medicine20 elderly living in nursing homes share personal experiences online

Elderly 2.0Elderly, Living in Nursing Homes, Share Personal Experiences Online

Maastricht, November 29th, 2010

Loes Bierma, Policy Officer

Dutch Patient Consumer Federation

Background

People talk..

•Background

•Objectives

•Method

•Results

•Conclusion

..and share personal experiences

Background

•Background

•Objectives

•Method

•Results

•Conclusion

..also about doctors, hospitals, nursing’s, dentists, GP’s, etc.

ZorgkaartNederland.nl:

*online platform *personal experiences about cure and care*patient-to-patient *care-organizations are able to respond*link to objective information

•Background

•Objectives

•Method

•Results

•Conclusion

Background

Platform ZKN

•Background

•Objectives

•Method

•Results

•Conclusion

Background

Project ‘Uw mening, onze zorg’:

(your opinion, our concern)

•Background

•Objectives

•Method

•Results

•Conclusion

Why?

-Patient is the best critic (own experience, vs. second-hand)

-Patient’s of nursing homes will not share their experiences online spontaneously

Background

Goals:

- Personal experiences people can use when choosing a nursinghome

- Information for the care-organizations (subjective, so illustrative and appealing to sentiment)

- Insight and image of nursing homes

•Background

•Objectives

•Method

•Results

•Conclusion

Objectives

*Elderly,

living in a nursing.

•Background

•Objectives

•Method

•Results

•Conclusion

*Carer’s,

of someone

in a nursing

*Family,

friends, and

other’s

Method

•Background

•Objectives

•Method

•Results

•Conclusion

Interview’s short interview’s / website / forms / telephone / panel

all Dutch organizations80 organizations

10.000 personal experiences

40.000 personal experiences

Results

• 50.000 experiences (30.000 online)

• 80 positive care-organizations

• Report (s), toolkit, inspiration book

•Background

•Objectives

•Method

•Results

•Conclusion

Results

Narrative results (in a nutshell)

- despite good marks and positive answers on closed-ended

questions, alarming notions were shared in the personal experiences!

- Small things make considerable differences

•Background

•Objectives

•Method

•Results

•Conclusion

Conclusion

•Background

•Objectives

•Method

•Results

•Conclusion

• Narrative personal experiences are valuable, dynamic and intense.

Therefore they are appealing to sentiment.

• Narrative personal experiences give detailed information. Caregivers

can’t wait to solve problems, when they know what and how to solve!

• The patient can share their own most important insights. So the

patient determines what is important.

What you need to remember

Narrative personal experiences: we all have them, share them and use them..

But they are like an ant-hill.

One ant does not make sense, but together they are strong

It is easy to share information...

What you need to remember

Let’s ask, listen en act more on it!

Lbierma@NPCF.nl@Loezy

Maastricht, November 29th, 2010

Loes Bierma, Policy Officer

Dutch Patient Consumer Federation