neuroplasticity & your brain · neuroplasticity! learning challenge your brain with activities...
TRANSCRIPT
Neuroplasticity describes brain changes in response to activity, thoughts and experiences. Nerve cells have interconnections that form circuits that are part of even larger networks designed to work together. Neuroplasticity is defined as the ability of these brain cells and networks to change or modulate connections and brain activity in response to every day experiences. In essence, neuroplasticity allows the brain to respond, adapt, understand, learn and modulate brain activity and performance in response to the needs, changes and challenges placed on us by our environment, activities and experience.
Neuroplasticity is a constant process that allows us to learn, adapt and change. Neuroplasticity can be positive and adaptive or negative and maladaptive. For instance, exercise can have adaptive changes designed to strengthen motor and cognitive networks leading ultimately to better performance. Negative thoughts, hopelessness or traumatic stress can blunt gains achievable by exercise or lead to changes in brain
regions that modulate distress and emotions leading to depression or post-traumatic stress disorder.
There are many examples of neuroplasticity and Parkinson’s; the majority supporting the role of exercise in enhancing motor performance and motor control. Exercise induced improvement in mood and cognition is associated with an increase in brain growth factors and size of the hippocampus - a brain region important in learning and memory. More expansive potential for neuroplasticity exists when selecting activities that activate larger brain networks by combining your senses (i.e., music, aroma and touch), emotions (i.e. positivity), awareness (i.e. intention) and spirit (i.e. meaning, value and passion). For example, physical and cognitive performance and emotional well being can improve with meditation and these results correlate with brain changes (both size and activity) measured in the frontal lobes and amygdala, brain regions associated with high level reasoning and distress, respectively. Not unexpected, exercise when performed outside has a greater impact on depression than exercise performed indoors. Finally, the simple act of holding the hand of a loved one during stress changes brain activity suggesting that neuroplasticity may even be the reason why emotional connections are so important to healing and living with a chronic disease.
In the right circumstance, then, our brains are developed to respond in ways that help us get the most out of activities that improve survival and quality living. Consider adding positive neuroplasticity as a goal of therapy or treatment; whether it is the beneficial effect of medicine on the ability to move, a focused exercise plan or exposure to emotionally positive events.
Neuroplasticity is about more than increasing your exercise intensity. There are things you can do each day that engage and challenge to promote positive brain change. Take inventory of your day and think about how you might add activities for brain health based on these principles of neuroplasticity!
LearningChallenge your brain with activities that are new to you and require you to learn and experience new things - dance, music, painting, singing, etc., new and innovative tasks, thoughts or activities that require us to learn new skills or ideas.
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NEUROPLASTICITY & YOUR BRAIN
Parkinson VoiceSUMMER 2018 | VOLUME 10, ISSUE 2
Colorado Support Groups03
Raising the Bar02
11Topics NOT Regularly Discussed
10After the Diagnosis: Putting the Pieces Back Together
05Exercise Classes
A LOOK INSIDE
By Dr. Monique Giroux
2018 will be a year of transition for the Parkinson Association of the Rockies, and we are excited at the prospect of Raising the Bar throughout the year. This year the Association has hired four new people who came ready to jump in and serve the Parkinson’s community. Their creative and innovative ideas have already started us on a path to ensure that we are prepared to handle the amazing growth we have already seen in our programs and services. With our new staff, we are committed to focusing on three areas we believe can “Raise the Bar” and make a significant difference in our Parkinson’s community.
COVERAGE OF COLORADOOur goal is to extend our rural outreach this year and next throughout Colorado regions that currently have little to no access to education or support for people with Parkinson’s and their care partners. We will reach this goal through adding exercise classes, support groups and educational opportunities throughout the state, both in person and through webinars. Just this year we have held new educational events in Durango, Greeley and Cheyenne, to name a few, and we are continually being asked for more. We are committed to doing just that! We want to make sure that we are answering that call with quality programs and services.
UNDER-SERVED POPULATIONSWe understand that there is an under-served population of people with Parkinson’s and their care partners here in Denver. Our goal is to provide community outreach to ensure that minority populations know that the Association is available within their communities to provide education, support and services. We will be reaching out to new communities, other non profits and faith centers to create awareness of Parkinson’s disease and connect individuals with the appropriate resources to help diagnose and provide critical treatment. We will be working within the community to create a grassroots campaign to reach those in need. If you know of communities or individuals in need, we would love your help!
INCREASE QUALITYWe have grown exercise classes at an extremely rapid pace in the past few years. This is great for our constituents to have more options and variety, and we are excited that we now have approximately 50 classes per week. We are hitting pause for a few months on new classes to make sure that we have time to improve the quality of the classes we offer. Once we are confident in this, we will continue to expand classes once again. We appreciate your feedback on where and what classes would be beneficial, so please keep those ideas coming. Your help and input will help us prioritize where to aim our focus.
We welcome your honest feedback on how we can raise the bar! Thank you for your support and involvement!
RAISING THE BAR
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ComplexityThese activities require your focus, attention, practice and are challenging. For example, you might consider substituting a workout on the weight machine or the treadmill with a performance task that require attention, practice, and challenge such as yoga, tai chi, boxing, Feldenkrais®, dance or rock climbing.
Practice and IntensityPractice makes perfect and effort gets results. Neuro-connections in specific brain circuits associated with a particular activity will strengthen the more you perform that activity. Think about your performance when putting forth effort. The goal is not to do more, but to do so with a focus on performance. For example, walking faster and longer will improve cardiac output and nerve function, but more is not always better as you can reinforce poor biomechanics. Walking with the intention to maintain good posture, arm swing and stride length will strengthen nerve connections associated with improving your gait.
Choose PositivityYou will find that certain activities enhance positive feelings or attitude, sense of possibility and control. Workshops, classes and group activities can add encouragement and positive support to help keep you motivated, enthused, confident and feeling good about your experience.
Add Meaning Some activities bring a sense of personal meaning, significance or spiritual growth. Is there an opportunity to volunteer or teach and connect with others in a meaningful way? The impact of meaning and the quality of your experience is also significant as is highlighted through observations that the impact of exercise differs whether performed in a group, an activity you enjoy or experienced in nature versus indoors.
