decide treatment - a new approach to better health

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Page 1: Decide treatment - a new approach to better health
Page 2: Decide treatment - a new approach to better health

• Physician• Psychiatrist• Editor• Head of department• Researcher• Chief adviser• Software developer

Page 3: Decide treatment - a new approach to better health

So many people, so many with chronic disorders

Page 4: Decide treatment - a new approach to better health

Healthcare is about

health

Page 5: Decide treatment - a new approach to better health

I want to be

healthy!

Page 6: Decide treatment - a new approach to better health

SUBOPTIMAL HEALTH:

6 COMMON REASONS

Page 7: Decide treatment - a new approach to better health

1. Does not use the best main treatment2. Does not use the optimal dosages

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others

6. Is not happy with the decision-making

Page 8: Decide treatment - a new approach to better health

1.Does not use the best main treatment

2. Does not use the optimal dosages3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others

6. Is not happy with the decision-making

Page 9: Decide treatment - a new approach to better health

1.Does not use the best main treatment

2.Does not use the optimal dosages

3. Difficult to take treatment as agreed4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others

6. Is not happy with the decision-making

Page 10: Decide treatment - a new approach to better health

1.Does not use the best main treatment

2.Does not use the optimal dosages

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle5. Does not get enough support from others

6. Is not happy with the decision-making

Page 11: Decide treatment - a new approach to better health

1.Does not use the best main treatment

2.Does not use the optimal dosages

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others6. Is not happy with the decision-making

Page 12: Decide treatment - a new approach to better health

1.Does not use the best main treatment

2.Does not use the optimal dosages

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others6. Is not happy with the decision-making

Page 13: Decide treatment - a new approach to better health

HEALTH OPTIMISATION

1. Finds the best available treatment

2. Takes the optimal dosage

3. Uses the treatment as agreed

4. Leads a very healthy lifestyle

5. Takes part in decisions

6. Receives enough support

Page 14: Decide treatment - a new approach to better health

An approach from the UK calling for the use of

technology

Figure 1. Summary of the four principles of medicines optimization

Page 15: Decide treatment - a new approach to better health

Increasing the effectiveness of adherence interventions may have

a far greater impacton the health of the population

than any improvement in specific medical treatments

Bryan Haynes

Page 16: Decide treatment - a new approach to better health

Increasing the effectiveness of adherence interventions may have

a far greater impacton the health of the population

than any improvement in specific medical treatments

Bryan Haynes

And this is only problem #3 of the 6

Page 17: Decide treatment - a new approach to better health

6 STRATEGIES FOR OPTIMAL HEALTH

Page 18: Decide treatment - a new approach to better health

1. Finds the best available treatment

2. Takes the optimal dosage

3. Uses the treatment as agreed

4. Leads a very healthy lifestyle

5. Takes part in decisions6. Receives enough support

Page 19: Decide treatment - a new approach to better health
Page 20: Decide treatment - a new approach to better health

BACKGROUND

Page 21: Decide treatment - a new approach to better health

HVA ER BEST Å GJØRE?TEKNISK STØTTE:

• Systematisk monitorering av effekter• Monitorering av annen info, som søvn og labsvar• Optimalisering av compliance• Integrert kunnskap fra mange kilder• Rangering av behandlinger ut fra forskning og reelle

effekter• Hjelp til å formidle kunnskap til henne på en forståelig

måte• Hjelp til å involvere henne i valget

Contributors:

Page 22: Decide treatment - a new approach to better health

London, Sydney, Seoul, Chicago,Odessa, Dubai, Singapore

Professor Jack Dowie

Page 23: Decide treatment - a new approach to better health

Frameworks:

1. Multi-criteria decision analysis

2. Single subjects research designs

3. Shared decision-making

Page 24: Decide treatment - a new approach to better health

Multi-criteria decision analysisMathematics Behavioral decision theoryEconomics Computer technologySoftware engineering Information systems

Page 25: Decide treatment - a new approach to better health

Multi-criteria decision analysisMathematics Behavioral decision theoryEconomics Computer technologySoftware engineering Information systems

• Includes exactly what is needed for optimal decisions

• Enables valid and consistent integration of large amounts of data

• Takes knowledge and preferences as input for calculations of treatment values for the individual

Page 26: Decide treatment - a new approach to better health

Single subjects research designs

Time

Deve

lopm

ent V

aria

ble

Page 27: Decide treatment - a new approach to better health

• What works for groups of people generally does not work for you!

