k. charlie lakin - aucd home · k. charlie lakin group for the national evaluation of the social...

K. Charlie Lakin

University of Minnesota 214 Pattee Hall, 150 Pillsbury Drive SE

Minneapolis, MN 55455 tel: (612) 624-5005 fax: (612) 625-6619

e-mail: [email protected]

Curriculum Vita May 2007

Education Ph.D., Educational Psychology, University of Minnesota, 1981 M.A., M.Ed., Special Education, Teachers College, Columbia University, 1975 B.A., Sociology, University of Northern Iowa, 1970

Professional Experiences Employment

1989-present Director, Rehabilitation Research and Training Center on Community Living/Institute on Community Integration; Associate Director for Research and Dissemination, Institute on Community Integration, University of Minnesota

1979-present Research Specialist, Scientist, Research Associate, and Senior Research Associate, Research and Training

Center on Community Living and Institute on Community Integration, University of Minnesota 1976-1979 Research Assistant, Developmental Disabilities Project on Residential Services and Community

Adjustment, Department of Educational Psychology, University of Minnesota 1972-1976 Special education teacher, New York, New York and Navajo Education Project, Tuba City, Arizona

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American Association on Intellectual and Developmental Disabilities; The Arc; TASH (Association for Persons with Severe Handicaps); Council for Exceptional Children; and Minnesota Foster Parents Association

1993-2006 Consultant , Advisory and Leadership Roles

Agency for Health Care Research and Quality (AHRQ; DHHS), a) member, Advisory Committee on Long-Term Care and Institutional Health Services Research; b) member and substantive reviewer, HCBS Measure Scan Project

American Association on Intellectual and Developmental Disabilities, member, Publications Committee

American Association of University Affiliated Programs, advisor, long-term care reform and future goals and activities of University Affiliated Programs.

American Journal on Mental Retardation (AJMR), Consulting Editor.

ANCOR Foundation, member, Board of Trustees

Arc of Hennepin County-Hennepin County (MN), member, Board of Directors.

Arc-Minnesota, member and Secretary, Board of Directors.

TheArc of Washington State, expert witness, Arc of Washington State et al. V Quasim et al., U.S. District Court, Washington.

The Arc of the United States, a) member, Board of Directors, b) Chair, Research Committee; c) Chair, Positions Statements Committee.

K. Charlie Lakin

Assistant Secretary for Planning and Evaluation, Office of (ASPE), U.S. Department of Health and Human Services, a) consultant, data analysis related to long-term care eligibility, service utilization and cost estimation; b) consultant/author, Report to Congress on the direct support workforce for persons with developmental disabilities.

Camphill Association of North America, member, Board of Trustees

CARF...The Rehabilitation Accreditation Commission, member, National Advisory Committee on Service Outcomes; member, National Advisory Committee on Residential Services.

Centers for Disease Control/National Council on Disability, (a) member, Working Group on Disabilities Prevention; (b) consultant, intramural research on services received by persons with cerebral palsy; (c) member, North American Working Group on revisions to the World Health Organization’s International Classification of Impairment, Disability and Handicap; (d) member, advisory group on disability and long-term care for Healthy People 2010 National Objectives.

Centers for Medicare and Medicaid Services (USDHHS), consultant/reviewer, (a) state applications for Medicaid Section 1115 demonstration waivers, (b) applications for date certain demonstrations of moving non-elderly disabled persons from institutional to community placements, (c) consultant, performance measures in Medicaid HCBS waiver services, (d) consultant, ICF-MR eligibility and active treatment.

Center for Outcome Analysis/Robert Wood Johnson Foundation, member, Technical Advisory Committee for the Evaluation of the National Self-Determination Projects Initiative.

Center for Public Representation, expert witness and advisor, Roland et al. v. Cellucci et al.

Centers for Medicare and Medicaid Services (USDHHS), member, advisory committee on performance measures for HCBS

Colorado Association of Community Center Boards, expert witness and advisor, Mandy R. et al. V. Owens et al.

Consumer Directed Services Network (California), member, Board of Directors

Council on Quality and Leadership in Supports for Persons with Disabilities (formerly the Accreditation Commission on Services for Persons with Disabilities), member, Technical Advisory Committee, National Center for Analysis of Trends and Outcomes.

The Futures Group, consultant, Scenario-Based Strategic Planning Process for Developmental Disabilities Services in the State of Ohio.

Health Economics Research, Cambridge, MA, consultant, Evaluation for the Office of the Assistant Secretary for Planning and Evaluation (USDHHS) of the Oregon Health Care Plan.

Hennepin County (MN) Adult Services, member, Case Management Redesign Working Group.

Human Services Research and Development Center, member, Board of Directors.

Human Services Research Institute, Cambridge, MA, consultant, Evaluation of standards for Intermediate Care Facilities for Persons with Mental Retardation (ICF-MR).

Interact Center for Visual and Performing Arts, member (founding), Board of Directors; member, Program Advisory Committee

Japanese Ministry of Health and Welfare, consultant, community services development and related programs of research and evaluation.

Journal of the Association for Persons with Severe Handicaps (JASH), Board of Editors.

Journal of Intellectual and Developmental Disability, a) Editorial consultant, b) Guest editor, December 2000 and March 2001.

Journal of Social Science and Disability, member, Editorial Board.

Joseph P. Kennedy Jr. Foundation, a) member, Scientific and Program Advisory Committee, b) consultant/reviewer, projects on subsidized housing.

The Lewin Group/Berkeley Planning Associates, member, Advisory Committee for National Study of Persons with Disabilities in Competitive Employment.

Mathematica Policy Research, (a) consultant, HCFA Master contract for short-term policy evaluation; (b) consultant, Evaluation of TennCare managed care coverage of persons with disabilities; (c) member, Technical Working

K. Charlie Lakin

Group for the National Evaluation of the Social Security Administration’s Youth Transition Demonstration program.

MEDSTAT Group, (a) consultant, short-term policy analyses conducted under task orders from the Office of the Assistant Secretary for Planning and Evaluation (DHHS); (b) member, Technical Advisory Committee, Guidelines for Medicaid Home and Community Based Services Review and Development of Performance Measures; (c) consultant, “Olmstead Tool Kit” development; (d) (with Agency for Healthcare Research and Quality), member and substantive reviewer, National Advisory Committee for the Congressionally-mandated project to develop of outcome measures for Medicaid Home and Community-Based Services.

Mental Retardation, Associate Editor.

Minnesota Department of Administration, member, Advisory Group of the Minnesota Legislature’s Mandated Study of the Costs of Services for Persons with Mental Retardation and Related Conditions.

Minnesota Department of Human Services, (a) member, Advisory Committee on Alternative Client-Centered Reimbursement Systems; (b) member, Expert Panel on Coordinated Care Options for Persons with Developmental Disabilities; member, (c) Advisory Group for Revising the State Medicaid Home and Community Based Services Program, (d) member, Advisory Committee on Medicaid Waiver Allocation Structure, (e) member, Advisory Committee for the Core Indicators Project.

Montana Advocacy Program, expert witness and advisor, Travis D. et al. V. State of Montana.

Mt. Olivet Rolling Acres, member, Board of Directors.

National Center on Health Statistics, Illness and Disability Statistics Branch, consultant, 1994-1995 Disability Supplement to the National Health Interview Survey.

National Institute of Disability and Rehabilitation Research, (a) member, review panels for field initiated research, technology and cognitive disability, and post-doctoral research training programs; (b) chair, Working Group on Health and Disability Statistics, National Invitational Conference on Developmental Disabilities Data (cosponsored by the Administration on Developmental Disabilities); editor and primary author, background paper on mental retardation for NIDRR long-range planning process.

Office of Global Health Affairs, U.S. Department of Health and Human Services, respondent for U.S., World Health Organization’s Atlas-Country Resources on Intellectual Disability

Office of Technology Assessment, U. S. Congress, consultant, data analyses of alternative eligibility definitions, member, Study Group on Disability Definitions and Determination.

Partners in Community Services (PICS), a coalition of community non-profit organizations for under taking joint initiatives, member, policy and program advisory group.

President’s Committee on Mental Retardation, (a) consultant, long-term care services, (b) member, Planning Committee, 1994 Presidential Forum: The President’s Reform Agenda and Persons with Mental Retardation, (c) chair, Working Group on Housing for Persons with Mental Retardation; (d) member, Planning Committee for National Collaborative Academy on Mental Retardation; (e) member, President’s Committee on Mental Retardation.

Public Interest Law Center of Philadelphia, advisor and expert witness, Sanchez et al. v. Johnson et al.

Research Triangle Institute, member, Technical Advisory Group, National Study of Board and Care Regulations and Quality of Care.

Samuel Gridley Howe Library, Waltham, MA, member, National Board of Advisors.

Special Olympics, Inc., member, Advisory Committee, Evaluation of Unified Sports.

Syracuse University, Center on Human Policy, (a) member, Advisory Committee, Rehabilitation and Training Center on Community Integration; (b) member, Advisory Committee for the Community Participation Series (published by Brookes Publishing Company).

TN-START (a Tennessee regional behavioral health and crisis support demonstration program for persons with developmental disabilities), member, external advisory committee.

University of California Medical Center, Institute for Health and Aging, (a) member, Advisory Committee, Research and Training Center on Disability Statistics, (b) consultant, Robert Wood Johnson Foundation Project on Community Level Social Indicators.

K. Charlie Lakin

University of Delaware, Center on Disability Studies, faculty, National Leadership Institute (co-sponsored by the ANCOR Foundation, National Association of State Directors of Developmental Disabilities Services, Association of University Centers on Disability, American Association on Intellectual and Developmental Disabilities, and the Council on Quality and Leadership)

University of Minnesota, Office of Students with Disabilities (a) member, Advisory Committee Career Connections; (b) member, Advisory Committee, Project LEEDS (Leadership Education to Empower Disabled Students); (c) University of Minnesota Senate, member, Disabilities Issues Committee; (d) member, Advisory Committee, Access to Work.

University of Wisconsin, Center on Long-Term Care, member, Technical Advisory Group, Development and validation of performance measures for Medicaid services rendered to persons with developmental disabilities.

Westat, Inc., consultant, Feasibility studies of the 1996 National Medical Expenditure Survey (NMES III).

Wilderness Inquiry, member, Board of Directors.

World Institute on Disability, member, Program Advisory Group for the Research and Training Center on Personal Assistance Services.

Publications

Books, Monographs and Published Reports

Amado, A.N., Lakin, K.C., & Menke, J.M. (1990). 1990 Chartbook on services for persons with developmental disabilities. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Anderson, L., Hayden, M., Kim, S., Lakin, K.C., Polister, B., & Prouty, R. (1999). Policies and resources related to waiting lists of persons with mental retardation and related developmental disabilities. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Anderson, D., Lakin, K.C., Bruininks, R.H., & Hill, B.K. (1987). A national study of residential and support services for elderly persons with mental retardation. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living.