Be Present Mindfulness means being present in the moment. Don’t just go through the motions, but expand your experience and their results by adding awareness of your senses, thoughts, emotions, body movement and sensations to your activity.
Integrate Brain activity is not limited to individual circuits working in isolation but through an integration of brain regions and circuits. Enhance neuro-connections throughout the brain by choosing activities that integrate your senses, motion and emotions. For instance, music, dance and music therapy effectively tap into each of these areas while adding challenge and fun. Difficult movements also become easier since our brains are ‘hard wired’ to move automatically to the beat.
BalanceBalance your weekly activities. Be sure to add variety, engage the mind and emotions. Include relaxation and minimize stressful experiences which could accompany the best intentions.
NEUROPLASTICITY & YOUR BRAIN FROM PAGE 1
A NOTE FROM THE EXECUTIVE DIRECTOR
For Care Partner specific Support Groups, please visit page 7. For more information on Support Groups and contact information for support group leaders, please contact the Parkinson Association of the Rockies at (303) 830-1839 or [email protected].
SUPPORT GROUPS
ARVADA3rd Thursday • 1:00pmCommunity Center of Apex6842 Wadsworth Blvd.
AURORA2nd Tuesday • 1:00pmHeather Gardens 2888 S. Heather Gardens Way, Aspen Room
BOULDER4th Tuesday • 10:00amNo Meeting in August Frasier Meadows Retirement350 Ponca Pl.
BRUSHQuarterly MeetingsContact Parkinson AssociationEben Ezer Lutheran Care Center 122 Hospital Rd.
BROOMFIELD1st Tuesday • 10:30amBroomfield Community Center280 Spader Way
BUENA VISTA1st Saturday (ODD months)10:00am127 Hill St.
CEDAREDGE1st Wednesday • 9:30amCedaredge Assembly of God1596 SW 9th St.
CHERRY HILLS VILLAGE2nd Wednesday • 11:00amBethany Lutheran Church4500 E. Hampden Ave., Room 315
2nd Thursday • 6:30pmBethany Lutheran Church4500 E. Hampden Ave., Room 315
MSA/PSP/CBD 2nd Friday • 10:00amFirst Plymouth Church3501 Colorado Bvld.
COLORADO SPRINGS/MONUMENTProvided by Colorado Springs Parkinson’s Support Group www.co-parkinson.org
The Young MINDset Parkinson’s2nd Wednesday • 5:00pmVisit www.co-parkinson.org
2nd Saturday • 10:00amFirst Presbyterian Church105 N. Weber St.
3rd Saturday • 10:00amWoodland Park Library218 E. Midland Ave.
3rd Saturday • 10:00amTri-Lakes Senior Center17250 Jackson Creek Pkwy., Monument
DENVER3rd Monday • 11:30amWindsor Garden595 S. Clinton St.
Recently Diagnosed (1-3 years)4th Tuesday • 11:30amNo Meeting in August Christ Episcopal Church2950 S. University Blvd., Barnes Hall
3rd Thursday • 6:00pmDahlia Campus for Health & Well-Being3401 Eudora St.
DURANGO3rd Thursday • 1:00pmFirst United Methodist Church2917 Aspen Dr.
EAGLE VALLEY/EDWARDS4th Thursday • 5:00pmTrinity Church90 Lariat Loop
ESTES PARK3rd Tuesday • 2:00pmEstes Valley Public Library335 E. Elkhorn Ave.
EVERGREEN1st Friday • 1:00pmEvergreen Christian Church27772 Iris Dr.
FORT COLLINSRecently Diagnosed/Young Onset4th Monday • 6:30pmCouncil Tree Library2733 Council Tree Ave.
1st Wednesday • 10:30amFt. Collins Senior Center1200 Raintree Dr.
GRAND JUNCTION1st Wednesday • 3:30pmFirst Christian Church1326 N. 1st St.
GREELEY4th Thursday • 10:00amFMS Bank2425 35th Ave., Lower Level
HIGHLANDS RANCH4th Tuesday • 10:00amHighlands Ranch Library9292 Ridgeline Blvd.
3rd Friday • 10:00amWind Crest Community3235 Mill Vista Rd.
LAFAYETTE4th Tuesday • 2:30pmExempla Good Samaritan Med. 200 Exempla Cir.
LITTLETON3rd Saturday • 3:00pmNo Meeting in August Morning Star Senior Living5344 S. Kipling Pkwy.
LONE TREEYoung Onset Group3rd Friday • 6:00pmFox & Hound9239 Park Meadows Dr.
LONGMONT2nd Wednesday • 10:00amLongs Peak United Methodist Church 1421 Elmhurst Dr.
LOUISVILLELast Tuesday • 2:00pmBalfour Retirement Community1855 Plaza Dr., Wellshire Unit
LOVELAND/JOHNSTOWN3rd Friday • 10:15amGood Samaritan - Loveland Village 2101 S. Garfield St., Town Center Great Room
MSA/PSP/CBD2nd Friday • 1:00pmNorthern Colorado Rehab Hospital 4401 Union St.
MONTROSELast Monday • 2:00pmMontrose Memorial Hospital800 S. 3rd St., Room B
PARKER2nd Tuesday • 10:00amLife Care Center of Stonegate15720 Garden Plaza Dr.
PUEBLO2nd Tuesday • 11:15amYMCA Campus3200 E. Spaulding Ave., Room B
SALIDA1st Saturday • 10:00am205 G St.
STEAMBOAT SPRINGS2nd Monday • 5:00pmCasey’s Pond2855 Owl Hoot Trail
SUMMIT COUNTY3rd Friday • 10:00amContact Parkinson Association
WESTMINSTER1st Monday • 1:15pmNo Meeting in August Covenant Village Retirement9153 Yarrow St., Evergreen Room
WHEAT RIDGE3rd Wednesday • 10:00amNo Meeting in August Applewood Baptist Church11200 W. 32nd Ave.
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For more information or to register for any these events, please call (303) 830-1839 or email [email protected]. Continue to check our event calendar on our website at www.ParkinsonRockies.org for updates on event details and for additional programs.
