employee awareness and empowerment research report · 2020. 10. 10. · 1.1 project objective ......
TRANSCRIPT
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Employee Awareness and Empowerment Research Report
The Collaborative Partnership to improve work participation
December 2019
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Table of ContentsExecutive summary .................................................................................................................................. 3
1.0 The project approach ....................................................................................................................... 5
1.1 Projectobjective ................................................................................................................................... 5
1.2 Project approach ................................................................................................................................... 5
1.3 Howtointerprettheresearchfindings ................................................................................................ 7
2.0 Findings ............................................................................................................................................ 8
2.1 Rapidreviewresults .............................................................................................................................. 8
2.2 Interventionranking ........................................................................................................................... 10
2.3 Responsestotheinterventiontypes .................................................................................................. 11
3.0 Other Empowerment Interventions ............................................................................................... 22
4.0 Conclusion ...................................................................................................................................... 32
Additional information ........................................................................................................................... 34
References ............................................................................................................................................. 35
Appendices ............................................................................................................................................ 38
Appendix1:Examplesofinterventiontypes .............................................................................................. 38
Appendix2:Detailedbreakdownofcitizenpanelattendees ..................................................................... 40
Appendix3:Projectmethods ...................................................................................................................... 42
Appendix4:Qualityappraisal ..................................................................................................................... 44
Appendix5:Detailedthematicanalysis ...................................................................................................... 51
Appendix6:Reviewquality ......................................................................................................................... 55
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Executive summaryEachyear,toomanyAustraliansareunabletoworkduetoatemporaryorpermanentinjury,illnessordisability.AmongstOECDcountries,Australiaranks21outof29foremploymentratesamongpeoplewithdisabilitiesrelativetothepopulationandevidenceshowsthatforpeoplewithaworkers’compensationclaim,returntoworkrateshavestagnatedsince2006.
TheobjectivesoftheEmployeeAwarenessandEmpowermentresearchistobetterunderstandtheexperiences,beliefs,andneedsofpeoplewithahealthordisabilityrelatedreasonforworkincapacityandidentifyevidence‑basedinterventionstoempower ‘employees’withahealthconditionordisabilitytouseworkaspartoftheirrecovery.
TheWorldHealthOrganizationdefinesempowermentas:
the process by which people gain control over the factors and decision that shape their lives
Thisdefinitionincludestheprocessbywhichpeoplebuildtheirpersonalattributesinordertoachievetheircapacity.Personalattributescanincludeconfidenceorself‑worth,buildingknowledge,developingcopingmechanisms,orenhancingpersonalskillstomakehealthandwellbeingrelatedchoices.Manyexamplesofsuccessfulempowermentinterventionsandprogramsalreadyexistinthepublichealthfield.
Thestudyaddressesanimportantgapinevidenceonempowermentstrategiesforpeoplewithahealthconditionordisabilitytouseworkaspartoftheirrecovery.Thefindingspresentedinthisreportarebasedonarapidreviewofevidenceonempowermentinterventions;qualitativeresearchtogainafirst‑handaccountoflivedexperiencethatsetsthecontextforwhatneedstobeconsideredwhenaddressingempowerment;andinsightsfromstakeholderfromtherelevantsystemsandsectors.Thisreportprovidesimportantinsightsforpolicymakers,serviceprovidersandsystemownersresponsibleforsupportingpeoplewithillhealthordisabilityandworkparticipation.
Thekeyfindingsfromthisstudyshowsthat:
• employeesaremotivatedtoworkandtheirmotivationisnotabarriertoparticipation–itisnotforlackoftryingthatpeoplehavenotsecuredsuitablework.Peopleareawarethatworkprovidespurpose,self‑sufficiency,stabilityandsocialization.Beingoffworkmakesithardertogetwork,leadstoloneliness,lossofself‑confidence,lossofperceivedcontrolandlossofsocialnetworks.
• employeesfindthebenefitandincomesupportsystemscomplexandoverwhelming,personifiedbya‘onesizefitsall’approachthatleaveslittleroomforflexibilityorempathy.Theyreportalackoftransparencyregardingtheirrights,benefitsandprocesses,significantuncertainty,ineffectivecommunicationbetweenstakeholdersthatisparticularlyproblematicaspeopletransitionbetweensystems,andacontinuousrequirementtoretelltheirstory.Theseexperiencescancontributetoworseninghealthanddelayedrecoveryfortheindividual.
• thereisastrongbeliefamongstemployeesthatemployerslackunderstandingoftheworkabilityofpeoplewithahealthconditionordisabilityandhowtoeffectivelyaccommodatethem.
“Anestimated786,000Australians
areunabletoworkduetoaninjury,illhealthordisabilityandaccessincomesupportfromacommonwealth,state,territoryorprivatesource.”
(Cross-Sector Systems Report, 2017)
“Afurther6.5millionpeople
accessemployerprovidedleaveentitlementsforperiodsofworkincapacitydueto
theirhealth).(Cross-Sector Systems
Report, 2017)
In this report the term
‘employees’referstoindividualsstaying
at,orreturningtowork,orcommencingnewwork(includingtheirfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),
ordisease
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Anumberofinterventionscanbeusedtoempoweremployeestouseworkaspartoftheirrecoveryincludingmentorship,educationandgoal‑settingapproaches;however,theseinterventionsrequireenablingmechanismstobeinplacebyrelevantsystemsandproviders.
Thisstudyhighlightsthatforempowermentinterventionstobeeffective,willrequireamulti‑dimensionalapproachthataddressesbroaderculturalattitudes,systemimprovementsandworkaccommodationprinciples.
• Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusion.Cultureandsocialnormsprovidetheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolthatgoesin‑handwiththeneedforbetteracross‑communityhealth literacy.
• System change–theperceptionsandexperiencesofemployeesofthebenefitandincomesupportsystemsmaybeconsideredharsh,butpresentsaveryrealimpedimenttopersonalempowerment.Reportsshowthatpartsofthesystembycausingsecondaryconditionssuchasdepression.Reportsshowthatpartsofthesystemareoutofstepwithbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses.
• Work accommodation–thereisaneedforemployerstohaveabetterunderstandingandimprovemanagementofthecapabilitiesofemployee’swithaphysicalorpsychologicalcondition.Thisissupportedbytheliteratureandthefindingsfromemployeesandstakeholders.Thisisthepracticalaspectoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.
Empoweringpeopletouseworkaspartoftheirrecoveryandwellbeingcanleadtobetterhealthandeconomicaloutcomesforindividuals,theirfamilies,thecommunity,andAustralianworkplaces.Thekeymessagefromthisresearchisthatempowermentisacomplexstrategythatsitswithincomplexenvironmentsandsettings.Effectiveempowermentstrategiesdependsnotonlyontheindividualandtheirabilitytocontrolthefactorsthatshapetheirlives,butalsotheoverallcontextinwhichtheytakeplace.
Health literacyrefers
tothecognitiveandsocialskillswhichdeterminethemotivationandabilityofindividualstogainaccessto,
understandanduseinformationinwayswhichpromoteand
maintaingoodhealth.Healthliteracyiscritical
to empowerment.
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1.0 The project approach 1.1ProjectobjectiveThisprojectaimstouseanevidenceinformedapproachtoidentifyingeffectiveorsuccessfulinterventionstoempoweremployeestostayat,obtainorreturntowork.
1.2 Project approachThisstudyisaninitiativeoftheCollaborative Partnership to improve work participation(theCollaborativePartnership)andhasbeenledbyEML.TheCollaborativePartnershipisanationalalliancebetweenthepublic,privateandnot‑for‑profitsectorsandisfocusedonimprovingworkparticipationofAustralianswithatemporaryorpermanent,psychologicalorphysicalhealthconditionordisability.
Thereislimitedcurrentunderstandingofthebeliefs,perceptionsandattitudesofpeolewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofpeoplewithatemporaryorpermanentinjury,illnessordisabilityandtheirexperienceofnavigatingthevariousbenefitandincomesupportsystemsinAustralia,andinteractionswithemployers,andrelevantserviceproviders.Thisprojectusedqualitativeresearchmethodologytoinquiredeeplyintospecificexperiences,withtheintentionofdescribingandexploringmeaningthroughnarrativedata,bydevelopingthemesexclusivetothestudyparticipants.Whilethequalitativeapproachprovidesuswitharichunderstandingofpeople’sexperience,itdoesnotallowustoinferorgeneraliseabouttheexperienceofthosewhodidnotparticipateintheresearch.
Theprojectisinformedbyarapidliteraturereview,citizenpaneldiscussionandindividualinterviews,andexpertstakeholderinterviews.
RapidLiteratureReview
TheRapidLiteratureReviewwasfocusedoninterventionsthathavebeenproventoencourageemployeestostayat,obtain,orreturntowork.
ItwasbasedonthePICOframework:
• Population:Individualsstayingat,orreturningtowork,orcommencingwork(includingfirstjob);withinjuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease(e.g.cancer).
• Interventions:Empowerment(unlikelytoexist),activeparticipation,navigation,self‑management(insurance),healthliteracy,schemenavigation,workplanning,problemsolving,supportmechanisms,self‑managementsupport,self‑sufficiency,socialsupport(e.g.communityinvolvement,familystability),andactiveinterventions.
• Comparison:Nospecificcomparisongroupwasset
• Outcomes:Workstatus(returntowork,stayatwork,commencenewwork),feelingofempowerment,attitudes,needs,andmotivations.
Thereviewincludedinternationaldatacoveringthelastfiveyearsandyielded71relevantarticles.
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CitizenPanelandInterviews
ThepurposeoftheCitizenPanelandinterviewswastounderstandtheattitudes,motivations,beliefs,experiences,drivers,barriersandneedsofemployeesnavigatingtheworkdisabilitysystem.
Atotalof23citizensparticipated–10fortheCitizenPaneland13inindividualinterviews.
Recruitmentensuredparticipantrepresentationacross:
• workstatus:obtaining,stayingatorreturningtowork.
• claimtype:physicalandpsychological.
• healthconditions:Injuries(psychologicalorphysical),disabilities(cognitiveorphysical),ordisease.
• crosssectorexperience:workers’compensationandmotoraccident,disabilitysupportandsocialwelfare;superannuationorlifeinsurance.
ThelineofenquirywasinformedbytheresultsoftheRapidLiteratureReview.
Participant Profile
10respondentswereinvolvedintheCitizenPaneland13participatedinone‑on‑oneinterviews.ThedistributionofparticipantsacrosstheabovecategoriesissummarisedbelowinTable1
Table1:ParticipantsinCitizenPanelandInterviews
Job status Injury type Workers’ Compensation
Motor Accident
CompulsoryThirdParty
Disability Support Pensions
Superannuation DE Services
Time in the ‘system’
Amajorityrepresentationacrossthree,fourandsixthmonthswithafewlongtail(e.g.+52weeks).
Obtaining work
Physical 1 1 2 1Psychological 1 2 2 3
Returning to work
Physical 3 1 1Psychological 1
Staying at work
Physical 1 1 1Psychological 1
2 5 7 5 4
AmoredetailedbreakdownofparticipantscanbeseeninAppendix2.
Thesamplewasrecruitedincollaborationwithapanelrecruiterthatspecialisesinsocialissuesresearch.Wealsodistributedmaterialadvertisingviapartnerstakeholdersfromspecificsystemswherepossible.
