makingevery connection count€¦ · in an oversized coat, baggy sweatpants, a scarf across her...

2013 PROGRESS REPORT

MakinG EvERy COnnECTiOn COunT

OuR viSiOn

a world free of MS.

OuR MiSSiOn

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.National Multiple Sclerosis Society

Founded in 1946, the National Multiple Sclerosis Society has affiliated Chapters serving each of the 50 states including Wisconsin, all striving to address the challenges of living with MS. Research is at the forefront of these initiatives, and thanks to the generosity of volunteers, donors and fundraisers, the Society is funding more MS research, providing more services to people with MS, offering more professional education and furthering more advocacy efforts than any other nonprofit MS organization in the world.

MS in Wisconsin

More than 11,000 children, women and men in Wisconsin have been diagnosed with MS, giving the state what is believed to be one of the higher prevalence rates in the nation. Headquartered in Hartland, the Wisconsin Chapter proudly serves those individuals as well as those who love and care for them.

David Rodgers, ChairBriggs & Stratton Corporation

Michael Lutze, Vice ChairErnst & Young

Tom Golden, Vice ChairM3 Insurance Solutions, Inc.

Pamela Evason, Vice ChairWindermere Wealth Advisors, LLC

James Rose, TreasurerBaker Tilly Virchow Krause, LLP

Robert Sowinski, SecretaryDiversified Insurance Solutions

Kenneth Minor, Past ChairSonic Foundry, Inc.

Colleen Kalt, President & CEONational MS Society- Wisconsin Chapter

Anne BrouwerMcMillianDoolittle, LLP

Robert Buhler Open Pantry Food Marts of Wisconsin, Inc.

Dennis ChristiansenSecured Retirement Strategies Group, LLC

Robert EngelRetired, M&I Bank

Paul JonesHarley-Davidson, Inc.

Wayne LarsenLadish Company Foundation

Martin McLaughlinReinhart Boerner Van Deuren, s.c.

David RaysichPlunkett Raysich Architects

Jeffrey SterenSteren Management/McDonald’s

Robyn TurtenwaldCommunity Advocate

2013Board of Trustees

2013 Progress Report 3

Wisconsin Chapter President & CEO Colleen G. Kalt with Board Chair David Rodgers.

Connections count.

They’re what multiple sclerosis destroys, but they’re also the way we will win against this

disease. By working together – by connecting with each other – together we drive research for

better treatments, provide programs and offer services that help those affected by MS live their

best lives until a cure is found.

You are one of those connections. That is why we are proud to present you with this report

for 2013. It illustrates the progress you helped achieve in Wisconsin, across the nation and

around the world.

And while the Society is actively collaborating on a global level so that every promising path –

every potential connection – to a cure can be pursued, our Chapter remains dedicated to every

local, personal connection to MS that drives each of us to do more. You’ll see one of those

examples highlighted in these pages as we share the story of Mitch and Sandy Maier and the

intersecting connections that deepened their

involvement with the MS movement last year.

Thank you for being part of that movement, too.

And for making sure that your connection counts.

David Rodgers Colleen G. KaltBoard Chair President & CEO

That’s how the letter requesting financial assistance began. It was October and Sandy wanted to buy a bicycle so she could exercise on her own.

It had been her husband’s idea. Mitch Maier thought a bike would give Sandy a way to get out of the house and exercise while giving them both something they could do together. He stopped at Wildside Adventure Sports in Baraboo and explained his situation to the man behind the counter.

“He explained he had a wife he loves but who is unhappy because she’s losing her independence,” recalled that man behind the counter, Jeff Vogtschaller.

“Hi, My naME iS Sandy MaiER and

i WaS diaGnOSEd WiTH MS in 1999.

i SPEnd MOST Of My TiME in a

WHEElCHaiR and Can dO a liTTlE

BiT Of WalkinG WiTH a fOREaRM

CRuTCH. aCTually, i COnSidER MySElf

vERy fORTunaTE COnSidERinG THE

POTEnTial THiS diSEaSE HaS TO REally

MESS THinGS uP.”

The Cycle of Connection

4 national Multiple Sclerosis Society-Wisconsin Chapter

“The happiness she has demonstrated is more about her independence than the bicycle itself,” says Mitch

Maier of his wife of 28 years, Sandy (shown here with their grandsons and fellow Bike MS team member

Ann Vogtschaller). They rode together in the Bike MS: TOYOTA Best Dam Bike Ride for the first time in 2013

and raised money as a way of giving back to the Society.

Jeff, who happened to be a long-time Bike MS: TOYOTA Best Dam Bike Ride participant, suggested a recumbent tricycle. It would allow Sandy to ride independently while helping her maintain balance. The challenge was the price. It was more than the couple of 28 years could afford.

That’s where the National Multiple Sclerosis Society-Wisconsin Chapter came in. Jeff knew from his years riding with Sonic Streamers, a Bike MS team, that donations to the Society were used for MS-related research, programs and services. He knew that included a financial assistance program to help people with MS maintain their independence. He suggested the program to the Maiers, and not long after, with support from the Chapter, delivered a recumbent bike to their home.

“Mitch comes in the following week, doesn’t say anything and gives me a hug,” Jeff described. “He said, ‘You can’t imagine how much it’s changed my life and Sandy’s life.’”

“The happiness Sandy has demonstrated since is more about her independence than the bicycle itself,” Mitch wrote in a thank you letter to the Wisconsin Chapter, describing how Sandy spent hours riding in November and December, bundled in an oversized coat, baggy sweatpants, a scarf across her face and mismatched gloves. “I stood there in the cold and my eyes started to tear up. I knew exactly how important that bike was to her.”

It’s a feeling the Maiers wanted others to know, too. They joined the Sonic Streamers team for the 30th annual Bike MS: TOYOTA Best Dam Bike Ride

in order to generate awareness and raise money as a way of giving back to the Society.

