2016Annual Report

The Voice of Brain Injury Since 1981www.bianj.orgFamily Helpline 1-800-669-4323

Our Story Our Work Dear Friends and Colleagues,

FAMILY SUPPORT. The Alliance offers a Family Support program that provides care coordination for children and adolescents with brain injuries and their families. Eligible families receive emotional support, information and resource referrals and connections to services.

PUBLIC EDUCATION AND COMMUNITY OUTREACH. Educational sessions cover a range of topics geared towards those affected by brain injury, professionals and the general public. Through seminars, conferences, workshops, webinars and more, we are able to provide the community with the most up-to-date information in the field of brain injury.

PREVENTION PROGRAMS. Staff works in the community to educate people of all ages about ways to prevent injuries. Awareness programs cover transportation, sports concussion and fall safety and provide strategies that can prevent a brain injury. Information and resources are available through our website and social media.

ADVOCACY AND PUBLIC AFFAIRS. This sector defines and strives to achieve public policy goals that are of importance to people with brain injury and the general public through work with legislatures and members of CHIC (Council for the Head Injured Community).

Where The Money Goes

SUPPORT COORDINATION. Our support coordinators work with the individual and their family to ensure that they are able to maximize their personal choice and quality of life. We identify services to be purchased through clients’ Division of Developmental Disabilities budget and develop, monitor and adapt their service plans as needed.

85%of funds went directly to programs and services.

Wallace McD. Kyle, Chairperson Rita Steindlberger, President & CEO

1981 1987 1994 2002 2010 2016

35 Years of Accomplishments

The Alliance is founded in 1981 by a small group of concerned parents of children who had sustained brain injury.

Camp TREK is introduced as a recreational opportunity for individuals with brain injury and respite for caregivers.

Family Support program expands to provide services statewide to families who have been affected by brain injury.

The Alliance holds the first Walk for Brain Injury Awareness in Mercer County to support individuals affected by brain injury.

The Champion Schools Program is launched, promoting driving safety among teenagers in New Jersey.

A grant was received to deliver an evidence-based federally recognized seniors and falls prevention program.

Administrative 2%

Fundraising 13%

Programs 85%

Total budget: $2.1M

This year marks the 35th anniversary of the Brain Injury Alliance of New Jersey (the Alliance). The world of brain injury has transformed dramatically over the years and the Alliance has been proud to be at the forefront of identifying and responding to these changes in New Jersey.

We have remained true to our founders’ recognition that those affected by brain injury needed easy access to current information and resources, support and educational opportunities. Our first program was an Information and Resources Helpline, and when it became apparent that individuals with brain injury and their families needed more intensive support, our care coordination service was established. Today, we provide these direct services to more families than ever in need in New Jersey.

Ten years ago, the Alliance noted a surge in the incidence of mild traumatic brain injury, or concussions, and in response, launched a statewide concussion committee comprised of concerned professionals. A Concussion Summit was held at Giants Stadium, and the Alliance became a leading voice providing information and advocacy on this important topic. Today, the Alliance is deeply involved in concussion education efforts across the state and plays an important advocacy role to protect students who have sustained concussions and support their return to school.

In 35 years, the delivery of information has evolved dramatically with the internet and social media, and we are proud that the Alliance has kept pace with technology. We have an extensive online presence, including our website that hosts a wealth of information about brain injury and is visited by more than 150,000 annually, and our social media that serves as an interactive support and information source. Additionally, we are proud to be introducing our first mobile app this year.

This year also saw our long-time esteemed President and CEO, Barbara Geiger-Parker transition into the role of Chief Strategic Officer. We are thrilled to have her continued support and expertise through our change in leadership.

To our donors, partners and friends, we thank you for making our work possible. If you are a potential supporter, we welcome you to learn more about our programs and services. It is your generosity that can help to raise awareness, support programs that prevent brain injury, and make the difference for a family that is struggling with the aftermath of a brain injury. We at the Alliance are committed to making this vision a reality.

With appreciation and warm wishes,

Annual Growth Highlights

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2

3

BROADENING OUR REACH. Social media has become the primary source of news

and information to the general public. The Alliance has responded by increasing our

presence to spread brain injury awareness and prevention strategies. This approach

offers an immediate resource for those seeking information and encourages discussion.

