childhood arthritis & beyond · 2019. 4. 1. · enabling change – lessons learned › mount...

ChildhoodArthritis

& Beyond

April 23–26, 2019Chateau Lake Louise, Canada

Program

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Childhood Arthritis and Beyond Chateau Lake Louise, Canada 2

Day 1 – Tuesday, April 23rd

Registration› Alpine Gallery

10:00 a.m.–9:30 p.m.

UCAN CAN-DU International Scientific Advisory Board Meeting› Beehive Room

10:00 a.m.–1:00 p.m.

Pre-Meetings – Networks› Parker Room

11:00 a.m.–5:00 p.m.

5:30 p.m.–6:20 p.m.

Networking Reception7:20 p.m.–9:30 p.m.

Rae YeungSusanne BenselerUCAN

Bettina HamelinOntario Genomics

Ed McCauleyUniversity of Calgary andGenome Alberta

Siàn BevanArthritis Society

Vandana AhluwaliaCanadian Rheumatology Association

TBDGenome Canada

Michael SalterThe Hospital for Sick Children

Opening SymposiumRealizing the Promiseof Precision Medicine› Mount Temple Ballroom

Sponsor: Amgen

Keynote6:20 p.m.–7:20 p.m.Joseph CafazzoToronto, Canada

Technology TransformingHealth Care


Day 2 – Wednesday, April 24th

Registration› Alpine Gallery

7:00 a.m.–9:30 a.m.

BREAK› Heritage Hall

8:45 a.m.–9:15 a.m.

Breakfast SymposiumERA: New Targets, Better Outcomes› Mount Temple Ballroom

Sponsor: SOBI

7:00 a.m.–8:45 a.m.

Robert ColbertBethesda, USA

From Genes to Function

Robert InmanToronto, Canada

Gene-Environment Interactions and Novel Treatment Targets in Spondyloarthritis

Shirley TseToronto, Canada

Clinical Care Innovation for Children with ERA

Hani El-GabalawyWinnipeg, Canada

Tadej AvcinLjubljana, Slovenia

Chairs

Speakers

Patient/Family Perspective Hut FamilyCalgary, Canada




11:45 a.m.–12:15 p.m

9:15 a.m.–11:45 a.m. Scientific Session 1Understanding the Biology of Arthritis› Mount Temple Ballroom

Trainee Presentation

Fabrizio De BenedettiRome, Italy

Robert ColbertBethesda, USA

Chairs

Speakers

Patient/Family Perspective Morgan FamilyCalgary, Canada

Rae YeungToronto, Canada

From Immunobiology to Classification

Peter NigrovicBoston, USA

Genetic Classification of Arthritis Across the Age Spectrum

Alexei GromCincinnati, USA

Lessons Learned from sJIA

Paul KubesCalgary, Canada

Novel Approaches toImaging Inflammation

Lysa LangevinToronto, Canada

TBA




2:15 p.m.–2:45 p.m.

12:15 p.m.–2:15 p.m. Lunch SymposiumUpdate on Uveitis› Mount Temple Ballroom

Rebecca ten CateLeiden, Netherlands

Claire LeBlancMontreal, Canada

Chairs

Speakers

Patient/Family Perspective Boyd FamilyCalgary, Canada

Alan RosenbergSaskatoon, Canada

Translational Lessons

A.V. RamananBristol, UK

Clinical Trials in Uveitis

Joke de BoerUtrecht, Netherlands

Uveitis Treatment Guidelines


4:45 p.m.–5:00 p.m. BREAK› Heritage Hall

Western Dinner and Dance› Brewster Barn

Cash Bar

7:30 p.m.–10:30 p.m.

UCAN Business Meetings/Annual General Meetings5:00 p.m.–6:45 p.m.UCAN CAN-DU› TBD

5:00 p.m.–5:45 p.m.

UCAN CURE› TBD

6:00 p.m.–6:45 p.m.

5:45 p.m.–6:00 p.m. BREAK› Heritage Hall


2:45 p.m.–4:45 p.m. Scientific Session 2Translational Research› Mount Temple Ballroom

Sebastiaan VastertUtrecht, Netherlands

Robert FuhlbriggeDenver, USA

Chairs

Speakers

Patient/Family Perspective Brigette ChangToronto, Canada

Hermine BrunnerCincinnati, USA

Predictors of Successful Stop of Anti-TNF Agents in JIA

Lucy WedderburnLondon, UK

Novel Biomarkers in JIA

Virginia PascualNew York, USA

Functional Genomics in JIA


Day 3 – Thursday, April 25th


9:30 a.m.–10:00 a.m.