“For me, riding means freedom, independence and almost no pain compared to other exercises I have done,” Sandy said. “I have seen and heard zillions of stories on how MS has taken away the ability to do the normal everyday things that people who have their health do. As long as I am capable of riding and helping others, I WILL!”


In addition to providing a way to exercise – which research is showing is beneficial in living with MS –Sandy’s bike gives her mobility and freedom.

“She’s suddenly an independent person again. She really can go to the store, go to visit a friend,” says Jeff Vogtschaller, who suggested the National MS Society’s donor-supported financial assistance program to Sandy and her

husband, Mitch. “She’s a happy camper.”

“It’s amazing,” Sandy Maier says of the recumbent tricycle she received thanks in part to the support of National MS Society

donors. “I can’t tell you how much I appreciate it.”

Connections in Research


Stopping MS n The oral therapy Tecfidera was approved by the FDA for relapsing MS.

n The Society joined with the National Institutes of Health to launch a therapy trial of the re-purposed therapy ibudilast in primary-progressive and secondary-progressive MS.

n Researchers found a possible “biomarker” or indicator that may help predict MS disease progression.

Restoring What’s Been lost n The first Phase 2 trial was launched of an investigational therapy aimed at stimulating myelin repair in

people with MS.

n Two mouse studies in the U.S. and Italy showed the potential of stem cells derived from the skin for growing new myelin and for reducing nervous system damage.

n Three studies provided clues to nervous system damage and factors controlling myelin repair, which could lead to promising new therapeutic approaches to myelin repair for restoring function in people with MS.

Ending MS forever n Progress was made in identifying factors that may combine to increase a person’s chances of developing

MS, such as specific genes, infections and lifestyle factors.

n New studies reported that eating fatty fish has the potential to reduce the risk of developing MS, and that smoking increases the risk of developing MS, as does obesity in girls.

n A global consortium identified 48 new MS risk genes, information that better defines the biological pathways leading to MS and may lead to ways to prevent the disease and improve treatments.

The National Multiple Sclerosis Society continues to pursue all promising paths to uncover solutions for everyone with MS, wherever those opportunities exist, with particular focus on progressive MS, nervous system repair and wellness and lifestyle. The significant research progress that occurred in 2013 offers new leads in stopping MS, restoring lost function and ending MS forever. Some of those highlights included:

Visit www.nationalMSsociety.org/news for the most up-to-date reports on recent research progress.


Connections were made with more than 130 women and men who disclosed to the Chapter that they were newly diagnosed with MS.

Each received follow-up phone calls and educational material specific to

their diagnosis and needs.

Chapter representatives made more than 70 visits to MS clinics throughout the year and met with nearly 340 clients interested in

information or who had questions related to MS.

Four new self-help groups were added in Wisconsin. Forty groups are operating throughout the

state, serving approximately 600 people with MS or who are caregivers for someone with MS.

More than $95,000 was provided in financial assistance to 123 individuals to help improve their quality of life and maintain their independence. Items provided included wheel chairs and wheel chair

accessories, in-home therapy, respite care, home and auto modifications,

and more.

MS College Scholarships totaling $43,000 were awarded to 21 Wisconsin students, including one who was recognized as a National Top Scholar.

MS Camp Scholarships totaling more than $9,000 were provided to 24 children from families affected by MS, allowing them to attend the accredited Wisconsin summer camp of their choice

for up to one week.

Nearly 300 individuals affected by MS participated in free, monthly teleconferences designed to make it easier for people to access information on living with MS. Topics included employment, disaster

preparedness, fall prevention, exercise

and cognition.

Chapter Highlights from 2013


The annual MS Summit was held during MS Awareness Week. Nearly 175 attendees heard

from six leading Wisconsin MS researchers about the latest in understanding and treating MS.

MS Research NOW speaker series events were held in La Crosse and Milwaukee, providing nearly 100 individuals affected by MS with an

opportunity to learn from Wisconsin researchers Colleen Hayes, Ph.D.,

and Aaron Field, M.D., Ph.D.

On the Move Madison, a fundraising event to support MS research, was held in September at the Madison Children’s Museum. It included a

research update by Aaron Field, M.D., Ph.D. More than $25,000 was raised.

MS Connection magazine was delivered to more than 30,000 households each quarter and included helpful information on financial

planning, applying for Social Security Disability Insurance and more.

Bonnie Dittel, Ph.D., was inducted into the National MS Society’s Volunteer Hall of Fame for her work as a top scientific researcher.


Nearly 1,000 letters and emails were delivered to 120 Wisconsin state representatives and senators in Madison on World MS Day, thanking them for their past support of MS-related issues and asking

for continued assistance in the future.

More than 100 MS outreach and educational opportunities were

provided throughout Wisconsin in 2013.

Walk MS rallied more than 11,000 walkers and 550 volunteers at 18 walk sites throughout Wisconsin in the spring. Together they

raised $1.3 million.

The MS Snowmobile Tour and Bike MS: TOYOTA Best Dam Bike Ride both celebrated 30th Anniversaries in 2013. The snowmobile event,

held January 24-26, raised more than $300,000, putting its 30-year fundraising

total at $6.7 million. The Best Dam Bike Ride brought together more than

1,700 cyclists and volunteers August 3-4 who raised $1.4 million, bringing

its 30-year total to $24.5 million.

Challenge Walk MS brought together more than 200 walkers and volunteers for the three-

day, 50-mile walk through Door County, Wisconsin, September 20-22. Together they raised more

than $400,000.


