it’s about how you live a national campaign to improve care at the end of life
TRANSCRIPT
It’s About How You LIVE
A National Campaign to Improve Care at the End of Life
Ideally…Wouldn’t it be great if
• Community organizations and health care providers were working together to improve end-of-life care (EOLC)
• People were aware of EOLC issues and knew where to find resources before a crisis
• Hospices, palliative care organizations, coalitions and others had resources to conduct community outreach initiatives
IT IS HAPPENING!
Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.
Margaret Mead
Wake Up Call!
Teachable moment like never before!– Terri Schiavo– Pope
If not us, who? – Bioethicists?– Religious leaders?– Activists?– Journalists?– Academics?– Acute care
physicians?– Lawyers
• Sponsored by the National Hospice and Palliative Care Organization (NHPCO)
• Focused on improving access to quality end-of-life care
• Provides a unified message across the country to empower consumers to take action
• Funded by the Robert Wood Johnson Foundation
Support for Caring Connections was provided by a grant from The Robert Wood Johnson Foundation, Princeton, New Jersey.
It’s About How You LIVE
LIVE Message
•Learn about your options
•Implement plans to ensure your wishes are honored
•Voice your decisions
•Engage others
Not aware of end-of-life options
Willing to share what you’ve learned
Learn about your options
Implement a plan
Voice your decisions
Engage others
The LIVE Continuum
A National Campaign
• A series of coordinated actions• Standard messages• Flexible resources that can be
adapted• Implemented to focus on the unique
needs of the community
One Voice• Consumers can hear one message
promoting awareness and action
• People demanding improvements in and earlier access to quality end-of-life care
Campaign Benefits
• Complements existing outreach and marketing materials
• Supplements educational programs• What is hospice?• Advance care planning• Pain• Supporting caregivers
LIVE Campaign Goals
• Stimulate dialogue in communities about the need for improved end-of-life care.
• Provide information to consumers about how to access end-of-life care resources
• Encourage action to improve end-of-life care
Campaign Toolkit Outline
• Delivered in a toolkit format - FREE – CD-ROM– Online (www.LIVEpartners.org)
• Includes practical strategies, tools and resources
• Has flexible components to modify and add information about local initiatives
Toolkit Resources• PowerPoint presentation • Consumer resources • Funding ideas – plus a donor solicitation
letter• Event planning guide• Marketing materials – Advertising, PSAs
and flyer/poster templates• Press kit – Press release, Op. Ed• Evaluation tools….and more
LIVE Partners
LIVE Partner Benefits
• E-updates as new resources are developed
• LIVE Rewards program recognizing excellence
• Free Gift Cards for NHPCO’s Consumer Marketplace product line
• Free audio conferences on outreach and engagement
• HelpLine - 800.658.8898
• Web site – www.caringinfo.org• Consumer education materials
and advance directives
NHPCO Consumer Resources
Why Should We Join LIVE?
• Receive FREE community outreach and education resources
• Participate in free trainings about the LIVE campaign, outreach and engagement
• Be part of a unified message – with your local spin
• It’s FREE!
You Can Help!
• Let others know about the campaign at every opportunity
• Connect members to campaign and resources available at www.endoflifecoalitions.org
• Refer consumers to NHPCO’s HelpLine and/or www.caringinfo.org
Live so you don’t regret the things you have done or wish
that you had acted differently. Live life honestly
and fully. Live.Elisabeth Kübler Ross
It’s About How You LIVE