UPCOMING EVENTS
Saturday, September 15, 2018 | 8:30am - 2:30pmHyatt Regency Aurora-Denver Conference Center13200 E. 14th Pl., Aurora
Join the Parkinson Association of the Rockies, along with Jimmy Choi, American Ninja Warrior participant and Parkinson’s patient, as he moves the crowd with his story of perseverance, determination and above all else, hope. In 2017 & 2018, Jimmy wowed the country after defying the odds and competing as an American Ninja Warrior while tackling Early Onset Parkinson’s disease.
Participants will be challenged to: • educate themselves on how sleep and fatigue can be affected by
Parkinson’s disease• energize and see the many ways to incorporate exercise, dance and
creativity into your life • empower themselves and their care partners through the use of
effective communication techniques
CONFERENCE DETAILS:Registration is FREE, but required by September 13th. Lunch will be provided. For more information and to register visit www.ParkinsonRockies.org/e3conference or contact the Association at (303) 830-1839 | [email protected].
Northern Colorado Transportation: A free bus will be available to bring participants coming from Northern Colorado to the event. Contact Elena Cussler at [email protected] for more details.
e3 Conferenceeducate • energize • empower
04Sponsorship Opportunities Available: Contact Karen Crumback (303) 830-1839 | [email protected]
Thanks to our e3 Conference Sponsors Energize Sponsor: Empower Sponsor: Educate Sponsor: Presenting Sponsor:
Exhibitor+ Sponsors:
WEDNESDAY, AUGUST 15 | 10:00 - 11:00AMAhead of the Curve: NonMotor Webinar
SATURDAY, AUGUST 25 | 10:00AM - NOONChat with the Parkinson’s Pros: Balance and ExerciseRawlings Library, 100 E. Abriendo Ave., Pueblo
TUESDAY, AUGUST 28 | 6:00 - 8:00PMAhead of the Curve: Cognition & Lewy Body DementiaCherry Hills Assisted Living, 6325 S. University Blvd., Centennial
TUESDAY, SEPTEMBER 18 | 1:00 - 2:00PMAhead of the Curve: Speech and Swallowing Webinar
THURSDAY, SEPTEMBER 20 | 6:00 - 8:00PMAhead of the Curve: Parkinson’s 101Brookdale University Park, 2020 Monroe St., Denver
WEDNESDAY, SEPTEMBER 26 | 6:00 - 8:00PMAhead of the Curve: NonMotor SymptomsEaton Senior Community, 333 S. Eaton St., Lakewood
SATURDAY, SEPTEMBER 29 | 10:00AM - NOONChat with the Parkinson’s Pros: NonMotor Symptoms Meadow View of Greeley, 5300 W. 29th St., Greeley
SATURDAY, OCTOBER 6 | 10:00AM - 2:00PMChat with the Parkinson’s Pros: NonMotor SymptomsGrand Vista Hotel, 2790 Crossroads Blvd., Grand Junction
TUESDAY, OCTOBER 9 | 2:00 - 3:00PMAhead of the Curve: Disability Law Webinar
TUESDAY, OCTOBER 16 | 2:00 - 4:00PMAhead of the Curve: How to Get the Most Out of Your Doctor’s AppointmentCovenant Village Westminster, 9153 Yarrow St., Westminster
SATURDAY, OCTOBER 27 | 9:00 - 11:00AMChat with the Parkinson’s Pros: Topics NOT Regularly DiscussedSteamboat Community Center, 1605 Lincoln Ave., Steamboat Springs
WEDNESDAY, OCTOBER 31 | 11:00AM - NOONAhead of the Curve: Care for the Caregiver Webinar
WEDNESDAY, NOVEMBER 7 | 6:00 - 8:00PMAhead of the Curve: How to Care for the Family Senior Resource Center, 3227 Chase St., Denver
SATURDAY, NOVEMBER 10 | 10:00AM - NOONChat with the Parkinson’s Pros: NonMotor Symptoms Rawlings Library, 100 E. Abriendo Ave., Pueblo
Exhibitors:
PARKINSON ASSOCIATION CLASSESA liability waiver from your doctor is required. Not all classes meet every week. There are no fees associated with classes, but we encourage participants to Pay It Forward. For more information, please call (303) 830-1839 or email [email protected].
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POWER PUNCHPARKINSON’S BOXING Mondays • 2:00 - 3:00pmRuth and Ed Lehman YMCA950 Lashley St., Longmont
Mondays • 4:00 - 5:30pmRising Crane Training Center768 Hwy. 133, Carbondale
Tuesdays • 3:00 - 4:00pmUFC Highlands Ranch 7824 Park Meadows Dr., Lone Tree
Tuesdays • 4:00 - 5:00pmGrinders Fitness455 W. 115th Ave., Unit 4, Northglenn
Tuesdays • 4:30 - 5:45pmOld School Boxing2112 E. Platte Ave., Colorado Springs
Wednesdays • 10:00 - 11:00amDenver Red Shield2915 High St., Denver
Wednesdays • 10:30 - 11:30amHybrid Nation Martial Arts150 Beaver Creek Blvd., Avon
Wednesdays • 10:45am - NoonTITLE Boxing Club 4360 S. College Ave., Fort Collins
Thursdays • 4:30 - 5:45pmOld School Boxing 2112 E. Platte Ave., Colorado Springs
Fridays • 10:30 - 11:30amHybrid Nation Martial Arts150 Beaver Creek Blvd., Avon
Fridays • 10:45am - NoonTITLE Boxing Club 4360 S. College Ave., Fort Collins
Saturdays • 9:00 - 10:15amOld School Boxing 2112 E. Platte Ave., Colorado Springs
Saturdays • 9:00 - 10:30amDenver Red Shield2915 High St., Denver
Saturdays • 11:30am - 12:30pmOld Town Hot Springs136 S. Lincoln Ave., Steamboat Springs
