for people without disabilities, technology makes things easier. for people with disabilities
TRANSCRIPT
"For people
without
disabilities,
technology
makes
things
easier.
For people
with
disabilities,
technology
makes
things
possible.”
A program of the Institute on Disabilities at Temple University
FOR INFORMATION contact:
PIAT - Pennsylvania’s Initiative
on Assistive Technology
411S Student Center
1755 N 13th Street
Philadelphia, PA 19122
Tel: 800-204-7428 (voice)
866-268-0579 (TTY)
Fax: 215-204-6336
Email: [email protected]
Web: www://disabilities.temple.edu/piat
Presenters
• Amy Goldman, Associate Director
215-204-3862
• Karen Latimer, Assistive Technology Specialist
215-204-5097
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Goals for Today
• Provide a brief overview of disability, particularly people with physical, sensory, and intellectual disabilities.
• Introduce “disability etiquette” to improve communication with people with disabilities
• Increase your understanding of assistive technology (AT) and how it helps people with functional needs (including in an emergency or disaster)
• Provide resources for additional assistance
4
• 2005 US Census Bureau reports 54.4 million Americans have a disability
• 19% of the US population – about 1 in 5 Americans have a disability
• 46% of people with a disability are employed (compared to 84% of the general population)
• www.census.gov
5
Why are we here?
• Integrate and coordinate emergency preparedness, response, and recovery for children and adults with disabilities and others with access and functional needs
• “Bake it in” – don’t just layer it on! (M. Roth)
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Why are we here? Integrating Disability Access and Functional
Needs Efforts (Bulletin 361)
We have treated people
with disabilities as
medically ill, child-like
(even if they are 50 years
old), helpless, needy and
not able to take
care of themselves
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In the Past…
• Active, healthy
• Educated, employed
• Independent world travelers
• Married
• Parents
• Tax-paying citizens
• Respected and contributing leaders, neighbors, colleagues and
friends
8
But today…
People with disabilities are:
Language
Sticks and stones may break
my bones, but they will heal.
Words can hurt forever.
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Watch your language!
• Many agencies use the term “consumer” to indicate a person with a disability (who uses their services)
• Use “person first” language
– Why: Person first and then the disability
– Generally the most accepted words used to describe people with disabilities
– Nothing is universally accepted, but this is current language preferred by most people with disabilities
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DO say
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Watch your language!
handicapped
challenged
handi-capable
“the disabled”
“the blind”
Person with
a disability
Person who has a
specific disability, such
as low vision or
intellectual disability
DON’T say
DO say
DON’T say
Confined to
wheelchair
mute or dumb
afflicted
normal
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Person who uses a wheelchair
Person who is deaf and
unable to speak
Person without a disability
Watch your language!
DO say DON’T say
DO say
DO say
DON’T say
DON’T say
Accommodations What we can do to provide the
best service and experiences for
individuals with disabilities
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Access is for Everyone!
http://www.edf.fr/html/pubtv_2005/diversites/edf_en.html
30 second Public Service Announcement demonstrating how it would feel for the general public to be excluded from everyday activities
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The Basics - Site Accessibility
• Paths clear of debris
• Ramps and handrails as needed
• Tables at appropriate heights to talk, write
• Restrooms large enough for mobility devices
• Seating for individuals who cannot stand for long periods of time
• Multiple ways of communicating
• Clear signs with graphics
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Hints for effective interactions with individuals with disabilities
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Don’t make assumptions about a person based on what you “see”
or “hear”!
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Individuals with Physical Disabilities
• May be a result of illness, accident (including injuries acquired as a result of emergency or disaster) or from birth
• Often have a mobility impairment
• May use a wheelchair, walker, crutches, cane or have a prosthetic device for mobility
• May use other devices for activities of daily living and transportation (e.g. bath bench, lift, adapted vehicle)
• May not communicate with spoken words or have easily understood speech
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Individuals who use Wheelchairs
• Hints for interacting with people who use wheelchairs:
– Remember, there is a person in the wheelchair!
– Know the accessible routes
– Guide the chair using the handles & walk at your usual pace
– Do not place additional items on the chair, unless requested by the person using the wheelchair
– Know where the brakes are on a wheelchair, and ask if you need to put on the brakes
– Never move a person in a wheelchair unless you have permission from the person in the wheelchair!
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Individuals with Communication Impairments
• USUALLY can hear what you are saying
• May or may not have difficulty understanding, as well as expressing
• May have acquired the condition (e.g. stroke, laryngectomy) or may have a developmental disability (e.g. cerebral palsy)
• May or may not have an intellectual disability
• May or may not have literacy skills
• May use, or need but not have, technology for communication
• May have access issues with telecommunications as well as face-to-face communication
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Individuals with Communication Impairments
Hints for helping people with communication impairments:
• People may use gestures, pictures or a device that has voice output
• Listen with your eyes and ears
• Always speak directly to the person (not the people around him/her, even if they are helping “translate”)
• Allow extra time, and if possible, provide a quiet place to talk
• Don’t pretend to understand when you do not – repeat what you do understand, and ask for the part you didn’t understand to be repeated.