In 2016, Facebook named the Alliance the Number 1 Page to Watch in our sector.

Camp TREK. Camp TREK (Together in Recreation, Exploration and Knowledge) is

the Alliance’s week-long residential program providing independence, socialization

and recreation for adults with brain injury, as well as a respite for caregivers. This year,

government funding for Camp TREK was cut, however thanks to the generosity of our

supporters, we were able to sustain the program’s 30-year reputation for 45 campers.

PREVENTING FALLS. Falls are the leading cause of brain injury, especially for those over

the age of 65. The Alliance addressed this issue by adopting an award-winning senior falls

prevention program, A Matter of Balance. The program is designed to inspire confidence,

increase mobility, flexibility and strength while teaching fall avoidance techniques.

All thanks to you!

10,000

30

12,214

5,862

2471,000

1,1616,934

35Years providing services

Training and education session attendees

Information & Resources Calls

Support Group Participants

Families currently receiving care coordination

Newsletter Distribution

Social Media Followers

Years hosting Camp TREK

Average people served each year

Number of users who have accessed information on bianj.org in 2016 178,683

Staf & Board

Board of Trustees

Staff

Wallace McD. Kyle, Chairperson Anthony Cuzzola, Vice Chairperson Michael H. Greenwald, EdM, Secretary Richard Sackin, Treasurer Richard Anderson, CHIC Representative Sarah Levin Allen, PhD Steven Benvenisti, Esq. Marie Blistan Cynthia Boyer, PhD

Virgilio Caraballo Ronald J. Czajkowski David Gealt, DOHarrison J. Gordon, Esq. Brian D. Greenwald, MD John W. Indyk Neil Jasey, Jr., MD Maz McWilliams Robb Rehberg, PhD, ATC Capt. Paul Vereb, ret.

Rita Steindlberger, President & CEO Barbara Geiger-Parker, Chief Strategic Officer Wendy Berk, Vice President Heather Boccassini, Information and Resource Program Coordinator Joanna Boyd, Public Education Coordinator Diane Citera, Administrative Assistant Kara Francis, Community Resource Specialist Susan Gerringer, Finance Associate Julie Ann Glaz-Bopp, Administrative Assistant Thomas Grady, Director of Advocacy and Public Affairs Jessica Gray, Community Resource Facilitator Kristopher Hopwood, Technology Coordinator Susan Irby, Community Resource Specialist

