learning disability and autism partnership board

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NOTES OF THE MEETING Nottinghamshire County Council Adult Social Care, Health and Public Protection Learning Disability and Autism Partnership Board Date : Thursday, 28 th November 2019 Venue : Everyday Champions Centre Newark

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Page 1: Learning Disability and Autism Partnership Board

NOTES OF THE MEETING

Nottinghamshire County Council Adult Social Care, Health and Public Protection

Learning Disability and

Autism Partnership Board

Date : Thursday, 28th November 2019

Venue : Everyday Champions Centre Newark

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Contents: What is in these notes

Page Item

3 Who came to the Meeting

7 Who could not come to the Meeting

8 Welcome & Introductions

8 Ground Rules

8 Apologies – who couldn’t come to the meeting

9 Notes from the last Meeting

10 House Keeping / Your Personal Information

11 New People at Board

12 What is the Partnership Board

12 Action Log and Progress Chart

20 Nottinghamshire County Council Workforce Structure

28 Introduction - Melanie Brooks, Corporate Director –

Adult Social Care & Health

37 Tea Break

37 Board Theme... Employment (Discussion & Feedback)

46 Any Other Business

49 Dates for Board Meetings in 2020

50 Web links to new and useful information

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Who came to the Meeting

Boyd Elliott Chair / Councillor - Nottinghamshire County Council Mark Taylor Vice-Chair and Expert by Experience Representative Ainsley MacDonnell Service Director, Mid Nottinghamshire Nottinghamshire County Council Mercy Lett-Charnock Commissioning Manager – Nottinghamshire County Council Naomi Russell Group Manager – Mid Nottinghamshire – Nottinghamshire County Council Mandy Snowden Personal Assistant to Adult Social Care and Health Service Directors – Nottinghamshire County Council

Experts by Experience Representatives

David Barrett Expert by Experience Luke Hemstock Expert by Experience Dale Hartley Expert by Experience

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Carer Representatives Alyson Fisk Adrian Hartley Marek Melges Dianne Neal Jan Harding

Service Users and their support workers Donna Allsopp Expert by Experience Dean Claridge Expert by Experience Amanda Keeling Expert by Experience Eddie Morecroft Expert by Experience Carol Tuckwood Expert by Experience John Harty Day Service Support Worker, Nottinghamshire County Council Tony Henfrey Dale’s support worker Hayley Dobbs Dale’s support worker

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Parent Carers Joan Dunn Parent Carer Julie Hartley Parent Carer

Nottinghamshire County Council Board Representatives Konrad Bakalarczyk Access Officer - Nottinghamshire County Council Sarah Craggs Person Centred Training & Development Manager (Meeting Facilitator) – Nottinghamshire County Council Mercy Lett-Charnock Commissioning Manager - Nottinghamshire County Council Naomi Russell Group Manager – Mid Nottinghamshire – Nottinghamshire County Council

Health Representatives Georgina Irabor Student Nurse Marie McGahey Learning Disability Health Facilitator – Strategic Lead Sam Robinson Primary Care Liaison Nurse – Notts Healthcare Trust Stephanie Robinson NHS – Mansfield & Ashfield

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Facilitators and Employment service providers Ian Holland Team Manager Brooke Farm Work and Training HUB Jackie Anderson Brooke Farm Work and Training HUB Liam Field (Trainee) Brooke Farm Work and Training HUB Neil Pike Manager Ollerton & Boughton Recycling (ROB)Teresa Eyre Ollerton and Boughton Recycling (ROB) Catherine O’Bryne Public Health Commissioning Manager Nottinghamshire County Council Tracy Radford One Walk Organiser Jackie Ritson Job Centre Plus (Newark) Chris Sparrow Job Centre Plus (Lincoln) Vanessa Rochester Building Better Opportunities Towards Work Bridgette Shilton Team Manager - Adult Care Financial Services Nottinghamshire County Council Paul Stafford Senior Benefits Adviser Nottinghamshire County Council Jessica Tomlinson Graduate Management Trainee Nottinghamshire County Council

Providers / Other Attendees Sheila Place Councillor – Nottinghamshire County Council Wendy Adcock Friend of the Board Jenni French Commissioning Manager - Nottinghamshire County Council Lisa Geary Team Manager Newark Community Learning Disability Team Louise Harrison Nottinghamshire County Council

