newsletter may 2009 - sandta · [email protected] treasurer: sonja berry ... south...

SOUTH AFRICAN NEURODEVELOPMENTAL THERAPY ASSOCIATION NEWSLETTER

THE NEC Chairperson: Faatima Ebrahim-Abbas 082 3626045 [email protected] Vice Chairperson & Adult Liaison: Nina Strydom 084 5661281 [email protected] Treasurer: Sonja Berry 082 297 1519 [email protected] Secretary: Elmien van den Heever 082 3369643 [email protected] Professional & Public Relations: VACANT AT PRESENT Website: Shelley Broughton 031 7081785 824123310 [email protected] Newsletter: Eunice König O21 7946903 082 927 7776 [email protected] Education: Corneli Strydom 082 950 4289 [email protected] Branch Liaison Jenny Bradshaw 083 7751995 [email protected]

Newsletter May 2009

CONTENTS

The Functional Outcomes Approach to Therapy in a Community Setting Faith Bischof................................................................2 Abstract: Promotion of Physical Fitness and Prevention of Secondary Conditions for Children With Cerebral Palsy Eileen G Fowler,et al ..................................................6 Caregivers’ expectations and perception of change following an intensive block of therapy – the Dilokong experience Estelle Brown……………………………………………...7 Mamamulele Outreach Dates.....................................11 Malamulele Onward Brings Miracles to Madwaleni Jean Elphick……………………………………………..12 SANDTA COURSES……………................................14 Feedback on Courses................................................16 Information on other courses/activities.......................18 Branch News...............................................................21 Branch & General Info................................................24

SANDTA CONTACT DETAILS Address:

P.O. Box 39976

Queensburgh

4070

Cell: 076 374 6739

email: [email protected]

website: http://www.sandta.org.za

SOUTH AFRICAN NEURODEVELOPMENTAL THERAPY ASSOCIATION NEWSLETTER 2

TThhee FFuunnccttiioonnaall OOuuttccoommeess AApppprrooaacchh ttoo TThheerraappyy iinn aa CCoommmmuunniittyy SSeettttiinngg

BBaasseedd oonn aann IInnssttrruuccttiioonnaall CCoouurrssee bbyy DDrr AA MMoorrggaann (The instructional course was attended at the 2006 meeting of the AACPDM in Boston)

FFaaiitthh BBiisscchhooff

HHoonnoorraarryy AAddjjuunncctt PPrrooffeessssoorr SScchhooooll ooff TThheerraappeeuuttiicc SScciieenncceess UUnniivveerrssiittyy ooff tthhee WWiittwwaatteerrssrraanndd

CCAASSEE SSTTUUDDYY -- TTHHAABBOO

•• 99 mmoonntthh oolldd wwiitthh ddeellaayyeedd mmoottoorr sskkiillllss

•• 22 mmoonntthhss pprreemmaattuurree,, qquuaaddrriipplleeggiiaa

•• NNoott ssiittttiinngg iinnddeeppeennddeennttllyy oorr ccrraawwlliinngg

•• TTrryyiinngg ttoo rreeaacchh wwiitthh rriigghhtt aarrmm

•• RReeffeerrrreedd ffoorr PPTT aanndd OOTT aatt PPrriimmaarryy HHeeaalltthh CCaarree CClliinniicc TThhee WWaayy WWee WWeerree -- TThhee ““MMeeddiiccaall // RReehhaabb”” AApppprrooaacchh

SStteepp 11 PPTT EEvvaalluuaattiioonn // AAsssseessssmmeenntt

•• IInnccrreeaasseedd mmuussccllee ttoonnee,, LL >> RR

•• OOnn aarrmmss iinn pprroonnee ––aarrmmss bbeenntt

•• NNoo bbaallaannccee iinn ssiittttiinngg

•• LLeeggss sscciissssoorreedd;; oonn ttooeess iinn ssuuppppoorrtteedd ssttaannddiinngg

•• GGrroossss mmoottoorr sskkiillllss aatt 44mmoonntthhss

OOTT EEvvaalluuaattiioonn // AAsssseessssmmeenntt

•• IInnccrreeaasseedd mmuussccllee ttoonnee LL >> RR

•• OOnn aarrmmss iinn pprroonnee ––aarrmmss bbeenntt

•• PPoooorr rreeaacchh aanndd ggrraasspp oonn rriigghhtt wwiitthh lleefftt hhaanndd ffiisstteedd

•• TThhuummbb iinn ppaallmm bbiillaatteerraallllyy

•• FFiinnee mmoottoorr sskkiillllss –– 44mmoonntthhss SStteepp 22 PPTT IIddeennttiiffiiccaattiioonn ooff DDeeffiicciittss

•• GGrroossss MMoottoorr sskkiillllss 5500%% ddeellaayyeedd

•• AAbbnnoorrmmaall mmuussccllee ttoonnee

•• MMoottoorr aassyymmmmeettrryy –– lleefftt ssiiddee mmoorree aaffffeecctteedd

•• EExxaamm ssuuggggeessttiivvee ooff CCPP ((qquuaaddrriipplleeggiiaa))

OOTT IIddeennttiiffiiccaattiioonn ooff DDeeffiicciittss

•• FFiinnee mmoottoorr sskkiillllss 6600%% ddeellaayyeedd

•• AAbbnnoorrmmaall mmuussccllee ttoonnee

•• MMoottoorr aassyymmmmeettrryy –– lleefftt ssiiddee mmoorree aaffffeecctteedd

•• EExxaamm ssuuggggeessttiivvee ooff CCPP ((qquuaaddrriipplleeggiiaa))

SStteepp 33 PPTT DDeetteerrmmiinnaattiioonn ooff SSeerrvviicceess

•• PPhhyyssiiootthheerraappyy ttwwiiccee aa wweeeekk

OOTT DDeetteerrmmiinnaattiioonn ooff SSeerrvviicceess

•• OOccccuuppaattiioonnaall TThheerraappyy ttwwiiccee aa wweeeekk


SStteepp 44 PPTT TTrreeaattmmeenntt GGooaallss

•• RReedduuccee SSppaassttiicciittyy

•• IInnhhiibbiitt aabbnnoorrmmaall ppaatttteerrnnss

•• IImmpprroovvee ggrroossss mmoottoorr sskkiillllss

•• SSiitt iinnddeeppeennddeennttllyy

•• AAFFOO’’ss

OOTT TTrreeaattmmeenntt GGooaallss

•• RReedduuccee ssppaassttiicciittyy

•• IInnhhiibbiitt aabbnnoorrmmaall ppaatttteerrnnss

•• IImmpprroovvee rreeaacchh oonn rriigghhtt

•• GGrraasspp rraattttllee wwiitthh rriigghhtt hhaanndd

•• TThhuummbb sspplliinnttss

WWhhaatt’’ss WWrroonngg WWiitthh tthhiiss PPiiccttuurree?? TThhee WWaayy WWee WWeerree -- TThhee ““MMeeddiiccaall // RReehhaabb”” AApppprrooaacchh

•• FFaammiilliieess tteenndd ttoo ffooccuuss oonn ddiiaaggnnoossiiss aanndd//oorr ddeeffiicciittss aanndd oonn ””ffiixxiinngg tthhee pprroobblleemm””..

•• FFaammiillyy iinnppuutt // iinnvvoollvveemmeenntt iiss iinnccoonnssiisstteenntt..

•• FFaammiilliieess tteenndd ttoo ffooccuuss oonn tthhee tthheerraappiisstt aanndd tthhee ffrreeqquueennccyy ooff sseerrvviicceess..

TThhee PPaarraaddiiggmm SShhiifftt iinn PPrroovviiddiinngg TThheerraappyy SSeerrvviicceess::

UUssiinngg FFuunnccttiioonnaall OOuuttccoommeess

WWhhaatt iiss AA FFaammiillyy--CCeennttrreedd FFuunnccttiioonnaall OOuuttccoommee????

