open voice: patient opinion at health in numbers

Open voice: How open data helps patients to make the NHS betterKate Ebbutt @kateebbuttPatient Opinionkate.ebbutt@patientopinion.org.uk

Berwick Report, August 2013

“Hear the patient voice at every level – even when that voice is a whisper”

Berwick on Mid Staffs“Warning signals abounded and were not heeded…Especially costly was the muffling of the voices of patients and carers who took the trouble to complain but whose complaints were too often ignored.”

Open Voice

The world is changing – fastOld world New world

Hierarchy Network

Broadcast Conversation

Hiding Sharing

Few Many

Closed Open

Passive recipients Active participants

Guy Brookes

Associate medical director

Adult mental health services

Leeds & York Partnership Trust

Berwick again

“Speak up about what you see – right and wrong. You have extraordinarily valuable information on the basis of which to make the NHS better.”

Active citizens and the NHS• Not choosing, but changing

• Not making a comment, but making a difference

• Not collecting data, but connecting people