PATRON $50,000 –$249,999 Community Health Charities of WIFisher Barton IncMartin and June HillertMSRUNTHEUS Inc – Ashley KumlienAnonymous (2) •

CHAMPiON $10,000 –$49,999American Family Mutual Insurance CompanyAO Smith FoundationApple Holler Charity FundraisingArrowhead High School Girls Soccer ProgramJohn Earl BaumgartFather Charles R Brooks •Open Pantry Food Marts Of WisconsinDennis Christiansen and Kathleen Burchby •CR Canvas SpecialtiesCure MS Wisconsin – Kate BertramThe deJong Family •Edward U Demmer Foundation •Eric and Karen Dermond •Elizabeth Elser Doolittle Charitable Trusts •Michael and Jenny EganEpic Systems CorporationSheri GavinThe Guendert FamilyBecky HallJohn A HauptThomas and Patricia Heller

Schreiber Foods IncSharp Packaging IncRobert and Mary Sowinski •Paul D StoltmanDwayne and Maria SweeneyRochelle ThomasOlive I & Eunice J Toussaint FoundationUnited Way of Greater MilwaukeeLenore VanSanten In Honor of Nancy Bryce •

FRiEND $5,000 –$9,999Ace Precision Machining CorpThe Alley Family Anonymous (2)Auto Paint & SupplyKen and Sharon BareBennett BersonDave and Gail BlavatMichael and Carie BoldtJoseph and Nancy BoppreJack and Tara BreunigBriggs and Stratton CorporationBrill Area Sportsmans ClubGerardo and Cynthia Caballero •Terry L CampbellThe Casella Family • Paulanne ChelfAnn L ChristiansonJeremy and Heidi CrullDamn Yankees Wateringhole LLCCorey Dintelman and Pamela DvorakDuck Creek CampgroundThe Engebos Family

Help Find A Cure For MS BenefitDouglas and Jane Jacobson •Evan and Linda JaegerErick Jones and Lori DeNobleKevin and Marianne JorgensenThe Kamnetz FamilyDavid and Karen KaphingstKohl’sThousand Hills Foundation IncLadish Company Foundation •Wayne and Debra Larsen •Helen M LarsonBarbara M LenzElizabeth Stewart Long •The Machi FamilyTom and Edwardine Magnus •Daniel and Patricia McKeithan •Milton Family Recreation IncThe Minor Family •Northwestern Mutual FoundationThe Pagel Family – 8th Annual Fighting MS Golf EventConnie Plier and Diana BruckertKathleen Poblocki •Puelicher Foundation IncThe Bell Family and Rabbits Unlimited LimitedBen and Tanya RomeneskoSams Club #8164The Sandstrom FamilyAndy and Lindsey ScherwinskiDave and Karla SchmidtRobert and Mary SchmidtStephen and Jane SchmiedingLori M Schneider •

2013 Donors and FundraisersGifts received October 1, 2012 – September 30, 2013

THank yOu

• Designates members of Golden Circle, who make a personal annual gift of $1,000 or more.


Robert and Susan Engel •The Erschen FamilyFirst Merit BankKatie FitzmierGarry R FraboniBruce and Linda FreiDavid and Ann FreigangAngela GeninThe Gilman FamilyGordon Flesch Charitable FoundationThe Halverson FamilyJill HassenfeltHeartland Produce CoHM Graphics IncHudson-Mairet FamilyMilton and Sarah HwangMark and Sara JappinenJeffrey and Susan JohnsonJill Eileen JonesJesse B Juedes Colleen G Kalt •Sam and Bonnie KlikaRobert and Debbie KnudsonKohl’s CARES Matching ProgramLeah’s Ladies Harry and Kay LumMichael and Lori Lutze •Lux Foundation •Anthony Quinn Maass •Mainz FamilyKevin and Wendy McCarthyThe Meinking FamilyEd and Celeste MichalskiThe Milbrath FamilyJohn and Janet MillerMichael MillerMilwaukee Brewers Baseball Club LPJim and Kim MuszynskiNational Association of Theater Owners of Wisconsin and Upper MichiganThe Noltner FamilyMichael Olah and Sara Motisi OlahCharles and Nancy OLearyStephen and Lori Pagelow •King and Martha PierceRacine Community Foundation Inc •David and Kaia ReichenbacherJohn E ReyzerDavid and Jamie Rodgers •Jerry and Barbara RyanCurtis and Jen SauserSCA Tissue North America LLC

The Courtney FamilyCR Meyer and Sons CompanyThe Croal FamilyMichael and Eileen CroalCroal and Associates IncCroal OpenRalph and Kathy CrullToni DahmsDaniel and Wendy DallmanGarry and Cheryl DeckerThe Decremer FamilyDeForest Towne Center AssocHarold and Elizabeth DettingerDiversified Insurance SolutionsCharles and Joan Marie Dorgan •The Doroteo FamilyJohn M DownsRobert and Donna DraegerCory A DullJames A Engel •Engel Tool and Forge Co IncThe Erdmann FamilyDelores ErrthumDavid and Lisa FayFirst Business BankThe Fistler Family

The Freeman FamilyKyle and Britney FryeJay and Janet FulkersonThe Gehrke FamilyThe Gilbertson FamilyThe Gingold FamilyTroy GirolamoKent and Judy Goeckermann and Sharon HeinzenThe Golden Family •

Mark and Kathleen SchauderRichard Schauss and Anne Brouwer •The Steren FamilyThe Teuscher Family •Tyco Electronics Matching Gifts ProgramStacey J VanRensThe Voight FamilyWalk With Strength – Zachariah Mielke In Honor of Liz Whiest •