•• AA ffuunnccttiioonnaall oouuttccoommee sshhoouulldd bbeeggiinn wwiitthh aa ssttaatteemmeenntt ooff wwhhaatt iiss ttoo bbee aaccccoommpplliisshheedd,, wwrriitttteenn iinn ffuunnccttiioonnaall tteerrmmss ((wwhhaatt??)),, ffoolllloowweedd bbyy aann eexxppllaannaattiioonn ooff wwhhyy tthhee oouuttccoommee iiss iimmppoorrttaanntt ((wwhhyy??)).. SSoommeetthhiinngg iiss ddoonnee iinn oorrddeerr ffoorr ssoommeetthhiinngg eellssee ttoo ooccccuurr oorr bbee aattttaaiinneedd..

•• WWhhaatt iiss AA FFaammiillyy--CCeennttrreedd FFuunnccttiioonnaall OOuuttccoommee????

•• TThhee ttwwoo ppaarrttss aarree uussuuaallllyy lliinnkkeedd bbyy tthhee pphhrraasseess ““iinn oorrddeerr ttoo”” oorr ““ssoo tthhaatt””.. TThhee ““iinn oorrddeerr ttoo // ssoo tthhaatt”” iiddeennttiiffiieess tthhee rreeaassoonn ffoorr aacchhiieevviinngg tthhee oouuttccoommee.. ““JJoohhnnnnyy wwiillll wwaallkk oonn hhiiss oowwnn ssoo tthhaatt hhiiss mmootthheerr ddooeess nnoott hhaavvee ttoo ccaarrrryy hhiimm..””

WWhhaatt’’ss SSoo GGrreeaatt AAbboouutt FFuunnccttiioonnaall OOuuttccoommeess????

•• OOuuttccoommeess ggiivvee ffaammiilliieess aanndd pprroovviiddeerrss aa cclleeaarr ffooccuuss aanndd ddiirreeccttiioonn ffoorr sseerrvviicceess..

•• OOuuttccoommeess aaddddrreessss ““gglloobbaall ccoonncceerrnnss””,, aanndd hheellpp tthheerraappiissttss ccoooorrddiinnaattee eeffffoorrttss rraatthheerr tthhaann ooppeerraattee iinnddeeppeennddeennttllyy..

•• OOuuttccoommeess ““eennccoouurraaggee”” ffaammiilliieess,, tthheerraappiissttss,, aanndd pprraaccttiittiioonneerrss ttoo tthhiinnkk aabboouutt wwhhyy iinntteerrvveennttiioonn iiss nneeeeddeedd..

•• OOuuttccoommeess pprroovviiddee aa rreeccooggnniissaabbllee ““eennddppooiinntt”” ffoorr iinntteerrvveennttiioonn tthhaatt tteellllss uuss wwhheenn wwee hhaavvee bbeeeenn ssuucccceessssffuull..

•• BByy ddeeffiinniittiioonn,, oouuttccoommeess ffooccuuss oonn pprraaccttiiccaall,, uusseeffuull sskkiillllss tthhaatt wwiillll ssoommeehhooww mmaakkee aa mmaakkee rreeaall ddiiffffeerreennccee iinn tthhee cchhiilldd’’ss lliiffee aanndd tthheerreebbyy iimmppaacctt tthhee ggeenneerraall ““wweellll--bbeeiinngg”” ooff tthhee ffaammiillyy..

SShhiiffttiinngg YYoouurr TThheerraappyy FFooccuuss

•• FFuunnccttiioonnaall OOuuttccoommeess

•• SSeerrvviiccee PPllaann

•• AAsssseessssmmeenntt

•• SSttrraatteeggiieess

•• FFaammiillyy// ccaarreeggiivveerr pprriioorriittiieess


WWHHAATT OORRDDEERR?? SStteepp 11 -- FFaammiillyy PPrriioorriittiieess FFaammiillyy pprriioorriittiieess aarree tthhee ffaammiillyy’’ss cchhooiicceess aanndd aaggeennddaa ffoorr hhooww tthheerraappyy sseerrvviicceess wwiillll bbee hheellppffuull iinn tthheeiirr eeffffoorrttss ttoo eennhhaannccee tthheeiirr cchhiilldd’’ss ddeevveellooppmmeenntt.. FFaammiilliieess,, ttooggeetthheerr wwiitthh tthhee tthheerraappiissttss,, ddeetteerrmmiinnee tthheeiirr pprriioorriittiieess.. IIddeennttiiffyyiinngg tthhee ffaammiillyy’’ss pprriioorriittiieess iiss aa fflluuiidd pprroocceessss tthhaatt bbeeggiinnss wwiitthh tthhee ffaammiillyy eexxpprreessssiinngg tthheeiirr ccoonncceerrnnss aatt iinnttaakkee aanndd ccoonnttiinnuueess tthhrroouugghh tthhee aasssseessssmmeenntt pprroocceessss.. FFaammiilliieess mmaayy hhaavvee ddiiffffiiccuullttyy iiddeennttiiffyyiinngg tthheeiirr pprriioorriittiieess eeaassiillyy oorr ddiirreeccttllyy..

FFaammiilliieess mmaayy eexxpprreessss tthheeiirr pprriioorriittiieess iinn ggeenneerraall tteerrmmss lliikkee ““iimmpprroovvee sskkiillllss”” oorr ““bbee lliikkee ootthheerr cchhiillddrreenn””,, oorr mmaayy ttuurrnn ttoo tthhee tthheerraappiissttss ttoo iiddeennttiiffyy pprriioorriittiieess ffoorr tthheemm.. TThheerraappiissttss nneeeedd ttoo eennccoouurraaggee ffaammiilliieess ttoo ppiinnppooiinntt ssppeecciiffiicc pprriioorriittiieess tthhaatt rreellaattee ttoo bbaassiicc ffuunnccttiioonnss aanndd ddaaiillyy rroouuttiinneess..

HHeellppiinngg FFaammiilliieess IIddeennttiiffyy TThheeiirr PPrriioorriittiieess -- FFuunnccttiioonnss

•• HHeeaalltthh

•• MMoobbiilliittyy

•• CCoommmmuunniiccaattiioonn

•• AAccttiivviittiieess ooff DDaaiillyy LLiivviinngg

•• BBeehhaavviioouurr

•• CCoommmmuunniittyy ppaarrttiicciippaattiioonn HHeellppiinngg FFaammiilliieess IIddeennttiiffyy TThheeiirr PPrriioorriittiieess -- RRoouuttiinneess

•• FFeeeeddiinngg

•• DDrreessssiinngg

•• BBaatthhiinngg//wwaasshhiinngg

•• PPllaayy

•• SSlleeeepp

•• GGrroossss mmoottoorr sskkiillllss

HHeellppiinngg FFaammiilliieess IIddeennttiiffyy TThheeiirr PPrriioorriittiieess –– lleeaaddiinngg tthhee wwaayy

•• ““WWhhaatt ccoonncceerrnnss yyoouu tthhee mmoosstt??””

•• ““WWhhaatt’’ss tthhee hhaarrddeesstt ppaarrtt ooff yyoouurr ddaayy??””

•• ““IIff yyoouu wweerree ttoo ffooccuuss yyoouurr eenneerrggiieess oonn oonnee tthhiinngg,, wwhhaatt wwoouulldd iitt bbee??””

•• ““WWhhaatt wwiillll mmaakkee yyoouurr cchhiilldd mmoorree iinnddeeppeennddeenntt??””

•• ““WWhhaatt wwiillll mmaakkee yyoouurr cchhiilldd’’ss lliiffee aanndd yyoouurr lliiffee bbeetttteerr??””

•• ““IImmaaggiinnee iitt’’ss ssiixx mmoonntthhss ddoowwnn tthhee rrooaadd,, wwhhaatt wwoouulldd yyoouu lliikkee ttoo bbee ddiiffffeerreenntt??”” HHeellppiinngg FFaammiilliieess IIddeennttiiffyy TThheeiirr PPrriioorriittiieess

•• WWhhaatt iiss iimmppoorrttaanntt??