Bents, R., Lakin, K.C., & Reynolds, M.C. (1982). Class management. Washington, DC: American Association of Colleges for Teacher Education.

Blake, E., Prouty, R., Lakin, K.C., & Mangan, T. (1993). Reinventing quality: A sourcebook of innovative programs for quality assurance and service improvement. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Blake, E., Prouty, R., & Lakin, K.C., & Mangan, T. (1995). Reinventing quality: Improving community services for persons with mental retardation and related conditions (2nd ed.). Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Bruininks, R.H., & Lakin, K.C. (Eds.). (1985). Living and learning in the least restrictive alternative. Baltimore: Paul H. Brookes.

Bruininks, R.H., Lakin, K.C., Hill, B.K., & White, C.C. (1985). Residential services for adults with developmental disabilities. Logan: Utah State University, Developmental Center for Handicapped Persons.

Bruininks, R.H., Meyers, C.E., Sigford, B.B., & Lakin, K.C. (Eds.). (1981). Deinstitutionalization and community adjustment of mentally retarded people. Washington, DC: American Association on Mental Retardation.

Burwell. B.O., Lakin, K.C., & Scanlon, W.J. (1992). The financing of 24-hour residential care for the elderly, disabled and persons with mental retardation. Lexington, MA: SysteMetrics (for the Agency for Health Care Policy Research/DHHS).

Fields, T., Lakin, K.C., & Seltzer, B. (1996). A guidebook on consumer controlled housing. Minneapolis: Arc-Minnesota/University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

K. Charlie Lakin

Fields, T., Lakin, K.C., et al. (2000). A guidebook to consumer controlled housing for Minnesotans with developmental disabilities (rev. ed.). St. Paul: Firststar Bank Corporation (Distributed by Arc Minnesota and Research and Training Center on Community Living/Institute on Community Integration, University of Minnesota).

Greenberg, J.N., Schmitz, M., & Lakin, K.C. (1983). An analysis of state responses to the home and community-based waivers program (section 2176). Washington, DC: National Governors Association, 1983.

Hanson, R., Wieseler, N.A., & Lakin, K.C. (Eds.) (2002). Crisis: Prevention and response in the community. Washington, DC: American Association on Mental Retardation.

Hauber, F.A., Bruininks, R.H., Hill, B.K., Lakin, K.C., & White, C.C. (1984). National census of residential facilities: Fiscal Year 1982. Minneapolis: University of Minnesota, Research and Training Center on Community Living.

Hayden, M. Lakin, K.C., Smith, J. (2002). We Watch the City: Stories in the shadow of September 11. (Experiences of New Yorkers with intellectual and other developmental disabilities and those who support them in the aftermath of September 11, 2002) Minneapolis: University of Minnesota, Research and Training Center on Community Living/ICI.

Hewitt, A., Larson, S., & Lakin, K.C. (1994). Guide to high quality direct service personnel training resources. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Hewitt, A., Larson, S., & Lakin, K.C. (1997). Guide to high quality direct service personnel training resources (Second edition). Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Hewitt, A., Larson, S.A., & Lakin, K.C. (2000). An independent evaluation of the quality of services and system performance of Minnesota’s Medicaid Home and Community-Based Services for persons with mental retardation and related conditions. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Hill, B.K., Lakin, K.C., Bruininks, R.H., Amado, A.N., Anderson, D.J., & Copher, J.I. (1989). Living in the community: A study of foster homes and small group homes for people with mental retardation. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Hill, B.K., Lakin, K.C., Novak, A.R., & White, C.C. (1987). Foster care for children for children with handicaps. University of Minnesota, Research and Training Center on Community Living/Institute on community Integration.

Hill, B.K., Lakin, K.C., Sigford, B.B., Hauber, F.A., & Bruininks, R.H. (1982). Programs and services for mentally retarded people in residential facilities. Minneapolis: University of Minnesota, Center for Residential Services and Community Living/Institute on Community Integration.

Jaskulski, T., Lakin, K.C., & Zierman, S.A. (1995). The journey to inclusion. Washington, DC: President’s Committee on Mental Retardation.

Lakin, K.C. (1979). Demographic studies of residential facilities for mentally retarded people: An historical review of methodologies and findings. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Lakin, K.C. (1997). Keep the promise: Managed care and people with disabilities. A way for all stakeholders to work together for a state or local system that all can buy into. Annandale, VA: American Network of Community Options and Resources.

Lakin, K.C., Blake, E.M., Prouty, R.W., & Mangan, T. (1993). Residential services for persons with mental retardation and related conditions: Status and trends through 1991. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Lakin, K.C., & Bruininks, R.H. (1985). Strategies for community integration of developmentally disabled citizens. Baltimore, MD: Paul H. Brookes.

Lakin, K.C., Doljanac, R. Stancliffe, R. , Byun, S., Taub, S., & Chiri, G. (2006). Medicaid Home and Community-Based Services for persons with intellectual and developmental disabilities: Background and findings from consumer interviews and the Medicaid Statistical Information Systems. Minneapolis: University of Minnesota, Research and Training Center on Community Living. Lakin, K.C., & Bruininks, R.H. (1981). Occupational stability of direct-care staff of residential facilities for mentally

retarded people. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

K. Charlie Lakin

Lakin, K.C., Bruininks, R.H., Doth, D., Hill, B.K., & Hauber, F.A. (1982). Sourcebook on long-term care for developmentally disabled people. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Lakin, K.C., Burwell, B.O., Hayden, M.F., & Jackson, M.E. (1992). An independent assessment of Minnesota’s Medicaid Home and Community-Based Services waiver program. Minneapolis: University of Minnesota, Center on Residential Services and Community Living.

Lakin, K.C., Hayden, M.F., & Burwell, B.O. (1996). An evaluation of the implementation of the Medicaid Community Supported Living Arrangements (CSLA) program. Cambridge, MA: MEDSTAT.

Lakin, K.C., Hill, B.K., & Bruininks, R.H. (Eds.). (1985). An analysis of Medicaid’s Intermediate Care for the Mentally Retarded (ICF-MR) Program. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Lakin, K.C., Hill, B.K., Chen, T.H., & Stephens, S.A. (1989). Persons with mental retardation and related conditions in mental retardation facilities: Selected findings from the 1987 National Medical Expenditure Survey. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Lakin, K.C., Hill, B.K., Street, H., & Bruininks, R.H. (1986). Persons with mental retardation in state-operated residential facilities: Years ending June 30, 1984 and 1985 with longitudinal trends from 1950-1985. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Lakin, K.C., Hill, B.K., White, C.C., & Wright, E.A. (1987). Longitudinal change and interstate variability in residential services for persons with mental retardation. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Lakin, K.C., Hill, B.K., White, C.C., & Wright, E.A. (1987). Medicaid’s Intermediate Care Facility for the Mentally Retarded (ICF-MR) program: An update. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Lakin, K.C., Jaskulski, T.M., Hill, B.K., Bruininks, R.H., Menke, J.M., White, C.C., & Wright, E.A. (1989). Medicaid services for persons with mental retardation and related conditions. Minneapolis: University of Minnesota, Research and Training Center on Community Living.

Lakin, K.C., Prouty, R.W., White, C.C., Bruininks, R.H., & Hill, B.K. (1990). Intermediate Care Facilities for Persons with Mental Retardation (ICFs-MR): Program utilization and resident characteristics. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Lakin, K.C., & Rudolph, C. (1995). A design for a statewide behavioral support and crisis response system for persons with developmental disabilities. Minneapolis: Research and Training Center on Community Living/Institute on Community Integration.

Lakin, K.C., Stephens, S.A., Hill, B.K., & Chen, T.H. (1990). Programs of instruction for handicapped children and youth in day and residential facilities: Current status and changes in separate facilities for students with handicaps. Princeton, NJ: Mathematica Policy Research.

Lakin, K.C., & Turnbull, A. (Eds.) (2005). National goals and research for persons with intellectual and developmental disabilities. Washington, DC: American Association on Mental Retardation

Lakin, K.C., White, C.C., Prouty, R.W., Bruininks, R.H., & Kimm, C. (1991). Medicaid institutional (ICF-MR) and home and community based services for persons with mental retardation and related conditions. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Larson, S. & Lakin, K.C. (1995). Current and changing patterns on the utilization of Intermediate Care Facilities for Persons with Mental Retardation (ICFs-MR): Analysis from the Online Survey Certification and Reporting System. Minneapolis: Research and Training Center on Community Living/Institute on Community Integration.

Larson, S.A., & Lakin, K.C. (1997). A longitudinal study of turnover among newly hired direct support workers in small community homes serving people with developmental disabilities. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on community Integration.

Larson, S.A., Lakin, K.C., & Bruininks, R.H. (1998). Staff recruitment and retention: Study results and intervention strategies. Washington, DC; American Association on Mental Retardation.

K. Charlie Lakin

Mangan, T., Blake, E.M., Prouty, R.W., & Lakin, K.C. (1994). Residential services for persons with mental retardation and related conditions: Status and trends through 1992. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Mangan, T., & Lakin, K.C. (1994). Summary of national and state databases on residential services for persons with developmental disabilities. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Minnesota Quality Assurance Panel (2007, January). Quality Assurance 2007: Findings and Recommendations of the Legislatively-Mandated Quality Assurance Panel - Final Report. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living. (drafted by Larson & Lakin)

Polister, B., Blake, E., Prouty, R.W., & Lakin, K.C. (1998). Reinventing quality: 1998 sourcebook of innovative programs for the quality assurance and quality improvement of community services. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Prouty, R.W. & Lakin, K.C., (Eds.). (1995). Residential services for persons with developmental disabilities: Status and trends through 1994. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Prouty, R.W. & Lakin, K.C. (Eds.). (1996). Residential services for persons with developmental disabilities: Status and trends through 1995. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Prouty, R.W., & Lakin, K.C. (Eds.) (1997). Residential services for persons with developmental disabilities: Status and trends through 1996. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.


Prouty, R.W., Smith, G., & Lakin, K.C. (Eds.) (2003). Residential services for persons with developmental disabilities: Status and trends through 2002. Minneapolis: University of Minnesota, Research and Training Center on Community Integration.

Prouty, R.W., Smith, G., & Lakin, K.C. (2004). Residential services for persons with developmental disabilities: Status and trends through 2003. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.






Prouty, R.W., Smith, G.A., & Lakin, K.C. (Eds.) (2001). Residential services for persons with developmental disabilities: Status and trends through 2000. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

K. Charlie Lakin

Prouty, R.W. & Lakin, K.C. (1991). A summary of state efforts to positively affect the quality of Medicaid Home and Community-Based Services for persons with mental retardation and related conditions. Minneapolis: University of Minnesota, Center for Residential Services and Community Living.