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Apologies -

Who could not come to the Meeting

Alan Rhodes Councillor – Nottinghamshire County Council Tony Harper Councillor – Nottinghamshire County Council Paul Henshaw Councillor – Nottinghamshire County Council Steve Vickers Councillor – Nottinghamshire County Council Muriel Weisz Councillor – Nottinghamshire County Council Yvonne Woodhead Councillor – Nottinghamshire County Council Jane McKay Group Manager – Nottinghamshire County Council Clare Gilbert Group Manager, Strategic Commissioning – Nottinghamshire County Council John Parrott Carer Representative Bryan Gray Business Development Percurra Ed Lowe Chair Disability Independent Advisory Group DIAG and Volunteer Networker – Healthwatch Nottingham and Nottinghamshire

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1. Welcome and Introductions Mark Taylor called order and asked people to take their seats as the Board meeting was about to start. Councillor Boyd Elliott and Mark welcomed people to today’s meeting

2. Ground Rules

Mark pointed out that the Ground Rules are on the tables. Mark asked people to have a look and to help each other to follow them.

3. Apologies

- who couldn’t come to the meeting

Mark asked for names of any people who have let us know they can’t come to today’s meeting. These are on page 7 of these notes.

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4. Meeting minutes from 26th September 2019

Mark Taylor checked everyone had seen a copy of the last meeting minutes. Mark said he would not be going through the minutes page-by-page. He asked people to say if anything was wrong and to give the page number.

Co-Production (page 33)

Adrian Hartley said that Co-Production had been discussed at the last Carers meeting. This was around the guidance for Disability Related Expenses (DRE).

This is money you need to spend because of your disability which should be included when working out what you need to pay towards your care and support. Adrian said carers didn’t feel that they had been involved with co-production on this issue.

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Konrad and Sarah Craggs agreed to talk with Bridgette Shilton and provide an update at the next meeting. This item has been added to the Action Log. No more corrections were asked for.

5. House Keeping Mark Taylor told people where the toilets are, where the fire exits are and where to meet if the fire alarm goes off.

6. Your information Konrad reminded people that the Board is a public meeting and what you say will been written down and put into the meeting notes.

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Only share information you are happy for others to know about. If there is anything that you do not want to be written down, please tell someone.

7. New People at the Board Konrad said if it is your first time at the Board meeting, welcome! Konrad asked everyone to spend a few minutes on your tables to introduce yourself; to say hello. He asked people to let Mandy Snowden have contact information. Mark Taylor asked everyone to stop their discussion so we could move onto the next part of the meeting.

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8. What is the Partnership Board Konrad said the Partnership Board works together with people with learning disabilities, autism, family carers and people who have a big say over local opportunities and services. Konrad said working together helps us make sure that Nottinghamshire is a good place to live for people with learning disabilities.

9. Action Log and Progress Chart

What we said we would do, and

What we have done

Konrad said the Progress Chart has been updated and a copy is displayed on the walls and in your papers. Konrad said have a look at the chart and let him know if anything needs changing or adding

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Konrad went through the Action Log.

Specialist Dentistry Adrian Hartley gave you an update. The last time the group met was June 2019. The group are waiting for a report from NHS England; these are the people responsible for specialist dentistry. The specialist dentistry working group agreed not to meet until the report was ready. Adrian said that even though Konrad had tried hard to arrange another meeting date, he had been unable to because the report was not ready.

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Adrian said that John Parrot has also been working with Mencap and the Challenging Behaviour Foundation. This is to help them have their say in an inquire by the Health and Social Care Committee. Adrian said the Health and Social Care Committee has now written a report. The report has found along with other things:

• Half of the specialist dentists are likely to retire in the next 10years

• But only a small number are training to take their place

Adrian said that Bassetlaw was one of the areas already affected by this. But it was also likely that Nottinghamshire would have the same problems in the future. Adrian said Councillor Steve Vickers has asked to be kept updated. Adrian said Councillor Vickers has now asked members of the Health & Wellbeing Board to look at this, to help move this forward.

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Employment Konrad Bakalarczyk said that people will be able to ask questions at the meeting today, as this is our theme.