LEADER $2,500 - $4,999Nancy C AliotaDavid and Ute Anderson •Bob and Anne Angeli AnonymousThe Arvan FamilyAssociation of Wisconsin Snowmobile Clubs IncKurt and Traci AumuellerThe Bagley FamilyBaird Foundation IncThe Barbian FamilyKelli Barsness-OchsRichard and Susan BatchelderJoseph and Jane BauerRichard and Renee BauerMary Ellen and Goff Beach Family FoundationJoseph and Patricia BeineThe Below FamilyKristine J BenedictBuck BerceThe Berg FamilyGeoff and Erin BergwallThe Bloomenkranz FamilyErv and Mary BluemnerBrady FamilyDavid and Lisa BrennanShane and Michelle ButtchenCaleb and Lori CallahanThomas and Janet Marie CarlstedtMary C CarrauxBobbi L CarrelRachel ChristensonElizabeth K ChristiansenScott and Kristine ClarkDaniel and Wendy ClauszIn Honor of Lisa Clements and In Memory of Ken MarvesonCommunity First Credit UnionJames and Jennifer Conigliaro


The Govek FamilyRichard and Dorothy GovekRick GovekJohn and Penny GraffJames M GreenThe Grimstad FamilySteven and Heidi GrinkerJeff and Susan GrzeskowiakHach LLCThe Hall FamilyAlex and Jillian HartlaubKathy HartmanJosh and Tracy HasenohrlThe Heal FamilyThe Helm Family •HFCS Transport CompanyThe Hill FamilyThe Holen FamilyJerome and Dorothy Holz Family Foundation •Eric and Robin HonishEric and Sharon Hovde •Nicholas and Nikki HoweBetsy M HuffordRick F HuhnRide for Clyde – Dawn JanischDenise M JohnsonJere and Peggy JohnsonMichael P JohnsonStephanie L JohnsonRobert and Kelly JordanFather James and Judith KaestnerThe Karsten FamilyKathy’s KauseDerek and Carol KawleskiDavid N KerseyRobert M KlimoskiJoseph W KmochJason KoenigTod Michael KolinskiLori Kolosowsky and Sally EubanksNancy KowalskiDonald and Jo Anne Krause •David and Julie KrelingPam KrigerKeith KunugiBill and Karen LarsonWalk MS Team: Go CR Meyer!Gary Lawrence and Elizabeth PageRon and Pat LenzM3 Insurance Solutions for Business

The Pielage FamilyJoe PitterleJanice J PluerPower Test IncChristopher T PriceEdward and Keri PriceRaymond and Cindy ProeberHeath and Linda PucelThe Pyfferoen FamilyDoug QuesnellMichelle ReinenRexnord FoundationsMarian and Molly RezelEric and Breanna RiesThomas D RistauThe Roewer FamilyMelvyn and Lori RousseauBrad and Tina RuhRebecca S SandlinCheryl SandnerTed and Molly SchmidtThe Schoenick FamilyMark and Kari SchuhDebra A SeilerMatthew and Joretta ShinnersAndy and Kelly SkarbekStacy Lynn SkibbaRose SlatteryDale and Nina SlowikSmart Choice MRIScott and Brenda SmithThe Socha FamilyRobert and Joan SorensenEric and Maryellen SoverThe Steven Family •Ed and Naomi StewartJoyce D StonerThe Sydow Family

Tony Machi Fruits and Vegetables IncThe Mackesey FamilyScott and Linda MadarikJulie A MaddenMadison Gas and Electric Foundation IncAlok and Zia MaskaraPaul and Karen MatteoniRalph and Donna MayerMayo Clinic Health SystemMcKinnon FamilyFran McLaughlinRoss and Vicki McVeyRhody and Carolyn Megal •Joe and Lisa MeyerKaren M MichelMichels CorporationMidwest Well Drilling and Hydro-Fracturing LLCAmy A MillerDuane and Deborah MillerEileen A MillerJay M MinorikKari and Ashlee MoeGordon H and Judith B Moore Family TrustRandy MurdockNeighborhood Pub IncAutumn N NeugentMichael S NoltnerSue and Evan NondorfMatthew P ODonnellThe O’Hare Wealth Management Group – Merrill LynchThe Olson Family •The Osiecki FamilyTim and Liza PagelThe Perna FamilyRandy and Mary Peterson


Jack DeLoss Taylor Charitable TrustTee’d Off At MS John and Sally ThomsenThe Christopher Thompson FamilyDarrek and Kristi TravisTom and Judie TrepczykRobyn A Turtenwald

Bill M TwiegDavid V Uihlein Foundation Barbra R Unertl •UW HealthMatt R Vande SluntDaniel and Jenna VernonThe Vick Family David G and Nancy B Walsh Family Foundation LTDMolly Walsh •Waukesha Co Comm Fdn Megal Fund •The Weber FamilyKathleen A WeinkaufRichard and Barbara Weiss •Gary and Beverly WelchWelsh Prairie Livewires 4-HJeffrey and Dawn WenzelWheaton Franciscan Services IncKelly K WhitneyThe Wittmann FamilyJoseph and Tina YoungJeremy and Casey ZurekMark and Shelley Zvonar

MEMBER $1,000 - $2,499Abbot Pennings HS ReunionDennis J Abere Matthew and Wendi AdamsScotti AdrianJoe W Aliota

Big Bend Elementary SchoolGary F BillingtonThe Binder FamilyMatthew J BinghamJeanne L BishopMike BishopMerrilee BlackmerCody and Rebecca BlauertSonya BleierMelissa M BlettnerSol Z BloomenkranzBj and Annie BockhopJames and Janet BoehlkeLevi BolstadScott and Kaaren BordwellLaurie and Jacob BorleyNicole Marie BorleyBarbara BorthsJohn and Valerie Bostrom •Jenifer BradleyRobert and Mary BrandKristi BraunAmber Breaker In Memory of Daniel BreakerJoel Gerard BreenThe Breiling FamilyLarry and Erica BreitrickDaniel and Mindy BriceBroadlands Golf ClubTony M BrodzellerScott and Kim BrownSteve BrownThe Bryan FamilyThe Bucheger FamilyBucher Law Group LLCSteven M BuckauBuckinghams Madison Bar and GrillMichael Buehler and Joanne AntonopoulosPeter and Mary BuerosseDavid Burch and Jennifer Niles-BurchJim and Jennifer BurnsScott and Julie BurnsMark BushJeff and Nikki BuskePaul and Patty ButenhoffNick F CableLaura K CalayMary Ann CallahanThe Campbell FamilyDan and Allison CardonaGordy and Nancy Carlson

