social media-rare disease (luis luque, manuel armayones)
DESCRIPTION
second part IN3-UOC Social Media and Rare Diseases: an opportunity for the long tail. Luis Luque & Manuel Armayones.TRANSCRIPT
1
How can things change?
By implementing a comprehensive approach to rare diseases
By developing appropriate public health policies
By increasing international cooperation in scientific research
By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones
By developing new diagnostic and therapeutic procedures
By raising public awareness
By facilitating the network of patient groups to share their experience and best practices
By supporting the most isolated patients and their parents to create new patient communities or patient groups
By providing comprehensive quality information to the rare disease community
Source: Eurordis
2By implementing a comprehensive approach to rare
diseases
3
4By developing appropriate public health policies
5
6
7
By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones
By developing new diagnostic and therapeutic procedures
8
9
By gaining and sharing scientific knowledge about all rare diseases, not only the most “frequent” ones
By developing new diagnostic and therapeutic procedures
10
By raising public awareness
By facilitating the network of patient groups to share their experience and best practices
11
By supporting the most isolated patients and their parents to create new patient communities or patient groups
12
Thanks for your atentionThanks! More Questions???