Quality Checks Konrad said that Tracey Montgomery has provided an update and this is on the Board website and copies were available on the table at the back of the room. Konrad said the Quality Market Management team have been working with a group of people looking at how they can be involved in quality checks. They are now looking for volunteers to be included in the work they plan to do which will be checking learning disability services.

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Sarah Craggs talked about working with people who have care services (service users and carers) and looking at people having more say over quality. Sarah said if you want to volunteer to help with this, I will take some names today. Please tell me at break time if you are interested. Eddie Morecroft asked if it is paid work and Sarah said it is free (unpaid) as looking for volunteers. Good and Bad Information We have been working to make sure information we send out in letters is easier to understand. We have written an update report telling you what we have done so far. Konrad said people wanted us to improve how we write letters that go out to lots of people. We asked a group of people to have a look at the letters and suggested what would make it easier to understand.

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Sarah said that what you said had changed the letter and that an easy read 1-page sheet had been put together to go with every letter. Sarah said that as the trial had worked very well, Sarah and Konrad will be talking to the Senior Leadership Team in January about doing this for other information that goes out to lots of people. Sarah said that we will come back and update you after this meeting. Internet Pages

Konrad said we are asking for volunteers to have a look at the new website to see how useful it is to find things out. He asked for anyone interested, to give their name to Sarah.

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Direct Payment

Konrad mentioned a Direct Payment easy read report that was asked for at the last meeting. This has been done and a copy is on your tables and on the Board website. If you have any comments, please let Konrad know so he can make changes before it goes out to people.

Health Action Plans

Konrad said that he was asked about an updated version of the Health Action Plans on the Board website. Konrad has checked with Marie McGahey and the version we have is up to date.

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Expert by Experience – Fire Alarm at home

Konrad said that at the last Board meeting, Carol, in her workshop session, said she cannot hear the fire alarm in her home. This was because of a hearing impairment. Konrad said that he spoke to her keyworker at the day service where she lives to discuss this. The support staff contacted the fire service who within a week and a half had fitted a vibrating pad under her mattress and a new alarm. There was applause in the room.

Co-Production

Adrian Hartley asked for Co-Production to go on the Action Log.

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Support for people when they are in hospital

Naomi Russell said she will come back with an update on support when people are in hospital at the next Partnership Board meeting. Councillor Elliott thanked people for their comments and said that before we look at the meeting theme, Ainsley MacDonnell will talk about changes to the Nottinghamshire County Council workforce structure.

10. Nottinghamshire County Council Workforce

Structure

Ainsley MacDonnell talked about the Council’s Workforce Structure. This is about the staff the Council has working for them and what they do. Ainsley said we have been looking at services that work well and ones that could be better. Part of this is also to look at the staff we have, what they do and if this needs to change for the future.

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Ainsley said that service areas have been given new names. These are:

• Living Well

• Ageing Well

• Strategic Commissioning and Integration.

Ainsley talked about Older Adults Teams (Ageing Well) and Younger Adults teams (Living Well).

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Ainsley also talked about the transition’s pathway. This is what happens when people move from Children’s services to adult services. Ainsley said that the Strategic Commissioning and Integration Team will be making sure that services are in place in the areas that people live to offer the support people need. Ainsley said that there had been a lot of conversations with staff over the Summer. This helps us to plan what we needed to do. Ainsley said that we have a lot of staff on temporary contracts and this is not always the best way to run services. There were lots of reason for doing this, but we want to change to have more people on permanent contracts.

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Ainsley said that at the moment we have 240 full time temporary posts. In the new staff structure there will be less than 20 temporary posts. Ainsley said that she will be responsible for all the Living Well services. This will help teams to talk to each other which will help people with more than one need who have support from different teams. We want to have multi-speciality teams. This is where you will have specialist staff working in one team in one area. Ainsley said there is still work to do. We think these changes will help us maintain a highly skilled workforce who can provide the service people need.

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Jane Harding asked which age group the Living Well service area covers. Ainsley said Living Well will still have the same age range up to 65 as the current younger adults. However, people will stay with the team which best suits their needs. Dianne Neal asked if there is still going to be a younger adults and older adults split in the budgets. Ainsley said, yes, the way the Finance Team has to report back to the Government means there has to be a separate budget for under 65 and over 65 years old. However, the budget is to meet people’s needs, so money can be transferred between services. Naomi Russell said budget transfers happen a lot and needs a conversation between managers.