Shirley A AlleseeGwen and Tony AltmannThe Anderson Family In Honor of Toni HansmeyerAnitta L AndersonBrant and Carol AndersonDavid Anderson and Nancy GilliganDiane M AndersonKevin and Sarah Anderson •Laura AndersonLenore A AndersonTerry and Betty AndersonAnderson Pump & ProcessDeborah A AndrewsAnon Charitable Trust Anonymous (6) • Anonymous, In Memory of Dr. Patricia O’Looney •David and Beth AnziaJohn A ArenaThe Arisso FamilyJay and Linda ArnoldDavid W ArnottDavid and Elizabeth ArnottJeffrey D AyresB7 PharmacyThomas J BaasThe Backhaus FamilyPaul J BaierlKaren and Tiffany BakerBaker Tilly Virchow Krause LLPTom and Kristy BanaszakSteve and Laci BankerPatrick Donald BanksThe Baptie FamilyRick and Rita BarderDavid and Sharon BargerLouise M BarreraBarbara R Barrow •John A BarryAlan and Kassandra BartelmeKenneth G BarthGreg and MaryBeth BauerSteven Bauman and Cindy Yomantas •Baylander ChorusDaniel and Cindy BeckSusan M Beck-NutterJoyce and Jacqlynn Behnke •Jon BehrensBen D BenzingerCraig and Debbie BernardeBest Place


Carrier Insurance AgencyThe Caruso FamilyKelly J CechThe Chavez FamilyBrent and Stephanie ChristensonRichard and Karen ChristensonCraig and Jody ChristianNorman and Carol Christman •Chumleys PubJoe and Rose CibulkaThe Classen FamilyThe Clemens FamilyDonn and Ann ClermontCloverbelt Credit UnionCongregation of Sisters of St AgnesThe Contreras-Tadych FamilyDavid L CoranThe Corbett FamilyWendy CoronaTeresa CoronadoRobert E CoudenCouples on Wheels Tandem Club IncMeghan CousineauSuzanne CovoloskieRobert and Colleen CowenJohn and Kimberly CrosbyKlaus and Lori CrossThe Cummings FamilyApril CurleyBeth Curley PrestineBrad and Danielle CychoszWendy J CzajaThe Czypinski FamilyJack and Lois Dallman

David ForrestFox Communities Credit UnionBennett and Daniela FraboniBarbara H FranckKen and Melissa FrassettoElizabeth FrautschiEllen FravelTerrence and Christina FrettDeborah A FreyDave and Karen FrittittaBrian and Kate FuchsMark Gams and Diana Loots-GamsJoshua and Julie GanshertThe Ganswindt FamilyDarla GarbedianPerrie Garland and Michelle Keith •Steve and Suzanne GarrisonDeanna M GegelThomas and Elaine GehdeBarbara B GehlKarla GehrkeGenesis Machining IncThe Gibson FamilyMelissa Giebel

Trina M GieseDonald E GillRachelle Lea GillenDavid GoehlenValy T GoepfrichGonzalez Saggio and Harlan LLPKelly GoodmanJon and Ashley GorskiKurt and Kandie GorskiDennis and Karen Grace •Scott and Susan GrafAlec and Kimberly GrangerJonathan and Katy GrapengieserThe Graves FamilyJerry GrazianoGreat Wolf Resorts Inc

Data Dimensions CorpThe Davis FamilyRonald and Alicia DavisPaul and Roxanne Denamur •Matthew and Nicole DenisFrank and Mildred DenticeTimothy and Trudy DeRemerSteven A DingesThomas and Patricia DinolfoRonald F DinyDorene F DischDiversified Management IncThe Dood FamilyThe Dooley FamilyDavid and Jessica DrecktrahThe Pete Drozdowicz FamilyThe Tom Drozdowicz FamilyMarilyn J DuerstMarie Dummer – Team MaybelleDynamic Stampings IncE and D Water Works IncEbben FamilyMark and Linda EckhardtRandy and Judith EddyThe Eisemann FamilyTerri Lea EllingerEllsworth CorporationLynn M ElmPhyl M EricksonJoe and Justin ErschenKeith and Michelle ErvinThe Esser FamilyJeffrey L EsserThe Eubanks FamilyBarb Evason •Pam Evason •Best Dam Beanbag Tournaments – Joseph FangmannKeran FarrellLisa Marie FarrellMark and Catherine FehrenbachFelle Lundgren and Associates SCGina FeltenThe Fenrick FamilyThe Ferg FamilyRoy N FineThe Fink FamilyBruce FischerMarian Fisher • John Fitzgerald and Debra Anklam •Shaleigh FitzpatrickDebra M Forbes


Greater Milwaukee Foundation – David C Scott Fdn Fund •Steven and Jennifer GriesbachJeff and Melissa GrieseTom and Karen GriffithTodd D GruetzmacherDean and Pam GrunerAdam GryskiewiczGundersen LutheranPatrick and Lisa HaakTroy HaaseLarry and Diane HackbarthKristi A HackenmillerThe Haessly FamilyBrian and Laurie HalbachRiley and Lindsay HaleJames and Bradley HalversonDan and Linda Hampton •Frank HansenMatthew HansenHarbour Management LLCMichael and Christin HardingCalley Rae HassingerHastings Air Energy Control IncMarilyn Lucille HauberGeorge HegenbartJoyce HeintzSteve and Jennifer HeinzenGregory and Julie HendricksenRalph L HendricksonAnne C HepperlaPeter Herber Jr •Scott and Mary Ann HerlitzkeThe Herricks FamilyThe Herrild Family •The Hessel FamilyBenjamin J HesselinkEric and Andy HesslerDoug and Carol HigginsCharles and Kayla HillerDennis and Erin HilsenhoffThe Hindin Family In Memory of Bill AbramsonChris N HinrichsDanny and Mary HoJoel HoagSherry L HochPhil and Sara HoechstThomas and Karol HoerthLisa HolderMichael HollowayRichard A Holly

