for patients who report electromagnetic hypersensitivity · study andersson et al. hillert et al....

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Cognitive therapy for patients who report electromagnetic hypersensitivity Lena Hillert, MD,PhD Department of Public Health Sciences, Div. of Occupational Medicine, Karolinska Institutet. Occupational and Environmental Health, Stockholm County Council, Sweden.

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Page 1: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive therapyfor patients who report

electromagnetic hypersensitivity

Lena Hillert, MD,PhDDepartment of Public Health Sciences, Div. of Occupational Medicine, Karolinska Institutet. Occupational and Environmental Health, Stockholm County Council, Sweden.

Page 2: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years
Page 3: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Hypersensitivity to electricity, electrical hypersensitivity,

electromagnetic hypersensitivity...

Syndrome label set by the patients because ofperceived association to EMF exposure!

Nonspecific symptomsIndividual variationsNo diagnostic test available

Page 4: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

0

10

20

30

40

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izzi

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% EHSReferents

Hillert et al, 2002

Page 5: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Working definition Electromagnetic hypersensitivity(Bergqvist et al, 2000. Swedish Council for Work Life Research.)

Symptoms that are experienced in proximity to or during use of electrical equipment, and that

result in varying degrees of discomfort or ill health in the individual and that

an individual attributes to activation of electrical equipment.

Page 6: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Additonal characterization motivated, e.g.:Dimension VariablesSymptoms Skin index

Neurovegetative index

Belief Electromagnetic hypersensitivty

Triggering factors VDU and/or fluorescent lightingOther sources/ situations than above

Temporal aspects Duration of symptomsRecurrent acute or chronic symptoms

Behavior Avoidance of triggering factorsOn sick leave

Page 7: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Rational for management and interventions programs,

including cognitive therapy:

Different contributing factors indicated

EMF not proven causal factor

Alternative explanatory factors frequently identified

Symptoms may be triggered by conditioned stimuli

Avoidance of EMFs and/or VDU is not necessary for improvement in all cases

Reported success of different treatments and actions

Page 8: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

InterventionInvestigation:

Medical work-upPsychosocial factorsEnvironmental factors

Prompt actions if suboptimal conditions are identified

Establish a plan of action; follow-up

Page 9: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Medical diagnoses in patients with electromagnetic hypersensitivity

(much depending on study group)COMs/Dermatology clinics:

~15 % somatic diagnoses

Skin symptoms: ~50 % dermatological diagnoses

Few psychiatric diagnoses,

more frequently psychological conditions of possible importance

Page 10: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Deviating physiological reactions

• Stress-sensitive hormones

• Heart rate

• Skin temperature

• Pupil reactions to light

• EEG and VEP during exposure to flickering light

Imbalance of the autonomic nervous system?

Page 11: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Treatment in case of persisting symptomsNo standard treatment available

Individual support and programs

Focus on reduction of symptoms and disability

Try treatments shown beneficial in chronic illness

(cognitive therapy, acupuncture, hypnosis, relaxation training, low doses of antidepressant drugs…)

Page 12: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapy• Structured

• Short-term

• Present-oriented

• Goal-oriented and problem-focused

Team work! -CT emphasizes collaboration and active

participation

Page 13: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapyUnderlying theory:

• The way in which people structure

(based on core beliefs and basic assumptions)

their experiences influences the way in which they think, feel, and behave

CT teaches patients

to identify, evaluate, and respond to dysfunctional thoughts and beliefs

(automatic thoughts)

Page 14: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapyFocuses on:•Controlling and reducing complaints, or•Questioning and testing beliefs

The focus of the therapy varies from patient to patient (depending on identified needs and short- and long-term goals).

A variety of techniques may be used, including relaxation techniques.

