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How to How to How to How to How to How to How to How to use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care Patama Gomutbutra MD. 3 rd Suandok Palliative care day 5/17/2012 Patama 1

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Page 1: In for Ma Tics Palliative

How to How to How to How to How to How to How to How to use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics

to advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative care

Patama Gomutbutra MD.

3rd Suandok Palliative care day

5/17/2012 Patama 1

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คณุเคยร ูส้ึกไหมว่า..

• อยากมฐีานขอ้มลูของทีม แตไ่มร่ ูจ้ะเริ�มอย่างไร

• อยากทาํ Routine to research แตไ่มร่ ูจ้ะนาํ

ขอ้มลูใดมาเปรียบเทียบขอ้มลูใดมาเปรียบเทียบ

• ไมร่ ูจ้ะหาขอ้มลูสถิตอิา้งอิง Palliative care

ของเมอืงไทยจากที�ไหน

• มปีระสบการณม์ากมายอยากแชรใ์หค้นอื�นรบัร ู ้

5/17/2012 Patama 2

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OutlineOutlineOutlineOutline

Informatics is Informatics is Informatics is Informatics is

translate data to information

It needsIt needsIt needsIt needsIt needsIt needsIt needsIt needs

Collaborative relationship

Exchangeable data

Accessible information

5/17/2012 Patama 3

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Informatics Informatics Informatics Informatics

ไมเ่ท่ากบั

Information technology (IT)Information technology (IT)Information technology (IT)Information technology (IT) Information technology (IT)Information technology (IT)Information technology (IT)Information technology (IT)

5/17/2012 Patama 4

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วิวฒันาการ

5/17/2012 Patama 5

Ape -> Agriculture -> Industrial -> Information -> Conceptual era

ภาพจาก http://www.educatethewholechild.org

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ภาษาสากล ในยคุ 2020202020202020

• OMG =

• LOL =

• TMB =

• TMI =

Oh my god

laugh out loud

tweet me back

Too much information• TMI =

• Gr8 =…

• OLADD =

5/17/2012 Patama 6

Too much information

Great…

Online induce attention deficit disorder

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Information technologyInformation technologyInformation technologyInformation technology

• Focus on hardware & software

• storing, accessing, and

exchanging bits and bytesexchanging bits and bytes

5/17/2012 Patama 7

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InformaticsInformaticsInformaticsInformatics

• Focus on people

• The use of computers to make sense of datato make sense of data

• Informatics คือ

การสกดั“ขอ้มลู” ใหเ้ป็น“สาระ” โดยใชค้อมพิวเตอร์

มาชว่ย

5/17/2012 Patama 8

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DDDD----IIII----KKKK----WWWW

• DataDataDataData ขอ้มลู

= Raw observations/ facts

• InformationInformationInformationInformation สาระ

= Translate data to answer question

“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"

• KnowledgeKnowledgeKnowledgeKnowledge ความร ู้

5/17/2012 Patama

• KnowledgeKnowledgeKnowledgeKnowledge ความร ู้

= Translate information to answer question“How”“How”“How”“How”

• WisdomWisdomWisdomWisdom ปัญญา

= Apply knowledge to predict future /Action in novel situation “What if”“What if”“What if”“What if”

9

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ตวัอยา่ง DDDD----IIII----KKKK----WWWW

• Data

– PPS 30%

• Information

Who have PPS 30%?

- Most of patient who have PPS 30% had

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- Most of patient who have PPS 30% had prognosic weeks-month

• Knowledge, Wisdom

� Explicit / codifiablee.g. guideline - Suandok palliative care model

� Tacit / not codifiablee.g. expertise , clinical training

10

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Informatics: Informatics: Informatics: Informatics:

ResearchResearchResearchResearchKM KM KM KM : : : :

EducationEducationEducationEducation

Global PersonalOrganization

The Continuum of Understanding: itee.uq.edu.au

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Purpose of Informatics Purpose of Informatics Purpose of Informatics Purpose of Informatics

• ตพีิมพเ์ผยแพร่ -> Research

• เผยแพร่สือสาธารณะ -> Public awareness

• ไวใ้ชเ้อง -> Quality improvement &

Demonstrating cost effectiveness of Demonstrating cost effectiveness of

service

5/17/2012 Patama 12

Kamal AH. et al. The Value of Data Collection within a Palliative Care

Program. Curr Oncol Rep (2011) 13:308–315

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Informatics needInformatics needInformatics needInformatics need

• Collaboration: Common mission -“question”

• Exchangeable (Interoperability): Common definition and code: Common definition and codeof collected data

• Accessible (Translatability): provide right conclusion to right person in right time

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CollaborationCollaborationCollaborationCollaboration

CompetitionCompetitionCompetitionCompetition

5/17/2012 Patama 14

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How the team leader doHow the team leader doHow the team leader doHow the team leader do

• สื�อสารเชงิบวก

• เผยแพร่ “มทุิตาจิต” ตอ่คนในเครือขา่ย

• ไมว่่าผลเป็นอย่างไร ก็ยงัเป็นบวก• ไมว่่าผลเป็นอย่างไร ก็ยงัเป็นบวก

เราไดเ้รียนร ู.้..

