FOR PEOPLE

with developmental disabilities

OUR VISION: A Society For All, Equal Opportunity, Equal Access,Empowerment

OUR MISSION:We serve people with disabilities through support and advocacy

PUNSPUNS

What is it? And why do What is it? And why do we need to know about we need to know about it?it?

May 2008

What is PUNS?What is PUNS?

PUNS stands for “Prioritization of PUNS stands for “Prioritization of Urgency of Need for Services”.Urgency of Need for Services”.

Statewide database that records Statewide database that records information about individuals with information about individuals with developmental disabilities who are developmental disabilities who are in need of services now or within in need of services now or within the next five-yearsthe next five-years

Often referred to as “the waiting Often referred to as “the waiting list”list”

How does the State use How does the State use the data on the PUNS?the data on the PUNS?

To select individuals for serTo select individuals for servicesvices asas funding becomes availablefunding becomes available

To develop proposals and To develop proposals and materials materials

forfor the State’s annual budgeting the State’s annual budgeting processprocess

To plan for future needsTo plan for future needs

What assistance is What assistance is available from the available from the State?State? In-home supportsIn-home supports Respite careRespite care Training programsTraining programs Job CoachesJob Coaches Adaptive EquipmentAdaptive Equipment Residential Living ArrangementsResidential Living Arrangements

“ “Registering Registering with with the PUNS the PUNS database is database is the first and most the first and most important step you and important step you and your family can take to your family can take to receive assistance now receive assistance now or within the next five or within the next five years.”years.”

www.dd.illinois.gov/SignUp.cfmwww.dd.illinois.gov/SignUp.cfm

First StepFirst Step Contact your PAS/ISC AgencyContact your PAS/ISC Agency

PAS stands for Pre-Admission ScreeningPAS stands for Pre-Admission Screening ISC stands for Individual Service ISC stands for Individual Service

CoordinationCoordination Access Services of Northern Illinois is Access Services of Northern Illinois is

the PAS/ISC agency for this areathe PAS/ISC agency for this area Ask for the “Service Coordinator of Ask for the “Service Coordinator of

the Day” and tell that person you the Day” and tell that person you would like to complete the PUNSwould like to complete the PUNS

Be ready to discuss service needsBe ready to discuss service needs

Access Services of Access Services of Northern IllinoisNorthern Illinois

7399 Forest Hills Road Loves Park, 7399 Forest Hills Road Loves Park, IL 61111IL 61111

815-282-8824 (phone)815-282-8824 (phone) 815-282-8835 (fax)815-282-8835 (fax) www.accessni.comwww.accessni.com

What does the PAS/ISC What does the PAS/ISC agency do?agency do?

Under contract with the State to: Under contract with the State to: Enroll individuals in the PUNS databaseEnroll individuals in the PUNS database Complete assessments Complete assessments

to determine eligibility to determine eligibility

for servicesfor services Assist individuals in Assist individuals in

linking to needed linking to needed

services and providers services and providers

Next Steps…Next Steps…

Meet for a face to face conversation Meet for a face to face conversation with the PAS Service Coordinator to with the PAS Service Coordinator to complete the PUNS registration formcomplete the PUNS registration form

Who?: PAS Service Coordinator, Who?: PAS Service Coordinator, person with the disabilityperson with the disability, family , family member or guardian, any others the member or guardian, any others the person with the disability wants to person with the disability wants to includeinclude

After the first phone call

What will the PAS What will the PAS Service Coordinator ask Service Coordinator ask about?about?

Developmental disability Developmental disability Medical conditionMedical condition Need for new services and supportsNeed for new services and supports Need for different services and Need for different services and

supportssupports General demographic informationGeneral demographic information Living arrangementLiving arrangement

Then what?Then what?

Who gets chosen for Who gets chosen for services?services?

How are people chosen for How are people chosen for services?services?

