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Employee Awareness and Empowerment Research Report The Collaborave Partnership to improve work parcipaon December 2019

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  • Employee Awareness and Empowerment Research Report

    The Collaborative Partnership to improve work participation

    December 2019

  • 2

    Table of ContentsExecutive summary .................................................................................................................................. 3

    1.0 The project approach ....................................................................................................................... 5

    1.1 Projectobjective ................................................................................................................................... 5

    1.2 Project approach ................................................................................................................................... 5

    1.3 Howtointerprettheresearchfindings ................................................................................................ 7

    2.0 Findings ............................................................................................................................................ 8

    2.1 Rapidreviewresults .............................................................................................................................. 8

    2.2 Interventionranking ........................................................................................................................... 10

    2.3 Responsestotheinterventiontypes .................................................................................................. 11

    3.0 Other Empowerment Interventions ............................................................................................... 22

    4.0 Conclusion ...................................................................................................................................... 32

    Additional information ........................................................................................................................... 34

    References ............................................................................................................................................. 35

    Appendices ............................................................................................................................................ 38

    Appendix1:Examplesofinterventiontypes .............................................................................................. 38

    Appendix2:Detailedbreakdownofcitizenpanelattendees ..................................................................... 40

    Appendix3:Projectmethods ...................................................................................................................... 42

    Appendix4:Qualityappraisal ..................................................................................................................... 44

    Appendix5:Detailedthematicanalysis ...................................................................................................... 51

    Appendix6:Reviewquality ......................................................................................................................... 55

  • 3

    Executive summaryEachyear,toomanyAustraliansareunabletoworkduetoatemporaryorpermanentinjury,illnessordisability.AmongstOECDcountries,Australiaranks21outof29foremploymentratesamongpeoplewithdisabilitiesrelativetothepopulationandevidenceshowsthatforpeoplewithaworkers’compensationclaim,returntoworkrateshavestagnatedsince2006.

    TheobjectivesoftheEmployeeAwarenessandEmpowermentresearchistobetterunderstandtheexperiences,beliefs,andneedsofpeoplewithahealthordisabilityrelatedreasonforworkincapacityandidentifyevidence‑basedinterventionstoempower ‘employees’withahealthconditionordisabilitytouseworkaspartoftheirrecovery.

    TheWorldHealthOrganizationdefinesempowermentas:

    the process by which people gain control over the factors and decision that shape their lives

    Thisdefinitionincludestheprocessbywhichpeoplebuildtheirpersonalattributesinordertoachievetheircapacity.Personalattributescanincludeconfidenceorself‑worth,buildingknowledge,developingcopingmechanisms,orenhancingpersonalskillstomakehealthandwellbeingrelatedchoices.Manyexamplesofsuccessfulempowermentinterventionsandprogramsalreadyexistinthepublichealthfield.

    Thestudyaddressesanimportantgapinevidenceonempowermentstrategiesforpeoplewithahealthconditionordisabilitytouseworkaspartoftheirrecovery.Thefindingspresentedinthisreportarebasedonarapidreviewofevidenceonempowermentinterventions;qualitativeresearchtogainafirst‑handaccountoflivedexperiencethatsetsthecontextforwhatneedstobeconsideredwhenaddressingempowerment;andinsightsfromstakeholderfromtherelevantsystemsandsectors.Thisreportprovidesimportantinsightsforpolicymakers,serviceprovidersandsystemownersresponsibleforsupportingpeoplewithillhealthordisabilityandworkparticipation.

    Thekeyfindingsfromthisstudyshowsthat:

    • employeesaremotivatedtoworkandtheirmotivationisnotabarriertoparticipation–itisnotforlackoftryingthatpeoplehavenotsecuredsuitablework.Peopleareawarethatworkprovidespurpose,self‑sufficiency,stabilityandsocialization.Beingoffworkmakesithardertogetwork,leadstoloneliness,lossofself‑confidence,lossofperceivedcontrolandlossofsocialnetworks.

    • employeesfindthebenefitandincomesupportsystemscomplexandoverwhelming,personifiedbya‘onesizefitsall’approachthatleaveslittleroomforflexibilityorempathy.Theyreportalackoftransparencyregardingtheirrights,benefitsandprocesses,significantuncertainty,ineffectivecommunicationbetweenstakeholdersthatisparticularlyproblematicaspeopletransitionbetweensystems,andacontinuousrequirementtoretelltheirstory.Theseexperiencescancontributetoworseninghealthanddelayedrecoveryfortheindividual.

    • thereisastrongbeliefamongstemployeesthatemployerslackunderstandingoftheworkabilityofpeoplewithahealthconditionordisabilityandhowtoeffectivelyaccommodatethem.

    “Anestimated786,000Australians

    areunabletoworkduetoaninjury,illhealthordisabilityandaccessincomesupportfromacommonwealth,state,territoryorprivatesource.”

    (Cross-Sector Systems Report, 2017)

    “Afurther6.5millionpeople

    accessemployerprovidedleaveentitlementsforperiodsofworkincapacitydueto

    theirhealth).(Cross-Sector Systems

    Report, 2017)

    In this report the term

    ‘employees’referstoindividualsstaying

    at,orreturningtowork,orcommencingnewwork(includingtheirfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),

    ordisease

  • 4

    Anumberofinterventionscanbeusedtoempoweremployeestouseworkaspartoftheirrecoveryincludingmentorship,educationandgoal‑settingapproaches;however,theseinterventionsrequireenablingmechanismstobeinplacebyrelevantsystemsandproviders.

    Thisstudyhighlightsthatforempowermentinterventionstobeeffective,willrequireamulti‑dimensionalapproachthataddressesbroaderculturalattitudes,systemimprovementsandworkaccommodationprinciples.

    • Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusion.Cultureandsocialnormsprovidetheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolthatgoesin‑handwiththeneedforbetteracross‑communityhealth literacy.

    • System change–theperceptionsandexperiencesofemployeesofthebenefitandincomesupportsystemsmaybeconsideredharsh,butpresentsaveryrealimpedimenttopersonalempowerment.Reportsshowthatpartsofthesystembycausingsecondaryconditionssuchasdepression.Reportsshowthatpartsofthesystemareoutofstepwithbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses.

    • Work accommodation–thereisaneedforemployerstohaveabetterunderstandingandimprovemanagementofthecapabilitiesofemployee’swithaphysicalorpsychologicalcondition.Thisissupportedbytheliteratureandthefindingsfromemployeesandstakeholders.Thisisthepracticalaspectoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.

    Empoweringpeopletouseworkaspartoftheirrecoveryandwellbeingcanleadtobetterhealthandeconomicaloutcomesforindividuals,theirfamilies,thecommunity,andAustralianworkplaces.Thekeymessagefromthisresearchisthatempowermentisacomplexstrategythatsitswithincomplexenvironmentsandsettings.Effectiveempowermentstrategiesdependsnotonlyontheindividualandtheirabilitytocontrolthefactorsthatshapetheirlives,butalsotheoverallcontextinwhichtheytakeplace.

    Health literacyrefers

    tothecognitiveandsocialskillswhichdeterminethemotivationandabilityofindividualstogainaccessto,

    understandanduseinformationinwayswhichpromoteand

    maintaingoodhealth.Healthliteracyiscritical

    to empowerment.

  • 5

    1.0 The project approach 1.1ProjectobjectiveThisprojectaimstouseanevidenceinformedapproachtoidentifyingeffectiveorsuccessfulinterventionstoempoweremployeestostayat,obtainorreturntowork.

    1.2 Project approachThisstudyisaninitiativeoftheCollaborative Partnership to improve work participation(theCollaborativePartnership)andhasbeenledbyEML.TheCollaborativePartnershipisanationalalliancebetweenthepublic,privateandnot‑for‑profitsectorsandisfocusedonimprovingworkparticipationofAustralianswithatemporaryorpermanent,psychologicalorphysicalhealthconditionordisability.

    Thereislimitedcurrentunderstandingofthebeliefs,perceptionsandattitudesofpeolewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofpeoplewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofnavigatingthevariousbenefitandincomesupportsystemsinAustralia,andinteractionswithemployers,andrelevantserviceproviders.Thisprojectusedqualitativeresearchmethodologytoinquiredeeplyintospecificexperiences,withtheintentionofdescribingandexploringmeaningthroughnarrativedata,bydevelopingthemesexclusivetothestudyparticipants.Whilethequalitativeapproachprovidesuswitharichunderstandingofpeople’sexperience,itdoesnotallowustoinferorgeneraliseabouttheexperienceofthosewhodidnotparticipateintheresearch.

    Theprojectisinformedbyarapidliteraturereview,citizenpaneldiscussionandindividualinterviews,andexpertstakeholderinterviews.

    RapidLiteratureReview

    TheRapidLiteratureReviewwasfocusedoninterventionsthathavebeenproventoencourageemployeestostayat,obtain,orreturntowork.

    ItwasbasedonthePICOframework:

    • Population:Individualsstayingat,orreturningtowork,orcommencingwork(includingfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease(e.g.cancer).

    • Interventions:Empowerment(unlikelytoexist),activeparticipation,navigation,self‑management(insurance),healthliteracy,schemenavigation,workplanning,problemsolving,supportmechanisms,self‑managementsupport,self‑sufficiency,socialsupport(e.g.communityinvolvement,familystability),andactiveinterventions.

    • Comparison:Nospecificcomparisongroupwasset

    • Outcomes:Workstatus(returntowork,stayatwork,commencenewwork),feelingofempowerment,attitudes,needs,andmotivations.

    Thereviewincludedinternationaldatacoveringthelastfiveyearsandyielded71relevantarticles.

  • 6

    CitizenPanelandInterviews

    ThepurposeoftheCitizenPanelandinterviewswastounderstandtheattitudes,motivations,beliefs,experiences,drivers,barriersandneedsofemployeesnavigatingtheworkdisabilitysystem.