Time

Deve

lopm

ent V

aria

ble

• Measure treatment effects and find out: Right: With treatmentMiddle: Without treatmentLeft: With treatment

• Conclusion: Less symptoms with treatment!

Page 28: Decide treatment - a new approach to better health

Shared decision-making

Page 29: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

Page 30: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient

Page 31: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

Page 32: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

4. Ask what the patient wants the treatment to do for her

Page 33: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

4. Ask what the patient wants the treatment to do for her5. Tell what the patient can expect from the best and worst treatment, on all outcomes

Page 34: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

4. Ask what the patient wants the treatment to do for her5. Tell what the patient can expect from the best and worst treatment, on all outcomes

6. Find out which treatment fits her preferences most

Page 35: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

4. Ask what the patient wants the treatment to do for her5. Tell what the patient can expect from the best and worst treatment, on all outcomes

6. Find out which treatment fits her preferences most

7. Agree on what is the best treatment

Page 36: Decide treatment - a new approach to better health

Shared decision-making1. Get the decision on the table

2. Acknowledge that it´s not possible to find the best treatment without knowing what´s important to the patient3. Get all available options on the table

4. Ask what the patient wants the treatment to do for her5. Tell what the patient can expect from the best and worst treatment, on all outcomes

6. Find out which treatment fits her preferences most

7. Agree on what is the best treatment

8. Provide support and allow the patient to participate in the decision process to the extent and in the ways preferred

Page 37: Decide treatment - a new approach to better health

Pilot: Bipolar disorder

Page 38: Decide treatment - a new approach to better health

Pilot: Bipolar disorder

• A very complex disorder• Highly invididual course and

treatment results• Can be unpredictable• Serious consequences

very common• Fatal consequences not rare

Page 39: Decide treatment - a new approach to better health

New knowledge summary methods• Fast and frugal • Patient-oriented • Decision-focused

Page 40: Decide treatment - a new approach to better health

New knowledge summary methods• Fast and frugal • Patient-oriented • Decision-focused

Addresses all patient-important outcomes

Page 41: Decide treatment - a new approach to better health

DECIDE TREATMENT: 18 FEATURES TAILORED TO SOLVE THE 6 PROBLEMS

Page 42: Decide treatment - a new approach to better health

1. Does not use the best main treatment

Page 43: Decide treatment - a new approach to better health

1. Does not use the best main treatmentLet´s integrate all available knowledge!

Page 44: Decide treatment - a new approach to better health

Best research results

Page 45: Decide treatment - a new approach to better health

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others

6. Is not happy with the decision-making

+ All earlier experiences

Best research results

Page 46: Decide treatment - a new approach to better health

3. Difficult to take treatment as agreed

4. Difficult to lead a healthy lifestyle

5. Does not get enough support from others

6. Is not happy with the decision-making

+ All doctor´s experiences

Best research resultsAll earlier experiences

Page 47: Decide treatment - a new approach to better health

Best research resultsAll earlier experiencesAll doctor´s experiences+ Removes contraindicated and irrelevant options and outcomes

Page 48: Decide treatment - a new approach to better health

Best research resultsAll earlier experiencesAll doctor´s experiencesRemoves contraindicated and irrelevant options and outcomes

+ Measured treatment results

Page 49: Decide treatment - a new approach to better health

Best research resultsAll earlier experiencesAll doctor´s experiencesRemoves contraindicated and irrelevant options and outcomesMeasured treatment results

= a fully populated decision matrix

Page 50: Decide treatment - a new approach to better health
Page 51: Decide treatment - a new approach to better health

Ranking and expected value of available treatments

Page 52: Decide treatment - a new approach to better health

Ranking and expected value of available treatments

Page 53: Decide treatment - a new approach to better health

Ranking and expected value of available treatmentsNo action is evidence-based in this world. All human behaviour is knowledge- and preference-based

Page 54: Decide treatment - a new approach to better health

What health is to her

Page 55: Decide treatment - a new approach to better health

Her personal trade-off

Page 56: Decide treatment - a new approach to better health

Ranking based on trade-off + all evidence

Page 57: Decide treatment - a new approach to better health

Personalised ranking, rather than the recommendations for an “average patient” in clinical guidelines

Page 58: Decide treatment - a new approach to better health

Click at the bottom left to start the movie!