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ยินดปีรีดา โดดเดน่ เจิดจรสั

สดุยอด

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โดยเฉลีย มคีําบวก

แทรกอยู ่ทกุๆ 4-5 คาํ

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Social media is an Social media is an Social media is an Social media is an environmentenvironmentenvironmentenvironment not a technology.not a technology.not a technology.not a technology.

…its real and unique value comes from mass its real and unique value comes from mass its real and unique value comes from mass its real and unique value comes from mass collaborationcollaborationcollaborationcollaboration

Anthony Bradley

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ExchangeableExchangeableExchangeableExchangeable ExchangeableExchangeableExchangeableExchangeable

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International report quality of death International report quality of death International report quality of death International report quality of death : : : : ขอ้มลูของประเทศไทย...ว่างเปลา่

5/17/2012 Patama 19www.eiu.com/sponsor/lienfoundation/qualityofdeath

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ฐานขอ้มลู Palliative care Palliative care Palliative care Palliative care กลางของออสเตรเลีย

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5 5 5 5 data domains data domains data domains data domains DomainsDomainsDomainsDomains ExampleExampleExampleExample data fielddata fielddata fielddata field

Patients and care giver Demographic data (eg. Age sex)

* Performance status

Co-morbidity

Time from referal to death

Income

identifiable care giver ?identifiable care giver ?

Professional Clinician were specialized training in palliative

care?

Service Tirtiary care/consulting team

or primary team

Health and social policy Universal coverage/ social security

Outcome measures validated index for palliative population

5/17/2012 Patama 21

Currow D. et al. A Framework for generalizability in Palliative care.

J of Pain Symptom manage. 2009;37:373-86

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CSV : CommaCSV : CommaCSV : CommaCSV : Comma----Separated ValueSeparated ValueSeparated ValueSeparated Value

• Yes

- MS ExcelMS Access

- SQL , ORACLE- SQL , ORACLE- SPSS, STATA

• No

- MS Word - แฟ้มกระดาษ

5/17/2012 Patama 23

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แบบอยา่งทีน่าชืนชม

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เก็บขอ้มลูในระบบ เริ�มไดท้ี�ตวัเรา

FISH_PALFISH_PALFISH_PALFISH_PAL

• MS Access -> SQL ในอนาคต

• Intervention:

home visiting & related procedure

5/17/2012 Patama 25

home visiting & related procedure

(medications, PEG, suction )

• Outcome: Hospital admission /ER visit

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Exchangeable, ReplicableExchangeable, ReplicableExchangeable, ReplicableExchangeable, Replicable

บา๊ย

บาย

5/17/2012 Patama 26

บาย

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Relational databaseRelational databaseRelational databaseRelational database

5/17/2012 Patama 27

ขอ้มลูและรปูภาพทั�งหมดที�นาํมาประกอบสไลด ์ไมใ่ชข่องผูป้่วยจริง

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คําถามทียงัไมม่ีคําตอบ????????

Prognosis กบั PPS ในคนไทย - แตล่ะโรค

5/17/2012 Patama 28

ขอ้มลู จาก Victoria hospice registry 13 ปี 6666,,,,066066066066 palliative patients : 85% Cancer

Lau, Downing . J Pain Symptom Manage 2009;38:134-144

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Effectiveness analysisEffectiveness analysisEffectiveness analysisEffectiveness analysis

• Multivariable analysisMultivariable analysisMultivariable analysisMultivariable analysis : not many confounding factors

• Propensity score Propensity score Propensity score Propensity score : Many confounding factors

Instrument variable Instrument variable Instrument variable Instrument variable : • Instrument variable Instrument variable Instrument variable Instrument variable : “Pseudo randomized” unmeasurable confounding factors

( รายละเอียดในเอกสารประกอบค่ะ)

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AccessibleAccessibleAccessibleAccessible AccessibleAccessibleAccessibleAccessible

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ประเทศไทยติดอนัดบั 1 1 1 1 ใน 10 10 10 10 คน้หาคําว่า

“Palliative care”“Palliative care”“Palliative care”“Palliative care”

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อเมรกิาประชาชนร ูจ้กัคําว่า

“Palliative care”“Palliative care”“Palliative care”“Palliative care” ดีแค่ 8888%%%% แลว้บา้นเรา..????

