national brain tumor society 2013 summitbraintumor.org/assets/docs/about-us/summit-2013/... · 2013...

National Brain Tumor Society 2013 Summit

October 3 - 6,Le Meridien, Cambridge, MA

2 National Brain Tumor Society

2013 Summit 3

Thank you for joining us at the National Brain Tumor Society 2013 Summit!

Hosted in Cambridge, Massachusetts among some of the most innovative institutions in the world, this year’s Summit celebrates exciting advances in the field of brain tumor research, the incredible hope and dedication of our community, and how together, we’re making an impact.

With groundbreaking initiatives, new partnerships, and continued progress in the study of brain tumors, we are at an exciting time in driving transformative change through our integrated efforts in research and public policy. This year’s Summit will highlight how together, with your support, we will accelerate brain tumor therapeutic development toward a cure.

We look forward to sharing in this excitement, and celebrating the successes and dedication of the entire community. We are deeply grateful for your support and endless inspiration – it is what motivates us each and every day.

Together, we are stronger than this disease.

Sincerely,

N. Paul TonThat

TABLE OF CONTENTS

4 Schedule of Events

5 2013 National Brain Tumor Society Annual Meeting

6 State of Research Breakfast

6 Defeat GBM Research Collaborative: International Meeting

6 State Lead Advocate Meeting

7 Boston Brain Tumor Walk

8 Feldman Founder’s Award

9 Frankly Speaking About Cancer: Brain Tumors Resource Guide

10 Programmatic Overview

11 2013 Research Grant Recipients

14 Thank you to our Advisors

17 2012 Donor List

23 Thank you to our Sponsors

Message from our CEO


Schedule of Events - October 3–6

THURSDAY, OCTOBER 3

2:00 – 5:30 PM Advisors Program Overview, followed by concurrent Industry Advisory Board and Scientific Policy Committee Meetings and Advisors Reception (closed sessions)

5:30 – 6:30 PM National Brain Tumor Society Annual Meeting Community Reception

6:30 – 9 PM National Brain Tumor Society Annual Meeting Dinner

9 – 10 PM National Brain Tumor Society Annual Meeting After Dinner Reception

FRIDAY, OCTOBER 4

7:30 – 10 AM State of Research Breakfast

8 AM – 1 PM Defeat GBM Research Collaborative: International Meeting (closed session)

10 AM – 2 PM State Lead Advocate Training (closed session)

SUNDAY OCTOBER 6

8 AM - 12 PM Boston Brain Tumor Walk DCR Mother’s Rest at Carson Beach South Boston, MA

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Thursday, October 3

National Brain Tumor Society Annual Meeting

5:30 – 6:30 PM Community ReceptionEnjoy connecting and sharing with patients and families, advocates, researchers, clinicians, and government and industry professionals

6:30 – 9 PM Dinner Program • Welcome

• Research Keynote – Dr. Webster Cavenee, Director of the Ludwig Institute for Cancer Research and Distinguished Professor at University of California, San Diego

• NBTS Today

Dinner

• Community Leadership Awards Programs/Events – presented to Lionel & Sandy Chaiken, co-founders of Race for Hope – DC, the largest brain tumor fundraising event in the U.S.

Awareness – presented to Liz Salmi of the Liz Army

• Feldman Founder’s Award – presented to Dr. David Louis, Pathologist-in-Chief at Massachusetts General Hospital and Benjamin Castleman Professor of Pathology at Harvard Medical School

• Conclusion

9 – 10 PM After Dinner ReceptionContinue to catch up and talk over coffee and tea.

“The biggest thing you have to do is get people together, get the energy going, and get the connections started.” -Skip Irving, Health Advances, National Brain Tumor Society Industry Advisory Board Member


Friday, October 4

State of Research Breakfast 7:30 - 10:00 AM

7:30 – 8:30 AM Breakfast

8:30 – 10 AM Program • Welcome and Introductions

Michael Nathanson, National Brain Tumor Society Board Chair

• State of the Field: Pediatric Neuro-Oncology Dr. Michael Prados, Professor, Department of Neurological Surgery, and Director of Translational Research in Neuro-Oncology, UCSF

• National Brain Tumor Society Pediatric Research Overview Carrie Treadwell, Senior Director of Research, National Brain Tumor Society Dr. Joseph Scafidi, Pediatrician, Children’s National Medical Center

• Looking to the Future Carrie Treadwell, Senior Director of Research, National Brain Tumor Society

Defeat GBM Research Collaborative: International Meeting 8 AM - 1 PM (closed session) Building off the excitement and interest in our Defeat GBM Research Collaborative, we are exploring opportunities for broader international engagement through a consortium model. State Lead Advocate Training 10 AM - 2 PM (closed session)

We are both proud and grateful to our dedicated State Lead Advocates, who represent some of our most active and engaged volunteer advocates. They are committed to building the volunteer base for the advocacy program, motivating existing advocates to engage in the latest action opportunities, and serving as the key contact to the offices of their Members of Congress on public policy issues that directly impact the brain tumor community.

This annual training session serves as an opportunity for this year’s class of State Lead Advocates to gather for policy and messaging training to support their ongoing advocacy work.

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Sunday, October 6

Boston Brain Tumor Walk DCR Mother’s Rest at Carson Beach, South Boston, MA Registration: 8 – 9 AMProgram and Activities: 9 AM – 12 PMWalk Start: 9:30 AM

We are all in this together! Unite with us to fight brain tumors. Enjoy a 5K walk for all ages to support the National Brain Tumor Society. www.braintumorwalk.org/boston

(Note: The route is wheelchair and stroller accessible.)

Online registration is now closed, but day-of-event registration is welcome and it’s free. We look forward to seeing you there!

Are you looking for a way to make a difference in the fight against brain tumors? Learn how you can take action at www.braintumor.org/takeaction.

UPCOMING EVENTS:Please join us for these inspiring events, and be sure to let your family and friends know if there is an upcoming event in their area.

Boston Brain Tumor Walk – October 6, 2013

Los Angeles Brain Tumor Walk – October 19, 2013

Silicon Valley Brain Tumor Walk – October 26, 2013

Race for Hope-Philadelphia – November 3, 2013

Dallas-Ft. Worth Brain Tumor Walk – November 9, 2013


National Brain Tumor Society’s Feldman Founder’s Award

The National Brain Tumor Society 2013 Feldman Founder’s Award is presented to Dr. David Louis, for his outstanding contributions and invaluable impact on the field of brain tumor research.