Thisstudyrecruitedacrossthedifferentsectorsof:Motoraccident:(22%);DisabilitySupportPensions(DSP)(30%);Superannuation:(22%);DisabilityEmploymentServices(DES):(17%).Therecruitmentofindividualsfromtheworkers’compensation(9%)sectorwasmorechallenging.Nearlyhalfofourparticipants(43%)werethosewithpsychologicalclaimsorconditions.Oneareaofrecruitmentdifficultywasforindividualstryingtostayatwork,whichonlycomprised17%ofthefinalsample,comparedto‘Obtainingwork’(57%)and‘Returningtowork’(26%).Additionally,wefoundthatindividualsfromthepsychologicalprofileweremuchmorelikelytobelookingfornewwork(80%)thanreturningtowork(10%)orstayingatwork(10%).
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Workers’compensationwastheleastwellrepresentedinthestudysample(9%),whereasitisoneofthelargersystemsaccordingtothetheCross‑SectorProjectReport(n=156,000;2%).Theunderrepresentationofparticipantsfromtheworkers’compensationcategorymaybepartiallyexplainedbyemployeesinthiscategorypreferringnottodiscusstheirclaimexperiencespublicly.
TherewasanalmostevensplitbetweeninterviewsconductedbyphonecomparedtoattendeesattheCitizenDialoguePanel:eightscheduledinterviewsandfiverescheduledfromindividualswhodidnotparticipateinthecitizenpanel.Six(46%)oftheseinterviewswerewithindividualsfromthe‘psychological’profile,six(46%)werefromthe‘physicalinjuriesorconditions’profile,andone(8%)wasfromthe‘diseaseorillness’profile.
Therearetwospeculationsthatarisefromthedata:peoplewithpsychologicalconditionsorlearningdisabilitiesseemmorelikelytobeoutofworkandlooking,ratherthaninworkandtryingtogetbackorstaying;andinterviewsmayhavebeenfavouredforaccessibilityorprivacyreasons.Weareunabletodetermineifthesespeculationsaretrue,orwhetherthereareotherparticipantmotivationsthataredrivingthesenumbersandparticipationrates.
ExpertStakeholderInterviews
Tenone‑on‑oneinterviewswereconductedwithstakeholdersfromacrossthesectorsandsystemstounderstandtheirperspectiveofthebiggestchallengesinempoweringemployeestoobtain,stayatorreturntoworkandcapturetheirinsightsintowhatinterventionswouldbeeffectiveandwhen.
Interviewparticipantsrepresentedorganisationsresponsiblefordisabilityservices,workers’compensation,motoraccidentcompensation,employeerights,insuranceschemesandgovernmentwelfareandemploymentservices.
1.3HowtointerprettheresearchfindingsWhilsttheintendedoutcomeofthisstudyistoidentifywhatinformationandsupportemployeesneedtousegoodworktofacilitatetheirrecoverythrough‘empowerment’and‘self‑management’,thesymbioticnatureofemployees,employers,healthcareprovidersand‘system’managersinevitablyleadstocommentaryonhowthesecomponentpartsneedtochangetofacilitaterecovery.Importantpointstobeawareofinreadingthisreportinclude:
• thereareclearsynergiesbetweentheoutcomesoftheRapidLiteratureReview,CitizenPanel,CitizenandExpertStakeholderInterviewsbutthe‘solutions’maybedifferentlyexpressed
• withtheRapidLiteratureReviewfocusingoninterventionsthathaveproventobeeffective,thekeyrecommendationsinthisreportareledbyitsevidenceandconfirmedbythequalitativefindingsfromtheemployeeandstakeholderresearch
• purposeofthisstudyistoexplorehowitmightbepossibletobestsupporttheendeavoursofpeoplewithahealthconditionordisabilitytofacilitatetheirownrecoveryanddoesnotinanywayimplythatthestudyparticipantswerenotalreadytryingtheirbest
• thestructureoftheresearchactivitieswasto:conductarapidreviewoftheliteraturethatshowsdemonstrablesuccessfulorunsuccessfulinterventions;andusetheoutputsfromthereviewtostructurethesubsequentqualitativecomponents.Thisreportwillfollowthisstructure,usingtherapidreviewresultsasaframeworkfordiscussingwaystosupportindividuals’recoveries.
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2.0 Findings2.1RapidreviewresultsArapidliteraturereviewwasundertakentoidentify,evaluateandsynthesisepublishedliteratureinvestigatingempowermentinterventionstohelppeoplereturntowork,stayatworkorcommencenewworkafterinjury,diseaseanddisability.
Rapidreviewsareanemergingmethodofefficientlysynthesisingresearchevidenceinhealthpolicyandothersettingswhereabroadoverviewofresearchevidenceisrequiredinashorttimeframe.Unliketraditionalsystematicliteraturereviews,rapidreviewsfocusonsynthesisedresearchevidence.Cautionneedstobeappliedwheninterpretingrapidreviewfindings,asmorecomprehensivereviewapproachesmayelucidatefurtherinformationandinsights,whichwouldinfluencereviewinterpretationandconclusions(Khangura,Polisena,Clifford,Farrah,&Kamel,2014).Therefore,systematicreviewsremainthedefinitivemethodofliteraturereview,andwerecommendthatsystematicreviewsareundertakenwheneverpossible.
Theliteraturereviewyieldedatotalof3549citations,aftertheremovalofduplicates.Followingscreening,23systematicreviewswereidentified.AreascoveredbythereviewsarepresentedinAppendix3anddetailedinformationregardingthequalityappraisalarepresentedinAppendix4.
TheRapidReviewidentifiedeightinterventionstypes Education
Goalsetting
Mentorship
Person‑centredplanning
Problemsolving
Strength‑basedinterventions
Support
Wordaccommodation
Interventionsarechartedaccordingtowhethertheyimproveoutcomesandthequalityofthatevidence.Outcomevariablesarepresentedinparentheses.Itispossiblethataninterventiontypeisevaluatedagainstseveraloutcomessuchas‘Support(empowerment)’vs.‘Support(RTW)’.Thedatapointscanonlyvaryalongthreepossibleevidencequalityvalues(‘weak’,‘mixed’,or‘strong’)andthreepossibleevidenceofeffectvalues(‘noevidenceofeffect’,‘inconsistentevidenceofeffect’,or‘evidenceofeffect’),foratotalofninepossiblepositionsonthegraph.Becausedatapointswiththesameevidencequalityandevidenceofeffectvalueswouldsitatoponeanother,wehavefloatedthedatapointsaroundeachpossibleposition.
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Evidenceofeffect
Evid
ence
of e
ffect
Evidence of effect
Evidence quality
Inconsistent evidenceofeffect
Weak Mixed Strong
Noevidenceofeffect
Support(RTW) •
Goalsetting(workparticipation) •
Mentorship(employmentoutcomes) • Goalsetting(empowerment) •
Mentorship(empowerment) •
• Support(employmentoutcomes)• Problemsolving(RTW)
Wordaccommodation(RTW) • Wordaccommodation(empowerment) •
• Wordaccommodation(workparticipation)
• Support(Empowerment)• Person‑centredplanning(empowerment)
• Strength‑basedinterventions(empowerment)
• Education(RTW)
• Person‑centredplanning(employmentoutcomes)
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2.2InterventionrankingThequalitativeinterviewscapturedtheperspectiveofemployeesandexpertstakeholdersrelativetotheeightinterventionsidentifiedintheRapidLiteratureReview,aswellasleadingtoanadditionaltwointerventionterritoriestobringthetotalpotentialsuiteto10.
Thischartsummariseswhatwasfoundthroughevidenceandcomparesittoemployeeandstakeholderinput.
Table2:summaryofevidenceoninterventions
Intervention Evidence Employees Stakeholders
1. Work accommodation
2. Support
3. Mentorship
4. Goal setting
5. Person-centred planning
6. Problem-solving
7. Strength-based interventions
8. Education
9. Cultural change
10. System change
Key:
EvidenceColumn:
• highqualityandclearlypointstoaneffectiveintervention
• evidenceiseitherofmixedqualityorcouldn’tagreeonwhethertheinterventionworkedornot
• evidenceisofahighqualitybutnotclearlyabletodemonstrateaneffectoftheintervention
EmployeeandStakeholdercolumns:
• clearlyindicatesupportfortheintervention
• indicatesmostfavouredapproach
• didnotindicatesupportforanintervention
• hadnoopinionofaninterventionbecausetheyhadno/limitedexperiencewithitorfocusedonotherinterventions
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2.3ResponsestotheinterventiontypesEmployeeresponsestothefollowinginterventioncanbecategorisedintokeythemesof:
• informationandprocess–whatisavailabletomeandwhodoIspeakwithtogetit?”
• empathyandunderstanding–fromemployers,supportproviders,andthegeneralpublic
• degradationofmentalhealthandwellbeing–thisisanunderpinningthemetothosenotedabove,employeessaythisisunderprioritisedbysupportproviders.
Werefertothesewhendiscussingtheemployeefeedbackonthedifferentinterventions.MoredetailsareprovidedinAppendix5.
1. Work accommodation
Evidence Employees Stakeholders
What is the problem being addressed?
Workplaceaccommodationisaboutmakingchangestotheworkplaceorthewaythatworkisdonetoallowallpeopletheopportunitytoworkaccordingtotheircapacity.
What is the approach?
Workplaceaccommodationincludeschangesinworkschedulesandworkorganization,developmentoftheworkenvironment,useofassistivetechnologies,assistanceofotherpersons,andchangesincommutingtoandfromwork.Workplaceaccommodationscanfocusonasinglepersonorawholeorganisation.
What does the evidence say?
Fivereviewsonworkaccommodationwereidentifiedinthesearchstrategy.Onereviewrevealedthatworkplaceaccommodationsarerare.Whenworkplaceaccommodationsareused,themostcommontypeisflexiblescheduling/reducedhours.Thedirectcostsassociatedwithworkplaceaccommodationsareoftenlow.
Onereviewfoundmoderateevidencethatworkplaceaccommodationspromoteemploymentparticipation,butlowevidencethatworkplaceaccommodationsadministeredbycasemanagersincreasesreturntowork.Thisisnottosaythatworkplaceaccommodationadministeredbycasemanagersislesseffective,butthatthestudiesevaluatingworkplaceaccommodationsadministeredbycasemanagersareoflowquality.Weshouldbecautiousininterpretinglowqualityevidence.
Therewasstrongevidenceformulti‑domaininterventions(acombinationofhealth‑focusedinterventions,servicecoordinationinterventions,andworkmodificationinterventions)thatincludeworkplacemodificationsinreducingtimeawayfromwork.Therewasalsostrongevidencethatmulti‑facetedinterventionsareineffectivewithoutworkplaceaccommodations.
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What do stakeholders say?
Thisdirectquoteprovidesagoodsummaryofstakeholderperspectivesonworkaccommodationanddemonstrateshowstronglytheysupporttheroleoftheemployerinfacilitatingworkcapacity:
‘Employers play such a pivotal role in people trying to stay at work. Government needs to educate them more in keeping their employees healthy.’
Specificfeedbackfromstakeholderscoversanumberofthemes:
• Theneedformanagementtobesupportive–thiswasconsistentlyraisedinrelationtoreturntowork.Thedefinitionof‘management’goesbeyondtheseniormanagerandtakesinthenotionthattheemployees’supervisorandcolleagues–thepeopletheyusedtoworkwitheveryday–havethebiggestroletoplay.‘Support’includespro‑active‘reachingout’bytheworkplacetotheemployeeandthatiftheemployeeistheonetaskedwithreachingouteverytime(oftenforlittleresult),thereisaconsequentialnegativeimpactontheirconfidence.Theemployerneedstobethe‘firstmover’.