Kappa Beta Gamma SororityJamie KarcherThe Karls FamilyKyle KatchLindsey M KedrowskiKelly M KergerMatthew and Aric KerschnerRichard and Suzanne KieferKelvin and Laura KimballMaureen E KindJulie KingHannah KinneyLester R KirchenRandall S KirkRhonda E KirkwoodAndrea KivolowitzJohn and Karen KlettiJo Anne Kline In Memory of Joseph KlineDarrell Gene KluckTravis and Jessica KluewerBrandy B KlugGrant and Katie KlumbDolores KnierKnights of Columbus Council 47Scott Knoblock and Leyla BronsonRob KnudsonScottie KobackThe Kober FamilySteven KobliskaRon and Mary KoehlerThe Koffman FamilyKohl’s Cares for KidsSue M Kolaga •The Koontz FamilyAl W Kramer JrJoshua and Jessica KramerKen and Christine Kramer – In Honor of Arnie KramerRyan KramerChester L Krause

The Honish FamilyHoward-Suamico School DistrictThe Hudack FamilyThe Hutchens FamilyJohn HutmacherHydrite Chemical CoThe Iverson FamilyJack and Kelly IversonJ & K Roofing LLCCathie A. JackowskiDavid P JaegerDavid M JaehnMarc and Catherine JamesJans JanitorialRosann JesbergerJewish Community FoundationJewish Community Foundation – Steren Donor AdvisedJF Ahern CoJockey InternationalBridget J JohnsonDiane M JohnsonDouglas M JohnsonImogene Powers Johnson •The Johnson FamilyMichelle A JohnsonRonald and Patricia JohnsonJohnson ControlsJoe and Shannon JohnstonDennis and Lynn JolinLynnsey E Jones William Stark Jones FoundationJeff JordanJeremy JosettiHeather Lynn JustJohn and Mary KacmarynskiKristen Rose KalenowiczThe Kalscheur FamilyKelly and Katie KaneEdith A Kapellen •


Steve KrauseKrause Foundation •The Kreiter FamilyRollin and Beth KringMichael KrischNick J KrollDave and Suzanne KropilnickiThe Krueger FamilyTimothy and Brenda KruegerBradley and Jill Kudick

Diane Kugler •Chia H KungPhilip and Madeline LamphearJonathan Patrick LangMary Grace LangenfeldThe Craig Larson FamilyCarl and Glenda LawverMary Jo LaydenCindy LeBlancDavid B LeefRoger and JoAnn LeickJames and Rebecca LemireLena High SchoolLena Schools Agency FundJeffrey A Lenz •Dalton and Susan LerdahlDonn and Debbie LeschThe Lewandowski FamilyTina M LiebetrauChad R LindmarkBob N LinscottPatrick and Cindy LisowskiJerry and Crystal LitwaitisRoger and Pat LochowitzJames and Michelle LockDavid and Donna LohmanJoshua and Stacy London

Jonathan and Maureen MinerKeith John MlodzikMartha Ann MobleyThe Moehn FamilyAmy Kristen MonroeJoshua and Kimberly MooreDavid and Ruth MorgensonPaula S MosengThe Mosz FamilyHeidi MotiffMS Golf Outing Fund – Steven W WolfSean and Dee Dee MullenMurphy Desmond SCJack G MurrayScott MurrayMary Ann MuziKathleen Nalbert In Honor of Richard NalbertJeremy and Heather Natzke •Alan and Nicki NeipertThe Neitzel FamilyThe William Nelson FamilyPaul A NelsonTimothy D NelsonCarl H NesslerThe Neumeyer FamilyJason and Stefanie NeustedterNew Berlin Lions Club IncLee and Renee NewmanThe Nicholson FamilyBrad and Nicole NiebuhrJoseph A NimmerNitty GrittyJoseph and Jody Nolan •Jillian NondorfMelissa May NovakArturo NovoaDonna NowakMike and Norma NowakDennis and Mary NowikSean and Paul NuydaTom and Erin OetjenEdward R OldeEric and Kathryn OlsenDennis C OlsonKenneth and Norma OlsonMatthew OmernikJeremy and Ashley OndreskySusan A OrlandoWilliam K OrneEvan OttOur Lady of Lourdes

Bob and Kathy LubetskiEric and Kim LundThe Lunder FamilyPaul and Kari LusicLeRoy and Anne LutzPeter and Amanda LutzAnn M LynchPeter and Jill MachiJim MackLauren MackrieRobert and Elisabeth MagnusJacob and Kelly MaguigadMr. and Mrs. Gerald E Mainman •Amy L Mangan-FischerMarek Family In Memory of Paulette M SiegCarl and Hana MarinoMarshfield ClinicKim MartensJustin and Mariah MartinTom and Joseph MartinMichael and Susan MartzEd and Joy MatheinBarbara MatousekThe McAllister FamilyEmilie McClureArthur McFarlandRyan McGovernMcMahon FamilyKassie McManusJames R McQueenNancy M McVaryRichard O MedlandMercy Health SystemThe Meronk FamilyGary T MessingerDaniel and Sharon MeyerhoferMichael Meyers and Sherri Sable-MeyersMichael’s Cycles IncThe Michalski FamilyRick and Bonnie MickelsonMidwest Orthopedic Specialty Hospital LLCWayne Peter MikeRick (Harold) and Carol MilesThe Milford FamilyBruce and Pamela MillerDaniel and Lorelei Miller •Kathryn L MillerRobert and Gail MilneBryan E Milz


