nchpeg annual meeting september 23, 2009 nchpeg, march of dimes, harvard partners, genetic alliance...
TRANSCRIPT
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NCHPEG Annual MeetingSeptember 23, 2009
NCHPEG, March of Dimes, Harvard Partners, Genetic Alliance
Health Resources and Services Administration
Family History for Prenatal Providers
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Outline
Background
Overview of project
Project developments
Demonstration of related family history tool
Discussion
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Family History
Risk assessment based on family history:o Personalizes and prioritizes health
messageso Shifts the focus of health care from
treatment to preventiono But only if providers obtain, interpret,
and act on the information
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Family History in Prenatal Care
Challenges:1. Time for collection2. EHR almost useless for FH3. Inadequate provider knowledge4. Complex and lengthy clinical
guidelines
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Project Overview
Three-year cooperative agreement with HRSA (6/09 – 5/12)NCHPEG March of DimesHarvard Partners/Newton Wellesley Hospital/Mass
General HospitalGenetic Alliance
Produce a family history tool for PCPs delivering prenatal careInteractivePoint-of-careClinical decision supportImmediate educational resources
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The Prenatal Family History Tool
Tablet PC
Tool database
Electronic Risk Assessment
Educational Materials
Electronic Health Record
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Work Plan1. Family history literature review for prenatal,
newborn, and lifespan of female patient – August 2009
2. First advisory-committee meeting – Oct. 2, 2009
3. Select and confirm clinical sites – December 2009
4. Adapt HughesRiskAppsTM for use in the prenatal setting – July 2010 Risk algorithms, functionality, user interface
5. Develop patient and provider educational materials– July 2010
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6. Evaluate the impact on the knowledge and behavior of prenatal providers – July 2010 – December 2011
7. Implement and evaluate pilot Tablet-PC, web-based, and hard-copy versions of tool in clinical sites – March 2011
8. Disseminate the tool through professional societies, national meetings, and health resource websites – December 2011 – May 2012
9. Develop a detailed set of recommendations for the integration of family history information into EHRs – 2012
Work Plan
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Clinical Site Selection
1. In-house “champion”1. Any volunteers?
2. Existing IT infrastructure3. In-kind resources4. Collaboration on evaluation 5. Access to genetic services6. Diversity
1. Geographic 2. Provider 3. Patient
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Determining Scope of ToolPrenatal vs. perinatal/pediatric vs. lifespan of
patientNumber of conditions vs. algorithm
complexity/time for data entry Will include both monogenic and complex
disordersFragile XPre-term birthNewborn screening
Can we incorporate risk assessment and education for other conditions?Hereditary cancer syndromesOsteoporosis
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Demonstration
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Questions?
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PartnersNCHPEG
Joseph McInerneyEmily Edelman
March of DimesSiobhan DolanBruce Lin
HRSAPenny KylerMichele Puryear
Harvard Partners/NWH/MGHKevin HughesBrian DrohanAdam Woflberg John Sharko
Genetic AllianceJames O’LearyVaughn Edelson