YOGA FOR PARKINSON’STuesdays • 9:30 - 10:30amHealthSouth RehabilitationHospital of Littleton 1001 W. Mineral Ave., Littleton
Wednesdays 11:00am - Noon1:30 - 2:30pmScheitler Recreation Center5031 W. 46th Ave., Denver
Thursdays • 8:00 - 9:00amHigher Intensity YogaVernon PT & Wellness7373 S. Alton Way, Ste. 120, Centennial
Thursdays • 11:15am - 12:15pmUnited Methodist Church736 Yampa Ave., Steamboat Springs
Thursdays • 11:30am - 12:30pmThe Center for Integrative Medicine University of Colorado Hospital 3055 Roslyn St., Ste. 250, Denver
Thursdays • 1:00 - 2:00pmChair Yoga ClassLife Care Center of Stonegate15720 Garden Plaza Dr., Parker
CIRCUIT TRAINING FOR PARKINSON’SMondays • 10:00 - 11:00amTriple Threat Gym5739 Observation Ct., #120,Colorado Springs
Tuesdays • 11:15am - 12:15pmKelly Performance and Wellness10835 Dover St., Ste. 1300, Westminster
PAFIT HIIT CLASSThursdays • 10:45 - 11:45amFit36 Studios 9370 S. Colorado Blvd., Ste. A-2, Highlands Ranch
AQUATIC AEROBICSSundays • 10:00 - 11:00amOld Town Hot Springs Pool136 Lincoln Ave., Steamboat Springs
EXERCISE CLASSMondays • 10:30 - 11:30amThe Haven Assisted Living Center 300 S. Shelton St., Hayden
Wednesdays • 11:00am - 12:15pmUnited Methodist Church736 Oak St., Steamboat Springs
PWR! CLASSWednesdays • 11:00am - NoonRoberts Empowered Movement2222 S. Fraser St. Unit 2, Aurora
Thursdays • 1:30 - 2:30pm Therapies of the Rockies300 E. Hampden Ave., Ste. 100, Englewood
Fridays • 11:00am - Noon Durango Rec. Center, Twilight Room2700 Main Ave., Durango
PAR FOR THE COURSEEXERCISEMondays • 11:00am - NoonHighlands United Methodist Church 3131 Osceola St., Fellowship Hall, Denver
Tuesdays11:30am - 12:30pm, High12:45 - 1:45pm, LowSchlessman YMCA3901 E. Yale Ave., Denver
Wednesdays • 1:45 - 2:45pm, LowSouthwest YMCA5181 W. Kenyon Ave., Denver
Thursdays • Noon - 1:00pm, LowSchlessman YMCA3901 E. Yale Ave., Denver
Fridays • Noon - 1:00pm, HighSchlessman YMCA3901 E. Yale Ave., Denver
High Intensity: for individuals early in the diagnosis of Parkinson’s disease Low Intensity: for individuals who need assistance with mobility
ESSENTRICS CLASSMondays • 8:30 - 9:30amUnited Methodist Church736 Oak St., Steamboat Springs
Fridays • 9:00 - 10:15amUnited Methodist Church736 Oak St., Steamboat Springs
TREMBLE CLEFSWednesdays • 11:00am - NoonFrasier Meadows 350 Ponca Pl., Assembly Room, Boulder
RHYTHM AND GRACE:DANCE FOR PD®
Mondays • Noon - 1:15pmColorado Ballet1075 Santa Fe Dr., Denver
TANGO DANCE Tuesdays • 2:30 - 3:30pmSt. Barnabas Episcopal Church1280 Vine St., Denver
GOOD VIBRATIONSThursdays • 1:00 - 2:00pmRehabilitative Rhythms 2222 S. Fraser St., #2, Aurora
LOUD FOR LIFEMondays • 2:00 - 3:00pmOur Father Lutheran Church6335 S. Holly St., Rm. 300-301, Denver
Wednesdays • 1:00 - 2:00pmGardens on Quail6447 Quail St., Arvada
WALKING GROUPThursdays • 8:00 - 9:00am Paintbrush Park4901 Valleybrook Dr., Highlands Ranch
Fridays • 10:00 - 11:00am Monument Valley Park, 170 .W Cache La Poudre St., North Parking Lot, Colorado Springs
DONATIONS | MEMORIALS
Adnan Alshaikhli Halal Alshailkhli
Lance L. Blair Janet SpomerRoland Borgmann
Bernice & Dan BondePatricia BorgmannShirley & Howard FankhauserNancy J. HandLucia & Robert MorganStarr & Stephen ScheidelerLarry & Donna StittsworthMary Lou & Kenneth TallmanMargaret & Julius VanthuyneJeannette S. Womack
Kenneth Edwin Bruse John & Nancy PolakTown of Mountain View
Betsy Casillas Janet C. Loughry
John Cross Carl & Doris Frick
C. Davis Cooney Foundation
Eugene J. DePinto Harold A. Haapoja
Burton “Burt” Dunevitz Donna & Kenneth EcklesDenise L. LazarusHannah Texler
Wayne Elliott M. Sharon Morneau
Chris Ewing Maurice Deines
Sue Feingold Allan Kantrowitz
Gordon Friednash Zelda Friednash
Clyde Garrison Ken BaileyCaleen GarrisonMarla Ann Vanderwalker
Leif O. Hoel Karen & James HansenMary HoelMagdalene I. Schmoker
Jerry Isbell Advantage Invest LLCRonnie J. AsmusJerry & Dorothy Benner
Bernhardt Farms, LLCKarolyn & Robert BruceCanfield Drilling CompanyJanice & Christen DepetroVictor & Linda FiscusDavid & Glenda GoegleinDennis & Marcy HoshikoMike & Joy HungenbergAugust & Diane JohnsonMurray & Christy JohnsonLeading Edge Financial GroupLila R. Bond Revocable TrustMyron MartinsonDoug McEntireDallas & Brenda PowellRob & Anita ReeveJulie RiviereLeland SegerLynn SegerDavid & Jo Ann SwansonBarbara & Gary WernsmanRonald J. WernsmanTony & Carol WernsmanStephen Widhalm
Karin Jackson Dorothy & George AllenHelen BrowneGary & Jeri JosephNancy & Mike MadayMargery A. MannAlbert Nett & Hope Steffens- NettAnne NossNancy & Stanley NoyesCentes Papes
Richard Jones Dale & Sandy Bowlin
Wesley Keith Lockheed Martin
Horace E. Kiel Marlene Anderson