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This is so everyone is aware and doesn’t affect the support package being provided. Dianne Neal asked if we are saving money. Ainsley said, no, this is about making sure that services are right and that staffing is right to provide services people need. Ainsley talked about the future plans and said colleagues in Commissioning are doing a review. The review is looking at what the Council does now and what it needs to change for the future. Ainsley talked about the Shared Lives Scheme and said we are looking at how we can have more staff in this team. This will help us get more people to offer a Shared Lives place for people.

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Carol Tuckwood spoke about how she lives and is supported to do a lot herself. Sarah Craggs said that at a previous meeting, people came to talk about Shared Lives. Ainsley said Shared Lives is where someone goes to live with a family to learn skills and the family will provide support. Ainsley said we will be working more closely with County Enterprise Foods (CEF) so that we can do more things together. This service provides meals for people, including delivering to people’s homes. Ainsley talked about Brooke Farm and said that building work is happening to the café, shop and car park. This will provide more opportunities for training and helping people learn new skills.

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We are talking to staff about changes to their jobs. Dianne Neal asked if Nottinghamshire County Council owns Brooke Farm and Ainsley said, yes. Ainsley added that it will open again in the New Year. Ainsley talked about Maximising Independence Services (Adult Access). She said we want IWorks to work with Notts Enabling Service and move into the Maximising Independence Services. These are where all services which help people to be as independent as possible are together to sort out issues and meet people’s needs quickly. Ainsley said these services are open to everyone and anyone can be referred, whether new or already receiving help, who might benefit from the service. Ainsley said if you have any questions, to talk to her during the coffee break.

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11. Melanie Brooks, Corporate Director,

Adult Social Care and Health

- Introduction Mark Taylor welcomed Melanie and handed over for her to introduce herself to the Board. Melanie thanked you for inviting her to the Board meeting. Melanie talked about us providing services in a way that people want and talked about Adult Social Care, Health and Public Protection services. Experts by Experience members asked Melanie some questions.

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Luke asked…

• Where do you live? Melanie said she moved to Nottinghamshire in August and lives in Gamston with her husband and 2 children.

• What are your interests? Melanie said she enjoys running, mountain biking; likes being outdoors and doing active things. Melanie also said that she enjoys spending time with her children (when they are behaving!) – people laughed.

• What’s your best board game?

Melanie said she enjoys board games and playing ‘Risk’ is a favourite.

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Andrew asked….

• What is your favourite TV show? Melanie said she is currently enjoying watching War of the Worlds. Amanda Keeling said she likes watching Emmerdale. Melanie said she also likes watching Strictly and doesn’t like I’m A Celebrity Get Me Out of Here – doesn’t like bugs.

• What is your favourite colour?

Melanie said her favourite colour is purple.

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Carol asked…

• Where do you work? Melanie said she works at County Hall most of the time and also drives around Nottinghamshire most days. Melanie said her desk is at County Hall.

• Why do you work?

Melanie said she loves working and has been working since she was 11 years old. Melanie said she likes having money to do things and likes having a good place to live. Melanie said she really enjoys Adult Social Care as she loves working with people.

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• Have you been to a Pantomime?

Melanie said she has seen Aladdin and Wayne Sleep was in the production she watched.

• Where do you like to go on holiday? Anywhere that has mountains.

David asked…

• How long have you worked in Nottinghamshire?

Melanie said this is coming up to over 10 months now.

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• What experience do you have?

Melanie said her experience in work included having a paper round, working in kebab shops and super markets, advocate and Social Care (29 years).

Mark asked… • Have you ever been to a job centre?

Melanie said, yes, when she was 17 to look for work. Melanie said she has also been there as an Advocate / Social Worker and been there as a manager (projects how to get people into work).

• What was your first job? Melanie said this was as an Office Clerk (filing).

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Eddie Morecroft asked..

• What changes are you planning? Melanie said that Ainsley MacDonnell has talked about big changes and looking at how we work. Melanie talked about the Adult Social Care committee and a priority of improving Co-Production work. She said the vice chair and chair are working with her. Melanie also talked about looking at how we manage employment and how we support people with Learning Disabilities into work.

• Is there enough money?

Melanie talked about £300 million being spent on services. She said she was worried about future support and big care packages. She said that this year and next year is okay.