Donors 130 Foundations, Corporations

& Government FundersAAA Northeast · Alexander E&O Group, LLC · Allaire Healthcare Group · Allstate Foundation · ANI Art Academy America Association of Plumbing and Heating Contractors of Camden County, Inc. · Bacharach Institute for Rehabilitation · Bancroft · Baron Capital Foundation · BAYADA Home Health Care Beechwood NeuroRehab · Booster U.S. · Bergen County Charity Classic · Bluweise Jewish Community Center · Bristol Meyers Squibb Company · The Cellular Connection, LLC Center for Neurological and Neurodevelopmental Health · Central Jersey Family Health Consortium, Inc. (Safe Kids NJ) · Children’s Specialized Hospital · Chubb & Son Clinical Neuropsychology Associates, P.C. · Council on Brain Injury · PEPE, Inc. T/A Tri City Paper Co. · Community Justice Center · Community Skills Program Danielle Conner/Pilates Design Studio · Constant Therapy · Cooper Bone and Joint Institute · The Cooper Health System · The COR Group · Corodemus & Corodemus, LLC Cumberland Air Solutions · Custom Cable Crafters · Danco General Contracting · Davis, Saperstien & Salomon, P.C. · Davita Healthcare Partners, Inc. · DonJon Marine Company, Inc. E.D. Builders, LLC · Eastern Pennsylvania and South Jersey Combined Federal Campaign · Eco-Stat, LLC · Elmer Auction, LLC · EMD Consulting · Englewood Hospital and Medical Center Educational Testing Service · Family Investors Company · Fgrather and Associates · Garton’s Rigging, Inc. · Gordon & Gordon, P.C., Gordon Foundation · Haven Savings Bank Healthsouth Rehabilitation Hospital-Tinton Falls · Herbert I. Ellis, P.C. · HFI Truck Center · Horizon Blue Cross/Blue Shield of NJ · Horizon Services, Inc. · Furniture Finders, Inc. Independence Rehabilitation Services, P.C. · Insurance Council of NJ · Investors Bank · J. Souders and Son Excavating, Inc. · J. Wilhelm Roofing Company, Inc. · Javerbaum Wurgaft Jefferson Comprehensive Concussion Center · JFK Johnson Rehabilitation Institute · JOB Lock and Alarm · John J. Giblin Association Kean University Occupational Therapy Community Cares Clinic · Kessler Foundation · Kessler Institute for Rehabilitation · Kreinces Rollins & Shanker, LLC Leibner Cooper Family Foundation · Lons Family Haircuts · Magyar Bank Foundation · Mahwah High School · Marlton Rehabilitation Center · MedExpress Urgent Care Medical Practice Management Associates · Meridian Health · Merrill Lynch · MetLife Foundation Volunteer Project Fund · Michael Heaney Fund · Microsoft Matching Gift Program Middlesex County School Nurses Association · Mom’s Meals NourishCare · Monmouth and Ocean County Brain Tumor Support Group New Jersey Department of Children and Families · New Jersey Department of Human Services, Division of Developmental Disabilities New Jersey Department of Human Services, Division of Disability Services · New Jersey Division of Highway Traffic Safety · Rosemarie Scolaro Moser, RSM Psychology Associates Mount Bethel Village · National Packing Services, Inc. · Nesting Egg Home Care · Neuropsychology & Counseling Associates, LLC · New Jersey Association of Health Plans New Jersey Education Association · New Jersey Hospital Association · New Jersey Manufacturers Insurance Group · NJ Chapter of IARP · Northern Jersey Ear, Nose, Throat Association Northern Valley Feed and Turf · Nu-Rain Irrigation, LLC · Our Lady Star of the Sea · Phoenix Business Forms, Inc. · PointRight · PricewaterhouseCoopers LLP Progressive Health of PA, Inc. · The Provident Bank · Prudential Foundation Matching Gifts · Push to Walk · Regional Independent Medical Evaluations Rehabilitation Medicine Center of New Jersey · Rehabilitation Specialists · RJR Solutions · Robert Wood Johnson University Hospital · PRJ Properties, LLC · Salesforce.org Selective Insurance Foundation · Shore Neuropsychology & Behavioral Health · Sir Speedy Printing · United Way of Greater Philadelphia and Southern New Jersey South Jersey Glass & Door Company, Inc. · Specialized Physical Therapy · St. Barnabas Health · St. Lawrence Rehabilitation Center · St. Peter Senior Ministry · Stark & Stark State Farm Good Neighbors · Straight Construction · Olive Branch Support Services · Sussan, Greenwald & Wesler, Esqs. · Technology Insurance Associates UBS Financial Services, Inc. · Universal Institute · Wards Stores, Inc. · Washington Woman’s Club · Weisman Children’s Rehabilitation Hospital Westwood Volunteer Fire Department Board · ZogSportsNJ Century ClubBrian Agnew · Mary Ann Allard · Angelica Rose Anderson · Richard Anderson · Maria Archetti · Michelle Arencivia · Joseph Artuso · Michael Atieh · Jennifer Jarvis Babish John and Rosemary Bailey · Bonnie Bailey · Earl Baker · Alicia Bartlett · Patricia Bator · Stefanie Bauman · Reginald P. Bautista · Steven Benvenisti, Esq. · Wendy Berk Joan Berna · Vivian Bettis · Marie Blistan · Patricia Boccassini · Kathy and Ralph Bolognese · Melissa Booker · Deann Boutillier · Joanna Boyd · Cynthia Boyer, PhD Kate Bracken · Jon