Dr. Alex Kotch Anne Kotch
Stanley Kuchel The Bill/Donna Dehn Charitable FundVicki CarpenterMike ClineDiane E. DefeoInge Fehlberg
Marcia HocevarJoanne HornDr. Edward & Sharon KarnesJay L. KuchelKarla KuchelStephen & Myra KuchelKristin & Scott SheltonPatricia D. StevensonPete & Cheryl StickneyRobert Tuttle
Dr. Duane R. Lemburg Jon & Sally BairdBetty BloomGary & Joann BrownMichael & Debra ColemanSusan H. DaviesVirginia DeeganBill & Connie DotsonFamily Practice of Grand Island, P.C.Larry HadenfeldtEric K. Hammerberg, MDCharles & Barbara HansenBill & Joyce HegerElaine HermannMichael & Carole HotzPhilip & Gale IngleeRichard & Sharon KieferBeverly & Dale KunzeLisa LewisGary MadsenMarcia & William McDonaldDale & Karen O’ConnellPA Enterprises, LLCCindy ParsonsSuzanne PaulsonStephen & Zelda ShoemakerRene SimdornLeland Steffen
Dr. Stanley “Jack” Locke Janis & James AndersonDonald & Kristina BergalOscar K. BurosWilliam C. ChapmanDouglass & Frances ConvingtonWalter & Helene GustafsonDave & Jo HensonHoward & Nancy Hofferman
Wayne O. JacksonCraig KennedyTom & Marilyn LockeSue & David MillwardWayne L. Peters MDMary PrattKyle SchultzLinda & John Walker
Ramiel “Ray” Lorenz MB ThomasNadine Wanucha
Janice L. Magee Pamela Magee
Andra Mangulis Anda & Peter ArnoldBerit BendicksonKathy & Ron DingerDixon Bros., Inc.Pamela & John GalloChester & Ieva HartRaita & Richard JergensenLarry & Judith JonesMarta JuchnaAusma KaganKarina & Ryan KampValda LevensteinsMara & Joseph LuckeyAstra I. MangulisAnita Mangulis-Rubenis & Martin RubenisBarbara MangulisValdis MoritisMarvin & Eliner SchroderDon & Linda StrauchDiane Sudmalis
Michael McGill Molly McGill
Nancy Miceli Mark & Glenda GastSandra S. GladbachSteve & Juliann Lemon
Donald Mikesell All-Out Multicourse Productions, LLC
Cecilia Teresa Mills Randolph Mills
Colleen R. Nies Cherry Point Garden Club
Hank Noyes Donald & Dolores Thorpe
Ron Pearce Julie A. Simpson
Gary Powell Susan J. BlaserCaplan & Earnest Attorneys at LawBeth & Bob GregoryConstance & William KennedyRalph & Corrine Stewart
Helen Reierson Robert Reierson
Don Rohr Darlene Wynne
Ervin Schaffert Christine Moss
Ruth Schorsch Judy Arsht
Barbara Ann Shott Karen BrownMary SchwarzMilly J. WestphalenCaroline A. Wilkinson
John Shotton Spotswood M. Shotton
Bud Straffon Patricia Gunckel
Philomena Videtto Nancy BunyanAubrey & Camille ChungChristina RolingMichele Scully
Terry Weverstad Robert AntleConstance Russell
Les Wickham Jean Gerdes
J. Robert “Bob” Wilson Jerri CookJoe F. Jenkins IIJanet C. LoughryKathe LundhagenDonna J. Ryba
Richard Yokale Meredith Griffin
Your thoughtfulness helps the Parkinson Association continue to provide services & support. The following gifts were received between March 1, 2018 – July 1, 2018 (Contributions listed do not include those made through donations and/or registrations to the 2018 Vitality Walk - recognition of these gifts are promoted on the event website)
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DONATIONS | HONORSSharad Atre
The Phyllis M. Coors Foundation
Jeanne & Ralph Bacheldor Marjorie & John BacheldorRand & Sue Ann BaxterMargaret A. Blakeslee Lucille CookShirley L. FulcherSkip & Carol HerbertCarolee E. LoweBetty MorrisonDonna Roeckel
Sheri Biskup Nancy GleasonDonald Bonenberger
Carolyn Bonenberger Jerry Lagerquist
Craig Braun Jennifer Braun
Bob Brown Linda Littrell
Donna Cruz Fred Cruz
Christen Epstein Zetta Ward
Paul French Steve Savig
Donald Gruidel Linda Gruidel
Kirk Hall Linda HallMalenna Sumrall
John Hanak Linda Hanak
Nancy Ivankoe Dorothy Ivankoe
Robert Jones Sandra Wilson
Anita Kathka BrightStar Care of Denver
Lee Mendel Fuller Family Fund
Elmer Miller Kaye Walter
Kirsti Peterson Carol Fields
Charles Schumacher Glen Schumacher
Cheryl Siefert Ann KusicChristine Miskie
Billie Pawlikowski Lynn & Lisa TaussigWilliam H. Weiskopf
Cheryl Trimble Skip Kaiser
Joe Tripp Connie Tripp
For more information on Support Groups and contact information for support group leaders, please contact the Parkinson Association of the Rockies at (303) 830-1839 or [email protected].
CARE PARTNER SUPPORT GROUPS
ARVADA2nd Friday • 1:30pmCommunity Recreation Center of Apex6842 Wadsworth Blvd.
BOULDER3rd Monday • 10:30amNo Meeting in AugustFrasier Meadows Retirement Community, North Community Room350 Ponca Pl.
BROOMFIELDFriday after 1st Tuesday • 10:30amBroomfield Community Center280 Spader Way
COLORADO SPRINGS3rd Friday • 1:30pmCare & Share Building2605 Preamble Pt.Provided by Colorado Springs Parkinson’s Support Group - www.co-parkinson.org
DENVERParkinson’s & Lewy Body Dementia 3rd Thursday • 6:00pmBethany Lutheran Church Room 3154500 E. Hampden Ave.
4th Wednesday • 6:30pmScheitler Recreation Center5031 W. 46th Ave.