Rudolph, C. & Lakin, K.C. (1995). Report to the Minnesota Legislature: Final Evaluation of the Mt. Olivet Rolling Acres Special Services Program. St. Paul: Minnesota Department of Human Services.

Stancliffe, R., Emerson, E., & Lakin, K.C. (Eds.) (2000). Community living services for persons with intellectual and developmental disabilities [Special issue]. Journal of Intellectual and Developmental Disability, 101 (1).

Stancliffe, R., Emerson, E., & Lakin, K.C. (Eds.) (2001). Contemporary outcomes and issues in deinstitutionalization of persons with intellectual and developmental disabilities [Special issue]. Journal of Intellectual and Developmental Disability, 101 (2).

Stancliffe, R., & Lakin, K.C. (1996). Report to the Minnesota Legislature: Cost-effectiveness of different models of community support for persons with developmental disabilities leaving Minnesota’s Regional Treatment Centers. St. Paul: Minnesota Department of Human Services.

Stancliffe, R., & Lakin, K.C. (Eds.) (2005). Costs and outcomes of community services for people with intellectual disabilities. Baltimore: Paul H. Brookes.

Stephens, S.A., Lakin, K.C., Brauen, M., & O’Reilly, F. (1990). A national study of programs of instruction for handicapped children and youth in day and residential facilities. Princeton, NJ: Mathematica Policy Research (abridged as Chapter 3: “Separate day and residential facilities serving children and youth with disabilities.” In Office of Special Education and Rehabilitation Services, Thirteen annual report to Congress on the implementation of the Individuals with Disabilities Education Act (pp. 87-132). Washington, DC: U.S. Department of Education).

Tymchuk, A.J., Lakin, K.C., & Luckasson, R. (Eds.) (2001). The forgotten generation: The status and challenges of adults with mild cognitive limitations in American society. Baltimore: Paul H. Brookes.

White, C.C., Prouty, R.W., Lakin, K.C., & Blake, E.M. (1992). Persons with mental retardation and related conditions in state-operated residential facilities: Year ending June 30, 1990. Minneapolis: University of Minnesota, Research and Training Center on Community Living/Institute on Community Integration.

Wood, F.H., & Lakin, K.C. (Eds.). (1982). Disturbing, disordered or disturbed? Perspectives on the definition of problem behavior in educational settings. Reston, VA: Council for Exceptional Children.

Wood, F.H., & Lakin, K.C. (Eds.). (1982). Punishment and aversive stimulation in special education. Reston, VA: Council for Exceptional Children.

Journal Artic les

Anderson, D.J., Lakin, K.C., Hill, B.K., & Chen, T.H. (1992). Social integration of older persons in residential facilities. American Journal on Mental Retardation, 96(5), 488-501.

Anderson, L., Lakin, K.C., Mangan, T., & Prouty, R.W. (1998). State institutions: Thirty years of depopulation and closure. Mental Retardation, 36(6), 431-443.

Anderson, L., Lakin, K.C., Polister, B., & Prouty, R.W. (1998). One-third of residential service recipients now live in homes of three or fewer people. Mental Retardation, 36(3), 249.

Anderson, L., Lakin, K.C., & Prouty, R.W. (1997). Medicaid long-term care recipients grew by 37%, costs by 25% in three years. Mental Retardation, 35(2), 137-138.

Anderson, L., Prouty, R.W., & Lakin, K.C. (1999). People living in settings other than congregate care account for 44% of HCBS recipients. Mental Retardation, 37(5), 428-429.

Anderson, L., Prouty, R., & Lakin, K.C. (2000). Parallels in size of residential settings and use of Medicaid financed programs. Mental Retardation,38(5), 468-471.

Anderson, L., Sandlin, J., Prouty, R. & Lakin, K.C. (1996). States converting community ICFs/MR to HCBS waiver. Mental Retardation, 34(6), 402.

Best-Sigford, B.B., Bruininks, R.H., Lakin, K.C., Hill, B.K., & Heal, L.W. (1982). Resident release patterns in a national sample of public residential facilities. American Journal on Mental Deficiency, 87(2), 130-140.

K. Charlie Lakin

Braddock, D., Hemp, R., Lakin, K.C., & Smith, G. A. (1994). National trends in developmental disabilities expenditures. Mental Retardation, 32(5), 446.

Breedlove, L., Decker, C., Lakin, K.C., Prouty, R., & Coucouvanis, K. (2005). Placement of children and youth in state institutions: 40 years after the high point it is just time to stop. Mental Retardation, 43(3), 235-238.

Brown, S.L., Lakin, K.C., & Burwell, B.O. (1998). Beneficiary-centered care in services to persons with developmental disabilities: Lessons from the Medicaid Community Supported Living Arrangements program. Health Care Financing Review, 19(2), 20-32.

Bruininks, R.H., Chen, T.H., Lakin, K.C., & McGrew, K. (1992). Components of personal competence and community integration of persons with mental retardation in small residential programs. Research in Developmental Disabilities, 13, 463-479.

Chen, T.H., Bruininks, R.H., Lakin, K.C., & Hayden, M.F. (1993). Personal competencies and community participation in small community residential programs: A multiple discriminant analysis. American Journal on Mental Retardation, 98(3), 390-399.

Coucouvanis, K., Lakin, K.C., Prouty, R., & Webster, A. (2006). Reductions continue in average daily populations of large state facilities; Nearly 70% decrease between 1980 and 2005. Mental Retardation, 44(3), 235-238.

Coucouvanis, K., Polister, B., Prouty, R.W. & Lakin, K.C. (2003). Continuing reduction in large state residential facilities for persons with intellectual and developmental disabilities. Mental Retardation, 41(1), 67-70.

Coucouvanis, K., Prouty, R.W., & Lakin, K.C. (2005). Own home and host family options growing rapidly as more than 70% of residential service recipients with ID/DD of 2004 live in settings of 6 or fewer. Mental Retardation, 43(4), 307-309.

Hauber, F.A., Bruininks, R.H., Hill, B.K., Lakin, K.C., Scheerenberger, R.C., & White, C.C. (1984). National census of residential facilities: A 1982 profile of facilities and residents. American Journal on Mental Deficiency, 89(3), 236-245.

Hayden, M.F., Lakin, K.C., Braddock, D., & Smith, G.A. (1995). Growth in self-advocacy organizations in the United States. Mental Retardation, 33(5), 342.

Hayden, M.F., Lakin, K.C., Hill, B.K., Bruininks, R.H., & Copher, J.I. (1992). Social and leisure integration of people with mental retardation who reside in foster homes and small group homes. Education and Training in Mental Retardation, 30(2), 53-62.

Hayden, M.F., Lakin, K.C., Hill, B.K., Bruininks, R.H., & Chen, T.H. (1992). Placement practices in specialized foster homes and small group homes for persons with mental retardation. Mental Retardation, 30(2), 53-61.

Heal, L.W., Bruininks, R.H., Lakin, K.C., & Hill, B.K. (1989). Movement of developmentally disabled individuals among out of home residential facilities. Research in Developmental Disabilities, 10, 295-313.

Hemp, R., Lakin, K., Braddock, D., & Smith, G. (1994). Family support expenditures. Mental Retardation, 32(4), 319.

Hewitt, A., Larson, S., Lakin, K.C., Sauer, J., O’Nell, S., & Sedlezky, L. (2004). The roles and essential competencies of frontline supervisors of direct support professionals in community services. Mental Retardation, 42(2), 122-135.

Hewitt, A., Lakin, K.C., Stancliffe, R., & Larson, S. (2004). Expenditure patterns in home and community based waiver settings in Minnesota (abstract). Journal of Intellectual Disability Research, 48, 489.

Hill, B.K., Bruininks, R.H., & Lakin, K.C. (1983). Physical and behavioral characteristics of mentally retarded people in residential facilities, Health and Social Work, 8(2), 85-95.

Hill, B.K., Bruininks, R.H., Lakin, K.C., Hauber, F.A., & McGuire, S.P. (1985). Stability of mental retardation facilities for mentally retarded people. Mental Retardation, 23(3), 108-114.

Hill, B.K., Hayden, M.F., Lakin, K.C., Menke, J., & Amado, A.N. (1990). State-by-state data on children with handicaps in regular foster care. Child Welfare, 69(5), 447-462.

Hill, B.K. & Lakin, K.C. (1986). Classification of residential facilities for mentally retarded people. Mental Retardation, 24, 107-115.

Hill, B.K., Lakin, K.C., & Bruininks, R.H. (1984). Trends in residential services for mentally retarded people, 1977-1982. The Journal of the Association for Persons with Severe Handicaps, 9(4), 243-250.

K. Charlie Lakin

Kim, S., Larson, S., & Lakin, K.C. (2001). Behavioral outcomes of deinstitutionalization of people with intellectual disabilities: A review of U.S. studies conducted between 1980 and 1999. Journal of Intellectual and Developmental Disabilities, 26 (1), 35-50.

Lakin, K.C. (1992). Improving the quality of community living in persons with mental retardation. OSERS News in Print, 5(2), 30-35.

Lakin, K.C. (1998). Observations on the California mortality studies. Mental Retardation, 36(5), 395-400.

Lakin, K.C. (1998). On the outside looking in: Attending to waiting lists in systems of services for people with developmental disabilities. Mental Retardation, 36(2), 157-162.

Lakin, K.C. (1983). A response to Gene V. Glass. Policy Studies Review, 2 (Special #1), 233-240.

Lakin, K.C. (1983). Research-based knowledge and professional practices in special education for emotionally disturbed students. Behavioral Disorders, 8(3), 128-137.

Lakin, K.C. (1989). Quality of life in the community. New Ways, Fall, 19-24+.

Lakin, K.C., Amado, A.N., Bruininks, R.H., Hayden, M.F., & Li, X. (1992). Programs and services for persons with mental retardation living in small community settings. Journal of Disability Policy Studies, 3(1), 17-44.

Lakin, K.C., Anderson, D.J., Hill, B.K., & Bruininks, R.H. (1991). Programs and services received by older persons with mental retardation. Mental Retardation, 29(2), 65-74.

Lakin, K.C., Anderson, L., & Prouty, R.W. (1998). Decreases continue in out-of-home placements of children and youth with mental retardation. Mental Retardation, 36(2), 165-168.

Lakin, K.C., Anderson, L., & Prouty, R.W. (1999). Medicaid HCBS “waiver” recipients are now twice the number of Medicaid ICF-MR residents. Mental Retardation, 37(4), 341-343.

Lakin, K.C., Anderson, L., Prouty, R.W., Polister, B. (1999). Community residential services would require expansion of 72% to serve everyone in community settings. Mental Retardation, 37 (3), 251-254.

