions in cases of diagnostic uncertainty or complexity
• Consultation and liaison for local ASD multi-agency care pathway team
• Specialist ASD training such as Autism Diagnostic Observation Schedule (ADOS)
•Diagnostic Assessment
» Standardised developmental history taking
» Autism Diagnostic Observation Schedule (ADOS)
» Neuropsychological (cognitive) assessment
» Speech and language assessment
» Occupational therapy assessment
» Specialist advice and information for families and
professionals from Specialist ASD Parent Advisor
» Mental state examination
• Treatment and Interventions
» Advice on the use of Pharmacological Interventions
» Advice on the use of Psychological Interventions
» Therapeutic and educational advice
» Intensive group intervention for Early Years children
including specialist teaching and intensive parenting work
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
The multidisciplinary team includes:
• Consultant Child and Adolescent Psychiatrists for children and young people with and
without a learning disability
• Consultant Neurodisability Paediatrician
• Trainees in Child and Adolescent Psychiatry and Paedriatics
• Consultant Clinical Psychologist
• Clinical Psychologists and Assistant Psychologists
•Occupational Therapist
• Speech and Language Therapist
•Nurse Specialists in ASD
• Specialist Autism Spectrum Disorder Teacher
• Regional Parent Specialist Adviser in Autism Spectrum Disorder
• Support staff
To discuss a referral or for more information please contact:
Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne NE6 4QD
Tel: 0191 287 5260 / 5262Fax: 0191 287 5261 Email: CNDS@ntw.nhs.uk Web: www.ntw.nhs.uk
Shining a light on the future
Complex Neurodevelopmental Disorders Service (CNDS) referral process
Who can refer
We are a nationally commissioned service. Referrals are accepted through a single point
of access from specialist Child and Adolescent Mental Health Services, Community Child
Health and Paediatric Teams or from any member of the multi-agency ASD care pathway.
Who to refer
• Children and young people under 18 years of age with:
» Uncertainty of diagnosis of Autism Spectrum Disorder (ASD)
» Uncertainty about additional complex neurodisability, mental health or
psychiatric disorder(s)
» Uncertainty about an ASD diagnosis because of complex presentations
e.g. Attachment disorders
How to refer
• Referrals are accepted in writing, by hard copy, fax or e-mail. Informal enquiries about
the service are welcomed by telephone prior to referrals.
Referral criteria:
• Referrals are accepted from across the North East with referrals from outside the region
considered on a case by case basis
•Where possible, referrals should include:
» The clinical question(s) to be addressed
» Summary of developmental and recent history and previous diagnostic process
» Copies of previous assessments and diagnostic reports
» Information regarding current concerns and difficulties experienced
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
Comments from a young person and their parents about the Complex
Neurodevelopmental Disorders Service (CNDS):
“ I have achieved very good results in my Higher Education Foundation exams and have
successfully secured a place at University. This would not have been possible without
you, so I wanted to say a big thank you for all your support and advice”
“ The diagnostic assessment helped us to think more positively about our daughter’s
needs. The team’s realistic opinions about her skills and difficulties will allow us to go
forward.”
Comments from professionals about CNDS:
“ I would like to thank you for all the effort you have taken to keep me informed about
the assessment and reactions of the family”
" On behalf of our service we would like to thank you for providing such a thoughtful
opinion and giving feedback to the family and our team”
Comments from parents who have worked with the Early Years Intensive Group:
“ I cannot thank the staff in the Early Years Intensive Group enough for what they have
helped my son and family through and I can honestly say they saved a family from
falling apart.”
“ Thank you all so very much for the care, patience and understanding you have shown
our son during his part-time placement in the group. He has changed so much, and
improved more than we could have ever imagined. We are so very grateful to you for
all your help – it has made a huge difference to all our family.”
To discuss a referral or for more information please contact:
Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne NE6 4QD
Tel: 0191 287 5260 / 5262Fax: 0191 287 5261 Email: CNDS@ntw.nhs.uk Web: www.ntw.nhs.uk
Shining a light on the future
Biographies and team profile
Ann LeCouteur, Professor and Consultant of Child and Adolescent
Psychiatry
• Clinical Lead for CNDS Team, experienced in Assessment and
Management of ASD including transition needs into adult services
and severe mental health disorders
• Research interests include development of assessment measures,
understanding transition needs and evaluation of interventions and
co-occurring mental health disorders
•Member of the NICE Guidelines for the Management of Children
and Young People with ASD
Vicki Grahame, Consultant Clinical Psychologist
• Chief Investigator on a New Parent Group to manage repetitive
behaviours in young children with ASD
• Co-author of a treatment manual helping children with ASD and
learning difficulties to understand and manage their emotions
•Has specialist training in Neuropsychological Assessments in children
and young people
Jeremy Parr, Consultant in Paediatric Neurodisability and Senior
Lecturer at Newcastle University
• Experienced in assessing and advising on the management of
children with a range of complex neurodevelopmental disorders and
neurodisability
•Works with the regional neurodisability service
• Research interests include formation of ASD databases and genetics
of ASD
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
Clare Dover, Consultant Psychiatrist for Children with a Learning Disability
• Leads the Regional Training Programme on the use of Autism
Diagnostic Observation Schedule (ADOS)
• Chair of Newcastle ASD Multi-Agency Strategy Group
Linda Dixon, Specialist Teacher, Newcastle Bridges School
• Experience of working with children with Autism within specialist and
main stream settings
•Has international experience training community based staff in ASD
early intervention work
• First author of a Treatment Manual to help parents of Young Children
with ASD
Deborah Garland, Regional Parents Adviser
•North East Regional Resource Manager for National Autistic Society
(NAS)
• Expert in supporting parents and facilitating local networks
•Member of the Database for Children living in the Northeast (Daslne)
and Regional ASD Research Studies Steering Groups
To discuss a referral or for more information please contact:
Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne
Tel: 0191 287 5260 / 5262Fax: 0191 287 5261 Email: CNDS@ntw.nhs.uk Web: www.ntw.nhs.uk
Shining a light on the future
Service location
The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park
on Benfield Road in Newcastle.
How to get there
• By car – CNDS is easily accessible from both the A19 and A1. Follow the A193 and take
the signs signposted to Walkergate Park Hospitals.
• Car parking – There is car parking available on site. Please note car parking is
chargeable.
• Satellite navigation – use postcode NE6 4QD when using a satellite navigation system.
• By bus – The service is easily accessed by bus see www.nexus.org.uk for further
information and timetables.
• By train – Newcastle Central Station is located in the centre of Newcastle and easily
accessed from other areas. The CNDS service is a short taxi or bus journey from the
station.
• By metro – The nearest metro station is located at Walkergate. Walkergate Park is
about a 5 minute walk.
www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust
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To discuss a referral or for more information please contact:
Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne
Tel: 0191 287 5260 / 5262Fax: 0191 287 5261 Email: CNDS@ntw.nhs.uk Web: www.ntw.nhs.uk
Benfield RoadWalkergatePark
A193
A167
A16
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A193
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Jesmond Road
Chillingham Road
Great N
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