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Dianne Neal asked Melanie to say what she thought Co-Production is. Melanie said it is about working with other people to ensure you have a good life. It is about talking to people and having conversations with people who use services, staff and community. Dianne talked about reports on Co-Production and said that we talked about this in 2017 and nothing seems to be happening. Dianne said we haven’t got anywhere for 2 years. It is a continuous journey and improvement. Alyson Fisk talked about working in partnership as equals with carers, staff and councillors but didn’t mention inequality. Melanie Brooks said she agrees should be treated as equal partners.

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Sarah Craggs talked about it being equal in sharing and roles. She said it is finding a way to move forward. It is talking and understanding where people are coming from. She said we have to be careful we do not get stuck on a process or how we do co-production. Sarah said when we asked for volunteers to help with the quality work, that was an example of co-production. Melanie Brooks talked about equal partners and having different strengths, confidences, different views and interests, and trying to find a path to make things better. Jan said the Board is a big opportunity to bring issues to, as not everyone can come to smaller Co-Production meetings. Melanie Brooks said she agrees. But it is also talking to people in Day Centres, where people live, using Twitter and Facebook as well. Co-Production should get as many views as possible.

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There were no more questions and Melanie thanked everyone for the discussion.

12. Tea Break

Mark Taylor said there would now be a 15 minutes tea break. Board members were reminded to look at the information displayed on the walls and boards.

13. Board Theme….. Employment

Mark Taylor called order and asked people to return to their tables. Mark handed over to Sarah Craggs to explain what you would be doing next. Sarah said we have people here who work really hard to get people into work and asked facilitators for the workshop session to introduce themselves.

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Ian Holland – Brooke Farm (Employment training hub) Ian said he is here today to share information about services with a colleague, Jackie Anderson, and a trainee, Liam Field. IWorks – Sarah said leaflets are available today for people to look at and take away with them. Paul Stafford, Senior Benefits Advisor – Nottinghamshire

County Council Paul said he is here today to talk about the impact on benefits regarding employment and to play down myths. Paul said he will help with any information needed. Neil Pike – ROB Ollerton and Boughton Recycling – Neil said he is here today with his colleague, Teresa Eyre, to introduce individuals to what work is about. To talk about getting up and working as part of a team / providing support. Neil said he would also like to say a ‘thank you’ regarding the funeral collection at the last Board meeting. Neil said all got paid for and we achieved more than expected. He said the excess money will be donated to the British Heart Foundation. There was a round of applause.

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Chris Sparrow / Jackie Ritson – Job Centre (Newark) – Chris and Jackie said they were here today to talk about partnership working and lots of things we do with people – courses / work experience. Vanessa Rochester - Building Better Opportunities

Towards Works – Vanessa said she is here today to talk about removing barriers to accessing employment and trainers, etc. Catherine O’Byrne, Integrated Children and Young

People’s Healthcare Programme (CCYPH)

Programme Manager – Nottinghamshire County

Council Catherine said she would be taking about the benefits of working and health (long-term / well-being). Sarah Craggs said for people to talk and have a conversation in the table discussion session, which would follow what Dean and Amanda were going to tell you about.

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Getting a Job – What we found out Sarah said Dean and Amanda asked 12 people some questions. The people were chosen by Dean. Dean and Amanda shared the questions and answers with you… Have you had a job?

• 1 person said they used to have a job. • 5 people had worked as a volunteer.

Would you like to get a job?

• 6 people wanted to get a paid job. • 6 people didn’t want a job. • People talked about work being a good thing. Dean and Amanda said some comments which were

made were.. • I like helping people – feels good to help. • I have more freedom.

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• Getting out of the house – so I don’t go crazy. • Makes me feel good helping someone else. It is not

all about money. I meet lots of new people. • Having good friends. Carol Tuckwood said she used to work at Littlewoods in Nottingham and did till work, serving food, teas and coffee, and knew she could do these things. Carol said she can tell people what work is. She said some people got jobs back and others lost their job as Littlewoods closed. Carol said she enjoyed working and for people to come and talk if they have had a job. Eddie Morecroft said for people with a learning disability to have a job is really good. Eddie said, however, what about parents who are worried and hold you back. Sarah Craggs said to hold that thought and to think about and discuss at table.

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Dean and Amanda read out more of the questions they asked and the answers they were given… Where will you go to get a job?