Lakin, K.C., Anderson, L., Prouty, R., & Polister, B. (1999). State institution populations less than one-third of 1977, residents older and more impaired. Mental Retardation, 37(1), 85-86.

Lakin, K.C., Braddock, D., & Smith, G.A. (1994). Changes in residential setting size. Mental Retardation, 32(3), 248.

Lakin, K.C., Braddock, D., & Smith, G.A. (1995). Children and youth in state mental retardation/developmental disabilities institutions. Mental Retardation, 33(3), 203.

Lakin, K.C., Braddock, D., & Smith G.A. (1995). Milestone reached in Intermediate Care Facility for the Mentally Retarded utilization. Mental Retardation, 33(4), 271.

Lakin, K.C., Braddock, D. & Smith, G.A. (1996). Majority of MR/DD residential service recipients now in homes of 6 or fewer residents. Mental Retardation, 34(3), 198.

Lakin, K.C., Braddock, D., & Smith, G.A. (1994). Trends and milestones: State institution closures. Mental Retardation, 32(1), 77.

Lakin, K.C., Braddock, D., & Smith, G.A. (1994). Expenditures for care in large state operated institutions. Mental Retardation, 32(5), 381.

Lakin, K.C., Bruininks, R.H., & Hill, B.K. (1986). Habilitative functions and effects of residential services. Remedial and Special Education, 7(6), 54-62.

Lakin, K.C., Bruininks, R.H., Hill, B.K., Chen, T.H., & Anderson, D.A. (1994). Personal characteristics and competence of people with mental retardation living in foster homes and small group homes. American Journal on Mental Retardation, 97(6), 616-627.

Lakin, K.C., Bruininks, R.H., Hill, B.K., & Hauber, F.A. (1982). Turnover of direct-care staff in a national sample of residential facilities for mentally retarded people. American Journal on Mental Deficiency, 87(1), 67-42.

Lakin, K.C., Doljanac, R., Byun, S., Taub, S., Chiri, G. (in press). Adults with dual diagnoses of intellectual and psychiatric disability receiving Medicaid Home and Community-Based Services (HCBS) and ICF/MR recipients in six states. Mental Health Aspects of Developmental Disabilities.

K. Charlie Lakin

Lakin, K.C., Doljanac, R., Byun, S., Stancliffe, R., Taub, S., Chiri, G. (in press). Choice-making among Medicaid Home and Community-Based Services recipients and ICF/MR residents in six states. American Journal on Mental Retardation.

Lakin, K.C., Doljanac, R., Byun, S., Stancliffe, R., Taub, S., Chiri, G. (in press). Factors associated with expenditures for Medicaid Home and Community-Based services and ICF/MR services for persons with intellectual and developmental disabilities. Intellectual and Developmental Disabilities.

Lakin, K.C., Greenberg, J.N., Schmitz, M.A., & Hill, B.K. (1984). A comparison of Medicaid waiver applications for mentally retarded and elderly/disabled populations. Mental Retardation, 22(4), 182-192.

Lakin, K.C., & Hall, M.J. (1990). Medicaid’s evolving role in financing residential care for persons with mental retardation. Health Care Financing Review (1990 Annual Supplement), 149-160.

Lakin, K.C., Hayden, M.F., Hill, B.K., & Bruininks, R.H. (1989). Utilization of adult foster care services in the United States. Adult Foster Care Journal, 3(3), 152-162.

Lakin, K.C., Hill, B.K., & Anderson, D.J. (1991). Persons with mental retardation in nursing homes in 1977 and 1985: A comparison of findings from the 1977 and 1985 National Nursing Home Surveys. Mental Retardation, 29(1), 25-33.

Lakin, K.C., Hill, B.K., Hauber, F.A., & Bruininks, R.H. (1983). A response to the General Accounting Office Report to Congress, “Disparities Still Exist in Who Gets Special Education,” Exceptional Children, 50(1), 30-34.

Lakin, K.C., Hill, B.K., Hauber, F.A., & Bruininks, R.H. (1982). Changes in age at first admission to residential care of mentally retarded people. Mental Retardation, 20(5), 216-219.

Lakin, K.C., Hill, B.K., Bruininks, R.H., Hauber, F.A., & Krantz, G.C. (1983). Factors related to job stability of direct-care staff of residential facilities for mentally retarded people. Journal of Community Psychology, 11(3), 228-235.

Lakin, K.C., Hill, B.K., Hauber, F.A., Bruininks, R.H., & Heal, L.W. (1983). New admissions and readmissions to a national sample of residential facilities. American Journal on Mental Deficiency, 88, 13-20.

Lakin, K.C., Hill, B.K., White, C.C., & Wright, E.A. (1989). Longitudinal patterns in ICF-MR utilization, 1977-1986. Mental Retardation, 27(3), 149-158.

Lakin, K.C., Krantz, G.C., Bruininks, R.H., Clumpner, J.L., & Hill, B.K. (1982). One hundred years of data on populations of public residential facilities for mentally retarded people. American Journal on Mental Deficiency, 87(1), 1-8.

Lakin, K.C., Polister, B., & Prouty, R.W. (2003). Wages of non-state direct support professionals lag behind those of public direct support professionals and the general public. Mental Retardation, 41(2), 178-182.

Lakin, K.C., Prouty, R.W., Braddock, D., & Smith, G.A. (1995). Places of residences of Medicaid Home and Community Based Services recipients. Mental Retardation, 33(6), 406.

Lakin, K.C., Prouty, R., Smith, G., & Braddock, D. (1996). Nixon goal surpasses—Two fold. Mental Retardation, 34(1), 67.

Lakin, K.C., Prouty, R.W., & Anderson, L. (1997). State institution populations becoming smaller, older and more severely impaired. Mental Retardation, 35(3), 159.

Lakin, K.C., Prouty, R., Anderson, L., & Polister, B. (1998). Changes in Medicaid long-term care expenditures, 1992 to 1997. Mental Retardation, 36(6), 508-509.

Lakin, K.C., Prouty, R., Anderson, L., & Polister, B. (1998). Utilization rates for residential services increase. Mental Retardation, 36(5), 406-407.

Lakin, K.C., Prouty, R.W., Anderson, L., & Sandlin, J. (1997). Nearly 40% of state institutions operating since 1960 have been closed. Mental Retardation, 35(1), 65.

Lakin, K.C., Prouty, R., & Coucouvanis, K. (2004). U.S. residential support receipts with ID/DD now exceed 400,000 after 30% increase in past decade; increases evident in all states. Mental Retardation, 42(6), 490-493.

Lakin, K.C., Prouty R., & Coucouvanis, K. (2005). Long-term service and support expenditures for persons with ID/DD within the overall Medicaid program. Mental Retardation, 43(1), 65-69.

Lakin, K.C., Prouty, R.W., & Coucouvanis, K. (2005). Average per person Medicaid long-term services costs increased at one-fourth the rate of inflation between 1993 and 2004 with shift to Home and Community Based Services. Mental Retardation, 43(5), 381-384.

K. Charlie Lakin

Lakin, K.C., Prouty, R., & Coucouvanis, K. (2006). Changing patterns in size of residential settings for persons with intellectual and developmental disability, 1977-2005. Mental Retardation, 44(3), 244-247.

Lakin, K.C., Prouty, R., & Coucouvanis, K. (in press). Medicaid institutional and home and community-based expenditures for persons with ID/DD within the overall Medicaid program. Intellectual and Developmental Disabilities.

Lakin, K.C., Prouty, R., & Coucouvanis, K. (2006). Twenty year retrospective on proposals to eliminate the “institutional bias” in Medicaid for persons with ID/DD. Mental Retardation, 44(6), 450-454.

Lakin, K.C., Prouty, R., & Coucouvanis, K. (2007). Rebalancing initiatives and their effects on home and community and institutional services for persons with ID/DD. Mental Retardation, 45(2), 221-226.

Lakin, K.C., Prouty R., & Coucouvanis, K., & Polister, B. (2004). Fiscal year 2003 expenditures for Medicaid long-term services and supports: Noticeable by limited effects of state budget crises. Mental Retardation, 42(5), 407-411.

Lakin, K.C., Prouty, R., Polister, B., & Coucouvanis, K. (2004). States’ initial response to the President’s New Freedom Initiative: Slowest rates of deinstitutionalization in 30 years. Mental Retardation, 42(3), 241-244.

Lakin, K.C., Prouty, R., Polister, B., Smith, J. (2002). Indicators of change in service for persons with intellectual disabilities: Decade ending June 30, 2000. Mental Retardation, 40 (1), 90-96.

Lakin, K.C., Prouty, R., Polister, B., & Coucouvanis, K. (2003). Change in residential placements for persons with intellectual and developmental disabilities in the USA. Journal of Intellectual and Developmental Disabilities, 28(2), 205-210.

Lakin, K.C., Prouty, R., Polister, B., & Coucouvanis, K. (2003). Twenty years of growth in Medicaid Home and Community Based Services, recipients, and costs: June 1982 to June 2002. Mental Retardation, 41(5), 394-397.

Lakin, K.C., Prouty, R., Smith, J., Polister, B., & Smith, G. (2002). Fiscal year 2001 Medicaid Home and Community-Based Services expenditures exceed those of ICFs/MR. Mental Retardation, 40 (4), 336-339.

Lakin, K.C., Prouty, R., Polister, B. & Coucouvanis, K. (2003). Selected changes in residential service systems over a quarter century, 1977-2002. Mental Retardation, 41(4), 303-306.

Lakin, K.C., & Reynolds, M.C. (1983). Curricular implications of Public Law 94-142 for teacher education. Journal of Teacher Education, 34(2), 13-18.

Lakin, K.C., Smith, J., Prouty, R., & Polister, B. (2001). State institutions during the 1990s: Changes in the number of Facilities, average daily populations and expenditures Fiscal Year 1991 to Fiscal Year 2000. Mental Retardation, 39 (1), 72-75.

Lakin, K.C., & Stancliffe, R.J. (2007). Residential supports for persons with intellectual and developmental disabilities. Mental Retardation and Developmental Disability Research Review, 13(2), 151-159.

Lakin, K.C., White, C.C., Hill, B.K., Bruininks, R.H., & Wright, E.A. (1990). Longitudinal change and interstate variability in residential services for persons with mental retardation. Mental Retardation, 28(6), 343-352.

Larson, S.A., Doljanic, R., & Lakin, K.C. (2005). United States’ living arrangements for persons with intellectual and/or developmental disabilities in 1995. Journal of Intellectual and Developmental Disabilities, 30(4), 248-251.

Larson, S.A., & Lakin, K.C. (1989). Deinstitutionalization of persons with mental retardation: The impact on daily living skills. Journal of the Association for Persons with Severe Handicaps, 14(4), 324-332.

Larson, S.A., & Lakin, K.C. (1999). A longitudinal study of recruitment and retention in small community homes supporting persons with developmental disabilities. Mental Retardation, 37(4), 267-280.