    Atotalof23citizensparticipated–10fortheCitizenPaneland13inindividualinterviews.

    Recruitmentensuredparticipantrepresentationacross:

    • workstatus:obtaining,stayingatorreturningtowork.

    • claimtype:physicalandpsychological.

    • healthconditions:Injuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease.

    • crosssectorexperience:workers’compensationandmotoraccident,disabilitysupportandsocialwelfare;superannuationorlifeinsurance.

    ThelineofenquirywasinformedbytheresultsoftheRapidLiteratureReview.

    Participant Profile

    10respondentswereinvolvedintheCitizenPaneland13participatedinone‑on‑oneinterviews.ThedistributionofparticipantsacrosstheabovecategoriesissummarisedbelowinTable1

    Table1:ParticipantsinCitizenPanelandInterviews

    Job status Injury type Workers’ Compensation

    Motor Accident

    CompulsoryThirdParty

    Disability Support Pensions

    Superannuation DE Services

    Time in the ‘system’

    Amajorityrepresentationacrossthree,fourandsixthmonthswithafewlongtail(e.g.+52weeks).

    Obtaining work

    Physical 1 1 2 1Psychological 1 2 2 3

    Returning to work

    Physical 3 1 1Psychological 1

    Staying at work

    Physical 1 1 1Psychological 1

    2 5 7 5 4

    AmoredetailedbreakdownofparticipantscanbeseeninAppendix2.

    Thesamplewasrecruitedincollaborationwithapanelrecruiterthatspecialisesinsocialissuesresearch.Wealsodistributedmaterialadvertisingviapartnerstakeholdersfromspecificsystemswherepossible.

    Thisstudyrecruitedacrossthedifferentsectorsof:Motoraccident:(22%);DisabilitySupportPensions(DSP)(30%);Superannuation:(22%);DisabilityEmploymentServices(DES):(17%).Therecruitmentofindividualsfromtheworkers’compensation(9%)sectorwasmorechallenging.Nearlyhalfofourparticipants(43%)werethosewithpsychologicalclaimsorconditions.Oneareaofrecruitmentdifficultywasforindividualstryingtostayatwork,whichonlycomprised17%ofthefinalsample,comparedto‘Obtainingwork’(57%)and‘Returningtowork’(26%).Additionally,wefoundthatindividualsfromthepsychologicalprofileweremuchmorelikelytobelookingfornewwork(80%)thanreturningtowork(10%)orstayingatwork(10%).

  • 7

    Workers’compensationwastheleastwellrepresentedinthestudysample(9%),whereasitisoneofthelargersystemsaccordingtothetheCross‑SectorProjectReport(n=156,000;2%).Theunderrepresentationofparticipantsfromtheworkers’compensationcategorymaybepartiallyexplainedbyemployeesinthiscategorypreferringnottodiscusstheirclaimexperiencespublicly.

    TherewasanalmostevensplitbetweeninterviewsconductedbyphonecomparedtoattendeesattheCitizenDialoguePanel:eightscheduledinterviewsandfiverescheduledfromindividualswhodidnotparticipateinthecitizenpanel.Six(46%)oftheseinterviewswerewithindividualsfromthe‘psychological’profile,six(46%)werefromthe‘physicalinjuriesorconditions’profile,andone(8%)wasfromthe‘diseaseorillness’profile.

    Therearetwospeculationsthatarisefromthedata:peoplewithpsychologicalconditionsorlearningdisabilitiesseemmorelikelytobeoutofworkandlooking,ratherthaninworkandtryingtogetbackorstaying;andinterviewsmayhavebeenfavouredforaccessibilityorprivacyreasons.Weareunabletodetermineifthesespeculationsaretrue,orwhetherthereareotherparticipantmotivationsthataredrivingthesenumbersandparticipationrates.

    ExpertStakeholderInterviews

    Tenone‑on‑oneinterviewswereconductedwithstakeholdersfromacrossthesectorsandsystemstounderstandtheirperspectiveofthebiggestchallengesinempoweringemployeestoobtain,stayatorreturntoworkandcapturetheirinsightsintowhatinterventionswouldbeeffectiveandwhen.

    Interviewparticipantsrepresentedorganisationsresponsiblefordisabilityservices,workers’compensation,motoraccidentcompensation,employeerights,insuranceschemesandgovernmentwelfareandemploymentservices.

    1.3HowtointerprettheresearchfindingsWhilsttheintendedoutcomeofthisstudyistoidentifywhatinformationandsupportemployeesneedtousegoodworktofacilitatetheirrecoverythrough‘empowerment’and‘self‑management’,thesymbioticnatureofemployees,employers,healthcareprovidersand‘system’managersinevitablyleadstocommentaryonhowthesecomponentpartsneedtochangetofacilitaterecovery.Importantpointstobeawareofinreadingthisreportinclude:

    • thereareclearsynergiesbetweentheoutcomesoftheRapidLiteratureReview,CitizenPanel,CitizenandExpertStakeholderInterviewsbutthe‘solutions’maybedifferentlyexpressed

    • withtheRapidLiteratureReviewfocusingoninterventionsthathaveproventobeeffective,thekeyrecommendationsinthisreportareledbyitsevidenceandconfirmedbythequalitativefindingsfromtheemployeeandstakeholderresearch

    • purposeofthisstudyistoexplorehowitmightbepossibletobestsupporttheendeavoursofpeoplewithahealthconditionordisabilitytofacilitatetheirownrecoveryanddoesnotinanywayimplythatthestudyparticipantswerenotalreadytryingtheirbest

    • thestructureoftheresearchactivitieswasto:conductarapidreviewoftheliteraturethatshowsdemonstrablesuccessfulorunsuccessfulinterventions;andusetheoutputsfromthereviewtostructurethesubsequentqualitativecomponents.Thisreportwillfollowthisstructure,usingtherapidreviewresultsasaframeworkfordiscussingwaystosupportindividuals’recoveries.

  • 8

    2.0 Findings2.1RapidreviewresultsArapidliteraturereviewwasundertakentoidentify,evaluateandsynthesisepublishedliteratureinvestigatingempowermentinterventionstohelppeoplereturntowork,stayatworkorcommencenewworkafterinjury,diseaseanddisability.

    Rapidreviewsareanemergingmethodofefficientlysynthesisingresearchevidenceinhealthpolicyandothersettingswhereabroadoverviewofresearchevidenceisrequiredinashorttimeframe.Unliketraditionalsystematicliteraturereviews,rapidreviewsfocusonsynthesisedresearchevidence.Cautionneedstobeappliedwheninterpretingrapidreviewfindings,asmorecomprehensivereviewapproachesmayelucidatefurtherinformationandinsights,whichwouldinfluencereviewinterpretationandconclusions(Khangura,Polisena,Clifford,Farrah,&Kamel,2014).Therefore,systematicreviewsremainthedefinitivemethodofliteraturereview,andwerecommendthatsystematicreviewsareundertakenwheneverpossible.

    Theliteraturereviewyieldedatotalof3549citations,aftertheremovalofduplicates.Followingscreening,23systematicreviewswereidentified.AreascoveredbythereviewsarepresentedinAppendix3anddetailedinformationregardingthequalityappraisalarepresentedinAppendix4.

    TheRapidReviewidentifiedeightinterventionstypes Education

    Goalsetting

    Mentorship

    Person‑centredplanning

    Problemsolving

    Strength‑basedinterventions

    Support

    Wordaccommodation

    Interventionsarechartedaccordingtowhethertheyimproveoutcomesandthequalityofthatevidence.Outcomevariablesarepresentedinparentheses.Itispossiblethataninterventiontypeisevaluatedagainstseveraloutcomessuchas‘Support(empowerment)’vs.‘Support(RTW)’.Thedatapointscanonlyvaryalongthreepossibleevidencequalityvalues(‘weak’,‘mixed’,or‘strong’)andthreepossibleevidenceofeffectvalues(‘noevidenceofeffect’,‘inconsistentevidenceofeffect’,or‘evidenceofeffect’),foratotalofninepossiblepositionsonthegraph.Becausedatapointswiththesameevidencequalityandevidenceofeffectvalueswouldsitatoponeanother,wehavefloatedthedatapointsaroundeachpossibleposition.

  • 9

    Evidenceofeffect

    Evid

    ence

    of e

    ffect

    Evidence of effect

    Evidence quality

    Inconsistent evidenceofeffect

    Weak Mixed Strong

    Noevidenceofeffect

    Support(RTW) •

    Goalsetting(workparticipation) •

    Mentorship(employmentoutcomes) • Goalsetting(empowerment) •

    Mentorship(empowerment) •

    • Support(employmentoutcomes)• Problemsolving(RTW)

    Wordaccommodation(RTW) • Wordaccommodation(empowerment) •

    • Wordaccommodation(workparticipation)

    • Support(Empowerment)• Person‑centredplanning(empowerment)

    • Strength‑basedinterventions(empowerment)

    • Education(RTW)

    • Person‑centredplanning(employmentoutcomes)

  • 10

    2.2InterventionrankingThequalitativeinterviewscapturedtheperspectiveofemployeesandexpertstakeholdersrelativetotheeightinterventionsidentifiedintheRapidLiteratureReview,aswellasleadingtoanadditionaltwointerventionterritoriestobringthetotalpotentialsuiteto10.

    Thischartsummariseswhatwasfoundthroughevidenceandcomparesittoemployeeandstakeholderinput.