*Full size chart attached with handout

The “Point System” The “Point System” (as of April 16, 2008)(as of April 16, 2008)

The State will authorize services based The State will authorize services based on a point systemon a point system

40 points per month will be authorized40 points per month will be authorized Different services are equal to different Different services are equal to different

pointspoints CILA (Group Home) = 1 pointCILA (Group Home) = 1 point HBS (Home Based) = 1/3 pointHBS (Home Based) = 1/3 point

The “Point System”The “Point System”

18 points per month reserved for 18 points per month reserved for crisis requests that cannot be crisis requests that cannot be predicted by PUNSpredicted by PUNS

22 points per month for CILA and 22 points per month for CILA and HBSHBS Remember this does not mean 22 Remember this does not mean 22

individualsindividuals These 22 points = services for 42 These 22 points = services for 42

individuals individuals

Distribution of the 22 Distribution of the 22 pointspoints

CILA (12 of the 22 points)CILA (12 of the 22 points) 8 Individuals in emergency situations8 Individuals in emergency situations

2 from Chicago Network, 1 from each remaining 2 from Chicago Network, 1 from each remaining Network based on length on time on PUNSNetwork based on length on time on PUNS

2 Individuals living with caregiver 75 or older2 Individuals living with caregiver 75 or older Based on length of time on PUNS, statewideBased on length of time on PUNS, statewide

2 Individuals residing in ICFs/DD2 Individuals residing in ICFs/DD Based on length of time on PUNS, statewideBased on length of time on PUNS, statewide

Distribution of the 22 Distribution of the 22 pointspoints

HBS Adult (10 of the 22 points)HBS Adult (10 of the 22 points) 6 Individuals in an emergency or critical 6 Individuals in an emergency or critical

situation and needing in home or day situation and needing in home or day supportssupports Based on length of time on PUNS, statewideBased on length of time on PUNS, statewide

16 Individuals leaving school in last 5 years16 Individuals leaving school in last 5 years 4 from Chicago Network, 2 from each remaining 4 from Chicago Network, 2 from each remaining

Network based on length on time on PUNSNetwork based on length on time on PUNS 8 Individuals living at home with caregiver 60 8 Individuals living at home with caregiver 60

or olderor older 2 from Chicago Network, 1 from each remaining 2 from Chicago Network, 1 from each remaining

Network based on length on time on PUNSNetwork based on length on time on PUNS

Levels of UrgencyLevels of Urgency

EmergencyEmergency Needs supports immediatelyNeeds supports immediately

CriticalCritical Needs support within one yearNeeds support within one year

PlanningPlanning Needs supports within 1-5 years or Needs supports within 1-5 years or

caregiver is age 60+caregiver is age 60+

What about the What about the Children’s HBS Children’s HBS Waiver?Waiver?

The State has not assigned points The State has not assigned points to this category yet.to this category yet.

They will assign points in the They will assign points in the future. future.

Important pointsImportant points

Completion of the PUNS Completion of the PUNS registration does registration does notnot guarantee guarantee eligibility for services or that eligibility for services or that services will be providedservices will be provided

PUNS must be updated at least PUNS must be updated at least annually or the individual will be annually or the individual will be removed from the PUNSremoved from the PUNS

Need more help?Need more help?

Developmental Disabilities HotlineDevelopmental Disabilities Hotline 1-888-DD-PLANS (1-888-337-1-888-DD-PLANS (1-888-337-

5267)5267) 1-866-376-8446 (TTY)1-866-376-8446 (TTY)

Acronym GlossaryAcronym Glossary PASPAS- Pre-Admission Screening- Pre-Admission Screening ISCISC- Individual Service Coordinator- Individual Service Coordinator DHSDHS- Department of Human Services- Department of Human Services DDDD- Developmental Disability- Developmental Disability HBSHBS- Home Based Support (waiver - Home Based Support (waiver

program)program) CILACILA- Community Integrated Living - Community Integrated Living

Arrangement (group home)Arrangement (group home) ICF/DDICF/DD- Intermediate Care Facility for - Intermediate Care Facility for

people with Developmental Disabilitiespeople with Developmental Disabilities PUNSPUNS- Prioritization of Urgency of Need for - Prioritization of Urgency of Need for

Services (database/waitlist for DD services)Services (database/waitlist for DD services)

SourcesSources

State of Illinois, Developmental DisabilitiesState of Illinois, Developmental Disabilities http://www.dd.illinois.govhttp://www.dd.illinois.gov

DHS Division of Developmental DisabilitiesDHS Division of Developmental Disabilities January 4, 2008 Memorandum January 4, 2008 Memorandum April 16, 2008 MemorandumApril 16, 2008 Memorandum

The Family Support Network of IllinoisThe Family Support Network of Illinois Newsletter, September 2005Newsletter, September 2005

Access Services of Northern IllinoisAccess Services of Northern Illinois February 15, 2008 Memorandum February 15, 2008 Memorandum