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Individuals with Intellectual Disabilities
• Are people first
• Are slow thinkers
• May have difficulty solving problems
• May have difficulty remembering things
• May have difficulty using language and making their
needs known
• May not have the ability to read
• May have short attention spans
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R-Word
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www.blueberryshoes.com/psa
http://www.youtube.com/watch?v=T549VoLca_Q
Two short “public service announcements” that stress it is unacceptable to use the “R – word”
Individuals with Intellectual Disabilities
Hints for interacting with people with intellectual disabilities:
• Treat them with respect and dignity
• Treat them in an age-appropriate manner
• Give extra time for the person to process what you are saying and to respond
– Use short sentences, simple, concrete words, gestures while speaking
• Demonstrate what you mean; showing someone can be more effective than telling
– Show a picture or gesture/indicate rather than just repeating information verbally
– Accompany the individual to a location instead of giving them verbal directions
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Individuals with Autism
Hints for interacting with people with autism:
• Some people with autism may not speak or make eye contact.
• Some people are excited, frightened or distracted by noise and lights around them. Try to minimize these environmental conditions.
• Unless absolutely necessary, do not touch a person with autism without their permission. People with autism are often sensitive to touch and touch can be painful.
• Look for signs of stress of confusion, and understand that rocking, repetitive motion and repeating words/phrases may be comforting to a person with autism.
• Repeat reassurances-don’t assume the person doesn’t understand because they do not use words.
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Individuals with Visual Impairment
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• People with visual impairment include people who have low
vision as well as people who are blind
• People who are blind may have some sight
• You may not be able to “tell” that a person has a vision
impairment
• People who are blind may use a white cane or a dog guide
Hints for interacting with individuals with visual
impairment:
• Announce your presence / departure
• Always speak directly to the person, not to his/her escort
• Ask if the person needs help and what type of help. Listen and do what is asked.
• Use normal language and tone—don’t shout
• A guide dog is legally allowed everywhere with its owner, and must not be treated as a pet. Do not separate a dog from it’s owner.
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Individuals with Visual Impairment
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• When asked for directions, be specific
– Use language like “Go to your left” - Do not point or say over there
• Ask if they can see landmarks
• Ask if they would like you to escort them
• When escorting, ask if they prefer to take your arm or follow you.
If they prefer to take your arm, touch their hand with your elbow
• When guiding to a chair, guide the person’s hand over the back of
the chair and to the seat
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Individuals with Visual Impairments
• People with hearing impairments include – People who have some hearing ability
– People who have very little hearing ability
• Persons with a hearing loss may appear disoriented and confused when all that is really wrong is that they cannot hear you. Determine if the person has a hearing aid. If they do, is it available and working? If it isn’t, can you get a new battery to make it work?
• To get the person’s attention, try catching his/her eye and/or saying something. If that doesn’t work, tap their shoulder
• Speak to the person, not the interpreter or companion
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Individuals with Hearing Impairments
Individuals with Hearing Impairments
• Not all people who are deaf use sign language (especially those who are “late-deafened” – who lost their hearing in adulthood)
• People who are deaf and who have used sign language from an early age may consider themselves part of the Deaf community, sharing Deaf culture
• Not all people who are hard of hearing can read lips or “speech read” (only about 30% of spoken English can be seen on the lips)
• Only 1 in 5 Americans who could benefit from a hearing aid wears one
Hints for interacting with individuals with hearing impairments:
• Add gestures, facial expressions and body language to your words-always maintain eye contact.
• If you are asked to repeat several times, try rephrasing or saying it a different way
• Keep your face and mouth unobstructed
– Do face the person while speaking
– Do speak clearly
– Don’t chew gum
– Don’t shout
• Have paper and pen handy, if needed
• Provide a flashlight-darkness can make communication near impossible.
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Individuals with Hearing Impairments
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• People who are deaf/blind may have some useable speech,
vision or hearing.
• Determine the individual’s specific communication needs-a
standard sign language interpreter is not sufficient to meet
the needs of a deaf/blind signer.
• Some people who are deaf/blind may be able to read print
written with a thick marker.
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Individuals who are Deaf-Blind
Hints for interacting with individuals who are deaf-
blind: • Identify yourself • Do not assume that the person knows what is going on, share
as much information as possible. • Always tell the person when you are leaving, even if it is for a
brief period of time. • When guiding a deaf/blind person, always allow them to
follow you and hold your arm or elbow. This will give them the information they need about the terrain you are walking.