P&H Harnischfeger CorporationPaul and Patricia PachniakPalmer Johnson Power SystemsStanley and Elizabeth PanekJesse and Kristi PapezHeather A ParishDean and Kristi PavluePBBS Equipment CoKristine PearsonWilliam PenningtonTricia PerkinsThe Perlewitz FamilyThomas and Tonja PerryJeff and Dennis PetersThe Petersen FamilyCorey M PetersonThe Phelps FamilyPam PhillipsonDuane and Mary PickeringStanley and Linda Pinkowski In Honor of Roberta NiesingVictor Ernst PlantingaJeff PoiriorCaroline Pollock-ChoGregory and Sonya PonziKeith A PopkoAng PorterCharles and Christy Pritzl •Pro Engineering and Manufacturing IncThe Proeber FamilyProHealth Care IncCathy PrusanskySean Pryor and Keshia Exum-PryorBarbara Jean PrzybylskiDave and Carole PucelyRobert W PurvisSue QuinetteAlicia QuinnJeff and Cari Raddemann

Saris Cycling GroupJames and Patricia SauserO Sami SaydjariTodd and Linda SchaackKim K SchaeferThomas and Kay SchankeElizabeth H Schaub •ScheelsDeanna M SchickerCraig S SchiefelbeinJoseph and Jodi Schiestle •The Schilling FamilyJake and Jody SchlaferJames H SchlaterPaul and Adam SchlechtJoseph and Nic SchmidtJason and Cynthia SchmollerThomas E Schoenauer Jr •David E SchoonoverMark J SchrangJenny SchuetteRuth J Schuette •Robert G SchulerKeith SchulzJohn SchumannJoseph and Joan SchumitschDavid and Heather SchusterBrian and Lori SchwagerLeRoy and Robert SchwinnShari L ScottAlton and Genevieve SeegerTom SermersheimCarrie SerockiServo Instrument CorporationDorothy SevlieAndrew L ShanahanJohn C ShawKevin L SherryThe Short FamilyKelly J SiebersMichael Sigman and Kelly Krieg-SigmanSilverman Family FoundationCraig A SimpkinsBrenda Skelton Bendtsen •Kate SkogenJason and Jessica SkudlarczykCari J SlaterThe Smiley FamilyPhil SmithRae SmithScott A SmithThe John Smith FamilyJohn Smits

Ajita RajendraPete and Kristine RathkampJohn and Elizabeth RauJohn and Marie RawlinsReel Brothers Harley-DavidsonJoel and Nicole ReikowskiLaurie L ReinenDavid J RemyGreg and Becky ReschkeHayley J RezelBen and Deanna RezutekJudy RichThe Ricker FamilyFred and Toni RingelRiverside Machine and Engineering IncRobert W Baird and Company IncChad and Anne RogalskiThomas and Margaret Rohan •Julene M RohrerDavid RolstonRick and Beth RomeneskoRookies Sports BarJames and Terri Rose •Marilyn RossRough SportswearThe Rourke FamilyTimothy and Kattie RouselatosThe Rowell FamilyDan and Patricia RozinskiRobert and Karen RozinskiCarol RubinJoe RuckiThe Rudersdorf FamilyMartha J Rutkofske •Zachary D RutterThe Sabelko FamilyJoseph and Beverly SaelensSandy’s Barton CafeErin Sardeson


This progress report is for the 2013 financial year. Donations and fundraising contributions reflect the period October 1, 2012 through September 30, 2013. Every effort was made to ensure the accuracy of the listing. We apologize for any mistakes or omissions, and ask that you contact the Chapter so that we can correct our records for future publications.

Jenny UnderhillUnified Catholic Schools of OshkoshUniversity Hill Farms Assoc IncShannon M UttechDan Vanevenhoven •Brenda K VanOuseCyril and Kathleen VanSistineLiz VegaKevin and Kaitlyn VeliquetteVeolia Environmental ServicesThe Verwiel FamilyMichael C VigBetty J VolkmanKristopher VolkmanKen and Katie WaddellTiffany WalisiewiczRobert M WardKyleigh WarnkeRyan and Abby WatsonWEA Insurance CorporationDavid and Denise WebbBill and Sarah WeberDonald and Joanne WeinbergAnn D WendorfGregory M WesleyWade and Paula WestWilliam and Michelle WestWest Bend Community Foundation’s Rick and Julie Vandermause FundEllen J Westdorp •In Memory of Milton Westphal and In Honor of Laurel Birr •Kay WetzelLee and Diane WhitcraftRick D White

Barbara and Becky WiedrichBrad and Elizabeth Wiest •The Wiken FamilyThe Wild FamilyWilde Autos IncMichelle WillitsAndrew and Nickiey WilsonThe Winkler Family •Patrick A WirthWisco ManiacsJames A Wisniewski JrWitczak FamilyDavid and Kelly WitteThe Wittig FamilyJamie WolfLisa WolfTima WolffDr. Richard L Wolman In Memory of Ellen Wolman •John Wood Carol WordellTodd M Woulf W/S Machine and Tool IncKathleen M WulfMike WysznewskiKaren YaegerJohn and Susan YenchGreg YoungJohn J Zacher •James ZakrajsheckHolly R ZanderSharon A ZelankaThe Zick FamilyTaylor ZilchAimee E ZuccoBarb and Lauren ZuccoThe Zumach FamilyTed Zurn and Stephanie HeckerBarton and Colleen Zwitter

