development and adolescent sexual health

DEVELOPMENT AND ADOLESCENT SEXUAL HEALTH:THE STUDY GETS YMSM ONLINE

Matthew Golden, MD, MPH

Sara Nelson Glick, PhD, MPH

Brittany Walsh, MSW candidate

Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic

PRESENTATION GOALS

Share successes and challenges of

recruitment for the DASH study

Share successes and challenges of retention

for the DASH study

Discuss lessons learned around feasibility of

year-long, web-based, follow up and quality of

that data over time


ABOUT

Ultimate Goal: Learn about the early sexual

experiences and behavior patterns of yMSM

Prospective Cohort Study: 95 sexually

inexperienced, yMSM

Between the ages of 16-30 at enrollment

10 or fewer male lifetime partners OR

5 or fewer years since same-sex sexual

debut

Feasibility Study: determine if it was possible to

recruit and retain a traditionally hard to reach

populationMatthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic

RECRUITMENT METHODS

Community CollaborationListservs and Flyers

Facebook

Participant Referrals

“ If you know someone who might be

interested and we enroll them in the study,

we’ll compensate you $20 for your referral.”


RECRUITMENT METHODS


RECRUITMENT SUCCESS


Other, 5%

Unknown, 3%

American Friends, 2%

SU Triangle Club, 1%

Facebook, 36%

Listserv, 3%

Lifelong AIDS Alliance, 4%

STD Clinic, 10%

UW Q Center, 7%

Participant, 21%

Friend, 5%

Craigslist, 3%

RECRUITMENT SUCCESS


White, 59%

Multiracial, 11%

Latino, 16%

Asian/ PI, 9%

African American,

3%

Other, 2%

AgeMean = 21 years

35% were 16-19 years old

Race / Ethnicity

RECRUITMENT SUCCESS


≤10 male lifetime

partners, 20%

Both criteria, 59%

≤5 years since same-sex

sexual debut, 21%

Diversity in eligibility criteria

RECRUITMENT SUCCESS


0

20

40

60

80

100

120

140

160

180

200

1/1-1/15

1/16-1/31

2/1-2/15

2/16-2/28

3/1-3/15

3/16-3/31

4/1-4/15

4/16-4/30

5/1-5/15

5/16-5/31

6/1-6/15

6/16-6/30

7/1-7/15

7/16-7/31

8/1-8/15

8/16-8/31

9/1-9/15

9/16-9/30

10/1-10/15

10/16-10/31

11/1-11/15

11/16-11/30

12/1-12/15

12/16-12/31

Date

To

tal

(cu

mu

lati

ve

)Screened

Enrolled

Expanded eligibility criteria &Facebook advertisements

RECRUITMENT CHALLENGES

Referrals from community

organizations were few

Slow-going until we expanded

inclusion criteria

Cost of Facebook


RETENTION METHODS

DatStat system emailed reminders for

diaries and surveys

6 month and 12 month appointments -

email from a real person

3 month and 9 month survey - reminders

emailed from a real person

Phone calls and/or emails as needed

$$$

Emergency Contact information


RETENTION SUCCESS


0%

20%

40%

60%

80%

100%0.852631578

947368

0.905263157894737

0.905263157894737

0.810526315789474

0.9052631578947370.863157894

736842Perc

en

t co

mp

lete

(to

date

)

BL 3mo

6mo

9mo

12mo

N = 95

Surveys

Exams

RETENTION SUCCESS

Web-Based Diaries:

78% of participants completed at

least 80% of their diary days during

the first 6 months. During the second

6 months, less than 60% completed

at least 80% of their diary days


RETENTION CHALLENGES

Typical loss to follow up

DatStat randomized diary schedules with more

“Nevers” in the second half of the study

Changing Patterns in Internet Access

Probably expanding but moving away from

the traditional email + web browser access.

Moving toward text

messaging+apps+phone web browser

access.


IS A YEAR ONLINE FEASIBLE?

Successful recruitment

~ 100 guys over 8-9 months

Successful retention

over 80% completion on all surveys and

exams

Reached the goals we set for ourselves

CAN follow these hard to reach guys for 1

year


DISCUSSION

Diaries and extra contact- an intervention of their

own or just added TLC?

Relationship building with yMSM participants is

key

The challenge will be expanding the study to new

cities and in the context of constantly changing

media

Behavior changes differently in everyone and

over time. It seems to be worth engaging with

yMSM early in their development


WHERE’S

It’s submitted! Matt and Sara have several others in the

works.

Questions? Matthew Golden at PHSKC HIV/STD Program

[email protected]

(206) 744-6829 , (206) 296-4805 Sara Nelson Glick at Center for AIDS and STD

[email protected]

(206) 744-8055 Brittany Walsh at Center for AIDS and STD

[email protected]

(734) 751-9629


Now ?

mailto:[email protected]



(BIG) THANKS!

Sara Nelson Glick and Matthew Golden

Tara Hicks and others at the PHSKC STD

Clinic

Our wonderful participants

Our wonderful community collaborators

And Sara Nelson Glick, once more.


development and adolescent sexual health

Health & Medicine

sara nelson

msw candidateuw

matthew golden

public health

brittany walsh

center

challenges

study