•• WWhhyy iiss iitt iimmppoorrttaanntt??

•• WWhhaatt wwiillll cchhaannggee iiff tthhee pprriioorriittyy iiss mmeett?? WWrriittiinngg FFaammiillyy PPrriioorriittiieess

•• FFaammiillyy pprriioorriittiieess sshhoouulldd bbee ddiirreecctt aanndd ssiimmppllee..

•• FFaammiillyy pprriioorriittiieess sshhoouulldd bbee pphhrraasseedd iinn tteerrmmss ooff wwhhaatt tthhee ffaammiillyy wwaannttss.. EEgg.. ““WWee wwaanntt JJoohhnnnnyy ttoo wwaallkk oonn hhiiss oowwnn””

WWhhyy AArree FFaammiillyy PPrriioorriittiieess SSoo IImmppoorrttaanntt?? CChhiillddrreenn aanndd ffaammiilliieess aarree lliikkeellyy ttoo mmaakkee tthhee ggrreeaatteesstt cchhaannggeess wwhheenn tthhee iinntteerrvveennttiioonn aanndd rreellaatteedd oouuttccoommeess ffooccuuss oonn aaccttiivviittiieess tthhaatt aarree mmeeaanniinnggffuull ttoo tthheemm aanndd wwiillll mmaakkee aa ddiiffffeerreennccee iinn tthheeiirr lliivveess..


SStteepp 22 -- AAsssseessssmmeenntt

•• QQuuaannttiittaattiivvee mmeeaassuurreemmeenntt ooff ppeerrffoorrmmaannccee

•• QQuuaalliittyy ooff ppeerrffoorrmmaannccee

•• FFuunnccttiioonnaall sskkiillllss

•• FFaammiillyy ssttrreennggtthhss aanndd rreessoouurrcceess

•• HHeellppss ddeetteerrmmiinneess iiff tthhee ffaammiillyy pprriioorriittiieess aarree aacchhiieevvaabbllee oorr nneeeedd ttoo bbee mmooddiiffiieedd..

•• MMaayy uunnccoovveerr aaddddiittiioonnaall ccoonncceerrnnss aanndd nneeww ffaammiillyy pprriioorriittiieess..

•• PPrroovviiddeerrss aarree tthhee ““ttoooollss”” ffoorr ssttrraatteeggiieess aanndd sseerrvviicceess..

SStteepp 33 –– FFuunnccttiioonnaall OOuuttccoommeess

•• AA ffuunnccttiioonnaall oouuttccoommee iiss aa ssttaatteemmeenntt wwrriitttteenn iinn ffaammiillyy--ffrriieennddllyy llaanngguuaaggee tthhaatt rreefflleeccttss tthhee cchhaannggeess tthhaatt ffaammiilliieess wwaanntt ttoo sseeee ffoorr tthheemmsseellvveess aanndd ffoorr tthheeiirr cchhiillddrreenn..

•• AA ffuunnccttiioonnaall oouuttccoommee ccaann ffooccuuss oonn aannyy aarreeaa ooff ddeevveellooppmmeenntt oorr ffaammiillyy lliiffee..

•• AA ffuunnccttiioonnaall oouuttccoommee sshhoouulldd bbeeggiinn wwiitthh aa ssttaatteemmeenntt ooff wwhhaatt iiss ttoo bbee aaccccoommpplliisshheedd,, wwrriitttteenn iinn ffuunnccttiioonnaall tteerrmmss ((wwhhaatt??)),, ffoolllloowweedd bbyy aann eexxppllaannaattiioonn ooff wwhhyy tthhee oouuttccoommee iiss iimmppoorrttaanntt ((wwhhyy??)).. SSoommeetthhiinngg iiss ddoonnee iinn oorrddeerr ffoorr ssoommeetthhiinngg eellssee ttoo ooccccuurr oorr bbee aattttaaiinneedd..

FFaammiillyy PPrriioorriittiieess aanndd FFuunnccttiioonnaall OOuuttccoommeess

•• FFaammiillyy PPrriioorriittiieess sshhoouulldd bbee pphhrraasseedd aass aa ssttaatteemmeenntt ooff wwhhaatt iiss ddeessiirreedd bbyy tthhee ffaammiillyy:: ““WWee wwaanntt JJoohhnnnnyy ttoo wwaallkk..””

•• FFuunnccttiioonnaall OOuuttccoommeess sshhoouulldd bbee pphhrraasseedd aass aa ddeeffiinniittiivvee aaccttiioonn ssttaatteemmeenntt tthhaatt rreefflleeccttss tthhee ffaammiillyy’’ss pprriioorriittyy::

FFaammiillyy PPrriioorriittiieess aanndd FFuunnccttiioonnaall OOuuttccoommeess ““JJoohhnnnnyy wwiillll wwaallkk oonn hhiiss oowwnn ssoo tthhaatt hhiiss mmootthheerr ddooeess nnoott hhaavvee ttoo ccaarrrryy hhiimm””..

WWrriittiinngg FFuunnccttiioonnaall OOuuttccoommeess

•• UUssuuaallllyy iitt iiss eeaassiieerr ttoo iiddeennttiiffyy aass tthhee ““wwhhaatt”” tthhaann tthhee ““wwhhyy””,, bbuutt tthhiiss sshhoouulldd pprroommpptt tthhee tteeaamm aanndd tthhee ffaammiillyy ttoo tthhiinnkk aabboouutt wwhhyy tthhee oouuttccoommee iiss iimmppoorrttaanntt..

•• TThhee ““wwhhyy”” mmaayy bbee iiddeennttiiffiieedd bbyy aasskkiinngg tthhee qquueessttiioonn:: ““OOnnccee yyoouurr cchhiilldd iiss wwaallkkiinngg oonn hhiiss

oowwnn,, wwhhaatt wwiillll cchhaannggee iinn hhiiss lliiffee aanndd yyoouurr lliiffee tthhaatt wwiillll bbee bbeetttteerr ffoorr hhiimm aanndd yyoouu??””

•• KKeeeepp oouuttccoommeess ssiimmppllee,, pprraaccttiiccaall,, aanndd mmeeaassuurraabbllee..

•• AAvvooiidd oouuttccoommeess tthhaatt iinncclluuddee ttwwoo ddiiffffeerreenntt sskkiillllss..

•• AAvvooiidd ““iimmpprroovvee”” oorr ““iinnccrreeaassee”” iiff ppoossssiibbllee..

•• OOuuttccoommeess sshhoouulldd bbee ““gglloobbaall”” rraatthheerr tthhaann ddiisscciipplliinnee--ssppeecciiffiicc..

•• OOuuttccoommeess sshhoouulldd nnoott iinncclluuddee ssppeecciiffiicc ttrreeaattmmeenntt aapppprrooaacchheess ((BBoobbaatthh,, CCIIMMTT,, eettcc))..

•• OOuuttccoommeess sshhoouulldd bbee ttaarrggeetteedd ffoorr ssuucccceessss;; wwhhaatt rreeaalliissttiiccaallllyy ccaann bbee aaccccoommpplliisshheedd iinn tthhee nneexxtt 66 mmoonntthhss..

CChheecckklliisstt ffoorr AAsssseessssiinngg OOuuttccoommeess

•• IIss tthhee oouuttccoommee wwrriitttteenn iinn ssiimmppllee ffaammiillyy--ffrriieennddllyy llaanngguuaaggee??

•• DDooeess tthhee oouuttccoommee aaddddrreessss aa ffaammiillyy pprriioorriittyy??

•• IIss tthhee oouuttccoommee pprraaccttiiccaall aanndd ffuunnccttiioonnaall??

•• IIss tthhee oouuttccoommee oobbsseerrvvaabbllee oorr mmeeaassuurraabbllee??

•• IIss tthhee oouuttccoommee aapppprroopprriiaattee ffoorr tthhee cchhiilldd’’ss ddeevveellooppmmeennttaall aaggee??