• Stigmaanddiscrimination–seenbystakeholdersasamajorbarriertoworkaccommodation.Thiscanbeeitherconsciousorunconscious(commentssuchas‘theyshouldhavereturnedtoworkbynow’)andrelatebothtoobtainingwork(‘whyhasn’tthispersonworkedfortwoyears’;oracquireddisabilityandtheassociatedsocietalperceptualbarriers),aswellasforthosestayingatorreturningtoworkespeciallyforthosewithamentalhealthcondition.Stakeholdersregardashighlyimportanttheneedtocreateawarenessandunderstandingthatpeoplecanhaveadisability,gothroughaninjuryorillnessandstillhavecapacitytowork.
• Jobmatch–stakeholderssuggestthattherearetoolsalreadyavailablethatshouldbeusedto‘jobmatch’forexample,personalitytestscanbeusedmuchbetterforjobmatching.
• Recruitmentmethods–thosebornwithorhavingacquiredadisabilitydonothavethesameopportunitiestoworkouttheircareerdevelopmentorworkexperienceastheirnon‑disabledpeers.Eventhewayemployerstalkaboutandrecruitmakesithardforpeoplewithadisabilityforexample,:itmaynotbeclearfromthejobdescriptionwhethertheycandothejob;onlineapplicationsmaybeanimpedimentiftheycan’tuseamouseorhavevisualimpairments.Thosewithadisabilityarenottheonlyonesimpactedbyrecruitmenttactics–recruitmenttoolssuchas‘massinterviews’canbedauntingforsomeonewhoislackingconfidence,hasasociallyimpactinghealthcondition(e.g.someonewithAsperger’smaybeageniusITtechnicianbutisunabletocommunicate/sellthemselves)orhasbeenoutoftheworkplaceforsometime;theycanbedeterredfromevenapplyingforthejobinthefirstplace.
• Lackofemployeeunderstandingofwhattoexpectfromtheiremployer.
• Drivenbyrisk–Employersareriskadverseinacceptingemployeeswhoarenot100%well.
• Thereisalsoaneedtoempoweremployers–evenanemployerwillingtoemployeesomeonewhorequiresamodifiedworkenvironmentcanbedisempoweredthroughtheirsimplelackofknowledgeofhowtogoaboutitorwhatwillberequiredofthem.
What do employees say?
Thisinterventionaddressesthethemeofempathy and understanding.
Theworkplaceaccommodationsthatemployeeshadmostexperiencewithwereflexibleschedulingofworkhoursandswitchingtolightduties.Employeesnotedthattheseweretemporarysolutionsandtheirsuitabilityvarieswithindividuals’conditions.Othersnotedthatachangeindutiescanbetraumaticbecauseitmeansswitchingfromworkthatyouhavebuiltacareerontosomethingdifferent.Therearecleardifferencesinthereactionsofpeoplewhohavenotbeenoutoftheworkforceforverylongversussomewhohadbeenoutofworkforasignificanttime–thelongersomeoneisoutofwork,themorewillingtheyaretodoanything.Forinstance,somesaidtheywouldn’tbehappywithlightdutiesforthelongterm,whereasotherswhohadbeeninjuredforlongersaidthattheywouldhappilydoanythingwithintheirskillset.
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Gradedreturntoworkwasseenasanimportantformofworkaccommodation.Oneemployeecommentedthatsomeworkplaceaccommodationsarestraightforwardandeasytosecure,whereasothersaremorechallengingwhentheindividual’shealthconditionordisabilityislessvisible.
Finally,employeesmentionedthatjobsexistbuttherearefewemployerswhoarewillingtoaccommodatethosewithhealthconditionsordisabilities.
Employeesreflectedthestakeholderideathattheiremployerreachingouttothem,evenifthatisjusttheoccasionalcheckintoseehowtheyare,hasademonstrableimpactontheiremotionalwellbeingandconfidenceintheirfuture.ThiswasdemonstratedquiteclearlyintheCitizenPanelbyoneemployeewhoseemployerhadmaintainedregularcontactwiththem,andtheiremotionalwellbeingcomparedtootherpanelparticipants.
What has helped/could help?
• Flexibilityandunderstandingonthepartoftheemployer.Aforumforemployerswhoareopentoaccommodatingthosewithdisabilitytoadvertisejobpositions.
• StandardsestablishedforEmployers.
• DisabilityConfidentRecruiter.Anorganisationshouldhavetogothroughaprocessthatmakesalltheirsystemsaccessibleandinclusive.
• Theneedtoremoveemployerandculturalstigmaandbarriers–whetherconsciousorunconscious–andcreateawarenessofthebenefitsof‘goodwork’.
• Educatingemployersongoodjobdesign–howtodesignthejobtohavetheappropriatebreadthanddepth.Thatmeansclarity,authority,delegationofdutyanddecision‑makingautonomy,variationoftask–goodwork.
• ‘Onthejob’trainingforintellectuallyorphysicallydisabled–ratherthantertiaryeducation.
• Policiesthatexplainwhathappensandcommittodoingwhateverisreasonableifanemployeecannotwork/hastochangetheirworkingcircumstancesandguidancethathelpsemployeesunderstandhowtorespondiftheyareexperiencingdifficulties.
• Job coaches.
2. Support
Evidence Employees Stakeholders
What is the problem being addressed?
Itcanbedifficulttomanageyourhealthconditionordisabilityifitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.Supportisaboutmakingjob‑seekingandreturntoworkeasierforthosewithahealthconditionordisability.
What is the approach?
Supporttakesmanydifferentforms,sometimesit’saboutspeedinguptheprocessofgettingsomeoneintonewwork,othertimesit’sabouthelpingpeoplestayinexistingwork.Thelatterformissometimesreferredtoasa‘place‑train’modelandIndividualPlacementandSupport(IPS)isthemoststructuredandwell‑definedformofthisapproach.Itisbasedonthephilosophythatanyoneiscapableofgainingandmaintainingcompetitiveemployment,providedtherightjobwithappropriatesupportcanbeidentified.Otherformsofsupportedemploymentcanincludecoachingandeducation.Supportedemploymentmayalsobeaugmentedforexamplewithadditionalrehabilitationorskillstraining.
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What does the evidence say?
Evidencefromninereviewswaslargelyinfavourofsupportapproachesforimprovingempowerment,workparticipation,andreturntowork.Individualplacementandsupportprogramsareaneffectiveinterventionacrossavarietyofcontextsandeconomicconditionsandareperhapstwiceaseffectiveastraditionalrehabilitationprogramssuchas‘train‑place’modelsforgettingpeopleintowork.Theevidencerangedfromtentativetostrongforaugmentedsupportedemployment.Therewasmoderatetostrongevidencethatcoachingandeducationsupportimprovesreturntoworkandsicknessabsenceoutcomes.Notallreviewsarrivedatthesameconclusion–somefoundinsufficientevidenceforeffectivesupportstrategiesinobtainingandmaintainingemployment.
What do stakeholders say?
Stakeholdersinrolesofhelpingpeoplefindsuitableemploymentbelieve‘motivation’and‘confidence’isacriticalfactorofbeingabletofindwork.Theideasthatstakeholdersputforwardconsistentlywenttothesetwothemes:
• Training,retraining,reskillingtogain,retainorre‑enterwork.
• Motivationalinteractiontrainingtoimproveconfidence.
• Toolsonhowtogetajob–resumewritingetc.
What do employees say?
Thisinterventionaddressesthethemeofdegradationofmentalhealthandwellbeing.Employeesbelievetoomanysupportprogramsfocusonphysicalsupportandskillstraining–therearefewprogramsaimedatsupportingmentalhealthduringrehabilitationand/orthejobsearch.Accesstorelevantsupportprogramsisalsosometimesdifficult,withoneemployeesaying
“You need to make yourself look twice as bad in order to get half the help you need”
Thissentimentwasalsoechoedbystakeholders.
What has helped/could help?
• Training,retraining,reskillingtogain,retainorre‑enterwork.
• Motivationalinteractiontraining.
• Toolsonhowtogetajob–resumewriting,interviewpractice.
3. Mentorship
Evidence Employees Stakeholders
What is the problem being addressed?
Navigatingdisabilitysupportsystemscanbeafrustratingandlonelyexperience.Mentorshipaddressesbothproblemsofhandlingcomplexityandofdoingitalone.
What is the approach?
Mentorshiprelationshipsinvolvetheprovisionofongoingguidance,instruction,andencouragementfromamentorwithexperiencetopromotecompetenceandemploymentparticipationonthepartoftheindividual.
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What does the evidence say?
Tworeviewssuggestthattheevidenceregardingmentorshipismixeddependingontheoutcomemeasure.Mentorshipmaybeeffectiveforimprovingemploymentorwork‑relatedoutcomes,thoughthequalityoftheevidenceislow.However,evidenceregardingtheeffectivenessofmentorshipinimprovingempowermentisinconsistentandalsooflowquality.
Someevidencesuggestedthatmentorshipcouldincreasedepressioninindividuals.Consideringthatamentormaybeapersonwithasimilardisabilityastheindividual,developingarelationshipwiththismentormayhighlighttheindividual’sownhealth‑relatedproblems.Anotherconcernisthatmentorsmayofferadviceoutsidetheirdomainofexpertise.Mentors,therefore,maybeworkplacementorswhocanhelptheindividualintheiremploymenttransitions,lifementorswhocansupporttheindividualsocially,orhealthmentorswhomaysharesimilarhealthexperiencesastheindividual.
What do stakeholders say?
Stakeholdershighlightthata‘lossofconfidence’startsimmediatelyandgrowsthelongersomeoneisawayfromwork.
Whilstinnowaysuggestingtheyshouldbecomeanominatedmentor,stakeholdersseetheclaimsmanagerasbeingabletotakeastrongerroleinencouragingtheircustomerstowellbeingandwork.Stakeholdersareconcernedthisiscurrentlylimitedbytheprocessdrivennatureofschemesthattypicallydisempowerclaimsmanagersfrombeingabletomakejudgementsandabilitytoformvaluablerelationshipswithclientstohelpmotivatethem.
What do employees say?
Mentorshipapproachesspeaktothethemesofinformationandprocess,anddegradationofmentalhealthandwellbeing.Mentorsorsupportgroupswereoftentheonlywaythatemployeesfelttheycoulddiscoverwhatservicestheywereeligiblefor.Mentorshipswereofteninformalrelationshipsorvoluntaryinnature–employeesvoicedconcernabouttheover‑relianceonvolunteernetworks.Mentorsalsoprovidedsocialandemotionalsupportasmentorsoftensharedsimilarexperiencesorsituationstotheemployee.
What has helped/could help?
• MakeClaimsManagersinto‘relationshipmanagers’andcreateabespoketrainingprogram.
• Useadvocacyorganisationsthatareintouchwiththeneedsoftheirspecificgroupe.g.spinalcord associationasacentralforum.
• UseBehaviouralEconomicstheorytorestructurelanguagethatispositive,constructiveandfuture focused.Introducethenotionofre‑engagingwithlife(notjustwork).
• Developawebplatformthatcontainsrelevantservicesandmotivationaltools.
4. Goal setting
Evidence Employees Stakeholders
What is the problem being addressed?
