Presented by the Charcot-Marie-Tooth Association www.wearethecmta.com

Uniting across the country to work toward one common goal…

…a world without CMT.

CMT Awareness Week events across the United States organized by your local facilitators:

California

• Los Altos Area Support Group:o Garage Sale Fundraisero Collection Jars: “Time for Change, Fund STAR™.”o Distribution of CMT Awareness Week Materials

• Visalia Area Support Group:o Poster and Donation Jars Throughout Countyo Information Booth at Cypress Rehabo Distribution of CMT Awareness Week Materialso Local Media Relations- radio, newspaper

California

• Santa Barbara Area Support Group:o Wine tastingso Walks for CMTo Glee Fashion Show Preview at Macy’so Information Booths at Shopping Centerso Media Relationso Special Web Posts Featuring Articles from Doctors and CMT Patients o Distribution of CMT Brochures

Colorado

• Denver Area Support Group:o CMT Night at Chad’s Grillo Media Relations- Doctor and Patient Interview for Local Dailyo Health Fair participation at St. Andrews Catholic Churcho Letter to Colorado Governor by Support Group Action Facilitatorso Triathlon Competitors- Jonah Berger and Sean McKaleo CMT Booth at Bike Rally at Exempla/Good Samaritan Medical Center in Lafayette, COo Distribution of CMT Awareness Week Materials

Florida

• Tampa Bay Area Support Group:o Awareness Table at Eckerd Collegeo Information Set-Up at Local Libraryo Post Office CMT Displayo Media Relationso Outreach to U.S. Representative Kathy Castoro Distribution of CMT Awareness Week Materials

Georgia

• Atlanta Area Support Group:o Meetings with Local Congressmano Display Booth at CHOA Egelstono Newsletter Articleso Media Relations- Local Dailies and TVo Discussions of CMT with Doctors at Neurology clinicso Information Displayo Distribution of CMT Awareness Week Materials

Illinois• Chicago Area Support Group:o Reach for the STARs™- Walk and Roll for CMTo Media Relationso Distribution of CMT Awareness Week Materials

Kansas• Wichita Area Support Group:o Balloon Launcho Information Displayso Distribution of CMT Awareness Week Materials

Kentucky• Burlington Area Support Group:o School Outreach Through CMT T-shirtso Distribution of CMT Awareness Week Materials

Maryland

• Williamsport Area :o Scrapbooking Event and Fundraisero Distribution of CMT Awareness Week Materials

Massachusetts

• Boston Area Support Group:o Pandora STAR™ Bead Fundraisero Media Relationso Distribution of CMT Awareness Week Materials

Michigan

• Ann Arbor Area/Kalamazoo Area Support Groups :o Ministry Counter- Information Distributiono CMT Information on Community Forum Websiteo Media Relations with Local TV and Dailieso Distribution of CMT Awareness Week Materials

Nevada• Las Vegas Area Support Group:o The Archy Train (Jerry Cross)o MDA Stride & Ride at Town Squareo Pahrump Fair & Festival and Paradeo Distribution of CMT Awareness Week Materials

New Jersey• Central New Jersey Area Support Group:o “Dine to Donate” Fundraiser at 6 Locationso CMT Education at Marlboro Council Meetingo Distribution of CMT Awareness Week Materials

New York

• Albany Area Support Group:o “Dine to Donate” Fundraisero Media Relationso Distribution of CMT Awareness Week Materials

• Cornwall Area:o Poster distribution to Doctors and Physicians Officeso Mobile Display of Archy and CMT Postero CMT Buttons and T-Shirt Distribution

• Westchester Area Support Group:o Fundraising for Ken Gomez “Ride for a Cure”o Distribution of CMT Awareness Week Materials

North Carolina• Triangle Area Support Group:o Materials Distributiono CMT Information Display at Local Shopping Centerso Creation of Educational Quizzes

Pennsylvania

• Johnstown Area Support Group:o CMT Education at Local Schoolso “Cooking Adventures with Archy,” Cookbook/Coloring book for Kidso Booth at Conemaugh Neuroscience Center and “CMT Night” Presentationo Media Relations o Walk/Run on Incline Trailo CMT Balloon Release

• Philadelphia Area Support Group:o Distribution of CMT Awareness Week Materialso Scheduled CMT Booth at Crozer-Chester Medical Center

Tennessee

• Savannah Area Support Group: o Trail of Tears- Motorcycle Bootho CMT Education at ECM Hospital and Helen Keller Hospitalo Information Distribution at Bone and Joint Clinicso Display at Sunset Trust Banko Distribution of CMT Awareness Week Materials

Virginia

• Williamsburg Area Support Group:o Local PSA Distribution to Radio Stationso Media Relations- Local Dailieso Information Distribution to Doctors Offices, Local Businesses and Librarieso Classroom Presentation at Local Elementary Schoolso Distribution of CMT Awareness Week Materials

Washington, D.C.• Washington, D.C. Metro Area o Support Group Meetingso Distribution of CMT Awareness Week Materials

Other Support and Action Groups Across the U.S. Many other CMT support groups across the nation played an integral role in distributing information, CMT materials and awareness about CMT throughout the community and online.

• AL- Birmingham Area• AZ- Phoenix Area• CA- Los Angeles Area• CA- Sacramento Area• CA- San Diego Area• CA- Santa Rosa Area• CA- SF/East Bay Area• CT- East Providence Area• FL- Inverness Area• FL- Orlando Area• LA- Mississippi/Louisiana Area• MD- Hagerstown Area• ME- Portland Area

• MI- Chesaning Area• MN- Benson Area• MO- Anderson Area• MO- St. Louis Area• NV- Reno Area• NH- New Hampshire Area• NM- Albuquerque Area• NY- Greater New York Area • NY- Horseheads Area• NC- Triangle Area• OH- Greenville Area• OR- Portland Area• PA- Bucks County Area

• PA- Northwestern Area• PA- Pittsburgh Area• RI- Rhode Island Area• TN- Nashville Area• TX- Dallas Area • TX- Houston Area• VT- Vermont Area• VA- Harrisonburg Area• WA- Seattle Area• WA- Tacoma Area

A Special Thanks to the STARs that Rose Above and Beyond

• Gretchen Glick (Extensive Community Outreach)• Dick Kutz (Collage Project)• Susan Ruediger (Email Chain Project)• Karen Smith (Archy Project)• Mark Willis (Social Media Profile Picture Change Intiative)• Pat Dreibelbis• Kim Magee • Elizabeth Ouellette• Dana Schwertfeger• Jeana Sweeney

Around the CountryAfter Awareness Week: Onward and Upward!

• Cooterfest- www.cooterfestival.com • igive donations: www.igive.com • Zazzle CMTA Store - Archy T-Shirts and Stamps: www.zazzle.com/cmtaatzazzle • ebay Sales through Mission Fish: www.ebay.com • Tim Phillips: CMT Creates Music: www.timjohnphillips.com • Active Forever: www.cmtausa.org • Ken Gomez Ride for the Cure: http://www.facebook.com/ken.gomez • San Diego CMT2 Neurology Meeting: Nov. 10-12, 2010• Mike Shy and Steve Scherer Present in California• Daily Dundee’s Bar and Grill Event: Information and Donations• GE Aviation: 2nd Annual Golf Outing Oct. 21• CMT Education in the Classroom • Future Fundraising Appeals• Bowling Fundraiser California• Chris Wodke’s Run for the Cure• And MORE!

Activate.

Educate.

Donate.

The time is now.

“A leader is one who knows the way, goes the way and shows the way.”

- John C. Maxwell

Thank you for all that you do!

http://www.danosongs.com