Bramnick · Phillip Brandt · Steven Breines · Jill Brooks · Kathryn Calise · Joseph Caminiti · Virgilio Caraballo · Cathy S. Carter · Christine Carver Joseph and Kelly Celoski · Deborah Cerra-Tyl · Nancy Chiaravalloti · Kili Chivers · Stephen Church · John Ciacciarelli · Onofrio Cirianni · Laura Cisar · Tammy Ciullo Andrew Clarke · Kirsten Colangelo · Jane and Joe Concato · Carol Katz Connelly · Betsy Cooper · Anthony Robert Coppola, Jr. · Christina Cording · Dorothy Crawshaw Warren Crescenzo · Ron Crudo · Anthony Cuzzola · Ronald J. Czajkowski · James Dalessio · Keith H. Davis · David and Monica Day · Bill Decker · Margaret J. DeLorenzo Nicole DeLorenzo · Bethany DeLude · Susan Denneler · Anthony DiGiovanni · Georgianna Dodd · Patty Domm · Catherine Donahue · Michael G. Donahue Tom P. Drake · Dawn Ellington · Nathan Van Embden · Dr. Warren and Joan Enker · Lisa Farrar · Shannon Ferguson · Edwin Ferren, III · Julie Ferris · David Feuerstein Allison K. Fraser · Tiffany Gallagher · Lisa Gallicchio · David Gealt, DO · Nina Geier · Barbara Geiger-Parker · Jaya George · Amos Gern, Esq. · Harold Gerr · Richard Gerstner Marc Goldberg · Sheen Goldberg · Arlene M. Goodman · John P. Grady · Thomas F. Grady, Sr. · Stefanie Granzin · Jessica Gray · Charles H. Green · Brian Greenwald, MD Michael H. Greenwald · Lauren Greico · Christine Greiss · Gale and Rolf Groesch · David Grubb · Jacqueline Gufrovich · Lindsay Hafner · Milton Hall Nancy Hassab · Karen Hawkey · Herbert Heflich · John and Mary Jane Hegi · Paula L. Henry · Mary Ellen Hill · Maria Himber · Dorothy Hoffman Freeman Denise Holderied · Christine Holmberg · Kim Holtermann · Phil Hossler · Debra Humphries · John Indyk · Laura Jacobs · Madhu Jain · Frances V. Jarvis · George N. Jarvis Neil Jasey, Jr. · Mila Jasey · William Jervis · Prescott Johnson · Donna Jones · Eric G. Kahn · Kristine Keane · Walter L. Kilcullen · Edward Kim, MD, MBA · Justin King Marissa King · Steven Kirshblum, MD · Cristina Klymasz · David Koentop · Leonard Kudgis · Caitlin Kummer · Maryellen Kyle · Megan and Clayton Kyle · Wallace Kyle Rae J. Labine · Patricia Lamoureux · Edwardson W. Laohoo · Michael Lassen · Terry Last · Joyce Laudise · Christopher M. Law · Joan Leder · Dean Leech · Pattie Legacy Douglas Leith · Sarah Levitt · Danielle Lino Coccomo · Jonathan Lofton · Regina Love · Judith F. Lutzy · M. Quintin Jarrett · Ursula Mac Donald · Albert R. Maccani, CPA Douglas Madison · Kathryn J. Madison · Marc Maiorella · Joseph W. Manger · Alessia Margio · Danny Matarese · Joseph and Patricia Mazzarelli · Sean McCarthy Thomas J. McFadden · The McMillan Family · Michael McWilliams · Barry Meinerth · Nicole Menendez · Paul Merken · Carol Conger Miller · Lisa Miller · Matthew Miller Scott Miller · Sakina Millward · Michael Minchelli · Lois Mishkin · Pat Monaco · Linda Morgenthien · Tom Morgenthein · Chris and Lillian Mosley · Robert Moss Sanjoy Musunuri · Arnold Natali · Kyle Neeld · Dianne Nehmad · Randolph A. Newman, Esq. · Joseph Noce · Ronald Parker · Steve Peterman · Denise Peterson Benedetto Piccoli · Frederick P. Pierce · Nancy Pinkin · Harry Pizutelli · Erhardt Preitauer · Albert Pressler · Olgacy Price · Brett Prince · Alexandria Prontnicki Harry and Joanne Quayle · Brad Quick · Rebecca Quick · Susan Quick · Anthony Radzieta · Joanne K. Ralston · Denise Dunlap Ratcliffe · Nutan Ravani · Timothy Reed Robb Rehberg · Amy Reilly · William Reilly · Erica Reiss · Deborah Reiss · Katherine L. Reiss · Arielle Resnick · Ellen and Gary Resnick · Leslie Rice · Ann and Ron Riemann Edwin Rivera · Rosemarie Doyle · Bradford Ross · S. Moshe Roth, OD · Dmitri Roumynski · Ellen Rubin · Carolyn T. Ruble · Ellen and Gary Ruckstuhl · Gisela Rutch Richard Sackin, CPA · Garry Salomon · James Salwitz · Nancy Sambucci · Lauren Santillo · Catherine Scala · Phil Scalo · Peter Schacknow · Linda R. Schaefer Sharon H. Schmidt · Charles Schneider · David Seibel · Louis Serafini · Rosanne Sevinsky · Donald Shalan · Eric J. Share · Mary Sharlow-Galella · Andrew Shedlock Robert Sherker · Sandra Siegel · Dianne Simmons-Grab · John H. Skarbnik, Esq. · Margie Soto Robert D. Spano · Alan Speck · Mary Kay Steakin · Rita Steindlberger Doris Sullivan · Elizabeth Sullivan · Jen Suresh · Edward Swikart · Heather Tagliareni · Valerie Tagliareni · Barbara Taibi · Roy Tanzman · Brian Tarpey · Anna Teodorczy Jeff Terjesen · Sibi Thomas · Charles A. Thompson · Bonnie Tillman · Kyle Toth · Jean Tyler · Robert Urbanski · Paul Vereb · Virginia Dizon · Geralyn Voorhis · Mark. C. Vukovich Sharon M. Walton · Irene Ward · Lynn Webb · Elena Wee · Marianne Weickert · Judi Weinberger · Stephanie R. Weinstein · Jay Weiss · Matthew Weiss · Robert Wendt Jack and Mimi Werbler · Irene Wheeler · Keith Wheelock · Mike Williams · Michael and Patricia Wisnewski · Cathleen Worthington · Robert Wortman · Suzanne Wright Mary Ellen Yen · Dorothy Younie · Tom Zarillo · Susan Zeelander · Carl Ziesing · Michel J. Zolack, Jr.