•• DDooeess tthhee oouuttccoommee mmiinniimmiizzee ddeeppeennddeennccee,, eennaabbllee ppaarrttiicciippaattiioonn,, aanndd//oorr eennaabbllee aacccceessss?? EExxaammpplleess ooff OOuuttccoommeess::

•• TTsshheeppiissoo wwiillll ssiitt uupprriigghhtt aatt tthhee ttaabbllee ttoo ddoo sseellff ffeeeeddiinngg

•• ZZaanneellee wwiillll uussee bbootthh hhaannddss ttoo ooppeenn aanndd cclloossee ccoonnttaaiinneerrss..

•• Rethabile wil be able to take weight on her legs when supported so that she can help her caregiver with transfers.

•• Leto’s voice will become loud enough for his mother to hear him in the same room.


•• JJoosshhuuaa wwiillll ttrraannssiittiioonn ttoo ccuupp ddrriinnkkiinngg ffrroomm bboottttllee ddrriinnkkiinngg ssoo tthhaatt hhee ccaann jjooiinn tthhee ootthheerr cchhiillddrreenn iinn tthhee ccllaassss wwhheenn iitt iiss tteeaa ttiimmee..

SStteepp 44 -- SSttrraatteeggiieess

•• AA ssttrraatteeggyy iiss aa ggeenneerraall ppllaann ooff aaccttiioonn tthhaatt iiddeennttiiffiieess hhooww tthhee oouuttccoommee wwiillll bbee aacchhiieevveedd..

•• IItt iiss aann ““aapppprrooaacchh”” rraatthheerr tthhaann aa ssppeecciiffiicc aaccttiivviittyy.. UUssiinngg OOuuttccoommeess ttoo MMeeaassuurree PPrrooggrreessss FFaammiilliieess sshhoouulldd bbee aabbllee ttoo ““rreecciittee”” tthhee oouuttccoommeess aass tthhee rreeaassoonn ffoorr tthheerraappyy.. EEaacchh ddiissccuussssiioonn sshhoouulldd bbeeggiinn wwiitthh aann aasssseessssmmeenntt ooff tthhee pprrooggrreessss ttoowwaarrdd aacchhiieevviinngg tthhee oouuttccoommee.. WWhheenn tthhee oouuttccoommee iiss mmeett,, aa nneeww oouuttccoommee nneeeeddss ttoo bbee wwrriitttteenn oorr tthheerraappyy iiss tteerrmmiinnaatteedd..

TThhee ““OOuuttccoommeess”” AApppprrooaacchh

•• AAllll sseerrvviicceess sshhoouulldd bbee bbaasseedd oonn ffaammiillyy--cceennttrreedd ffuunnccttiioonnaall oouuttccoommeess rraatthheerr tthhaann

ddiiaaggnnoosseess,, ddeeffiicciittss,, oorr ddeellaayyss..

•• FFaammiillyy--cceennttrreedd ffuunnccttiioonnaall oouuttccoommeess eemmpphhaassiizzee pprraaccttiiccaall aaccttiivviittiieess tthhaatt aarree mmeeaanniinnggffuull ttoo ffaammiilliieess aanndd wwiillll mmaakkee aa ddiiffffeerreennccee iinn tthheeiirr lliivveess..

•• FFaammiillyy--cceennttrreedd ffuunnccttiioonnaall oouuttccoommeess aarree ddiirreecctteedd aatt tthhee ffaammiilliieess’’ pprriioorriittiieess..

•• FFaammiillyy--cceennttrreedd ffuunnccttiioonnaall oouuttccoommeess iinnvvoollvvee ffaammiilliieess aass kkeeyy ppaarrttiicciippaannttss iinn tthhee

tthheerraappeeuuttiicc pprroocceessss..

•• FFuunnccttiioonnaall oouuttccoommeess pprroovviiddee aa ffooccuuss aanndd aann eennddppooiinntt ffoorr sseerrvviicceess..

•• FFuunnccttiioonnaall oouuttccoommeess sshhoouulldd bbee ttrraannssddiisscciipplliinnaarryy rraatthheerr tthhaann ddiisscciipplliinnee--ssppeecciiffiicc,, ddiirreecctteedd aatt ffaammiillyy pprriioorriittiieess..

Promotion of Physical Fitness and Prevention of Secondary Conditions for Children With Cerebral Palsy: Section on Pediatrics Research Summit Proceedings

Eileen G Fowler, Thubi HA Kolobe, Diane L Damiano, Deborah E Thorpe, Don W Morgan, Janice E Brunstrom, Wendy J Coster, Richard C Henderson, Kenneth H Pitetti, James H Rimmer, Jessica Rose, Richard D Stevenson for the Section on Pediatrics Research Summit Participants, Section on Pediatrics Research Committee Task Force

Inadequate physical fitness is a major problem affecting the function and health of children with cerebral palsy (CP). Lack of optimal physical activity may contribute to the development of secondary conditions associated with CP such as chronic pain, fatigue, and osteoporosis. The purpose of this article is to highlight the content and recommendations of a Pediatrics Research Summit developed to foster collaborative research in this area. Two components of physical fitness—muscle strength and cardiorespiratory fitness—were emphasized. Although there is evidence to support the use of physical fitness interventions, there are many gaps in our current knowledge. Additional research of higher quality and rigor is needed in order to make definitive recommendations regarding the mode, intensity, frequency, and duration of exercise. Outcome measurements have focused on the body functions and structures level of the International Classification of Functioning, Disability and Health (ICF), and much less is

known about effects at the activities and participation levels. Additionally, the influence of nutritional and growth factors on physical fitness has not been studied in this population, in which poor growth and skeletal fragility have been identified as serious health issues. Current intervention protocols and outcome measurements were critically evaluated, and recommendations were made for future research.

PHYS THER Vol. 87, No. 11, November 2007, pp. 1495-1510

Full text can be downloaded from http://www.ptjournal.org/archive/


Caregivers’ expectations and perception of change following an intensive block of therapy – the Dilokong experience

Estelle Brown

Presented at SANDTA Congress 2008

Dilokong, meaning “where the water stands” is situated near Burgersfort, Limpopo, in the heart of a chrome mining area.

The aim of this intervention study was to examine the outcome of parental/caregiver involvement in a NDT/Bobath therapy programme in a poorly resourced area in South Africa. Special emphasis was placed on their expectations, their perception of the intervention and any changes in their children’s functioning. The results recorded below reflect the parents’ perception of change of two interventions carried out approximately 9 months apart. The model used for a single intervention was based on the one developed and piloted by Malamulele Onward in 2005. It consisted of:

• Screening (4 days)

• 5 day intensive “hands-on” NDT/Bobath intervention.

• Follow-up visit (4 days) Malamulele Onward is a non-profit, Public Benefit Organization. It’s Vision: To meet the rehabilitation needs of children with Cerebral Palsy in the most disadvantaged areas of South Africa and Sub-Saharan Africa through access to sustainable support services. Two important points in the mission statement:

• Improve the quality of life and maximize the potential of children with Cerebral Palsy in the most disadvantaged areas

• To support and empower those involved in the rehabilitation and care of children with Cerebral Palsy. This includes the children’s families.

Aspects to consider with a family centred intervention in an under resourced rural area:

• Acknowledgement that parents are mainly uninformed.

• Determination of their cultural and personal understanding of a child with disability.

• Creating a platform to allow them to voice their concerns and expectations

• Putting in place steps towards a collaborative partnership SCREENING The children’s participation restrictions, activity limitations and impairments were identified.

• Therapist’s assessment (baseline functional capacity)

• Parent questionnaire: to get an idea of the child’s performance regarding gross motor, fine motor, feeding, and play and communication activities at home.

Parent/caregiver questionnaire

• A field worker using the same language conducted the parent questionnaires.

• Questionnaire included important aspects of the child’s functional abilities eg. self-help skills, gross and fine motor functions, play and communication abilities and feeding.