Goalsettingapproachesareaboutstagingrehabilitationorjob‑seekinginordertopreserveandenhancemotivation.
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What is the approach?
Thepracticeofsettinggoalsisthoughttoinfluenceindividuals’feelingsofempowerment.Bythoughtfullysettingmeasurablegoals,individualscantrackprogressintheirrehabilitationorreturntowork.Successfullymeetingthesegoalsisthoughttoincreaseaperson’sbeliefintheirabilitytoachievefurtheremployment‑relatedgoals(self‑efficacy).
What does the evidence say?
Tworeviewslookedattheeffectofgoal‑setting.Goal‑settingapproachesmaynurtureempowerment,althoughthequalityofevidencewasmixedbutevidenceforimprovingworkparticipationandoccupationalperformancewasmixed.Itmightbethatgoal‑settingmaybeusefulforrehabilitationbutnotnecessarilyhelpfulwithemployment.
What do stakeholders say?
Stakeholdersbelieveoutcomesarebetterwhendealingwithsomeonewhounderstandsthechoicestheyhaveandwhatsupportcanbeputinplacetoachievethose.
Theyalsosupporttheideaofgettingtheemployeetocommittothingstheywilldo‘onestepatatime’–dependingonthecircumstancesoftheperson,agoalandachievementmaybeassimpleasawalktotheendoftheroad,makingamealortalkingtosomeoneinashop.
What do employees say?
Goal‑settingapproachesaddressthethemeofdegradationofmentalhealthandwellbeing.Employeesseegoal‑settingasanimportanttoolinachievingtheiremploymentgoals.Goal‑settinghelpswiththementalhealthaspectofrecoveryaccordingtoemployees.Achievinggoalshelpsalleviatefeelingsofhelplessnessbydemonstratingwhattheindividualisstillcapableofdoing.
What has helped/could help?
• Whileemployeesvaluegoal‑setting,theybelievethatotherthingsneedtobedonefirstbeforegoal‑settingstrategiescanbeeffective.Forexample,somethinkthatanoverhaulofcasemanagementactivitieswouldbenecessarybeforegoal‑settingstrategiescouldbeeffective.Employeeswantsupportprovidersandcasemanagerstobemoreinvolvedintheircaseandseesharedgoal‑settingasapotentiallyeffectivemeansofdoingso.
• Improvinghealthliteracyindirectlyimpactsgoal‑setting.Healthliteracyincludestailoredinformationthathelpspeopleunderstandwhatwillhappenthroughouttheirrecoveryjourney,howtogetthesupporttheyneedandhelpsthemidentifywhatispossible.
• Theuseoffuture‑focusedlanguageisanaidtogoal‑setting.
5. Person-centred planning
Evidence Employees Stakeholders
What is the problem being addressed?
Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds.Person‑centeredplanningaddressestheproblemofindividualsuniqueneedsfallingthroughthecracksforexample,aspeopletheymovebetweendifferentbenefitandincomesupportsystems.
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What is the approach?
Thereisanongoingtransformationofdisabilityservicedelivery,progressingfromasystem‑centeredapproachtoaperson‑centeredapproach.Underaperson‑centeredapproach,supportandservicesaretailoredaroundtheindividualandtheiruniqueneedsratherthanenforcingaone‑sizefitsallapproach.Person‑centredplanningisanapproachaimedatachievingindividualisedsupportforpeoplewithdisabilityandtreatingthemwithdignity,compassion,andrespect.
What does the evidence say?
Onereviewfocusesonperson‑centredplanning.Therearesmall‑scalesuccessesofperson‑centredplanningapproachesimprovingempowerment(i.e.communityandlifeparticipation).Theevidenceofthesesuccesses,however,isoflowqualitysocautiousinterpretationisadvised.Theevidenceforperson‑centredplanningimprovingemploymentoutcomesisinconclusive.
What do stakeholders say?
‘Schemes work in streams. But that doesn’t work for the client.’
Stakeholdersverymuchsupporttheideaofaperson‑centeredapproachwithsomealreadyachievingresultsintheirownsystemwiththisapproach.Stakeholderfeedbackwasthat‘thesystem’makesthepersontheproblemandthewayitisrunassumesthesystemknowsmoreabouttheemployeethattheindividualknowsaboutthemselves–‘wedothingsTOpeople’.
Stakeholdersareconsciousofhowmuchbeingpartof‘thesystem’detrimentallyexacerbatestheperson’ssituationandhowdealingwiththesystemcanactuallyleadtosecondarypsychologicalconditions.Thetypesofbarrierspeoplefaceincludesituationssuchas:
• wantingtoreturntoworkbutnotbeingallowedto–‘theywon’tletme’
• notknowingwhoisresponsibleforwhat,whatresourcesareavailable,orwheretogoatwhatpointintimeintheprocess
• long,drawnout,confusingsystems– ‘even if you know what you’re doing its hard and demotivating’
• theneedtorepeattheirstorymultipletimesandre‑provetheircasewhenmovingbetweenjurisdictionsoriftheygetsomeworkbutendupneedingtogoonapensionagain.
Theuniversalopinionofstakeholdersisthattheemployeeneedstobeputatthecentreoftheclaimandthatitisimportanttheyareheardandunderstood.
‘Get them to identify what they need and co-design their journey. If they co-own the way forward, they will be better engaged, more likely to make a success of the plan and less likely to fall back into the compensation system once they’re working’.
What do employees say?
Person‑centeredplanningaddressesthethemesofinformation and processandempathyandunderstanding. Employeeswouldwelcomeanincreaseinperson‑centeredplanningapproaches.Theysaywhilethecurrentapproachofone‑size‑fits‑allmayprovideabareminimumlevelofsupport,employeesoftenneedmorenuancedunderstandingfromsupportproviders.Theeffectofaone‑sized‑fits‑allapproachleavesemployeesfeelingignored,withoneemployeesaying:“… but it’s not person-focused, they’re indifferent and that is what breaks people”.Employeesalsoexplainthattherelianceonaone‑size‑fits‑allsystemhasledtoafeelingamongemployeesthatsupportprovidersassumeallclientsarecheatingthesystem.
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What has helped/could help?
• Employeessaidthataperson‑centeredapproachprobablyrequiresakeycontactorcasemanager,andthesuccessoftheapproachreliesheavilyonthequalityofthiskeycontact.Anotherpossiblebarriertoeffectiveperson‑centeredapproachesreliesontheindividual’spersonalmotivation.Someoftheemployeeswespoketosaidtheywouldratherbetoldwhattodobyexperts.Otherssaidthattheydidnotwanttositinthedriver’sseatbecausetheybeeninthedriver’sseatforyearsandgotnowhere.
• Betterpathwaysbetweensystem–thatincludescommonforms,commonprocesses,commonlanguage,commonstandards(e.g.forclaimsmanagers).
• Simpleaccessibletoolspeoplecanuseandunderstand.
• Stakeholderssuggestarecognisedleadertoachievecommonagreementacrossthevariousjurisdictions.
• Atriagesystemeitherinthesamemannerasa‘triagenurse’thathelpsguidepeopletotherightservices,oranevenbiggersuggestionofauniversaltriagesystembringingalltheexpertstogether–onestopshopsourceofmedicalandjobexpertsincludingwellbeing,doctors,psychologists,commonlawandarelationshipmanagerlinksdirectlytothese.
• Providerpartnerships.Createpartnershipwithhealthprovidersallcontributingtotheindividualemployeeplan.
6. Problem-solving
Evidence Employees Stakeholders
What is the problem being addressed?
Disability,injury,andillnesscancausechronicstress,whichcanbemanagedbyhelpingindividualstochangehowtheyapproachtheirdifficulties,andgainskillstocopeeffectivelywithstress.Problem‑solvingapproachesareaboutgivingindividualsatoolkitformanagingcondition‑relatedstress.
What is the approach?
Duringthelastdecade,therehasbeenanincreaseinthenumberofstudiesthathaveexaminedtheeffectivenessofinterventionsthatincorporateteachingproblem‑solvingskillstoworkerswhoarereceivingdisabilitybenefits.Theseskillsareaimedatenablingthemtosolvework‑relatedproblems.Evidencesuggeststhattheseskillshelptodevelopasenseofcontrolregardingstressors.Inturn,thiscanmoderatetheeffectsofworkstressorsthatcouldcontributetodisabilityandillhealth.
What does the evidence say?
Threereviewswereidentifiedonproblem‑solving.Thereviewssuggestedthattheseinterventionsshowmostpromiseforpartialreturntowork,butnotsoforreturntofullduties.Problem‑solvinginterventionsalonemaynotbeenoughtoreducesickleavebutacombinedproblem‑solvingandatherapyinterventionsuchas,cognitivebehaviourtherapydidhavesignificanteffectontotalsickleavedays.Otherevidencewasmixed.
What do stakeholders say?
Therewasnodirectreferencefromstakeholdersbutimprovinghealthliteracywasamajorouttakefromthestakeholderinterviewsandthisgoessomewaytothenotionofproblemsolving.
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What do employees say?
Problem‑solvingapproachesaddressthethemeofdegradation of mental health and wellbeing.Employeeshadlittletosayregardingproblem‑solvingapproaches.
7. Strength-based interventions
Evidence Employees Stakeholders
What is the problem being addressed?
Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.Strength‑basedinterventionsareaboutincreasingempowermentbyfocusingontheindividual’sstrengths.
What is the approach?
Qualitiessuchasself‑efficacy,socialproblem‑solving,senseofpurpose,empathy,humour,resilience,andhopearealltargetedbystrength‑basedapproaches.Strengthscanbeconsideredatthepersonallevel(self‑efficacy)orattheinterpersonallevel(positivecaringrelationships),andtheapproachemphasizesthateverypersoncanbuildameaningfulandsatisfyinglifewithafocusontheirstrengths.
What does the evidence say?
Wefoundonereviewthatconsideredstrength‑basedinterventions.Theresultssuggestthatastrength‑basedapproachmayimproveempowerment(e.g.self‑esteem,self‑efficacy,senseofhope)buttheevidencequalityisquestionable.Therearenotenoughstudieswithstrongmethodologytoconcludethatstrength‑basedapproacheswork.
Additionally,thereisdifficultyisolatingtheeffectofstrength‑basedapproachesastheywereoftenasingleelementwithincomplex,multifacetedinterventions.Inthecaseofseverepsychologicalsymptomologyforexample,suicidalideation,cliniciansarecautionedagainstusingonlyastrength‑basedapproachcompletelyisolatedfrommedicaltreatmentapproaches.
What do stakeholders say?
Thelongerapersonisin‘thesystem’,thegreaterthelossofconfidenceandtheharderitistorebuild.Oneofthestakeholdersprovidesmotivationaltrainingfortheirclientsandothers,whilstnotusingaformal‘motivational’system,traintheircustomerinterfaceteamsinpositivereinforcementskills.
What do employees say?
Strength‑basedapproachesaddressthedegradation of mental health and wellbeing.Employeeshadlittletosayregardingstrength‑basedapproaches.
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8. Education
Evidence Employees Stakeholders
What is the problem being addressed?
Understandingaconditionisanessentialfirststepinrecovery.Educationisabouthelpingindividualstounderstandtheirconditionandnavigateissuesthatrestricttheirabilitytowork.
What is the approach?
