data commons in the making - capssi.eu · connected technologies for social good 2 0 1 8 mara...
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Connected Technologies for Social Good 2 0 1 8
Mara Balestrini@marabales
DATA COMMONS IN THE MAKINGExperiences on Developing a Citizen-centred IoT
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THE BRISTOL APPROACH
#BristolApproach | @marabalestrini
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#BristolApproach | @marabalestrini
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Plaça del sol
Exploring analogue and digital sensing, to better build bird feeders
The Making Sense Barcelona team collaborated with a group of 15 students aged 9-14 years old to explore the potential of both analogue and digital sensing to provide a clearer picture of how pollution can affect local bird species.
USERS50
PARTICIPANTS
ISSUENOISE
POLLUTION
CITYBARCELONA
LOCATION
#MakingSenseEU | @marabalestrini
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FINDINGS
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FINDINGS
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IN THE MAKING...
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We created a novel onboarding application that aims to 1- facilitate the process of sensor setup and connection by non-experts, 2- allow citizens to assign licenses to their data using smart contracts. The application provides an integrated design experience, scaffolds the complexity of the setup process, and guides the user in a conversational fashion. It lowers the barriers to entry to the IoT.
NEXT STEPS
SMART CITIZEN KIT: LOWERING ENTRY BARRIERS
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Our data is often taken without our permission. Especially when it comes to healthcare and social media data, not enough robust data licenses exist to empower us to share them safely. Let’s create a robust open standard for health data licensing. Let’s give the ownership of this data to those whom it belongs to, but let’s concept these from the bottom up.
NEXT STEPS
TRIEM: ETHICS CROWDSOURCING
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SalusCoop.org is a framework for a citizen-led approach to the collaborative managing and governance of health data. It legitimizes data ownership for citizens and enables them to exercise control over the fate of their records while facilitating data sharing to accelerate research and innovation in healthcare.
NEXT STEPS
SALUSCOOP: ENABLING DATA SOVEREIGNTY
Citizen cooperative of health data for science
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"Data is the raw material of the 21st century, and the question
"Who owns that data?" will decide in the end whether democracy, a participatory social model, and economic
prosperity can be combined."
ANGELA MERKEL
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THANK YOU!Mara Balestrini
@marabales
Connected Technologies for Social Good 2 0 1 8