Snowpros Consulting LLCKim M SoetaertSilke SonntagThe Sorgent FamilyDennis and Linda SpindlerSports Medicine and Orthopedic Center SCDuane and Jacqueline SrnkaDonald R Stacy •Dale and Karen StaegeAmber StamstaDavid and Debra StandridgeThe Stanke FamilyNoel StantonJodi M StaralDave and Mary StauderTodd N SteffanusThe Steinert FamilyWally G StelzerSteren Management Company IncChad Stevenson Jeffrey and Jody Steren •Mary J StiversJeffery and Marie StolpaStone Creek HavenStrand AssociatesRon and Mindy SweeneyThe Talen FamilyTamron Properties LLCTDS Connecting With Our CommunitiesTom and Linda Terwilliger •Nancy L Testin •Scott and Deanna ThederScott and Jill ThesingAntoinette Kay ThompsonThe Jay Thompson FamilyLlewellyn and Alice Tietz •Tomkens IncPatrick and Mary ToppChantel M TorkelsonSteve and Jennifer TorrettaCorey and Wendy TremainePaula R TrieglaffJames Walter TuckwellJim and Jenny TurkTerry and Melody TuttleTwentebelt BV – HengeloU.S. CellularUline Inc


2013 financialsNational Multiple Sclerosis Society Wisconsin Chapter, Inc.

Statements of Financial Position – Years Ended September 30, 2013 and 2012

ASSETS 2013 2012 Cash and investments $1,879,190 $1,900,042 Contributions receivable 100,986 238,778 Endowment funds 162,981 162,435 Other assets 96,958 95,427

Total assets $2,240,115 $2,396,682

LIABILITIES AND NET ASSETS 2013 2012Due to National MS Society $251,761 $360,055 Other liabilities 302,590 348,931

Total liabilities 554,351 708,986Net assets 1,685,764 1,687,696

Total liabilities and assets $2,240,115 $2,396,682

REVENUES 2013 2012 Support from the public: •Specialeventsrevenue $3,545,997 $3,793,913

(includes in-kind donations of $58,509 for 2013 and $73,159 for 2012)

•Specialeventexpense (473,708) (443,780)

Net received from special events 3,072,289 3,350,133 Annual campaigns 1,072,403 934,623 (includes in-kind contributions of $728 for 2013 and $2,600 for 2012)Legacies 34,130 50,313

Total support from public 4,178,822 4,335,069 Other revenue: •ReceivedatNational — 76,947 •Interestincome 3,885 9,064 •Programfees 1,275 450 •Miscellaneousincome 26,010 16,406

Total other revenue 31,170 102,867

Total revenues $4,209,992 $4,437,936

Statements of Activities – Years Ended September 30, 2013 and 2012

EXPENSES 2013 2012Programservices: •Research $1,139,520 $1,205,880 •SocietyActivities 698,909 672,477 •Clientprograms 559,624 755,709 •Communityprograms 398,464 404,208 •Professionaleducation

and training 152,430 141,622 •Publiceducation 561,068 578,964

Total program services 3,510,015 3,758,860 Support services: •Fundraising 480,204 482,575 •Managementandgeneral 221,705 257,958

Total support services 701,909 740,533

Totalexpenses 4,211,924 4,499,393Change in net assets (1,932) (61,457) Net assets, beginning of year 1,687,696 1,749,153

Net assets, end of year $1,685,764 $1,687,696

n Research&ProgramServices 83.3%n Fundraising 11.4%n Management&General 5.3%

2013 2012n Research&ProgramServices 83.6%n Fundraising 10.7%n Management&General 5.7%

Financial information presented has been summarized from financial statements audited by Schenck Business Solutions dated September 30, 2013.

The Wisconsin Chapter meets all Better Business Bureau 20 Standards Charity Accountability.

Early and ongoing treatment with an FDA-approved therapy can make a difference for many people with multiple sclerosis. Learn about your options by talking to your health care professional and contacting the National MS Society at nationalMSsociety.org or 1-800-FIGHT-MS (344-4867).

Partners in MS Care The National Multiple Sclerosis Society’s Partners in MS Care program identifies healthcare professionals and centers that focus on MS-focused neurology, rehabilitation, mental health and/or comprehensive care. They are recognized for the knowledge and experience they demonstrate in MS care, for their special interest in treating people living with MS and for working closely with the Society.

Wisconsin’s recognized Partners in Care for comprehensive MS care are:

• Aurora Medical Group Neurology Clinic, Green Bay

• Dean/St. Mary’s Neurologic Institute & Spine Center, Madison

• Marshfield Clinic MS Center, Marshfield

• Waukesha Memorial Hospital ProHealth Care Neuroscience Center, Waukesha

• University of Wisconsin Hospital and Clinics Neurology/MS Clinic, Madison

Clinical Advisory Committee The Wisconsin Chapter is grateful to the members of the 2013 Clinical Advisory Committee for providing oversight, advice and guidance related to medical issues surrounding multiple sclerosis, including the latest information about advancements in treatment, research and care management.

• Loren A. Rolak, M.D., Chair Marshfield Clinic MS Center

• Michael Connor, D.O. Columbia St. Mary’s Multiple Sclerosis Clinic

• John O. Fleming, M.D. University of Wisconsin Hospital and Clinics Neurology/MS Clinic

• Nathasha Frost, M.D. Dean & St. Mary’s Outpatient Center MS Clinic

• Mary Goodsett, M.D. Gundersen Health System MS Clinic

• Bhupendra O. Khatri, M.D. Wheaton Franciscan Healthcare Center for Neurological Disorders

• Eric F. Maas, M.D. Aurora Advanced Healthcare

• Stanya Smith, M.D. ProHealth Care Neuroscience Center Waukesha Memorial Hospital

• Merle Teetzen, M.D. Aurora Medical Group – Marinette MS Clinic

1120JamesDr.Ste.A|Hartland,WI53029800-242-3358|262-369-4400

www.wisMS.org|[email protected]

makingevery connection count€¦ · in an oversized coat, baggy sweatpants, a scarf across her...

Documents