Source: Public Opinion Strategies national survey of 800

adults age 18+ conducted June 5‐8, 2011 (USA)

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Updated and reliable palliative evidence Updated and reliable palliative evidence Updated and reliable palliative evidence Updated and reliable palliative evidence http://www.caresearch.com.auhttp://www.caresearch.com.auhttp://www.caresearch.com.auhttp://www.caresearch.com.au

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CMS: Content management systemCMS: Content management systemCMS: Content management systemCMS: Content management system

• “เว็บกึ�งสาํเร็จรปู” ไมต่อ้งเขยีน code

• ควบคมุ “Frontend” จาก “Backend”

• Login เขา้ไปแกไ้ขไดท้กุที� ทกุเวลา• Login เขา้ไปแกไ้ขไดท้กุที� ทกุเวลา

• เรียนร ูเ้องไดไ้มย่าก

5/17/2012 Patama 39

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ไทยทาํไทยใช ้

http://www.joomla.org

http://portal.in.th

http://th.wordpress.org

5/17/2012 Patama 40ภาพจาก http://shoutex.com/

http://www.joomla.org

http://drupal.org

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ตวัอยา่งเวบ portal.in.th : MSportal.in.th : MSportal.in.th : MSportal.in.th : MS----PCAREPCAREPCAREPCARE

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ตวัอยา่งเวบ wordpresswordpresswordpresswordpress : APHN: APHN: APHN: APHN

5/17/2012 Patama 42

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ตวัอยา่งเวบ drupaldrupaldrupaldrupal :::: DeathwithdignityDeathwithdignityDeathwithdignityDeathwithdignity

High traffic !?

5/17/2012 Patama 43

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ตวัอยา่งเวบ

joomlajoomlajoomlajoomla! : ! : ! : ! : SUANDOKPAL !SUANDOKPAL !SUANDOKPAL !SUANDOKPAL !เรากาํลงัรอ “Link” กบัคณุอยู่

5/17/2012 Patama 44

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เรากาํลงัรอ “List” “List” “List” “List” คนเกง่ๆ อยา่งคณุอย ู่

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เรากาํลงัรอ “like” “like” “like” “like” จากคณุอย ู่

5/17/2012 Patama 46

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ยอ้นกลบัมาคําถามเดิม..

• อยากมฐีานขอ้มลูของทีม แตไ่มร่ ูจ้ะเริ�มอย่างไร

• อยากทาํ Routine to research แตไ่มร่ ูจ้ะนาํ

ขอ้มลูใดมาเปรียบเทียบขอ้มลูใดมาเปรียบเทียบ

• ไมร่ ูจ้ะหาขอ้มลูสถิตอิา้งอิง Palliative care

ของเมอืงไทยจากที�ไหน

• มปีระสบการณม์ากมายอยากแชรใ์หค้นอื�นรบัร ู ้

5/17/2012 Patama 47

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สรปุสีสิงทีท่านทําไดใ้นสปัดาหน์ี�

1. ใชอ้ีเมล หรือ facebook สรา้ง

collaboration ดว้ยคาํชืนชม ขอบคณุ ยินด ี

2. เก็บสะสมขอ้มลูไวใ้นรปูแบบไฟล ์CSV

(Excel, Access, web survey etc.) (Excel, Access, web survey etc.)

3. เริมตน้เขยีนบล็อก และใส ่tag/keywords หรือ

สรา้ง website ของทีม

4. สมคัรเป็นสมาชกิของครอบครวั

“suandok palliative care”

5/17/2012 Patama 48

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เอกสารอ่านเพิมเติม ((((EbookEbookEbookEbook))))

5/17/2012 Patama 49http://issuu.com/gpatama/docs/addon_informatics_and_palliative_care

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ขอบคณุคะ่

Email: [email protected]

Blog :www.gotoknow.org/blogs/books/users/gpatama

WebsiteWebsitewww.med.cmu.ac.th/dept/family/2012/index.php/en/suandokpal

Full version at slidesharewww.slideshare.net/PatamaGomutbutra/informaticspalliative

5/17/2012 Patama 50

Special thanks : ผศ.นพ.อนชุาต ิมาธนสารวฒุิ