    Table2:summaryofevidenceoninterventions

    Intervention Evidence Employees Stakeholders

    1. Work accommodation

    2. Support

    3. Mentorship

    4. Goal setting

    5. Person-centred planning

    6. Problem-solving

    7. Strength-based interventions

    8. Education

    9. Cultural change

    10. System change

    Key:

    EvidenceColumn:

    • highqualityandclearlypointstoaneffectiveintervention

    • evidenceiseitherofmixedqualityorcouldn’tagreeonwhethertheinterventionworkedornot

    • evidenceisofahighqualitybutnotclearlyabletodemonstrateaneffectoftheintervention

    EmployeeandStakeholdercolumns:

    • clearlyindicatesupportfortheintervention

    • indicatesmostfavouredapproach

    • didnotindicatesupportforanintervention

    • hadnoopinionofaninterventionbecausetheyhadno/limitedexperiencewithitorfocusedonotherinterventions

  • 11

    2.3ResponsestotheinterventiontypesEmployeeresponsestothefollowinginterventioncanbecategorisedintokeythemesof:

    • informationandprocess–whatisavailabletomeandwhodoIspeakwithtogetit?”

    • empathyandunderstanding–fromemployers,supportproviders,andthegeneralpublic

    • degradationofmentalhealthandwellbeing–thisisanunderpinningthemetothosenotedabove,employeessaythisisunderprioritisedbysupportproviders.

    Werefertothesewhendiscussingtheemployeefeedbackonthedifferentinterventions.MoredetailsareprovidedinAppendix5.

    1. Work accommodation

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Workplaceaccommodationisaboutmakingchangestotheworkplaceorthewaythatworkisdonetoallowallpeopletheopportunitytoworkaccordingtotheircapacity.

    What is the approach?

    Workplaceaccommodationincludeschangesinworkschedulesandworkorganization,developmentoftheworkenvironment,useofassistivetechnologies,assistanceofotherpersons,andchangesincommutingtoandfromwork.Workplaceaccommodationscanfocusonasinglepersonorawholeorganisation.

    What does the evidence say?

    Fivereviewsonworkaccommodationwereidentifiedinthesearchstrategy.Onereviewrevealedthatworkplaceaccommodationsarerare.Whenworkplaceaccommodationsareused,themostcommontypeisflexiblescheduling/reducedhours.Thedirectcostsassociatedwithworkplaceaccommodationsareoftenlow.

    Onereviewfoundmoderateevidencethatworkplaceaccommodationspromoteemploymentparticipation,butlowevidencethatworkplaceaccommodationsadministeredbycasemanagersincreasesreturntowork.Thisisnottosaythatworkplaceaccommodationadministeredbycasemanagersislesseffective,butthatthestudiesevaluatingworkplaceaccommodationsadministeredbycasemanagersareoflowquality.Weshouldbecautiousininterpretinglowqualityevidence.

    Therewasstrongevidenceformulti‑domaininterventions(acombinationofhealth‑focusedinterventions,servicecoordinationinterventions,andworkmodificationinterventions)thatincludeworkplacemodificationsinreducingtimeawayfromwork.Therewasalsostrongevidencethatmulti‑facetedinterventionsareineffectivewithoutworkplaceaccommodations.

  • 12

    What do stakeholders say?

    Thisdirectquoteprovidesagoodsummaryofstakeholderperspectivesonworkaccommodationanddemonstrateshowstronglytheysupporttheroleoftheemployerinfacilitatingworkcapacity:

    ‘Employers play such a pivotal role in people trying to stay at work. Government needs to educate them more in keeping their employees healthy.’

    Specificfeedbackfromstakeholderscoversanumberofthemes:

    • Theneedformanagementtobesupportive–thiswasconsistentlyraisedinrelationtoreturntowork.Thedefinitionof‘management’goesbeyondtheseniormanagerandtakesinthenotionthattheemployees’supervisorandcolleagues–thepeopletheyusedtoworkwitheveryday–havethebiggestroletoplay.‘Support’includespro‑active‘reachingout’bytheworkplacetotheemployeeandthatiftheemployeeistheonetaskedwithreachingouteverytime(oftenforlittleresult),thereisaconsequentialnegativeimpactontheirconfidence.Theemployerneedstobethe‘firstmover’.

    • Stigmaanddiscrimination–seenbystakeholdersasamajorbarriertoworkaccommodation.Thiscanbeeitherconsciousorunconscious(commentssuchas‘theyshouldhavereturnedtoworkbynow’)andrelatebothtoobtainingwork(‘whyhasn’tthispersonworkedfortwoyears’;oracquireddisabilityandtheassociatedsocietalperceptualbarriers),aswellasforthosestayingatorreturningtoworkespeciallyforthosewithamentalhealthcondition.Stakeholdersregardashighlyimportanttheneedtocreateawarenessandunderstandingthatpeoplecanhaveadisability,gothroughaninjuryorillnessandstillhavecapacitytowork.

    • Jobmatch–stakeholderssuggestthattherearetoolsalreadyavailablethatshouldbeusedto‘jobmatch’forexample,personalitytestscanbeusedmuchbetterforjobmatching.

    • Recruitmentmethods–thosebornwithorhavingacquiredadisabilitydonothavethesameopportunitiestoworkouttheircareerdevelopmentorworkexperienceastheirnon‑disabledpeers.Eventhewayemployerstalkaboutandrecruitmakesithardforpeoplewithadisabilityforexample,:itmaynotbeclearfromthejobdescriptionwhethertheycandothejob;onlineapplicationsmaybeanimpedimentiftheycan’tuseamouseorhavevisualimpairments.Thosewithadisabilityarenottheonlyonesimpactedbyrecruitmenttactics–recruitmenttoolssuchas‘massinterviews’canbedauntingforsomeonewhoislackingconfidence,hasasociallyimpactinghealthcondition(e.g.someonewithAsperger’smaybeageniusITtechnicianbutisunabletocommunicate/sellthemselves)orhasbeenoutoftheworkplaceforsometime;theycanbedeterredfromevenapplyingforthejobinthefirstplace.

    • Lackofemployeeunderstandingofwhattoexpectfromtheiremployer.

    • Drivenbyrisk–Employersareriskadverseinacceptingemployeeswhoarenot100%well.

    • Thereisalsoaneedtoempoweremployers–evenanemployerwillingtoemployeesomeonewhorequiresamodifiedworkenvironmentcanbedisempoweredthroughtheirsimplelackofknowledgeofhowtogoaboutitorwhatwillberequiredofthem.

    What do employees say?

    Thisinterventionaddressesthethemeofempathy and understanding.

    Theworkplaceaccommodationsthatemployeeshadmostexperiencewithwereflexibleschedulingofworkhoursandswitchingtolightduties.Employeesnotedthattheseweretemporarysolutionsandtheirsuitabilityvarieswithindividuals’conditions.Othersnotedthatachangeindutiescanbetraumaticbecauseitmeansswitchingfromworkthatyouhavebuiltacareerontosomethingdifferent.Therearecleardifferencesinthereactionsofpeoplewhohavenotbeenoutoftheworkforceforverylongversussomewhohadbeenoutofworkforasignificanttime–thelongersomeoneisoutofwork,themorewillingtheyaretodoanything.Forinstance,somesaidtheywouldn’tbehappywithlightdutiesforthelongterm,whereasotherswhohadbeeninjuredforlongersaidthattheywouldhappilydoanythingwithintheirskillset.

  • 13

    Gradedreturntoworkwasseenasanimportantformofworkaccommodation.Oneemployeecommentedthatsomeworkplaceaccommodationsarestraightforwardandeasytosecure,whereasothersaremorechallengingwhentheindividual’shealthconditionordisabilityislessvisible.

    Finally,employeesmentionedthatjobsexistbuttherearefewemployerswhoarewillingtoaccommodatethosewithhealthconditionsordisabilities.

    Employeesreflectedthestakeholderideathattheiremployerreachingouttothem,evenifthatisjusttheoccasionalcheckintoseehowtheyare,hasademonstrableimpactontheiremotionalwellbeingandconfidenceintheirfuture.ThiswasdemonstratedquiteclearlyintheCitizenPanelbyoneemployeewhoseemployerhadmaintainedregularcontactwiththem,andtheiremotionalwellbeingcomparedtootherpanelparticipants.

    What has helped/could help?

    • Flexibilityandunderstandingonthepartoftheemployer.Aforumforemployerswhoareopentoaccommodatingthosewithdisabilitytoadvertisejobpositions.

    • StandardsestablishedforEmployers.

    • DisabilityConfidentRecruiter.Anorganisationshouldhavetogothroughaprocessthatmakesalltheirsystemsaccessibleandinclusive.

    • Theneedtoremoveemployerandculturalstigmaandbarriers–whetherconsciousorunconscious–andcreateawarenessofthebenefitsof‘goodwork’.

    • Educatingemployersongoodjobdesign–howtodesignthejobtohavetheappropriatebreadthanddepth.Thatmeansclarity,authority,delegationofdutyanddecision‑makingautonomy,variationoftask–goodwork.

    • ‘Onthejob’trainingforintellectuallyorphysicallydisabled–ratherthantertiaryeducation.

    • Policiesthatexplainwhathappensandcommittodoingwhateverisreasonableifanemployeecannotwork/hastochangetheirworkingcircumstancesandguidancethathelpsemployeesunderstandhowtorespondiftheyareexperiencingdifficulties.

    • Job coaches.

    2. Support

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Itcanbedifficulttomanageyourhealthconditionordisabilityifitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.Supportisaboutmakingjob‑seekingandreturntoworkeasierforthosewithahealthconditionordisability.

    What is the approach?

    Supporttakesmanydifferentforms,sometimesit’saboutspeedinguptheprocessofgettingsomeoneintonewwork,othertimesit’sabouthelpingpeoplestayinexistingwork.Thelatterformissometimesreferredtoasa‘place‑train’modelandIndividualPlacementandSupport(IPS)isthemoststructuredandwell‑definedformofthisapproach.Itisbasedonthephilosophythatanyoneiscapableofgainingandmaintainingcompetitiveemployment,providedtherightjobwithappropriatesupportcanbeidentified.Otherformsofsupportedemploymentcanincludecoachingandeducation.Supportedemploymentmayalsobeaugmentedforexamplewithadditionalrehabilitationorskillstraining.

  • 14

    What does the evidence say?