• Identification of 3 main aspects that parent would like to see changed. Initial interview + use of interpreter during the assessment and intervention assisted towards a meaningful collaborative relationship.


All aspects of intervention were done alongside parent in order to:

• Transfer skills,

• Facilitate understanding of child’s problems and handling and positioning.

• Train the use and maintenance of equipment. Follow-up visit 6 weeks later

• Questionnaire to determine changes perceived by parent/caregiver.

• Checking how parent/caregiver is coping with handling the child and use of equipment.

• Focus group discussion

Summary of some of the Cases seen. 1 SURPRISE Mother’s concerns and expectations 2007: Concerns: My child cannot use his hands He cannot sit I’m worried he cannot hear and speak Expectations For him to be able to sit and stand

Mother’s perception of change since intervention (6 weeks later)

• The hearing has improved. He responds when called by his name.

• He can now roll, even in bed.

• Child is now moving – lying on stomach – to different positions in the house. 8 months later, screening before 2nd intervention Mom’s perception of change

• Sitting improved, but he needs help

• He cannot use his hands, mostly plays with his feet.

• He cannot crawl, but can stand on his knees

Mother’s expectations for 2nd intervention - 2008

• To use both hands

• To speak

• Eventually to walk (long term)

Mother doing facilitation – Concentrating on use of hands for play

Mother’s remarks during focus group discussions

“My child is still stiff. I do not know what is going on in his mind. He can roll now, which he could not do before, even when sleeping. He cannot stand alone. If he plays his head does not stay still. I wonder why he can do other things he could not do before, but he cannot stand but walks on his knees. But little by little it is better than before.”

During this intervention mother’s concerns about independent sitting were addressed and home instruction given.


2 THAPELO Mother’s concerns and expectations Concerns: He is not strong He does not use his hands I think his head might be too big Expectations To walk like other children To eat by himself To talk

Working on aspects of mother’s concerns including:

• positioning in a low tech cardboard seat to free hands for activities

• teaching mother handling skills to achieve standing

8 months later (Screening for 2nd Intervention) Mother’s perception of change since intervention

• He is able to self-feed

• Hands work better

• Can sit for 30 counts

• He listens when talked to or hearing his name.

• He starts to roll and sits pushing on his hands

Mother’s expectations for 2nd intervention - 2008

• To walk to play outside with other children (he is still weak in the lower body and legs)

• To get dirty like other children 7 weeks later (follow-up after 2nd Intervention) Mom’s perception of change

• My child can sit and use his hands differently and play with toys. He can happily play while I am busy with something and he can be left with someone at home.

• He is now helping with dressing and undressing. 3 DANIEL Mother wants him to:

• Walk

• Talk

• Interact with others First Intervention Working on mothers expectation of independent walking


Follow-up 6 weeks later: Mom’s feedback:

• My child stands up against and walks along furniture.

• Still walks on bum, but gets on hands and knees 8 months later (Screening 2nd Intervention): Mom’s expectations

• Wants him to self feed

• Wants him to walk alone

• Wants him to talk Follow-up 6 weeks later: Mom’s report

• He started to walk alone a week ago!

• He helps with dressing and undressing

• Tries to brush teeth and wipe his nose

• He is learning to drink by himself with just a little help.

• He is now able to make choices by pointing.

• Hand function improved, can use left hand.

General Comments by Parents

• ‘The training they showed me was very good. The pictures helped me to remember what to do’

• ‘I never thought my child could change like that. Please train the people at our hospital to do the same exercises.’

• ‘My child can stand and sit in the frames they gave us. I can get on with my work’.

• A great percentage of caregivers saw a change in their kids.

• Most felt that their lives are easier; they do not keep their children on their backs all day anymore.

• The fact that their children now want to play, laugh more and interact, made a difference.

Laminated picture chart of

handling ideas given to parent

The need for functional, goal directed intervention

and the carry- over of handling skills.

The easing of the day to day life of

the parent/caregiver


• Many remarked on better visual attention.

• Feeding seems to have improved, even though they did not think it was a problem.

• Neighbours remarked on changes in their children Their concerns for the future

• Will they find the same service in their hospitals when we are gone?

• Concerns about schooling/daycare

• Financial concerns

• Concerns about the attitude of chiefs and government Aspects to be considered: Are they buying into collaborative goal setting? I believe this could still be a process. Are they still used to a top-down medical model of service? How well do they understand their child’s condition? The last focus group discussion underlined their ignorance.

*****************************

This year we will be returning to Butterworth/ Tafalofefe in the Eastern Cape

The provisional dates of the therapy weeks are as follows:

Tafalofefe (group 1) 28 Sept – 2 October 2009 (School holidays)

Tafalofefe (group 2) 5 – 9 October 2009

If we are successful in obtaining more funding, we will also go to a new site in the Vhembe district of

Limpopo. This will also take place in the second half of 2009.

All the children in the Tafalofefe group need GMFM assessments done before and after the therapy

intervention. If you are interested in doing GMFMs, please let us know. You will receive training and

also be paid for doing the assessments.

Your accommodation and travel costs (within South Africa) for the therapy week are covered. You will

also receive 10 CEUs for the week. All we need is from you is your time!

If you are interested in becoming a Malamulele Onward volunteer, please contact Gillian Saloojee at

[email protected] or on 072 483 5766. You can also visit our website www.CPchildren.org for

more information on what we are all about.

CPD INFORMATION

CALLING ALL

NDT THERAPISTS

OUTREACH DATES FOR

2009

Directors : Dr. GM Saloojee, JA Snyman, E. Brown, T. Seon (Can), B. Harrison (Can), S.

Broughton, Prof. AD Rothberg, Dr. MR Mphahlele, JC Whitter, T. Ralintja


Malamulele Onward Brings Miracles to Madwaleni

Jean Elphick

During the first week of April this year, 16 volunteering NDT therapists travelled to the heart of the

Eastern Cape- a deep rural hospital in the old Transkei. A church hall on the hospital grounds was

home to the second annual NDT block therapy intervention for 37 children with Cerebral Palsy from

Madwaleni and Zithulele Hospitals.

Malamulele therapists reassessed the children in January, so each child had a therapy plan and goals

to be achieved during the week. Each child and their caregiver received the undivided attention of a

team of therapists for daily sessions during the week. Volunteering therapists combined hands-on

therapy, with education and skills transfer to the caregivers.

The equipment that they had been

issued last year was brought in for review

and repairs. Daniel Meyer (an orthotist

from Jeffrey’s Bay and builder of Timeon

equipment for children in need) was

onsite to alter equipment and try out

some innovative new designs. Like a

horse on wheels to help Luvo stand

despite his spastic quadriplegia, and an

adapted scooter board for Phumalele to

help him get around.

There were many positive stories. Just one is the story of Zingisa, who

was such a complicated case, and so sick in 2008 that he barely

participated in treatment. According to his mother Zingisa was walking

around until he was three, but then it seemed he had a catastrophic

seizure. We are unsure of what happened in the years before he came to

the therapists at Madwaleni in 2007, but it seemed that he had not been

out of bed in years.

←January 2008: Zingisa with fixed flexion deformities and displaced femur

fractures

He had rickets, causing multiple fractures in both his femurs and such

severe contractures in his knees and hips that even the doctors at the

orthopedic referral hospital in Umtata were at a loss as to how to

manage him. With advice from MO the local therapists organized Vitamin

D for Zingisa. They also used serial casting in plaster gradually

straightening his legs and allowing the fractures to heal. The hospital’s

Home Based Care Program also organized a carer to visit weekly to make

sure Zingisa was spending time outside in the sunlight.

Intervention week 2008: Unwell, and in POP casts, Zingisa could→

barely participate

We were astounded when we managed to get Zingisa into a standing box at the end of the

intervention week this year. He is wearing soft splints on his legs and we had to build up one of his

shoes, but for the first time in 7 years Zingisa is standing on his own two feet again.