Dr. Louis is Pathologist-in-Chief at Massachusetts General Hospital and Benjamin Castleman Professor of Pathology at Harvard Medical School. His work in the molecular genetic basis of gliomas has been fundamental in the advancement of brain tumor research. Dr. Louis’s laboratory was the first to demonstrate that molecular approaches could subdivide malignant gliomas biologically and could predict their response to therapies. This work has resulted in worldwide adoption of molecular testing for brain tumor patient management.

The Feldman Founder’s Award is a new merger of two separate and distinct honors that the National Brain Tumor Society has traditionally bestowed on the research community. The original National Brain Tumor Society Founder’s Award for Research Excellence was created in 2008 as part of our merger to recognize exceptional researchers or teams whose research holds the promise for clinical improvements. The Seth Harris Feldman Chair of Research supported a grant given each year to a researcher or team whose project has the potential to significantly advance the understanding of the field. This chair was awarded in remembrance of Seth Feldman, in honor of his courageous battle with glioblastoma multiforme.

Today’s Feldman Founder’s Award recognizes individuals or groups for a transcendent scientific discovery, an exceptional body of work, or leadership that had a significant and sustained impact on the brain tumor community consistent with National Brain Tumor Society’s mission to find better treatments, and ultimately a cure, for people living with a brain tumor. The recipient will receive a $50,000 award and will join the prestigious group of past National Brain Tumor Society Founder’s Award for Research Excellence winners including co-recipients, Dr. Anna Barker, then Deputy Director of the National Cancer Institute and Dr. Kenneth Kinzler, Professor of Oncology at The Johns Hopkins Kimmel Cancer Center, for their work on The Cancer Genome Atlas (TCGA) and CEO of American Association for Cancer Research, Dr. Marge Foti, PhD, MD (h.c.) for her years of leadership in the field, particularly in systems biology.

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Frankly Speaking About Cancer: Brain Tumors

We are pleased to announce the availability of a new, robust resource guide for brain tumor patients, families, caregivers, and friends.

Frankly Speaking About Cancer: Brain Tumors is a brand new resource guide now offered by the National Brain Tumor Society, including information on brain tumors and diagnoses, treatment, living with a brain tumor, considerations for caregivers, helpful resource lists, and more. Frankly Speaking About Cancer: Brain Tumors is available for download at www.braintumor.org.

Frankly Speaking About Cancer: Brain Tumors was created in partnership with the Cancer Support Community as part of the Frankly Speaking About Cancer series.

Brain Tumors


National Brain Tumor Society Programmatic Overview

Our strategic initiatives and funded programs aim to improve the understanding of brain tumors to transform research findings into new and more effective treatments. To achieve these goals, we foster collaboration and change within all facets of the drug discovery and development landscape and invest wisely in key initiatives poised to deliver results.

• Defeat GBM Research Collaborative – Our largest and boldest initiative to date, this strategic research initiative aims to double the five-year survival rate of glioblastoma multiforme (GBM) patients in just five years through an innovative funding model and novel scientific construct.

• Clinical Trial Endpoints Initiative – This initiative works with the US Food and Drug Administration (FDA) to recommend alternative (and additional) clinical trial endpoints to accelerate the pace of development for drugs which will provide clinical benefit(s) to brain tumor patients.

• Pediatric Research Grant Initiative – This program analyzes the development of a child’s brain to identify therapies which could be effective and minimize long-term side effects for pediatric brain tumor patients. See related grants on page 11.

• Oligodendroglioma Research Fund – This program aims to better understand the origins of growth for oligodendrogliomas, and apply these findings to the development of new treatments. See related grants on page 12.

• Advancing Research to Treatments (ART) – The goal of this program is to translate laboratory science into commercialized brain tumor treatments by bringing together researchers, biotechnology and pharmaceutical executives, venture capital (VC) investors, and brain tumor patients to address the challenges in drug development.

• Grand Challenge - A crowd-sourcing effort to predict the specific drugs and drug combinations that elicit the strongest therapeutic response in in-vivo drug testing of high grade gliomas, using systems biology methodologies.

In addition to the programs above, we continue to foster collaboration by hosting think tanks and conferences covering critical brain tumor topics, participating in key meetings taking place in the community, and mobilizing volunteer advocates across the country.

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2013 National Brain Tumor Society Grant Recipients

The National Brain Tumor Society is proud to recognize our 2013 research grant recipients. Through our innovative funding initiatives created to maximize impact to patients, and rigorous and thoughtful grant process, we fund only the most imminently promising projects, funding researchers dedicated to approaches that will deliver compelling results.

PEDIATRIC RESEARCH

These three grants are awarded over a period of three years, beginning in 2011.

Robert Wechsler-Reya, PhDSanford-Burnham Medical Research InstituteGenetic targeting of cerebellar stem cells to study development and tumorigenesis

The most aggressive subtype of medulloblastoma occurs in tumors that have in-creased expression of the MYC oncogene. In this research, the Wechsler-Reya labo-ratory will build on previous research that suggests that stem cells can give rise to MYC-driven medulloblastoma. The researchers will create and study mouse models that allow targeting of genes to stem cells and then follow the course of normal stem cells and generate models of MYC-driven medulloblastoma. The goal is to discover potential new treatments based on an understanding of the tumor cells of origin.

Alexandra Joyner, PhDMemorial Sloan-Kettering Cancer CenterIdentification of genes and cell behaviors regulated by Shh/Gli2 signaling in the cell of origin of a major subtype of medulloblastoma using novel genetic tools in mouse

Medulloblastoma, the most common brain tumor in children, occurs in multiple molecular subtypes. A process called hedgehog signaling (named after the hedgehog gene Hh) is elevated in tumor subtypes that arise from cerebellar granule cell pro-genitors (GCPs). In this research, the Joyner laboratory will investigate how altering the level of signaling in GCPs in genetically engineered mice alter GCP behaviors. The goal is to discover novel signaling pathways that are important for normal cerebellum development.