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Individuals who are Deaf-blind
ASSISTIVE TECHNOLOGY AND EMERGENCY MANAGEMENT
Supports for individuals with visual, hearing and communication impairments
MITIGATION PREPARATION
RESPONSE RECOVERY
Assistive Technology
• Assistive Technology, or “AT”, means the devices that help people with disabilities do the things they need and want to do AND the services needed to help select, use, customize, and maintain the devices.
• AT includes things that help you walk, move, talk, see, hear, play, learn, and use a computer or telephone, such as wheelchairs, walkers, devices that talk, TTY, magnifiers and hearing aids
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Assistive Technology Devices
• Can be everyday, simple and inexpensive as well as complex, customized and costly
• AT is not matched to a medical diagnosis or specific disability but rather to the FUNCTIONAL LIMITATION the individual experiences in trying to accomplish a task or activity
AT and Emergency Preparation
• Individuals whose personal devices, including mobility, hearing, and communication devices, are not evacuated with them may lose their independence by not having access to the AT they need.
• Individuals with disabilities may not be able to independently protect themselves or evacuate.
• Individuals with disabilities may not be able to read, hear or comprehend emergency signals and other critical communications
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AT and Emergency Preparation
What you can do:
• Know accessible evacuation pathways and designated waiting areas
• If individuals need to “shelter in place”, personal belongings and devices may be necessary
• Know which and where mobility, telecommunication, and other AT devices are available for short term, interim, or ongoing use by the consumer.
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AT and Emergency Preparation
What emergency planners can do:
• Include AT in emergency preparedness messaging, reminding people that their “go kit” should include back up batteries, chargers, and directions for the use of their AT (e.g. putting a power chair in “manual” mode”)
• Become familiar with the kinds of AT people with disabilities may need and use, and any challenges presented by the evacuation of the AT (e.g. size) or the use of the AT (need for a power source)
42
AT and Emergency Preparation
What people with disabilities can do:
• Have a comprehensive list of all their AT (home; work; school)
• Keep the information about their AT (manufacturer/make/model; Rx; vendor and service provider contacts; manuals) along with their other important medical information
• Have a back-up system (e.g. low-tech solutions), in case they don’t have access to their device
• LABEL all components of their AT
• Be prepared! Have a plan!
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• Hints for assistive technology if devices accompany an individual:
– Keep devices within reach as best as possible
– Don’t move devices without communicating exactly what
you are doing with them
– Not all AT costs a lot of money, but treat every devices as
though it does
– Ask people what is the best way to handle their AT
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Accommodating AT Users
Communication Options for People who are Deaf, Hard of Hearing, or Who Have Speech Impairments
• American Sign Language
– Interpreters live vs. remote or video phone
– iPad/iPod Apps
Purple Video Relay Service on a iPad http://www.youtube.com/watch?v=KdB
gfYorRNE&feature=feedwll&list=WL
Sign language graphic
Sign language application for iPad
Communication Options for People who are Deaf, Hard of Hearing, or Who Have Speech Impairments
• Text Based-English
– Handwriting
– Technology • Cell Phones
• Computers
• iPad/iPod
• Computer Aided Real-Time Transcription (CART)
• Ubi-duo or similar device
Ubi-Duo in Healthcare http://www.youtube.com/watch?v=ZpNBB1ZYBtI
Ubi-duo
CART
iPad
Communication Options for People who are Deaf, Hard of Hearing, or Who Have Speech Impairments
• Sign Language for Emergency Situations DVD
• American Sign Language (ASL) pocket folder contains basic signs while the back presents signs geared for medical and disaster preparedness
• http://www.signingfamilies.com/
Emergency Communication Tool
http://disabilities.temple.edu/aacvocabulary/EMERGENCY.shtml
Communication Options for People who are Deaf, Hard of Hearing, or Who Have Speech Impairments
• Simple amplification system like the Pocket Talker can assist someone to hear better but it will amplify all sounds, including environmental noises.
Pocket Talker
Communication Options for People who are Deaf, Hard of Hearing, or Who Have Speech Impairments
• An FM system provides a transmitter and receiver. The person with the hearing loss uses the receiver to hear the amplified voice of the speaker. Only the speaker’s voice is amplified for the listener.
FM System
• Individuals with speech impairments may use simple devices to assist with speech including pictures or recorded devices
Communication Options for People who Have Speech Impairments
•Picture exchange book http://www.youtube.com/watch?v=ux1KIrz5rpY&fea
ture=related
Communication Options for People who Have
Speech Impairments
• Some individuals may use computer-based
devices that are high-tech and expensive, but allow for complex communication
Computer based communication device http://www.youtube.com/watch?v=2yujWBQsOw0&feature=related
Magnification Products for Individuals with Low Vision or Blindness
• Handheld and lighted magnification
Magnification Products for Individuals with Low Vision or Blindness
• Video Magnifiers
Magnification Products for Individuals with Low Vision or Blindness
• Alternative Keyboards and Voice Output devices
JAWS demo http://www.youtube.com/watch?v=IK97XMi
bEws&feature=related
QUIZ
True or False - and why?
