dave wilkinson: rare disease day 2016 conference
TRANSCRIPT
Enhancing Collaboration Under The Federal Genomics R&D Initiative
Through An Innovation Management Strategy
Dave Wilkinson, Public Health Agency of Canada CORD Conference March 9, 2016
Genomics R&D Initiative: Shared Priority Projects
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• GRDI program created in 1999 as the genomics funding counterpart to Genome Canada for federal scientists.
• 8 science-based departments and agencies (AAFC, CFIA, DFO, EC, HC, NRC, NRCan, PHAC)
• Shared Priority Projects: High impact solutions to cross-cutting issues designed for economic, social, and environmental benefits § food and water safety, quarantine and
invasive alien species § biodiversity, antimicrobial resistance
Project Challenges • End user engagement:
§ Need to do a better job of identifying specific end users for potential research outputs
§ End users need to be identified at the beginning of the project, then informed and consulted throughout
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• Rights to access/transfer samples coming from a variety of sources
• Data sharing - right to access/share data (within GRDI and externally); as widely as possible; inter-operability, acknowledgement of contributions; etc.
• Clarity on IP issues, including open source software and collaborative agreements
• Authorship and publication guidance
Innovation Management Strategy (IMS)
Goals: 1. Enhance knowledge mobilization and
technology transfer 2. Facilitate interdepartmental collaboration Mechanisms: 1. Policy framework 2. Community of Experts
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IMS Development
• Creation of Community of Experts • Development of overarching principles then
development of subject-specific guidance in line with principles
• Discussions with departmental experts and researchers to come up with policy framework
• Iterative development of guidance documents with research staff and subject matter experts
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End User Engagement
• Consult with end users to identify requirements • Liaise with end users to discuss project
developments to ensure outputs are still in line with needs
• Work with end users to develop deployment paths to ensure outputs will be taken up
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• Identify specific contacts within end user organisations and communities
Intellectual Property
• Control of IP rests with the departments whose employees made a creative, inventive, or intellectual contribution to it
• Joint IP “owners” agree among themselves how it will be administered
• All IP may be used by all Project participants to achieve project goals
• IP only provided to a third party with permission of “owners”
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Data Sharing and Open Science
• Establish a centralised repository for GRDI Data • Distinctions drawn between internal sharing for
project and non-project use, and internal versus external sharing
• Must acknowledge contributions to creation of the data at time of sharing
• Commitment to abide by Open Science requirements set forth by Treasury Board
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• Commitment to share as much data as quickly and as broadly as possible
Material Transfer
• Identify materials to be used as soon as possible – ensuring consider any restrictions on use
• Interdepartmental Material Transfer Understanding drafted to facilitate exchange of materials among GRDI Members
• Generator of the material owns it • Can’t be shared unless owner agrees • Need to acknowledge source of all materials in any
publication
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Community of Experts • Subject matter experts within each
department who can provide advice; “on call” to provide support within departments
• Organized into “groups” of particular expertise – can be discussion group if an issue should arise
• Possibly play a “conflict resolution” role – but with IMS and guidance document potential for conflict should be significantly reduced
• Continue to provide feedback and develop guidance
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grdi-irdg.collaboration.gc.ca