glrsn orientation may 14, 2009 angela bray hedworth, ms, rhed, ches, program manager/glrsn
TRANSCRIPT
GLRSN ORIENTATION
May 14, 2009
Angela Bray Hedworth, MS, RHEd, CHES, Program Manager/GLRSN
HISTORY
• HDSP Programs collaborated over 25 years.
• Initially funded in 2004, refunded in 2007.
• Current funding ends on June 30, 2010.
Initial meeting of the GLRSN in February, 2005.
GLRSN Meeting 2008
MISSION
• Reduce the burden of stroke and disparities within Great Lakes regional states by optimizing coordination and collaboration.
• Priorities:– EMS Notification and Response– Evaluation and Surveillance– Quality of Care
How We Carry Out Our Mission
• State Advisory Board• Work Groups
– EMS Notification & Response
– Evaluation/Surveillance– Quality of Care
• State Stroke Task Forces• Clinical Advisory Team• Policy and Procedure
Guide
GLRSN STRUCTUREIDPH
State Advisory Board
Work Groups
Evaluation/Surveillance
Quality of Care
EMS Notification & Response
State Stroke Task Forces
Illinois Stroke Task Force
Indiana Stroke Prevention Task Force
Michigan Stroke Initiative
Stanton Shanedling
Michael Gaines
Indiana Rep
Eileen Worden
Barbara Pryor
Fred Petillo
Dilip Pandey
Minnesota Stroke Partnership
Ohio Stroke Council
Wisconsin Stroke Committee
UIC/GLRSN Staff
Effective 07/01/08
Angela Hedworth
RECENT PROJECTS
Foster KeyStroke SystemLevel Changes
Make Vital Contributions toReducing the Burden of Stroke
Secure andLeverageRequired
Resources
Increase andDemonstrate the
Unique Valueof the Network
Expand NetworkEngagement and Increase
Support
Great Lakes Stroke NetworkStrategic Map: 2009-2011
PromotePublic/Provider
Education on Signs,Symptoms and 911
Facilitate Effortsto Improve
Quality of Care
Provide TechnicalAssistance to Improve EMS
Stroke Response
Expand andDiversify Network
Funding
Increase the Use ofExpertise Within
and Across Stroke Networks
Support Uniform Network Epidemiology and
Surveillance System
EnhanceCommunication within
the Network andwith Outside Partners
Build Primary Data Collection
Within the Network
IncreaseNumber of
Network Participantsand Partners
Engage KeyStakeholders and
Champions
Increase Task ForceEngagement in
Implementation ofStrategic Plan
FosterExpanded Use of
Telemedicine
Expand Range andTypes of Partner
Contributions
EducatePolicy Makers
Using Key Partners
Support andFacilitate
Effective StrokeRehabilitation
Develop theNetwork’s Brand
Improve SecondaryPrevention by
Integrating Across Chronic Diseases
The Burden of Stroke in the Great Lakes States
• Released in January
2006, updated 2008.
• 2007 Stroke Atlas
Quality of Care Calls
• Upcoming– Rural Stroke Systems
of Care, June 11, 2009
– Approaches to Dysphagia, August 13
– Maximizing Opportunities for tPA, October 8, 2009
– Stroke Care Neurosurgery, December 10, 2009
A SAMPLING OF SUCCESSES
• Received Heart Healthy Stroke Free Award in 2009
• Created regional stroke plan and 2 strategic maps
• Created a stroke rehabilitation regional inventory tool, collected data, creating report.
• Website (http://glrsn.uic.edu)• Monthly Wave• Inventory of state stroke data
sources• Partnered with NSA on
Regional Stroke Meeting in 2006 and 2008.
• Data Exchange 2007 & 2008.
• Promotional Brochure, FAQ sheet, other promotional materials.
• Burden Documents, Stroke Atlas & state stroke fact sheets
• Partnering with Professional Sports How to Guide
• Compilation of available Stroke Education Materials, Stroke Media campaigns, evidence based guidelines
• Quality of Care calls reaching over 3500 people.
• Over 440 people on listserv [email protected]
2008-2009 INITIATIVES
• Telemedicine Feasibility Study
• Partnership evaluation “Stories from the Field”
• Quality of Care Calls
• State Fact Sheets
• Stroke Rehabilitation Inventory
• Dysphagia workgroup
2009 – 2010 INITIATIVES• Continuing Quality of Care calls
– Collaborate with PCNASR
• Develop online registration system• Discharge Planning/Rehabilitation Project• Rural Health/Critical Access Hospital Initiative• Dysphagia Screening Project• Patient Education Project• ASLS Training for EMS• GIS Mapping Projects/Epidemiology Partnership• Disparity Analysis
WHAT CAN YOU DO?
• Write letter of support
• Respond to listserv questions
• Share success stories
• Complete evaluations
• Share resources, conferences, etc.
• Share pictures
• Promote GLRSN calls and materials
AWARD WINNER
• In 2009, the GLRSN was awarded the Heart Healthy Stroke Free award by the National Forum for Heart Disease and Stroke Prevention.
• State Contacts– Illinois - Michael Gaines, MPA– Indiana – TBD– Michigan – Rochelle Hurst, RN, MS– Minnesota – Stan Shanedling, PhD, MPH– Ohio – Barbara Pryor, MS, RD, LD– Wisconsin – Fred Petillo, MBA
• Program Contact– Angela Bray Hedworth, MS, CHES, RHEd Program Manager
Phone (312) 355-5423 or [email protected]. http://glrsn.uic.edu