7:00 a.m.–8:30 a.m. Breakfast SymposiumUpdate on Autoinflammation› Mount Temple Ballroom

Troels HerlinAarhus, Denmark

Merlijn van den BergAmsterdam, Netherlands

Chairs

Speakers

Patient/Family Perspective Freya FardenSaskatoon, Canada

Jasmin Kuemmerle-DeschnerTübingen, Germany

T2T: Treat to Target

AnnaCarin HorneStockholm, Sweden

MAS Complicating Autoinflammation

8:30 a.m.–9:30 a.m. Keynote Speech› Mount Temple Ballroom

Michael StrongPresident of Canadian Institutes of Health Research (CIHR)

A Look Into the Future ofPrecision Medicine



12:00–12:30 p.m. BREAK› Heritage Hall

10:00 a.m.–12:00 p.m. Scientific Session 3Clinical Innovation› Mount Temple Ballroom

Nicolino RupertoGenoa, Italy

Susanne BenselerCalgary, Canada

Chairs

Speakers

Patient/Family Perspective David PorteVancouver, Canada

Alessandro ConsolaroGenoa, Italy

Defining Disease Activity in JIA

Jaime GuzmanVancouver, Canada

Risk and Outcome Prediction in JIA

Joost SwartUtrecht, Netherlands

Treat to Target in JIA


Stephen WongLos Angeles, USA

Is HLA the Way for JIA?



12:30 p.m.–2:30 p.m. Lunch SymposiumUpdate on Systemic JIA› Mount Temple Ballroom

Sponsor: Novartis

Nico WulffraatUtrecht, Netherlands

Yukiko KimuraHackensack, USA

Chairs

Speakers

Patient/Family Perspective Vincent Del GaizoWhitehouse Station, USA

Sebastiaan VastertUtrecht, Netherlands

Translational Research in sJIA

Fabrizio De BenedettiRome, Italy

Novel Treatment Targets in sJIA

Hermine BrunnerCincinnati, USA

Clinical Trials in sJIA

Ricardo RussoBuenos Aires, Argentina

Real-Life Treat to TargetExperience in sJIA


2:30 p.m.–3:00 p.m.




5:00 p.m.–5:15 p.m.

Reception & Gala Dinner› Heritage Hall & Mount Temple Ballroom

Cash Bar

7:30 p.m.–10:00 p.m.

5:15 p.m.–6:45 p.m. UCAN Working Groups/Advisory Committees› TBD

Parallel Sessions

3:00 p.m.–5:00 p.m. Scientific Session 4Social and Economic Benefits – Evaluation and Impact› Mount Temple Ballroom

Marinka TwiltCalgary, Canada

Ciàran DuffyOttawa, Canada

Chairs

Speakers

Patient/Family Perspective Anouk VerwoerdUtrecht, Netherlands

Deborah MarshallCalgary, Canada

Individual and Society Burden of Arthritis

Catharine WhitesideToronto, Canada

Integrating Precision Medicine Into the Canadian Health Care System

TBDTBD

Precision Health andGenomics: Lessons fromAmazing Opportunities for Partnership in Alberta

Deborah LevyToronto, Canada

Innovative Strategies forAccessing Biologics in Canada

Luiza Grazziotin LagoEnschede, Netherlands

Michelle KipCalgary, Canada

TBA



Day 4 – Friday, April 26th

9:10 a.m.–9:40 a.m. BREAK› Heritage Hall

7:30 a.m.–9:10 a.m. Breakfast SymposiumTransition in Childhood Arthritis› Mount Temple Ballroom

Elizabeth StringerHalifax, Canada

Dianne MosherCalgary, Canada

Chairs

Speakers

Patient/Family Perspective Nadine van Ingen-van LieropApeldoorn, NetherlandsIris van GemertRoosendaal, Netherlands

Jennifer StinsonToronto, Canada

Innovative Self-Management Strategies

Philomine van PeltRotterdam, Netherlands

Models of Care for Transition

Kirsten MindenBerlin, Germany

Transition Outcomes inChildhood Arthritis

Lynn SpiegelJennifer StinsonToronto, Canada

Digital Interventions Support Self-Management in Teens with JIA


1:00 p.m.–5:00 p.m. UCAN CURE Research Oversight Committee MeetingGenome Canada, Ontario Genomics, Genome Alberta,and UCAN CURE Research Oversight Committee

Day 4 – Friday, April 26th

9:40 a.m.–11:40 p.m. Closing SymposiumEnabling Change – Lessons Learned› Mount Temple Ballroom


Nico WulffraatUtrecht, Netherlands

Chairs

Closing Remarks

Panel

Eugene NelsonDartmouth Institute, USA

Joanne DiNardoArthritis Society, Canada

Philomine van PeltRotterdam, NetherlandsGuy Eakin

Arthritis Foundation, USA

Laura SchanbergCARRA, USA

Susanne BenselerCAPRI, Canada

Michael HillmerOntario Ministry of Health and Long-Term Care, Canada

Ilse CustersZonMw, Netherlands

David ProwtenUCAN Knowledge UserJuvenile Diabetes Research Foundation, Canada


Susanne BenselerCalgary, Canada

Shaping the Future of Childhood Arthritis Research: UCAN and Beyond


Sponsors

Platinum

Gold

Diamond

Bronze

Grant Funding Agencies

childhood arthritis & beyond · 2019. 4. 1. · enabling change – lessons learned › mount...

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