arcand marcel
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8/14/2019 Arcand Marcel
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ABSTRACT FORM
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Pain and other symptoms
Palliative care for cancer patients
Palliative care for non cancer
patients
Paediatric palliative care
Palliative care for the elderly
The actors of palliative care
Latest on drugs
Bureaucratic pain
Illness and suffering through
media
Marginalisation and social stigmaat the end of life
Palliative care advocacy projects
Prognosis and diagnosis
communication in
different cultures
Communication between doctor-
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Religions and cultures versus
suffering, death and
bereavement
Public institution in the world:
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and law
Palliative care: from villages to metropolies
Space, light and gardens for the terminally ill patient
End-of-life ethics
Complementary therapies
Education, training and research
Fund-raising and no-profit
Bereavement support
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TITLE: UNDERSTANDING AND SUPPORTING FAMILIES OF PATIENTS WITH
ADVANCED DEMENTIA NEAR THE END OF LIFE.
Authors (max 6, presenting author included): Marcel Arcand
Most experts think that advanced dementia should be considered a terminal disease for which apalliative care approach is relevant. When medical complications occur, family caregivers areoften required to participate on behalf of loved ones to difficult clinical and ethical decisionsResearch has shown that many family members do not feel well prepared for this potentiallystressful period and need support.To maximize family support and avoid potential conflicts, a good understanding of family
perspective is crucial for physicians and other healthcare professionals. Using qualitative researchmethodology, we have examined the concerns of family caregivers regarding their relatives careand explored how end-of-life treatment decisions are made. Their perception of the relatives
level of quality of life emerged as central to decision-making. Families also perceive in differingways their role in the decision-making process.A review of interventions to support families of advanced dementia residents of long term careinstitutions shows that discussion of advance directives appears not only to promote betterconcordance between patients prior stated wishes and treatments received but also lessendiscomfort at the end-of-life. Palliative care training of nursing staff and physicians seem toimprove communication between family and healthcare team and global family satisfaction withcare. Family education about progression of disease and the palliative/comfort care option hasnot been much studied. Recently, we wrote a booklet entitled Comfort Care at the End of Life forPersons with Alzheimers Disease or Other Degenerative Diseases of the Brain : A Guide forCaregivers. The booklet is still a work in progress. Acceptability studies by professionals andfamily members are ongoing. Researchers in different countries, including Italy, have adapted itscontent to their own cultural and legal context.
Session: Palliative Care for elderly
Chair of the session: Dott. Donatella Carmi Bartolozzi
Antea Worldwide Palliative Care ConferenceRome, 12-14 November 2008
Marcel Arcand
e.ca
mailto:[email protected]:[email protected]