ENGLEWOODMSA/PSP/CBD4th Friday • 10:00amJohnson Adult Day Center3444 S. Emerson St.
EVERGREENThursday before 1st Friday • 3:00pmLariat Lodge Brewery27618 Fireweed Dr.
LONGMONT1st Tuesday • 11:30amPerkins Restaurant2051 Main St.
STEAMBOAT SPRINGSContact Parkinson Association
For the 6th year, John Jacquinot will be hosting his annual Redneck Ride for Parkinson's on Sunday, August 26th. The Redneck Ride is a 24-mile bike ride through the foothills of Larimer County which will raise awareness of Parkinson’s disease and raise critical funds for individuals in our community. There will be several stops along the way, including lunch and a gathering to celebrate the end of the ride. All are welcome to join us for the celebration at 4:00pm at the Big Beaver Brewery, 2707 W. Eisenhower Blvd., #9, Loveland.
John Jacquinot has a passion for those battling Parkinson’s and for those challenged with a fixed income. All funds raised from this campaign will be designated to help the Association’s Pay It Forward fund, which provides exercise classes to the Colorado Parkinson’s community at no cost.
There is no entry fee, but a $30 suggested donation. Registration is required and limited to the first 100 participants. Register by August 15th. For more information, to donate or to register, visit www.ParkinsonRockies.org/RedneckRide.
LET’S GEAR UP FOR PARKINSON’S!
We care about Care Partners!For tips for the care partner and respite care resources, contact Cari Friedman, LCSW, at (303) 861-1810 or [email protected]
Dan Starishevsky Dan Starishevsky
We are still in awe of the turnout for our Sweet 16 Vitality Walk! This event is always an unforgettable experience and we are over the moon with the outpouring of support from our community. On Sunday, June 3rd, over 1,100 registered individiuals on 69 teams came together with one mission in mind - to enhance lives with every step! This year we added Colorado Springs to our locations and in total our Sweet 16th Annual Vitality Walk had 758 walkers in Wash Park, 227 in Sandstone Ranch, Longmont; 67 in Colorado Springs and 54 registered for Choose to Snooze! Out of our 1,100 participants, over 60 individuals joined the 20% club, by raising over $200! We also had 50 day-of volunteers, over 20 vendors, plus a number of furry four-legged friends, all taking the steps necessary to connect communities and enhance lives. We are proud to announce that your support helped us raise over $155,000 and create awareness for the Parkinson Association and our programs.
Top 3 Fundraising Teams:Dan’s Stars (Team Captain – Dan Starishevsky) $26,325 Walking Winners (Team Captain – William Weiskopf) $6,070Peak PWR! (Team Captain – Emily Moncheski) $4,034
Top Three Fundraising Individuals:Dan Starishevsky (Team Dan’s Stars) $18,405William Weiskopf (Team Walking Winners) $2,900Jeff Young (Team Young) $2,530
As always, the Vitality Walk is a supportive and inspiring environment for those living with Parkinson’s, their friends, families and care partners. The sense of community that the Vitality Walk creates is one of a kind! Thanks to all of our fundraisers, participants, committee and volunteers. You helped make this event a huge success!
So far this year, we have had volunteers help with tasks such as preparing educational mailings, representing the Parkinson Association at local health fairs, and even advanced data segmentation to better communicate with our community. Currently there are over 40 monthly support groups led by caring volunteers all over Colorado. Our large conferences and fundraising events would not run without the dozens of volunteers willing to pitch in throughout the day, doing everything from putting up tents and checking-in participants, to microphone moderation and event clean up. The selfless help from our volunteers enables our staff to have more time for creating innovative programs and services for the Parkinson’s community.
The dedication of our volunteers is astounding! Did you know that at this years Vitality Walk, we had several volunteers in attendance that have dedicated their time at each and every single one of the 16 previous walks in the Parkinson Association’s history? We’re grateful for volunteers like Sheila O’Connor, who we can always count on to show up with a smile year after year.
We truly thank each of our volunteers for giving us their time, energy and enthusiasm. The growth and successes of the Parkinson Association of the Rockies would not be possible if not for the generous time given to us by our volunteers each year. Your passion and effort is so appreciated.
If you are interested in learning more about volunteer opportunities with the Parkinson Association, please contact Leesah Barbieri at (303) 830-1839 or [email protected].
VOLUNTEER CORNER
Exhibitor Level Sponsors: Abbott • Acadia • AwardX • Alexander Technique Denver • Blue Sky Neurology •
Impax • LSVT Global • Oogie’s • PASCO • Pedaling 4 Parkinson’s • PeopleCare • Rare Patient Voice
SPECIAL THANKS TO OUR SPONSORSPresenting Sponsor:
Silver Level Sponsors:Gold Level Sponsors:
Bronze Level Sponsors:
SWEET 16 VITALITY WALK
“I started volunteering in 2002 and was enthusiastically a key part of the very first walk! I have been apart of every walk since, as well as many other PAR functions. The indomitable spirit of
those touched by Parkinson’s crossing the finish line no matter what is very poignant, and the entire experience
for me is very gratifying. I am proud to be a part of it.” - Sheila O’Connor
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CARBONDALE SHOWS PARKINSON’S THAT THE FIGHT IS ON
THANK YOU FOR YOUR SUPPORTSupport for our Parkinson’s community can manifest in countless ways. Many members in our community are using their strengths to get involved. Efforts include: creating exercise classes or support groups, volunteering, advocating, educating others on Parkinson’s, fundraising or a combination of the above.
Already, 2018 has proven to be a huge year for us with 3rd party fundraisers. So far this year, we’ve had several individuals host a multitude of fundraisers for us and to date these fundraisers have raised a total of $24,364!
Spring Fever 5K Organized by: All-Out Multicourse Productions
Punch-a-thonOrganized by: TITLE Boxing Club Fort Collins
Parkinson’s Music, Arts and Dance Showcase Organized by: Beth Ann Krug and the Colorado Ballet
Ride to Defeat PDOrganized by: Angela Pierce
Every dollar makes a difference in providing the care that counts on the way to a cure. When it comes to generating awareness, your efforts go beyond just the dollars raised. Join us in raising that bar!