When you consider that we were unsure

that Zingisa would ever be able to sit

independently, his standing is truly a

miracle, and the result of 2 years worth

of rehabilitation. A true miracle!

←April 2009: Standing on the last day of the

intervention week!

Outside in the sun at home with his dad →

Malamulele Onward is built on a foundation of volunteerism. We would like to extend a heartfelt

thanks to the people who’s hard work made it all possible:

The NDT therapists that volunteered their time and expertise: Marilyn Herson, Marie Vorster, Marion

Prescott, Elna van der Ham, Cathy Pringle, Paul Ndahimana , Augustin Murenzi, Jean Elphick, Gillian

Saloojee, Annelien Vieira, Sue Fry, Caroline Morgan, McFarry Chakufa, Leoni Kretzschnov, Kate Sherry,

Baerbel Ruckheim.

Seven of these therapists volunteered at Madwaleni in 2008 and were back for a second time. Speech

therapist, Cathy Pringle form Queenstown, is a Malamulele regular, who has wholeheartedly

participated in almost all the intervention weeks in the Eastern Cape. Her ‘speechie’ skills and fluent

Xhosa are invaluable and very much appreciated.

A special thanks is due to Daniel Meyer, who says he has come on so many Malamulele intervention

weeks that he is now ‘part of the furniture’.

In addition local therapists and Community Service therapists Lee-Anne Evezard, Jen Horsten, Kate

Foster, Keryn de Bruyn, Megan Gilljam, Lisa McGowan, Lucy Shillington, Donne Nel, Marike Smit, Amy

Wilkes, and Kyla-Rei Wolmarans worked tirelessly to ensure the smooth running of the week.

Finally, a thank you must go to Carlos Fransisco for filming and editing a beautiful DVD about the week

for us.

For more information about Malamulele, to volunteer for future projects, or to get hold of a copy of

the DVD please contact us through our website www.cpchildren.org

Subscriptions due 1 July 2009

Please watch the post for your 2009/2010 account.

Subscription Fee for 2009/2010 will be R 175.

The August Newsletter will be sent out as a

courtesy giving you a short period of grace to pay

your account. Subsequent newsletters will only be

sent to paid-up members.


Application Form for SANDTA Courses attached as a separate document to the Newsletter,

both as a PDF and WORD document.

The application form can also be downloaded from: http://www.sandta.org.za

Please note that Level II Courses are only open to therapists who have

successfully completed the 8-week basic NDT/Bobath course.

ADVANCED LEVEL II COURSE

ADVANCED COURSE IN MANAGEMENT OF FEEDING, ORAL-SENSORY

MOTOR AND SPEECH PRODUCTION DISORDERS IN CHILDREN WITH CP

This course is open to therapists who have completed the 8-week basic NDT/Bobath course.

We will re-visit the management approach within the Bobath/NDT concept to feeding, oral

sensory-motor and speech production disorders in children with CP and evaluate relevance of

treatment against latest research evidence. There will also be a focus on the use of the ICF

framework in assessment and intervention plus using GAS goals (Goal Attainment Scaling) in this

clinical population. Various assessment protocols will be evaluated in terms of usefulness as

outcome measures in support of evidence-based practice. Participants will engage in problem

solving complex cases and in refining practical handling skills aimed at impacting function. Inter-

and transdisciplinary management of the targeted problems will form part of workshops,

discussions and problem solving..

The course will be accredited attendance certificates and CPD points.

Venue: Aurora Special Care Centre

Port Elizabeth, SA

Dates: 26 -30 October 2009 (8h30 to 16h30)

Tutor: Rina van der Walt, Senior Speech-Language Therapy NDT/Bobath Tutor

Fee: R2, 050 – SANDTA members; R2, 250 non-members

Download e-mail or fax version of application form from SANDTA website: http://www.sandta.org.za

Send form to: [email protected] or

FAX Rina van der Walt at: 00 44 141 9490022 (Scotland)

ADVANCED LEVEL II COURSE

THE EARLY EVALUATION & TREATMENT OF INFANTS

WITH CEREBRAL MOTOR DISTURBANCES

Dates: 26 October – 6 November 2008 (10 days)

Course Leader: Estelle Brown (Senior SANDTA Tutor)

Venue: Bloemfontein (Actual venue to be finalised)

Cost: R4000

Contact: Estelle Brown

Tel: (011) 674 5272 / 073 148 2178

Fax: 086 666n7452

E-mail: [email protected]


INTRODUCTION TO THE ASSESSMENT AND TREATMENT OF CHILDREN WITH CEREBRAL PALSY

This 5-day Introductory Course is aimed at physiotherapists, occupational therapists and

speech therapists working with children with cerebral palsy in clinics, public service

hospitals or institutions. The course is specifically targeted at community service

therapists and junior therapists. This course will help therapists to effectively assess

and manage children with cerebral palsy within a busy public service setting.

All courses require full attendance for certification and all are accredited for 35 CEUs.

EASTERN CAPE COURSE PLANNED FOR 2009

Presenter: Estelle Brown, Senior SANDTA Tutor

Dates : 8-12 June 2009

Venue: East London

Cost: R2000

Contact person for enquiries and application forms:

Estelle Brown

Tel: (011) 674 5272 / 073 148 2178

Fax: 086 666n7452

email: [email protected]

**************************

GAUTENG COURSES PLANNED FOR 2009

Dates: 2 Courses 17 – 21 August 2009

24 – 28 August 2009

Venue: Frances Vorwerg C P School, Johannesburg, Gauteng

Cost: R2000

Course Leader: Doris Mbuyu

SANDTA Co-ordinator Instructor

Contact person for enquiries and application forms :

Mary Murray

Cell : 083 4626240 Tel : (011) 917-5747

e-mail : [email protected]

Closing date for applications: 29 May 2008 or until the course is full.


BASIC 8 WEEK BOBATH / NDT COURSE, 2009 CEREBRAL PALSY CLINIC, CHRIS HANI BARAGWANATH HOSPITAL

Gillian Saloojee and Doris Mbuyu What do you get when you combine:

• Seventeen South African, a Rwandan, a German, a Swiss, two Tanzanian, an Indian,

a Portuguese (living in Mozambique) and a Kenyan and two Ghanaian therapists

• Twenty two females and four males

• Eighteen physiotherapists, five occupational therapists and three speech therapists?

....................... an exciting, dynamic and challenging course - a course with a difference – where therapists had to acquire their new skills and knowledge against a background of contrasting cultures and languages. We all grew as much as people as we did as therapists and tutors. The venue for the course was the CP Clinic at Chris Hani Baragwanath but we travelled away from our base in the second half of the course – to Phillip Kushlick School in Soweto; we spent a week at Frances Vorwerg School working with adolescents and teenagers and the grand finale was at the Mthimkulu Stimulation Centre in Meadowlands, Soweto. Course participants were exposed to a variety of tutors, lecturers and clinical supervisors – in addition to Gillian Saloojee and Doris Mbuyu who were the joint course leaders, the participants met Christa Scholtz (Senior OT instructor); Corneli Strydom (ST instructor); Dr. Alison Bentley (neurophysiology); Prof. Haroon Saloojee (perinatal asphyxia); Dr. Shadi Ramitsimele (problems associated with prematurity); Prof. John Rodda (pharmacology and CP); Mary Bornman (seating); Gillian Shead (HIV and development and a clinical supervisor); and Estie du Plessis, Bridget Sendall, Ingrid Vriend, Karien Marais and Lisa Calligaro (all clinical supervisors). Additional special guests were Sandy King, Marcia Matutoane and Lydia Ngwana who shared with us their lives experiences of being or having a sibling or a child with cerebral palsy and taught us more than we could ever have learnt from books and articles. Though it felt like it was work most of the time, it was not just work, work, work. There was time for play as the course participants organized social events – a traditional South African braai one weekend; a day out at the Vaal River, a Mexican evening, an international meal one evening at “the Big Brother House” (where six of the out of town participants stayed) and a final lunch together at a traditional outdoor restaurant in the historical Vilakazi Street in Soweto. Eight weeks full time with no break is no picnic and we congratulate all the participants on staying the distance and giving of their best right to the end. It was a pleasure teaching you and watching your growth as people and as therapists and we wish you well as you take your newly acquired skills and knowledge back to your places of work – may you continue to make a difference in the lives of children with cerebral palsy.