Educationinterventionsseektoinformindividualsaboutthesideeffectsoftheirconditions,aswellastechniquesforcopingandmanagingstress.Mostinterventionsusesomeformofcounsellingtoaddressparticipants’disease‑relatedanxietiesandprovideinformationonthecausesandcourseoftheirconditiontodispelmisconceptions.Thesearesometimesreferredtoas‘psycho‑education’approaches.
What does the evidence say?
Tworeviewsevaluatededucationapproaches.Educationmightbeusefulforrelievingcondition‑relatedanxietythoughthequalityofevidenceislow.Evidenceisunabletoshowthateducationhasabeneficialeffectonreturntoworkratesandoutcomes.
What do stakeholders say?
Outcomesarebetterifyouaredealingwithsomeonewhounderstandstheirchoices,whatsupportcanbeputinplace,andbeengagedinthatsupport.
Thisalsomeansimprovinghealthliteracy–understandingthattheyshouldbeabletogetbacktowork,workisgoodforhealthandisaformoftherapeuticintervention,thatwaitingforrecoverycandelayrecovery,andknowingtheyneedtogethelp.
Educationisalsohelpingpeopleunderstandwhattypeofworkmightbeanentryforthem–notnecessarilyalong‑termsolutionbuttore‑enter(lowerstatus,lowerpayisapsychologicalblowthatneedsframing)andtailoredinformationtodemonstratewhathappens/howtohelpindifferentcircumstances.
What do employees say?
Educationapproachesaddressthethemeofempathy and understanding.Employeesfeltthateducationwouldbeabroadlyusefultool–notforthemselvesbut,rather,forthepeoplearoundthem.Employeesarealreadyeducatingthemselvesasmuchaspossible,mostlyoutofnecessity,sofurthereducationmaynotbethemosteffectivetoolforthem.Whereeducationmightbemoreeffectiveisineducatingothersthattheseemployeeshavetointeractwith.Employeesdescribedaneedforeducationaimedathigh‑levelculturalchange,aswellaseducationaimedatlow‑levelindividualchange.
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Educationforsupportproviders,casemanagers,employers,GPs,families,andthegeneralpublicwouldhelpempoweremployeestoachievetheiremploymentgoals.Accordingtotheemployees:
• supportprovidersandcasemanagersneedexpertisewhenworkingwithpopulationswithhealthconditions,insteadofapplyingaone‑sizefitsallapproachthatworksforthegeneralpopulation
• educatingemployersaboutthementalhealthandwellbeingcomponentofrehabilitationandreturntoworkwouldhelpcreateflexibleandunderstandingworkplaces
• thereiswidevariabilityinGPs’understandingoftheworkdisabilitysupportsystem–GPeducationwouldhelpkeepthestandardmoreconsistent
• familiesneedtobeincludedintheeducationprocessastheyoftenfeelhelpless.Changesinmentalhealthmaynotalwaysbeobvious,soteachingfamiliesaboutmentalhealthcouldhelpthemfeelequippedforsupportingtheirfamilymember.
• finally,employeesfeltthattheirrecoveryandreturntoworkwouldbegreatlyhelpedbyeducatingthegeneralpublictobemoreawareandconsciousofthosewithdisabilityorconditionsthatmakeitdifficultforthemtowork.Someemployeeshighlightedhowtheirconditionshadnovisiblesymptoms,sowouldhavedifficultyreceivingsupportfrommembersofthepublic.Othersreportedhostilityandmicro‑aggressionsdirectedtowardsthembecauseoftheirinjury/condition.
What has helped/could help?
• Culturalchangearoundstigma,discriminationandthebenefitsofgoodwork.
• Healthliteracyprograms.
• Educationaroundthevalueofjobdesignandhowtoapply.
9 &10 Culture and System change
Employees Stakeholders
UndertheRapidLiteratureReviewsearchterms,noevidencewasidentifiedunderthecategoryof‘culturechange’,butrecognitionoftheneedforculturechangecameoutstronglyintheexpertstakeholderandemployeeinterviews.
Furthermore,withitsacademicprincipleofassessingspecificinterventions,theabilityorpurposeoftheRapidLiteratureReviewisnottounderstandtheinterplayacrossdifferentcomponentsofthebenefitandincomesupportsystem.Whereasforemployeesandexpertstakeholdershowthesystemworksiskeytoempowerment.
Muchoftheemployeeandstakeholdercommentarythathasbeenrelayedinthepreviouspagesallpointtotheimportanceofcultureandsystemchange–suchaspoorunderstandingbyemployersofthevalueofemployeeswithaphysicalorpsychologicalconditionandtheimportanceofchangingnormsaroundnotonlytheirperceptions,butalsotheperceptionsofthemanyplayersinvolvedintheprocessesofthebenefitandincomesupportsystemincludingdoctorsandclaimsmanagers);orthecallfromemployeesforinterventionsthatfacilitateeasieruseofandgreaterempathyfrom‘thesystem’.
Furtherexamplesoftheneedforcultureandsystemchangecanbeseeninthefollowingpageswheremoredetailedinterventionsuggestionsbyemployeesarecaptured.
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3.0 Other Empowerment Interventions TheempowermentinterventionsdescribedinthissectionwereidentifiedthroughtheCitizenPanelandindividualinterviewswithemployeesandexpertstakeholders.
Compassionandunderstandingtrainingforcasemanagers
Whatistheproblembeingaddressed?
Casemanagersmaynothavetheunderstandingorflexibilityinordertomostadequatelysupportindividualswithhealthconditionsinreturningtowork.
What do employees say?
Compassionandunderstandingtrainingforcasemanagersrelatestothethemeofempathy and understanding.Anissuethatarosefromseveralconversationswithemployeeswasthatcasemanagersoftenlackcompassionorevenabasicunderstandingoftheemployee’scondition.Littleunderstandingfromthecasemanagerhasaflow‑oneffecttothesortsofservicesthattheemployeeisgivenaccessto.
What has helped/could help?
• Greaterprovisionsforsupportproviderstogo“off‑script”–anideathatwasactivelypromotedbystakeholders.
• Stakeholdersalsoraisedtheideaofmotivationalinteractivetrainingforclaimsandcasemanagers
AdvocacygroupsWhat is the problem being addressed?
Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.
What do employees say?
Advocacygroupsaddressthethemeofinformationandprocess.Employeesoftensaidthelargestdrainontheirmotivationwasconstantself‑advocacy.Needingtobe“ontopofeverysinglecoginthesystem”wasdescribedasdraininganddemotivating.Someemployeessaidtheywerefortunatetohaveanadvocatehelpingthemtonavigatethecomplexityand“couldn’timaginesurvivingtheordealwithoutone”.Employeesthensuggestedthatmoreformalizedadvocacygroupswouldbeofbenefittotheirreturntowork,thoughotherscautionedontheoverrelianceofvolunteers.
Advocacygroupsdifferfrommentorshipprogramsinthattheyaremorefocusedonnavigatingthesystemswithspecificguidanceandunderstanding,whereasmentorsappearmosthelpfulinmoregeneralcontextsforexampleinnavigatingtheworldwithanew‑foundhealthcondition).
Whilethereisconsiderableoverlapbetweenadvocacygroupsandmentorshipprograms,wehavekeptthemseparatetoreflectthesource–hereasanitemthatemployeesproducedasaresourcetheyhavereliedon,andmentorshipprogramsasaninterventiondiscoveredintherapidreview.
What has helped/could help?
Awebsitetoconnectindividualstowillingvolunteers.
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EmployerforumsWhat is the problem being addressed?
Job‑seekerswithhealthconditionsexpressfrustrationinsearchingforemployerswhoarewillingtoaccommodatetheircondition.Employeesarealsofrustratedthatjobserviceproviderslacktheabilitytomatchthemupwithwillingemployers.
What do employees say?
Employerforumsaddressthethemesofinformation and process and empathy and understanding. Employeeslookingfornewworkfinditdifficulttoconnectwithemployersthatareflexibleandwillingtoaccommodateworkerswithdisabilityorimpairment.Anemployerforumthat:educatesemployersaboutworkplaceaccommodation;connectsemployerswiththosewillingtowork;andmakesiteasierforjobserviceproviderstobuildanetworkofpotentialemployerswouldhelpaddressanumberofissuesemployeesfacewithworkplaceparticipation.
What has helped/could help?
Buildawarenessandunderstandingofgoodwork.
Stakeholders say
There’saneedtocreateauniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatgettingbacktoworkbeforeyou’re100%wellisaprovenaidtorecovery(withappropriatemedicalclearance).
‘We (the industry) all talk about the benefits of good work, but we’re in a bubble – we need to get the message beyond the people in the industry. As a nation we need to accept the importance of work.’
TransitionseminarsandmanagersWhat is the problem being addressed?
Employeesdescribethesupporttheyreceiveasfracturedandtheywantitsimplifiedtosomethinglikeaflow chart.Transitionmanagementrepresentsaunificationofsupportserviceswithafocusonnavigatingthetransitionintowork.
What do employees say?
Transitionseminarsandmanagersaddressthethemeof information and process.Akeyoutcomefromdiscussionswithemployeesisthedesireformorecentralisedprocessregardingsupportprovisionandreturntowork.Onespecificexamplefromdiscussionsincludedthenotionsoftransitionseminarsandmanagers.Thisideaborrowsfromthedefenseforce,wheredefensepersonnelaredebriefedfromtheirdutiesandpreparedforlifeasacivilian.Asimilarexercisecouldexistforapersontransitioningfromonestageofemploymentparticipation(e.g.unemployed)toanother(e.g.part‑timeemployment).A‘transitionmanager’representsanevolutionofthecurrent‘casemanager’rolebutwithafocusonthewellbeingoftheemployeeastheynavigatetheirrehabilitationandreturntowork.
What has helped/could help?
Willingnessfromsupportproviderstoinvestigatealternativesupportmethods.
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GroupactivityaccessWhat is the problem being addressed?
Employeeswithhealthconditionssometimesfeellikethere’snothingtheycandoandhavelowself‑efficacy.Theyalsofeelisolatedwhentheyareunabletowork.Groupactivityprovisionaddressestheseproblemsoflowself‑efficacyandisolation.
What do employees say?
Activityprovisionwasakeyfocusforanumberofemployeeswhosewellbeingsufferedbycomingoffworkandsuddenlyhavingnothingtodo.Fromawellbeingperspective,employeesdiscussedthenotionofsupportprovidersofferingwellbeingactivitiessuchasgymmemberships,artclasses.Importantly,thesewouldeitherbeactivitiestobecompletedasagroup(grouprehabilitationatagym)orwereinherentlygroup‑oriented(artclasses).
What has helped/could help?
Confidenceandknowledgewouldhelpindividualsapproachnewgroupsandactivities.Sometimestheydon’tknowwheretofindsuchthingsanditwouldbehelpfulifacasemanagerorweb‑basedplatformcouldpointthemintherightdirection.
Group‑basedcasemanagementWhat is the problem being addressed?
Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.Group‑basedcasemanagementallowsindividualstoshareknowledge(makingnavigationeasier)andexperienceswithothers.
What do employees say?
Accordingtotheemployeeswespokewith,oneofthemostdifficultaspectsofbeingunabletoworkissocialisolation.Thenegativeeffectofisolationontheirmentalhealthandwellbeingwasclearlyveryimportanttoemployees.Anothersideeffectofsocialisolationwasthatemployeeswereunabletofindrelevantinformationwithoutthehelpofanotherpersonwhohadthesameexperience.Employeessuggestedthatgroup‑basedcasemanagement,wheresupportproviderscouldmanagethecasesofseveralemployeeswithsimilarconditionssimultaneously,couldsolveboththeseproblems.Bymeetingtogetherinthesamespace(physicalordigital),employeescouldshareexperiences,sharelearnings,andinteractwithothersforsocialsupport.
