![Page 1: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/1.jpg)
Dear Endocrinologist: We no longer live in the 1990’s
Joyce Lee, MD, MPH
http://www.doctorasdesigner.com/ Twitter: @joyclee
Hashtag: #2016ADA
![Page 2: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/2.jpg)
JAMA Pediatrics (Social Media Editor) Unitio Samuelson Associates Verily
![Page 3: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/3.jpg)
82 publications NIH funding
Obesity & Type 2 diabetes: Biomarkers/Child Health Policy
Type 1 diabetes:
Learning Health Systems Mobile Technology/Data Visualization/
Participatory Design/Online Communities
![Page 4: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/4.jpg)
![Page 5: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/5.jpg)
![Page 6: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/6.jpg)
Q: Are there any other uses of social media in clinical medicine or
research that you want to learn about?
A: “No. This is a complete waste of time. This is not real research.
The fad will die out soon.”
![Page 7: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/7.jpg)
You are a Public Physician whether you like
it or not
![Page 8: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/8.jpg)
![Page 9: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/9.jpg)
![Page 10: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/10.jpg)
![Page 11: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/11.jpg)
Conversations cannot be controlled, they can only be joined
-Facebook Effect
![Page 12: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/12.jpg)
![Page 13: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/13.jpg)
When a physician asks, “Should I post this on social media?” the answer does not depend on whether the content is professional or personal but instead depends on whether it is appropriate for a physician in a public space
![Page 14: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/14.jpg)
![Page 15: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/15.jpg)
A Few Rules of Thumb
![Page 16: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/16.jpg)
Remember HIPAA! Don’t talk about patients, even in general
terms
If you wouldn’t say it in an elevator, don’t say it online
![Page 17: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/17.jpg)
![Page 18: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/18.jpg)
Don’t Fear Social Media, Leverage It!
![Page 19: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/19.jpg)
![Page 20: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/20.jpg)
![Page 21: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/21.jpg)
![Page 22: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/22.jpg)
Crafting Your Professional Identity
![Page 23: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/23.jpg)
@egghead
![Page 24: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/24.jpg)
@SeattleMamaDoc @Doctor_V
@EndoGoddess @Dermdoc
@kidney_boy
Your name? Your specialty? It’s up to you
![Page 25: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/25.jpg)
![Page 26: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/26.jpg)
![Page 27: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/27.jpg)
![Page 28: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/28.jpg)
![Page 29: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/29.jpg)
![Page 30: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/30.jpg)
Pin a tweet
![Page 31: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/31.jpg)
Tweet
140 characters
![Page 32: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/32.jpg)
Tweet something of interest
![Page 33: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/33.jpg)
#diabetes #quantifiedself
#mhealth #dataviz #dsma #doc
#dblog
A #hashtag can mean many things like a topic or group
![Page 34: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/34.jpg)
Use #hashtags
![Page 35: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/35.jpg)
#showmeyourpump
![Page 36: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/36.jpg)
#openaps
![Page 37: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/37.jpg)
![Page 38: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/38.jpg)
Mention
![Page 39: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/39.jpg)
Reply
![Page 40: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/40.jpg)
RT = Retweet/Quote Tweet
h/t = Hat tip
![Page 41: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/41.jpg)
Following & Followers
![Page 42: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/42.jpg)
![Page 43: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/43.jpg)
![Page 44: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/44.jpg)
To keep abreast of and troubleshoot diabetes technology in real-time
![Page 45: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/45.jpg)
![Page 46: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/46.jpg)
![Page 47: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/47.jpg)
To learn what’s actually useful for our patients
![Page 48: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/48.jpg)
![Page 49: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/49.jpg)
To witness the incredible creativity and hacking
capabilities of individuals/families with diabetes
![Page 50: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/50.jpg)
iSeismometer iPhone app + CGM on nightstand = effective alarm!
![Page 51: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/51.jpg)
Glucose Sensor + Flovent = Rash-free?
![Page 52: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/52.jpg)
![Page 53: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/53.jpg)
![Page 54: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/54.jpg)
![Page 55: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/55.jpg)
![Page 56: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/56.jpg)
![Page 57: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/57.jpg)
![Page 58: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/58.jpg)
![Page 59: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/59.jpg)
18,000+ members
![Page 60: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/60.jpg)
![Page 61: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/61.jpg)
![Page 62: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/62.jpg)
Find New Tools for Your Research
![Page 63: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/63.jpg)
#dataviz
![Page 64: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/64.jpg)
![Page 65: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/65.jpg)
AHRQ grant- Personalized patient-centered
data visualizations for diabetes
![Page 66: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/66.jpg)
To Connect directly with Patients/Caregivers
for Research
![Page 67: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/67.jpg)
![Page 68: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/68.jpg)
![Page 69: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/69.jpg)
16 cases worldwide Parent advocacy/fundraising
Treatments Clinical Trials
Only pt with NGLY-1
![Page 70: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/70.jpg)
“It’s kind of a shift in the scientific world that we have to recognize-that, in this day of social media, dedicated, educated, and well-informed families have the ability to make a huge impact. Gone are the days when we could just say, we’re a cloistered community of researchers, and we alone know how to do this”
-Vandana Shashi
![Page 71: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/71.jpg)
nightscoutstudy.info
![Page 72: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/72.jpg)
![Page 73: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/73.jpg)
To connect our patients and families with online
communities
![Page 74: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/74.jpg)
myglu.org
Diabetes Online Community (DOC)
![Page 75: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/75.jpg)
“Social media has saved lives in the diabetes community. It has helped people who are struggling with their diabetes to take control and improve their health. It shows people that there isn’t such a thing as a “perfect diabetic,” but there can be an educated and determined one.”
-Kerri Sparling @sixuntilme
![Page 76: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/76.jpg)
![Page 77: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/77.jpg)
![Page 78: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/78.jpg)
![Page 79: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/79.jpg)
![Page 80: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/80.jpg)
![Page 81: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/81.jpg)
Social media is changing what it means to be a doctor today
![Page 82: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/82.jpg)
![Page 83: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/83.jpg)
Twitter: @joyclee www.doctorasdesigner.com www.nightscoutstudy.info
http://twittersuperuser.com/
Special thanks to patients/ caregivers/docs online, &
the human network!
www.diabetesemoticons.com
![Page 84: Dear Endocrinologist, We No Longer Live in the 1990's](https://reader031.vdocuments.net/reader031/viewer/2022022411/58ef3e591a28ab34048b46cd/html5/thumbnails/84.jpg)
Tweet frequently. Have something interesting to say.
Live-tweet events and breaking news. Find & follow people who share your
interests. Join the conversation.
Give more than you ask for. Join tweetups and Twitter chats.
Be yourself.