Highlights of the course (from the course participants’ point of view):

• The changes we saw in a short space of time

• Working in the community – despite encountering the striking taxi-drivers

• Doing simple things that made a big difference

• Being exposed to different environments

• Working with people from different countries and cultures

• Diogo singing “I’m a Barbie girl” to get a child to stand and weight shift


• Seeing such a variety of children during the practical sessions

• Seeing improvements in every child – no matter how small – made everything worthwhile

• Seeing the improvements and changes in myself as a therapist

• Learning that it’s not about expensive equipment but that appropriate handling and improvised assistive devices need to be introduced early to the child

• Working together as speech, physios and OTs

• Seeing how the involvement of caregivers matter for success of therapy

• Seeing how working within the Bobath framework can change not only the child but the relationship between the caregiver and the child

• The family centred therapy workshop with caregivers and siblings

• Christa’s sensory workshop, the repetitions without repetitions and her w.w.w

• The Big Brother house participants arriving in a limo And the low points:

• Feeling so overwhelmed at the beginning of the course

• Never having enough space, equipment and supervisors

• Exhaustion!

• Eating way too many rusks Well done and warmest congratulations to our newest Bobath/NDT therapists!

Physiotherapists Abdullah Makalla Samantha Spencer Solange Brizido Asimayan Nandi Jeanetter Bensted-Smith Marilyn Herson Dianne Zeller Catriona Bachman Rachel Wachera Akwilina Sachore Matshele Sandani Daleen Moodley Paul Ndahimana Dorothy Ekwa Adjabu Charity Adjetey Cecilia Thomas Tamara Gritzman Keri Ann Hacker

Occupational Therapists Feroza Latib Lynndall Price Diogo dos Santos Baerbel Ruckriem Lisa-Marie Rawstorne

Speech Therapists Leonie Kretschmar Claudia McGregor Alice Yelland

AWARDS

Top five course participants: Baerbel Ruckreim; Leonie Kretschmer; Jeanette Bensted-Smith; Samantha Spencer; Solange

Brizido

Top overall course participant: Samantha Spencer

For showing the most growth as a therapist during the course:

Asimayan Nandi

For being voted the therapist who made the biggest contribution to the course, and in so doing enhancing the course experience for everyone else:

Dianne Zeller


WELCOME! (albeit a bit late) The new Paediatric NDT therapists, who passed the 8-week basic course

in Port Elizabeth in December 2008

Occupational Therapists Shelly van Schalkwyk Caroline Albort-Morgan Kate Sherry Catherine Pitt Nicky Seymour

Rosemary Luger Elizabeth Barry Sarita Nell Mariaan Weideman Madri Hammond

Clare Hubbard Vanessa Gouws Janet Michaelides Marli Smit

Physiotherapists

Crystal Moosajie Rebekka Huber-Schurch Christèl Boolsen

Elle Karel van der Molen Malka Haimi Lizl Dennis

Marieta Steyn Tamryn Baker Jean Elphick

Speech Therapist

Tanya Jordaan

SOUTHERN AFRICAN NEUROLOGICAL REHABILITATION ASSOCIATION

presents

Neurorehabilitation 2009

“Bridging the Divide”

26 – 28 August 2009

JOHANNESBURG, SOUTH AFRICA You are invited to participate in the 4th SANRA Conference taking place in Johannesburg

in August 2009. The theme “Neurorehabilitation 2009: Bridging the Divide” will focus on

functional measurement techniques and innovative therapeutic developments,

encompassing both the scientific and the clinical spectrums of neurorehabilitation.

The keynote speakers are:

Dr Steven Small Dr Derick T Wade Michele Gerber Dr Leigh Ann Hale

www.sanra.org

Lynne Fearnhead will be running a Basic Adult Hemi course at Netcare Rehab.in

Johannesburg. 31 August – 11th September and from 5-9 October 2009. R3500

Contact person Franja Serfontein- [email protected] 0r 011489-1452

Michelle Gerber is running an Advanced Course also at Netcare Rehab. 17 - 21st August 2009 –Gait rehabilitation for the person with neurological

impairment(stroke, TBI, cerebellar) and includes aspects of cardiovascular fitness. Contact Franja Serfontein - details above


LIFE REHABILITATION EXTERNAL CPD PROGRAMME FOR 2009/10

Topic Speaker Venue Date Cost

Early neuropsychological

screening for cognitive

impairment

Dr Ida Pienaar,

Clinical Psychologist

Life St Dominic’s Hospital,

East London

20 April 2009 R400

Ethics in Rehabilitation Prof Claire Penn,

IRENSA Post Graduate

Diploma in Ethics,

Karen Vermaak, Attorney

Life New Kensington

Clinic, Gauteng

13 May 2009 R450

Assessment and Neuro-

developmental therapy

intervention strategies for gait

in the neurologically impaired

adult

Lynn Fearnhead,

Physiotherapist, IBITA

Instructor

Life Pasteur Hospital,

Bloemfontein

10 June 2009 R400

Trauma counseling and

referral: guidelines and

training for non-counselors

Willem Stiglingh,

Trauma Counselor

Life St Dominic’s Hospital,

East London

12-13 June 2009 R600

Diabetes: A lifestyle disorder Julie Peacock,

Dietician

Life Entabeni Hospital,

Durban

13 August 2009 R450

Management of behavioural

and cognitive dysfunction post-

brain injury

Prof Derick Wade, Honorary

Chair of Rehabilitation,

Kings College, London, UK

Life Riverfield Lodge,

Gauteng

25 August 2009 R450

Assessment and management

of upper limb function

Anupa Singh,

Occupational Therapist

Life Pasteur Hospital,

Bloemfontein

17 September 2009 R450

Assessment and management

of upper limb function

Anupa Singh,


Life Eugene Marais

Hospital, Tshwane

15 October 2009 R450

Sexuality in disability Willem Stiglingh, Counselor

and sexologist

Life Riverfield Lodge,

Gauteng

29 October 2009 R450

Basic principles of successful

seating in adult neurological

disability

Clare Hubbard Life St Dominic’s Hospital,

East London

12 November 2009 R300

Neuro-development

management strategies for the

young, brain-injured adult

Gerlinde Haase,

Physiotherapist,

Senior IBITA Instructor,

Germany

Life New Kensington

Clinic, Gauteng

16-17 November

2009

R800

Legislation and disability Various experts in disability

management, including legal

and social services, office of

the Compensation

Commissioner, funders and

NGO’s

Life Entabeni Hospital 26 November 2009 R450

Managing visual-perceptual

fallout post-brain injury in

adults

Paula Barnard-Ashton,


Haley Norval,


Life Eugene Marais

Hospital

18 February 2010 R450

Please note that all activities are accredited for CEU’s

For more information and registration forms, please access the Life Rehabilitation website:

http://www.lifehealthcare.co.za/healthcareservices/life_rehabilitation.aspx

or call Pranee Moodley on 011 219 9620 or [email protected]


NEURO-DEVELOPMENTAL MANAGEMENT STRATEGIES FOR THE YOUNG HEAD-INJURED ADULT

Presenter: Gerlinde Haase

Physiotherapist, Senior IBITA Instructor, Germany

This 2-day interactive workshop will provide theoretical knowledge, clinical reasoning skills

and clinical expertise in the management of the young, head-injured adult across the

continuum of management. The principles of neuro-developmental therapy will be applied,

with ample opportunity to practice clinical techniques. The workshop is open to all therapists

with an interest in neurological rehabilitation.