Laura Jacobs, Education and Outreach CoordinatorCatherine Klimek, Community Resource Specialist Stacy Lyons, Community Integration Coordinator Joy Melendez, Director of Education and Outreach Kristen Olsen, Communications Manager Kim Pedersen, Community Resource Specialist Tamika Pickett, Community Resource Specialist Susan Quick, Public Education Coordinator Gisela Rutch, Senior Director of Finance Elizabeth Sullivan, Director of Support Services Jennifer Suresh, Operations Manager Charles Thompson, Training Coordinator Dana Veerasammy, Project Coordinator

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* Individuals that donated $100 or more

T ank You2016 was a remarkable year thanks to our board, staff, volunteers, and donors.

You helped make all of this possible.

Support Our MissionThe Brain Injury Alliance of New Jersey is a statewide nonprofit organization dedicated to the support and advocacy for individuals impacted by brain injury and education through prevention and outreach. Since being founded in 1981 by a small group of concerned parents of children who had sustained a brain injury, we have grown to become the primary source of information, education, advocacy, support and hope for the thousands of people in our state living with brain injury.

It is estimated that 175,000 people in New Jersey are living with brain injury, and approximately 12,000 injuries are sustained annually. This means that our job is never done. Your support is crucial to helping raise much needed funds for the families we support, whose emotional and financial needs can be life-long. There are multiple ways you can contribute:

To learn more about how you can support people impacted by brain injury, contact Wendy Berk at 732-745-0200 or wberk@bianj.org

Brain Injury Alliance of New Jersey | 825 Georges Road, 2nd Floor | North Brunswick, NJ 08902 | 732-745-0200 | bianj.org

Individual GivingTo support our work, make a general donation or give to a specific program. Any size donation is appreciated.

Join the Brain Trust Our Brain Trust Monthly Giving Program offers the ability to provide sustaining support to individuals and families living with the effects of brain injury through easy, automatic monthly payments.

Become a Member Join the Brain Injury Alliance of New Jersey’s mission by becoming a member. Members receive discounts on Alliance events and stay up-to-date on our latest developments and news.

Sponsor an Event We host various events throughout the year such as the Annual Gala, Annual Seminar and Walk for Brain Injury Awareness. Contact us to join other partners who organize events and direct funds to the Alliance.

Corporate Circle Partners receive benefits in the form of marketing, advertisement across multiple media channels, recognition at events throughout New Jersey, complimentary exhibiting, registrations and tickets to events, among others.

bianj.org/donate