developing best practices in differences of sex ... · and future of intersex/dsd care arlene...
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July 14, 2016Children’s Hospital Colorado
Anschutz MedicAl cAMpus conference And educAtion center - 2nd floor
AurorA, colorAdo
PROVIDED BY
SOAR Clinic (Sex development Outcomes - Achieving Results)
Children’s Hospital Colorado
IN COLLABORATION WITH
DEVELOPING BEST PRACTICES IN DIFFERENCES OF SEX DEVELOPMENT (DSD):
MULTIDISCIPLINARY PERSPECTIVES IN FAMILY-CENTERED CARE
AGENDA8:00 a.m. Registration and Continental Breakfast
8:20 WelcomeJeffrey B. Campbell, MD
8:30 The Long and Winding Road: Past, Present, and Future of Intersex/DSD CareArlene Baratz, MD
8:45 Patient/Family Experiences with Volunteers in an Interdisciplinary DSD ClinicCindy Buchanan, PhDNatalie Nokoff, MDSOAR Clinic VolunteersSOAR Clinic Families
10:00 Break
10:15 Putting the Pieces of the Puzzle Together: Use of Diagnostic Tools to Evaluate the Etiology of DSD’sSharon Travers, MDJennifer Barker, MD
11:00 Risk of Gonadal Malignancy in DSDNick Cost, MD
12:00 p.m. Lunch (optional tour of the SOAR Clinic)
1:00 The Role of Gynecology in an Interdisciplinary DSD ClinicPatricia Huguelet, MD
1:30 Disclosure: Balancing Privacy and SupportBrad Jackson, PhDCindy Buchanan, PhD
2:00 Research in DSDArlene Baratz, MDEmilie Johnson, MD
2:45 Break
3:00 Ethical Challenges in DSDHeather Fitzgerald, MS RNDaniel H. Reirden, MD
4:00 Youth PanelAIS-DSD Youth Support Group
5:00 Evaluation and Adjourn
NEEDS STATEMENTOptimal care of the patient/family with a Difference in
Sex Development (DSD) requires an interdisciplinary
team approach, with an emphasis on family-centered
care/decision-making. Although this is a standard to
which centers caring for these patients/their families are
called, this has not yet been fully realized.
OVERVIEW AND TARGET AUDIENCEThis conference will be of interest to healthcare providers,
patients and their families, and patient/family advocates
with an interest in the care of patients/families with DSD.
EDUCATIONAL OBJECTIVESAt the conclusion of the activity, participants should be
able to:
• Recognize the importance of, and how to integrate, the
patient/family advocate in/into the interdisciplinary
care of the patient/family with a Difference in Sex
Development (DSD).
• Discuss the patient’s/family’s perspective in the care of
a patient/family with a DSD.
• Review evidence-based, patient-specific diagnostic
algorithms (endocrinology/genetics).
• Identify a network of providers/advocates committed
to interdisciplinary, multicenter research in DSD.
CONTINUING EDUCATION CREDITMedical: Children’s Hospital Colorado is accredited by the
Accreditation Council for Continuing Medical Education to
provide continuing medical education for physicians.
Children’s Hospital Colorado designates this live activity
for a maximum of 7.25 AMA PRA Category 1 Credit(s).™
Physicians should only claim credit commensurate with
the extent of their participation in the activity.
Other: A certificate of general attendance will be available
to all other participants.
LOCATION AND PARKINGThis conference will be held on the Anschutz Medical
Campus at Children’s Hospital Colorado, 13123 East 16th
Avenue, Aurora, Colorado. Please enter the hospital
at the main entrance and take the elevators to the
Conference and Education Center on the second floor.
Children’s Colorado and University of Colorado Hospital
employees must park in their designated area. Free
parking for conference guests is available on the Lower
Level of the Family/Visitor parking structure, just south
of the hospital’s main entrance.
Please visit www.childrenscolorado.org/directions for
driving directions to Children’s Hospital Colorado.
REGISTRATION FEESPhysicians and Advanced Practice Providers $150
Other Providers $100
Resident/Fellow & Patient/Parent $25
PAYMENT OPTIONSCredit card payments accepted online.
CANCELLATION POLICYNo refunds will be granted for non-attendance, although
you may send a substitute. The Planning Committee
reserves the right to alter the agenda or cancel the
conference in the event of an unforeseen circumstance,
or if the minimum registration is not attained by June 30,
2016, with a full refund to participants.
FURTHER INFORMATION If you have questions or to request arrangements to
accommodate a disability, please contact Jeannie Dixon at
720-777-6123 or [email protected] at
least 3 weeks prior to conference.
AIS-DSD SUPPORT GROUP CONFERENCEDirectly following the CME, the 21st Annual AIS-DSD
Support Group conference will begin registration at
the Embassy Suites Denver Stapleton the evening of
July 14th. Clinicians are invited to share in this unique
opportunity to interact with those who are Intersex/
have Difference of Sex Development (DSD) with further
educational sessions and sharing.
For more information: AIS-DSD Contact: Amber Jones at
Or visit us on the web at www.aisdsd.org
Registration is OnlineVisit our website today to register.
childrenscolorado.org/CE
Register online before July 11, 2016
CONFERENCE FACULTYArlene Baratz, MDAttending Physician, Division of Breast Imaging, Department of Radiology
West Penn Allegheny Health System
Temple University School of Medicine
Pittsburgh, PA
Cindy Buchanan, PhDLicensed Clinical Psychologist
Assistant Professor of Psychiatry and Pediatric Urology
University of Colorado
Children’s Hospital Colorado
Jennifer Barker, MDAssociate Professor of Pediatrics
Program Director, Pediatric Endocrinology
University of Colorado
Children’s Hospital Colorado
Jeffrey B. Campbell, MDAssociate Professor of Pediatric Urology
University of Colorado
Children’s Hospital Colorado
Nicholas Cost, MDAssistant Professor of Pediatric Urology
University of Colorado
Children’s Hospital Colorado
Heather Fitzgerald, MS RNClinical Nurse Ethicist
Co-Chair, Ethics Committee
Children’s Hospital Colorado
Brad Jackson, PhDClinical Psychologist
Children’s Hospital Colorado
Emilie Johnson, MDAssistant Professor, Department of Urology and Center for Healthcare Studies
Attending Physician, Division of Urology
Ann & Robert H. Lurie Children’s Hospital of Chicago
Patricia Huguelet, MDAssistant Professor, Pediatric and Adolescent Gynecology
University of Colorado
Children’s Hospital Colorado
Natalie Nokoff, MDFellow in Pediatric Endocrinology
Children’s Hospital Colorado
Daniel H. Reirden, MD Associate Professor of Medicine and Pediatrics
University of Colorado
Ethics Faculty
Children’s Hospital Colorado
Sharon Travers, MDAssociate Professor of Pediatrics
Section of Pediatric Endocrinology
University of Colorado
Children’s Hospital Colorado