    Evidencefromninereviewswaslargelyinfavourofsupportapproachesforimprovingempowerment,workparticipation,andreturntowork.Individualplacementandsupportprogramsareaneffectiveinterventionacrossavarietyofcontextsandeconomicconditionsandareperhapstwiceaseffectiveastraditionalrehabilitationprogramssuchas‘train‑place’modelsforgettingpeopleintowork.Theevidencerangedfromtentativetostrongforaugmentedsupportedemployment.Therewasmoderatetostrongevidencethatcoachingandeducationsupportimprovesreturntoworkandsicknessabsenceoutcomes.Notallreviewsarrivedatthesameconclusion–somefoundinsufficientevidenceforeffectivesupportstrategiesinobtainingandmaintainingemployment.

    What do stakeholders say?

    Stakeholdersinrolesofhelpingpeoplefindsuitableemploymentbelieve‘motivation’and‘confidence’isacriticalfactorofbeingabletofindwork.Theideasthatstakeholdersputforwardconsistentlywenttothesetwothemes:

    • Training,retraining,reskillingtogain,retainorre‑enterwork.

    • Motivationalinteractiontrainingtoimproveconfidence.

    • Toolsonhowtogetajob–resumewritingetc.

    What do employees say?

    Thisinterventionaddressesthethemeofdegradationofmentalhealthandwellbeing.Employeesbelievetoomanysupportprogramsfocusonphysicalsupportandskillstraining–therearefewprogramsaimedatsupportingmentalhealthduringrehabilitationand/orthejobsearch.Accesstorelevantsupportprogramsisalsosometimesdifficult,withoneemployeesaying

    “You need to make yourself look twice as bad in order to get half the help you need”

    Thissentimentwasalsoechoedbystakeholders.

    What has helped/could help?

    • Training,retraining,reskillingtogain,retainorre‑enterwork.

    • Motivationalinteractiontraining.

    • Toolsonhowtogetajob–resumewriting,interviewpractice.

    3. Mentorship

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Navigatingdisabilitysupportsystemscanbeafrustratingandlonelyexperience.Mentorshipaddressesbothproblemsofhandlingcomplexityandofdoingitalone.

    What is the approach?

    Mentorshiprelationshipsinvolvetheprovisionofongoingguidance,instruction,andencouragementfromamentorwithexperiencetopromotecompetenceandemploymentparticipationonthepartoftheindividual.

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    What does the evidence say?

    Tworeviewssuggestthattheevidenceregardingmentorshipismixeddependingontheoutcomemeasure.Mentorshipmaybeeffectiveforimprovingemploymentorwork‑relatedoutcomes,thoughthequalityoftheevidenceislow.However,evidenceregardingtheeffectivenessofmentorshipinimprovingempowermentisinconsistentandalsooflowquality.

    Someevidencesuggestedthatmentorshipcouldincreasedepressioninindividuals.Consideringthatamentormaybeapersonwithasimilardisabilityastheindividual,developingarelationshipwiththismentormayhighlighttheindividual’sownhealth‑relatedproblems.Anotherconcernisthatmentorsmayofferadviceoutsidetheirdomainofexpertise.Mentors,therefore,maybeworkplacementorswhocanhelptheindividualintheiremploymenttransitions,lifementorswhocansupporttheindividualsocially,orhealthmentorswhomaysharesimilarhealthexperiencesastheindividual.

    What do stakeholders say?

    Stakeholdershighlightthata‘lossofconfidence’startsimmediatelyandgrowsthelongersomeoneisawayfromwork.

    Whilstinnowaysuggestingtheyshouldbecomeanominatedmentor,stakeholdersseetheclaimsmanagerasbeingabletotakeastrongerroleinencouragingtheircustomerstowellbeingandwork.Stakeholdersareconcernedthisiscurrentlylimitedbytheprocessdrivennatureofschemesthattypicallydisempowerclaimsmanagersfrombeingabletomakejudgementsandabilitytoformvaluablerelationshipswithclientstohelpmotivatethem.

    What do employees say?

    Mentorshipapproachesspeaktothethemesofinformationandprocess,anddegradationofmentalhealthandwellbeing.Mentorsorsupportgroupswereoftentheonlywaythatemployeesfelttheycoulddiscoverwhatservicestheywereeligiblefor.Mentorshipswereofteninformalrelationshipsorvoluntaryinnature–employeesvoicedconcernabouttheover‑relianceonvolunteernetworks.Mentorsalsoprovidedsocialandemotionalsupportasmentorsoftensharedsimilarexperiencesorsituationstotheemployee.

    What has helped/could help?

    • MakeClaimsManagersinto‘relationshipmanagers’andcreateabespoketrainingprogram.

    • Useadvocacyorganisationsthatareintouchwiththeneedsoftheirspecificgroupe.g.spinalcord associationasacentralforum.

    • UseBehaviouralEconomicstheorytorestructurelanguagethatispositive,constructiveandfuture focused.Introducethenotionofre‑engagingwithlife(notjustwork).

    • Developawebplatformthatcontainsrelevantservicesandmotivationaltools.

    4. Goal setting

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Goalsettingapproachesareaboutstagingrehabilitationorjob‑seekinginordertopreserveandenhancemotivation.

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    What is the approach?

    Thepracticeofsettinggoalsisthoughttoinfluenceindividuals’feelingsofempowerment.Bythoughtfullysettingmeasurablegoals,individualscantrackprogressintheirrehabilitationorreturntowork.Successfullymeetingthesegoalsisthoughttoincreaseaperson’sbeliefintheirabilitytoachievefurtheremployment‑relatedgoals(self‑efficacy).

    What does the evidence say?

    Tworeviewslookedattheeffectofgoal‑setting.Goal‑settingapproachesmaynurtureempowerment,althoughthequalityofevidencewasmixedbutevidenceforimprovingworkparticipationandoccupationalperformancewasmixed.Itmightbethatgoal‑settingmaybeusefulforrehabilitationbutnotnecessarilyhelpfulwithemployment.

    What do stakeholders say?

    Stakeholdersbelieveoutcomesarebetterwhendealingwithsomeonewhounderstandsthechoicestheyhaveandwhatsupportcanbeputinplacetoachievethose.

    Theyalsosupporttheideaofgettingtheemployeetocommittothingstheywilldo‘onestepatatime’–dependingonthecircumstancesoftheperson,agoalandachievementmaybeassimpleasawalktotheendoftheroad,makingamealortalkingtosomeoneinashop.

    What do employees say?

    Goal‑settingapproachesaddressthethemeofdegradationofmentalhealthandwellbeing.Employeesseegoal‑settingasanimportanttoolinachievingtheiremploymentgoals.Goal‑settinghelpswiththementalhealthaspectofrecoveryaccordingtoemployees.Achievinggoalshelpsalleviatefeelingsofhelplessnessbydemonstratingwhattheindividualisstillcapableofdoing.

    What has helped/could help?

    • Whileemployeesvaluegoal‑setting,theybelievethatotherthingsneedtobedonefirstbeforegoal‑settingstrategiescanbeeffective.Forexample,somethinkthatanoverhaulofcasemanagementactivitieswouldbenecessarybeforegoal‑settingstrategiescouldbeeffective.Employeeswantsupportprovidersandcasemanagerstobemoreinvolvedintheircaseandseesharedgoal‑settingasapotentiallyeffectivemeansofdoingso.

    • Improvinghealthliteracyindirectlyimpactsgoal‑setting.Healthliteracyincludestailoredinformationthathelpspeopleunderstandwhatwillhappenthroughouttheirrecoveryjourney,howtogetthesupporttheyneedandhelpsthemidentifywhatispossible.

    • Theuseoffuture‑focusedlanguageisanaidtogoal‑setting.

    5. Person-centred planning

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds.Person‑centeredplanningaddressestheproblemofindividualsuniqueneedsfallingthroughthecracksforexample,aspeopletheymovebetweendifferentbenefitandincomesupportsystems.

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    What is the approach?

    Thereisanongoingtransformationofdisabilityservicedelivery,progressingfromasystem‑centeredapproachtoaperson‑centeredapproach.Underaperson‑centeredapproach,supportandservicesaretailoredaroundtheindividualandtheiruniqueneedsratherthanenforcingaone‑sizefitsallapproach.Person‑centredplanningisanapproachaimedatachievingindividualisedsupportforpeoplewithdisabilityandtreatingthemwithdignity,compassion,andrespect.

    What does the evidence say?

    Onereviewfocusesonperson‑centredplanning.Therearesmall‑scalesuccessesofperson‑centredplanningapproachesimprovingempowerment(i.e.communityandlifeparticipation).Theevidenceofthesesuccesses,however,isoflowqualitysocautiousinterpretationisadvised.Theevidenceforperson‑centredplanningimprovingemploymentoutcomesisinconclusive.

    What do stakeholders say?

    ‘Schemes work in streams. But that doesn’t work for the client.’

    Stakeholdersverymuchsupporttheideaofaperson‑centeredapproachwithsomealreadyachievingresultsintheirownsystemwiththisapproach.Stakeholderfeedbackwasthat‘thesystem’makesthepersontheproblemandthewayitisrunassumesthesystemknowsmoreabouttheemployeethattheindividualknowsaboutthemselves–‘wedothingsTOpeople’.

    Stakeholdersareconsciousofhowmuchbeingpartof‘thesystem’detrimentallyexacerbatestheperson’ssituationandhowdealingwiththesystemcanactuallyleadtosecondarypsychologicalconditions.Thetypesofbarrierspeoplefaceincludesituationssuchas:

    • wantingtoreturntoworkbutnotbeingallowedto–‘theywon’tletme’

    • notknowingwhoisresponsibleforwhat,whatresourcesareavailable,orwheretogoatwhatpointintimeintheprocess

    • long,drawnout,confusingsystems– ‘even if you know what you’re doing its hard and demotivating’

    • theneedtorepeattheirstorymultipletimesandre‑provetheircasewhenmovingbetweenjurisdictionsoriftheygetsomeworkbutendupneedingtogoonapensionagain.