Larson, S.A., & Lakin, K.C. (1991). Parent attitudes about their daughter’s or son’s residential placement before and after deinstitutionalization. Journal of the Association for Persons with Severe Handicaps, 16(1), 25-38.

Larson, S.A., & Lakin, K.C. (1992). Direct care staff stability in a national sample of small group homes. Mental Retardation, 30(1), 13-22.

Larson, S.A., & Lakin, K.C. (2007). U.S. public policy update: The College of Direct Support. The NADD Bulletin, 10 (2), 40-41.

Larson, S., Hewitt, A., & Lakin, K.C. (2004). A multi-perspective analysis of workforce challenges and their effect on consumer and family quality of life. American Journal on Mental Retardation, 109(6), 481-500.

K. Charlie Lakin

Larson, S.A., Lakin, K.C., & Anderson, L.L. (2003). Definitions and findings on developmental disabilities within the disability supplement to the National Health Interview Survey. Research in Social Science and Disability: Special issue on disability research within the NHIS-D, 3(1), 229-255. (Published by Elsevier Ltd., Oxford, England).

Larson, S.A., Lakin, K.C., Anderson, L., Kwak, N., Lee, J.H., & Anderson, D. (2001). Prevalence of mental retardation and developmental disabilities: Estimates from the 1994/1995 National Health Interview Survey Disability supplements. American Journal on Mental Retardation, 106 (3), 231-252.

Novak, A., & Lakin, K.C. (1985). The evolving role of federal funding of the residential care system for persons with mental retardation. Mental Retardation Systems, 2(4), 15-25.

Polister, B., Lakin, K.C., Smith, J., Prouty, R., & Smith, G. (2002). Institution residents continue to decrease as community setting residents grow at an accelerating pace. Mental Retardation, 40(6), 488-490.

Prouty, R., Coucouvanis, K., & Lakin, K.C. (2005). FY 2004 state institution populations, movement and expenditures by state with national comparisons to earlier years. Mental Retardation, 43(2), 149-151.

Prouty, R., Coucouvanis, K., & Lakin, K.C. (2007). State institution populations Less Than 80% of 40 years earlier; “Real dollar” costs more than 10 times greater. Mental Retardation, 45(2), 143-145.

Prouty, R., Lakin, K.C., & Coucouvanis, K. (2006). Increases in recipients and expenditures for Medicaid Home and Community-Based Services in 2005. Mental Retardation, 44(5), 388-390.

Prouty, R., Lakin, K.C., Coucouvanis, K., & Anderson, L. (2005). Progress toward a national objective of Healthy People 2010: “Reduce to zero the number of children 17 years and younger living in congregate care.” Mental Retardation, 43(6), 456-460.

Prouty, R., Lakin, K.C., & Coucouvanis, K. (2007). In 2006 fewer than 30% of persons receiving out-of-family residential supports lived in homes of more than six residents. Intellectual and Developmental Disabilities, 45(4), 289-292.

Prouty, R.W., Lakin, K.C., & Smith, G.A. (1996). Growth in residential settings of 6 or fewer individuals with MR/DD. Mental Retardation, 34(2), 130.

Rotegard, L., Hill, B.K., & Lakin, K.C. (1983). Sex as a bona fide occupational qualification for direct care staff in residences for mentally retarded people. Mental Retardation, 21(4), 150-152.

Rudolph, C., Lakin, K.C., Oslund, J., & Larson, W. (1998). Evaluation of a behavioral support/crisis response demonstration project. Mental Retardation, 36 (3), 187-197.

Smith, G.A., Prouty, R., & Lakin, K.C. (1996). The HCBS waiver program: The fading of Medicaid’s institutional bias. Mental Retardation, 34 (4), 262-263.

Smith, J., Prouty, R., Polister, B., Kwak, N., & Lakin, K.C. (2001). Large state residential facilities: Status and trends in population characteristics as of June 30, 2000. Mental Retardation, 39 (4), 334-337.

Stancliffe, R., Emerson, E., & Lakin, K.C. (2001). Community living and people with intellectual and developmental disability. Part I. Journal of Intellectual and Developmental Disability, 101 (1).

Stancliffe, R., Emerson, E., & Lakin, K.C. (2001). Community living and people with intellectual and developmental disability. Part II. Journal of Intellectual and Developmental Disability, 101 (2), 5-14.

Stancliffe, R.J., Hayden, M.F., & Lakin, K.C. (1999). Effectiveness and quality of individual planning in residential settings: An analysis of outcomes. Mental Retardation, 37(2), 104-116.

Stancliffe, R.J., Hayden, M.F., & Lakin, K.C. (1999). Effectiveness of challenging behavior individual habilitation plan objectives in residential settings: A longitudinal study. Mental Retardation, 37, 482-493.

Stancliffe, R.J., Hayden, M.F., & Lakin, K.C. (1999). Interventions for challenging behavior in residential settings. American Journal on Mental Retardation,104(4), 364-375.

Stancliffe, R.J., Hayden, M.F., & Lakin, K.C. (2000). Quality and content of individualized habilitation plan objectives in residential settings. Education and Training in Mental Retardation, 35 (2), 191-207.

Stancliffe, R.J., Hayden, M.F., Larson, S., & Lakin, K.C. (2002). Longitudinal study of adaptive and challenging behavior of deinstitutionalized adults with intellectual disability. American Journal on Mental Retardation, 107(4), 302-320.

K. Charlie Lakin

Stancliffe, R.J., & Lakin, K.C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal of Mental Retardation, 103 (6), 552-568.

Stancliffe, R.J., & Lakin, K.C. (1999). A longitudinal comparison of day program services and outcomes of people who left institutions and those who stayed. Journal of the Association for Persons with Severe Handicaps, 24 (1), 44-57.

Stancliffe, R.J., & Lakin, K.C. (2006). Longitudinal frequency and stability in family contact in institutional and community living. Mental Retardation, 44(6), 418-429.

Stancliffe, R., & Lakin, K.C. (2006). Minority status, consumer outcomes and service inputs in four states. Mental Retardation, 44 (3), 165-183.,

Stancliffe, R.J., & Lakin, K.C. (2005). Needs-based funding: Experiences from the USA. Intellectual Disability Australia, 26(2), 6-7, 13.

Stancliffe, R.J., Lakin, K.C., Taub, S., Doljanac, R., Chiri, G., & Byun, S. (in press). Loneliness and living arrangements. Intellectual and Developmental Disabilities

Stancliffe, R., Lakin, K.C., & Prouty, R. (2005). Growth in residential services in Australia and the United States: 1997-2002. Journal of Intellectual and Developmental Disability, 30(3), 181-184.

Taub, S., Chiri, G., Lakin, K.C., Doljanac, R., Byun, S, & Stancliffe, R. (in press). Differential use of community services by Medicaid HCBS and ICF/MR recipients with intellectual and developmental disabilities. American Journal on Mental Retardation.

Taylor, S.J., Lakin, K.C., & Hill, B.K. (1989). Permanency planning for all children and youth: Policy and philosophy to govern out-of-home placement decisions. Exceptional Children, 55(6), 541-549.

White, C.C., Hill, B.K., Lakin, K.C., & Bruininks, R.H. (1984). Day programs of mentally retarded adults in residential facilities. Mental Retardation, 22, 121-127.

White, C.C., Lakin, K.C., Hill, B.K., Bruininks, R.H., & Menke, J.M. (1990). Trends in residential services for persons with mental retardation: Changes by size, operation and state from 1977 to 1987. Adult Residential Care Journal, 4(2), 77-94.

Book Chapters Amado, A.N., & Lakin, K.C. (2006). Contribution and community life: fostering social relationships, community

participation, and full inclusion. In S. Pueschel (Ed.), Adults with Down syndrome (pp. 201-224). Baltimore: Paul H. Brookes.

Bruininks, R.H., & Lakin, K.C. (1985). Perspectives and prospects for social and educational integration of severely handicapped children and youth. In R.H. Bruininks & K.C. Lakin (Eds.), Living and learning in the least restrictive alternative (pp. 263-277). Baltimore: Paul H. Brookes.

Bruininks, R.H., Lakin, K.C., & Hill, B.K. (1987). Facing new challenges with old strategies: Needed reform in managing adult services for disabled citizens. In L.G. Perlman & G.F. Austin (Eds.), The transition to work and independence for youth with disabilities. Alexandria, VA: National Rehabilitative Association.

Bruininks, R.H., Lakin, K.C., & Rotegard, L.L. (1987). Epidemiology of mental retardation and trends in residential services. In S. Landesman-Dwyer & P. Vietze (Eds.), Living environments and mental retardation. Washington, DC: American Association on Mental Deficiency.

Bruininks, R.H., Olson, K.A., Larson, S.A., & Lakin, K.C. (1994). Challenging behaviors among persons with mental retardation in residential settings: Implications for policy, research and practice. In D. Gray & T. Thompson (Eds.), Destructive behavior: Epidemiology, measurement and information management (pp. 24-48). Newbury Park, CA: SAGE Publications.

Stancliffe, R., Emerson, E., & Lakin, K.C. (2004). Residential supports. In E. Emerson, C. Hatton, T. Parmenter, & T. Thompson (Eds.), International handbook of applied research in intellectual disabilities (pp. 459-478). New York: John Wiley.

Hanley-Maxwell, C., Boggs, E., Bradley, V., & Lakin, K.C. (1988). Legislative constraints and facilitations for community integration. In L. Heal, J. Haney, & A. Novak (Eds.), Integration of developmentally disabled individuals into the community (2nd ed.) (pp. 245-273). Baltimore: Paul H. Brookes.

K. Charlie Lakin

Heal, L.W., Lakin, K.C., Bruininks, R.H., Hill, B.K., & Sigford, B.B. (1983). Placement of mentally retarded residents from public residential facilities in the United States. In J.M. Berg (Ed.). Perspectives and progress in mental retardation (pp. 351-362). Baltimore: University Park Press.

Hendershot, G.E., Larson, S., & Lakin, K.C. (2003). An overview of the National Health Interview Survey on Disability. In S. Barnartt, B. Altman, G. Hendershott, & S. Larson (Eds.), Using survey data to study disability: Results from the National Health Interview Survey on Disability (pp. 9-40). Research in Social Science and Disability, 3(whole volume), Stanford, CT: JAI Press

Hill, B.K., Lakin, K.C., & Bruininks, R.H. (1988). Characteristics of residential facilities. In L. Heal, J. Haney, & A. Novak (Eds.), Integration of developmentally disabled individuals into the community (2nd ed.) (pp. 89-123). Baltimore: Paul H. Brookes.

Lakin, K.C. (1996). Data collection on persons with disabilities. In E. Eklund & A. Crocker (Eds.), Health promotion and disability prevention for persons with disabilities (pp.53-62). Silver Spring, MD: American Association of University Affiliated Programs.