1. If possible, one should sit down when speaking to a person in a wheelchair.
2. When talking to a person who is deaf and is accompanied by a sign language interpreter , speak directly to the interpreter.
3. The first thing you should do when meeting a person who is traveling with a service dog is kneel down and greet the dog.
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4. You should always have pen and paper available while working at a Disability Resource Center.
5. Asking a person who has a speech impairment to repeat themselves will only make it worse.
6. Only people who are legally blind may bring service animals into shelters.
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True or False – and why?
7. If you are unsure of how to help someone with a disability, asking them will only make you look stupid and be embarrassing for them. Use your best judgment.
8. It is okay to touch the shoulder of a person who is deaf in order to get their attention.
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True or False – and why?
9. When giving directions to someone in a wheelchair, pointing out where ramps, elevators, and accessible restrooms draws negative attention to their disability.
10.When guiding a person who is blind, take their hand in order to lead them to where they want to go.
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True or False – and why?
Harley Rider – Don’t Assume Anything!
http://www.youtube.com/watch?v=d8GzEbjPG-E
Fun 30 second commercial exemplifying why you shouldn’t assume anything about a person!
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Questions?
Thanks for
your
attention
and
participation!
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for More Information about People with Disabilities
*We can also refer to you similar programs across the state and across the country
Resources in the *Philadelphia Area
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Where can I find information about services/support
for customers and colleagues with disabilities?
– Institute on Disabilities at Temple University
– Pennsylvania’s Initiative on Assistive Technology
– Disability Rights Network of Pennsylvania
– Liberty Resources, The Philadelphia Center for
Independent Living
– Mid-Atlantic ADA Center
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Institute on Disabilities at Temple University
The Institute on Disabilities is dedicated to working
with people with disabilities and families
throughout Pennsylvania, to provide innovative
services and research, policy analysis and
insightful training on both the university and
community levels.
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Institute on Disabilities at Temple University
411 S Student Center
1755 N 13th Street Philadelphia, PA 19122
Voice/TTY: 215-204-1356 Fax: 215-204-6336
Email: [email protected]
Web: www.disabilities.temple.edu
66
Pennsylvania’s Initiative on Assistive Technology (PIAT)
Pennsylvania's Initiative on Assistive Technology (PIAT), a
program of the Institute on Disabilities at Temple University,
strives to enhance the lives of all Pennsylvanians with
disabilities, older Pennsylvanians, and their families, through
assistive technology devices and services, which allow for
choice, control and independence at home, work, school,
play, and in their neighborhoods. Key programs include
device demonstrations, device reuse, and device lending.
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Pennsylvania’s Initiative on Assistive Technology (PIAT)
411 S Student Center
1755 N 13th Street Philadelphia, PA 19122
Voice: 800-204-PIAT (7428); 215-204-5395
TTY: 866-268-0579; Fax: 215-204-9371
Email: [email protected]
Website: http://disabilities.temple.edu/piat
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Disability Rights Network of Pennsylvania (PA DRN)
The mission of the Disability Rights Network of
Pennsylvania is to advance, protect, and
advocate for the human, civil, and legal rights
of Pennsylvanians with disabilities.
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Disability Rights Network of Pennsylvania (PA DRN)
Philadelphia Office
The Philadelphia Building
1315 Walnut St., Suite 400
Philadelphia, PA 19107–4798 Voice: (215) 238-8070 TTY: (215) 789-2498
Fax: (215) 772-3126
Email: [email protected]; Website: http://drnpa.org/
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Liberty Resources – Center for Independent Living
Liberty Resources, Inc. is the Center for
Independent Living for the Philadelphia area,
which advocates for and works with Persons
with Disabilities to ensure their civil rights and
equal access to all aspects of life in our
community.
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Liberty Resources – Center for Independent Living
Philadelphia Office 714 Market Street, Suite 100 Philadelphia, PA 19106 Voice: 215-634-2000; 888-634-2155 TYY: 215-634-6630; Fax: 215-634-6628 Email: LRinc@libertyresources.οrg
Website: http://www.libertyresources.org/
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Mid-Atlantic ADA Center
The Mid-Atlantic ADA Center is one of 10 regional centers established to provide training, information, and technical assistance on the Americans with Disabilities Act (ADA) to businesses, consumers, schools, and state and local governments.
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Mid-Atlantic ADA Center
451 Hungerford Drive, Suite 700 Rockville, MD 20850
Voice/TTY: 800-949-4232; 301-217-0124 FAX: 301-217-0754
Website: http://www.adainfo.org
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