Page 59: Decide treatment - a new approach to better health

Let´s pick one of the best!

Page 60: Decide treatment - a new approach to better health

Let´s find out how they compare

Page 61: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Does not use the optimal dosages

Page 62: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage

Page 63: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage

Page 64: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Difficult to take treatment as agreed

Page 65: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

Page 66: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Difficult to lead a healthy lifestyle

Page 67: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Decides on, reminded about, inspect

Page 68: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Decides on, reminded about, inspect

5. Does not get enough support from others

Page 69: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Decides on, reminded about, inspect

5. Decides on support and receives it

Page 70: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Decides on, reminded about, inspect

5. Decides on support and receives it

6. Is not happy with the decision-making

Page 71: Decide treatment - a new approach to better health

1. Does not use the best main treatment

2. Can find the best dosage3. Reminded of, signs off, look at together

4. Decides on, reminded about, inspect

5. Decides on support and receives it

6. Decides on decision quality and measures it

Page 72: Decide treatment - a new approach to better health

The patient´s treatment plan• Main treatment• Additional ones• Lifestyle measures

Page 73: Decide treatment - a new approach to better health

New side effectsLife eventsTreatment changesAppointments

Page 74: Decide treatment - a new approach to better health

Objective data• From the mobile• From the watch• From EMR

Page 75: Decide treatment - a new approach to better health

Text, video, graphics reached with one click from the panels

Page 76: Decide treatment - a new approach to better health

12 panels condensing huge amounts of data= Solid ground for shared decisions

Page 77: Decide treatment - a new approach to better health

Where is shared decision-making?

Page 78: Decide treatment - a new approach to better health

Where is shared decision-making?

1. Finds the best available treatment

2. Takes the optimal dosage

3. Uses the treatment as agreed

4. Leads a very healthy lifestyle

5. Takes part in decisions6. Receives enough support

here here

here

here

here

here

Page 79: Decide treatment - a new approach to better health
Page 80: Decide treatment - a new approach to better health

Integration in DIPS

Page 81: Decide treatment - a new approach to better health

Coordinated with and reflected in government whitepapers and

initiatives

Page 82: Decide treatment - a new approach to better health

Systems in the making for people with:

• Heart disease• Asthma• Stroke• Hypertension• MS• COPD• Diabetes

• Bipolar disorder• Palliative care • Lung cancer• Schizophrenia• Pregnancy• HIV• Psoriasis/eczema

Page 83: Decide treatment - a new approach to better health

5 studies as per 16.11.16 5 PhDs

Page 84: Decide treatment - a new approach to better health

Results:

SUS score 78

Tested with 88 potential usersNorway, UK, Ukraine

Above 68 is good

Page 85: Decide treatment - a new approach to better health

I don´t want to stop using this

Patients:

I feel safer having this system

I see the big picture very fast

Doctors:

We quickly get to the main issues

Results:

Page 86: Decide treatment - a new approach to better health

System modules

Page 87: Decide treatment - a new approach to better health

24 interconnected modules enriching each other

Page 88: Decide treatment - a new approach to better health

Modules in patient decision aids

Page 89: Decide treatment - a new approach to better health

Modules in clinical practice guidelines

Page 90: Decide treatment - a new approach to better health

You could be an author of a Health Helper!

Page 91: Decide treatment - a new approach to better health
Page 92: Decide treatment - a new approach to better health

THE ALTERNATIVE?

Page 93: Decide treatment - a new approach to better health

Take this and come back in a month

Page 94: Decide treatment - a new approach to better health

Take this and come back in a month

We can continue with business as usual:• No systematic measurement

of treatment effects

• Trust that our brains can process all necessary data

• No digital support outside of the encounter

Page 95: Decide treatment - a new approach to better health

CONCLUSION

Page 96: Decide treatment - a new approach to better health

Finding out what works for you should be as systematic as finding out what works for groups (= research)

Page 97: Decide treatment - a new approach to better health

Optimisation of health for each and every one of us1. Finds the best available treatment

2. Takes the optimal dosage

3. Uses the treatment as agreed

4. Leads a very healthy lifestyle

5. Takes part in decisions6. Receives enough support

Page 98: Decide treatment - a new approach to better health