DON’T FORGET TO CONTACT USRemember to let us know what you are planning. We want to share these stories and events with others and celebrate your success with you. We can help provide you with materials about Parkinson’s and resources in Colorado.
If there is something specific you’re looking for just let us know, we are happy to support you in your efforts.
WANT TO HOST YOUR OWN EVENT?Contact Erica Wright at (303) 830-1839 or at [email protected] to see how the Parkinson Association of the Rockies can help you develop your event!
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As the Parkinson Association raises the bar on the quality of life for those battling Parkinson’s, they aim to focus more efforts in underserved rural Colorado communities.
One partnership in a rural community got the ripple effect going in Carbondale, Colorado. Karen Bradshaw, owner of Rising Crane Training Center, opened her gym doors this June to offer Carbondale its first Parkinson’s boxing class, Power Punch Parkinson’s.
With a background in Exercise Physiology, an open facility, boxing gear and the right credentials, Bradshaw felt she just had to offer the class: “A friend of mine sent me an article about how boxing was making an impact on Parkinson’s symptoms across the country, and with that I realized our facility was perfect to offer such a program, so we made it happen!”
During initial participant interviews, Bradshaw quickly learned her new gym attendees did not want to be coddled or distracted by too much conversation; they were there to exercise and to show Parkinson’s that the fight was now on in Carbondale leaving Bradshaw and her team inspired to do even more.
“I took that as they just wanted to be treated the same as everyone else and wanted a place to exercise and fight off the symptoms.”
This new Power Punch Parkinson’s program already has people hooked, and besides the added benefit of a good workout, participants know that they are connecting with a community that offers support and uplifting energy.
The fight doesn’t end in the ring, Bradshaw is gaining such momentum with the boxing class that she has already set a goal of creating a support group for Carbondale.
“We want to have a support group set up in town as soon as possible. Something for boxers and their support team,” said Bradshaw. “I’d like to see us have happy hour socials as well!”
The Parkinson Association is eager to see how engaged the Carbondale community will become and looks forward to using this partnership as an outreach model, to continue creating groups around the key component of exercise. The Association aims to replicate the growth seen in the Denver Metro area and continue it in Colorado’s rural communities.
If you know of anyone who is interested in partnering with the Parkinson Association of the Rockies to start a Parkinson’s exercise class in Colorado, please contact Elena Cussler at (303) 830-1839 or [email protected].
Exhibitor Level Sponsors: Abbott • Acadia • AwardX • Alexander Technique Denver • Blue Sky Neurology •
Impax • LSVT Global • Oogie’s • PASCO • Pedaling 4 Parkinson’s • PeopleCare • Rare Patient Voice
By Catherine Hammond, Attorney and Counselor, Law Hammond Law Group, LLC
When you’re diagnosed with Parkinson’s, the one thing that’s certain is the uncertainty ahead. There will be challenges, but you don’t know when they’ll come or what they’ll look like. The key is knowing the types of issues that might arise and preparing for what’s reasonably foreseeable.
From a legal perspective, there are several key concerns. Estate planning is vital for everyone, but even more important if you become disabled before you die. You’ll need a plan that empowers someone to take care of financial affairs and medical decisions if you’re incapacitated, allows your loved ones to talk to doctors if necessary, and transfers your assets when you pass away through either a Will or Living Trust. Medicaid planning may allow your family to keep more of your hard-earned assets if you end up needing professional care.
Medically, the road ahead is uncertain, but understanding the most common issues and possible progression of the disease will help you make plans for worst case scenarios.
Depending on how the disease evolves, you may eventually need help with daily activities such as cooking, driving, bathing and even eating. If you need assistance, do you have a family member who might be able to help with basic needs? There are in-home caregivers who can help on a part-time or full-time basis. And, if you need professional care, you’ll want to understand the difference between assisted living and skilled nursing care.
If you’re currently working, your future career may be impacted. This could come from the physical effects of Parkinson’s or from possible cognitive decline. If there’s an accommodation that could enable you to work even if your body no longer functions perfectly, your employer may be required to make the accommodation.
If you need to stop working because of the Parkinson’s, there are government benefits that may be available, such as SSI, SSDI and Medicaid. If you served in the military, VA benefits may also apply. You’ll want to be familiar with the benefits under any short or long-term disability insurance you have.
If you have long-term care insurance, does it cover in-home care? What’s the elimination period? The daily benefit? What’s the lifetime total benefit?
The emotional journey through Parkinson’s is just as difficult as the physical one. If you’re no longer able to live life the same way, you may need to grieve the loss of the things you used to do, as well as the dreams you had for the future. You may feel alone, as others don’t understand what you’re going through. It may be difficult to receive help from others when you’ve always been the strong one. Support groups and counselors/therapists can be incredibly helpful for dealing with the emotions that come up.
The key is to have a plan that’s flexible enough to bend as the Parkinson’s disease evolves in your life. And having a plan, even the basics, will be a huge gift to you and your family no matter how the disease progresses.
AFTER THE DIAGNOSIS: PUTTING THE PIECES TOGETHER
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Although Parkinson’s disease is classified as a “movement disorder,” increasing attention has been paid to the wide array of non-motor features. While non-motor symptoms remain frequently overlooked in clinic visits there are a variety of additional topics and symptoms that patients and care partners are reluctant to ask about – several of which will be covered here. Although the review below is far from comprehensive, hopefully it will inspire you to bring up such concerns/questions with your healthcare team.
CAN SMOKING TOBACCO CIGARETTES HELP MY PARKINSON’S?No. Population-based studies have suggested a relationship between tobacco cigarette smoking and a low risk of developing Parkinson’s. Unfortunately, previous clinical trials have shown controversial results regarding nicotine treatment and more studies are needed to make sense of a possible beneficial role of nicotine. There has been no definitive evidence that smoking cigarettes can help symptoms of Parkinson’s disease.