Lakin, K.C. (2005) Forward. In Larson, S., & Hewitt, A. Staff recruitment, retention, and training strategies for community human service organization (pp. xi-xvi). Baltimore: Paul H. Brookes.

Lakin, K.C. (2005). Keeping the promises to Americans with intellectual and developmental disabilities. In K.C. Lakin, & A. Turnbull (Eds.), National goals and research for persons with intellectual and developmental disabilities (pp. 1-13). Washington, DC: American Association on Mental Retardation and The Arc of the United States.

Lakin, K.C. (1986). Medicaid services for persons with developmental disabilities. In D. Durenberger (Chair). Hearing of the U. S. Senate Subcommittee on Health, Committee on Finance on Medicaid funding of services for persons with developmental disabilities (Senate Hearing 99-1043). Washington, D.C.: U.S. Government Printing Office.

Lakin, K.C. (1982). Research-based knowledge and professional practices in special education for emotionally disturbed students. In C.R. Smith (Ed.), Current issues in behavior disorders. Des Moines: Iowa Department of Public Instruction.

Lakin, K.C. (1997). Social indicators for services for persons with developmental disabilities. In R. Newcomer & T. Benjamin (Eds.), Social indicators for community development of services for persons with chronic conditions (pp. 99-135). Baltimore: John Hopkins University Press.

Lakin, K.C. (1988). Strategies for promoting stability of direct-care staff in community-based residential facilities. In M. Janicki, M. Krauss, & M. Seltzer, (Eds.), Here to stay: Operating community residences (pp. 231-238). Baltimore: Paul H. Brookes.

Lakin, K.C. (1988). Testimony on the Medicaid Home and Community Quality Services Act. In G. Mitchell (Chair). Hearing of the U.S. Senate Subcommittee on Health, Committee on Finance on the Medicaid Home and Community Quality Services Act (Senate Hearing 100-817). Washington, DC: U.S. Government Printing Office.

Lakin, K.C. (1990). Reconsideration of the Adoption Assistance and Child Welfare Act: It s time for permanency planning for all children and youth. In T.J. Downey (Chairman), Hearing of the U.S. House of Representatives Subcommittee on Human Resources on federally funded child welfare, foster care and adoption assistance programs, 101st Congress (2nd Session), April 5, 1990 (Serial 101-90). Washington, DC: U.S. Government Printing Office.

Lakin, K.C. (1991). Foreword. In S.J. Taylor, R. Bogdan, & J.A. Racino (Eds.), Life in the community: Case studies of organizations supporting people with disabilities. Baltimore: Paul H. Brookes.

Lakin, K.C. (2001). Quality assurance in Home and Community Based Services: Response to Hamilton. In J. Gardner (Ed.), Measure for measure: Person-centered quality assurance (pp. 31-39). Towson, MD: Council on Quality and Leadership.

Lakin, K.C., & Bruininks, R.H. (1985). Challenges to advocates of social integration of developmentally disabled people. In K.C. Lakin & R.H. Bruininks (Eds.), Strategies for achieving community integration of developmentally disabled citizens (pp. 313-329). Baltimore: Paul H. Brookes.

Lakin, K.C., & Bruininks, R.H. (1985). Contemporary services for handicapped children and youth. In R.H. Bruininks & K.C. Lakin (Eds.), Living and learning in the least restrictive alternative (pp. 3-22). Baltimore: Paul H. Brookes.

Lakin, K.C., & Bruininks, R.H. Manpower needs in the 1980’s. (1981). In T.C. Muzzio, J.J. Koshel, & V. Bradley (Eds.), Alternative community living arrangements and non-vocational social services for developmentally disabled people. Washington, DC: The Urban Institute.

K. Charlie Lakin

Lakin, K.C., & Bruininks, R.H. (1981). Personnel management and quality of residential services for developmentally disabled people. In T.C. Muzzio, J.J. Koshel, & V. Bradley (Eds.), Alternative community living arrangement and non-vocational social services for developmentally disabled people. Washington, DC: The Urban Institute.

Lakin, K.C., & Bruininks, R.H. (1985). Social integration of developmentally disabled people. In K.C. Lakin & R.H. Bruininks (Eds.), Strategies for achieving community integration of developmentally disabled citizens (pp. 3-24). Baltimore: Paul H. Brookes.

Lakin, K.C., Bruininks, R.H., & Hill, B.K. (1987). Basic facts and trends in residential services. In R.B. Kugel (Ed.), Changing patterns in residential services for persons with mental retardation (3rd ed.) (pp. 46-73). Washington, DC: President’s Committee on Mental Retardation.

Lakin, K.C., Bruininks, R.H., & Larson, S.A. (1992). The changing face of residential services. In L. Rowitz (Ed.), Mental retardation in the year 2000 (pp. 197-247). New York: Springer-Verlag.

Lakin, K.C., Bruininks, R.H., & Sigford, B.B. (1981). Introduction. In R.H. Bruininks, C.E. Meyers, B.B. Sigford, & K.C. Lakin (Eds.), Deinstitutionalization and community adjustment of mentally retarded people (pp. 7-14). Washington, DC: American Association on Mental Deficiency.

Lakin, K.C., Bruininks, R.H., & Sigford, B.B. (1981). Early perspectives on the community adjustment of mentally retarded people. In R.H. Bruininks, C.E. Meyers, B.B. Sigford, & K.C. Lakin (Eds.), Deinstitutionalization and community adjustment of mentally retarded people (pp. 28-50). Washington, DC: American Association on Mental Deficiency.

Lakin, K.C., Bruininks, R.H., & Sigford, B.B. (1981). Deinstitutionalization and community adjustment: A summary of research and issues. In R.H. Bruininks, C.E. Meyers, B.B. Sigford, & K.C. Lakin (Eds.), Deinstitutionalization and community adjustment of mentally retarded people (pp. 382-412). Washington, DC: American Association on Mental Deficiency.

Lakin, K.C., Gardner, J.M., Larson, S.A., & Wheeler, B.Y. (2005). Access and support for community lives, homes and social roles. In K.C. Lakin, & A. Turnbull (Eds.), National goals and research for persons with intellectual and developmental disabilities (pp. 179-215). Washington, DC: American Association on Mental Retardation and the Arc of the United States.

Lakin, K.C., Hayden, M.F., & Abery, B.H. (1994). An overview of the community living concept. In M.F. Hayden & B.H. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 3-22). Baltimore: Paul H. Brookes Publishing Co.

Lakin, K.C., Hewitt, A., Bast, J., O,Nell, S., & Sajevic, P. (1999). A demonstration to test performance-based outcome measures as a foundation of a quality assurance/quality enhancement system. In J. Gardner & S. Nudler, (Eds.), Quality performance in human service: Leadership, values and vision (pp. 285-312). Baltimore: Paul H. Brookes.

Lakin, K.C., Hewitt, A., Larson, S., & Stancliffe, R. (2005). Home and community-based services: Costs, utilization and outcomes. In R. Stancliffe and K.C. Lakin (Eds.), Costs and outcomes of community services for people with intellectual disabilities (pp. 91-128). Baltimore: Paul H. Brookes.

Lakin, K.C., Hill, B.K., & Bruininks, R.H. (1988). Trends and issues in the development of community-based residential facilities. In M. Janicki, M. Krauss, & M. Seltzer (Eds.), Here to stay: Operating community residences. Baltimore: Paul H. Brookes.

Lakin, K.C., Hill, B.K., Bruininks, R.H., & White, C.C. (1986). Residential options and future implications. In J.A. Stark & W.E. Kiernan (Eds.). Pathways to employment for adults with developmental disabilities. Baltimore: Paul H. Brookes.

Lakin, K.C., Hill, B.K., & Hayden, M.F. (1989). Introduction to residential services for persons with developmental disabilities. In National directory of centers for persons with developmental disabilities (pp. 1-12). Phoenix: Oryx Press.

Lakin, K.C., & Larson, S.A. (1992). Satisfaction and stability of direct-care personnel in community based residential services. In J.W. Jacobson, S. Burchard, & P.C. Carling (Eds.), Clinical services, personal adjustment and work life in community residential settings. Baltimore: Johns Hopkins University Press.

Lakin, K.C., & Larson, S.A. (2002). The social and policy context of community-centered behavioral supports and crisis response. In R. Hanson, N. Wieseler, & K.C. Lakin (Eds.), Crisis: Prevention and response in the community. Washington, DC: American Association on Mental Retardation.

K. Charlie Lakin

Lakin, K.C., Larson, S.A., & Prouty, R.W. (1994). Assessment and enhancement of quality in services for persons with mental retardation and other developmental disabilities. In M.F. Hayden & B.H. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 207-230). Baltimore: Paul H. Brookes Publishing Co.

Lakin, K.C. & O’Brien, J. (1995). Housing policy and persons with mental retardation. In Putting People First: 1994 Presidential Forum on the President s reform agenda and persons with mental retardation (pp. 123-150). Washington, DC: President’s Committee on Mental Retardation.

Lakin, K.C., & Reynolds, M.C. (1982). Public Law 94-142 as an organizing principle for teacher education curricula. In B.L. Sharp (Ed.), Dean s Grant Projects: Challenge and change in teacher education. Washington, DC: American Association of Colleges for Teacher Education.

Lakin, K.C., & Stancliffe, R. (2005). Expenditures and outcomes: Directions in financing, policy, and research. In R. Stancliffe & K.C. Lakin (Eds.), Costs and outcomes of community services for peope with intellectual disabilities (pp. 318-338). Baltimore: Paul H. Brookes.

Lakin, K.C., & Stephens, S.A. (1995). Where pupils with severe emotional disturbance go to school. In J. Kauffman, J. Lloyd, T. Astuto & D. Hallahan (Eds.), Issues in the education placement of pupils with severe emotional disorders. Hillsdale, NJ: Lawrence Erlbaum Associates.

Lakin, K.C., & Tomiyasu, Y.E. (1994). Deinstitutionalization. In International Encyclopedia of Education (2nd Ed.). London: Pergamon.

Lakin, K.C., Wirth-Davis, M., Bradley, V., & Kiernan, W. (1997). Foreward. In Managing outcomes: customer-driven management and management systems (pp. vii-xii). Tucsan, AZ: CARF...The Rehabilitation Accreditation Commission.

Larson, S.A., Lakin, K.C., & Anderson, L.L. (2003). Definitions and findings on developmental disabilities within the disability supplement to the National Health Interview Survey. In S. Barnartt, B. Altman, G. Hendershott, & S. Larson (Eds.), Using survey data to study disability: Results form National Heal Interview Survey (pp. 229-255). Research in Social Science and Disability, 3,( whole volume). Stamford, CT: JAI Press.