Joseph Scafidi, DOChildren’s Research InstituteThe effects of molecularly targeted therapies on the developing neurogenic niches

Although recent treatment compounds have shown promise in decreasing the burden of pediatric brain tumors, the compounds also affect the developmental pathways of


2013 National Brain Tumor Society Grant Recipients, cont.

a normal developing brain, and long-term effects are unknown. In this study, the Scafidi laboratory will assess the cellular and functional effects of compounds in rodents at various developmental ages, and whether any rehabilitation efforts after treatment can induce brain plasticity and address the deficits associated with treatment.

INNOVATION GRANT - PEDIATRIC

This grant was awarded in 2012 for a period of two years.

David H. Gutmann, MD, PhDWashington University School of MedicineKIAA1549:BRAF genetically-engineered mice for pediatric glioma-targeted therapeutic drug discovery and evaluation

One of the most common brain tumors in children is the pilocytic astrocytoma. This tumor is often caused by either genomic rearrangement of the BRAF gene (sporadic) or the inactivation of the NF1 tumor suppressor gene (inherited) that, when mutated, causes neurofibromatosis type 1. For this research project, the Gutmann laboratory will conduct experiments using advanced systems biology bioinformatics to identify potential biological treatment targets for both sporadic and inherited pilocytic astrocytoma.

OLIGODENDROGLIOMA RESEARCH FUND

These grants were awarded in 2013 for a period of two years.

David Louis, MDMassachusetts General Hospital (MGH) Mapping the Epigenomic Landscape of Oligodendroglioma to Elucidate Tumor Growth and Chemosensitivity

Dr. Louis and his team will seek to identify the elements that drive the growth of oligodendrogliomas by applying next-generation sequencing tools and experiments. Dr. Louis’ work is designed to lead to discoveries of specific molecular targets, which subsequent studies would examine for potential therapeutic approaches.

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2013 National Brain Tumor Society Grant Recipients, cont.

Anders Persson, PhDUniversity of California, San Francisco IDH1R132H-induced Transformation of Oligodendrocyte Progenitor Cells into Oligodendroglioma

Dr. Persson and his team will seek to create predictive disease models (in mice/human/xenograft tissue) to prove that a specific gene mutation of the common enzyme IDH1 creates a molecule, called oncometabolite 2-HG, that facilitates the transformation of normal oligodendrocyte cells (OPC), a common cell in the human brain, into malignant, oligodendroglioma cells. Dr. Persson’s team will work to validate that these OPCs are the “cell of origin”, and know what mutations drive them to develop into an oligo tumor, in order to develop targeted therapies to attack their pathways.

The Oligodendroglioma Research Fund is part of our Community Research Fund program – an initiative allowing contributors to pool donations to support research on a specific type of tumor. Donations large and small can be earmarked and combined to fund a two-year grant of $300,000, the minimum grant amount necessary to conduct significant research studies. For more information contact Kevin Courtney at [email protected] or 617.393.2831.

“There’s nothing else like it in the world that is so targeted to what’s wrong with me. I feel amazingly blessed, thankful, appreciative that there is something out there that they’re giving out grants to scientists to solve my tumor.” -Brett Johnson, Oligo Survivor


Special thanks to our pro bono legal advisors offering both business and legal expertise for our initiatives and extensive support for our public policy efforts.

Morgan, Lewis & Bockius, LLP

Hogan Lovells

Bracewell & Giuliani

In our mission to find new treatments and ultimately a cure, we are fortunate to have the assistance of several volunteer advisory boards comprised of world-renowned and respected individuals who represent the diverse needs and interests of the brain tumor community. By volunteering their time and expertise, these individuals help to strate-gically guide the organization on research, industry, scientific, medical, healthcare, and public policy-related initiatives. We would like to express our deepest appreciation for the immense generosity and dedication of these advisors.

Thank you to our Advisors

Scientific Advisory Council

Suzanne Baker, PhD, Co-ChairSt. Jude Children’s Research Hospital

G. Yancey Gillespie, PhD, Co-ChairUniversity of Alabama at Birmingham

Joseph Costello, PhDUniversity of California, San Francisco

David Eisenstat, MD, MA, FRCPCUniversity of Alberta

Frank Furnari, PhDUniversity of California, San Diego

Candece Gladson, MDCleveland Clinic

C. David James, PhDUniversity of California, San Francisco

Robert Jenkins, MD, PhDMayo Clinic

Ching Lau, MD, PhDTexas Children’s Cancer Center

Linda Liau, MD, PhDUniversity of California, Los Angeles

Paul Mischel, MDUniversity of California, Los Angeles

John Sampson, MD, PhDDuke University Medical Center

Evan Snyder, MD, PhDSanford Burnham Medical Research Institute

Forest M. White, PhDMassachusetts Institute of Technology

Jean Zhao, PhDDana-Farber Cancer Institute

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Medical Advisory Board

Patrick Wen, MD, ChairDana-Farber Cancer Institute

Timothy Cloughesy, MD, Vice ChairUniversity of California, Los Angeles

Terri S. Armstrong, PhD, NPThe University of Texas MD Anderson Cancer Center

Steven Brem, MDHospital of the University of Pennsylvania

Paul Fisher, MDStanford University Medical Center

Sherry Fox, PhD, RN, CNRSBon Secours Cancer Institute

Amar Gajjar, MDSt. Jude Children’s Research Hospital

Mark Gilbert, MDThe University of Texas MD Anderson Cancer Center

Glen Lesser, MDWake Forest University Medical Center

Michelle Lucas, MSW, LSWMassachussetts General Hospital

Gigi MacMillanWe Can Pediatric Brain Tumor Network

Susan Pannullo, MDNew York-Presbyterian Hospital/Weil Cornell Medical College

Scott Pomeroy, MD, PhDBoston Children’s Hospital

Jeffrey Raizer, MDNorthwestern Memorial Hospital

Liz SalmiThe Liz Army

Jeffrey Wefel, PhDThe University of Texas MD Anderson Cancer Center

Industry Advisory Board

Lauren Abrey, MDGenentech, Inc.

Louis Beardell, Jr., JDMorgan, Lewis & Bockius LLP

Bruce Booth, PhDAtlas Venture

Giulio Draetta, MD, PhDUT MD Anderson Cancer Center

Neil Exter, MBAThird Rock Ventures

Brian Gallagher, Jr., PhDSR OneGlaxoSmithKline

Richard B. Gaynor, MDEli Lilly and Company

Michael Gutch, PhDMedImmune Ventures

Skip Irving, MBAHealth Advances

Michael Nathanson, JDThe Colony Group

Perry Nisen, MD, PhDGlaxoSmithKline

Joanne Smith-Farrell, PhDPfizer



Steve Arkinstall, PhDEMD Serono, Inc.

