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Behavior change to develop a consistent approach against eating disorder needs a strong patient’s empowerment Andrea Migliavacca, Renata Guarneri, Marco Decandia, Luca Piras December 7th, 2015

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Page 1: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Behavior change to develop a consistent approach against eating disorder needs a strong patient’s empowerment

Andrea Migliavacca, Renata Guarneri, Marco Decandia, Luca Piras

December 7th, 2015

Page 2: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Lombardia Informatica’s mission is to innovate services and increase the Regional System’s productivity through Information Technology, in order to improve Citizen’s quality of life and Lombard companies’ competitiveness.

100% owned by Regional Government.

Responsible for the soundness and the effectiveness of the whole Regional Information System.

Cannot compete with Private Companies in Italy, but can be involved in Projects abroad

LISPA

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Page 3: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Since 1999 Lombardy Region developed SISS – eHealth Regional System.SISS first goal was create a Regional infrastructure to connect and guarantee an information exchange between all the health care operators and citizen.

Electronic Health Record – Citizen in the center

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Page 4: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

• 9.900.000 Citizens (roughly 99% of total)

• 150.000 Health & Social Care Operators

• 7.800 General Practitioners (98%)

• 2.600 Pharmacies (100%)

• 35 Public Hospitals (100%)

• 15 Local Healthcare Units (100%)

• Private Healthcare Service Suppliers

(98%)

• Nursing home (100%)

• Facilities for people with disabilities

(100%)

Some figures

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• 6 millions active EHR (Electronic Health Records)

• 17,5 millions ECDs• 93 million prescriptions• 4,3 millions online consultations of

medical reports by citizens• 3,5 millions bookings

Page 5: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Vision

CITIZEN-CENTRIC Information sharing: SISS is an instrument of dialog between medical operators and citizens.

TERRITORIALISATION OF ASSISTANCE (Dehospitalization, associative primary care, clinical pathways, domiciliary assistance, ...) Extended support of care in the Region territory: new organization for chronic disease care

REDUCED RESOURCES Integrated governance for resource optimisation: correlation between clinical/ epidemiological data and administrative data.

How

to a

chiv

e th

at?

Page 6: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Electronic Health Record for citizens

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EHR

The citizen clinical history is shared between all the health care operators and providers in charged to care the citizen

Physician second opinion is available. It is possible an immediate clinical document sharing

In the Personal Page the citizen could exchange clinical documents, relevant biometric measurement with his or her GP

The documents update is in real time.All the clinical documents are immediately available

Page 7: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Electronic Health Record for citizens

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Personal Page

-Personal

documents

Personal Page

-Personal

clinical History

Personal Page

-Data

monitoring

Reports (Labs, Radiology,

Discharge letters,Ambulatory visit and procedures,

first aid) provided and digital signed

by public and private hospitals

Chronic disease patients

documents

ePrescriptioneDispensatio

n

PatientSummary Personal

Page-

Personal documents

EHR

Booking and payment

Administrative services

Page 8: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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SISS ongoing evolution

• Inclusion of vital signs• Calendar management• Privacy management• Hospitalization clinical dossier on line

• Services during Home Visits: Electronic Prescriptions Sick-leave certificates Consultancy/radiology service booking

• DICOM image exchange for fast consultancy and reduction of physical transfers

CITIZEN

PHYSICIAN

Page 9: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Why is so important an Empowerment strategy?

CITIZEN-CENTRIC Information sharing: SISS is an instrument of dialog between medical operators and citizens.

TERRITORIALISATION OF ASSISTANCE (Dehospitalization, associative primary care, clinical pathways, domiciliary assistance, ...) Extended support of care in the Region territory: new organization for chronic disease care

REDUCED RESOURCES Integrated governance for resource optimisation: correlation between clinical/ epidemiological data and administrative data.

Need a citizen interested and with all tools to have a correct relation with the healthcare providers

Need to involve all the care giver (social and parental resources)

Activation of all the resources present on the field and optimization

Page 10: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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What empowerment is?

Active Citizen

Engagement

Knowledge

CollaborationCommitment

Tolerance of Uncertainty

EducationInformationMotivationCommunication

NotificationInformation sharingSecond opinionTrainingActivities scheduler

Mea

nsFu

nctio

nalit

ies

Page 11: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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What citizen expects?

PALANTE Project resultsGood level of activation

EU citizens/patients: Are already largely

activated (levels 2 & 3) Have no prejudices to

eHealth Expect eHealth being useful

and ease to use

Page 12: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

Empowerment

Citizen

Not only access to Electronic Clinical Documents and services.But also• Citizen empowerment platform• Interaction with platforms and

devices through the “Personal Page”

Citizen in the center

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Behaviour change

platforms

Fitness platforms

Life Style analysis

platforms

Wearable data

collectors and data analysis platforms

Page 13: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Empowerment and Behaviour Change Platform a good synergy

Empowerment

Focus• Citizen actives and

responsible for his health

Tools• Information• Education• …

Limits• Quite mono directional

activity• Create awerness but need

support for day by day life

Behaviour Change Platform

Focus• Real and virtual environment

to activate a behaviour change

Tools• Game• Training• Social• …

Limits• Involve active people• Need motivation

Page 14: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Integration with a behaviour change platform: the Pegaso project experience

A mobile, social and networked gaming platform to engage young people to stimulate healthier choices to prevent obesity.

1) Individual & Environmental Monitoring, through a high level-monitoring platform including wearable sensors and mobile phone as well as multimedia diaries for the acquisition of physical, behavioral and emotional attitude of adolescent.

2) Feedback System provides feedback in terms of “health status” changes, required actions to undertake etc. This function will also propose personalized healthy modification of the lifestyle thus promoting active involvement in behavior change.

3) Social connectivity and engagement, social network where users can share experiences with a community of peers concerning e.g. physical activity, food consumptions and everyday habits through different gaming strategies.

Page 15: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Behaviour Change PlatformPegaso Experience

• Develop Awareness

• Affective learning

• Create motivation

• Enable Behaviour Change

Page 16: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

The connection between BCP and EHR (Personal page)

Biological data

Physiological data

Physical activity data

Nutritional dataGP

Teen agers

Personal Health Folder

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Page 17: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Actual and future challeges

External platform could be able to identify potential health risk situation

eHealth system are from technical point of view able to transmit data, information, alert to the GP or other specific actor

Constrains:• Ethical and Privacy• Legal • Social acceptance • …

?

Behaviour changer

platforms

Fitness platforms

Life Style analysis

platforms

Wearable data

collectors and data analysis platforms

Page 18: Behaior change to develop a consistent appraoch against eating disorder needs a strong patient's empowerment

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Thank you

For any question

[email protected]