Larson, S.A., Hewitt, A., & Lakin, K.C. (1994). Residential services personnel: Recruitment, training, and retention. In M.F. Hayden & B.H. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 313-341). Baltimore: Paul H. Brookes Publishing Co.

Larson, S.A., Lakin, K.C., & Hewitt, A. (2002). Direct support professionals: 1975 to 2000. In R. Schalock, P. Baker & M.D. Croser (Eds.). Embarking on a new century (pp. 203-220). Washington, DC: American Association on Mental Retardation.

Reynolds, M.C., & Lakin, K.C. (1988). Noncategorical special education: A system for the future. In M. Wang, M. Reynolds, & H. Walberg (Eds.), The handbook of special education: Research and practice. Oxford, England: Pergamon Press.

Rotegard, L.L., Bruininks, R.H., Gorder, J., & Lakin, K.C. (1985). Environmental aspects of deinstitutionalization. In R.H. Bruininks & K.C. Lakin (Eds.), Living and learning in the least restrictive alternative (pp. 155-183). Baltimore: Paul H. Brookes.

Smith, G.A., & Lakin, K.C. (1999). The New Hampshire story: Lessons that are still important. In J. Racino, Policy, program evaluation and research in disability (pp. 25-30). New York: Haworth Press.

Smull, M., & Lakin, K.C. (2003). Public policy and person-centered planning. In P. Vietz & S. Holman (Eds.). Person-centered planning. Baltimore: Paul H. Brookes.

Stancliffe, R., & Lakin, K.C. (2005). Context and issues in research and expenditures and outcomes of community supports. In R. Stancliffe & K.C. Lakin (Eds.), Costs and outcomes of community services for people with intellectual disabilities (pp, 289-312). Baltimore: Paul H. Brookes.

Stancliffe, R., & Lakin, K.C. (2007). Independent living. In S. Odom, R. Horner, M. Snell, & J. Blacher (eds.), Handbook on developmental disabilities (pp. 429-448). New York: Guilford Press.

Stancliffe, R., & Lakin, K.C. (2005). Individual budgets and freedom from staff control. In R. Stancliffe & K.C. Lakin (Eds.), Costs and outcomes of community sources for people with intellectual disabilities (203-218). Baltimore: Paul H. Brookes.

K. Charlie Lakin

Stancliffe, R., Lakin, K.C., Shea, J., Prouty, R., & Coucouvanis, K. (2005). The economics of deinstitutionalization. In R. Stancliffe & K.C. Lakin (Eds.), Costs and outcomes of community services for people with intellectual disabilities (289-312). Baltimore: Paul H. Brookes.

Tymchuk, A., Luckasson, R., & Lakin, K.C. (2001). Enhancing understanding, opportunity and social support for adults with mild cognitive limitations through community programs and social policy. In A. Tymchuk, K.C. Lakin, & R. Luckasson (Eds.), The forgotten generation: The status and challenges of adults with mild cognitive limitations in American society (pp. 357-366). Baltimore: Paul H. Brookes.

Tymchuk, A.J., Lakin, K.C., & Luckasson, R. (2001). Life at the margins: Demographic, economic and social circumstances of adults with mild cognitive limitations in an increasingly complex society. In A. Tymchuk, K.C. Lakin, & R. Luckasson (Eds.), The forgotten generation: The status and challenges of adults with mild cognitive limitations in American society (pp. 21-38). Baltimore: Paul H. Brookes.

Wood, F.H., & Lakin, K.C. (1982). Defining emotionally disturbed/behaviorally disordered populations for research purposes. In F.H. Wood & K.C. Lakin (Eds.), Disturbing, disordered or disturbed? Perspectives on the definition of problem behavior in educational settings. Reston, VA: Council for Exceptional Children.

Wood, F.H., & Lakin, K.C. (1982). The legal status of the use of corporal punishment and other aversive procedures in schools. In F.H. Wood & K.C. Lakin (Eds.), Punishment and aversive stimulation in special education. Reston, VA: Council for Exceptional Children.

Zappolo, A., Lakin, K.C., & Hill, B.K. (1991). Persons in institutions and special residential settings. In I. Fitzgerald & S. Thompson-Hoffman (Eds.), Disability in the United States (pp. 184-208). New York: Springer Publishing Co.

Edited Feature Issues of IMPACT (a quarterly of ICI and RTC/CL).

Gilman, C., & Lakin, K.C. (Eds.). (1988). Feature issue on case management. IMPACT, 1(1).

Lakin, K.C. & Skarnulis, E. (Eds.). (1990). Feature issue on consumer controlled housing. IMPACT, 3(1).

Lakin, K.C. & Jones, R. (Eds.). (1993). Feature issue on the Americans with Disabilities Act. IMPACT, 6(1).

Lakin, K.C., Prouty, R.W., & Smith, G.A. (Eds.). (1993). Feature issue on quality assurance. IMPACT, 6(2).

Lakin, K.C. & Wobshall, R. (Eds.). (1994). Feature issue on assistive technology. IMPACT, 7(4).

Lakin, K.C. & Smull, M. (Eds.). (1995). Feature issue on supported living. IMPACT, 8(2).

Hayden, M.F., Lakin, K.C. & Taylor, S.J. (Eds.). (1996). Feature issue on institutional closures. IMPACT, 9(1).

Lakin, K.C., Miller, H., & Burkholder, K. (Eds.). (1997). Feature issue on arts and disability. IMPACT, 10(1).

Lakin, K.C., Anderson, L., & Mandeville, H. (Eds.). (1998). Feature issue on supported parenting by persons with cognitive limitations. IMPACT, 11(1).

Cooper, R., & Lakin, K.C. (Eds.). (1999/2000). Feature issue on support coordination for self-determination. IMPACT, 12(4).

Lakin, K.C., Hanson, R., & Wieseler, N. (Eds.). (2000/2001). Feature issue on behavioral support and crisis response. IMPACT, 13 (4).

Moseley, C., Hewitt, A., & Lakin, K.C. (Eds.) (2004). Feature issue on individually controlled budgets. IMPACT, 17(1). (Co-)Authored Issues of Pol icy Research Brief (a publ icat ion of RTC/CL) Larson, S, & Lakin, K.C. (1989). Deinstitutionalization of persons with mental retardation: Impact on daily living skills,

Policy Research Brief, 1(1).

Larson, S. & Lakin, K.C. (1989). Parent attitudes about their daughter’s or son’s residential placement before and after deinstitutionalization, Policy Research Brief, 1(2).

Lakin, K.C., & Prouty, R.W. (1993). Persons with mental retardation and related conditions in state institutions: Trends and projections. Policy Research Brief, 5(1).

K. Charlie Lakin

Lakin, K.C., Anderson, L., & Prouty, R. (1998). Children and youth receiving residential services for persons with developmental disabilities outside their family home: Trends from 1977-1997. Policy Research Brief, 9(1).

Kim, S., Larson, S., & Lakin, K.C. (1999). Behavioral outcomes of deinstitutionalization for people with intellectual disabilities: A review of studies conducted between 1980 and 1999. Policy Research Brief, 10(1).

Polister, B., Lakin, K.C., & Prouty, R. (2003). Wages of direct support professionals serving persons with intellectual and developmental disabilities. Policy Research Brief, 14(2).

Lakin, K.C. & Prouty, R. (2003). Medicaid Home and Community-Based Services after 20 years: Fueling a revolution in community service access and utilization. Policy Research Brief, 14(3).

(Co-)Authored Issues of DD Data Brief (a publ icat ion of RTC/CL)

Byun, S., Anderson, L., Larson, S.A., & Lakin, K.C. (2006). Characteristics of aging caregivers in the NHIS-D. DD Data Brief, 8 (1). Minneapolis: University of Minnesota, Research and Training Center on Community Living.

Larson, S., Lakin, K.C., Anderson, L, Kwak, N., Lee, J., & Anderson, D. (2000). Prevalence of mental retardation and/or developmental disabilities: Analysis of the 1994/1995 NHIS-D. DD Data Brief, 2(1), whole issue.

Larson, S., Lakin, K.C., Anderson, L., & Kwak, N. (2001). Characteristics of and service use by persons with MR/DD living in their own homes or with family members: NHIS-D analysis. DD Data Brief, 3(1), whole issue.

Larson, S., Lakin, K.C., Anderson, L, & Kwak, N. (2001). Demographic characteristics of persons with MR/DD living in their own homes or with family members: NHIS-D analysis. DD Data Brief, 3(2), whole issue.

Larson, S., Lakin, K.C., Kwak, N., & Anderson, L. (2001). Functional limitations of adults in the U.S. non-institutionalized population: NHIS-D analysis. DD Data Brief, 3(3), whole issue.

Anderson, L., Larson, S., Lakin, K.C., & Kwak, N. (2002). Children with disabilities: Social roles and family impacts in the NHIS-D. DD Data Brief, 4(1)., whole issue.

Anderson, L., Larson, S., Lakin, K.C., & Kwak, N. (2003). Health insurance coverage and health care experiences of persons with disabilities in the NHIS-D. DD Data Brief, 5(1), whole issue.

Doljanac, R., Larson, S., & Lakin, K.C. (2004). Gender, age, and disability differences in functional limitations for non-institutionalized adults in the NHIS-D. DD Data Brief, 6(1), whole issue.

Hendershot, G.E., Larson, S., Lakin, K.C., & Doljanic, R. (2005). Problems in defining mental retardation and developmental disability using the National Health Interview Survey, DD Data brief, 7(1), whole issue.

Anderson, L., Byun, S., Larson, S.A., & Lakin, K.C. (2005). Mothers with disabilities-Characteristics and outcomes: Ana analysis form the NHIS-D. DD Data Brief, 7(3), whole issue.

Test imony before Federal Legis lat ive and Judicial Bodies

U.S. Senate Subcommittee on Health, Committee on Finance. (D. Durenberger, Chair) Hearing on Medicaid funding of services for persons with developmental disabilities (In Senate Hearing 99-1043) on September 22, 1986.

U.S. Senate Subcommittee on Health, Committee on Finance (G. Mitchell, Chair) Hearing on S. 1673, the Medicaid Home and Community Quality Services Act (In Senate Hearing 100-817) on March 22, 1988.

U.S. Senate Subcommittee on Disability Policy, Committee on Labor and Human Resources (T. Harkin, Chair) Hearing on Reauthorization of the Developmental Disabilities Assistance and Bill of Rights Act (In Senate Hearing 101-847) on March 31, 1990.

U.S. House Subcommittee on Human Resources, Committee on Ways and Means (T. Downey, Acting Chair) Hearing on Federally Funded Child Welfare, Foster Care and Adoption Assistance Programs (In serial 101-90) on April 5, 1990.

United States District Court, Massachusetts Western District in Rolland et al. v. Cellucci et al. (1999-2000) on behalf of plaintiffs’ complaint that their nursing facility placements were inappropriate and that specialized services were required.