Scientific Policy Committee

Linda M. Liau, MD, PhDUniversity of California, Los Angeles

Steven Brem, MDUniversity of Pennsylvania, Perelman School of Medicine

W.K. Alfred Yung, MDThe University of Texas MD Anderson Cancer Center Patrick Wen, MD Dana-Farber Cancer Institute

Kenneth D. Aldape, MDThe University of Texas MD Anderson Cancer Center

Jan Buckner, MDMayo Clinic

Susan Pannullo, MDNew York-Presbyterian Hospital/Weil Cornell Medical College

Public Policy Advisory Committee

Scott Memmott, Esq. ChairMorgan, Lewis & Bockius LLP

Richard Hamburg, MPATrust for America’s Health

Chandri Navarro, JDHogan Lovells US LLP

BethAnn TelfordTeam BT

Eric WengerMicrosoft Corp.

James “JD” DerderianThe Stanton Park Group

Cord Schlobohm, DMDBoard Member

Max Wallace, JDAccelerate Brain Cancer Cure

Strategic Scientific Advisory Council for Defeat GBM

Webster Cavenee, PhDLudwig Institute for Cancer Research, San Diego

Anna Barker, PhDArizona State University

Richard B. Gaynor, MDEli Lilly and Company

Mitchel S. Berger, MDUniversity of California, San Francisco

Darell D. Bigner, MD, PhDDuke University

George D. Demetri, MDDana-Farber Cancer Institute

William C. Hahn, MD, PhDDana-Farber Cancer Institute

W.K. Alfred Yung, MDThe University of Texas MD AndersonCancer Center

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Thank you to our Supporters

National Brain Tumor Society is pleased to recognize and thank its generous supporters. The following individuals, foundations, and corporations made gifts January 1 through December 31, 2012.

INDIVIDUALS$25,000 - $49,999Mr. and Dr. Barry GlassmanMr. and Mrs. Kenneth GreyJoe and Christine PerriconeWilliam Reller

$10,000 - $24,999Mrs. Stacey B. CaseTom and Alice BlairChristopher and Kimberly BrownMr. and Mrs. James DoughanDana EmeryMr. Thomas Enraght-MoonyMr. and Mrs. Jeff FagerStephanie GallagherBrock Greene and Pam BaskinAmy HalvorsenMr. William HearstSandra and Mark KramerSteven and Sally LambNat and Heidi LeonardElizabeth and Mark MoragneMr. and Mrs. Michael NeidorfMr. Stephen RellerJudi Ross-ZukerSondra and Leonard RudofskyWilliam SaltzmanJennifer SignoraBarry SmallSusan TavillaKaren Weeks

$5,000 - $9,999 Kathleen BarrettMr. Monty BennettMr. Jeffrey BirnsMr. Eric BrooksDr. Kevin CamphausenLewis CohenMs. Joyce A. CowanTrina DeanBruce and Madelyn DonoffMs. Anne FeeleyMr. Drew HagenMs. Jenny A. HahnMr. Ron HeidemanMr. and Mrs. Douglas M. HurtLeigh JacksonJoanne LepantoMrs. Melissa MannionEd McGregorCharles Miller

Jay NadlerMichael NathansonMr. Stephen O’BrienMr. Todd PayneMr. and Mrs. Chris PeabodyMrs. Lisa PrudhommeRoberta RassieurMichael and Jennifer ReichbachAlison RossJon and Bonnie RotenbergMrs. Mary SenffRonald SimonMr. Brett SizemoreJohn TravisGary Wimmer

$2,500 - $4,999John ArnoldMs. Dawn BaulekeMr. Daniel BeekhuizenMr. Sheldon J. BermanMr. Scott BessetteMs. Marianne BomentreLona and Alan BridenbaughMrs. Anne BrownMs. Lisa BurkeMr. Mark CafuaMrs. Donna ChestMr. and Mrs. Jim ClaeysMr. John CongerMichael and Lauren CorkinGreg And Jill CumberbatchMs. Fae DanielsCatherine DearloveJessica DeBackDr. and Mrs. Alan PollackAngela DeElseNancy DickmeyerMary FinsnessMr. Mark FisherFranklin and Melissa FreyRoger and Cheri FriedmanMr. Andrew GilbertMark and Leigh GodichMr. Scott GorranCheryl and Stephen HaleyLaura HughsMr. Bryan C. HumeDr. and Mrs. Michael MulvaneyMr. Jason JohnsonMr. Michael JohnsonAbbas KermaniSusan KnightMs. Karyn Kornfeld

Mark KrailDave KramerMarjorie KuntzLinda LeaoNancy LevensKaren LoveladyDr. Latha MariyappaEmily McCartyKathleen McDermottMs. Jamie McGuireLeta MeadowsMr. and Mrs. Scott MemmottDr. Roslyn MeyerMs. Nicole MichelCarolann MonroeHoward and Laura MorseMr. James D. Murphy, Jr.Mary NakayamaLenore NeidorfTerri NickersonRon NunneryMr. and Mrs. Tom OswoldMs. Bashi PackerKelly and George PaulMr. Glenn PayneMrs. Mary PridgenMs. Anne PunzakJoseph RoccoChris and Tracie RolleMr. Saman SaediFred and Claire SamahaMrs. Nancy SamitDr. Cord SchlobohmMrs. Carole SclafaniCornelius ShannahanMr. John G. ShooshanRob SigarDr. Roy SimpsonMrs. Julie SternbergMr. James TennisMr. Blake ThomasElaine TicknorColleen M. TinclerLois UmhoeferMr. and Mrs. John VernonGary WengerterDorothy WilliamsDon Young

