Dear Endocrinologist: We no longer live in the 1990’s

Joyce Lee, MD, MPH

http://www.doctorasdesigner.com/ Twitter: @joyclee

Hashtag: #2016ADA

JAMA Pediatrics (Social Media Editor) Unitio Samuelson Associates Verily

82 publications NIH funding

Obesity & Type 2 diabetes: Biomarkers/Child Health Policy

Type 1 diabetes:

Learning Health Systems Mobile Technology/Data Visualization/

Participatory Design/Online Communities

Q: Are there any other uses of social media in clinical medicine or

research that you want to learn about?

A: “No. This is a complete waste of time. This is not real research.

The fad will die out soon.”

You are a Public Physician whether you like

it or not

Conversations cannot be controlled, they can only be joined

-Facebook Effect

When a physician asks, “Should I post this on social media?” the answer does not depend on whether the content is professional or personal but instead depends on whether it is appropriate for a physician in a public space

A Few Rules of Thumb

Remember HIPAA! Don’t talk about patients, even in general

terms

If you wouldn’t say it in an elevator, don’t say it online

Don’t Fear Social Media, Leverage It!

Crafting Your Professional Identity

@egghead

@SeattleMamaDoc @Doctor_V

@EndoGoddess @Dermdoc

@kidney_boy

Your name? Your specialty? It’s up to you

Pin a tweet

Tweet

140 characters

Tweet something of interest

#diabetes #quantifiedself

#mhealth #dataviz #dsma #doc

#dblog

A #hashtag can mean many things like a topic or group

Use #hashtags

#showmeyourpump

#openaps

Mention

Reply

RT = Retweet/Quote Tweet

h/t = Hat tip

Following & Followers

To keep abreast of and troubleshoot diabetes technology in real-time

To learn what’s actually useful for our patients

To witness the incredible creativity and hacking

capabilities of individuals/families with diabetes

iSeismometer iPhone app + CGM on nightstand = effective alarm!

Glucose Sensor + Flovent = Rash-free?

18,000+ members

Find New Tools for Your Research

#dataviz

AHRQ grant- Personalized patient-centered

data visualizations for diabetes

To Connect directly with Patients/Caregivers

for Research

16 cases worldwide Parent advocacy/fundraising

Treatments Clinical Trials

Only pt with NGLY-1

“It’s kind of a shift in the scientific world that we have to recognize-that, in this day of social media, dedicated, educated, and well-informed families have the ability to make a huge impact. Gone are the days when we could just say, we’re a cloistered community of researchers, and we alone know how to do this”

-Vandana Shashi

nightscoutstudy.info

To connect our patients and families with online

communities

myglu.org

Diabetes Online Community (DOC)

“Social media has saved lives in the diabetes community. It has helped people who are struggling with their diabetes to take control and improve their health. It shows people that there isn’t such a thing as a “perfect diabetic,” but there can be an educated and determined one.”

-Kerri Sparling @sixuntilme

Social media is changing what it means to be a doctor today

Twitter: @joyclee www.doctorasdesigner.com www.nightscoutstudy.info

http://twittersuperuser.com/

Special thanks to patients/ caregivers/docs online, &

the human network!

www.diabetesemoticons.com

Tweet frequently. Have something interesting to say.

Live-tweet events and breaking news. Find & follow people who share your

interests. Join the conversation.

Give more than you ask for. Join tweetups and Twitter chats.

Be yourself.