Page 15: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapyStructured sessions:

•Brief update

•Setting the agenda (present theoretical models)

•Review of homework

•New issues (identify problems and formulating them in cognitive terms)

•Setting new homework assignments

•Summarizing the session, feedback

Page 16: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

(Enhancement of)symptoms, e.g. , skin sensation

Coping(control)

Alternative actions/explanations

Avoidance(helpless)

Confirmation bias

(Experience, knowledge)Interpretation of symptoms/

attribution

Stress, anxiety

Vicious circle

Stimulus

Page 17: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapyStructured sessions:

•Brief update

•Setting the agenda (present theoretical models)

•Review of homework

•New issues (identify problems and formulating them in cognitive terms)

•Setting new homework assignments

•Summarizing the session, feedback

Page 18: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Evaluation of cognitive-behavioral therapy for patients reporting EHS

• Andersson B et al. A cognitive-behavioral treatment of patients suffering from “electrical hypersensitivity”. Subjective reactions in a double-blind provocation study. JOEM 1996;38:752-8.

• Hillert L et al. Cognitive behavioural therapy for patients with electric sensitivity - a multidisciplinary approach in a controlled study. Psychother Psychosom 1998;67:302-10.

• Harlacher U. “Hypersensitivity to electricity”: an explanatory model, some characteristics of sufferers and effects of psychological treatment with cognitive-behavioural methods.(InSwedish.) Dissertation, University of Lund; 1998.

Page 19: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years 42 (26-53) 40 (26-58) 44 Duration of illness, years

>0.5

<1-6

<2->4

Skin symptoms/ index

All: subjective reactions within 30 min

1.9

All?

Neurovegetative symptoms/ index

?

1.2

Triggering factors Sources of light

17

22

(VDU or

Other factors ? 14 “EHS”) Avoidance behavior 17 20 On sick leave/ disability pension

2

1 (< 3 months)

Working (part or full time)

15

21

No somatic or psychiatric disorder in need of treatment/explaining complaints

Page 20: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Short term therapy• Andersson et al :

Sessions 1 hour, 4-10 sessions (mean 7.4)

• Hillert et al :Sessions 1-2 hours, 3-12 sessions

(mean 6.5)

• Harlacher: Sessions 75-180 min. 3-16 sessions

(mean 8)

Page 21: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Results• Andersson et al: Sign reduction in estimated disability

in TG (mean 22 weeks after start)(but no change in reactions during provocation tests)

• Hillert et al: No sign differences TG and CG (6 and 12 months after start)(reduction in symptoms in both groups)

• Harlacher: Sign reduction in complaints in TG (~20 weeks after start)(half of the patients: classified as “improved” or “cured”)

Page 22: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Management and treatment experiences

Management/ therapy Improved Company based occup. health service (Lidén et al, 96)

~ 90%

Investigation by specialist (Gustavsson, Ekenvall, 92. Hillert, 93)

~ 40 – 50%

Acupuncture (Arnetz et al, 95)

No sign effect (Sign. reduction in symptoms in both groups)

EMF clean-ups

?

Page 23: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Cognitive-behavioral therapy may

have a beneficial role in

reducing symptoms and disability.

Page 24: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Thank you for your attention!

Page 25: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Convinced of a causal relationship

Temporary symptoms(e.g., skin/eyesassociated with VDU work)

Heard of EHS, considering a possible relationship symptoms-EMF

Neurovegetative symptoms reported to be triggered by most sources of EMF

Looking for confirmation

Time

Goals: Complete Reduce symptom Improve daily liferehabilitation

Means: Information, E.g., cognitive therapy Supportive therapyalternativeexplanations

Prognosis: Good Varies Poor

Page 26: for patients who report electromagnetic hypersensitivity · Study Andersson et al. Hillert et al. Harlacher Recruitment Patients Patients Patients Men/women 5/12 6/16 (26) Age, years

Recommendations; medical contact

Allow enough time and/or repeated visits

Establish a trustful relationship, shared ambition: the patientsimprovement

Ensure follow-up and continuity

Apply a non-judgmental and supportive approach, but inform of your professional opinion

Focus on reducing disability rather than searching for a specific causal factor, and: