lydia x. z. brown, pedro ramos-zayasand tawara d. goode · content/trigger warning i will talk...

TECHNICAL ASSISTANCE INSTITUTEFrameworks for Achieving Cultural and Linguistic Competence in

Developmental Disabilities CouncilsJuly 12, 2017

Lydia X. Z. Brown, Pedro Ramos-Zayas and Tawara D. Goode

LYDIA X. Z. BROWNChairperson, Massachusetts Developmental Disabilities Council

ITACC: 2017 AIDD Technical Assistance Institute

PROPRIETARY NOTICE

These slides are proprietary material belonging to LYDIA X. Z. BROWN. You may not make this material available to the general public (including online) or share any

portion of this material without attribution. This document may be shared with attendees of NACDD 2017 only. To request permission to use these slides or portions of them for any other reason, you may contact me at [email protected]. Please also email me or have someone you know email me if this document is inaccessible to

you in any way.

ACCESS NOTE

Please use this space as you need or prefer.

Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, step in and out of the room.

CONTENT/TRIGGER WARNING

I will talk about trauma, abuse, violence, and murder of disabled people, as well as forced treatment and institutions, and other acts of

violence, including sexual violence.

Please feel free to step out of the room at any time if you need to.

LYDIA X. Z. BROWN@AutisticHoya

National Association of Councils on Developmental DisabilitiesTechnical Assistance Institute12 July 2017

ASIAN, QUEER, CRIPBEYOND CULTURAL COMPETENCE AND ALLYSHIP;

BECOMING ACCOMPLICES FOR JUSTICE

WAYS OF THINKING ABOUT DISABILITY

CharityInspiration

Moral Medical

DiversitySocial

Disability is tragic object of pityDisability is special barrier to overcome for benefit of others

Disability is moral failure and laziness / punishment for sin

Disability is a health problem requiring treatment/cure

Disability is a social construct, doesn’t exist in nature

Disability is natural and normal

DISABLEMENT (PRODUCT & PROCESS)

Society & Culture Biology & Neurology

DIVERSITY PARADIGM

Many Ways of Being Disability is Natural

PATHOLOGY PARADIGM

The One Normal Disability is Defect

DEFINING ABLEISM

An entire system of thinking and doing that hurts disabled people.

Ableism is a form of structural oppression.

UNDERSTANDING OPPRESSION

Systematic disenfranchisement of a particular group as a result of the power belonging to a

privileged group.

Oppression = prejudice + systems of power

ABLEISM WORKS ACROSS SYSTEMS

CLASSISM & CAPITALISM

ABLEISM

RACISM &WHITE SUPREMACY

HETEROSEXISM

SIZEISM(FAT-ANTAGONISM)

(TRANS)MISOGYNY

AGEISM & ADULTISM

SETTLER-COLONIALISM

PATRIARCHY

COLORISM

LOOKSISM

ABLEISMDISABLISM

SANISMMENTALISM

VIDISMAUDISM

HEALTHISMNEUROTYPICALISM

deformity as mental

retardation, crippled bodies

poverty as stupidity, laziness

homelessness as mental

illness

people of color as

psychotic, oppositional

defiant

women as neurotic, hysterical

queer & trans experience as mental illness,

social deviance

asexuality as sickness

abusers, murderers, rapists, cultists, terrorists as mentally ill

oppressive behavior, ideas, speech as crazy, psycho, dumb, stupid

“our minds work fine”“but we’re high-functioning”DISAVOWAL

presumption of disabled incompetence, incapacity, pathology

universal marginality of disability

ENDEMIC VIOLENCE AND ABUSE

Compliance

Seclusion

Indistinguishability Philosophy

Restraint Aversives

Rape & Sexual

Violence

Medical Neglect &

Abuse

Family Abuse and Filicide

Financial Exploitation

Police Brutality &

Mass Incarceration

Institutions

Hate Crimes

FEARS OF PERVERSE REPRODUCTION

• Intervention for pathology

• Sexual normativity

• Presumed incompetent

• Experiential knowledge questioned

• Denied parenting right (birth/adoption)

• Paternalism• Gender affirming

treatment contingency

• Desexualization• Infantilization• Physical

barriers• Incarceration

Denied Sexual Agency

Forced Sterilization

“Corrective” Rape

Presumptive Victimhood

Zero tolerance policies

Restraint & seclusion

School-to-prison pipeline

Police brutality

Mass incarceration

Hate crimes & abuse

Ableism and racism in society

Fear and hate in media and policy

ABLEISMIN CRIMINAL (IN)JUSTICE

Retraumatization in jails and prisons

Psychiatric institutions and

quasi-incarceration

Health neglect in jails and prisons

Protective custody / Solitary

confinement

Chattel slavery

Compliance training

Productivity as worth

Tuskegee syphilis

Rehabilitation discourse

Buck v. Bell

Henrietta Lacks

UNRULY BODIES

California prisoner

sterilizations

Fernald radiation experime

nts

Judge Rotenberg

Center

Convict leasing

War on

drugs

The asylum

Black Lives

Matter

Photo by Taylor C. Hall. White person, Shain Neumeier, and east Asian person, Lydia Brown, protesting Judge Rotenberg Center’s electric shock torture. Signs : 1) Stop the Shocks, 2) People Not Experiments, 3) Shocked for … [list of minor behaviors like getting up without permission] Ban the GED [graduated electronic decelerator].

Photo: A group of many people with various disabilities, of various races, genders, and ages, though most are 20's and 30's. Lydia is wearing a shirt with the power fist that says, The Whole Damn System Is Guilty As Hell. July 2016.

FROM RIGHTS TO JUSTICE

Rig

hts laws / enforcement

public policy

nonprofit orgs

state action

academia

institutional research

individual-focused

Just

ice society / culture

community alternatives

harm reduction

healing

intersectional

macro-change

collective power

ACKNOWLEDGEMENTS / ON THE SHOULDERS OF GIANTSAbla Abdelhadi, A.J. Withers, Alexis Toliver, Alice Wong, Alison Kafer, Alok Vaid-Menon, Amy Sequenzia,

Angela Carter, Angela Y. Davis, Ari Ne‘eman, Arthur Shapiro, Arundhati Roy, Assata Shakur, Ashleigh Shackelford, Aurora Levins Morales, bell hooks, Cara Page, Chanda Hsu Prescod-Weinstein, Che Gossett,

Chris Bell, Christine Miserandino, Cyrée Jarelle Johnson, Douglas Biklen, Edward Ndopu, Eli Clare, Finn Gardiner, Giselle Dias, Janani Bala, Jay Dolmage, Jim Sinclair, Jina B. Kim, Joan Ruzsa, Joe Kadi, Johanna

Hedva, Julia Sanders, Kaijaii Gomez Wick, Karen Nakamura, Kassiane A. Sibley, Kat Yang Stevens, Kathleen Nicole O’Neal, Kay Ulanday Barrett, Kerima Çevik, kiran foster, Ki’tay D. Davidson, Kiese Laymon, Kimberlé Williams Crenshaw, Kylie Marie Brooks, Leah Lakshmi Piepzna-Samarasinha, Lee

Lyubov, Leroy F. Moore, Jr., Liat Ben-Moshe, Margaret Price, Mariama Lockington, Mel Baggs, Melanie Yergeau, Mia Mingus, Mimi Khúc, Morénike Giwa Onaiwu, Nai Damato, Najma (Stephanie D. Johnson), Natalia M. Rivera Morales, Nechama Sammet-Moring, Ngọc Loan Trần, Nick Walker, Nirmala Erevelles,

Nora Baladerian, Omoróse Añyá, Pat A. Bidol-Padva, Patricia Berne, Paula C. Durbin-Westby, Porpentine Charity Heartscape, Ragen Chastain, Robert McRuer, Rosemarie Garland-Thompson, s.e. smith, Sami Schalk, Shain Mahaffey Neumeier, Shak’ar Mujukian, Simi Linton, Sparrow Rose Jones, Stacey Patton,

Stephanie Kerschbaum, Susan Baglieri , Susan M. Schweik, Stella Young, Syrus Ware, Talila “TL” A. Lewis, Tom Shakespeare, Victoria M. Rodríguez-Roldán, Vilissa K. Thompson, Vu Le

[email protected]

www.autistichoya.com (blog)

www.autistichoya.net (portfolio)

www.facebook.com/autistic.hoya

Twitter: @AutisticHoya

Slides are intellectual property of Lydia X. Z. Brown | Autistic Hoya and may only be shared with permission.

PEDRO RAMOS-ZAYASMember, Puerto Rico Council on Developmental Disabilities

ITACC: 2017 AIDD Technical Assistance Institute

2017 Technical Assistance Institute Salt Lake City, UT

July 12, 2017

Frameworks for Achieving Cultural and Linguistic Competence in Developmental Disabilities Councils

Tawara D. Goode

July 12, 2017

OBJECTIVES

Participants will:1. Define culture and describe its multiple dimensions including

intersecting identities experienced by individuals with developmental disabilities.

2. Describe a conceptual framework for cultural competence and its implications for the core functions of Developmental Disabilities Councils.

3. Define linguistic competence and legal mandates to ensure language access for federally funded programs.

Slide Source:© 2017 ‐ Georgetown University National Center for Cultural Competence

We can’t really talk about cultural competence without first having a solid

understanding of …


WHAT WE KNOW ABOUT CULTURE

Culture is what we learn about ourselves and others from the time when we are born.

Culture includes how we think, talk, believe, interact, behave with others.

Many times we think about and only see our culture. It may be hard for us to see things the way another person may see or experience them.

Culture is dynamic some things within a culture remain the same (traditions, rituals, practices) while others are constantly changing.


Intersectionality

We all have many cultural identities. For example you may identify as a: self‐advocate, counselor,

brother, painter, parent, nurse, teacher, or singer.


ORGANIZATIONAL CULTURE

People have cultures and so do organizations. Think about DD Councils, what they do, how members work together, what policies and rules they follow, how meetings are conducted, and how funds are spent. This is called organizational culture.


Cultural Factors That Influence Diversity Among Individuals and Groups

Adapted with permission from James Mason, Ph.D., NCCC Senior Consultant

Cultural/Racial/Ethnic IdentityTribal Affiliation/ClanNationalityAcculturation/AssimilationSocioeconomic Status/ClassEducationLanguageLiteracyFamily ConstellationSocial HistoryMilitary StatusPerception of TimeHealth Beliefs & Practices

Internal FactorsHealth & Mental Health LiteracyBeliefs about Disability or Mental Health Lived Experience of Disability or Mental Illness Age & Life Cycle IssuesGender, Gender Identity & Expression Sexual OrientationReligion & Spiritual ViewsSpatial & Regional Patterns Political Orientation/Affiliation


VIEWS ON DISABILITY & RACIAL AND ETHNIC IDENTITY

Some people do not think that their disability defines who they are and view disability as only one aspect of their identity.

Some people mostly identify with their: race or ethnicity disability

Everyone does not experience and express disability, race, and ethnicity the same way.

SOURCE: Gill, C. & Cross, W. (2010). Disability Identity and Racial‐Cultural Identity Development: Points of Convergence, Divergence and Interplay. In F. Balcazar, Y. Suarez‐Balcazar, T. Taylor‐Ritzler, & C. Keys (Eds.), Race, Culture, and Disability: Rehabilitation Science and Practice. Sudbury, MA: Jones and Bartlett Publishers

Slide Source:© 2017 - Georgetown University National Center for Cultural Competence

Now that we have defined culture, and explored its multiple dimensions, let’s spend time discussing what is:

cultural competence

linguistic competence

Slide Source:© 2017 - Georgetown University National Center for Cultural Competence

Cultural competence requires that

organizations have a clearly defined,

congruent set of values and principles, and

demonstrate behaviors, attitudes, policies,

structures, and practices that enable them to work effectively cross‐

culturally.

(adapted from Cross, Bazron, Dennis & Isaacs, 1989.

Policies

Structures

PracticesBehaviors

Attitudes

Cultural Competence

Cultural Competence Conceptual Framework


… means that Councils

have to look at their policies,

the work that they do,

who their members are,

and how to make sure that they are representative, inclusive, and welcoming to all people no matter race, ethnicity, culture, gender, sexual orientation, languages spoken, and other attributes of cultural diversity.

Five Elements of Cultural CompetenceINDIVIDUAL LEVEL

acknowledge cultural differences

understand your own culture

engage in self‐assessment

acquire cultural knowledge & skills

view behavior within a cultural context

1

2

3

4

5

(Cross, Bazron, Dennis and Isaacs, 1989)Slide Source:© 2017 ‐ Georgetown University National Center for Cultural Competence

1• value diversity

2• conduct self‐assessment

3•manage the dynamics of difference

4• institutionalize/embed cultural knowledge

5• adapt to diversity (values, polices, structures & services)

Five Elements of Cultural CompetenceORGANIZATIONAL LEVEL

(Cross, Bazron, Dennis and Isaacs, 1989) Slide Source:© 2017 ‐ Georgetown University National Center for Cultural Competence

ESSENTIAL ELEMENTS IN ACULTURALLY COMPETENT SYSTEM

Slide Source:© 2011 ‐ National Center for Cultural Competence

policy making

administration

practice & service delivery

individuals, self-advocates, families

community

These five elements must be manifested at every level of an organization or system including:

and reflected in its attitudes, structures, policies, practices, and services.

Adapted from Cross, Bazron, Dennis, & Isaacs, 1989 Slide Source:© 2017 ‐ Georgetown University National Center for Cultural Competence

Councils have to make sure that they can communicate effectively with all of its members and the people they serve, support, partner, and advocate with and on behalf of.

Councils have to plan for and have ways to do it.

That Councils can help people who: (1) speak languages other than English; (2) have trouble reading or cannot read; (3) use sign language and may need an interpreter; or (4) have other communication needs.

Councils have to follow the laws about making sure people who speak languages other than English can: (1) access meetings and other forms of written and verbal communication; (2) benefit from funded projects.

Linguistic Competence Means…

Goode & Jones, Revised 2009, National Center for Cultural Competence Slide Source:© 2017 ‐ Georgetown University National Center for Cultural Competence

CORE FUNCTIONS:

What we do

FISCAL RESOURCES & ALLOCATION:

Where the money goes

COLLABORATION & COMMUNITY ENGAGEMENT:

Who are partners are

HUMAN RESOURCES & STAFF DEVELOPMENT:

Who we are

CONTRACTS:

Whom we trust to deliver services and supports

CLC KEY CONSIDERATIONS

Slide Source:© 2017 TD Goode ‐ Georgetown University National Center for Cultural Competence


Membership State Plan Grants Advocacy, Self‐Advocacy & Capacity Building

Cultural and Linguistic Competence applies to all Council Core Functions

CONTACT US

Georgetown University National Center for Cultural Competencehttp://[email protected]

The content of and this PowerPoint presentation are copyrighted and are protected by Georgetown University's copyright policies.

Permission is granted to use this PowerPoint presentation in its entirety and/or individual slides for non-commercial purposes if:

the material is not to be altered and• proper credit is given to the author(s) and to the National Center for Cultural Competence.

Permission is required if the material is to be:• modified in any way • used in broad distribution.

To request permission and for more information, contact [email protected].

lydia x. z. brown, pedro ramos-zayasand tawara d. goode · content/trigger warning i will talk...

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