    Theuniversalopinionofstakeholdersisthattheemployeeneedstobeputatthecentreoftheclaimandthatitisimportanttheyareheardandunderstood.

    ‘Get them to identify what they need and co-design their journey. If they co-own the way forward, they will be better engaged, more likely to make a success of the plan and less likely to fall back into the compensation system once they’re working’.

    What do employees say?

    Person‑centeredplanningaddressesthethemesofinformation and processandempathyandunderstanding. Employeeswouldwelcomeanincreaseinperson‑centeredplanningapproaches.Theysaywhilethecurrentapproachofone‑size‑fits‑allmayprovideabareminimumlevelofsupport,employeesoftenneedmorenuancedunderstandingfromsupportproviders.Theeffectofaone‑sized‑fits‑allapproachleavesemployeesfeelingignored,withoneemployeesaying:“… but it’s not person-focused, they’re indifferent and that is what breaks people”.Employeesalsoexplainthattherelianceonaone‑size‑fits‑allsystemhasledtoafeelingamongemployeesthatsupportprovidersassumeallclientsarecheatingthesystem.

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    What has helped/could help?

    • Employeessaidthataperson‑centeredapproachprobablyrequiresakeycontactorcasemanager,andthesuccessoftheapproachreliesheavilyonthequalityofthiskeycontact.Anotherpossiblebarriertoeffectiveperson‑centeredapproachesreliesontheindividual’spersonalmotivation.Someoftheemployeeswespoketosaidtheywouldratherbetoldwhattodobyexperts.Otherssaidthattheydidnotwanttositinthedriver’sseatbecausetheybeeninthedriver’sseatforyearsandgotnowhere.

    • Betterpathwaysbetweensystem–thatincludescommonforms,commonprocesses,commonlanguage,commonstandards(e.g.forclaimsmanagers).

    • Simpleaccessibletoolspeoplecanuseandunderstand.

    • Stakeholderssuggestarecognisedleadertoachievecommonagreementacrossthevariousjurisdictions.

    • Atriagesystemeitherinthesamemannerasa‘triagenurse’thathelpsguidepeopletotherightservices,oranevenbiggersuggestionofauniversaltriagesystembringingalltheexpertstogether–onestopshopsourceofmedicalandjobexpertsincludingwellbeing,doctors,psychologists,commonlawandarelationshipmanagerlinksdirectlytothese.

    • Providerpartnerships.Createpartnershipwithhealthprovidersallcontributingtotheindividualemployeeplan.

    6. Problem-solving

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Disability,injury,andillnesscancausechronicstress,whichcanbemanagedbyhelpingindividualstochangehowtheyapproachtheirdifficulties,andgainskillstocopeeffectivelywithstress.Problem‑solvingapproachesareaboutgivingindividualsatoolkitformanagingcondition‑relatedstress.

    What is the approach?

    Duringthelastdecade,therehasbeenanincreaseinthenumberofstudiesthathaveexaminedtheeffectivenessofinterventionsthatincorporateteachingproblem‑solvingskillstoworkerswhoarereceivingdisabilitybenefits.Theseskillsareaimedatenablingthemtosolvework‑relatedproblems.Evidencesuggeststhattheseskillshelptodevelopasenseofcontrolregardingstressors.Inturn,thiscanmoderatetheeffectsofworkstressorsthatcouldcontributetodisabilityandillhealth.

    What does the evidence say?

    Threereviewswereidentifiedonproblem‑solving.Thereviewssuggestedthattheseinterventionsshowmostpromiseforpartialreturntowork,butnotsoforreturntofullduties.Problem‑solvinginterventionsalonemaynotbeenoughtoreducesickleavebutacombinedproblem‑solvingandatherapyinterventionsuchas,cognitivebehaviourtherapydidhavesignificanteffectontotalsickleavedays.Otherevidencewasmixed.

    What do stakeholders say?

    Therewasnodirectreferencefromstakeholdersbutimprovinghealthliteracywasamajorouttakefromthestakeholderinterviewsandthisgoessomewaytothenotionofproblemsolving.

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    What do employees say?

    Problem‑solvingapproachesaddressthethemeofdegradation of mental health and wellbeing.Employeeshadlittletosayregardingproblem‑solvingapproaches.

    7. Strength-based interventions

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.Strength‑basedinterventionsareaboutincreasingempowermentbyfocusingontheindividual’sstrengths.

    What is the approach?

    Qualitiessuchasself‑efficacy,socialproblem‑solving,senseofpurpose,empathy,humour,resilience,andhopearealltargetedbystrength‑basedapproaches.Strengthscanbeconsideredatthepersonallevel(self‑efficacy)orattheinterpersonallevel(positivecaringrelationships),andtheapproachemphasizesthateverypersoncanbuildameaningfulandsatisfyinglifewithafocusontheirstrengths.

    What does the evidence say?

    Wefoundonereviewthatconsideredstrength‑basedinterventions.Theresultssuggestthatastrength‑basedapproachmayimproveempowerment(e.g.self‑esteem,self‑efficacy,senseofhope)buttheevidencequalityisquestionable.Therearenotenoughstudieswithstrongmethodologytoconcludethatstrength‑basedapproacheswork.

    Additionally,thereisdifficultyisolatingtheeffectofstrength‑basedapproachesastheywereoftenasingleelementwithincomplex,multifacetedinterventions.Inthecaseofseverepsychologicalsymptomologyforexample,suicidalideation,cliniciansarecautionedagainstusingonlyastrength‑basedapproachcompletelyisolatedfrommedicaltreatmentapproaches.

    What do stakeholders say?

    Thelongerapersonisin‘thesystem’,thegreaterthelossofconfidenceandtheharderitistorebuild.Oneofthestakeholdersprovidesmotivationaltrainingfortheirclientsandothers,whilstnotusingaformal‘motivational’system,traintheircustomerinterfaceteamsinpositivereinforcementskills.

    What do employees say?

    Strength‑basedapproachesaddressthedegradation of mental health and wellbeing.Employeeshadlittletosayregardingstrength‑basedapproaches.

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    8. Education

    Evidence Employees Stakeholders

    What is the problem being addressed?

    Understandingaconditionisanessentialfirststepinrecovery.Educationisabouthelpingindividualstounderstandtheirconditionandnavigateissuesthatrestricttheirabilitytowork.

    What is the approach?

    Educationinterventionsseektoinformindividualsaboutthesideeffectsoftheirconditions,aswellastechniquesforcopingandmanagingstress.Mostinterventionsusesomeformofcounsellingtoaddressparticipants’disease‑relatedanxietiesandprovideinformationonthecausesandcourseoftheirconditiontodispelmisconceptions.Thesearesometimesreferredtoas‘psycho‑education’approaches.

    What does the evidence say?

    Tworeviewsevaluatededucationapproaches.Educationmightbeusefulforrelievingcondition‑relatedanxietythoughthequalityofevidenceislow.Evidenceisunabletoshowthateducationhasabeneficialeffectonreturntoworkratesandoutcomes.

    What do stakeholders say?

    Outcomesarebetterifyouaredealingwithsomeonewhounderstandstheirchoices,whatsupportcanbeputinplace,andbeengagedinthatsupport.

    Thisalsomeansimprovinghealthliteracy–understandingthattheyshouldbeabletogetbacktowork,workisgoodforhealthandisaformoftherapeuticintervention,thatwaitingforrecoverycandelayrecovery,andknowingtheyneedtogethelp.

    Educationisalsohelpingpeopleunderstandwhattypeofworkmightbeanentryforthem–notnecessarilyalong‑termsolutionbuttore‑enter(lowerstatus,lowerpayisapsychologicalblowthatneedsframing)andtailoredinformationtodemonstratewhathappens/howtohelpindifferentcircumstances.

    What do employees say?

    Educationapproachesaddressthethemeofempathy and understanding.Employeesfeltthateducationwouldbeabroadlyusefultool–notforthemselvesbut,rather,forthepeoplearoundthem.Employeesarealreadyeducatingthemselvesasmuchaspossible,mostlyoutofnecessity,sofurthereducationmaynotbethemosteffectivetoolforthem.Whereeducationmightbemoreeffectiveisineducatingothersthattheseemployeeshavetointeractwith.Employeesdescribedaneedforeducationaimedathigh‑levelculturalchange,aswellaseducationaimedatlow‑levelindividualchange.

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    Educationforsupportproviders,casemanagers,employers,GPs,families,andthegeneralpublicwouldhelpempoweremployeestoachievetheiremploymentgoals.Accordingtotheemployees:

    • supportprovidersandcasemanagersneedexpertisewhenworkingwithpopulationswithhealthconditions,insteadofapplyingaone‑sizefitsallapproachthatworksforthegeneralpopulation

    • educatingemployersaboutthementalhealthandwellbeingcomponentofrehabilitationandreturntoworkwouldhelpcreateflexibleandunderstandingworkplaces

    • thereiswidevariabilityinGPs’understandingoftheworkdisabilitysupportsystem–GPeducationwouldhelpkeepthestandardmoreconsistent

    • familiesneedtobeincludedintheeducationprocessastheyoftenfeelhelpless.Changesinmentalhealthmaynotalwaysbeobvious,soteachingfamiliesaboutmentalhealthcouldhelpthemfeelequippedforsupportingtheirfamilymember.

    • finally,employeesfeltthattheirrecoveryandreturntoworkwouldbegreatlyhelpedbyeducatingthegeneralpublictobemoreawareandconsciousofthosewithdisabilityorconditionsthatmakeitdifficultforthemtowork.Someemployeeshighlightedhowtheirconditionshadnovisiblesymptoms,sowouldhavedifficultyreceivingsupportfrommembersofthepublic.Othersreportedhostilityandmicro‑aggressionsdirectedtowardsthembecauseoftheirinjury/condition.

    What has helped/could help?