$1,000 - $2,499Mrs. Laura AdlerMrs. Jill AdrogueMs. Kimberly AlbroLivia Alfano


Christopher AmatoSandra and Millie AndersonMr. and Mrs. Jeffrey and Mary AndersonSarah AndersonJohn and Barbara AndrewsMilt ArensonMrs. Shannon ArmenisKimberly and Tylor ArmstrongHal Arneson and Lucille DeiuliisMr. Eric AronsMr. and Mrs. Glenn and Rebecca AsherMrs. Leda AsmarMr. Tim AtkinGerald AunetMrs. Rachel AvilaFrank B. FalveyPamela BakerMr. Nicholas R. BaldickThomas and Laurie BaldwinDr. V. Raja BandaruRuth Bartels-GriffinBridget BasehoarMr. and Mrs. David BeddowJoan BeddowMr. William W. BeddowMs. Dianne BenefielMr. David A. BerganMr. and Mrs. Mike BerkenbaughChad and Hope BernotaMs. Sarah BetzwieserMs. Allison BishofJulie BishopKatie BitterChris and Heather BlakeJoshua and Holly BogartPatricia BosworthAriel BowersSchatem and Sean BoydMs. Rachael BradleyCathy BradyMrs. Clare BroderickDr. Darron BrownMs. Olivia BrownDawn BrunElizabeth BuchbinderMr. Daniel BuddNicetas BugtongMr. Michael BurbankLeonard BurmanMr. and Mrs. Robert S. BurnettCarolyn and Brian ButlerAlvin ButzDawn and Ricard CalabreseMiss Raffaella CaldeiMs. Mary Catherine CalistoMichael CallnanHeidi CallowhillSharon CampbellJ.D. CarawayJohn and Mary CarmichaelAdam CarollaMr. Paul CaronMrs. Susan Carras

Mr. and Mrs. Paul CarrollRyan CarrollMs. Kim M. CarterRonald CatheyRichard ChagnonMr. Bill ChaplinMs. Anna ChengAbe Cherrick and Debra SunshineBob ChristiansenMrs. Liza ChuckMr. and Mrs. Stephen ClaeysMs. Ruth ClarkMr. Bill CoffmanRobyn and William CollinsSteven ConnollyLisa ConradMichael and Cherie ConwayMr. Thomas G. CooganAlicia and T. L. Sean CookTed and Peggy CooperMrs. Harriet CorkinJesse CorumBonnet CraftJoanne D’AllevaPatricia DalessandroF. DalichowMrs. Phyllis DanihelMr. Stephen DaviesBridget DavisMs. Susana de la TorreMiss Claudia De PintoMr. Michael DeanMs. Peggy DeBerryDr. Linda DeGroffJacquelyn DeitrichMs. Kellie A. DemaioMr. Dominic DemattiesRoger and Mimi DennisAlessio DepoliRussell DeyoMr. Eric DiFranccescoMr. Jason DifrancescoMr. Robert DigeronimoMrs. Melissa DixonMrs. Ellen DodgeMr. and Mrs. Dennis DonohueMs. Elaine M. DonovanMr. Timothy M. Donovan, Sr.Gail and Paul DooleyEllen DoveyIan Dudley-MarlingMr. James DuffJudith and Michael DunningDiane DziedzicKaren EaganPatricia EarlDouglas EckardMs. Sonja EdwardsMr. Mahmoud El-AssirDr. Martin ElsantRobert and Marisa FabiszewskiMs. Stephanie FarberMr. Robert Fay

Ruth FederG. Bonnie FeldmanMs. Ginny FeldmanMr. Richard FieldDaniel FisherMr. Patrick J. FoleyVlad FormanekLorenzo ForniMichael FreedeMr. Mitchell FriedmanDr. Rajeev GalaMs. Kathleen GallagherEvalyn GalleryEric GarrettJane and Mark GibsonMs. Patricia GibsonMr. Rakesh GilaniMike GirouxWilliam GolayNeil GoodhueMr. Brian GoodmanMrs. Kim GoodnowJoseph GordonSharileigh GordonMr. Thomas GordonMrs. Karen Gordon QuintalCyle GraberMs. Gertrude GrantMilton and Sonia GreenbergMatthew GreeneMr. James GreshamMr. John GreyMr. Stuart GriffenJoan GriffinMichelle GriffinMrs. Bonnie GrosjeanMs. Christy GullionDennis HaggertyStan HalleMs. Barbara HamrickLarry HandKathleen HaneyMs. Deborah HankinsonRebecca HansonMr. Tom HanusikStacie HardenJames and Pam HarrisWilliam HartigMr. Keith Hartt and Ms. Ann H. WiedieMr. and Ms. Rickey HassMason HawkinsMr. and Mrs. Tom HealyCecilia HellerJay HelmsMr. and Mrs. Chris HenningerMr. Shawn M. HerlihyMichael HerlingMr. Steven HerzMr. John HicklinMr. Jeffrey HicklingMr. and Mrs. Rocky HigginsMs. Maryann HirschMs. Christine Hoang

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Mr. Edmund HollanderJohnny HollidayFrances and Melissa HopkinsMrs. Megan HovsepianPat and Susan HowardMr. and Mrs. John HowardEmily HuangPhilip HudginsBrian JaffaMs. Marjorie JelinFritzie JenningsDawn and Jeff JohnsonPamela JohnsonAnn JonesMs. Marie JordanLynne JosephDr. and Mrs. Paul FisherMr. Gary JoyalStephen JoyceMr. William JugusLisa KacmarMr. Andrew KahnMr. Donald KahnMrs. Marla S. KantorMr. Louis KargerMs. Kim KatzBrian KavanaughMs. Jennifer L. KeevertElissa KeicherMrs. Mary J. KelleyMr. and Mrs. John KelleyRose KelleyMr. Stephen P. KelliherJohn KennedyPatrick KeohaneMr. Brian J. KickhamMr. John KingBeth KlarmanMs. Traycee E. KleinMr. Todd KleinR.A. KleistMr. and Mrs. Lawrence KosowChrista KramerMr. G. J. KredietKurt KrizanMrs. Patricia KunkelDan LaBelle and Joanna ShallyAaron LamsteinMr. and Mrs. Stephen LanctotMs. Alicia LandisRobert and Linda LaneAndrew LantzErika LariosMr. Ben LeavertonMichael LeBlancAlan and Sharon LeeMichael LehrMargaret LeidyDavid LendtTheresa LeslieMr. Dan LetterleMrs. Wendy LeuchterMrs. Sharon LiebermanMr. Charles Lindsay