What has helped/could help?
Awillingnessonthepartofthesupportprovidertoconsideralternativesupportstrategies.
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CustomerfeedbackasaKPIWhat is the problem being addressed?
Supportprovidersareperceivedaslackingtransparency.Empoweringindividualsbymakingcustomerfeedbackpartofthesupportprovider’sKeyPerformanceIndicator(KPI)couldaddressthisissueoftransparency.
What do employees say?
Alargeissueforemployeeswasaperceivedlackofaccountabilityandtransparencyonthepartofthesupportproviders.Employeeswespoketofeltthatasolutioncouldbetoincludecustomerfeedbackintheperformanceevaluationofsupportproviders.
What has helped/would help?
Aplatformforcollatingcustomerfeedback.
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Table3:Summaryofpossibleinterventions
Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Culture change
Culturechange Societalattitudesandbeliefspreventindividualswithhealthconditionsfromfullparticipation(life,work).
Changeinsocietalattitudesandbeliefsregarding'goodwork';permissiontoGPsforsuggestinggradualreturntowork;permissionforfamiliestobecomfortablewithemployeereturningtowork.
Anawarenesscampaigntochangebeliefsandattitudes.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
System change (support providers)
Person‑centredplanning
Supportproviderslacktransparency(e.g.employeesareonlymadeawareofaportionofservicesavailabletothem)
Supportprovidersprovidelistoffullsuiteofsupportoptions.
Educatedecision‑makersfromsupportprovidersonimportanceoftransparencyandtoolstoenablethis.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Employeesoftenfindthattheservicesandsupportprovidedtothemarenotsuitedtotheirneeds‑feelliketheyfallthroughthecracks.
Supportprovidersrestructuretheirsupportdeliveryaroundperson‑centredplanning
Engagesupportprovidersinthedevelopmentandapplicationofacommonsetofprinciples(eg:co‑designingrecoveryprogramwiththeemployee,enablingandtrainingclaimsmanagersonhowtogo'off‑script')thatincludeshortterm'simpletouptake'and'longterm'programchangesindelivery.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Systemstreamlining
Supportisfractured,complexandconfusing.
Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.
1.Engagewithprovidersindevelopingcommonlanguageandcommonformstomaintainconsistencyofexperiencebetweensystemsandmedicalservices.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
2.Provideacrosssectoronlinetriageservicepersonedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Employeeshavetorepeattheirstoriesandmedicalrequirementsmultipletimesthroughouttheirjourney,especiallywhentransitioningthroughdifferentpointsofthesystem.
Improveeaseofuse,betterconsistencyandbetterconnectionbetweensystems.
1.Investigatetoolsandoperatingstructuresthatcande‑duplicateprocessesandenablesharingofinformationacrosssystemsandproviders.
2.Identifyatransitionmanagementprocessthatfacilitatestheeaseofmovementfromonesystemtothenext.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Education Changesinhealthconditionscausestressandanxiety
Improvedhealthliteracyforemployeesandtheiremployersandfamilies
Psycho‑educationapproachtoincreasehealthliteracy
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Goal‑setting Disability,injury,andillnesscantaketheirtollonmotivation.
Goal‑settinginterventionsofferedbysupportproviders.
1.Goal‑directedoccupationaltherapyprogram.
2.Usebehaviouraleconomicsstrategiestotrainclaimsmanagerstointroducegoal‑settingobjectivesintotheirinteractionswiththeirclient.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
3.Reframelanguagetopositivemotivation.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Problem‑solving Disability,injury,andillnesscancausechronicstress
Problem‑solvingincludedinsupportofferedbysupportproviders.
Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Mentorship Navigatingthebenefitandincomesupportsystemcanbeafrustratingandlonelyaffair.
Maintaintheconfidenceandmomentumoftheemployeetostaypositive.
Providemotivationaltrainingforclaimsmanagers.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Strength‑basedinterventions
Asuddenchangeinhealthcanincreasefeelingsofhelplessnessandvulnerability.
Strength‑basedinterventionsincludedinsupportofferedbysupportproviders.
Incorporatingarehabilitationandreturntoworkstrategythatplaystotheindividual’sstrengths.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Work accommodation (employers)
Education Jobdescriptionsdonotconveywhetherthejobcanbedonebysomeonewithahealthcondition.
Advertisementsforjobpositionsincludeastatementofminimumrequiredability.
Educatedecision‑makersfromemployersontheimportanceofinclusivelanguage,andhowemployeesdonotneedtobe100%healthytobeproductive
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Support Employeesconstantlyreachout,oftenforlittleresult
Employersreachouttoemployeesaspartofclaim/casemanagement.
Designinterventiontotrainemployerstoreachoutfirstandoftentoemployeesduringtheirrehabilitation.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Workaccommodation
Groupinterviewscanbedaunting. Hiringpracticeschangedtobemoreinclusive.
Developguidelinesandeducationprogramsforemployersandrecruitmentagencies.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Education Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.
Increasewillingnessofemployerstohirethosewithhealthconditions.
Createaforumfor:(1)providingemployerswitheducationmaterialsregardinggoodwork;(2)developingjobserviceprovidersemployernetworks;and(3)puttingpotentialemployeesintouchwithwillingemployers.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Identifyasystemthatprovidestrainingandstandardsforemployers/recruitmentagenciestobecomeaDisabilityConfidentRecruiter/Employer.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Interventiontoencourageemployerstoprovide'onthejob'trainingforintellectuallyordisabledjobseekersratherthanrequiringatertiaryqualification.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Employee empowerment
Mentorship Individualscanfeelminisculeagainstthesystemwhentheyaretryingtosecurethebestsupportforthemselves.
Employeesfeelsociallysupported Onlineresourcecollatingonline‑orcommunity‑basedmentorshipprogramsandsupportgroups.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Unsuitablementorscanhaveanadverseeffect.Thisexacerbatesincidencesofdepressionandhopelessness.
Linkemployeestopositiveinfluencers.
Useadvocacyorganisationsthatareintouchwiththeneedsoftheemployeesspecificgroupasacentralforum(eg:spinalcordassociation).
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
System Navigatingthedisabilitysupportsystemcanbedifficultandlonelyasanindividual.
Employeesfeelsociallysupported. Group‑basedcase/claimmanagement.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Onestopshopportal'thatconnectstoservices,mentorgroups,'goodwork'credentialedemployers,jobsearchservices,jobapplicationguidance,motivationaltrainingetc.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
Education Employeesunawareofwhattoexpectofemployer
Employeesmoreclearlyunderstandwhattoexpectoftheiremployer.
Collateonlineinformationregardingemployerobligations.Designaninterventiontomaximisethenumberofemployeeswhoaccessthematerials.Employerguidelines.
Empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse(dependentself‑empowerment)
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Category Problem Desired outcome Possible intervention How does the intervention empower individuals?
Jobseeking Itcanbedifficulttomanageyourconditionwhenitimpairsyouphysicallyand/ormentally.Thatmeansitcanbeespeciallydifficulttofindorgetbacktowork.
Employeesfeelsupported Individualplacementandsupport(IPS)approachfromjobsearchprovider.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Difficulttofindemployerswhoarewillingtorecruitpeoplewithhealthconditions.Groupinterviewscanbedaunting.
Employeesaregiventheconfidencetokeeplookingforwork.
Accesstoajobcoachingsystemmannedwithcoachestrainedforthespecialneedsofpeoplewithaphysicalorpsychologicalhealthcondition.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
Lossofskills,eitherduetoonsethealthconditionorlong‑termunemployment.
Havetheskillstofindsuitableemployment.
Interventionsthatgiveaccesstotraining/retraining.
Empoweringthingsthatindividualscannotactionthemselves(dependentempowermentprovidedbyothers)
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4.0 ConclusionThepurposeofthisstudyistoidentifywhatcanhelpemployeestohelpthemselves–touseworkaspartoftheirrecovery.However,adistinctionmustbedrawnbetweenthedifferenttypesofempowermentinterventions:
1. Independentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesrightnowwithouthelpfromanyoneelse.
Neithertheacademicevidence,expertstakeholderinterviewsnoremployeeinterviewsidentifiedindependentself‑empowermentinterventions.
2. Dependentself‑empowerment–empoweringthingsthatindividualscanactionthemselvesbutreliesonactionfromsomeoneelse,forexample,‘mentorship’isthemostfavouredinterventionbyemployeesbutfacilitiestoaccessmentorshipwouldhavetobeestablishedtoenableaccess.
3. Dependedempowerment–empoweringthingsindividualscannotactionthemselves.
Dependentself‑empowermentThefollowinginterventionsandexampleswereidentifiedthatindividualscanactionthemselvesonceamechanismisestablished.
• Mentorship:community‑basedprogramsandsupportgroupsoradvocacygroupforumsthatindividualscanaccessviaonlineresourcesoruseofadvocacyorganisationsthatareintouchwiththeneedsofspecificemployeegroupsasacentralforum.
• Education:acollationofonlineinformationregardingemployerobligationsandguidelinestohelpemployeesunderstandtheirentitlementswashighlysupportedbyemployees,orapsycho‑educationapproachtoincreasehealthliteracy–thoughreviewevidenceforthiswasinconclusive.
• Goalsetting:agoaldirectedoccupationaltherapyprogram.
• Systemfacilitation:aportalthatconnectstoservices,mentorgroups,‘goodwork’credentialledemployers,jobsearchservices,jobapplicationguidance;oranonlinetriageserviceprovidedbyrealpeoplewhocanhelpnavigatethroughdifferentsystemsandtodifferentservices.
DependentempowermentWhatthisinvestigationlearntfromemployeesandfromstakeholdersisthatthebesteffortsatself‑helparedefiedbysystemsthatarecomplexandunsupportive.Inthewordsofakeystakeholder‘theycannotfightabadsystem’.Whatisclearisthatthereisnosilverbullet.Employeeempowermentisreliantonbroaderchangesandamulti‑dimensionalapproach.
• Cultural change–shiftingbeliefsandattitudestowardsthevalueofgoodworkandinclusionisimportant.Culturalprovidestheover‑archingcontextandmotivationthatmakesindividualinterventionseffective.Itisahighorder‘empowerment’toolforallparticipantcohorts.Italsogoeshandinhandwiththeneedforbettercross‑communityhealthliteracy.
Thereisgrowingevidencethatdemonstratesthatwithoutshiftingculturalbeliefsandsocialnorms,inthiscasearoundthebenefitsofgoodworkandemployingpeoplewithhealthconditionsordisability,theeffectivenessofempowermentinterventionscanbecompromised.ThisisevidencedinsomeofAustralia’slargestbehaviourchangeprogramssuchasroadsafety,workplacesafetyandsmoking,whereeducationandlegislationdonotworkinisolationofcreatinganemotionalconnectiontothebenefitofaparticularbehaviour.
Stakeholdersrepeatedlyraisetheimportanceofcreatinguniversalawareness,understandingandabeliefamongstemployers,employees,healthprofessionals–allAustralians–that‘goodwork’isgoodforyouandthatworkingisaprovenaidtorecoveryandemotionalwellbeing.