    • Culturalchangearoundstigma,discriminationandthebenefitsofgoodwork.

    • Healthliteracyprograms.

    • Educationaroundthevalueofjobdesignandhowtoapply.

    9 &10 Culture and System change

    Employees Stakeholders

    UndertheRapidLiteratureReviewsearchterms,noevidencewasidentifiedunderthecategoryof‘culturechange’,butrecognitionoftheneedforculturechangecameoutstronglyintheexpertstakeholderandemployeeinterviews.

    Furthermore,withitsacademicprincipleofassessingspecificinterventions,theabilityorpurposeoftheRapidLiteratureReviewisnottounderstandtheinterplayacrossdifferentcomponentsofthebenefitandincomesupportsystem.Whereasforemployeesandexpertstakeholdershowthesystemworksiskeytoempowerment.

    Muchoftheemployeeandstakeholdercommentarythathasbeenrelayedinthepreviouspagesallpointtotheimportanceofcultureandsystemchange–suchaspoorunderstandingbyemployersofthevalueofemployeeswithaphysicalorpsychologicalconditionandtheimportanceofchangingnormsaroundnotonlytheirperceptions,butalsotheperceptionsofthemanyplayersinvolvedintheprocessesofthebenefitandincomesupportsystemincludingdoctorsandclaimsmanagers);orthecallfromemployeesforinterventionsthatfacilitateeasieruseofandgreaterempathyfrom‘thesystem’.

    Furtherexamplesoftheneedforcultureandsystemchangecanbeseeninthefollowingpageswheremoredetailedinterventionsuggestionsbyemployeesarecaptured.

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    3.0 Other Empowerment Interventions TheempowermentinterventionsdescribedinthissectionwereidentifiedthroughtheCitizenPanelandindividualinterviewswithemployeesandexpertstakeholders.

    Compassionandunderstandingtrainingforcasemanagers

    Whatistheproblembeingaddressed?

    Casemanagersmaynothavetheunderstandingorflexibilityinordertomostadequatelysupportindividualswithhealthconditionsinreturningtowork.

    What do employees say?

    Compassionandunderstandingtrainingforcasemanagersrelatestothethemeofempathy and understanding.Anissuethatarosefromseveralconversationswithemployeeswasthatcasemanagersoftenlackcompassionorevenabasicunderstandingoftheemployee’scondition.Littleunderstandingfromthecasemanagerhasaflow‑oneffecttothesortsofservicesthattheemployeeisgivenaccessto.

    What has helped/could help?

    • Greaterprovisionsforsupportproviderstogo“off‑script”–anideathatwasactivelypromotedbystakeholders.

    • Stakeholdersalsoraisedtheideaofmotivationalinteractivetrainingforclaimsandcasemanagers

    AdvocacygroupsWhat is the problem being addressed?

    Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.

    What do employees say?

    Advocacygroupsaddressthethemeofinformationandprocess.Employeesoftensaidthelargestdrainontheirmotivationwasconstantself‑advocacy.Needingtobe“ontopofeverysinglecoginthesystem”wasdescribedasdraininganddemotivating.Someemployeessaidtheywerefortunatetohaveanadvocatehelpingthemtonavigatethecomplexityand“couldn’timaginesurvivingtheordealwithoutone”.Employeesthensuggestedthatmoreformalizedadvocacygroupswouldbeofbenefittotheirreturntowork,thoughotherscautionedontheoverrelianceofvolunteers.

    Advocacygroupsdifferfrommentorshipprogramsinthattheyaremorefocusedonnavigatingthesystemswithspecificguidanceandunderstanding,whereasmentorsappearmosthelpfulinmoregeneralcontextsforexampleinnavigatingtheworldwithanew‑foundhealthcondition).

    Whilethereisconsiderableoverlapbetweenadvocacygroupsandmentorshipprograms,wehavekeptthemseparatetoreflectthesource–hereasanitemthatemployeesproducedasaresourcetheyhavereliedon,andmentorshipprogramsasaninterventiondiscoveredintherapidreview.

    What has helped/could help?

    Awebsitetoconnectindividualstowillingvolunteers.

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    EmployerforumsWhat is the problem being addressed?

    Job‑seekerswithhealthconditionsexpressfrustrationinsearchingforemployerswhoarewillingtoaccommodatetheircondition.Employeesarealsofrustratedthatjobserviceproviderslacktheabilitytomatchthemupwithwillingemployers.

    What do employees say?

    Employerforumsaddressthethemesofinformation and process and empathy and understanding. Employeeslookingfornewworkfinditdifficulttoconnectwithemployersthatareflexibleandwillingtoaccommodateworkerswithdisabilityorimpairment.Anemployerforumthat:educatesemployersaboutworkplaceaccommodation;connectsemployerswiththosewillingtowork;andmakesiteasierforjobserviceproviderstobuildanetworkofpotentialemployerswouldhelpaddressanumberofissuesemployeesfacewithworkplaceparticipation.

    What has helped/could help?

    Buildawarenessandunderstandingofgoodwork.

    Stakeholders say

    There’saneedtocreateauniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatgettingbacktoworkbeforeyou’re100%wellisaprovenaidtorecovery(withappropriatemedicalclearance).

    ‘We (the industry) all talk about the benefits of good work, but we’re in a bubble – we need to get the message beyond the people in the industry. As a nation we need to accept the importance of work.’

    TransitionseminarsandmanagersWhat is the problem being addressed?

    Employeesdescribethesupporttheyreceiveasfracturedandtheywantitsimplifiedtosomethinglikeaflow chart.Transitionmanagementrepresentsaunificationofsupportserviceswithafocusonnavigatingthetransitionintowork.

    What do employees say?

    Transitionseminarsandmanagersaddressthethemeof information and process.Akeyoutcomefromdiscussionswithemployeesisthedesireformorecentralisedprocessregardingsupportprovisionandreturntowork.Onespecificexamplefromdiscussionsincludedthenotionsoftransitionseminarsandmanagers.Thisideaborrowsfromthedefenseforce,wheredefensepersonnelaredebriefedfromtheirdutiesandpreparedforlifeasacivilian.Asimilarexercisecouldexistforapersontransitioningfromonestageofemploymentparticipation(e.g.unemployed)toanother(e.g.part‑timeemployment).A‘transitionmanager’representsanevolutionofthecurrent‘casemanager’rolebutwithafocusonthewellbeingoftheemployeeastheynavigatetheirrehabilitationandreturntowork.

    What has helped/could help?

    Willingnessfromsupportproviderstoinvestigatealternativesupportmethods.

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    GroupactivityaccessWhat is the problem being addressed?

    Employeeswithhealthconditionssometimesfeellikethere’snothingtheycandoandhavelowself‑efficacy.Theyalsofeelisolatedwhentheyareunabletowork.Groupactivityprovisionaddressestheseproblemsoflowself‑efficacyandisolation.

    What do employees say?

    Activityprovisionwasakeyfocusforanumberofemployeeswhosewellbeingsufferedbycomingoffworkandsuddenlyhavingnothingtodo.Fromawellbeingperspective,employeesdiscussedthenotionofsupportprovidersofferingwellbeingactivitiessuchasgymmemberships,artclasses.Importantly,thesewouldeitherbeactivitiestobecompletedasagroup(grouprehabilitationatagym)orwereinherentlygroup‑oriented(artclasses).

    What has helped/could help?

    Confidenceandknowledgewouldhelpindividualsapproachnewgroupsandactivities.Sometimestheydon’tknowwheretofindsuchthingsanditwouldbehelpfulifacasemanagerorweb‑basedplatformcouldpointthemintherightdirection.

    Group‑basedcasemanagementWhat is the problem being addressed?

    Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.Group‑basedcasemanagementallowsindividualstoshareknowledge(makingnavigationeasier)andexperienceswithothers.

    What do employees say?

    Accordingtotheemployeeswespokewith,oneofthemostdifficultaspectsofbeingunabletoworkissocialisolation.Thenegativeeffectofisolationontheirmentalhealthandwellbeingwasclearlyveryimportanttoemployees.Anothersideeffectofsocialisolationwasthatemployeeswereunabletofindrelevantinformationwithoutthehelpofanotherpersonwhohadthesameexperience.Employeessuggestedthatgroup‑basedcasemanagement,wheresupportproviderscouldmanagethecasesofseveralemployeeswithsimilarconditionssimultaneously,couldsolveboththeseproblems.Bymeetingtogetherinthesamespace(physicalordigital),employeescouldshareexperiences,sharelearnings,andinteractwithothersforsocialsupport.

    What has helped/could help?

    Awillingnessonthepartofthesupportprovidertoconsideralternativesupportstrategies.

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    CustomerfeedbackasaKPIWhat is the problem being addressed?

    Supportprovidersareperceivedaslackingtransparency.Empoweringindividualsbymakingcustomerfeedbackpartofthesupportprovider’sKeyPerformanceIndicator(KPI)couldaddressthisissueoftransparency.

    What do employees say?

    Alargeissueforemployeeswasaperceivedlackofaccountabilityandtransparencyonthepartofthesupportproviders.Employeeswespoketofeltthatasolutioncouldbetoincludecustomerfeedbackintheperformanceevaluationofsupportproviders.

    What has helped/would help?

    Aplatformforcollatingcustomerfeedback.

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    Table3:Summaryofpossibleinterventions

    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Culture change

    Culturechange Societalattitudesandbeliefspreventindividualswithhealthconditionsfromfullparticipation(life,work).

    Changeinsocietalattitudesandbeliefsregarding'goodwork';permissiontoGPsforsuggestinggradualreturntowork;permissionforfamiliestobecomfortablewithemployeereturningtowork.

    Anawarenesscampaigntochangebeliefsandattitudes.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    System change (support providers)

    Person‑centredplanning

    Supportproviderslacktransparency(e.g.employeesareonlymadeawareofaportionofservicesavailabletothem)

    Supportprovidersprovidelistoffullsuiteofsupportoptions.