Mrs. Judy LinehanMs. Josephine LittleJoel LoaneMr. Wayne LongMr. Rick LoweTracy LussierMs. Nancy LynnTim and Marilu MacCarthyMr. Steven MachtingerMr. Scott MackMegan MackhBrad MadisonJennifer Magri GallagherJames MaherMiss Amelie ManciniMs. Catherine MannionJill MannionJed ManocherianSusan MarcelloMiss Barbara MarowskiMrs. Karen MartinShannon MartinMr. and Mrs. Scott MartinsonTodd MattsonMs. Dorothy MawnMiss Marilyn MawnAlicia and Sam Mawn-MahlauBruce McAdamsMs. Maria McCabeMr. James K. McCarthyJoseph and Peggy McCloskeyDr. Cindy McCordAnne McCormackStephen McCuneMr. and Mrs. Thomas P. McDonoughMs. Maureen McFarlandDeanna and Harold McIntireMs. April McKeeMrs. Elizabeth-Anne McNamaraChristine McNichollMr. Larry MeadowsAdam MellorMr. Brad MendelsonMr. Charles MengesStanley J. MeresmanRonnie MervisMr. Ron MeyerMs. Leesa MiaoMr. Saeed Milani-NiaDr. Jeffrey MillerJohn MitchellMr. Hamid R. MoghadamMr. Jason MooberryMr. and Mrs. Leon MooreMrs. Debbie MoormannAlix MorganMichael MorinWilliam MoseleyMiss Catherine MosesMark MosleyMrs. Tammy MottMr. Michael S. Moxness and Ms. Deborah EchtJanet Mukri

Mr. Greg NeedlesMr. Jeffrey NeumannBrandon C. NeumenDebra NewmanSteve NewmanMr. and Mrs. Rich NunesSteven NussbaumMr. Kevin O’ConnorMs. Sandra O’ConnorMr. James O’MalleyStan OaksMr. and Mrs. Norman OblonParris OchsnerMark OlineMr. Chris OlsonMs. Margaret OriotNatalie OronaBarbara OstendorfIra PalgonJohn PaloianMr. and Mrs. Stephen PapermasterMelinda PappMr. Christopher ParkerMr. Kamlesh PatelVincent and Janet PatroneMs. Suzanne PeckMr. William PeelMs. Cynthia PeffersMichael PeilMs. Louis PereiraMr. Robert PerrinAnn PetachElaine PetachStephen PetrashMr. Mark PierceAmos PikeMr. Henry PilgerLisa and James PoffEdward PoolMs. Constance PotterMr. Jonathan PotterChristopher PowersDarren and Jill PrattMs. Drana PrekelezajMr. John PriceKeyring ProjectJu QinMs. Donna RaineyCourtney RainwaterMr. Bruce RamsayMs. Gina RaspaMr. Chris ReillyKate ReinholtJudith and John RemondiThomas and Debra ReynoldsMark ReynoldsKathleen RhodesDebbie and Doug RichardsMigsie RichlinMrs. Ruth RichterMarie Riehle and Dan AltemusPhyllis RigginsMr. William T. RileyRobert Rispoli


Robin RobertsMr. Daniel RoitmanMs. Marguerite RollingsHenry RomanDr. Brian RoodDavid RoseEllen RosenblumMr. Benjamin RothJoseph RotondoNancy and Ron RovansekAlan RubinsteinMr. Michael RudmanRichard RuelMs. Susan RuhlErik RusekMr. Paul RuskinMrs. Kathie RussellJames SamahaMrs. Jennifer SandsLou and Krista SantoraKathy SanzoPankaj SarinMr. David SavilleJeffrey and Irene SchanzHans SchapireMr. Richard SchifterMr. Jeffrey SchletteDr. and Mrs. Mark SchlobohmMs. Laura SchmittNorm SchneebergerHope and Gary SchwabJohn David SciallyAmanda and James SebraMs. Miriam SelmanKathleen SestakDr. David ShapiroJudith ShifferAbbie ShotzDaniel ShraderGregg and Lisa SimonMason SlaineLynn SlaterSusan SlaterMr. Patrick SlyBailey SmithCurtis SmithDarren SmithNeal SmithMr. Charles Henry Smith, IIIDr. Julie SohlMonica SparkmanAnn StaileyMs. Hanna StaileyLuke StantonMr. and Mrs. Sherman H. StarrMr. Ryan SteelDick StocktonMr. Peter StoneBenn StrattonMr. Chris StrawnMr. Reid StuntzDonna SuttonJeff Swann

Mr. Herbert SweeneyJanie SweenyAmy SylvetskyKelly and Vince TagueVirginia TavillaMartin TaylorBethAnn Telford and Robert LatinMr. Ken TestaMs. Nancy G. ThomasNeil ThomasMr. Micheal ThomassonAllison and Euan ThomsonMr. Stig ThormodsrudLang and Jen TibbilsNancy and Scott TidwellMr. David TownshendLynne Tran and Maria TranSteven TrumbleJanet and Filipo TupuaBill TurnbachMr. Neeraj UtrejaAngelina ValleThomas VallelyLisa Van ErtMr. Larry Van SantWilliam VangelosErnest VarneyMr. Kevin VirostekRod VolzMs. Kelly Von BlonMichael WaldbilligL. Joseph WalkerMs. Christine WallaceElizabeth WaselMs. Mary WaysElizabeth Weatherman and Andrew DuncanEdward WeissMr. Stephen WeissMark and Karen WeitzelMr. Bradford WellesMr. Pete WellingtonJudith WellsEric and Laurie WengerMr. and Mrs. Thomas WestcotMrs. Michelle WestenbergerMs. Amy WhiteTabitha WhitehillRaymond WierzbickiMr. Randall WilbertCandy and Peter WilsonElaine WilsonMs. Patricia WingreenSusan and Floyd WinslowMr. Matt WinslowRabbi Eric Wisnia and Judith Glassburg WisniaMr. Raymond WisniewskiMr. David WitekFrederic WittmannJohn WolfeErich WolffMrs. Phinon Woodside

Mr. Robert YoderJulie YoungMr. Charles J. ZacneyDavid ZallieMr. Eric Zeanah

ORGANIZATIONS$50,000+ Cassidy Turley Washington, LLCGenentech, Inc.Marianne Walther Charitable Remainder UnitrustMorgan, Lewis and Bockius, LLPStudents Supporting Brain Tumor Research