Therapists who have successfully completed a basic 3-week Adult NDT course will get

preference for reserving a place until 30 September

Date: 16-17 November 2009

Venue: Life New Kensington Clinic, 23 Roberts Avenue, Kensington, Johannesburg

Cost: R800

Enquiries: Charlene Kruger

011 614 7125 or 082 450 5035

[email protected]

Registration forms available on Life Healthcare website:

http://www.lifehealthcare.co.za/healthcareservices/life_rehabilitation_cpd.aspx

URGENT! URGENT! URGENT! URGENT!

Do you have patients that have outgrown their splints ?

I am in urgent need of second hand splints, especially for lower limbs.

Unfortunately we are very limited in what we receive in the government setting

and would appreciate any splints that are in a good condition.

Please contact me on 082 519 1447

Thanks

Linda Goldberg Charlotte Maxeke Academic Hospital (JHB Hospital)


WESTERN CAPE

We were pleased to see so many familiar and some new faces at our AGM and talk on 4th of February. Diana Novotny gave feedback on the SANDTA Congress held in Johannesburg in October 2008. We also selected the Western Cape Branch Committee for 2009.

WESTERN CAPE COMMITTEE

Chairperson ~ Jenny Bradshaw (Physiotherapist at Bel Porto School) Treasurer ~ Bronwyn Greager (Physiotherapist in private practice)

Secretary ~ Shelagh Hughes (Speech-Language Therapist at Vista Nova School)

Other members of the committee Anja Seifart (Physiotherapist in private practice)

Ingrid Vriend (Occupational Therapist in private practice and at Reddam School) Liza Lucani (Physiotherapist in private practice)

Naeema Bawa-Mohamed (Speech-Language Therapist at Vista Nova School) Raestja Maria Teffo (Physiotherapist at Vista Nova School)

WORKSHOP INFORMATION

This year has again started with a busy schedule of events. Dorothy du Plooy presented a Half Roller Course in January and Estelle Brown presented a workshop on The Foot in CP in February. At the end of March- Sheena Irwin-Carruthers instructed us on the use of the ICF and in April- Christa Scholtz presented a workshop on Vision. A Basic NDT Course is currently being run by Estelle Brown. They have recently completed the first four week block at Vista Nova School and will re-convene at Bel Porto School in the second term. Reports are that the course has been going very well- despite the heat! We run regular Wednesday Combined Interest Group Meetings at Vista Nova School. To make it easier for people to attend we are advertising this year’s dates in advance but be aware that changes may occur. The workshops are from 12h30- 14h00 at Vista Nova School- 11 Milner Road, Rondebosch. The cost is R10 to cover CPD and sandwiches.

• 10 June- Jo Wilmshurst (Red Cross ICU- epilepsy focus)

• 16 September- Case studies and panel discussion (Cases from clinicians welcome!)

• 18 November- Roger Melvil (Neurosurgeon speaking on deep brain stimulation in dystonic CP)

Other events planned for this year:

• Evening talk in August- possibly Christine Rogers (Vistibular Disorders)

• October- Gillian Saloojee (GMFM) (details to be confirmed)

E-MAIL ADDRESS

Please contact us using our email address: [email protected] Let us know if you do not receive emails from us or if your contact details change.


The Western Cape SANDTA branch is proud to present the following workshop:

Use and Application of the Gross Motor Function Measure

A training day in the use of this standardised test of motor function in children with

cerebral palsy. It will include an overview of the GMFM, how to administer it and how to

score it. Through practical demonstrations and videos, participants will get the

opportunity to practice scoring the GMFM themselves.

Presenter: Gillian Saloojee

Date: 31October/1 November 2009

Cost: R300 (members) R350 (non-members)

Venue: Bel Porto School, Lansdowne

Time: Registration at 8h30. Course will finish at 16h00

CPD: We have applied for continuous education points

Places are limited to 20 places per day so please book early to ensure that you can attend.

Please contact Bronwen Greager on 082 408 5565

or [email protected] of fax 086 546 3814 for more information.

NB NB NB NB This course is a DAY course, but will be run twice – once on Saturday 31 October and once

on Sunday 1 November. Places will be allocated to each day on a first come first serve basis.

Payment need only be made on confirmation of place on the course

Western Cape banking details will be provided

Please make sure that payment for a course is paid into the stipulated account and that your name is given as the reference for the

payment.

A lot of admin time is spent both at NEC and branch level trying to sort out wrong and unreferenced payments. Please read instructions

concerning payment carefully.


KZN Workshops

June 2009

Dr Fraser(Orthopaedic Surgeon)

1 hour during a weekday evening; date to be arranged-

'Possible Surgeries for the CP Child'

Venue- Browns School Pinetown.

Notification will go out as soon as possible or

please phone Tessa or Melini in Physiotherapy on 031 7003535

CPD points to be applied for.

*************************

Saturday 25 July

Mr Neil van der Merwe(Orthotist)

'Neurophysiological orthoses in the treatment of CNS disorders'

2 Hours. Registration 08h30. Browns School Pinetown.

To book, please phone Tessa or Melini in Physiotherapy on 031 7003535

before Wednesday 22nd July.

Cost is R80 for non SANDTA members and R60 for SANDTA members.

CPD points to be applied for.

*************************

Thursday 13 August

Dr Williams(ENT at Westville Hospital)

'Management of Drooling(Sialorrhea) in Children with Neurological Impairments' Browns

School Pinetown. 18h00 till 19h00.

To book, please phone Kanthi in the Speech Dept on 031 7003535

before Tues 11 August.

Cost is R50 for non-SANDTA members and R35 for SANDTA Members.

CPDpoints to be applied for.

*************************

21 and 22 September

Therapists from the Pretoria CP School

'School- to-Work Opportunities and Programmes for Learners with CP or other

Disabilities'.

Venue-Browns School Pinetown.

Please phone Erica in OT Dept on 031 7003535

as soon as possible as there is an early bird registration fee.

Cost(early bird) is R250 for non-SANDTA members and R200 for SANDTA members.

Applying for at least 10 CPD points.

Application form – see Appendix to newsletter

****************************

AGM will take place in Durban on the 24th October.


BRANCH CONTACTS

SOUTHERN GAUTENG Sarah Vorster [email protected] 082 370 6730

NORTHERN GAUTENG: Gina Loudon [email protected] 082 665 8385

KZN Jane Markham [email protected] Tel: 031 700 3535 Cell: 084 421 5062

WESTERN PROVINCE: Jennifer Bradshaw: [email protected] 021 696 4134 (work) 021 696 8228 (fax) 083 775 1995 (cell)

EASTERN CAPE Clare Hubbard [email protected]

TEL. (041) 3733780 FAX (041) 3733781 CE Mobility 80 Cape Road Mill Park 6001

OFS Corina Botha: [email protected] Tel: 082 2025952 051-5201234 (W) 051-5201231(F)

FS Goldfields (interest group)

Rina van Zyl: Tel: 057 388 4543 [email protected]

Submission of material for inclusion in body of newsletter:

To simplify editing, please use Word

documents or plain text Paper size – A4.

Font: Ariel Font size: Titles 14 pt.

Body of document 11 pt. Any photos/pictures to be sent separate from text with a labelled text box in the

document at insertion point.

Advertising Rates:

In body of Newsletter

Full A4 page - R 200

Textbox A5 size - R 100

Textbox ½ A5 size - R 50

Scanning if not in electronic format

R 50/page.

Inclusion of flyers (postal & electronic)

R 100/page – to be supplied ready for inclusion - Printed and Electronic form (PDF).

NO CHARGE FOR SANDTA RELATED

COURSE ADDS

Schools/Centres/Clinics catering for people with cerebral palsy will be charged a nominal amount (R50) to help cover printing and postage.

To negotiate rates please contact the editor: e-mail: [email protected] tel: 021 794 6903 (preferable ) or cell: 082 9277776

Newsletter deadline Submissions for the newsletter

must reach the editor before

31 July 2009

newsletter may 2009 - sandta · [email protected] treasurer: sonja berry ... south...

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