WHAT EFFECT DOES DRINKING ALCOHOL HAVE ON MY PARKINSON’S?Some studies have shown an inverse relationship between alcohol consumption and risk of developing Parkinson’s, but this is not consistent. Drinking alcohol may offer some health benefits, especially for your heart, but too much alcohol may increase your risk of health problems or worsen Parkinson’s symptoms. When it comes to alcohol, the key is moderation, but patients with Parkinson’s may be more prone to lower mood, imbalance, slowed thinking, confusion and sleep disturbance. It’s always a good idea to discuss questions about alcohol use with your healthcare team.
WILL MARIJUANA HELP MY PARKINSON’S?This remains unclear and more research is needed. Marijuana is the crude product derived from the cannabis sativa plant, and consists of >100 neuroactive compounds, of which THC and CBD are the major ingredients.
While CBD is a nonpsychoactive compound and may have some clinical benefits (to anxiety, tremor, nerve pain or insomnia), THC can contribute to confusion, hallucinations, impaired memory, difficulty thinking, dizziness, etc. While some results have been positive, the effects of medical marijuana in Parkinson’s are not completely understood.
MY NOSE IS ALWAYS RUNNING AND THERE’S TOO MUCH SALIVA IN MY MOUTH – IS THIS RELATED TO PARKINSON’S?Probably, yes. Up to half of all people with Parkinson’s have a frequently runny nose, and often this is more noticeable around meal times. Some patients have noted a benefit with the use of anticholinergic nasal spray (such as Atrovent/ipratropium intranasal).
Up to 80% of people with Parkinson’s disease may develop drooling. Medications to lessen saliva production include mouth drops (such as atropine), tablets (such as glycopyrrolate), or botulinum toxin injection (“Botox”) into the salivary glands.
WE ARE LESS INTIMATE THAN BEFORE, WHAT’S GOING ON?Some studies suggest as many as 70 - 80% of those with Parkinson’s experience sexual dysfunction. In men with Parkinson’s, common sexual problems are erectile dysfunction, decreased sex drive, premature or delayed ejaculation and inability to orgasm. Women with Parkinson’s may experience decreased libido, lack of sexual arousal, inability to orgasm and decreased lubrication and/or pain with intercourse. The disease itself, medication side effects and psychological issues (such as depression) may all contribute to sexual dysfunction in Parkinson’s. Counseling, medication adjustments, or a trial of a medication such as Viagra or Cialis may help.
TOPICS NOT REGULARLY DISCUSSED
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By Christina Vaughan, MD, MHS, University of Colorado Hospital
Parkinson’s is a disease that affects the brain or super computer that tells our bodies how to move, talk, think and feel. A good rule of thumb is that everything slows down in Parkinson’s. Talking, understanding what others say, even buttoning a shirt can slow down. It can be challenging as the caregiver or loved one to know what to do or how to help.
The first tip for families and loved ones is to slow down too. Pause between asking a question and asking a second time, be patient. Parkinson’s oftentimes will affect the way words are processed in the brain, so allow your loved one a little longer to create a response. Sometimes it can be helpful to simplify your questions and reduce distractions.
The second piece of advice is to be understanding. People with Parkinson’s cannot sense internally how they look or sound to the world. This means that they must rely on us as their mirror to give them kind feedback on how they are performing. Such as, ‘Please speak up I cannot hear you over the TV.’ The person with Parkinson’s often feels as if they are shouting when in reality they are speaking in a normal volume.
The third suggestion we offer is to be their advocate for normalcy in your shared life. Stick with those fun things you like to do together. Just because Parkinson’s has entered your lives, does not mean that life stops altogether. Don’t focus on Parkinson’s all the time, schedule that date night, invite that friend over for dinner, create fun times that allow you to simply be a family, a couple, a friend, a daughter, a son…. allow them to interact with you and others in their relationship role, instead of as the patient or person needing care.
I encourage you, as a loved one, to join a care partner support group with other family members. I encourage you both to: Be YOU, not Parkinson’s.
TOP 3 TIPS WHEN SOMEONE YOU LOVE HAS PARKINSON’S DISEASEBy Meredith Roberts, DPT, Roberts Empowered Movement Center
FRI
Mission...
CONNECT WITH US...
The Parkinson Association of the Rockies connects and empowers people with Parkinson’s to thrive.
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instagram.com/PARockies
twitter.com/PARockies
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Non-ProfitOrganizationU.S. Postage
PAIDDenver, CO
Permit No. 286
1325 S. Colorado Blvd., Suite 204BDenver, CO 80222(303) 830-1839
We invite you to join us in helping raise the bar! This party will be an evening of festive drinks and delicious food, with entertainment, games, plus a silent and live auction that will feature art work created by individuals living with Parkinson’s.
General Admission $150/person | Table Sponsorship $2,500/table for 10 guestsFor more information & reservations: www.ParkinsonRockies.org/DinnerParty
PARTY FOR PARKINSON’S - PARTY IN THE CITY
Mile High Station | 2027 Lower W. Colfax Ave., Denver
CELEBRATE WITH US!
PARTY FOR PARKINSON’S - PARTY WITH A HOUSEWHAT HOUSE? A GINGERBREAD HOUSE!
Interested in Sponsoring? Contact Karen Crumback at (303) 830-1839 or [email protected]
NEIGHBORHOOD FUN DIVISION | Welcome the holiday season and spread some cheer by joining us for a competition for the best decorated gingerbread house. Event participants will be provided with a pre-built gingerbread house, frosting and candy decorations.
For more information & reservations: www.ParkinsonRockies.org/HouseParty
Thursday, October 25, 2018 | 5:30pm Cocktails & Silent Auction | 7:00pm Dinner & Live Auction
Friday, November 30, 2018 | 6:00 VIP Reception - $75/Per PersonThe Studios at Overland Crossing | 2205 S. Delaware St., Denver
THUR
Saturday, December 1, 2018 | 9:00am & 11:00am Gingerbread Decorating - $25/HouseThe Studios at Overland Crossing | 2205 S. Delaware St., Denver
VIP RECEPTION | We’re inviting local chefs, hospitality professionals and home bakers to showcase their talents in baking and decorating gingerbread houses! Be the first to view our Talent Division and cast your vote for the “People’s Choice Award” house!
SAT
Presenting Sponsor
Presenting Sponsor
Celebrating Sponsors
Celebrating Sponsors