beyond patient support groups v2slides

34
Nothing for us, without us

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what it takes to move from patient support groups to health advocacy

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Page 1: Beyond Patient Support Groups V2slides

Nothing for us, without us

Page 2: Beyond Patient Support Groups V2slides

AgaliaZO Society of Volunteers Against

CancerPiraeus-Greece

Kathi ApostolidisChair Cancer Patient Rights Advocacy Program

Page 3: Beyond Patient Support Groups V2slides

Beyond..

Page 4: Beyond Patient Support Groups V2slides

cancer patient support groups

to..

Page 5: Beyond Patient Support Groups V2slides
Page 6: Beyond Patient Support Groups V2slides

CHANGECHANGE

Page 7: Beyond Patient Support Groups V2slides

FROM…What is

TO..What can

be

Page 8: Beyond Patient Support Groups V2slides

WHAT is

Page 9: Beyond Patient Support Groups V2slides

What can be

Page 10: Beyond Patient Support Groups V2slides

What is ‘Advocac

y’?

Page 11: Beyond Patient Support Groups V2slides

What is Grassroots Advocacy?

Page 12: Beyond Patient Support Groups V2slides

Spontaneous &

Natural

Page 14: Beyond Patient Support Groups V2slides

The Preparatory Step

Page 15: Beyond Patient Support Groups V2slides

The Reaching

Consensus Step

Page 16: Beyond Patient Support Groups V2slides

The Implementatio

n & Evaluation

Step

Page 17: Beyond Patient Support Groups V2slides

Why Health

Advocacy is Critical ?

Page 18: Beyond Patient Support Groups V2slides

The 3 Legs of Advocacy

•Lobbying

•Media

•Grassroots

Page 19: Beyond Patient Support Groups V2slides

Lobbying

Page 20: Beyond Patient Support Groups V2slides

MEDIA

Page 21: Beyond Patient Support Groups V2slides

AgaliaZO www. agaliazo.gr www.patientrights.grwww.twitter.com\agaliazo

www.facebook.com\agaliazo

Page 22: Beyond Patient Support Groups V2slides

Use of Internet & Social Media

Page 23: Beyond Patient Support Groups V2slides

Grassroots =

Networking & Communicatio

n

Page 24: Beyond Patient Support Groups V2slides

Networking

Page 25: Beyond Patient Support Groups V2slides

Communication

Page 26: Beyond Patient Support Groups V2slides

The One Little Thing That Makes

ALL the Difference

Page 27: Beyond Patient Support Groups V2slides

Persistence!

Page 28: Beyond Patient Support Groups V2slides

The most important thing

to remember about

following up is to…

Page 29: Beyond Patient Support Groups V2slides

DO IT!

Page 30: Beyond Patient Support Groups V2slides

Nothing for us, without us

Advocacy Examples

Page 31: Beyond Patient Support Groups V2slides

Campaign MEPs Against Cancer

Nothing for us, without us

Page 32: Beyond Patient Support Groups V2slides

Campaign for the vaccine against cervical cancer

Nothing for us, without us

Page 33: Beyond Patient Support Groups V2slides

“Never doubt that a small group of

thoughtful, committed citizens can change

the word; indeed, it’s the only thing that

ever does.” - Margaret Mead

Page 34: Beyond Patient Support Groups V2slides

Thank you for your

attention