    Educatedecision‑makersfromsupportprovidersonimportanceoftransparencyandtoolstoenablethis.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds‑feelliketheyfallthroughthecracks.

    Supportprovidersrestructuretheirsupportdeliveryaroundperson‑centredplanning

    Engagesupportprovidersinthedevelopmentandapplicationofacommonsetofprinciples(eg:co‑designingrecoveryprogramwiththeemployee,enablingandtrainingclaimsmanagersonhowtogo'off‑script')thatincludeshortterm'simpletouptake'and'longterm'programchangesindelivery.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

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    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Systemstreamlining

    Supportisfractured,complexandconfusing.

    Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.

    1.Engagewithprovidersindevelopingcommonlanguageandcommonformstomaintainconsistencyofexperiencebetweensystemsandmedicalservices.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    2.Provideacrosssectoronlinetriageservicepersonedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    Employeeshavetorepeattheirstoriesandmedicalrequirementsmultipletimesthroughouttheirjourney,especiallywhentransitioningthroughdifferentpointsofthesystem.

    Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.

    1.Investigatetoolsandoperatingstructuresthatcande‑duplicateprocessesandenablesharingofinformationacrosssystemsandproviders.

    2.Identifyatransitionmanagementprocessthatfacilitatestheeaseofmovementfromonesystemtothenext.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Education Changesinhealthconditionscausestressandanxiety

    Improvedhealthliteracyforemployeesandtheiremployersandfamilies

    Psycho‑educationapproachtoincreasehealthliteracy

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

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    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Goal‑setting Disability,injury,andillnesscantaketheirtollonmotivation.

    Goal‑settinginterventionsofferedbysupportproviders.

    1.Goal‑directedoccupationaltherapyprogram.

    2.Usebehaviouraleconomicsstrategiestotrainclaimsmanagerstointroducegoal‑settingobjectivesintotheirinteractionswiththeirclient.

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    3.Reframelanguagetopositivemotivation.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Problem‑solving Disability,injury,andillnesscancausechronicstress

    Problem‑solvingincludedinsupportofferedbysupportproviders.

    Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    Mentorship Navigatingthebenefitandincomesupportsystemcanbeafrustratingandlonelyaffair.

    Maintaintheconfidenceandmomentumoftheemployeetostaypositive.

    Providemotivationaltrainingforclaimsmanagers.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Strength‑basedinterventions

    Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.

    Strength‑basedinterventionsincludedinsupportofferedbysupportproviders.

    Incorporatingarehabilitationandreturntoworkstrategythatplaystotheindividual’sstrengths.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

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    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Work accommodation (employers)

    Education Jobdescriptionsdonotconveywhetherthejobcanbedonebysomeonewithahealthcondition.

    Advertisementsforjobpositionsincludeastatementofminimumrequiredability.

    Educatedecision‑makersfromemployersontheimportanceofinclusivelanguage,andhowemployeesdonotneedtobe100%healthytobeproductive

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Support Employeesconstantlyreachout,oftenforlittleresult

    Employersreachouttoemployeesaspartofclaim/casemanagement.

    Designinterventiontotrainemployerstoreachoutfirstandoftentoemployeesduringtheirrehabilitation.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Workaccommodation

    Groupinterviewscanbedaunting. Hiringpracticeschangedtobemoreinclusive.

    Developguidelinesandeducationprogramsforemployersandrecruitmentagencies.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Education Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.

    Increasewillingnessofemployerstohirethosewithhealthconditions.

    Createaforumfor:(1)providingemployerswitheducationmaterialsregardinggoodwork;(2)developingjobserviceprovidersemployernetworks;and(3)puttingpotentialemployeesintouchwithwillingemployers.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Identifyasystemthatprovidestrainingandstandardsforemployers/recruitmentagenciestobecomeaDisabilityConfidentRecruiter/Employer.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Interventiontoencourageemployerstoprovide'onthejob'trainingforintellectuallyordisabledjobseekersratherthanrequiringatertiaryqualification.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

  • 30

    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Employee empowerment

    Mentorship Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.

    Employeesfeelsociallysupported Onlineresourcecollatingonline‑orcommunity‑basedmentorshipprogramsandsupportgroups.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    Unsuitablementorscanhaveanadverseeffect.Thisexacerbatesincidencesofdepressionandhopelessness.

    Linkemployeestopositiveinfluencers.

    Useadvocacyorganisationsthatareintouchwiththeneedsoftheemployeesspecificgroupasacentralforum(eg:spinalcordassociation).

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    System Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.

    Employeesfeelsociallysupported. Group‑basedcase/claimmanagement.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Onestopshopportal'thatconnectstoservices,mentorgroups,'goodwork'credentialedemployers,jobsearchservices,jobapplicationguidance,motivationaltrainingetc.

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

    Education Employeesunawareofwhattoexpectofemployer

    Employeesmoreclearlyunderstandwhattoexpectoftheiremployer.

    Collateonlineinformationregardingemployerobligations.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.Employerguidelines.

    Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)

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    Category Problem Desired outcome Possible intervention How does the intervention empower individuals?

    Jobseeking Itcanbedifficulttomanageyourconditionwhenitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.

    Employeesfeelsupported Individualplacementandsupport(IPS)approachfromjobsearchprovider.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.Groupinterviewscanbedaunting.

    Employeesaregiventheconfidencetokeeplookingforwork.

    Accesstoajobcoachingsystemmannedwithcoachestrainedforthespecialneedsofpeoplewithaphysicalorpsychologicalhealthcondition.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

    Lossofskills,eitherduetoonsethealthconditionorlong‑termunemployment.

    Havetheskillstofindsuitableemployment.

    Interventionsthatgiveaccesstotraining/retraining.

    Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)

  • 32

    4.0 ConclusionThepurposeofthisstudyistoidentifywhatcanhelpemployeestohelpthemselves–touseworkaspartoftheirrecovery.However,adistinctionmustbedrawnbetweenthedifferenttypesofempowermentinterventions:

    1. Independentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesrightnowwithouthelpfromanyoneelse.

    Neithertheacademicevidence,expertstakeholderinterviewsnoremployeeinterviewsidentifiedindependentself‑empowermentinterventions.

    2. Dependentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse,forexample,‘mentorship’isthemostfavouredinterventionbyemployeesbutfacilitiestoaccessmentorshipwouldhavetobeestablishedtoenableaccess.

    3. Dependedempowerment–empoweringthingsindividualscannotactionthemselves.

    Dependentself‑empowermentThefollowinginterventionsandexampleswereidentifiedthatindividualscanactionthemselvesonceamechanismisestablished.

    • Mentorship:community‑basedprogramsandsupportgroupsoradvocacygroupforumsthatindividualscanaccessviaonlineresourcesoruseofadvocacyorganisationsthatareintouchwiththeneedsofspecificemployeegroupsasacentralforum.

    • Education:acollationofonlineinformationregardingemployerobligationsandguidelinestohelpemployeesunderstandtheirentitlementswashighlysupportedbyemployees,orapsycho‑educationapproachtoincreasehealthliteracy–thoughreviewevidenceforthiswasinconclusive.

    • Goalsetting:agoaldirectedoccupationaltherapyprogram.

    • Systemfacilitation:aportalthatconnectstoservices,mentorgroups,‘goodwork’credentialledemployers,jobsearchservices,jobapplicationguidance;oranonlinetriageserviceprovidedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.

    DependentempowermentWhatthisinvestigationlearntfromemployeesandfromstakeholdersisthatthebesteffortsatself‑helparedefiedbysystemsthatarecomplexandunsupportive.Inthewordsofakeystakeholder‘theycannotfightabadsystem’.Whatisclearisthatthereisnosilverbullet.Employeeempowermentisreliantonbroaderchangesandamulti‑dimensionalapproach.

    • Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusionisimportant.Culturalprovidestheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolforallparticipantcohorts.Italsogoeshandinhandwiththeneedforbettercross‑communityhealthliteracy.

    Thereisgrowingevidencethatdemonstratesthatwithoutshiftingculturalbeliefsandsocialnorms,inthiscasearoundthebenefitsofgoodworkandemployingpeoplewithhealthconditionsordisability,theeffectivenessofempowermentinterventionscanbecompromised.ThisisevidencedinsomeofAustralia’slargestbehaviourchangeprogramssuchasroadsafety,workplacesafetyandsmoking,whereeducationandlegislationdonotworkinisolationofcreatinganemotionalconnectiontothebenefitofaparticularbehaviour.

    Stakeholdersrepeatedlyraisetheimportanceofcreatinguniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatworkingisaprovenaidtorecoveryandemotionalwellbeing.

  • 33

    • System change –theevidencefromemployees’experiencesofthebenefitandincomesupportsystemsmaybeconsideredharshbysome,butpresentsaveryrealimpedimenttoindividualempowerment,evenleadingtoworseninghealthandgreaterrelianceonthesystembycontributingtosecondaryconditionssuchasdepression.Partsofthesystemareoutofstepwithcurrentbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses,andthisisachallengethatneedstobeaddressed.

    • Work accommodation–theneedforemployer’stobetterunderstandandsupporttheindividualcapabilitiesofemployeeswithaphysicalorpsychologicalconditionordisabilityissupportedbyevidence,employeesandstakeholders.Effectiveworkaccommodationisthecoalfaceoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.

  • 34

    Additional informationStakeholderresearch–thebesttimetointerveneStakeholderswereaskedaboutthemostadvantageoustimeintheprocesstointervene.

    Earlyinterventionwasuniversallyconsideredaprioritytoprovidehopeandinspirationearlyon.Thisincludedtheveryfirstconversationonthisbasisthisisthetimewhenyougettoknowthecustomer,theirstoryandwhatthey’relike,aswellasbeingabletosetexpectationsfromthestart(i.e.tellthemwhatisgoingtohappen,theirrole,theemployersrole,wintrust,helpthemmakedecisions).

