HISTORY OF THE DISABILITY LEGAL ADVOCACY NETWORK

Curt DeckerExecutive Director, NDRN

Amanda Mays

Disability Advocacy Specialist, NDRN

National Disability Rights Network

Vision: NDRN has a vision of a society where people with disabilities have equality of opportunity and are able to participate fully in community life by exercising choice and self determination.

Mission: NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities.

NDRN Activities

•Trade Association

•Training and Technical Assistance Provider

•Quality Assurance

•National Disability Rights Leadership

•Contractor and Fundraiser for Members

PADD$41M

PAVA $5.3M

PATBI $3.3M

PAIR$18.1M

Principles of Protection & Advocacy Systems

CLIENT-DIRECTED

LEGALLY BASED

INDEPENDENT ADVOCACY

CONSUMER-MANAGED

Priority Setting

•Consumer Involvement

a)Board of Directors

b)PAIMI Advisory Council

Continuum of Remedies

Authority

“Pursue legal, administrative& other appropriate remedies”

• Range of Issues

• Ranges of Remedies

• Ability to Respond

• Access Persons, Records, Facilities

PADD

• 1975 – Developmental Disabilities Assistance and Bill of Rights Act includes Protection & Advocacy

• 1977 – Planning grants to State ($20,000)

• 1978 – Protection & Advocacy agencies begin operations with State Designations

PADD$41.0M

PAIM

I

• 1984 – Client Assistant Program (CAP) reauthorized as formula grant program

CAP

• 1986 – Protection & Advocacy for Mentally Ill Individuals (PAIMI) program enacted (Institutions + 90 days)

• 2001 – Expansion of PAIMI to community

PAIR• 1989 – Protection & Advocacy for Individuals Rights (PAIR) demos

• 1991 – PAIR program reauthorized to formula grant

• 1993 – PAIR trigger reached

PAIR$18.1M

PAAT

• 1993 – Assistive Technology subcontracts

• 1998 – Protection & Advocacy for Assistive Technology (PAAT) funded

• 2004 – PAAT Reauthorized

PABSS• 1999 – Ticket To Work/Work Incentives Act (TTWWIA) passes

• 2001 – Protection & Advocacy for Beneficiaries of Social Security (PABSS) funded

PATBI

• 2001 – Protection and Advocacy for Individuals with Traumatic Brain Injury (PATBI) Authorized

• 2002 – PATBI Competitive Grants - $1.5 million – 33 Awards

• 2003 – PATBI moves to formula

PATBI$3.3M

PAVA

• 2003 – PAVA funded at $2 Million

• 2004 – PAVA funding raised to $5 Million

PAVA $5.3M

History of Disability Legal Advocacy Network

• 1994 – Native American P&A established

• 2005 – NATIONAL DISABILITY RIGHTS

NETWORK

• 2005 – Katrina Aid Today - $5.4 million

• SSA Representative Payee Oversight project

• CLASS Act P&A

CAP $11.7M

PADD$41M

PAVA $4.72 M

PATBI$2.97 M

PABSS$7 M

PAAT$4.45 M

PAIMI $34.0M

PAIR$16.489 M

PAVA $4.72M M

PATBI$2.97M

PABSS$8.6M

PAAT$4.3M

PAIMI $36.4M

PAIR$18.1M

Special Education Autism PAJJ

Class Act

Veterans

Emergency Preparedness

Rep Payee $1.4M

FY10 Primary Disability Data

# of Served % of Served• Mental Illness 19,525 36.11%• Mental Retardation 7,082 13.10%• Autism 4,928 9.11%• Orthopedic Impairments 4,413 8.16%• Specific Learning Disabilities 3,702 6.85%• Traumatic Brain Injury 2,659 4.92%• Cerebral Palsy 1,729 3.20%• Other Emotional/Behavioral 1,542 2.85%• Hard of Hearing / Deaf 1,500 2.77%• Blind / Visual Impairments 1,223 2.26%• Neurological Disorders 1,143 2.11%• Other Intellectual 1,004 1.86%• Epilepsy 549 1.02%• “Other” and All Others <1% 3,068 5.67%

* Data based on the73% of PPRs submitted.

Federal Government

WHAT CAN P&A’S HELP WITH?

• Special Education Advocacy• Abuse and Neglect investigations• Access to Service/Healthcare entitlements• ADA accessibility issues• Community integration and participation• Employment, Housing and Transportation

MORE INFORMATION ABOUT NDRN

NDRN website: www.ndrn.org

Contact your P&A:

http://www.ndrn.org/en/when-to-contact-your-state-paa-cap.html

Questions and Comments