K. Charlie Lakin

United States District Court, Washington Western District in Arc of Washington State, Inc. et al. v. Quasim et al. (2000-2001) on behalf of plaintiffs’ complaint that Medicaid services must be offered with “reasonable promptness” and “in the most integrated setting.”

United States District Court, Colorado District in Mandy R. et al. V. Owens et al. (2001-2002) on behalf of the Colorado Association of Community Center Boards regarding the inadvisability and harm of responding to the plaintiffs’ complaint for reasonable promptness in Medicaid services through expanding institutional care (ICFs-MR).

United States District Court, Montana District in Travis D. et al. v. State of Montana (2001-2002) on behalf of plaintiffs’ complaint that Medicaid services must be offered with reasonable promptness and that institution residents who would benefit must be offered community services.

United States District Court, District of Minnesota in Lingren et al. v. Campbell Village Minnesota on behalf of the defendant regarding alternative services available in the community and access to them for HCBS recipients.

United States District Court, Northern District of California in Sanchez et al. v. Johnson et al. on behalf of the plaintiff regarding services that are consistent with efficiency, economy and quality of care.

Funded Projects, Principal or Co-Principal Investigator (1997-2006)

Rehabilitation Research and Training Center on Community Living, funded by National Institute on Disability and

Rehabilitation Research (thru 1998).

Rehabilitation Research and Training Center on Community Living, funded by the National Institute on Disability and Rehabilitation Research (thru 2003).

Rehabilitation Research and Training Center on Community Living, funded by the National Institute on Disability and Rehabilitation Research (thru 2008).

Minnesota Direct Services Staff Training Initiative, funded by Administration on Developmental Disabilities and Minnesota Department of Human Services (thru 1997).

Development of Training and Technical Assistance Programs and Materials for Direct Service Workers and Supervisors of State Operated Support Services, Minnesota Department of Human Services (thru 1999).

National Residential Information Systems Project, funded by Administration on Developmental Disabilities (thru 1999); with a supplemental funding from Health Care Financing Administration (thru 2007).

National Evaluation of Medicaid Community Supported Living Arrangements, funded by Health Care Financing Administration (subcontract with Medstat Group, Inc., thru 1997).

Technical Assistance to the Partnership to Improve Quality Assurance in Community Services for Persons with Developmental Disabilities, funded by Minnesota Department of Human Services (thru 1997).

International University Affiliation Project with Bar-Ilan University in Israel, funded by the U.S. Information Agency (thru 1997).

Evaluation of the Medicaid 1115 Waiver Project for Performance Based Contracting, funded by Health Care Financing Administration (subcontract Minnesota Department of Human Services (thru 1998).

Technical Informational Assistance for the National Resource Center for Community Integration of Persons with Mental Retardation and Developmental Disabilities, funded by National Institute on Disability and Rehabilitation/Research (subcontract with Syracuse University, thru 1998).

Data Analyses of the National Health Interview Survey, 1994/1995 Disability Supplement for the Research and Training Center on Emerging Populations of Persons with Disabilities funded by the National Institute on Disability and Rehabilitation Research (subcontract with University of Illinois at Chicago, thru 1999).

Technical Assistance and Consultation for the Metro Behavioral Support/Crisis Response Network, funded by Mt. Olivet Rolling Acres/Minnesota Department of Human Services (thru 1999).

Evaluation Studies of Projects FIT and Project PARTNERS, from Wilderness Inquiry with primary funding from the US Department of Education (OSERS) (thru 1999).

K. Charlie Lakin

Pathways from the Classroom to Credentials via Competency-Based Standards and Effective Assessment Strategies, subcontract with the Human Services Research Institute (thru 2000).

Evaluation of Minnesota’s Consumer Support Grant Program with the Hubert H. Humphrey Institute funded by the Robert Wood Johnson Foundation (thru 1999).

Evaluation of Minnesota’s Self-Determination Project, funded by the Minnesota Department of Human Services with funding from the Robert Wood Johnson Foundation (thru 2000).

Studies of Persons with Developmental Disabilities in the 1994/1995 Disability Supplement of the National Health Interview Survey, funded by the National Institute on Disability and Rehabilitation Research (thru 2000).

Person-Centered Agency Design for State-Operated Services, funded by the Minnesota Department of Human Services (thru 1999).

National Evaluation of Medicaid Home and Community Based Waiver Services Program, funded by the Health Care Financing Administration through a subcontract with the Lewin Group (thru 2001).

Studies of Aging Persons with Developmental Disabilities, funded by National Institute on Disability and Rehabilitation research through a subcontract with the Research and Training Center on Aging and Mental Retardation (thru 2003).

Development and Dissemination of Recruitment, Retention and Training Materials on Direct Support Professionals, funded by the National Institute on disability and Rehabilitation research through a subcontract with the National Resource Center, Center on Human Policy, Syracuse University (thru 2002).

Evaluation of Minnesota’s Medicaid Home and Community Based Services Waiver Program, funded by the Minnesota Department of Human Services, Division of Community Supports for Minnesotans with Disabilities (thru 1999).

“QualityMall.org” for Reinventing Quality: Fostering Promising Practices in Person-Centered Community Services and Quality Assurance for People with Developmental Disabilities, funded by the Administration on Developmental Disabilities through a subcontract with the National Association of State Directors of Developmental Disabilities Services (thru 2002).

“College of Direct Support”: An internet-based training program for direct support professionals, funded by the Administration on Developmental Disabilities through a subcontract with the Sertoma Center, Inc. (thru 2002, now maintained thru user fees).

Self-advocacy Online, a website on self-advocacy accessible to individuals with intellectual disabilities, funded by the NEC Foundation (thru 2007)

Gateway to Adventure Evaluation, funded by the Administration on Developmental Disabilities through a subcontract with Wilderness Inquiry (thru 2003).

“LifePages.org”: an internet program to enhance leisure and recreation opportunities for persons with developmental disabilities, funded by the administration on Developmental Disabilities through a subcontract with Partners in Community Supports (thru 2004).

New York September 11 Documentary, print and video study of the experiences and effects of September 11 on New Yorkers with developmental disabilities and the individuals and organizations who support them, funded by the Administration on Developmental Disabilities (thru 2003).

Evaluation Design of Demonstrations to Improve the Direct Support Community Workforce, funded by the Centers for Medicare and Medicaid Services through a subcontract with the Lewin Group (thru 2006).

Online capacity building training for the One-Stop Career Center System, funded by the Department of Labor through Service Source, Inc. (thru 2004).

Secondary Analyses of Persons with Developmental Disabilities in the 1994-1995 Disability Supplement and the National Health Interview Survey, funded by the National Institute on Disability and Rehabilitation Research (thru 2005).

Program Management Techniques Taken by States to Rebalance Their Long-Term Care Systems, funded by the Centers for Medicare and Medicaid Services through a subcontract with CNA Corporation and School of Public Health, University of Minnesota (thru 2007)

Evaluation of Fetal Alcohol Syndrome Awareness and Education Programs, funded by the Centers for Disease Control and Prevention through a subcontract with the Arc of the US (thru 2005).

K. Charlie Lakin

National Association of State Directors of Developmental Disabilities Services (NASDDDS) Emergency Preparedness Planning for Persons with Developmental Disabilities, funded by NASDDDS (thru 2006)

National Mental Health Courts Evaluation, funded by the MacArthur foundation through a subcontract with Policy research Associates (thru 2009)

Minnesota Quality Assurance Panel Report to the Legislature, Technical Assistance and Report Development, funded by the Minnesota Department of Human Services (thru 2007)

Technical, Analytical and Authoring Assistance for a Mandated Report to Congress on the Supply of Direct Support Professionals to Meet the Need of Persons with Developmental Disabilities, funded by the Office of the Assistant Secretary for Planning and Evaluation, US Department of Health and Human Services (thru 2005).

Direct Support Workforce Resource Center, funded by the Centers for Medicare and Medicaid Services through a subcontract with the Lewin Group (thru 2008)

Access to Health and Social Services for Immigrants with Disabilities, funded by U-Care Foundation (thru 2009)

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Founders’ Award, Arc of Hennepin County (1993)- “for exemplifying the vision of the founders who dreamed of a

community in which all people with developmental disabilities would live as fully included and productive members of society.”

Quality Enhancement Award, the American Network of Community Options and Resources (1994)- “in recognition of creative and exemplary efforts to enhance the quality of services for people with developmental disabilities.”

Alfred Binet Award, American Association on Mental Retardation-Minnesota (1995)- “for original contributions to services, community awareness, training and research in the field of developmental disabilities.”

Presidential Appointment, President’s Committee on Mental Retardation (1995, 1998)- “to evaluate and monitor national efforts to establish appropriate policies and supports...provide suggestions for improvement of services...identify extent to which various Federal and State programs achieve the national goals...facilitate liaison between Federal, State and local governments...disseminate information...and promote concept of community participation.”

Antoinette Lippert Award (inaugural recipient), Minnesota Association for Persons with Severe Handicaps (1996)- “person who is a visionary advocate with compassion and commitment toward promoting positive change in the lives of people challenged with significant disabilities.”

Leadership Award, CARF…The Rehabilitation Accreditation Commission (1996)-“in grateful recognition of distinguished leadership and dedication to rehabilitation.”

Special Board of Directors Award, Arc-Minnesota (1996)- “for contributions in advancing the concept and opportunities for consumer controlled housing for persons with developmental disabilities.”

Mildred Thompson Award, American Association on Mental Retardation-Region VIII (1998)- “for exceptional imagination and achievement in the provision of services to persons with mental retardation.”

Dybwad Humanitarian Award, American Association on Mental Retardation (1999)- “for unwavering commitment to the betterment of society by advancing full societal inclusion and equal treatment of individuals with developmental disabilities.”

Leadership Award (second recipient), Association of Residential Resources of Minnesota (2000)- “in honor of your lifetime commitment to people with disabilities and the workforce that supports them.”

Outstanding Community Service Award-University of Minnesota (2001)-“in recognition of outstanding contributions to improving the lives of people with disabilities and their families.”

Elizabeth M. Boggs Leadership Award, Camphill Association on North America (2001)-“for leadership in community inclusion of persons with developmental disabilities in North America”

Pool of Bethesda Award, Bethesda Lutheran Homes and Services (2004, 100th Anniversary meeting)- “for outstanding national leadership to the field of developmental disabilities”

K. Charlie Lakin

Media Award (group recognition), American Association on Mental Retardation (2006) “for the College of Direct Support’s significant contributions in depicting Americans with Disabilities in a positive light”

Career Tribute, The Arc of Minnesota (2006) “for sharing his unlimited reserves of compassion, knowledge and generosity…for people with disabilities to live a life of quality and inclusion”

k. charlie lakin - aucd home · k. charlie lakin group for the national evaluation of the social...

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