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• System change –theevidencefromemployees’experiencesofthebenefitandincomesupportsystemsmaybeconsideredharshbysome,butpresentsaveryrealimpedimenttoindividualempowerment,evenleadingtoworseninghealthandgreaterrelianceonthesystembycontributingtosecondaryconditionssuchasdepression.Partsofthesystemareoutofstepwithcurrentbestpracticeapproachestocustomer‑centricservicingandstreamlinedoperatingprocesses,andthisisachallengethatneedstobeaddressed.
• Work accommodation–theneedforemployer’stobetterunderstandandsupporttheindividualcapabilitiesofemployeeswithaphysicalorpsychologicalconditionordisabilityissupportedbyevidence,employeesandstakeholders.Effectiveworkaccommodationisthecoalfaceoftheworkexperienceandenablingindividualstoobtain,stayatorreturntoworkisreliantonemployerengagement.
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Additional informationStakeholderresearch–thebesttimetointerveneStakeholderswereaskedaboutthemostadvantageoustimeintheprocesstointervene.
Earlyinterventionwasuniversallyconsideredaprioritytoprovidehopeandinspirationearlyon.Thisincludedtheveryfirstconversationonthisbasisthisisthetimewhenyougettoknowthecustomer,theirstoryandwhatthey’relike,aswellasbeingabletosetexpectationsfromthestart(i.e.tellthemwhatisgoingtohappen,theirrole,theemployersrole,wintrust,helpthemmakedecisions).
Inthecaseofinjuryorillnessthatimpactsanexistingworksituation,therewasalsothenotionthatthefirstcontactshouldbebeforethepersonbecomesinvolvedintheworkdisabilitysystem.
‘the system is focused on your health, you get a doctor, a physiotherapist, a specialist, but nobody focusses on your ability to work, and this leads to an immediate loss of confidence to work. The work conversation needs to start immediately – even if it is not a full chat because of the circumstances, it is someone saying ‘I will come and talk to you about how to help you get back to work’.
Anotherideawastheneedforearlyunderstandingandnotificationassoonassomethinghappenstoensuretheemployeranddocumentsarehandledintherightway.
Overallconsensusisthatthestrategyneedstobeaboutprevention.Understandingbypeoplebeforetheyevenfindthemselvesinthesituationsotheyknowwhattodotherebylesseningthe‘adversarial’feelingofthesituationandtriggeringthenotionthat‘ifyoufindyourselfinthissituationspeakupquickly’.
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ReferencesAustralianInstituteofHealthandWelfare.(2019).PeoplewithdisabilityinAustralia–inbrief.Catno.DIS74.
Canberra:AIHW
Cheng,C.,Oakman,J.,Bigby,C.,Fossey,E.,Cavanagh,J.,Meacham,H.,&Bartram,T.(2018).Whatconstituteseffectivesupportinobtainingandmaintainingemploymentforindividualswithintellectualdisability?Ascopingreview.Journal of Intellectual & Developmental Disability,43(3),317–327. http://doi.org/10.3109/13668250.2017.1327040
Collie,A.,Iles,R.andDiDonatoM.F.(2017).TheCrossSectorProject:MappingAustralianSystemsofIncomeSupportforPeoplewithHealthRelatedWorkIncapacity.InsuranceWorkandHealthGroup,FacultyofMedicineNursingandHealthSciences,MonashUniversity
Cullen,K.L.(2018).EffectivenessofWorkplaceInterventionsinReturn‑to‑WorkforMusculoskeletal,Pain‑RelatedandMentalHealthConditions:AnUpdateoftheEvidenceandMessagesforPractitioners.J Occup Rehabil,28(1),1–15.http://doi.org/10.1007/s10926‑016‑9690‑x
deBoer,A.G.,Taskila,T.K.,Tamminga,S.J.,Feuerstein,M.,Frings‑Dresen,M.H.,&Verbeek,J.H.(2015).Interventionstoenhancereturn‑to‑workforcancerpatients.Cochrane Database of Systematic Reviews,31(1),77–80.http://doi.org/10.1002/14651858.CD007569.pub3
Dewa,C.S.,Loong,D.,Bonato,S.,&Joosen,M.(2015).Theeffectivenessofreturn‑to‑workinterventionsthatincorporatework‑focusedproblem‑solvingskillsforworkerswithsicknessabsencesrelatedtomentaldisorders:asystematicliteraturereview.BMJ Open,5(6),1–11. http://doi.org/10.1136/bmjopen‑2014‑007122
Dewa,C.S.,Loong,D.,Trojanowski,L.,&Bonato,S.(2019).Theeffectivenessofaugmentedversusstandardindividualplacementandsupportprogramsintermsofemployment:asystematicliteraturereview.Journal of Mental Health,27(2),174‑183. http://doi.org/10.1080/09638237.2017.1322180
Doki,S.,Sasahara,S.,&Matsuzaki,I.(2015).Psychologicalapproachofoccupationalhealthservicetosickleaveduetomentalproblems:asystematicreviewandmeta‑analysis.International Archives of Occupational and Environmental Health,88(6),659–667.http://doi.org/10.1007/s00420‑014‑0996‑8
Donker‑Cools,B.H.P.M.,Daams,J.G.,Wind,H.,&Frings‑Dresen,M.H.W.(2016).Effectivereturn‑to‑workinterventionsafteracquiredbraininjury:Asystematicreview.Brain Inj,30(2),113–131. http://doi.org/10.3109/02699052.2015.1090014
D’Amico,M.L.,Jaffe,L.E.,&Gardner,J.A.(2018).EvidenceforInterventionstoImproveandMaintainOccupationalPerformanceandParticipationforPeopleWithSeriousMentalIllness:ASystematicReview.American Journal of Occupational Therapy,72(5),7205190020p1–37. http://doi.org/10.5014/ajot.2018.033332
Fong,C.J.,Murphy,K.M.,Westbrook,J.D.,&Markle,M.M.(2015).PsychologicalInterventionstoFacilitateEmploymentOutcomesforCancerSurvivors.Research on Social Work Practice,28(1),84–98. http://doi.org/10.1177/1049731515604741
Gaudreault,N.,Maillette,P.,Coutu,M.‑F.,Durand,M.‑J.,Hagemeister,N.,&Hébert,L.J.(2014).Workdisabilityamongworkerswithosteoarthritisoftheknee.InternationalJournalofRehabilitationResearch,37(4),290–296.http://doi.org/10.1097/MRR.0000000000000082
Hegewald,J.,Wegewitz,U.E.,Euler,U.,vanDijk,J.L.,Adams,J.,Fishta,A.,etal.(2019).Interventionstosupportreturntoworkforpeoplewithcoronaryheartdisease.CochraneDatabaseofSystematicReviews,143(45),2952–192.http://doi.org/10.1002/14651858.CD010748.pub2
-
36
Khangura,S.,Polisena,J.,Clifford,T.J.,Farrah,K.,&Kamel,C.(2014).Rapidreview:Anemergingapproachtoevidencesysnthesisinhealthtechnologyassessment.InternationalJournalofTechnologyAssessmentinHealthCare,30(1),20–27.http://doi.org/10.1017/S0266462313000664
Laires,P.A.,Gouveia,M.,&Canhão,H.(2017).Interventionsaimingtoreduceearlyretirementduetorheumaticdiseases,1–9.
Levack,W.M.,Weatherall,M.,Hay‑Smith,E.J.C.,Dean,S.G.,McPherson,K.,&Siegert,R.J.(2015).Goalsettingandstrategiestoenhancegoalpursuitforadultswithacquireddisabilityparticipatinginrehabilitation.CochraneDatabaseofSystematicReviews,6(2),50–202. http://doi.org/10.1002/14651858.CD009727.pub2
Lindsay,S.,RHartman,L.,&Fellin,M.(2015).Asystematicreviewofmentorshipprogramstofacilitatetransitiontopost‑secondaryeducationandemploymentforyouthandyoungadultswithdisabilities.Disability&Rehabilitation,38(14),1329–1349.http://doi.org/10.3109/09638288.2015.1092174
McDowell,C.,&Fossey,E.(2014).WorkplaceAccommodationsforPeoplewithMentalIllness:AScopingReview.JOccupRehabil,25(1),197–206.http://doi.org/10.1007/s10926‑014‑9512‑y
Modini,M.,Tan,L.,Brinchmann,B.,Wang,M.‑J.,Killackey,E.,Glozier,N.,etal.(2018).Supportedemploymentforpeoplewithseverementalillness:Systematicreviewandmeta‑analysisoftheinternationalevidence.BritishJournalofPsychiatry,209(1),14–22. http://doi.org/10.1192/bjp.bp.115.165092
Muñoz‑Murillo,A.,Esteban,E.,Ávila,C.,Fheodoroff,K.,Haro,J.,Leonardi,M.,&Olaya,B.(2018).FurtheringtheEvidenceoftheEffectivenessofEmploymentStrategiesforPeoplewithMentalDisordersinEurope:ASystematicReview.IntJEnvironResPublicHealth,15(5),838–20. http://doi.org/10.3390/ijerph15050838
Nevala,N.,Pehkonen,I.,Koskela,I.,Ruusuvuori,J.,&Anttila,H.(2015).WorkplaceAccommodationAmongPersonswithDisabilities:ASystematicReviewofItsEffectivenessandBarriersorFacilitators.JOccupRehabil,25(2),1–18.http://doi.org/10.1007/s10926‑014‑9548‑z
Nieuwenhuijsen,K.,Faber,B.,Verbeek,J.H.,Neumeyer‑Gromen,A.,Hees,H.L.,Verhoeven,A.C.,etal.(2014).Interventionstoimprovereturntoworkindepressedpeople.CochraneDatabaseofSystematicReviews,23(1),35–143.http://doi.org/10.1002/14651858.CD006237.pub3
Nigatu,Y.T.,Liu,Y.,Uppal,M.,McKinney,S.,Rao,S.,Gillis,K.,&Wang,J.(2016).Interventionsforenhancingreturntoworkinindividualswithacommonmentalillness:systematicreviewandmeta‑analysisofrandomizedcontrolledtrials.Doi.org,46(16),1–12.http://doi.org/10.1017/S0033291716002269
Ratti,V.,Hassiotis,A.,Crabtree,J.,Deb,S.,Gallagher,P.,&Unwin,G.(2016).Theeffectivenessofperson‑centredplanningforpeoplewithintellectualdisabilities:Asystematicreview.ResearchinDevelopmentalDisabilities,57,63–84.http://doi.org/10.1016/j.ridd.2016.06.015
RoyalAustralianCollegeofPhysiciansandTheAustralasianFacultyofOccupationalandEnvironmentalMedicine(2015).Realisingthehealthbenefitsofwork–Anevidenceupdate.Retrievedfrom: https://www.racp.edu.au/docs/default‑source/advocacy‑library/pa‑health‑benefits‑of‑work‑evidence‑update.pdf?sfvrsn=af75331a_6
RoyalAustralianCollegeofPhysiciansandTheAustralasianFacultyofOccupationalandEnvironmentalMedicine(2013).Whatisgoodwork?PositionStatement.Retrievedfrom: https://www.racp.edu.au/docs/default‑source/advocacy‑library/pa‑what‑is‑good‑work.pdf?sfvrsn=beab321a_4
