social media-rare disease (luis luque, manuel armayones)

1

How can things change?

By implementing a comprehensive approach to rare diseases

By developing appropriate public health policies

By increasing international cooperation in scientific research

By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones

By developing new diagnostic and therapeutic procedures

By raising public awareness

By facilitating the network of patient groups to share their experience and best practices

By supporting the most isolated patients and their parents to create new patient communities or patient groups

By providing comprehensive quality information to the rare disease community

Source: Eurordis

2By implementing a comprehensive approach to rare

diseases

3

4By developing appropriate public health policies

5

6

7

By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones

By developing new diagnostic and therapeutic procedures

8

9

By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones

By developing new diagnostic and therapeutic procedures

10

By raising public awareness

By facilitating the network of patient groups to share their experience and best practices

11

By supporting the most isolated patients and their parents to create new patient communities or patient groups

12

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