let’s talk about patients on
TRANSCRIPT
LET’S TALK ABOUT PATIENTS ON
WAITING LISTS FOR KIDNEYS …100,000 NEED THEM EVERY YEAR
JOHN RATHNAM
VISION ENTERPRISES, LLC
HOW MANY WILL RECEIVE KIDNEYS?
• IN S. CALIFORNIA 1 OUT OF 10 ON WAIT LIST!
• WHAT HAPPENS TO THE REST?
• HALF OF THE PATIENTS DO NOT QUALIFY FOR A KIDNEY AFTER 18 MONTHS.
WHAT DO WE TELL THE PATIENTS?
• GET ON THE WAITING LIST.
• THE WORKUP WILL TAKE 4 MONTHS.
• THE WAIT TIME IS 8 YEARS.
• GO ON DIALYSIS.
• GET A LIVING DONOR.
WHAT IS THE REALITY?
• CHANCE OF GETTING A CADAVER KIDNEY IS 10%.
• CHANCE OF GETTING A LIVING DONOR KIDNEY IS 3% IN SOUTHERN
CALIFORNIA.
• HALF OF THE PATIENTS WILL NOT QUALIFY, BECAUSE OF THEIR HEALTH, TO GET
A KIDNEY IN 18 MONTHS.
• MORE PATIENTS NEED KIDNEYS NOW AND FEWER KIDNEYS ARE AVAILABLE.
WHAT IS THE SOLUTION?P.E.F.F.
• PROACTIVE EDUCATION FOR FAMILY & FRIENDS.
WHAT, WHEN & HOW TO P.E.F.F.
• LET’S ANSWER WHAT?
• EDUCATING FAMILY & FRIENDS OF PATIENT.
• THE OVERALL NEED FOR KIDNEYS TODAY.
• WHY KIDNEYS FAIL?
• OPTIONS FOR TREATMENT-INCLUDING DIALYSIS OR TRANSPLANT.
• TRANSPLANT OUTCOMES ARE BETTER.
• SHORTAGE OF CADAVER KIDNEYS.
WHEN TO START EDUCATING?
• INITIAL EDUCATION AT ORIENTATION.
• MAKE PATIENT AWARE OF THE NEED FOR LIVING DONORS.
• HAVE PATIENT, CAREGIVER OR ADVOCATE IDENTIFY FAMILY MEMBERS & FRIENDS.
HOW TO EDUCATE FAMILY & FRIENDS?
• HAVE CAREGIVER/ADVOCATE INVITE FAMILY & FRIENDS TO THEIR HOME FOR A MEETING.
• MEETING TO BE A SOCIAL OCCASION WITH FOOD OR SNACKS IN THE EVENING OR WEEKEND.
• A TRAINED PRESENTER/EDUCATOR TO MAKE PRESENTATION HIGHLIGHTING THE NEED.
• HAVE A DONOR & RECIPIENT ATTEND.
• EMPHASIZE THAT DONORS DO NOT HAVE TO BE A MATCH.
HOW TO EDUCATE FAMILY & FRIENDS?
• EXPLAIN PAIRED MATCHING & CHAIN PROCEDURES.
• PRESENT APPROVED PRINTED BROCHURES.
• COLLECT FOLLOW UP INFORMATION FROM INTERESTED DONORS.
• DO NOT PREQUALIFY DONORS AT THIS MEETING.
• FOLLOW UP WITH INTERESTED DONORS.
• SCHEDULE APPROPRIATE TESTS.
WHEN YOU FIND WILLING DONORS?• EXPLAIN HOW IMPORTANT THEIR ROLE IS IN DONATING A KIDNEY AND
SAVING A LIFE. MAYBE NOT JUST FOR THEIR LOVED ONE BUT TO SOMEONE
UNKNOWN.
• THEY ARE “ANGELS”, AS ONE COORDINATOR PUT IT.
• ALLEVIATE THEIR CONCERNS ABOUT COST.
• TREAT THE DONOR AND RECIPIENT AS YOUR ONLY PATIENTS.