$25,000 - $49,999EMD Serono, Inc.Leonard S. Kaplan and Hilda Kaplan Charitable FundMedical Research Agencies Of AmericaRachel Molly Markoff FoundationStephen C. And Ellen J. Conley Family FundVanguard Charitable Endowment ProgramYK Foundation

$10,000 - $24,9995 Hour EnergyArnold & Porter, LLPBank Of AmericaBarclays Bank DelawareBeacon Capital Partners, LLCCharles DeGanahl FoundationCity National BankClear Channel OutdoorConrad and Christa Burke FundDCW Brain Cancer LPDelaware Valley HR Person of the year award, Inc.Estate of David AkardFirst Potomac Realty Investment LPFore! Reservations, Inc.Geico Philanthropic FoundationGregg Family FoundationInvision Communications, Inc.Katten Muchin Rosenman Foundation, Inc.Lucile Salter Packard Children’s HospitalMichael Cassidy Memorial FundNewman Family FundNick Gonzales Foundation for Brain Cancer ResearchNight Of Hope - David Cook 2012Penn MedicinePerry, Neidorf & Grassl, LLPPhiladelphia FoundationRainwater Charitable FoundationRalphs - Food 4 Less FoundationRogue Racers, Inc.Silicon Valley Community FoundationStanford Hospital and Clinics

2013 Summit 21

Stephen Case FoundationSusquehanna International Group, LLPThomas Jefferson Univerity, Dept. of Neurological SurgeryUnited Plankton Charitable TrustVermont Community FoundationWilliam J. Shaw Family Foundation

$5,000 - $9,999Abramson Family Foundation, Inc.American Consumer Credit Counseling, Inc.Anne And Ronald Abramson Family FoundationAtlantic Automotive GroupBaylor Health Care SystemBest Buy Co., Inc.Bill’s BrigadeBrain Tumor Center At Saint John’s Health CenterCelgene CorporationCerebral Hope FoundationChris O’Brien Invitational Golf TournamentClark Charitable FoundationCleveland Brothers Eqpuipment Co., Inc.County First BankCoventry Health Care, Inc.Crowell and MoringD.A.S.H. Charitable FoundationDPR Southern CaliforniaEpic Systems CorporationFund The Laroche Family Charitable FundGlassman Wealth Services, LLCHoag Memorial Hospital PresbyterianIBM Employee Services CenterImmunoCellular TherapeuticsIntercontinental ExchangeJBG PropertiesJoel H. Levitt Memorial Charitable FundJohns Hopkins UniversityLeo Burnett CompanyLong Island Brain Tumor CenterMadison Asset Management, LLCMake Change! TrustMedical Sciences of Cornell UniversityMicrosoft Matching Gifts ProgramMorgan Stanley GoldPerformance-Based.comPristine Advisers, LLCRemondi Family FoundationRobert Lloyd Corkin Charitable FoundationRockwood Capital Corp.Scoops2uSinghal & Company. Inc.Stikk.comSunshine Regenstreif and Taylor LLPVocus, Inc.Whirl Colorado, LLCWolf Family Charitable Trust

$2,500 - $4,999Adesa New JerseyAlbert’s OrganicsAlliance BernsteinAllied Telecom Group, LLCAngelo, Gordon And Co.Apex Home Loans, Inc.Associated Trust CompanyBath FitterBelfor USA Group, IncBerenbaum Weinshienk PCBounty HunterBracewell and Giuliani, LLPCapitol Response Vehicles, LLCCascades Tissue Group- Sales, Inc.Catch The Brain WaveCatherine V. & Martin W. Hofmann FoundationChris and Melody Malachowsky Family FoundationClark Construction Group, LLCCooper Health SystemCritical Reach Access, LLCCrozer-Chester Medical CenterDavid Cook Night Of Hope Auction ProceedsDynamic Concepts, Inc.Ernst & Young US, LLPEstate of Elinor CliffordExtra Clean, Inc.Fairmount Park Trust Funds Disbursements AccountFans of JanFederal Capital PartnersFidelity Charitable Gift FundGarden Fresh Salad Co., Inc.Genentech GivingstationGoogleGrantham, Mayo, Van Otterloo & Co. LLCGreat American Insurance CompanyHexberg Family FoundationHonolulu Freight ServiceInsurance AssociatesIrish Network San Francisco, Inc.Laborer’s International Union Of N.A.Managers Investment GroupMarshall And Sterling InsuranceMcdonnell Investment Management, LLCMerck Partnership For GivingMission FishNestle/Deer ParkNew York Community TrustNormandy Real Estate PartnersNovocurePopchipsPosh BoutiqueProvidence Health SystemRainierRocky Mountain Gamma Knife Center, LLCSouthern A&E, LLCStarbucks Coffee Company

Tishman Speyer PropertiesTruland Service CorporationU.S. Aluminum Company, Inc.UCSD Moores Cancer CenterUniversity Of California, IrvineVisioneer, Inc.Wells Fargo FoundationWestside Estate Agency RealtorsWestwood Financial Corp.Wolf-Pack Fund

$1,000 - $2,4995:30 am Spin ClassActive NetworkAdam Russell Gelfand Charitable FoundationAerotek, Inc.American Express FoundationAmerican Heritage Federal Credit UnionAmerican Shared Hospital ServicesAmgen Foundation Matching Gifts ProgramAnne & Ronald Abramson Family FoundationAvalonbay Communities, Inc.AWM Management TrustBanks Square Market Corp.Bergelectric Corp.Bernstein CompaniesBernstein Global Wealth ManagementBeth Maher Family FoundationBJ’s Restaurants Foundation, IncBloomingdale’s, Inc.Blue Cross Blue Shield Of DelawareBlue Cross Blue Shield of MassachusettsBMW Of San FranciscoBNBuilders, Inc.BNY Mellon Wealth ManagementBoston Foundation, Inc.Bradley Zankel Foundation, Inc.Bridgewater Presbyterian ChurchBristol-Myers Squibb FoundationBrockport High School National Honor SocietyBrown Advisory Charitable Foundation, Inc.Brown-Forman CorporationBrowne AcademyBurgess Steel Charitable TrustBWPO Department of NeurosurgeryCablevision Lightpath Disbursement AccountCallaway Golf Company FoundationCapital Group Companies GlobalCaremark RX, Inc.Carrier JohnsonCastanea Partners, Inc.CGC Financial ServicesChevron Humankind Employee FundsChevy Chase AutomotiveChistiana Rotary Club FoundationChristiana CareCleanoffice, Inc.