https://www.racp.edu.au/docs/default-source/advocacy-library/pa-health-benefits-of-work-evidence-update.pdf?sfvrsn=af75331a_6 https://www.racp.edu.au/docs/default-source/advocacy-library/pa-health-benefits-of-work-evidence-update.pdf?sfvrsn=af75331a_6 https://www.racp.edu.au/docs/default-source/advocacy-library/pa-health-benefits-of-work-evidence-update.pdf?sfvrsn=af75331a_6 https://www.racp.edu.au/docs/default-source/advocacy-library/pa-health-benefits-of-work-evidence-update.pdf?sfvrsn=af75331a_6
-
37
Sabariego,C.,Coenen,M.,Ito,E.,Fheodoroff,K.,Scaratti,C.,Leonardi,M.,etal.(2018).EffectivenessofIntegrationandRe‑IntegrationintoWorkStrategiesforPersonswithChronicConditions:ASystematicReviewofEuropeanStrategies.IntJEnvironResPublicHealth,15(3),552–35.http://doi.org/10.3390/ijerph15030552
Suijkerbuijk,Y.B.,Schaafsma,F.G.,vanMechelen,J.C.,Ojajärvi,A.,Corbière,M.,&Anema,J.R.(2017).Interventionsforobtainingandmaintainingemploymentinadultswithseverementalillness,anetworkmeta‑analysis.CochraneDatabaseofSystematicReviews,166(1),297–214.http://doi.org/10.1002/14651858.CD011867.pub2
Trenaman,L.M.,Miller,W.C.,&Escorpizo,R.(2014).Interventionsforimprovingemploymentoutcomesamongindividualswithspinalcordinjury:Asystematicreview.SpinalCord,52(11),788–794. http://doi.org/10.1038/sc.2014.149
Tse,S.,Tsoi,E.W.,Hamilton,B.,O’Hagan,M.,Shepherd,G.,Slade,M.,etal.(2015).Usesofstrength‑basedinterventionsforpeoplewithseriousmentalillness:Acriticalreview.InternationalJournalofSocialPsychiatry,62(3),281–291.http://doi.org/10.1177/0020764015623970
Vooijs,M.,Leensen,M.C.J.,Hoving,J.L.,Wind,H.,&Frings‑Dresen,M.H.W.(2015).Interventionstoenhanceworkparticipationofworkerswithachronicdisease:asystematicreviewofreviews.OccupationalandEnvironmentalMedicine,72(11),820–826. http://doi.org/10.1136/oemed‑2015‑103062
Wheeler,S.,Acord‑Vira,A.,&Davis,D.(2016).EffectivenessofInterventionstoImproveOccupationalPerformanceforPeopleWithPsychosocial,Behavioral,andEmotionalImpairmentsAfterBrainInjury:ASystematicReview.AmericanJournalofOccupationalTherapy,70(3),7003180060p1–24. http://doi.org/goal
WorldHealthOrganization(1998).HealthPromotionGlossary.Geneva:WHOWHO/HPR/HEP/98.1
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AppendicesAppendix1:Examplesofinterventiontypes1. Workaccommodation
Examplesfromliteratureofwhatworkaccommodationinterventionsincorporate:
• Individualcasemanagementandjobsearchassistance
• Changestotheworkplaceorequipment
• Changesinworkdesignandorganisation
• Changesinworkingconditionsorworkenvironment
• Casemanagementwithworkerandemployer
• Earlycontactwithworkerbyworkplace
• RTWcoordination
• Worksiteergonomicvisit
• Healthcareprovidercontactwithworkplace
2. Support
Examplesfromliteratureofwhatsupport/individualplacementandsupport(IPS)interventionsincorporate:
• Individualplacementandsupportprinciples:competitiveemploymentasprimarygoal;eligibilitybasedonpatientchoice;integrationofvocationalandclinicalservices;jobsearchguidedbyindividualpreferences;personalisedbenefitscounselling;rapidjobsearch;systematicjobdevelopment;time‑unlimitedsupport
• AugmentedIPS:IPSwithaddedspecialisedtrainingcomponents(e.g.augmentedwithcognitivetraining,work‑relatedsocialskills,workplaceskills)
• Traditionalvocationalrehabilitationmodels:focusontheinterventionsinthesettingpriortoinitiatingworkactivity
• Supportedemploymentmodels:focusontheimmediatecompetitivejobsearch
• Work‑focusedtreatmentofhealthconditions(e.g.commonmentaldisorders)
3. Mentorship
Examplesfromtheliteratureofwhatmentorshipinterventionsincorporate:
• School‑basedinterventionswithpeermentors(e.g.class‑basedcompetency‑buildingprogramaimedatfosteringself‑determinationinstudents)
• Community‑basedinterventionswithpeermentors(e.g.programsbasedoutsideschoolsorotherinstitutions
• Work‑basedinterventions(e.g.coworkertrainingviastandardizedone‑on‑oneapproach)
• Familyemploymentawarenesstraining(e.g.standardisedknowledge‑basedtrainingprogramforfamilies)
• Onlinementorshipprogram(e.g.emailmethodsformentorstoprovidesupportandinformationsharing)
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4. Goalsetting
Examplesfromtheliteratureofwhatgoal‑settinginterventionsincorporate:
• Goal‑directedoccupationaltherapyprogram
• Group‑basedgoalsettingapproach
• Specificoccupation‑basedgoalsetting
5. Person‑centeredplanning
Person‑centeredplanning(PCP)isnotastandardizedinterventionbutanumbrellatermthatisoftenusedtodescribeapproachesandtechniquesthatsharecommoncharacteristics.Fivekeyfeaturesinclude:
• The person at the center
• Familymembersandfriendsarepartnersinplanning
• Theplanreflectswhatisimportanttotheperson,theircapacities,andwhatsupporttheyrequire
• Theplanresultsinactionsthatareaboutlife,notjustservicesandreflectwhatispossibleandnotsimplywhatisavailable
• Theplanresultsinongoinglistening,learning,andfurtheraction
6. Problem‑solving
Problem‑solvinginterventionsareusuallydeliveredasatrainingprogram.Someexamplesfromtheliteratureinclude:
• Problem‑solvingtrainingcombinedwithgradedactivity
• Problem‑solvingskillstrainingdeliveredbyoccupationaltherapist
• Problem‑solvingcomponentinguideline‑basedcareprovidedbyoccupationalphysicians
• Problem‑solvingtrainertrainingforoccupationalphysicians
• Problem‑solvingcomponentincollaborativecareinterventioninvolvingworker,manager,andoccupationaltherapist
• Individual‑andgroup‑basedproblem‑solvingtrainingdeliveredbypsychologists.
7. Strength‑basedinterventions
Examplesfromtheliteratureofwhatstrength‑basedinterventionsincorporate:
• Strength‑basedcasemanagement
• Strengths‑basedbriefsolutionfocusedcounselling
8. Education
Examplesfromtheliteratureofwhateducationinterventionsincorporate:
• Psycho‑educationalinterventions(e.g.participantslearnaboutphysicalsideeffects,stressandcopingtechniques)
• Patientcounsellingandhealtheducation
• Stressmanagementandrelaxationtrainin
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Appendix2:Detailedbreakdownofcitizenpanelattendees
20–244% 25–29
4% 30–344%
35–399%
40–444%
45–4931%
50–5422%
55–6022%
Year 1210%
AdvancedDiplomaandDiploma
30%
BachelorDegree20%
Acquiredandcongenital
components4%
Acquired87%
Congenital9%
Congenitalvsacquired
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Acute18%
Chronic82%
Chronicvs.acute
Moderateproblem20%
Noproblem0% Mildproblem
0%
Severe problem0%
Minimalproblem0%
Moderatelysevere problem
50%
Verysevereproblem30%
Severity
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Appendix3:Projectmethods
Rapidreviewmethods–Searchstrategy
Acomprehensivesearchofthefollowingdatabasewasundertaken:PsycINFOviaOvid,MedlineviaOvid,CochraneLibraryandCINAHL.TheMedlinesearchstrategyisreproducedbelow:
Table 4. Medline search strategy
Search string
1 returntowork[tw]ORreturn‑to‑work[tw]ORRTW[tw]ORre‑employ*[tw]ORemployment[tw]ORunemployment[tw]ORunemployed[tw]ORretirement[tw]ORemployab*[tw]ORabsenteeism[tw]ORvocational[tw]OR(commenc*adj3work)[tw]OR(commenc*adj3job)[tw]OR(stay*adj3work)[tw]OR(stay*adj3job)[tw]OR(workadj2participat*)[tw]OR(modif*adj2work)[tw]OR(workadj2adjust*)[tw]OR(retainadj2work)[tw]OR(retainadj2job)[tw]OR(jobadj2retention)[tw]OR(workadj2retention)[tw]OR(jobadj3re‑ent*)[tw]OR(workadj3re‑ent*)[tw]OR(workadj3reintegrat*)[tw]OR(jobadj3re‑integrat*)[tw]OR(modif*adj2dut*)[tw]OR(lightadj2dut*)[tw]OR(workadj2ability)[tw]OR(workadj2status)[tw]OR(recover*adj2work)[tw]OR(obtain*adj3work)[tw]OR(obtain*adj3job)[tw]OR(workadj3capacity)[tw]OR(occupationaladj2outcomes)[tw]OR(sick*adj1leave)[tw]OR(sick*adj3absence)[tw]OR(workadj3accommodat*)[tw]OR(jobadj3accommodat*)[tw]OR“workplace”[SubjectHeading]OR“returntowork”[SubjectHeading]OR“work”[SubjectHeading]OR“employment”[SubjectHeading]OR“sickleave”[SubjectHeading]OR“jobsatisfaction”[SubjectHeading]OR“occupationalmedicine”[SubjectHeading]OR“rehabilitation,vocational”[SubjectHeading]OR“occupationalhealth”[SubjectHeading]OR“unemployment”[SubjectHeading]OR“absenteeism”[SubjectHeading]OR“occupations”[SubjectHeading]OR“occupationalhealthservices”[SubjectHeading]OR“workcapacityevaluation”[SubjectHeading]OR“vocationalguidance”[SubjectHeading]
2 disability[tw]ORdisease[tw]ORinjury[tw]ORillness[tw]ORdisorder[tw]ORcognitiveimpairment[tw]ORcognitivedysfunction[tw]ORmusculoskeletaldisease*[tw]ORcancer[tw]ORosteoporosis[tw]ORarthritis[tw]ORasthma[tw]ORchronicobstructivepulmonarydisease[tw]ORCOPD[tw]ORchronicpain[tw]ORcardiovasculardisease[tw]ORdiabetes[tw]ORchroniccondition[tw]ORmentalhealth[tw]ORchronicdisorder[tw]ORpsychologicaldisorder[tw]OR“Disabledpersons”[SubjectHeading]OR“IntellectualDisability”[SubjectHeading]OR“MentalDisorders”[SubjectHeading]OR“WoundsandInjuries”[SubjectHeading]OR“ChronicDisease”[SubjectHeading]OR“CognitiveDysfunction”[SubjectHeading]OR“MusculoskeletalDiseases”[SubjectHeading]OR“Neoplasms”[SubjectHeading]OR“Osteoporosis”[SubjectHeading]OR“Arthritis”[SubjectHeading]OR“RespiratoryTractDiseases”[SubjectHeading]OR“PulmonaryDisease,ChronicObstructive”[SubjectHeading]OR“Asthma”[SubjectHeading]OR“BackPain”[SubjectHeading]OR“ChronicPain”[SubjectHeading]OR“CardiovascularDiseases”[SubjectHeading]OR“DiabetesMellitus”[SubjectHeading]OR“Depression”[SubjectHeading]OR“AnxietyDisorders”[SubjectHe