• Job Centre Plus • Newspapers • Supermarkets • Talking to people • Not the internet (no one mentioned this) What people worried about?

• Doing the job wrong. • What would happen if I did not get the job. I would

feel very sad and bad. • Going to the interview would be scary. I don’t know

what questions would be asked and what to say.

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• Going to the job centre to talk about work and

money. It freaked me out because it was so busy. Confusing. I did not know what was going on or what to do. It was scary.

• If I would be on time. • Losing my friends (at the day centre) – missing

people. • My money, what happens if a job goes wrong. • I am worried about my benefits. What would happen

if it went wrong? I would have to reapply if it did not work out. A big headache, it would make me very ill.

What would help (ideas)

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• Have more things in pictures saying all the stages you

have to do to get a job. • Help me learn new things, like making a CV or using

the phone. • Make the job centre less scary.

• Make sure everyone (including staff) know what to do if someone wants to get a job.

• Let us talk to people who have got a job to find

things out. • Ask IWorks office to help think about type of job

wanted. You said ‘well done’ and gave a round of applause. Sarah Craggs said she now wanted people to have table discussions about the following question…

Apricot

Want

Apple

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What are some of the things we can do to help people

have a paid job? Sarah asked for each table to have someone to facilitate, someone to take notes and for someone to keep an eye on the time. Sarah said at the end of the session she would be asking for an action from each table – something which we can go away and do. Sarah asked people to move to tables and gave 25 minutes for discussions. When this time was over, Mark Taylor called order and handed over to Sarah. There will be a separate write up for you to see what was said.

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14. Any Other Business Mark Taylor asked if anyone would like to raise any other business. Jan Harding talked about Bassetlaw and the recent floods in the Worksop area. Jan said that lots of people with Learning Disabilities had been affected and had to move. They had lost lots of personal things. People moved out of homes and some have had to move up to 4 times. Jan said it has been incredibly upsetting for people who have lost personal items, such as videos. Mention of a special grant and trying to raise funds for them – 300 people have had to move. Dianne Neal said some service users have had to share a room and this has affected them, as they are used to being single. Dianne said day services are over-crowded and some service users are currently staying at the Station Hotel.

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Melanie Brooks talked about the welfare system and that we have people out there supporting. Melanie said we are in contact with Providers and lots of people have had to move for a while and we are trying to work to get people together. Dianne Neal asked why some people had been moved so many times. Melanie Brooks said this is to do with Emergency Planning and sadly we do not have places for people to move to that are readymade. Adrian Hartley talked about the death of a carer and Board member – Mr John Belcher – and said that his son, Christopher, is supporting is mother through this difficult and sad time. Adrian said there is a sympathy card on the back table for anyone who wishes to sign.

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Jenni French talked about the Housing & Support Strategy and thanked everyone for their help. Jenni said there is a version on the intranet (easy read) and copies can also be requested through Konrad. Konrad said there had been a question raised… Can

we have internet access in Day Services? – he said some have already got this, but a lot haven’t. Ainsley MacDonnell said she will pick-up and take back and have a conversation with our IT department. Ainsley said she will update at the next Board meeting.

Mark Taylor said the next meeting is on 13th February

2020 and thanked people for coming today. Mark

said goodbye. Konrad wished everyone a very Happy Christmas and New Year and Councillor Elliot said he would see everyone in the next decade.

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Dates for Meetings in 2020:

• Thursday, 13th February 2020

• Thursday, 23rd April 2020

• Thursday, 18th June 2020

• Thursday, 3rd September 2020

• Thursday, 22nd October 2020

• Thursday, 10th December 2020

All meetings will take place in the Champions Suite, Everyday Champions Centre, Jessop Close, Brunel Close, Newark, NG24 2ER from 10 am until 12.30 pm The website is at: http://www.everydaychampionscentre.org.uk/newark Meetings are public, so anyone can come along and see what we do. For more information about the Partnership Board, please visit our website at: www.nottscountypb.org

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Web links to new and useful information If you have information or websites that you think the Board would find useful, please let Mandy Snowden or Konrad Bakalarczyk know. Give us details of the website address and we will include them in the minutes.

Nottinghamshire Police: The Herbert Protocol

A system to help in the search for people living with Dementia-related illnesses

https://www.nottinghamshire.police.uk/advice/herbert-protocol