    Inthecaseofinjuryorillnessthatimpactsanexistingworksituation,therewasalsothenotionthatthefirstcontactshouldbebeforethepersonbecomesinvolvedintheworkdisabilitysystem.

    ‘the system is focused on your health, you get a doctor, a physiotherapist, a specialist, but nobody focusses on your ability to work, and this leads to an immediate loss of confidence to work. The work conversation needs to start immediately – even if it is not a full chat because of the circumstances, it is someone saying ‘I will come and talk to you about how to help you get back to work’.

    Anotherideawastheneedforearlyunderstandingandnotificationassoonassomethinghappenstoensuretheemployeranddocumentsarehandledintherightway.

    Overallconsensusisthatthestrategyneedstobeaboutprevention.Understandingbypeoplebeforetheyevenfindthemselvesinthesituationsotheyknowwhattodotherebylesseningthe‘adversarial’feelingofthesituationandtriggeringthenotionthat‘ifyoufindyourselfinthissituationspeakupquickly’.

  • 35

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    AppendicesAppendix1:Examplesofinterventiontypes1. Workaccommodation

    Examplesfromliteratureofwhatworkaccommodationinterventionsincorporate:

    • Individualcasemanagementandjobsearchassistance

    • Changestotheworkplaceorequipment

    • Changesinworkdesignandorganisation

    • Changesinworkingconditionsorworkenvironment

    • Casemanagementwithworkerandemployer

    • Earlycontactwithworkerbyworkplace

    • RTWcoordination

    • Worksiteergonomicvisit

    • Healthcareprovidercontactwithworkplace

    2. Support

    Examplesfromliteratureofwhatsupport/individualplacementandsupport(IPS)interventionsincorporate:

    • Individualplacementandsupportprinciples:competitiveemploymentasprimarygoal;eligibilitybasedonpatientchoice;integrationofvocationalandclinicalservices;jobsearchguidedbyindividualpreferences;personalisedbenefitscounselling;rapidjobsearch;systematicjobdevelopment;time‑unlimitedsupport

    • AugmentedIPS:IPSwithaddedspecialisedtrainingcomponents(e.g.augmentedwithcognitivetraining,work‑relatedsocialskills,workplaceskills)

    • Traditionalvocationalrehabilitationmodels:focusontheinterventionsinthesettingpriortoinitiatingworkactivity

    • Supportedemploymentmodels:focusontheimmediatecompetitivejobsearch

    • Work‑focusedtreatmentofhealthconditions(e.g.commonmentaldisorders)

    3. Mentorship

    Examplesfromtheliteratureofwhatmentorshipinterventionsincorporate:

    • School‑basedinterventionswithpeermentors(e.g.class‑basedcompetency‑buildingprogramaimedatfosteringself‑determinationinstudents)

    • Community‑basedinterventionswithpeermentors(e.g.programsbasedoutsideschoolsorotherinstitutions

    • Work‑basedinterventions(e.g.coworkertrainingviastandardizedone‑on‑oneapproach)

    • Familyemploymentawarenesstraining(e.g.standardisedknowledge‑basedtrainingprogramforfamilies)

    • Onlinementorshipprogram(e.g.emailmethodsformentorstoprovidesupportandinformationsharing)

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    4. Goalsetting

    Examplesfromtheliteratureofwhatgoal‑settinginterventionsincorporate:

    • Goal‑directedoccupationaltherapyprogram

    • Group‑basedgoalsettingapproach

    • Specificoccupation‑basedgoalsetting

    5. Person‑centeredplanning

    Person‑centeredplanning(PCP)isnotastandardizedinterventionbutanumbrellatermthatisoftenusedtodescribeapproachesandtechniquesthatsharecommoncharacteristics.Fivekeyfeaturesinclude:

    • The person at the center

    • Familymembersandfriendsarepartnersinplanning

    • Theplanreflectswhatisimportanttotheperson,theircapacities,andwhatsupporttheyrequire

    • Theplanresultsinactionsthatareaboutlife,notjustservicesandreflectwhatispossibleandnotsimplywhatisavailable

    • Theplanresultsinongoinglistening,learning,andfurtheraction

    6. Problem‑solving

    Problem‑solvinginterventionsareusuallydeliveredasatrainingprogram.Someexamplesfromtheliteratureinclude:

    • Problem‑solvingtrainingcombinedwithgradedactivity

    • Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist

    • Problem‑solvingcomponentinguideline‑basedcareprovidedbyoccupationalphysicians

    • Problem‑solvingtrainertrainingforoccupationalphysicians

    • Problem‑solvingcomponentincollaborativecareinterventioninvolvingworker,manager,andoccupationaltherapist

    • Individual‑andgroup‑basedproblem‑solvingtrainingdeliveredbypsychologists.

    7. Strength‑basedinterventions

    Examplesfromtheliteratureofwhatstrength‑basedinterventionsincorporate:

    • Strength‑basedcasemanagement

    • Strengths‑basedbriefsolutionfocusedcounselling

    8. Education

    Examplesfromtheliteratureofwhateducationinterventionsincorporate:

    • Psycho‑educationalinterventions(e.g.participantslearnaboutphysicalsideeffects,stressandcopingtechniques)

    • Patientcounsellingandhealtheducation

    • Stressmanagementandrelaxationtrainin

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    Appendix2:Detailedbreakdownofcitizenpanelattendees

    20–244% 25–29

    4% 30–344%

    35–399%

    40–444%

    45–4931%

    50–5422%

    55–6022%

    Year 1210%

    AdvancedDiplomaandDiploma

    30%

    BachelorDegree20%

    Acquiredandcongenital

    components4%

    Acquired87%

    Congenital9%

    Congenitalvsacquired

  • 41

    Acute18%

    Chronic82%

    Chronicvs.acute

    Moderateproblem20%

    Noproblem0% Mildproblem

    0%

    Severe problem0%

    Minimalproblem0%

    Moderatelysevere problem

    50%

    Verysevereproblem30%

    Severity

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    Appendix3:Projectmethods

    Rapidreviewmethods–Searchstrategy

    Acomprehensivesearchofthefollowingdatabasewasundertaken:PsycINFOviaOvid,MedlineviaOvid,CochraneLibraryandCINAHL.TheMedlinesearchstrategyisreproducedbelow:

    Table 4. Medline search strategy

    Search string

    1 returntowork[tw]ORreturn‑to‑work[tw]ORRTW[tw]ORre‑employ*[tw]ORemployment[tw]ORunemployment[tw]ORunemployed[tw]ORretirement[tw]ORemployab*[tw]ORabsenteeism[tw]ORvocational[tw]OR(commenc*adj3work)[tw]OR(commenc*adj3job)[tw]OR(stay*adj3work)[tw]OR(stay*adj3job)[tw]OR(workadj2participat*)[tw]OR(modif*adj2work)[tw]OR(workadj2adjust*)[tw]OR(retainadj2work)[tw]OR(retainadj2job)[tw]OR(jobadj2retention)[tw]OR(workadj2retention)[tw]OR(jobadj3re‑ent*)[tw]OR(workadj3re‑ent*)[tw]OR(workadj3reintegrat*)[tw]OR(jobadj3re‑integrat*)[tw]OR(modif*adj2dut*)[tw]OR(lightadj2dut*)[tw]OR(workadj2ability)[tw]OR(workadj2status)[tw]OR(recover*adj2work)[tw]OR(obtain*adj3work)[tw]OR(obtain*adj3job)[tw]OR(workadj3capacity)[tw]OR(occupationaladj2outcomes)[tw]OR(sick*adj1leave)[tw]OR(sick*adj3absence)[tw]OR(workadj3accommodat*)[tw]OR(jobadj3accommodat*)[tw]OR“workplace”[SubjectHeading]OR“returntowork”[SubjectHeading]OR“work”[SubjectHeading]OR“employment”[SubjectHeading]OR“sickleave”[SubjectHeading]OR“jobsatisfaction”[SubjectHeading]OR“occupationalmedicine”[SubjectHeading]OR“rehabilitation,vocational”[SubjectHeading]OR“occupationalhealth”[SubjectHeading]OR“unemployment”[SubjectHeading]OR“absenteeism”[SubjectHeading]OR“occupations”[SubjectHeading]OR“occupationalhealthservices”[SubjectHeading]OR“workcapacityevaluation”[SubjectHeading]OR“vocationalguidance”[SubjectHeading]

    2 disability[tw]ORdisease[tw]ORinjury[tw]ORillness[tw]ORdisorder[tw]ORcognitiveimpairment[tw]ORcognitivedysfunction[tw]ORmusculoskeletaldisease*[tw]ORcancer[tw]ORosteoporosis[tw]ORarthritis[tw]ORasthma[tw]ORchronicobstructivepulmonarydisease[tw]ORCOPD[tw]ORchronicpain[tw]ORcardiovasculardisease[tw]ORdiabetes[tw]ORchroniccondition[tw]ORmentalhealth[tw]ORchronicdisorder[tw]ORpsychologicaldisorder[tw]OR“Disabledpersons”[SubjectHeading]OR“IntellectualDisability”[SubjectHeading]OR“MentalDisorders”[SubjectHeading]OR“WoundsandInjuries”[SubjectHeading]OR“ChronicDisease”[SubjectHeading]OR“CognitiveDysfunction”[SubjectHeading]OR“MusculoskeletalDiseases”[SubjectHeading]OR“Neoplasms”[SubjectHeading]OR“Osteoporosis”[SubjectHeading]OR“Arthritis”[SubjectHeading]OR“RespiratoryTractDiseases”[SubjectHeading]OR“PulmonaryDisease,ChronicObstructive”[SubjectHeading]OR“Asthma”[SubjectHeading]OR“BackPain”[SubjectHeading]OR“ChronicPain”[SubjectHeading]OR“CardiovascularDiseases”[SubjectHeading]OR“DiabetesMellitus”[SubjectHeading]OR“Depression”[SubjectHeading]OR“AnxietyDisorders”[SubjectHe