Cliff Bars Community Events SponsorshipCoach Matching Gift ProgramCommunity Foundation For The National CapitalCorporate Office Properties TrustCove Risk Services LLCCovidienCRB Consulting EngineersCriswell MaseratiD.B. Schroeder & Co., Inc.Devereaux Charitable Foundation TrustEdward H. Kaplan Revocable TrustEnterprise HoldingsERA First Advantage Realty, Inc.Eric K. Torvi Foundation Inc.Estate of Elizabeth SmithExpedia, Inc.F and M Mortgage Group Co.FactSet Research SystemsFamous TavernsFederal Criminal Investigators’ AssociationFidelity InvestmentsFirst American Insurance UnderwritersFlip and Bailey’s, LLCForest Laboratories, Inc.Frank And Denise Quattrone FoundationFredy Rosenbaum FoundationFreeman Freeman And Smiley LLPFrito-LayFuse ScienceGE FoundationGeorge J. Weiner Associates LLPGoldman SachsGolf Car Specialties, LLCGreenberg, Wexler & EIG, LLCGrey FamilyGrimshaw Gudewicz Charitable FoundationGrossman Family FoundationGruber Family FoundationGuam Freight Services, Inc.Hair Place, Inc.Hansen FoundationHartford InsuranceHeadline Salon and ClientsHealthy BuildingsHeidelberg USA, Inc.Hitt Contracting, Inc.Hope EngineeringHopworks Urban BreweryHybrid ApparelIMS HealthInstinet Intersections, Inc.Invensys Systems Inc.J. Frank Schmidt Family Charitable FoundationJames E. Kilduff, Inc.Janney Montgomery Scott, LLCJewish Community Endowment Fund

John Hancock Financial Services, Inc.John Muir Neurosciences InstituteJohnson & JohnsonJoseph J. Albanese, Inc.JP Morgan Chase FoundationJustgiveJW LopesKarpinski FamilyKeesen Landscape Management, Inc.Keurig CoffeeKimberly Heller Charitable Gift FundLaurent’s RunLenape Regional High School DistrictLilabean FoundationLogistics Management InstituteLou Pizzo, LLCMarlette Family FoundationMaslon FoundationMcCormick and Company, Inc.McGuireWoods LLPMcLea’s Tire and Automotive ServiceMcOmber Family FundMedical Monitoring Services, Inc.Medtronic Surgical Navigation TechnologiesMetro Metals Recycling, LLCMiller Girls Service OrganizationMohawk Rubber Sales of N.E., Inc.Moncrief Cancer CenterMorty Gudelsky Foundation, Inc.Mount Sinai School of MedicineN2M BeveragesNationwide Mutual Insurance CompanyNetwork For GoodNew Rochelle High SchoolNew York Cruise Lines, Inc.Old Fighter Memorial Golf TournamentOlesky Family FoundationOrphanides and Associates, LLCP. Tavilla Co., Inc.Pacific Building GroupParallon Business Performance CenterPedas Family FoundationPfizer FoundationPhiladelphia Insurance CompaniesPnc Advisors, Fund For Charitable GivingQueens Ballpark Company, LLCRandall Wolf Family FoundationReebok FoundationRenaissance Investment ManagementRichard H. Holzer Memorial FoundationRing’s EndRiverheads High SchoolRollout For Charity Handball TournamentRosebud Suffolk Farms Inc. Community - Suffolk IncRoxbury Charitable FoundationRudolph and Hilda U. Forchheimer Foundation, Inc.Rudolph and Sletten, Inc.Ryles Dance Hall and Supershag

Sack Law Firm, P.C.Sam H.T. Chen FoundationSamuel & Nathlyn Larner Family FoundationSan Francisco Deputy Sheriffs FoundationSantora CPA GroupSaxon’s Diamond Centers, Inc.Schindler Elevator CorporationSellers Publishing, Inc.Shark River Beach & Yacht ClubSolomon, Ward, Seidenwurm & Smith, LLCSpring Down Equestrian CenterStanford Federal Credit UnionStudio Motel, LLCSwavelle/Mill Creek Fabrics, Inc.Swinerton BuildersTanimura & Antle PartnershipTD Bank N.A.Team BrainstormTelevate, LLCTempe Rim Rock FacilityTGF Management Group Holdco Inc.Thomas W. Pyle Middle SchoolThomson ReutersTotal Quality Building ServicesTruck Crane SolutionsUCSF Medical CenterUnited AssociationUnited States Liability Insurance GroupUnited Way of DelawareUnited Way of Greater PA and Southern NJVerizon Foundation Matching Incentive ProgramWalton Street Capital, LLCWebcor BuildersWest Herr Automotive GroupYasso Frozen Greek YorgurtYuknik, Inc.Zenith Information Systems, Inc.Ziff Brothers Investments, LLC

Every effort has been made to ensure the accuracy of our donors’ names. We regret any errors or omissions, and we invite you to call the Development Office at 617.391.6541 with any corrections or concerns. Thank you.

2013 Summit 23

Thank you to our Sponsors

Thank you to Flagship and Gold sponsors for our Fall events. Your participation and support is vital to our mission.

National Brain Tumor Society

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.

We have a rigorous and thoughtful agenda, integrating research and public policy to bridge critical gaps. Starting with discovery science, to clinical trial design and the development of new therapies, there are many opportunities to make improvements and speed the momentum of new findings.

It’s time to build on progress and transform tomorrow, today.

55 Chapel Street, Suite 200, Newton, MA 02458617 924 9997 | www.braintumor.org

Ken GreyRichard Genderson Sheila Killeen Jeffrey Kolodin, Chairman Emeritus

Eric P. Lindquist Susan Pannullo, MD Vincent Patrone, Esq. Alison Ross, Esq. Rabbi Eric B. Wisnia

Honorary Board MembersG. Bonnie Feldman Steve Karol Scott Memmott, Esq. Charles B. Wilson, MD

2012-2013 Board of Directors

Michael Nathanson, Chair Cord Schlobohm, Vice Chair

Michael Corkin, Treasurer Sarah Durham, Clerk

N. Paul TonThat, Chief Executive Officer

For those of you who may be tweeting from the Summit, we encourage you to mention #NBTSSummit13 so others can see what you are saying about the event!

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